Tag: Cancer

Six Battles, One Faith

Hello. Every time I write a post, I wonder if it will be my last one. Writing and putting my thoughts together have become much harder the last few months. This post alone took me months to write. But as always, I leave everything in God’s hands.

My Journey with Cancer, Parkinson’s, Myasthenia Gravis, Gastroparesis, Long Haulers COVID, and Now the Beginning of Dementia.

Sometimes I sit back and wonder how one person can experience so many different medical battles in a lifetime.

Cancer, Parkinson’s. Myasthenia Gravis. Gastroparesis. Long Haulers COVID. And now, the beginning of another chapter I never imagined having to write: Dementia.

Six diagnoses. Six different challenges. Countless doctor’s appointments, hospitalizations, treatments, medications, sleepless nights, unanswered questions, and moments when my body has reminded me that I’m not in control of nearly as much as I once thought.

This isn’t a story I’m sharing because I want sympathy. It’s not about seeking attention or having people feel sorry for me.

It’s about sharing my journey. The good, the bad, the beautiful, the heartbreaking, and everything in between.

It’s about being honest about what life looks like when you live with multiple chronic and progressive health conditions.

And most importantly, it’s about sharing what Jesus has meant to me throughout this journey.

Cancer: The Battle That Started It All:

In 2003, I heard two words that would forever change my life: You have cancer.

It was one of my first major medical battles and an early reminder of just how fragile life can be. Cancer brought uncertainty, fear, and questions about the future, but it also strengthened my appreciation for every day I’m given.

Little did I know that cancer would be followed by several more medical battles over the years.

Through it all, I’ve continued to learn that my circumstances may change, but God’s faithfulness never does.

Cancer may have been one of my battles, but it never became my identity. Jesus remained my identity, my hope, and my strength.

PARKINSON’S: THE BATTLE THAT KEEPS ON STEALING:

My Parkinson’s diagnosis came in 2007.

I never imagined that a neurological disease would become such a significant part of my life. Parkinson’s has affected my physical abilities, mobility, energy, and, perhaps most frustratingly, my ability to communicate.

My voice doesn’t always cooperate. Sometimes I know exactly what I want to say, but getting the words out is an entirely different challenge.

For someone who loves writing, encouraging people, sharing the Gospel, and communicating with others, losing some of that ability has been particularly difficult.

I’ve had to find different ways to express myself and share what God puts on my heart.

But here’s something I’ve learned:

Parkinson’s may affect my voice, but it cannot silence my faith.

I still have something to say. I still have a testimony to share. And I still have a reason to encourage others.

MYASTHENIA GRAVIS: WHEN YOUR OWN BODY BECOMES A BATTLEFIELD

In 2009, another diagnosis entered my life: Myasthenia Gravis.

Living with MG means dealing with a neuromuscular autoimmune disease that causes muscle weakness and can affect everyday activities in ways most people never understand.

Some days, even the simplest things require tremendous effort.

There are days when my body doesn’t have the strength to do what my mind wants it to do. There are moments when fatigue takes over and I have to accept that I simply cannot do everything I want.

One of the hardest parts of living with MG is its unpredictability.

You can have plans, dreams, and things you want to accomplish, only to have your body remind you that today isn’t going to go according to plan.

It’s a humbling experience.

But I’ve learned that my worth isn’t determined by how much I accomplish in a day.

God doesn’t love me more on my productive days or less on my difficult ones.

His grace is sufficient, even when my strength isn’t.

GASTROPARESIS: WHEN SOMETHING SO SIMPLE BECOMES A DAILY BATTLE

In 2015, Gastroparesis became another part of my medical journey.

Something most people never think twice about, eating, became another challenge.

Gastroparesis affects the stomach’s ability to empty properly. It can make nutrition, eating, and digestion incredibly difficult.

It’s hard to explain what it’s like when something as fundamental as eating becomes a daily medical challenge.

There are frustrations, discomfort, limitations, and days when you simply wish your body would cooperate.

I have dealt with a gastric stimulator, a feeding tube and 70% of my stomach being removed.

Dealing with gastroparesis is another reminder that so many things we take for granted are actually blessings.

I’ve learned to appreciate things differently, celebrate small victories, and recognize that sometimes getting through an ordinary day is anything but ordinary.

LONG HAULERS COVID: ANOTHER UNEXPECTED CHAPTER

In 2021, Long Haulers COVID added another layer to an already complicated medical journey.

After everything my body had experienced, I found myself navigating the lingering effects of another illness.

The fatigue, physical challenges, and uncertainty added to an already difficult situation.

Sometimes it feels like just when I begin adjusting to one medical challenge, another one comes along.

I would love to tell you that I’ve gotten used to it.

But the truth is, you never completely get used to having your health turned upside down.

You learn to adjust. You learn to adapt. You learn to appreciate the good days.

And you learn that tomorrow is never guaranteed.

DEMENTIA: A NEW CHAPTER AND A DIFFERENT KIND OF FEAR

And now, there’s Dementia.

This is perhaps one of the most difficult chapters for me to write about.

It’s one thing to experience physical limitations. It’s another thing to begin facing questions about your memory, your thinking, and what the future might hold.

Dementia brings a different kind of uncertainty.

There are questions I don’t have answers to. There are things about the future that I would rather not think about.

I love remembering. I love writing. I love creating songs, sharing stories, encouraging people, and reflecting on what God has done throughout my life.

Those pleasures in life are becoming more difficult these days. This is a difficult season to process.

But I’m learning something important.

My identity has never been dependent on my memory, my physical abilities, my voice, or my medical circumstances.

My identity has always been found in Jesus Christ.

Even when my body struggles, even when my voice is weak, and even when my memory isn’t what it once was, I am still a child of God.

My value hasn’t changed.

My purpose hasn’t disappeared.

And my Savior hasn’t gone anywhere.

I don’t know what this chapter will look like, but I know who will walk through it with me.

THE PART OF MY JOURNEY PEOPLE DON’T ALWAYS SEE

Behind these six diagnoses is a human being.

A child of God’s. A husband. A son. A friend. Someone who still has dreams, hopes, passions, and a desire to make a difference.

There are days when the fatigue is overwhelming.

There are nights when sleep is difficult to find.

There are moments when pain, weakness, and frustration take their toll.

There are things I want to do but cannot.

There are meetings I have to miss, commitments I have to step away from, and days when I have to remind myself that resting isn’t quitting.

Sometimes I miss the person I used to be physically.

I miss the freedom of being able to do things without calculating how much energy they will require.

I miss having a voice that cooperates.

I miss the days when my body didn’t dictate so many of my decisions.

And yes, sometimes I get discouraged.

I’m sharing that because I believe Christians need to understand something:

Having faith doesn’t mean you never struggle. Having faith means you know where to turn when you do.

I don’t believe we have to pretend everything is wonderful when we’re hurting.

Jesus never asked us to pretend.

He invites us to bring our burdens, our fears, our disappointments, and our brokenness to Him.

And that’s what I continue to do.

MY FAITH IS BIGGER THAN MY DIAGNOSES

Over the years, I’ve experienced some incredibly difficult medical situations.

I’ve faced moments when doctors weren’t sure I would survive. I’ve experienced hospitalizations, intensive care, treatments, and medical circumstances that I never imagined would become part of my testimony.

I’ve also experienced what I can only describe as the incredible grace and mercy of God.

In 2019, after years of serious illness and moments when my life was hanging in the balance, I experienced a remarkable miracle after attending a prayer gathering.

A miracle that hasn’t disappeared because God is mad at me or my lack of faith.

I am still walking in my miracle.

I have countless testimonies of God’s faithfulness, and I carry those experiences with me.

But I’ve also learned that faith isn’t a guarantee that we will never get sick, never suffer, or never experience another difficult diagnosis.

Faith is trusting Jesus even when the healing hasn’t come or the healing isn’t complete healing.

I believe the majority of the time, our healing is progressive. That is a post for another post.

Faith is believing when the answers don’t make sense.

Faith is finding peace when the circumstances haven’t changed.

Faith is knowing that even in the darkest valley, we are never walking alone.

One of my favorite passages is 2 Corinthians 12:9:

“My grace is sufficient for thee: for my strength is made perfect in weakness.”

I’ve come to understand that Scripture in ways I never could have imagined.

I used to think strength meant being able to do more, accomplish more, and push through every obstacle.

Today, I understand that sometimes strength means getting out of bed when everything hurts.

Sometimes strength means asking for help.

Sometimes strength means resting.

Sometimes strength means crying out to Jesus and admitting that you don’t have anything left to give.

And sometimes strength simply means getting through another day.

TO MY WIFE, FAMILY, FRIENDS, AND EVERYONE WHO PRAYS

I would be remiss if I didn’t acknowledge the people who have walked alongside me.

Especially my bride, Laura.

For more than two decades, she has walked through this medical journey with me. The appointments, treatments, surgeries, hospitalizations, uncertainty, and countless difficult days.

She has been there through so much.

People sometimes talk about what it means to love someone through sickness and health. Laura has lived that commitment in ways that words cannot adequately describe.

I am also grateful for family, friends, and everyone who made the choice to stick around and pray for us, encourage us, check in on us and reminded us that we’re not alone.

Your prayers matter.

Your encouragement matters.

And sometimes, just knowing someone is thinking about you makes a difficult day a little easier.

I’M NOT FINISHED LIVING

So, where do I go from here?

Honestly, I don’t know exactly what tomorrow will bring.

I cannot promise that my health will improve. I cannot promise that I won’t face more challenges. I cannot predict what these diagnoses will mean for my future.

But I can make a decision about today.

I can continue loving my wife.

I can continue encouraging people.

I can continue sharing my faith.

I can continue writing, creating, praying, and looking for opportunities to make a difference.

I can continue living a life of significance, even if that life looks very different from what I once imagined.

I have spent much of my life encouraging people to keep fighting, keep believing, and keep overcoming.

Today, I’m reminding myself of that same message.

And I want people to understand something:

I’m not an overcomer because I’ve defeated every medical condition.

I’m an overcomer because these conditions haven’t taken away my hope, my faith, my love for Jesus, or my desire to keep living.

My health issues are part of my story.

They are NOT my identity.

My identity is found in Jesus.

I am a child of God.

I am loved.

I am still here.

And I still have a purpose.

ONE FINAL THOUGHT

If you’re reading this and you’re fighting a battle of your own, whether it’s cancer, Parkinson’s, dementia, an autoimmune disease, chronic illness, depression, or something nobody else can see, please hear me.

You are not your diagnosis.

You are not your limitations.

You are not your worst day.

You are not forgotten.

You are not alone.

Give yourself permission to have difficult days. Give yourself permission to rest. Give yourself permission to ask for help.

And never believe that your life has lost its significance simply because your circumstances have changed.

I don’t know how many chapters remain in my story.

But I know who holds the pages.

I don’t know what tomorrow will bring.

But I know who holds tomorrow.

And I don’t know what the future of my health looks like.

But I know that Jesus will be with me every step of the way.

Six medical battles. Countless challenges. One Savior. One unwavering faith.

I’m not giving up.

I’m not throwing in the towel.

I’m not finished living.

I’m still fighting. I’m still believing. I’m still trusting Jesus.

And by His grace…

I’M STILL AN OVERCOMER!

KEEP FIGHTING. KEEP BELIEVING. KEEP OVERCOMING.

To God be the glory. ~OC

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My Medical Rap Sheet Doesn’t Get The Final Word

Today’s a new day!

Here is my medical rap sheet.

  • Crippling Arthritis — 2002 (Ended up being cancer)
  • Cancer — 2003
  • Parkinson’s Disease — 2007
  • Myasthenia Gravis — 2009
  • Gastroparesis — 2015
  • COVID Long Haulers — 2022
  • Type Two Diabetes 202 (medication induced)
  • Cluster and Migraine Headaches — 2024
  • Dementia — 2024

Looking at that list, many people would probably assume my life is over.

They would assume the best years are behind me. That my dreams have ended. That all that’s left is surviving.

But they would be wrong.

Every single day, I choose life.

I choose to keep making memories with my beautiful bride of twenty-six years. I choose to laugh, to love, and to appreciate the moments that many people rush past.

I choose to continue advocating for other patients who need someone to remind them that they are more than a diagnosis.

I choose to keep fighting against human trafficking because there are people who desperately need hope, justice, and someone willing to stand in the gap.

Does that mean this health journey is easy?

Absolutely not.

There are days filled with pain. Days of exhaustion. Days when my body reminds me of every diagnosis on that list.

But years ago, I made a decision.

This health battle would never become my identity.

My diagnoses describe some of the battles I face—they do not define the man I am.

I refuse to allow illness to steal my purpose. I refuse to let disease dictate my joy. I refuse to surrender the calling God has placed on my life simply because my body doesn’t always cooperate.

Instead, I choose to keep living.

I choose to keep loving.

I choose to keep serving.

I choose to keep overcoming.

If you’re walking through a battle today—whether it’s a health crisis, grief, depression, financial hardship, addiction, or something no one else can see—I want to encourage you.

Don’t let your battle become your identity.

Keep fighting.

Keep making memories.

Keep dreaming.

Keep showing up.

Keep loving the people around you.

Live your life to the fullest, even if it looks different than you once imagined.

Champions aren’t defined by the battles they face.

They’re defined by the courage to keep getting back up.

So today…

Choose hope.

Choose purpose.

Choose joy.

Choose life.

And whatever comes your way, keep overcoming.

Live like a champion. ~OC

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True Difference-Makers

Today’s a new day!

We live in a culture that often celebrates the loudest voices, the biggest platforms, and the wealthiest people. Every day we are bombarded with stories of people chasing power, fame, influence, and money, as though those things alone define a successful life.

But I have discovered something far more inspiring.

There are still people quietly changing the world.

They may or may not trend on social media. They may or may not become household names. They may or may not receive the recognition they deserve. Yet every single day they choose compassion and truth over applause, service over status, and people over personal gain.

I wanted to take a moment to recognize just a few individuals whose lives have encouraged me.

Ricky Aiken- Inner City Innovators:

Ricky Aiken has dedicated his life to investing in young people and underserved communities through Inner City Innovators (https://innercityinnovators.org/). Rather than asking, “How can I become successful?” he asks, “How can I help someone else succeed?”

His work is about creating opportunities where others see obstacles, building hope where many only see despair, and reminding people that every life has value.

That kind of leadership isn’t built on ego.

It’s built on love.

Bryan Stevenson-Equal Justice Initiative:

Bryan Stevenson has spent decades standing beside people whom much of society has forgotten. Through the Equal Justice Initiative (https://eji.org/), he has become a powerful voice for justice, mercy, and human dignity.

One of his most memorable statements is this:

“Each of us is more than the worst thing we’ve ever done.”

Those words reflect a truth Christians 

understand well. Every one of us stands in need of grace. Every one of us has been offered redemption through Christ.

Justice without compassion becomes cold.

Compassion without justice becomes incomplete.

Bryan Stevenson reminds us that both matter.

Benjamin R. Cremer:

Benjamin Cremer (https://benjaminrcremer.substack.com/ ), consistently challenges Christians to look more like Jesus than like the culture around us.

His writing encourages believers to choose humility over arrogance, love over outrage, and faithfulness over political power.

In a time when Christianity is too often associated with division, Benjamin continually points people back to the heart of Jesus.

Not everyone agrees with him.

That isn’t the point.

His willingness to speak with humility, compassion, and conviction is something our world desperately needs.

Suleika Jaouad:

Suleika Jaouad (https://www.suleikajaouad.com/), has shared her deeply personal journey through illness, uncertainty, hope, and resilience with remarkable honesty.

Instead of allowing suffering to define her, she has used it to connect with countless others walking through their own difficult seasons.

She reminds us that healing isn’t always about becoming who we once were.

Sometimes healing is becoming someone entirely new.

As someone who has spent many years navigating serious health challenges, I deeply appreciate voices that speak honestly about pain while refusing to surrender hope.

A Different Kind of Legacy

These four people come from different backgrounds.

They may have different beliefs.

They may serve in different ways.

Yet they share something that seems increasingly rare.

They have chosen to live for something bigger than themselves.

They remind us that changing the world doesn’t always happen from a stage.

Sometimes it happens in a courtroom.

Sometimes it happens in forgotten neighborhoods.

Sometimes it happens through honest conversations.

Sometimes it happens one person at a time.

What Will Be Said About Us?

When our lives are over, people probably won’t remember how many followers we had.

They won’t remember how much money we accumulated.

They won’t remember how famous we became.

They will remember how we treated people.

Did we lift others up?

Did we stand beside those who were hurting?

Did we speak truth with grace?

Did we leave the world more compassionate than we found it?

Jesus never told His followers to seek fame.

He told us to love our neighbors.

He never instructed us to chase power.

He taught us to become servants.

He never measured success by influence.

He measured it by faithfulness.

Perhaps that’s the kind of legacy worth pursuing.

In a world obsessed with being noticed, may we become people who quietly notice others.

Because those are often the people who change the world the most. ~OC

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What Running Taught Me About The Gospel Of Jesus Christ

Today’s a new day! Back in 2003, while having a cancerous golf ball sized tumor removed from my chest, I had a vision that God wanted me to start running marathons and sharing the Gospel. No, it wasn’t the medications talking. Four months after having my chest cracked open, I laced up my running shoes and began a journey that was about much more than physical exercise. What started out as a God given vision eventually became a living illustration of the Gospel of Jesus Christ. With every mile, every struggle, and every victory, God showed me truths that I had read in Scripture but had never fully experienced until I began running.

The Journey Begins With A Single Step:

No one wakes up one morning and suddenly runs a marathon. Every runner begins with a single step. The same is true in our walk with Christ. Salvation begins when we take that first step of faith and trust Jesus as our Savior.

Many people look at mature believers and assume they have always been strong in their faith. The reality is that every Christian starts at the same place—at the foot of the cross, completely dependent on God’s grace.

Running reminded me that God is not asking us to be perfect overnight. He simply asks us to take the next faithful step.

Endurance Is Built Through Difficulty:

Every runner knows that growth comes through discomfort. There are days when your legs are tired, your lungs are burning, and everything inside you wants to quit. Yet those difficult miles are often the ones that make you stronger.

The Christian life is no different.

Trials, hardships, disappointments, and seasons of suffering are not signs that God has abandoned us. Often they are the very tools He uses to strengthen our faith. Just as endurance is developed on the running trail, spiritual endurance is developed through life’s challenges.

The Gospel does not promise an easy road. It promises that Jesus will walk with us every step of the way.

You Can’t Finish Looking Behind You:

One lesson running taught me quickly is that constantly looking over your shoulder will slow you down.

Spiritually, many believers struggle because they spend their lives staring at past failures, past mistakes, and past regrets. The enemy loves to remind us of who we used to be.

But the Gospel reminds us of who we are in Christ.

Jesus paid for our sins on the cross. Through His grace, we are forgiven, redeemed, and made new. We honor God not by living in guilt but by moving forward in faith.

Runners finish races by focusing on what lies ahead. Christians grow by keeping their eyes fixed on Jesus.

The Race Is Not Against Other People:

One of the biggest mistakes runners make is comparing themselves to everyone else. Someone will always be faster. Someone will always have a better finish time.

The Christian life is not a competition.

God has given each of us a unique calling, a unique testimony, and a unique race to run. The goal is not to be better than someone else. The goal is to be faithful to what God has called us to do.

Comparison steals joy, but gratitude fuels perseverance.

Sometimes You Have to Keep Going Even When You Don’t Feel Like It

Not every run feels amazing. Some days motivation is nowhere to be found. Yet discipline carries you when feelings disappear.

Faith works much the same way.

There are days when we feel close to God and days when we do not. There are seasons when prayer feels effortless and seasons when it feels difficult. There are moments when worship flows naturally and moments when we worship by faith.

The Gospel teaches us that our relationship with God is not based on feelings but on the finished work of Jesus Christ.

We keep praying.
We keep believing.
We keep trusting.
We keep moving forward.

Every Finish Line Points to Something Greater:

Crossing a finish line brings a sense of accomplishment, but every race eventually ends. Another race always waits ahead.

Running taught me that earthly victories are temporary, but the promises of God are eternal.

The greatest finish line is not found at the end of a race course. It is found when we stand before Jesus and hear the words, “Well done, good and faithful servant.”

The Gospel reminds us that this world is not our final destination. We are running toward eternity with Christ.

Final Thoughts:

Running has taught me countless lessons about perseverance, discipline, and determination. Yet the greatest lesson it has taught me is this: the Christian life is not about running perfectly; it is about staying faithful to the One who called us.

When we stumble, Jesus lifts us up.

When we grow weary, Jesus gives us strength.

When we feel like quitting, Jesus reminds us of the hope set before us.

So keep running your race.

Keep walking by faith.

Keep trusting Jesus.

The miles may be long, the hills may be steep, and the journey may be difficult, but the Gospel assures us that we never run alone. Christ is with us every step of the way, and because of Him, the victory is already secured.

I hope this encourages both runners and non-runners to see how everyday experiences can point us back to the life-changing Gospel of Jesus Christ. ~OC

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Timeless

Today’s a new day! Being a cancer survivor and dealing with multiple health issues forever changes your relationship with time. It seems to pass so quickly, and there’s always a question about how much of it you’re going to get. At times it can be overwhelming. But maybe that’s why I always loved running. A 5K, 13.1 or 26.2 run can feel timeless if you’re embracing every moment of the journey.

Before I had to quit running a number of years ago, running almost made me forget my health issues. As I continue running this crazy beautiful health journey, I realize time marches on whether we are ready or not. I am as ready as I’ll ever be. Let’s go! ~OC

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Life with Myasthenia Gravis

Good Morning! More writings from the “Lost Writings of OC.” I thought I would share a little bit about my Myasthenia Gravis (MG) experience with you today. I originally wrote this in 2024 and updated it several weeks ago. As I share this with you, my MG is getting much worse.

Today’s a new day! Myasthenia Gravis (MG) is an autoimmune disease that causes muscle weakness. But what exactly does muscle weakness feel like? To understand more, let me walk you through a typical day with MG.

For me it feels like I’ve run out power. In general, I feel it’s a huge effort to move when I’m very weak. When my legs are weak, they feel heavy and unsteady. I feel like I cannot move them or trust them to hold me up. The weaker I get, the closer and closer my steps get to each other, until I have to stop and lean against something or just sit down.

Also, I get pain in my hip flexors – basically my butt. It’s the same kind of pain you get from overdoing a workout: an achy soreness that feels like you have overused the muscles. These days, I deal with hip pain on a constant basis.

When my shoulders are weak, which is most of the time lately, I feel like I just cannot lift my arms. Like there are heavy weights holding them down.

My neck continues to get weaker. I just cannot hold my head up. It falls to the side or down, or I have to prop it up with my hand on my chin and my elbow on a table, or with a U-shaped neck pillow and a high-backed chair. As my neck weakens, I develop achy pain in my upper back from trying to hold my head up. I sometimes get a nauseating gagging sensation from my throat collapsing.

Eating with MG can be a challenge from having to take breaks while eating, to choking on solids and fluids. Sitting down to eat or drink is a major undertaking. I also start to slur my speech, and I get short of breath from minor exertion, or sometimes just sitting still.

I always have muscle weakness, but it gets more severe with heat, exertion, lack of sleep, infections, or other stressors. Summertime can be very challenging. Extreme cold is not my friend either.

Based on my weakened lung muscles, I am unable to take deep breaths. This causes issues on so many different levels. These days, every breath is a struggle.

I have to stay on top of my medications for the Myasthenia Gravis. I have to take one of those medications four times a day. Oh, I better not miss those dosages or things can go down hill pretty quickly.

I try to dress in cool fabrics and wear layers in winter. And I try to protect myself from sickness by keeping my vaccines up to date, wearing a mask when needed , and using hand sanitizer or washing my hands frequently when I am out of the house. I tend to fist bump and avoid shaking hands or hugging.

You know how much I love to walk, but that is getting harder these days. I have added a walking stick to help with my balance. This is a far cry from my marathon days

My medical team continuously tells me I am a one in two billion case with all of the multiple diagnosis. With Myasthenia Gravis, I fall into a small group of people being diagnosed with MG after having their thymus removed. My cancerous thymus was removed in 2003, but I was not diagnosed with MG until 2009. I will not go into what the thymus does, but feel free to research on your own.

How friends loved ones can help

One thing my friends and family do for me that’s immensely helpful is helping to educate themselves on Myasthenia Gravis so they can explain it to others and better understand my daily challenges.

I only have a few people besides my bride, who truly know me and my MG that well, but they are lifesavers. They’re also the ones I’ll talk candidly to when my MG gets me down. I cannot be relentlessly cheerful all the time, but I try.

I hope this gives you a better understanding of what Myasthenia Gravis looks like and how it affects my life on a daily basis. Each day is a struggle, but I continue to push forward and look at all the positives in my life. I encourage you to do the same. Go have a great day! ~OC

Dear God, Sometimes the pain is so great, I cannot think beyond my current struggle. On hard days, please ease my pain and help me focus on Your goodness one day, one hour, one moment at a time. Let Your overwhelming peace wash over me and remind me Your mercies are new every morning (Lamentations 3:22-23). There are days when I beg you to take the pain away. Days I just don’t have the strength. In those desperate times, I ask for Your unending strength to sustain me. I cannot do it alone, but with You all things are possible (Matthew 19:26). Amen

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A Day In The Life

Today’s a new day! Ever wondered what a day living with chronic illness and health challenges looks like? Today I will take you on a journey into the twist and turns of a day living with long-term health issues.

From the moment I wake up, I’m already facing barriers. My chronic illnesses make it difficult to get going. For those not aware, based on my health issues, I have slept in a recliner for about the past twenty years. It’s just too hard to get in and out of a bed. Every day is a balancing act where I have to be mindful of my energy levels and make sure that I’m taking time to rest. 

An Introduction To My Health Journey:

In 2002, I was diagnosed with multiple forms of arthritis. That year was filled with a lot of experimental treatments. Then in 2003, I was diagnosed with cancer. Thankfully I was able to have surgery to remove the tumor and never had to walk through the struggle of chemo and radiation. Let’s speed things up. From 2007-2024, I have been diagnosed with Parkinson’s, Myasthenia Gravis, Gastroparesis, Type 2 Diabetes based on all the steroids, had a stroke, diagnosed with cluster headaches and just a few months ago was diagnosed with early onset dementia. That’s my rap sheet!

What My Night and Morning Looks Like :

Based on my neurological issues, I am up and down most of the night. So I never wake up feeling rested. I wake up stiff, so I need to move around and take a host of medications in the morning. Of course meds have side effects, so that can be difficult.

Since I deal with gastroparesis, eating has been a major issue for many years. That makes taking in fluids and food a huge and painful task. So every meal, every day is an adventure.

My mornings are dedicated to spending time with God, journaling and trying to exercise. For me, walking is the best type of exercise for me. I never know how many laps I will be able to get in. I have to be careful not to overdo it. If I do overdo it, my body will pay for it the rest of the day. I spend some time each day for reflecting on life and looking at how I can hopefully encourage others as I continue running this journey. These days, I tend to take a lot of short cat naps. Over the last year, the pain has increased, so that’s a daily struggle. Unfortunately, pain meds and gastroparesis do not really care for each other. So most days, I just live with the pain.

One thing I choose to do everyday is get dressed. I never lay around in my sleeping clothes. It makes me feel good to get cleaned up and get dressed.

My favorite part of any day is spending time with my bride and friends that choose to reach out. Spending time with loved ones is very important to me. I love sitting around and enjoying great conversations. Also, I try to read every day. My love for reading has been challenging the last few years, since it’s hard to stay concentrated. I also spend time listening to music each day. Music can make everything a little bit better.

In the evening, Laura and I like to talk about our day and possibly watch a little television. Based on my day, my bedtime varies. But since I sleep in my recliner, I can fall asleep anytime my body and brain allows me to. Every night is an adventure.

What I consider a daily self-care must do:

Writing about what I’m grateful for in my journal helps me remember the positives, even on those really hard days. Living with long-term health conditions can be exhausting and can be very negative if you allow it to get on top of you. 

Several people have asked if I had one day without pain and could step away from my health journey what would I do?

I would lace up my running shoes and go for a very long run. For those new to my journey, in my healthier days I was blessed to complete 350 marathons.

Another question people asked me a lot: Is there anything I would like to share about daily living with chronic illness and life challenges?

There’s a lot, but I do not want to make this post any longer than it already is. One of my hopes is, people will realise that we never know what someone else is really going through. So be kind and respectful. It doesn’t help when people tell me how I should be living out my health journey. Just be supportive and walk through this journey with me.

By sharing what my day to day life is like, I hope I can raise awareness of the bigger picture as people only see snippets of my journey online or see me on my best days in person. I am not sharing this for pity or sympathy and I am not complaining. I just want to give you some insight into this crazy beautiful health journey.

The Takeaway:

Writing about my day living with chronic health issues has been quite eye opening to me to see how much life has changed over the years. I have a strong need to celebrate the love and support I have received over the years from family and friends. Writing this post has let me see how faithful God has been to me, as I continue to run this beautiful journey.

I hope that you have found this post to be a helpful insight into life with with long-term health issues. There are so many people walking through a tougher battle than me. So if you know someone dealing with chronic illness, take the time to reach out to them and support them on their journey. ~OC

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Embrace the Detours

Good Morning! Today’s a new day! This time 21 years ago, I was arriving at the hospital to have a golfball sized cancerous tumor removed from my chest. A lot of memories from that day. My mom and mom-in-love coming to take care of Laura and I. Family/friends hanging out at the hospital to pray and support Laura. The power going out at the hospital right before surgery. God giving me a vision during surgery that I would start running marathons and sharing my story (I was blessed to run 350 marathons). The doctor telling me that the team had gotten all of the tumor. Jesus was in the mist of the whole thing. Thankful He has blessed me with 21 more adventurous crazy beautiful years. Twenty-One years ago today the Today’s A New Day! writings started. As I continue walking through health issues, I encourage everyone to embrace the detours of life. ~OC

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Experiencing Peace

Today’s a new day! Along this journey called life, we all deal with fear. Fear can hit us during what we thought would be a routine doctors appointment. Fear can hit us when test result comes back with more questions than answers. Fear can hit us when we watch the news or scroll through social media. We have all experienced fear in our lives.

Back in 2003, one of my doctors called me early one morning and shared he needed to see me right away. Then he made the comment “Oh and make sure you bring your wife.” A little fear hit me at that moment. Later when the doctor shared I had a tumor, the fear grew a little deeper. Fear, worry and anxiety. My wife and I experienced all those feelings sitting in that doctor’s office.

A few weeks later a biopsy revealed the tumor was the size of golfball and was cancerous. Once again, fear, worry and anxiety smacked me in the face. Things seemed overwhelming at that point.

Then something amazing happened. As I laid in ICU hooked up to several machines, God took away the fear, worry and anxiety. Those feelings were replaced by peace, calmness and even joy. Yes, joy. What changed?

God reminded me of the week long fast I had done a year earlier during a missions trip. He revealed the reason I had fasted was to prepare me for this very moment. Peace flooded my room and heart at that moment. In that moment, I completely turned my health situation over to Jesus and trusted Him to walk me through my unknown future.

Even though I had been filled with fear, anxiety and worry, Jesus was right there with me. He shared hope, love and peace even as I was overwhelmed with so many different emotions. God never abandoned me in my time of need.

During that moment, I still had to deal with life as a cancer patient. But that unknown did not overwhelm me anymore. Jesus reminded me that He was bigger than any health issue I would ever face. I am thankful, I did not know my future would be full of more health issues, test, multiple doctors appointments and hospital stays. No, at that moment I was just filled with peace. A peace that has never left me.

Here I am in 2024, after overcoming so much, but still dealing with so many health issues. Fear and worry try to overwhelm me at times, but I am still experiencing that same peace and joy I experienced in that ICU room so many years ago. Knowing that Jesus is still bigger than anything life throws at me. Still living life with a thankful heart. ~OC

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