Hope and Joy

Today’s a new day! The following post is one that I have been writing and rewriting for months. I am not sure it’s exactly everything I want to say, but sometimes you just have to put it out there and not worry about the response.

What if I shared with you that when I look at this crazy beautiful health journey I am on, I do so with hope and joy in my heart?

In the midst of countless hospital visits, treatments, pain and surgeries there has been indescribable hope and joy that has surrounded my every step.

Let me share some truth with you. It has not been my health journey that has that brought me this hope and joy. Far from it. The hope and joy that I live with comes from someone else. You see, as I have experienced my health declining over the years, I have become intimately aware of how fragile life really is. I have become more aware of how short, and how painful our time can be on this journey called life. This has led me to crave for a life that God promised to those who would follow Him. A life where there is no more pain, no more suffering, and no more death. 

As I have run this grueling health journey, I found myself more desperate for God’s word and the peace of heaven. There were days I fixed my eyes on heaven just to get through the day. But then something amazing began to happen. The more I focused on God’s promises and heaven, the more I felt alive and renewed. Even though my body continues to decline, I have experienced more hope in the promises found in the Bible than ever before. I started leaning more into those promises because that’s where I find my hope, peace and strength. I have to make a daily choice to totally embrace God’s promises or allow this health journey to consume me. To become my identity.

I began to see the scriptures in a whole new way. Verses like the following:

“My brothers and sisters, you will face all kinds of trouble. When you do, think of it as pure joy. Your faith will be tested. You know that when this happens it will produce in you the strength to continue. And you must allow this strength to finish its work. Then you will be all you should be. You will have everything you need.”~James 1:2-4

“For I consider that the sufferings of this present time are not worth comparing with the glory that is to be revealed to us.” ~Romans 8:18

So we do not lose heart. Though our outer self is wasting away, our inner self is being renewed day by day. For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison, as we look not to the things that are seen but to the things that are unseen. For the things that are seen are transient, but the things that are unseen are eternal.” ~2 Corinthians 4:16-18

I know as some of you read this post, you’re facing major storms in your life. Life seems overwhelming at times. So, when some guy is telling you to “think of it as pure joy”, it might bring out feelings of anger rather than joy. I get it. But just for a second asked yourself, “What if these verses are true?” What if even during the toughest moments of your journey, the cancer diagnosis, the Parkinson’s diagnosis or some other challenge is actually being used to make you perfect and complete, lacking in nothing? And that even the deepest hurt will someday be replaced with insurmountable love, peace, and joy.

The hope and joy I am writing about may not always look like happiness the way we understand it. The hope and joy that comes from following God and focusing on heaven is not the same as what the world defines as joy. I believe it’s far more rewarding.

The world connects joy to a moment, experience or circumstance. So, if life is currently full of sunshine, we have plenty of reasons to celebrate. But the amazing thing about God’s joy is that nothing in our life could be going right, but with God’s help, we can still find the strength within our soul to praise, to help others, and ultimately, still have hope and joy.

The darkest moments of my health journey are filled with hope and joy because I continue to cling to the beautiful promises of God. They are my lifeline. And as I continue to hold onto that hope, my head miraculously stays above the raging seas. The storms that surround me haven’t changed, but I know even the biggest battles in my life cannot take away my most precious gift in life, my relationship with God. And for that, I am forever grateful.

As I close out this post, I want you to hold onto the following truth: The hope and joy that comes from Heaven, far outweighs the trials we will face here on earth. ~OC

Truly Living

Today’s a new day! Are you just merely existing in this journey called life?

As I look around me, I see so many people who are just walking through the motions of everyday life, but they are not truly living life. They are not embracing it. For whatever ever reason they have stopped living before their hearts stopped beating. 

As I have walked this crazy beautiful health journey for the past twenty-three years, I have learned that living a meaningful life has nothing to do with how much money you have in the bank or the materialistic things that you may possess. To truly live has nothing to do with your status in life.

To truly live life is to appreciate everything that you are. To live your life being aware of all your shortcomings but still loving yourself. To understand that those imperfections are part of who you are. To realize that you do not need to change anything about yourself to just impress others. Make changes because they make you a better person. To understand that you are far from perfect but you are unique. There is only one of you walking on this earth. To truly live is to be happy with the person that God uniquely created…You.

To truly live life means to take that trip now, instead of waiting for the right time. The right time is now. A lot can happen in life between now and the right time. Choose to embrace adventure now.

To truly live life means to be in the present, to live in the moment and not waste your time dwelling on the past, or what could have been. To let go of what has happened and focus on what you can do right now to live a better life. To be a better person.

To truly live means to appreciate everything around you. To take time to watch the sunrise or sunset, listen to the birds singing, sit by the ocean or call up some friends to get together to just celebrate living.

To truly live life is to be okay expressing your feelings. To accept that sometimes we need to laugh, cry or scream. To allow yourself to grieve and heal.

To truly live life is to appreciate each moment. To find awesomeness and wander in every day life. To make the choice to get up every day and try to make the best of every day because you don’t know if you’ll be here tomorrow. To try and learn something from each of your life experiences.

To truly live life is to spend time with friends and loved ones. To surround yourself with those that encourage, challenge and inspire you to live your best life.

To truly live life is to find your purpose and live it out. To chase after your hopes and dreams and then go out and accomplish them. To never give up!

To truly live life is to be kind and respectful to others. To buy breakfast for the person in line behind you. To reach out to family and friends to let them know how much they mean to you. To smile at a stranger. To take time to do one selfless act, big or small, on a regular basis. To truly live is to try to make a difference in your part of the world. 

To truly live life is to make the world a better place for the next generation. This one life is a beautiful gift. Embrace it! ~OC

God Knows Our Future

Today’s a new day! We don’t know our future, but God does. He not only knows it, but God has carefully planned and designed it and has full control over it. From this point of view, our future, although different from what we may have imagined, it is in the most secure place: in God’s hands.

Whenever we feel scared and confused, we must remember that we know the One who knows our future and everything about us. God is the One who knows us on the most intimate level and knows our earthly life from our first breath to our very last one. ~OC

A Flicker

Today’s a new day! As this crazy beautiful health journey gets a little tougher each day, I want to take some time to share a few lessons I have learned along the way. The following has been written over a series of weeks and months. I hope it brings a time of reflection as you walk out your own journey.

  • Do not waste your time on things that you don’t enjoy. I have learned it’s hard to succeed in something that you don’t like. Patience, passion, and dedication come more easily when you love what you do.
  • Do not be concerned over other people’s opinions. Being caught up in others opinions can weaken and paralyze you. If you let it, it can grow worse and worse every day until there is nothing left of you, but a empty shell of yourself. Listen to God’s voice and go with it. Some people may call you crazy, but many may be encouraged by your choices.
  • Do not allow any person or situation to control your life. Take full responsibility for your actions. Limit bad habits and try to lead a healthier lifestyle. Find a hobby that makes you happy. Most of all, do not procrastinate. Make the most of each day. Let your life be shaped by the decisions you make not by the ones you didn’t.
  • Do not be so busy, that life slips past you. Appreciate the people around you. May your friends and family always be a source of strength and love. Never take them for granted.

It is difficult for me to fully express my feelings about the importance of these simple realizations, but I hope that you will listen to someone who has experienced how valuable time is.

I am not upset or scared about what lies ahead because this health journey has helped bring meaning and purpose to my life. Each day is a beautiful gift to be celebrated. So every day, I take some time to take it all in. Time is truly a beautiful gift.

As I continue to run this health journey, I have learned that everyone has potential. But potential means nothing without the courage to realize it. To believe that God has given each of us purpose in this life. To turn that purpose into amazing opportunities.

We can move through a life created by circumstances, missed moments and opportunities or we can strive for what we believe in and write the amazing story of our life. I hope you will make the right choice.

I pray you will leave a positive mark on this world. That your life will be filled with hope and meaning. Life is a beautiful playground, where dreams are possible. Yet, we are not here forever. Our life is a short spark in this beautiful world that flies by with incredible speed. So, live your life with meaning and passion. Embrace every moment. Make it spectacular. Make it count! ~OC

Timeless

Today’s a new day! Being a cancer survivor and dealing with multiple health issues forever changes your relationship with time. It seems to pass so quickly, and there’s always a question about how much of it you’re going to get. At times it can be overwhelming. But maybe that’s why I always loved running. A 5K, 13.1 or 26.2 run can feel timeless if you’re embracing every moment of the journey.

Before I had to quit running a number of years ago, running almost made me forget my health issues. As I continue running this crazy beautiful health journey, I realize time marches on whether we are ready or not. I am as ready as I’ll ever be. Let’s go! ~OC

The Church

Today’s a new day! We are the church scattered and sent out. Every believer is a missionary beautifully disguised as a teacher, business person, student, healthcare worker, journalist, first responder, mentor or parent. Be a difference maker wherever God has you planted. ~OC

“Nevertheless, each person should live as a believer in whatever situation the Lord has assigned to them, just as God has called them.” ~1 Corinthians 7:17

Simply David

Today’s a new day! I wanted to take a few days before responding to the irresponsible comments made by Secretary of Health and Human Services Robert F. Kennedy, Jr. earlier this week.

Laura and I have a wonderful and loving nephew living with autism. I should correct myself and say that David is thriving in life. As a child, the doctors shared David would never talk, or be able to take care of himself. Oh, how wrong they were. Today David is in his mid twenties and will talk all day if you let him. He also works two jobs and pays taxes. David has won multiple Special Olympic Medals. He and his father volunteer weekly at their church. Everyone at church knows and loves our nephew. David is living his best life.

So when Mr. Kennedy stood before the cameras and declared that children like David “will never pay taxes, never hold a job and never write a poem, I looked on with horror. Mr. Kennedy then went on to claim autism is “a preventable disease” and promised a lightning-fast investigation to root out its so-called environmental causes. While we must look at every possible cause of autism, including environmental factors, we cannot ignore the decades of scientific research that has already been conducted.

And remember, this is coming from a man with no real medical background.

This coming from the man responsible for guiding the United States’ national health policy. Let that sink in for just a second.

What Mr. Kennedy did at that podium was spew misinformation. It was a new level of fear-mongering. It was the 21st-century version of a snake oil salesman promoting false promises with no credible science.

Let me share what autism actually looks like.

It looks like David playing tennis or pickle ball. It’s David being so excited to dress up like Spider-Man to bring some enjoyment to others. It looks like David always checking in on me during and after a hospital stay. It looks like David making Auntie Laura a sandwich or bringing her a fresh drink. It looks like David constantly looking for ways to serve others. That’s what autism looks like.

David is not a victim. He does NOT fit any of Mr. Kennedy’s cartoonish depiction of helplessness.

I realize autism looks different for every individual and family. But in my nephew’s case, he is kind, he continues to learn and he is thriving in life. David has already defied every negative prediction made about him when he was a child.

And if I have to listen to Mr. Kennedy or any other politician turn my nephew into a sound bite for political gain, I will keep using the power of my voice and the power of the pen to call out such blatant misinformation. And I will continue to encourage everyone to reject these false narratives by voting against them on election day.

My nephew is not a tragedy. And he is certainly not an epidemic. He is simply David. A young man with hopes and dreams like the rest of us.

I would encourage everyone to actually do your own research on autism and other health issues and not the words of a man who only cares about pushing his own twisted agenda. Thanks for reading. ~OC

New Set of Clothing

Today’s a new day! As we walk into a new week, I want to share a little bit with you.

I encourage everyone this week to put on a new set of clothing. Instead of judgment, try on forgiveness… instead of hate, try on love… instead of retribution, try on grace… instead of war, try on peace… instead of following the crowd, why not lean into the promises of Jesus. Today’s world is so polarized and broken and it breaks my heart. The older I have gotten, the more I have come to realize what is important in life. What is important in life is how you live… to live with an attitude of love… to follow the words of the prophet Micah: do justice, love mercy, and walk humbly with God… and, of course to love God with all of our heart, mind, soul, and strength while also loving our neighbor (all of them, even those who are difficult to love) as ourself. Have a blessed Holy Week. ~OC

Hold On And Lean In

Hello. Here is another “Lost Writing from OC.” I wrote this one back in 2019.

Today’s a new day! As we walk through this journey called life, Jesus told us pain and suffering would be a part of our lives:

“I have told you all this so that you may have peace in me. Here on earth you will have many trials and sorrows. But take heart, because I have overcome the world.” ~John 16:33

I love that Jesus did not simply say we’ll have trials and sorrow and then leaves it to us to figure out. No, He promises peace and reminds us that he has overcome the world, meaning the tough times we face in life are not without purpose.

Our pain and suffering often sets us up to see God supernaturally working in our lives.

Regardless of what pain and suffering we might currently be walking through or what challenges we might face in the future, here are some lessons God as taught me as I have walked out my own crazy beautiful health journey:

Bring Your Pain To God, Do Not Run From Him

When we run from God in seasons of challenge, all we’re left with is our own limited ability to cope with what we’re walking through. On the other hand, God invites us to draw near to him that we might experience his peace, healing, and closeness and this is what Scripture points us towards.

 “The Lord is close to the brokenhearted; he rescues those whose spirits are crushed.” ~Psalm 34:18

“He heals the brokenhearted and binds up their wounds.” ~Psalm 147:3

Like our need for a surgeon to address physical wounds to our body, God desires to conduct divine surgery on our soul which results in supernatural healing despite how difficult our challenge.

When we bring our pain to God we recognize that there is a purpose and in time the One who loves us unconditionally will reveal his divine purpose through it.

Fill Your Life With God’s Word and God’s People

How we respond to pain and suffering is vital to how we process what’s happening and how healing will take place. If we treat physical sickness with the the wrong medication, not only will our illness continue, but it could possibly become much worse.

Also if we fill our minds with wrong thoughts: God is mad at me, God is not good, worse things are going to happen, etc., we will struggle to experience the peace of God he promises to us in scripture. Check out Philippians 4:7.

But when we choose to fill our lives with God’s Word and surround ourselves with people who speak hope and encouragement into our lives, we will experience more peace as we walk out the tough moments in life.

“How sweet your words taste to me; they are sweeter than honey.” ~Psalm 119:103

When we fill our minds with God’s Word, we are reminding ourselves of who our God is, what he’s like, and we replace the lies of the enemy with the truth of our good God.

Do Not Be Filled With Worry, Allow Your Life To Overflow With Worship

Powerful things begin to happens when we actively choose to worship God through our suffering. This is not denying the reality of the situation, it’s simply redirecting our efforts from one of worry to one of worship.

Worship changes our perspective. Worship speaks about where our confidence and hope resides. Worship redirects our thinking. Worship places the results in God’s hands. Not ours.

Regardless of where our pain and suffering come from, when we begin to worship God through our struggles, spiritual chains begin to break so that we are not ruled by our current circumstance but we set our eyes on something higher.

Believe That God Will Take Our Sorrow And Turn It Into Great Joy

As we walk through the storms of life, we must remember God can take our worst moments and turn them into something good. Of course it’s not always easy to see that when we’re being knocked around by the crashing seas. When we think about Jesus’ greatest sorrow – suffering the shame, punishment, and death for our sin, the result was great joy – the redemption of humanity and the opportunity for a relationship with the living God.

When I reflect on my own health challenges which has brought great pain, I see how God has used this season of discomfort to strengthen and encourage others which has resulted in my own comfort and joy through this crazy beautiful health journey.

Paul writes in 2 Corinthians 1:4, “He comforts us in all our troubles so that we can comfort others. When they are troubled, we will be able to give them the same comfort God has given us.”

Jesus willingly suffered the greatest pain because he knew the end of the story, and so do we. The words in Revelations 21:4 should bring us great comfort:

“He will wipe away every tear from their eyes, and death shall be no more, neither shall there be mourning, nor crying, nor pain anymore, for the former things have passed away.”

Also as we walk through pain and suffering of this world remember these words of Jesus:

“I am leaving you with a gift—peace of mind and heart. And the peace I give is a gift the world cannot give. So don’t be troubled or afraid.” ~ John 14:27

“And be sure of this: I am with you always, even to the end of the age.” ~Matthew 28:20

I pray this post brings you encouragement as you walk through a tough season of life. Keep holding on and leaning into the promises of God. ~OC

Live On Mission

Today’s a new day! Several weeks ago, someone online asked me with everything going on with my health, what keeps me motivated to keep writing and trying to be a positive influence?

Living out this crazy beautiful health journey is not easy. The journey has been full of twist and turns. Whether it’s multiple doctor appointments, test after test and too many hospital visits to count. As I have run this race, God has allowed me to share this health journey with multiple people and groups. Whether that’s through having one on one conversations, people reading our books, watching the documentary He used to share our story, this blog or by my postings on social media. I take the things God has called me to do seriously because it is my act of worship and service to Him. Since I started dealing with these health issues so many years ago, God has allowed me to share this journey with so many people. It has been a true pleasure, but also a major responsibility. A responsibility to not make this story about me. Most days, I am dealing with a lot of pain and discomfort as I write and share what’s on my heart. Also these days because of the diagnosis of Early Onset Dementia, finding the time and the words is becoming much harder. Plus, based on my health declining, I find myself sleeping much more these days. So creating new content is much harder than I expected it to be. Plus it takes a lot out of energy and vulnerability to share about everything that life brings me each day. It’s not always pretty. I spend a lot of time praying about what I should share and post. I create and write to encourage others and point people to God. That is one of my great desires.

What keeps me motivated is not about gaining followers or affirmation because those things will fade away and are not reliable motivations. The answer to the question posed to me several weeks ago can be found in John 3:30, “He must increase, but I must decrease.” Because when I try to run this health journey or write on my own, I end up in a crazy mess of pride, but when I live and write for Him, life is much fuller and sweeter.

As I continue to run this health journey, I want to spend my time and energy making much of Jesus and living in the fullness of His presence. I do this by using the gifts and passions He has given me to create writings that will hopefully encourage others and help them as they walk through their own life journey and to begin seeking a stronger relationship with God. I believe this quote by Francis Chan sums it up pretty well, “Our greatest fear should not be of failure but of succeeding at things in life that don’t really matter.” I want the things that God allows me to share to outlive me. I want my life to make an eternal difference.

When I look at the life of Jesus, I see a life on mission. He came and lived out a purpose driven life. Nothing distracted Him from His mission, and through the cross, He invites us to live on mission right where we are. Though most of my days are spent living with various health concerns, I want to meet with Him through it all. I do not want to waste the precious moments I have been given dreaming and wishing my journey looked different – I want to do all that I can with what God has given me. I want to use the time, energy, talents, and dreams God has placed in my heart to bring Him glory.

When I get to the end of each day, I want to be able to say “Lord, I did all I could to be your hands and feet. I want my legs to be tired, my body to be spent, and my mind to be at peace knowing that I am living for Him and not the temporary. Even if it means I have to get a little uncomfortable, or show some vulnerability, I want my words to be His tools with a purpose. More Jesus, less me, is my motivation to write, create and share my crazy beautiful health journey with others. I want to live on mission. ~OC

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