Dear Caregivers: Please Don’t Forget Yourself

Today’s a new day!

Dear Caregivers,

Please take care of yourself.

I know that may sound simple, but for caregivers, it can be one of the hardest things in the world to actually do.

You spend your days worrying about someone else.

Their medications.
Their appointments.
Their meals.
Their pain.
Their bad days.
Their good days.
Their needs.
Their fears.

You become the organizer, advocate, chauffeur, encourager, nurse, protector, prayer warrior, and sometimes the person holding everything together when it feels like everything is falling apart.

And somewhere along the way, you can disappear from your own list of priorities.

Please don’t.

My wonderful bride has been living the life of a caregiver for more than twenty years.

Twenty years.

She has walked beside me through illnesses, doctors, hospitals, treatments, setbacks, victories, fear, uncertainty, and more twists and turns than either of us ever imagined when we said, “I do.”

She is a rockstar.

But even rockstars need rest.

Even the strongest people need someone to lean on.

Even caregivers need caregivers.

And that’s why I want to say something directly to every person reading this who spends their life taking care of someone else:

You are not selfish for taking care of yourself.

You are not selfish for going to your own doctor’s appointments.

You are not selfish for meeting a friend for coffee.

You are not selfish for laughing.

You are not selfish for taking a walk.

You are not selfish for taking an afternoon or weekend off.

You are not selfish for asking someone else to step in.

You are not selfish for saying, “I need help.”

In fact, asking for help may be one of the most responsible things you can do.

Because you cannot pour from an empty cup forever.

I have heard the statistic that 64% of caregivers die before the person they are caring for. Whether that exact number applies universally or not, the warning behind it is very real: caregiving can take an enormous physical, emotional, and spiritual toll.

Did you catch that?

The person taking care of everyone else can become so exhausted that they forget they are a person who needs care, too.

So, dear caregiver, let me remind you of something:

Your life matters, too.

Your health matters.

Your mental and emotional well-being matters.

Your friendships matter.

Your dreams matter.

Your laughter matters.

Your time with God matters.

Your rest matters.

You matter.

Please don’t wait until your body forces you to stop.

Go to the doctor.

Take the medication you need.

Get some sleep.

Eat something.

Drink some water.

Call a friend.

Go outside.

Take a breath.

Pray.

Cry if you need to.

Laugh when you can.

And when someone says, “How can I help?”—please don’t automatically answer, “I’m fine.”

Maybe give them something they can actually do.

“Can you sit with them for a couple of hours?”

“Can you bring us dinner?”

“Can you drive us to this appointment?”

“Can you just come over and let me talk?”

Let people love you.

Because caregiving was never meant to be a one-person job.

My bride has taught me so much about love through the way she has cared for me for more than two decades. But I don’t want her—or any caregiver—to lose themselves while caring for someone they love.

You don’t have to destroy yourself to prove that you love someone.

Read that again.

You don’t have to destroy yourself to prove that you love someone.

Taking care of yourself doesn’t mean you love the person you’re caring for any less.

It means you’re giving yourself a better chance to keep walking beside them.

So, to every husband, wife, son, daughter, parent, sibling, friend, or stranger who has quietly become somebody’s caregiver:

I see you.

I appreciate you.

I honor you.

And I’m asking you—please take care of yourself.

Ask for help.

Accept help.

Make the doctor’s appointment.

Call your friends.

Take the day off when you can.

Sit somewhere quiet.

Take a deep breath.

And remember that you are more than the role you have been given.

You are a human being, not just a caregiver.

You deserve to live, too.

Because the goal isn’t simply to survive caregiving.

The goal is for both of you to keep living.

So, dear caregivers…

Please don’t forget yourself while you’re taking care of someone else.

You are needed.

You are loved.

You are valuable.

And yes—

you matter, too. ~OC

My Medical Rap Sheet Doesn’t Get The Final Word

Today’s a new day!

Here is my medical rap sheet.

  • Crippling Arthritis — 2002 (Ended up being cancer)
  • Cancer — 2003
  • Parkinson’s Disease — 2007
  • Myasthenia Gravis — 2009
  • Gastroparesis — 2015
  • COVID Long Haulers — 2022
  • Type Two Diabetes 202 (medication induced)
  • Cluster and Migraine Headaches — 2024
  • Dementia — 2024

Looking at that list, many people would probably assume my life is over.

They would assume the best years are behind me. That my dreams have ended. That all that’s left is surviving.

But they would be wrong.

Every single day, I choose life.

I choose to keep making memories with my beautiful bride of twenty-six years. I choose to laugh, to love, and to appreciate the moments that many people rush past.

I choose to continue advocating for other patients who need someone to remind them that they are more than a diagnosis.

I choose to keep fighting against human trafficking because there are people who desperately need hope, justice, and someone willing to stand in the gap.

Does that mean this health journey is easy?

Absolutely not.

There are days filled with pain. Days of exhaustion. Days when my body reminds me of every diagnosis on that list.

But years ago, I made a decision.

This health battle would never become my identity.

My diagnoses describe some of the battles I face—they do not define the man I am.

I refuse to allow illness to steal my purpose. I refuse to let disease dictate my joy. I refuse to surrender the calling God has placed on my life simply because my body doesn’t always cooperate.

Instead, I choose to keep living.

I choose to keep loving.

I choose to keep serving.

I choose to keep overcoming.

If you’re walking through a battle today—whether it’s a health crisis, grief, depression, financial hardship, addiction, or something no one else can see—I want to encourage you.

Don’t let your battle become your identity.

Keep fighting.

Keep making memories.

Keep dreaming.

Keep showing up.

Keep loving the people around you.

Live your life to the fullest, even if it looks different than you once imagined.

Champions aren’t defined by the battles they face.

They’re defined by the courage to keep getting back up.

So today…

Choose hope.

Choose purpose.

Choose joy.

Choose life.

And whatever comes your way, keep overcoming.

Live like a champion. ~OC

Lessons Along The Journey

During my 17 year crazy beautiful health journey, I am often asked what lessons I have learned along the way. I could probably write a book on the lessons God has taught me, as I have walked this journey. I am not up for writing another book at this time, so I thought I would share a few with you. Here we go…..

Prayer. I knew the importance of prayer way before my crazy beautiful journey started, but this journey has only reinforced the importance and power of prayer. I can look back on multiple occasions when the prayers of many saved my life. Praying for others is a real honor for me. Prayer energizes me.

Choose to Thrive. Dealing with multiple health issues can be overwhelming. The journey can flat out be exhausting. It can be very easy to just survive. To just make it through the day. Who could blame me? But years ago, my wife and I decided Just Surviving was not how we wanted to live life. No, we decided to Thrive in life. That means not allowing my health issues to define us. Thriving means embracing life. Even on those rough days. Choosing to thrive is  a daily choice. Sometimes a moment by moment choice.

Finding Purpose. During this crazy beautiful journey, I had to find a purpose for it all. There had to be more to this journey than doctor appointments, unending test and hospital visits. During my 17 year journey, God has allowed me to become a Abolitionist, Missionary, Motivational Speaker, Author, Patient Advocate and Thought Leader. I made the choice to turn a perceived negative into an opportunity to make a difference in life. What a ride it has been.

Laugh Often. When you have been diagnosed with as many life threatening health issues as I have, you just have to laugh. My wife Laura and I have used humor, dark humor most of the time to get through some of the toughest days. I mean when your known as The Man Who Refuses To Die, you have to laugh.

Don’t Sweat The Small Things. Life is too short to worry about the small things in life. My wife often shares with people, “Todd and I do not argue over how one of us squeezes the bottle of toothpaste.” 

Find Your 3 am Friends. Who’s in your posse? Who are those friends that you can call at 3am when life becomes overwhelming? Do you have any? I truly believe God brings those 3am friends into our lives. I do not believe they can be manufactured by us. Also, I believe your posse can change over time. And guess what? That’s okay. I believe some relationships are just for a season. So don’t stress out when your posse changes.

Travel. I had never really traveled that much before my health journey. A few trips here and there. But after I started dealing with my health issues, my wife and I decided we wanted to travel more. Sometimes it’s just a day trip up the road and sometimes it is trips to Cuba and Alaska. Traveling has been a true blessing for my wife and I. So plan your next trip.

These are just a few lessons learned along the journey. I pray they will help encourage you, as you walk your own crazy beautiful journey. ~OC

 

 

 

 

 

Never Stop Thriving

When I was diagnosed with multiple life threatening health issues, I made the choice to keep thriving. When I had to stop running, I made the choice to keep thriving. When I had to retire early based on my health issues, I made the choice to keep thriving. When I have been told I should not be alive, I make the choice to keep thriving. Do you sense a theme here? We have to keep thriving.

When my health journey started, I made the choice to become a patient advocate. When I had to give up running, I made the choice to start running a new race. A race to encourage others going through their own crazy beautiful journey. When my health forced me to retire early, I made the choice to become an abolitionist, a missionary, a speaker and a writer. I made the choice to not allow my circumstances define me. This has not always been easy, but it has been worth it.

Today, I encourage everyone to keep thriving. You may be facing some tough circumstances and you are just concerned about surviving. The thought of thriving is not even on your radar. I would encourage you to change your mindset from surviving to thriving. I would encourage you to surround yourself with people who will help you thrive. I realize this might be difficult. Change is never easy. But if we want to live a life of thriving, we will have to make some changes in our lives. I guarantee changing your mindset from living/surviving to thriving could be life changing. ~OC

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