Tag: Adventure

A Beautiful Gift

Today’s a new day! It’s only been a week since I was given the diagnosis of dementia. But the symptoms have been showing for a number of years. Since my diagnosis life has been filled with many phone calls and text from concerned family and friends. I appreciate them all. In the past week, here are some things I have thought about as I begin my journey with dementia.

My dementia diagnosis does not define me. Although the diagnosis is life changing, I will not allow it to change who I am. I will fight that battle for as long as I can. I will continue to love people the way I always have. Probably a little more. I totally understand dementia is a progressive disease and I may not be able to do all the things I once did, but I want to continue doing the things I enjoy for as long as I can.

If you want to know how I am doing, just ask me. The sudden change in how others communicate with me since my diagnosis has been a little frustrating. Trying to avoid conversations about my diagnosis of dementia will only make me feel uncomfortable and isolated. I am still me. For now.

Yes, the diagnosis is correct. I wish it wasn’t, but it is. Younger people can be diagnosed with dementia. While the vast majority of people are affected by dementia at an older age, the disease can affect younger individuals. If you have concerns about your own cognition, I encourage you to get checked out regardless of your age.

Please don’t debate my diagnosis or tell me I don’t look like I have dementia. Do not attempt to dismiss the diagnosis. Those responses can be offensive. It is hard enough to tell someone I have dementia , let alone having to defend it. You may not see my dementia, but I live with it every day.

Please understand that sometimes my words and actions will not be the true me. It’s the dementia. As the disease progresses, I might deal with anxiety, confusion and a host of other issues. There are days I may want to sleep more. Remember, I am still me, just a little different.

My dementia diagnosis does not mean my life is over. I plan on continuing to live an active and memory filled life as long as possible. Laura and I plan on continuing to embrace life to its fullest.

So please keep reaching out and treating me the same old way. Social interactions are very important to my wellbeing. So do not be afraid to call, come by the condo or plan a time to meet. My life continues to be a beautiful gift. ~OC

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When Life Knocks You Down

Today’s a new day! This has been a tough week for me mentally, physically emotionally and spiritually. I heard words from doctors this week that have not been promising. This week has made me press into my faith even more.

It’s easy to have faith when life is treating you well. When everything is working out. It’s much harder to have faith when you are facing challenges in your life. But that is exactly when you need to apply your faith. When you need to lean into your faith even deeper. Because faith is believing beyond the grime diagnosis from the doctors.

Faith is taking the first step.
Faith is jumping in the deep end and trusting everything will be okay.
It was easier to be positive back in the day, when I could lace up my running shoes and go for a 50 mile run. It’s much harder, much much harder when I have days where it’s hard to just walk across the living room without feeling like I have just run a marathon. Life was much easier when I could easily remember why I walked into another room. When my brain did not feel like I was in a constant fog. Living out our faith is so much easier when life is not so demanding. But that’s actually when we need faith the most.

We need faith and usually find faith when life is hard. On days, when we are fighting to just survive. Those are the days when we need faith the most. Because everything that means anything is worth the fight. Everything worth living for will require a real fight to achieve it. You and I cannot decide to quit half way through the race. We must run every step. Even when that next step is the hardest.

This crazy beautiful health journey has knocked me down a few times along the way. But I keep getting up. This week hit me like a severe cramp during a marathon. This week’s life changing diagnosis rocked my world. I was knocked down. I had to dig deep to get back up. But I did get back up. I didn’t stay down. My friend you need to keep getting back up when life knocks you down.

Here are 3 things I want to share about getting back up when life knocks you down.

1). Remember:
God still loves us and there are still many things to be thankful for.

We need to remember that God has given us many promises to hang onto. Check out Romans 8:28, Jeremiah 29:11, and Isaiah 40:31.

2). Connect:
The greatest temptation when we are feeling “down and out” is to isolate ourselves. We may feel embarrassed or lost about our current situation, or wonder if others will understand. We may think we can’t express how we are feeling. But the tough moments in life should connect us with God, our family and friends.

3). Pray:
We can pray that God will give us the opportunity to share what we are learning with someone else. As we begin to focus on others, we lose the grip of self-focus and all the negative feelings that can go along with it. Little by little, we will be planting seeds of a powerful life story we can tell some time in the future.

Here is a prayer that I hope helps as you walk through the tough days and keep getting back up:

Dear God, remind us that trials are to be expected. Help us keep our reactions under control and within Your will. Give us great strength to endure this trial in a way that is refining and transforming -for Your glory. ~OC

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Broken Pieces

Today’s a new day! As I study the Bible, I see that those who did God’s work were often those who made the biggest mistakes and had to learn the hard way. Just like some of us. They were no saints. As we walk this journey called life, there are wounded and broken people all around us. They might be family, friends, neighbors or coworkers. They might be the people we sit next to at church. We may not actually see their wounds, but we can usually tell when people are sad or struggling or just not themselves. Most of us have been there at some point in our own lives. We have dealt with health, relationship or finances issues. That brokenness is very personal, so much so that we often do not want to share the details with anyone. That brokenness is unique to each of us. It’s ours, nobody else’s.

Yet in a strange way, it connects us with each other as something that we have in common.

We all have our stories, battles and wounds from this world. Broken things are often despised and thrown out. Something we no longer need. We just toss them away. We tend to reject damaged goods. That includes relationships. Often when relationships breakdown, the tendency is to walk away and find someone new.

But throughout history, we see where God chooses to use broken people.

The world is full of people with broken hearts, broken spirits and broken relationships. Maybe this is hitting close to home. But there is no reason to close yourself off from the world because you might get hurt. Again. I want to remind you of the words in Psalm 34:18, “The Lord is near to the broken hearted and saves the crushed in spirit.”

That verse is so true. God’s love can shine through the cracks and through our broken lives. Life at its best is letting the light and the love of God shine through, especially at our broken places. Only God’s love shining through will bring proper healing and transformation. When life is going well and there’s lots of sunny days, it’s so much easier to see God at work in our lives.

But in those dark days, we see God’s presence and strength shared with us in a different way. He is stronger than our darkest moments and if we trust in Him, we will grow in grace and confidence and others will notice that light shining through our cracks. But in those moments, we might need to be open and vulnerable to others.

We all know how difficult, but rewarding building relationships can be. It can be challenging to be real and transparent. We do not want people to know everything about us, but there are some painful issues that we can share, especially if we know that God is helping us through those difficult times.

Today, do you feel there are too many broken parts of your life to be of any use to God?

Believe me you are not alone. Jesus wants us to bring him all our brokenness and ask him to fill us with his light, that will shine through our cracks. So today, I pray you will lay all your broken pieces at the feet of Jesus. ~~OC

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Life…Is So Short

Today’s a new day! Life.. is so short. It will continue to go on. We cannot hold on and think that every day is promised. We have all experienced great losses in this journey called life. We have all felt that pain of losing a loved one, someone that we cared deeply about.

But yet we’re still here and now we must continue on. But what is the example that we’re going to leave? What kind of legacy do we want to leave behind? How do we lead the next generation? Hate is not going to make it work. Being afraid to be truthful to who you are will only limit who you truly are inside.

Don’t let anyone take that away from you. Don’t let anyone take away who you were created to be. Don’t be afraid, to be honest. Don’t be afraid to be different. Even being different can be difficult for a lot of people.

But I guarantee you this, there’s nobody in the world that can do you. When the time comes what would you leave behind? What legacy will be left behind to remind others of your greatness, of your losses, of your victories, of your sorrows? This is a short life that we all have. And it’s not easy, it’s not easy living it every day.

It’s not easy to go through so many different trials, so many different challenges. Maybe that challenge will be a lost relationship, job or financial struggle. It’s not easy walking through tough times in this life. We cannot blame life because it’s not the life that makes these challenges what they are today. It is the purpose and purpose never lies it will always tell you the truth.

But while we exist in this world right now I need you to hold on, I need you to hold on strong and don’t give up, I need you to believe in every possibility that you have and understand that it is not over for you. I need you to understand life is always going to be filled with good moments.

But keep in mind sooner or later, we will breathe our last breath. So keep pushing forward and don’t give up and don’t give in and do the best that you can to have the right attitude. To make your life matter. Your life is not an accident. Your life has so much meaning. Are you ready to take on the unknown? Are you prepared for it? You can’t even understand in most cases how beautiful it is sometimes to not even know what’s coming your way, but knowing that God is planning every step. Sometimes it’s not necessary for us to know everything, sometimes it’s not necessary to understand everything. But are you ready to embrace those moments of uncertainty?

There are a lot of negative things and people that exist in this world. People that can always find the negative in any situation. But we must make peace within our own heart. We must make peace in our community. Life.. is so short. ~OC

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Lived-Out Gospel

Today’s a new day! As I continue to walk out my faith journey, I am often asked what does the gospel look like when it’s actually lived out? I believe God gives us many characteristics of the Spirit-filled life. Here are three that stand out to me.

We cannot truly live out the gospel if there is no love. Love must come first. Jesus Himself said the first commandment is to love God, then others. He even said we are to love as He loved, which was to lay down his life.

Are we to literally lay down our lives for others? Some may be asked to make that sacrifice one day. But most of us share love by giving of our time, our talents or our finances. Sometimes love is just being there. During my many hospital stays, I have some friends who just come and sit with me. That’s love. Other times we love by listening, encouraging and praying for others. Sometimes we give the shirts off our backs, or buy a meal or provide shelter to a hurting world. Lived-out love is a powerful witness.

A second witness is grace. Grace is often an unclear or vague concept for some, so here are a few synonyms to help everyone grasp the powerful meaning of this essential truth: mercy, forgiveness, benevolence, charity, clemency, compassion, favor, forbearance, generosity, goodwill, goodness, kindness, leniency, pardon, reprieve, responsiveness, tenderness.

Grace never holds a grudge, or refuse to forgive. Grace does overlook an offense, speaks kindly when verbally attacked and believe the best about people. Lived-out grace is a powerful witness.

A third evidence of truly walking out our faith is by living an authentic life. How many times have you heard someone say something about “hypocrites in the church”? Authenticity means we speak truth no matter the cost. We actually live out what we say as much as possible; we wear no masks. We consider the impact our words and actions have on those watching or reading what we say. We are even willing to be vulnerable. Wow!

Those are risky actions. We could be misunderstood, disapproved of, even shunned or taken advantage of. But we wouldn’t be hypocrites. We would be true, real … authentic. Lived -out authenticity is a powerful witness.

May we live out the gospel with love, grace and authenticity so that people will actually see Jesus in us. ~OC

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Twenty-Five Years. Twenty-Five Lessons.

Earlier this week, Laura and I celebrated our 25th Wedding Anniversary. I can’t believe it’s been 25 years. This year to celebrate 25 years together, I want to share 25 things we have learned in this crazy beautiful journey. Obviously, we have learned more than 25 things, but these are the things that came to mind as I was writing this blog.

1). Pray continually.

2).Our faith in God, is what holds us together.  It’s the foundation for our relationship.

3).Protect your marriage by always putting it first…before self, before kids, before career, before parents, before friends. First. Period.

4).It’s ok to talk about how you feel. Just make sure those conversations are filled with respect.

5).Time alone together is important. Date Nights and getting away together once or twice a year is healthy for your relationship.

6).Learn the other person’s love language.

7).Laughter is good for a relationship.

8).Develop a shared interest. It can be simple. Laura and I like to travel and just sit around our house and chill.

9).You will face challenges in life. Work through those tough moments together. Always together.

10).Don’t allow family, friends or cultural to dictate your marriage.

11).In-laws can be challenging at times, but also a beautiful blessing.

12). Marriage not 50/50. It’s 100/100. However, you will not always both be able to give 100% and that’s ok. There will be times you and the Lord will carry things for the both of you. That is Love.

13). Don’t keep score.

14). Make the choice daily to love your spouse.

15). Serve your spouse even when you’re tired and maybe you don’t feel like it.

16). Communicate! Don’t keep things bottled up.

17). It’s ok to agree to disagree.

18). Having a separate interest is okay as long as it doesn’t interfere with your relationship.

19).Listen and let them know they are truly heard.

20). Tell your spouse you’re proud of them.

21). Support their dreams.

22). Critique with love.

23). When life gets tough, remember what you love about them

24). It’s a treasure to have someone to walk through the highs and lows of life with you.

25). Love always.

I am forever grateful that God has blessed me with a bride who loves God first. Also I have always known Laura loves me even on my worst day.

As I reflect on our 25 years together, 1 Corinthians 13:4-7 comes to mind:

Love is patient, love is kind. It does not envy, it does not boast, it is not proud. It does not dishonor others, it is not self-seeking, it is not easily angered, it keeps no record of wrongs. Love does not delight in evil but rejoices with the truth. It always protects, always trusts, always hopes, always perseveres.

To those couples that might be reading this post, I pray you will cling to the Lord and each other.  It’s what has carried Laura and I this far and I know it will you as well. ~OC

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Happy 25th!

Today, Laura and I are celebrating our 25th Wedding Anniversary. When you start out on this journey called marriage, your 25th anniversary seems so far away. But, as many people told us as newlyweds, time flies when you are having fun and it sure does.

We met at a singles event along the walking trail in Palm Beach, FL in January 1999. We enjoyed some great conversation and laughs, but we both did not walk away thinking that’s the person I am going to spend the rest of my life with. No, that would come a little later. But not much later. But we took those first few months to pray and get to know each other better.

So in April of 1999, we got engaged. I told you it was not much later. Then on September 3,1999, we both took vows to love, respect and cherish each other for the rest of our days. Oh, we also committed to love each other through sickness and health. Little did we know what was ahead of us in that area of our marriage. I think Laura drew the short stick on that one.

As many of you know, just a few years into our marriage my health started to decline. What we thought would be a short story of overcoming health issues, has turned into a twenty-two year and counting crazy beautiful journey. One that has drastically changed our marriage and our lives. But I believe Laura would agree, it has made our marriage and our lives stronger.

As we have walked this crazy health journey, we have been surrounded by some amazing family and friends. Some of those friends have been part of our love story from the very beginning. I am so thankful for their support during our journey and for having them share in so many special moments with us over the last 25 years.

The past 25 years have been filled with some tough moments. We have dealt with issues most couples will never deal with or at least not until they’re later years. We have been told countless times, that I would not make it for another 24 hours. We have celebrated countless holidays with me in the hospital. But through all of those tough moments, we dealt with them together. And we laughed. One of the promises I made to Laura on the day we got married, was I would make her laugh every day. Even through the storms of life, I am happy to say I have kept that promise. As Laura and I have traveled this journey we realize that marriage is just two imperfect people refusing to give up on each other. We have made our marriage a priority and kept God at the center.

As we celebrate our 25th wedding anniversary today, we count it all joy for the amazing journey God has allowed us to experience together. We know every day and every anniversary is a gift. A gift we never take for granted. So today, we will spend some time reflecting, celebrating and laughing. Always laughing. Together. ~OC

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A Milestone

Good Morning! Today I hit a milestone. Earlier this morning, I wrote my 1,000 post. Well, I guess this is 1,001. I could never have imagined writing a thousand post when I started this blog back on June 28, 2018 with the help of my amazing bride Laura and wonderful sister in love Faith. I could never have imagined that I would write and have a book published based on my blog entries.

Over the past six years, I have always tried to write what I believe God put on my heart. The majority of my blogposts have been written from a hospital room on 4 South at Good Samaritan Medical Center. My post have been about my experiences and my observations of the world as I have run this crazy beautiful health journey. A lot of the post were written long before I even started my blog. That’s why it’s a good idea to journal.

I know over the years, my writings have caused a lot of conversations. Some good. Some not so good. But they have started much needed conversations. That’s what a writer is supposed to do. Stir up conversation.

Over the years, many people have shared my blog gave them the courage to start writing their own story. Some have even published their own books. That means a lot to me.

So I will continue sharing my thoughts. I am not sure how many more post I have in me, but I will keep writing until the day comes to put a period on my journey. Thankfully that’s not today. ~OC

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Friday Night in the 80’s

It’s Friday! Let’s take a trip back to the 1980’s in West Palm Beach, FL. You have had a long week at school. It’s time to relax and let loose. You spend a lot of time getting ready for a night on the town. Gotta look good! Ladies have to have that 80’s hair on point. Guys have to pick just the right cologne. You jump in a crowded car and see where the night takes you. First stop is the mall. Do you hit the Palm Beach Mall or the Cross County Mall? Maybe you scope out both. If you hit the Cross County Mall, you might check out what’s playing at the AMC Movie Theater. Then you might scroll over to the Arcade. Oh, everyone is getting a little hungry. You head down to Mamma Leone’s for a slice or two. You hang out for a while and decide what’s next. No one can decide on a movie, so you decide to head to Galaxy Skating Rink. You’re bound to find some friends skating to the amazing sounds of the 70’s and 80’s. You spend a few hours skating round and round, then you decide it’s time to head back to the Cross County Mall and get some ice cream at Swenson’s. By that time some new friends have jumped in the 🚘. Maybe you know maybe you don’t. It really doesn’t matter. After making yourself half sick on all the ice cream, you decide maybe you’ll hit a midnight movie at the theater. Maybe you have a friend working there who will let you in for free. After a night of fun, you head home with some amazing memories. Memories that will last a lifetime. Enjoy your Friday night! ~OC

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Sharing My Journey

Today’s a new day! I did not choose this journey. I didn’t choose to become an Overcomer or The Man Who Refuses to Die. But God, in His wisdom, has allowed me to live much longer than my medical team’s predictions. My blog is a peek into how I run this crazy beautiful health journey.

I am a journal keeping and scripture reading man. In the twenty-two years of running this crazy journey, I have learned to let God’s words flow through every area of my life. God has allowed me to become a traveling prayer warrior, a storyteller and missionary.

As I have run this race, God has taught me to not rush through the stories of life. He has shown me how to slow down and really listen to peoples stories and embrace the beautiful interruptions of life.

I am thankful God did not give me the whole story of this crazy health journey at once. No, in His wisdom God has only given me what he knows I can handle at that moment. Of course, without God I could never handle any of this. That’s why I choose to put everything in His hands.

As I share my journey, I try to be as honest as my heart allows. I want people to see both the pain of this journey and the faithfulness of God in the midst of the storms.

I will never minimize the darkness. Because light shines brightest in the darkness. ~OC

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