Tag: Beautiful Interruptions

Beautiful Journey

Today’s a new day! As many of you know, I was diagnosed with young-onset dementia last September (2024). Life has changed in many ways since that diagnosis. Writing down my thoughts is much tougher these days. This post literally took me several weeks to write. Finding my words to write or speak can be a daunting challenge at times. As I navigate this new reality of living with dementia, I want to share the journey with you. To answer your questions and to share my thoughts for as long as I can. The following is a question I get a lot as I continue to run this crazy beautiful health journey.

What gives you the strength to remain positive?

My Christian faith gives me deep meaning in life, giving me hope for the future and a perspective of my life being eternal, not simply limited to what I see and experience on this side of Heaven. This life and my health journey are temporary.

“So we do not lose heart. Though our self is wasting away, our inner self is being renewed day by day. For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison, as we look not to the things that are seen but to the things that are unseen. For the things that are seen are transient, but the things that are unseen are eternal.” ~2 Corinthians 4:16-18

I have met so many people with different health challenges during my journey, all at various stages of ability due to their declining health. But each person still remains an individual, with their true inner being shining through. The eyes remain a window into someone’s soul, and reflect our humanity.

As my thoughts and overall health becomes a bigger challenge, I see more clearly the importance of relationships. I also see and feel myself traveling through a wide range of emotions, even if they become a little more scrambled with the dementia. Our emotions connect us to each other, allowing us to form relationships, which is a mark of truly being human. As this journey takes me deeper within myself, I find myself reflecting more on God and how to truly live life more for Him. This is what gives me an abiding sense of meaning as I travel on this health journey wherever it takes me. Because I know the final destination is filled with peace and ultimate healing. As a Christian, the ending is really the beginning.

So as I continue to run this health race, I remain positive, feeling that I am gaining along this journey a far better sense of what it means to be truly alive and that much can be achieved to help others as I continue travel this crazy beautiful journey. ~OC

0

Still Standing and Thankful

Today’s a new day! I don’t like being in pain and I don’t like having multiple health issues that will probably shorten my life. I would love to grow old with my bride. But I realize that may not be the plans God has for my life. But I know and I trust that He is faithful. God’s plans are the best and do not revolve around me. Acts 13:36 says, “when David had served God’s purpose in his own generation, he fell asleep”. When God has done what he wants through me, I will step into heaven in his perfect timing.

Why has God allowed me to walk this health journey? Maybe it is to help me be a better husband and friend. Maybe it’s an opportunity to share the love of Jesus with more people. Maybe it’s for reasons way beyond my understanding. All I know is that God has given me this gift of health issues to use for his glory. All I know is that I will continue to trust and serve him.

Sometimes it is still hard to comprehend that my life could end at any moment. But isn’t that the case for all of us? As the Bible teaches,

All men are like grass,
and all their glory is like the flowers of the field;
the grass withers and the flowers fall,
but the word of the Lord stands forever. (1 Peter 1:24)

When I received my first diagnosis in August 2002, it was a total shock. I knew I didn’t feel great, but I had no idea how I was so sick. My life at that time involved being a husband, a social worker and volunteer at multiple ministries.

Back then, some doctors shared I might only have five years to live. However, God had other ideas and even though my health journey has been full of twist and turns and multiple life threatening illnesses, I am still standing. Some days my life has felt like a ticking time bomb. My bride has become an expert in dealing with multiple infections,various types of devices being surgically implanted into my body and various treatments to just keep me alive.

As the multiple health issues continue to weaken my body, I am thankfully aware that Jesus is my Lord and Savior in whom I can depend, and that all other ground is sinking sand. I am so grateful to God for everything. I am thankful for who God is, his majesty, his splendour, and his promises. I am thankful for my bride, family, friends and life. I am so thankful to God for the resurrection of Jesus which means I will have victory over death and do not need to fear what my future holds. It is such a comfort to read,

“Death has been swallowed up in victory”
  “Where, O death, is your victory?
  Where, O death, is your sting?”
The sting of death is sin and the power of sin is the law. But thanks be to God. He gives us the victory through our Lord Jesus Christ. (1 Corinthians 15:54-56)

As my body grows weaker, I am thankful God continues to allow me to truly embrace life. To continue making beautiful memories with my bride. Some dear friends even bought me an electric trike to get around town. Watch out world! I will enjoy the new bike in between my many naps. After years of not being able to sleep, most of my days now involve sleeping most of the day.

What can be hard is coping with chronic pain and deteriorating health while still navigating the physical and emotional challenges of trying to live a “normal life.” Another challenge is not knowing what each day might bring. It is impossible to make plans. Between multiple medical appointments and hospitalizations, it can be difficult to make any plans.

However, I am just so thankful for God’s guidance through his word. The Bible is so clear about what God wants me to do now, even as I grow weaker: “Be joyful always; pray continuously; give thanks in all circumstances; for this is God’s will for you in Christ Jesus (1 Thess 5:16). God is so clear. This is what God wants me to do now. I am thankful he continues to allow me to live an amazing life.

So, I will continue to thank God for this gift of health issues because he is good and he is using it for his purposes. The plans of the Lord are perfect, even if I do not always know the reasons I continue to walk through this crazy beautiful health journey. All I know is that someday, I will be in the loving presence of Jesus. But until then, I will continue to live life and embrace every moment. If you see me out and about on my trike, stop and say hello. Oh, and wake me up if I happen to be asleep. ~OC

0

Beautiful Interruptions

Today’s a new day! I wrote the following early this morning.

I pray Jesus keeps your eyes, ears and hearts open to experiencing some beautiful interruptions today. Do not allow the distractions of this world keep you from these amazing opportunities and blessings. Do not miss the really important things in life. Have a great day! ~OC

0

Do Not Limit God

Good Morning! I hope you take the time to read and reflect on these words today. I wrote this back in 2010. It does not appear I ever posted it. “Lost Writings from OC.”

Today’s a new day! Welcome to a new week. I pray that everyone had a wonderful and memorable weekend. My challenge for you this week is to Not Limit God!

I must admit there have been times in my spiritual journey that I have limited God.  Yes, me. I did not always do this intentionally, but subconsciously I would begin stuffing God into a little box. I was putting limits on Him and not even realizing that I was doing so.

I would go to God with a prayer request and step out on faith that He would see it through.  Now when things in the natural didn’t work out according to my plan, I would assume they were not going to work out and move on. But how many people actually realize that God is more than capable of doing exceedingly and wonderful things in every area of our lives? He can do more than we could ever imagine, hope for or ask for… in God’s timing. Not our timing. Did you catch that?

Another way we limit God is by thinking that in order for a blessing to manifest that He has to operate the way we think things should be done.  We sometimes forget that our thinking is limited, but God’s is not.  We forget how powerful He really is.  The scripture says, He is ALMIGHTY GOD.  There are no limits on what God can and will do in our lives. 

How many of us are guilty of limiting God? Well do not beat yourself up, God is not finished with you yet. We need to remind ourselves daily of who God is. When we spend time studying God’s word, we can be confident that God is able to do all things.  But we must acknowledge that we do not have everything under control, but that God is always in control. We must stop limiting God to what we can see in the natural and trust that He can move mountains in the supernatural.  Today, let’s live out our faith and know that God is able to blow our minds.

As you face challenges this week, I encourage you to not limit God.  I know the medical scan shows one thing, but I double dog dare you to not limit God.  I know it looks like your money is gone before the month has ended, but I triple dog dare you to stop limiting God. When we take God out of that box we stuffed Him in, He will expand our faith and take us to new and beautiful heights.

So this week, stop limiting God and watch Him do new and exciting things in your life. Have a great week! ~OC

0

My Life With Parkinson’s

Good Morning! I wanted to share a bit of my Parkinson’s experience with you today. I was diagnosed with PD in 2007. The disease is starting to take its toll on me, but I continue to live with an attitude of hope. I originally wrote this in 2019 and updated it the first of 2025.

Today’s a new day! Living with Parkinson’s takes hope, persistence and a strong will to live. Because Parkinson’s never takes a day off. Parkinson’s is a daily battle. In the presence of Parkinson’s, one must have courage, the strength of character, and for me a strong faith.

While there’s life, there’s hope. Each morning when I wake, I do a full-body inventory, thinking ‘Okay body, what awaits us today?’ I remain hopeful that my just-completed sleep has re-fueled my brain and re-stocked my body. Of course that’s on the nights I actually sleep. Cloaked around every fiber of my body is my unwelcome guest named Parkinson’s; however, the day has started anew, and there is much to accomplish. I use hope as an anchor to secure my body and mind against the slowly rising tide from Parkinson’s. There is still time while staying hopeful.

Living with a positive attitude makes a big difference. Before I get out of my recliner, it can be easy to feel sorry for myself. I have Parkinson’s, a progressive neurodegenerative disorder. And that’s the negative mindset Parkinson’s has provided but I try to never allow myself to stay there for very long. There are days that are going to be difficult; yet staying positive and focusing on the plans God has for my life is where I choose to place my focus. I choose to look at my life with a positive attitude. That is completely opposite of how this disease wants me to feel and live.

I have found living this journey and sharing my story has been a privilege of a lifetime. I start each day with a prayer to focus on what plans God would have for me on that particular day. I choose to stay engaged with the everyday activities of life. Things are starting to get much tougher these days, but I make the choice every day to embrace life to its fullest. I remind myself there is much left to accomplish in my life even in the presence of Parkinson’s. I will close with a prayer I lift up to God every morning:

Dear God, thank you for another day. Simply use me today. This is going to be a good day. I remain hopeful not hopeless, positive not negative, happy not sad, and driven not complacent. Thank you for Your strength, wisdom and courage as I walk through this day. Amen. ~OC

0

My Last Post

Today’s a new day! I am going to let you in on a little secret. A lot of the post I share daily, were written months or even years ago. I had a series of writings I had put together over the years. On the post that were new, it could take me hours to write down my thoughts in a way that people could hopefully understand. Why am I sharing all this with you this morning?

Well, I come to the end of all the writings I had not shared with you over the last few years. And as my neurological issues have become worse, it has become harder to put my thoughts in order. Which can be very frustrating. So today is my last post of Today’s a New Day!

I have enjoyed sharing my thoughts with you over the years. I have enjoyed the conversations some of my writings have created over the years. I have enjoyed sharing my thoughts and life experiences with you since 2019. But as I mentioned above, with my health declining, it has become increasingly frustrating for me to write. I will not rule out sharing some of my writings in the future if my health allows and God puts something on my heart. But for now, it’s time to step away. Thanks again for all of the support over the years. Go share your story with others. Go make a difference in your part of the world. Blessings. ~OC

4

Believe Me…The Suffering Is Worth It

Today’s a new day! I’ve grown comfortable in my wilderness moments. The ups and downs of this crazy beautiful health journey is a place I no longer fear. I know how to operate here. I know how to encourage others that are walking through their own suffering . Because when you walk through enormous trials and God continues to show up in huge ways, you become changed by it. When you stand by people in places that conjure up feelings of death and God’s love swarms around you like it has in no other moment, you start to see even the worst pain differently. You start to see the beauty. The beauty that can be present even in suffering. That amazing message that I will never stop proclaiming because I believe in it with every fiber of my being. That God is present with us in the pain and the suffering of this world. And that He can use everything–absolutely everything–for our good and His glory. Even when it isn’t good in those moments of despair. Even when it feels like a million shades of awful. But remember, this wilderness place is never where our story end.

It’s a question that I have gotten a lot over the years, but I wonder if people actually really want the answer. The question is How could God allow me to walk through so much suffering? This is how I choose to answer that important question. Having a relationship with God and following Him for many years, I see more of His character each day I walk through this pain and suffering. I have experienced God’s outrageous love that has come through for me over and over and over again, in this long and winding road of suffering. I truly believe His ways and His timing are best for me. Let me ask you a few questions. Do you truly want an intimate relationship with God even if it means that enduring pain and suffering is part of the process? If it strips you of pride and idols and all the baggage that just continually brings us down? During my long health journey, I have learned that most people see the world through narrow eyes. They only see the temporal things. They see just what is in front of their face at any given time. And often what is staring back at them is so overwhelming–how could they possibly see anything else? But we have to look at the full picture standing in front of us. We have to think about how our stories ultimately ends.

Our God who gives us the choice of whether or not to love Him–because could we truly love Him if He didn’t give us that option? God is too big to accept that kind of response. He wants us. All of us. God wants us to love Him for who He is because He already loves us for all of who we are. And with the option to love Him also comes the option not to love Him. To go our own way and forge our own identity. We all have a will to choose, and we all at different points choose the wrong thing. And the world is broken and full of pain and how do we even begin to reconcile it all? How do we reconcile that God is still good? He promises to be our God. Our deliverer. Our Savior. Our refuge. Our strength. God promises that we are held safely in His everlasting arms. So why doesn’t He move those enormous mountains in our paths? Why does God sometimes make us take the slow and grueling climb to the top? The climb that eventually leads us up to the steepest peak where we can look below and see the landscape that was always there, but was just always over the next rise. The view that allows us to take it all in–the whole journey. To see both where we have come from and where we are going. The reality is, God doesn’t remove every single mountain in our path. He wants us to climb them. He wants us to put one foot in front of the other and feel our muscles trembling with every single step. We feel like we are drowning in our struggles and our sorrows and we cry out to Him for rescue, and the waves just get stronger. We forget that He already parted the seas for us. That our lives are not measured from one circumstance to another, but from His Son making the way for us and the forever that still awaits us. That there is another side to the mountain that we are climbing and the narrow road we walk is so much shorter than we could possibly believe. Every single step up the steep road strengthens our bodies and minds to continue the walk home. It can be hard, and it can be painful, and at times we fall over and feel like we could not possibly take another step. But it’s still the amazing road home. Will we make the choice to choose it anyway? Are you going to choose a road that is full of pain and sorrow and hurt? Because God shares throughout scripture, that suffering is part of the path. That suffering will always be a companion on our journey. That in this life we will be hated and slandered for God’s name and that by signing up to walk His way, we are signing up for some struggles and heartbreak. But would He ask this of us if it wasn’t worth it? Evil is running rampant throughout this world. This world can be full of so much pain and sorrow, and it is far too much to bear on our own. There are people all over the world struggling with more than we could possibly imagine, and why does God allow it? But would we know His goodness if He didn’t? Because there is a difference between allowing something to happen and condoning it. Approving of it. And if you spend anytime in God’s word, you will know that He so wholly and completely disapproves. He doesn’t like it anymore than us when we are faced with a huge mountain to climb in our journey –but He will use it. God will redeem it. He will show up and walk the road with us. Because God is good, and He wants the best for us. He can see more than we can and sometimes that means the hard road. Sometimes the hard road is the only road.

Evil is very real, but if we just focus on that part of life, we are missing the whole point. Because evil and wickedness don’t just offend God, they stand in complete opposition to God. He opposes it in every way–His perfect righteousness cannot stand for it. And He will get the final say over it. Ultimately, God will show just how much He does not approve of it. And the fact that God delays to set this world right is actually a mercy–it gives more time for people to come to Him. To choose Him. To take hold of the freedom that He gave us in the garden that we took and totally screwed up. Because as hard as it gets and as ugly and painful as the world may seem, God would not allow anything into our lives unless He knew that one day it would be worth it. That it is worth it when God leaves us in our tragedies. Because when He wages war on all that is evil, the fruit and beauty of our pain will be more than we could possibly imagine. The tears will turn into complete celebration because we will see–we will see what it was all for. Every sacrifice, every sleepless night, every painful moment and the utter senselessness of tragedy. Those very things will become our joy. We have to remember the full story. We have to remember that where we stand right now in this moment is not where our stories end. That our journey began in a garden full of promise and that the freedom that God gave us to love Him and choose Him, we took and turned it on its head and still He comes after us and promises to set it all right. God constantly gives us way more than we can handle, but He can. There is no situation or struggle that we walk into that catches Him by surprise. Including suffering. Including the worst of the worst. Including the darkest and loneliest nights. God is there. He never leaves us. God has already won. And the moments of our journey that we spend in the deep, shape us and allow us to become more like Him in the process. Because God would not lead us straight into the fire without knowing that it was worth it in the long run. And that is the beauty of it all. That as we step further into the darkness of pain and sorrow and still trust God in it, eventually He turns it all to light. The trials that turn into a testimony and a journey that becomes more than us being stuck in an impossible situation, but becomes about our Sovereign God and His strength and power that overcomes it. The deep that we despise becomes light for others walking their own path. The storms we walk into blaming God for and walk out of praising His name.

Remember, God has already won the war and is coming back to finish the final battle and get the final say over all the injustice and ugliness of this world. I, for one, would not have this deep relationship with God without the pain and suffering. Without walking through struggles. The darkest moments of my health journey have led me directly into His embrace. The storms that God allows even in all their heartache because He sees what we cannot see yet and knows that one day even we will find worth and meaning in those darkest moments. So the question becomes are we going to stand with God or against Him? Seeing the world as it is today and knowing what we know, are we going to choose God anyway? Even when all the pain and suffering doesn’t feel worth it, are we still going to trust that it is? Will we run straight into the deepest sea if it is the only way to get to God? Because over the steep rise of that mountain peak, there is beauty beyond measure. And just because we cannot see it yet does not mean that it is not there. Just like how the stars still shine in all their brilliance in the light of day, but only in the night sky can we take them all in. It is there. All the beauty and wonder and joy of our struggles. It’s at the end of this short and sometimes rocky road in the forever beyond. Believe me, it will be worth it. ~OC

“Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.” ~Isaiah 41:10

“God is our refuge and strength, a very present help in trouble.” ~Psalm 46:1

“Never will I leave you; never will I forsake you.” ~Hebrews 13:5

“And we know that for those who love God all things work together for good, for those who are called according to his purpose.” ~Romans 8:28

“Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me; your rod and your staff, they comfort me.” ~Psalm 23:4

0

A Day In The Life

Today’s a new day! Ever wondered what a day living with chronic illness and health challenges looks like? Today I will take you on a journey into the twist and turns of a day living with long-term health issues.

From the moment I wake up, I’m already facing barriers. My chronic illnesses make it difficult to get going. For those not aware, based on my health issues, I have slept in a recliner for about the past twenty years. It’s just too hard to get in and out of a bed. Every day is a balancing act where I have to be mindful of my energy levels and make sure that I’m taking time to rest. 

An Introduction To My Health Journey:

In 2002, I was diagnosed with multiple forms of arthritis. That year was filled with a lot of experimental treatments. Then in 2003, I was diagnosed with cancer. Thankfully I was able to have surgery to remove the tumor and never had to walk through the struggle of chemo and radiation. Let’s speed things up. From 2007-2024, I have been diagnosed with Parkinson’s, Myasthenia Gravis, Gastroparesis, Type 2 Diabetes based on all the steroids, had a stroke, diagnosed with cluster headaches and just a few months ago was diagnosed with early onset dementia. That’s my rap sheet!

What My Night and Morning Looks Like :

Based on my neurological issues, I am up and down most of the night. So I never wake up feeling rested. I wake up stiff, so I need to move around and take a host of medications in the morning. Of course meds have side effects, so that can be difficult.

Since I deal with gastroparesis, eating has been a major issue for many years. That makes taking in fluids and food a huge and painful task. So every meal, every day is an adventure.

My mornings are dedicated to spending time with God, journaling and trying to exercise. For me, walking is the best type of exercise for me. I never know how many laps I will be able to get in. I have to be careful not to overdo it. If I do overdo it, my body will pay for it the rest of the day. I spend some time each day for reflecting on life and looking at how I can hopefully encourage others as I continue running this journey. These days, I tend to take a lot of short cat naps. Over the last year, the pain has increased, so that’s a daily struggle. Unfortunately, pain meds and gastroparesis do not really care for each other. So most days, I just live with the pain.

One thing I choose to do everyday is get dressed. I never lay around in my sleeping clothes. It makes me feel good to get cleaned up and get dressed.

My favorite part of any day is spending time with my bride and friends that choose to reach out. Spending time with loved ones is very important to me. I love sitting around and enjoying great conversations. Also, I try to read every day. My love for reading has been challenging the last few years, since it’s hard to stay concentrated. I also spend time listening to music each day. Music can make everything a little bit better.

In the evening, Laura and I like to talk about our day and possibly watch a little television. Based on my day, my bedtime varies. But since I sleep in my recliner, I can fall asleep anytime my body and brain allows me to. Every night is an adventure.

What I consider a daily self-care must do:

Writing about what I’m grateful for in my journal helps me remember the positives, even on those really hard days. Living with long-term health conditions can be exhausting and can be very negative if you allow it to get on top of you. 

Several people have asked if I had one day without pain and could step away from my health journey what would I do?

I would lace up my running shoes and go for a very long run. For those new to my journey, in my healthier days I was blessed to complete 350 marathons.

Another question people asked me a lot: Is there anything I would like to share about daily living with chronic illness and life challenges?

There’s a lot, but I do not want to make this post any longer than it already is. One of my hopes is, people will realise that we never know what someone else is really going through. So be kind and respectful. It doesn’t help when people tell me how I should be living out my health journey. Just be supportive and walk through this journey with me.

By sharing what my day to day life is like, I hope I can raise awareness of the bigger picture as people only see snippets of my journey online or see me on my best days in person. I am not sharing this for pity or sympathy and I am not complaining. I just want to give you some insight into this crazy beautiful health journey.

The Takeaway:

Writing about my day living with chronic health issues has been quite eye opening to me to see how much life has changed over the years. I have a strong need to celebrate the love and support I have received over the years from family and friends. Writing this post has let me see how faithful God has been to me, as I continue to run this beautiful journey.

I hope that you have found this post to be a helpful insight into life with with long-term health issues. There are so many people walking through a tougher battle than me. So if you know someone dealing with chronic illness, take the time to reach out to them and support them on their journey. ~OC

2

Our Health and Living

Today’s a new day! Long-term and terminal illnesses can be a scary road to navigate. It’s hard on one’s body, mind and soul. And everyone that cares for them. How will my body and mind handle today? That’s a question I ask myself on a daily basis. Chronic and terminal illnesses also raises many questions that many people shy away from unless they are faced with it directly. But if we’re listening, many lessons can be learned.

Health issues have a way of reminding people that time is a valuable, non-negotiable, and a non-renewable resource. With that said, how do we look at the bigger picture of life and find out what is truly important? 

Spend Time Focusing on Relationships:

We were not meant to do this life alone. God did not create us to be Lone Rangers. I know of no one who regrets time spent building meaningful relationships regardless of life’s struggles.

Take time to ask yourself the following question: Are you truly making time for your family and friends?

Trim That Fat:

I am not talking about dieting and exercise, but those are important parts of our lives.

No, I am referring to something that a lot of times we do not even notice. I am referring to our home and our lives. We all have a tendency to fill both with clutter and hang on to things we do not need. A life-changing diagnosis can become the catalyst for the housekeeping of our home and heart as we realize what is truly important in our lives. It is also a good time to reflect on our faith.

 “Let us throw off everything that hinders and the sin that so easily entangles. And let us run with perseverance the race marked out for us.” ~Hebrews 12:1-2

Speak your Heart Now:

It is good for all of us to review and consider our relationships. Because we all know relationships can be messy at times. If we love people, why not let them know how much they mean to us. Now! Why wait until it’s too late? If we have hurt someone or offended them in some way, why not seek their forgiveness and do what we can to make it right.

Who are the most important people in your life? Take a moment to think about that. Maybe even say their names out loud or write them down. Then ask yourself this question: Have I honestly shared what each of those individuals truly mean to me?

“A heart at peace gives rest to the body.”   Proverbs 14:30

Set New Goals (Dream!):

It can be easy to wait for a challenging season to be over. “When I get better, then I will take that trip.” “When I get better, then I will _____.” Why not take that trip now? As I have walked through this long journey of health issues, Laura and I have learned to take those trips now. Even though those trips can be tough on my body, the memories are priceless. So go live out that adventure. Experience love, joy and happiness during even the toughest of times. I encourage you to find what brings you happiness and go experience it. Keep dreaming some big dreams, set some goals, and do what you possibly can to make them happen.

Many facing long term health challenges find that those trials have helped them clarify and simplify their lives.

During my own health journey, I have discovered what’s truly important in life. For me, it’s my faith, my relationship with my bride, relationships with loved ones, encouraging others and truly living out my God-given purpose in life.

What can we learn from this?

Praise be to the God and Father of our Lord Jesus Christ,
the Father of compassion and the God of all comfort,
who comforts us in all our troubles,
so that we can comfort those in any trouble
with the comfort we ourselves receive from God. ~2 Corinthians 1:3-4

I hope and pray the words above have brought some comfort and encouragement. Go live your life! ~OC

1

Blog at WordPress.com.

Up ↑