Good Morning! Well, I have been blessed to write two books, have our story turned into a documentary and have a spoken word I wrote end up on an album. All praise and glory to God. The past several years, I have been writing songs. At this time I use the word “songs” very loosely. But has my health continues to decline, I thought now would be a good time to connect with some songwriters and see if what I have written is any good or needs a lot of work. So if you’re a songwriter or know a songwriter, please feel free to connect with me. I look forward to hearing from you. Have a wonderful and blessed day. ~OC
Blog
Guiding Light
Today’s a new day!
Our hope in Jesus, a beacon of light in our darkest moments,
With every step, with every misstep
He lifts us up, standing tall
In His love, we find our way
Through trials and tribulations each day
With faith as our guiding light
We navigate through life’s struggles
Jesus, is our Savior, and friend
Our hope in Him will never end
May His presence be our guiding light
Leading us step by step. ~OC
The Gators
Today’s a new day! Here’s a little something I wrote about Florida Gators Football:
In the heart of Gainesville, where Spanish moss freely hangs from the live oak tress,
Gator fans roam, with excitement building inside
Their orange and blue, is a fiery sight,
Walking towards The Swamp, ready to witness another electric night
From Steve Spurrier’s Fun ‘n’ Gun, to Urban Meyer’s championship runs, to the legends of Emmitt, Wuerffel and Tebow, The Swamp is electric, year after year, as the Gators stand tall
With every snap, another memory is made,
From strength and grit, to their will to win, push the Gators towards another big win
From the banks of the Swannee River, to The Swamp’s roar, the Gators Won’t Back Down,
They stomp and chant, and proudly do the chomp,
The team, the fans, the passion, the memories unbound. Go Gators! ~OC
Love…It’s That Simple
Today’s a new day! As we end another week, I thought I would challenge my Christian brothers and sisters with the following question:
As followers of Jesus, what can we do about all of the issues the world is facing right now?
There are many different directions we could go in answering that question. But as I have sat and pondered this question, one thing stood out to me above everything else. What the world needs from Christians in this time of so much division is Love. It sounds so simple, maybe even a little cliches, but love is the most powerful and effective tool we possess. Love can unlock doors and hearts that have been closed for years. Love is every Christians primary calling from God (Love God and love people Matthew 22:37). So why are so many Christians not extending love to everyone that God brings into their daily lives? I believe it’s because so many Christians are just as hurt as the rest of the world is right now. I believe we all hate where the world is today. But the more Christians choose to express hate, the more division and negativity is spread.
I believe it’s time for Christians to step into the calling that God has placed in each of our hearts. That takes changing our attitudes toward those we disagree with. That means loving those who think differently than us. That means loving those who look differently than us. That means loving those who speak differently than us. That means loving those who worship differently than us. Here’s a big one; it means loving those who vote differently than us. God’s love commands us to love people for who they are, not for what they do. Let that sink in for just a moment. But what does that mean? As I continue my faith journey, God is constantly reminding me that I need to love everyone because He created them in His image, and Jesus came and died a brutal death on the cross for each and everyone of them, regardless of their lifestyles, actions and beliefs.
I believe the job of every Christian is to love people for who they are, not for what they do or don’t do.
Loving people for who they are is the way that Jesus loves each and every one of us. He showed that love while walking on this earth. Throughout the Bible, we see examples of Jesus loving people right where they were. The actions or the position of a person did not matter to Jesus when it came to loving them. All that mattered was that God created them. Loving people unconditionally is the example that Jesus set. In 1 John 4:19 we read these words, We love because He first loved us.”
Loving people unconditionally is not something that comes naturally for most people. It’s a daily choice. We have to choose to love the people in our lives that can be difficult to love. I encourage each of us to make a conscious effort to love even the most difficult people in our lives. Take a moment to think about those difficult people in your own lives. No matter what they believe, no matter what political party they follow, no matter the lifestyle they decide to live, love them because Jesus does. He gave his life for them.
As Christians, we have been called to live like Jesus and unconditional love is what we need to be showing the world.
Jesus died willingly on the cross so that we would be saved. Jesus died regardless of our views, beliefs, or our lifestyle choices. Even if we decided never to follow Him, Jesus still saw each of us as worth dying for. Now that is unconditional love. I believe every Christian is called to love others in the same way that Jesus chooses to love each of us.
“Love is patient, love is kind. It does not envy, it does not boast, it is not proud. It does not dishonor others, it is not self-seeking, it is not easily angered, it keeps no record of wrongs. Love does not delight in evil but rejoices with the truth. It always protects, always trusts, always hopes, love always perseveres. Love never fails.” ~1 Corinthians 13:4-8
This world is currently in turmoil. This is a great time for Christians to step up and truly love people. All people! Regardless of where they’re at in life. So today, just love people and let Jesus do the rest. Have a great day! ~OC
Marriage Vows
Today’s a new day! On this date twenty-six years ago, I had the honor of marrying my bride Laura. When we shared our vows on that Friday night we had no idea that the majority of our marriage would center around my health issues.
Like every newlyweds, we thought The big stuff, the hard illnesses, would come later in life. That definitely has not been part of our story.
I was taken by surprise when life-threatening illness hit our home – and even more surprised when it happened to me. Without any warning signs, I began experiencing severe fatigue and muscle weakness. Within a few months and after a number of tests, Laura and I were told I had several forms of crippling arthritis. Only to find out a year later, I was actually dealing with a very rare type of cancer. (only 2% of the population deals with this type of cancer). We had no idea how that diagnosis and then multiple life threatening diseases would become part of our everyday lives.
My wife Laura and I were still in our honeymoon season of our marriage. This kind of thing wasn’t supposed to happen. I felt helpless as Laura cared for me in addition to working her full-time job and working on her masters degree. While I was in the hospital, she stayed by my side, trying to work and get some rest in some uncomfortable chairs. Watching her husband struggle to just breathe at times.
Over the years, Laura has taken on most of the she household responsibilities. She makes meals, vacuums and chauffeurs me to multiple medical appointments. She does this all with a smile and encouraging words.
I was and still am blown away by how Laura continues to care for me all these years later. At times, I have found myself frustrated that I cannot do more to make her daily grind a little easier. Her kindness continues to overwhelm me.
As I reflect on this health journey we continue to walk together, it gives me a deeper appreciation of God’s purpose for marriage. Sacrifice is lived out in homes around the world as couples serve each other through illness, financial crisis and family issues. No matter their story, husbands and wives face opportunities to love without seeking anything in return. Why? So they can experience God’s heart through one another and live His love for one another.
Every opportunity we have to serve our spouse gives us the chance to live out the love story God crafted for us. He gave His Son so that we could have life. There was nothing we could give in return – nothing we could do to pay Him back. And yet He chose to give anyway.
Laura continues to live out her commitment to stand by me in sickness. She has more than fulfilled her marital vows – she has become a living illustration of God’s love. ~OC
Don’t Back Down
Stand up for what’s right, don’t be swayed
By the voices that try to make you stray
Be brave, be strong, and hold your ground
Fight for justice, let truth be found
Raise your voice, let it be heard
Speak out against injustice, undeterred
Don’t let fear silence you, don’t back down
Stand firm, wear your heart in this town
Be a beacon of hope during the dark times
Shine your light, let it guide the way
For a brighter tomorrow, a better day
Stand up for what’s right, come what may
Your voice matters, your actions too
Make a difference, see it through
Stand up for what’s right, be bold
Create a world where love never grows old. ~OC
God’s Hope
Good morning! Over the years, I have enjoyed writing what I will loosely call poetry. So I have decided to share some of my “poetry” with you. Be kind.
A light in the darkness, a beacon so bright
God’s hope shines upon us, a guiding light
In times of uncertainty, it leads the way
A promise for tomorrow, of a brighter day
With faith as our anchor, we hold tight
Through life’s storms and trials, we allow God to navigate the night
God’s hope sustains us, a constant friend
A love that’s unwavering, till the very end
May God’s hope inspire you, uplift your soul
A reminder of love, that makes us whole
In His presence, we find our peace
A hope that’s eternal, a love that never ends. ~OC
Flashing Neon Sign
Today’s a new day! As with many neurological illnesses there is nothing noticeable about my condition. It’s not like a broken leg or arm where there is a cast which is obvious when seeing the person. But I cannot tell you how many times I have heard the same old words since my diagnosis last fall, Todd, you do not look like you have dementia.
I often wonder if it comes down to the fact that people feel uncomfortable talking to me about it, so they say the first thing that comes to mind. Which at times can come across as very insensitive and judgmental. Since my diagnosis of early onset dementia caused by my Parkinson’s, I have had several people tell me I do not look or act like someone with dementia. Or Todd, maybe you’re just dealing with an infection of some kind and just need to take some antibiotics. I would be overjoyed if that was actually the case. But I have some amazing doctors and they didn’t come up with this diagnosis lightly.
What does dementia look like? There is no cast or bandage to put on it. I guess I could wear a flashing neon sign that says, “HELLO, I HAVE EARLY ONSET DEMENTIA!” that lets people know of my latest diagnosis.
But seriously, I am walking through a very new and strange season of life, but I know I am not the only one. It simply gets frustrating when people decide to find a different diagnosis or make you doubt your current state of health because they do not like the diagnosis. It can be irritating and cruel when people doubt you and your medical team. Believe me, no one wants to sit in a doctor’s office and hear the words “You have early onset dementia.”
I do think that part of this attitude is because people have a hard time believing someone in their 50’s could have an “old person’s” disease. Also the topic of dementia is not an easy or fun subject to talk about. It can be easier to just ignore it or try to explain it away.
I also believe people have their own preconceived beliefs about dementia and I and many others suffering from this horrible disease do not fit in their picture of dementia.
So please do me a favor. Stop putting your personal beliefs or opinions on those suffering from a visually invisible disease or one that you don’t like. Life with dementia is already hard enough. Thanks for listening. ~OC
The Race Called Life
Today’s a new day! During my running days, I was blessed to complete 350 marathons. Yes, you read that correctly. I can take no credit. It was all God pushing me through those marathons. People often ask me why I ran 350 marathons? I tell them I did not like the number 349.
It’s been a number of years since I was able to run based on my health issues. While I would have never considered myself a professional by any means, I like to think I learned a few things during my running days. Like how to stabilize my breathing (well, I did my best) and how to run at a steady pace. Once again I tried my best. Running is a lot like living the Christian life. We have many lessons to learn. I learned a lot of lessons during my running days that I have been able to apply to my Christian journey.
One of the first lessons you learn when you start running is that you need to have endurance. Whether you’re running a 5K or a 50 miler (yes, I did that), you need to train so that you can run at a steady pace and not get worn out quickly.
The Christian life requires endurance as well. Life can seem long and hard as Christians, especially in the midst of challenges. Many people have made the comparison that life is a marathon, not a sprint, and the same goes for the Christian life. As the writer of Hebrews says, “For you have need of endurance, so that when you have done the will of God you may receive what is promised” (Hebrews 10:36).
When you’re running, especially long distances, you want to lay aside everything that could weigh you down so that you only have the essentials. Lightweight shoes and light breathable clothing. As a runner you need to find the perfect balance between bringing what is necessary and those things that would just weigh you down.
In the Christian life, we are called to lay aside what weighs us down—namely, sin and any idols in our lives. Hanging on to those idols can cause our faith to falter and stumble. Letting go of idols in our lives frees us to live a life that is dedicated to Jesus. As the writer of Hebrews says:
“Therefore, since we are surrounded by so great a cloud of witnesses, let us also lay aside every weight, and sin which clings so closely, and let us run with endurance the race that is set before us, looking to Jesus, the founder and perfecter of our faith, who for the joy that was set before Him endured the cross, despising the shame, and is seated at the right hand of the throne of God.” (Hebrews 12:1–2)
As a runner, you come across trials and challenges. Whether that’s a heatwave, snowstorm, rainstorm, or injury, runners face challenges that impact their race. You can never predict these trials and instead you just have to take them as they come. But you cannot allow the obstacles in life to keep you from living the race God has designed just for you.
In the same way, as Christians we can face unexpected challenges and suffering. From a poor diagnosis, a lost relationship, a lost job or a broken family. This race called life can be difficult. But thankfully, we are being made perfect through the grace of God. As James writes in James 1:2-4, “Count it all joy, my brothers, when you meet trials of various kinds, for you know that the testing of your faith produces steadfastness. And let steadfastness have its full effect, that you may be perfect and complete, lacking in nothing”
My prayer is that we will all run this race called life with endurance and receive the beautiful gift of eternal life. ~OC
My Life With Dementia
Today’s a new day! As I continue to walk through this crazy beautiful health journey, I have always wanted to be upfront and honest when sharing my journey with you. So this morning, I want to share a post I have been working on for several weeks. It’s my life with dementia. I apologize in advance for the long post.
When I was diagnosed with young onset dementia last year, part of me thought there has to be a mistake, but it was also a relief to have some answers on why my life seemed a little out of focus. But it was still hard to hear “you have dementia.” Like so many people diagnosed with young-onset dementia, I was still planning a future with my bride. How was dementia showing up in my 50’s?
But here I am, almost a year later.
What I have learned is a dementia diagnosis isn’t the end of life. It just means life looks a little different.
Of course my life has looked a little different for the last twenty-three years dealing with multiple health issues. But over the last two decades, my faith and life experiences have taught me it’s possible to live a fulfilling, purposeful, and even joyful life even while dealing with the uncertainty of declining health. A diagnosis of dementia was not going to change that. At least I hope and pray that will be the case.
So as I walk out this journey called dementia, I wanted to share a few things that are working for me. This is not a neat how to live with dementia list, because dementia is not an easy follow these instructions and everything will be okay disease. No, dementia is a unpredictable roller coaster ride. Every day brings new challenges, but also new opportunities.
My hope and prayer is that this blog post will help create conversations. If you’re living with dementia, or supporting someone who is, I hope these tools help you live a full life regardless of the diagnosis.
My Dementia Toolbox:
I choose to live each day with Hope and Purpose.
I choose to live a life full of new adventures. Never stop making memories with family and friends.
I choose to maintain my independence as long as possible.
I choose to continue connecting with family and friends.
I choose to adapt to the changes dementia brings and never give up.
I choose to hold onto my identity and what makes me “me.”
I choose to keep learning new things each day.
I choose to live out my life and faith.
I choose not to avoid the declines that dementia brings, but to make the most out of every day and refuse to let dementia silence me.
Finally, living with dementia is not an easy journey. There are moments of loss and frustration, but there are also unexpected discoveries, laughs, and the good will of family and friends. ~OC