Tag: Celebrate

Embrace Your “Can’t”

Today’s a new day! I used to tell people that the word “Can’t” should never be uttered from their mouth. I used to use the popular phrases “Just Do It,” and “Sleep when you’re dead.” Yes, I was that guy.

In today’s world, we are pushed and even encouraged to take on more and more, and we are seen as weak or strange when we are unable, or do not want to do so.

For me, this mindset came from my passion for life. It was fueled by a deep craving to achieve everything in life. It’s what made me intense, driven, competitive, and hardworking. It was who I was. Until I wasn’t.

As I have walked this crazy beautiful health journey for 22 years, it took me some time to come to terms with my “can’t.” Early on in my health journey, I constantly pushed through truly excruciating symptoms, like level 10 pain, exhaustion from weeks of no sleep, and unrelenting crushing fatigue even when I did sleep. I pulled myself together through constant life-threatening health issues, and participated in physical activities that I had no business attempting with a smile on my face (like running multiple marathons with no training) – while inside my body, my mind, and my spirit were dying a slow and agonizing death. Yet I still didn’t listen.

Why am I sharing all of this with you? Because I believe I could have spared my body a lot of pain and damage, my mind a lot of anxiety, if I had just learned to accept, or even embraced my “can’t” earlier in my health journey. I would have also spared my bride from a lot of worrying.

I want to share a few lessons I have learned along the way. I hope you take the time to read and reflect on them.

1). “Can’t” Is Not Weakness:

The biggest hurdle when it comes to dealing with “can’t” is intimately understanding on a heart-knowledge level that being unable to do certain things because of your illness does not mean you are weak, lazy, unintelligent, or unmotivated. This is where I was stuck for a long time. I had believed my whole life that if I couldn’t perform at peak levels, it must be my fault and that I just wasn’t trying hard enough. So, when my illness started to seriously affect my work quality in the career I had worked so hard to achieve, I compared myself to those around me, and told myself that I was just “too stupid” or “lazy” to do the job. At times I listened to the lies that I was worthless.

Hello Over-Achiever. I want to talk to you directly now. You burn-the-candle-at-both-ends doers. You know-you-can-conquer-the-world types. You did not choose your health issues. You didn’t work hard your whole life just to become a “lazy” and “unmotivated” on a whim. That’s not you and that’s not what is happening in your life. It’s not a matter of motivation, drive, desire, or ambition. It’s not a matter of not trying hard enough. It’s a matter of your body revolting against the true self of your mind and spirit. It’s a matter of your earthly vessel failing the real and eternal you that lives inside. The true and eternal you is still the same as it has always been: driven, motivated, intelligent, and strong. Once you accept this and understand the gulf between the two “yous,” you can take strides to get your body back on board so that a more collected, collective you can get back to truly living.

Accepting your “can’t” isn’t weakness; it’s actually strength. It means that you are strong enough to look your health challenge squarely in the face and get after the business of Overcoming. It means that you are brave enough to accept that your life right now must take an unexpected detour. It means that you are willing to admit your physical “can’t” so that you can open your mind and spirit to what you can and must do to regain your health. And the only way you can allow your focus to properly shift to healing is to first completely embrace your illness and your “can’t.”

2. “Can’t” Allows Healing:

Sadly, it took me several years to embrace this truth. I am encouraging you not to wait. Because if you don’t fully believe and fully accept that you are sick, you will keep running the rat race. But if you look deep in your heart, listen to your body, and know in truth that you are sick, then you can accept it. Embrace it.

I cannot stress this enough. Because until you wholly feel the weight of it, until you embrace it and believe it, you can’t get truly angry about what your illness is stealing from you. And until you get angry you cannot mentally, emotionally and spiritually prepare for the battle ahead of obtaining a full and accurate diagnosis, proper treatment, and hopefully better health. This is how coming to terms with your “can’t” sets you on the path to healing.

If you are in the early stages of your health journey, this next part may shock you. The medical system (at least in the United States) will not completely facilitate you regaining your health. Not at all. Unless you are exceptionally fortunate, your journey is not going to look like: get sick, see a doctor, get better. No, if you have a chronic or complex illness, generally speaking you need to prepare for battle. You need to arm yourself with knowledge and with the mental fortitude to be your own advocate. You need to prepare to fight for your life. You need to push for answers and drive the process. No one else will or can do it for you.

This is why embracing your “can’t” is so important. Because when you truly realize what you “can’t,” you get really, really angry at this invisible thief of life that is your illness. I don’t mean “bitter” angry, I mean “motivated and determined” angry. And you’re going to need that determination to drive the (sometimes grueling) battle that lies before you. And that drive to press forward in the battle is the only thing that will lead you to wellness.

It’s all you, Warrior! So get really angry at your “can’t” and resolve in your mind to do everything you humanly can to regain your health.

3. “Can’t” might be forever (But it’s not your identity): One of the more valuable pieces of advice I can share with you is that your “can’t” might be forever. That can be a difficult pill to swallow. But your “can’t “ does not need to become your identity. My life is much more than all the “limitations” I face on a daily basis. My life is full of hope, adventures and overcoming all the bumps in the road.

4. “Can’t” Makes Room for “Can”

Another critically important thing that coming to terms with your “can’t” does is that it makes room in your life for your “can.” Some of your “cans” may look something like:

1). I can make healthy, life-giving meals for myself to help my body heal.

2). I can research my illness for myself so that I have the knowledge to ask good questions at my appointments and to make educated treatment decisions.

3). I can maintain a positive attitude, despite how I feel.

4). I can make time for self-care activities that will help my body.

5). I can surround myself with people who encourage me in my health journey.

6). I can purposefully structure my life so that it supports wellness and healing.

7). Even though I couldn’t yesterday, today I can go for a short walk or bike ride.

8). This morning, I can rise early and sit peacefully to watch the sun rise

9). Right now, I can make positive choices to help with the symptoms I’m experiencing.

10). Don’t get hung up on committing to daily schedules of “cans” or expecting some type of minimum performance of “cans.” While it’s absolutely important to have bigger, more overarching “can” goals, embrace what you can do today and accept that tomorrow’s “cans” may look very different based on your health. Every day is a new opportunity to discover and put into practice the things you can do.

Here are some practical steps that can be used to work towards peace with your current “can’t:”

1. Pray

2. Journal

3. Reach out to family/friends

4. Reach out for professional help if needed

Coming to terms with your “can’t” may be difficult, but it’s so important and it opens the way for healing and wellness to come in time. You are unbelievably strong to live with your symptoms day in and day out and even stronger to accept and face such a challenge head on. Be encouraged that your “can’t” is just for right now and that nothing we face on this side of Heaven is forever. ~OC

Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal. ~2 Corinthians 4:16-18

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Go Fly!

Today’s a new day! As I continue to deal with the effects of Lewy Body Dementia, sometimes my thoughts take me to a place that doesn’t always make sense. But sometimes, I am blessed with a word, thought or phrase that might not make sense to me at the time, but as I unpack it and begin to pray about it, all the sudden things become a bit more clear to me. Let me give you an example.

A few weeks ago, I saw a butterfly fly by me as I was sitting on my balcony. Like most of you, I have seen hundreds of butterflies in my lifetime. But that day, God impressed upon me to type the word butterfly down in my notes. So I did and did not think anymore about it until a few days ago. The following is what God showed me and I thought I would share it with you.

I often wonder if a butterfly ever goes back to thinking like a caterpillar once it has undergone chrysalis. Does the butterfly ever think, “Man, I had it so good when I had to crawl everywhere and ate leaves?” Or does the butterfly look to its new life where it can fly, go places faster and eat the sweet pollen from flowers and think I will never go back to crawling? I’m guessing the latter because I have never seen a butterfly eat leaves or crawl around.

I wonder then why we often go back to our old ways of stinky thinking and our old ways of life once we have asked God into our lives. We have been set free from a life shackled and earth bound to a life of a high calling in Jesus. Scripture says that all things have become new and we are a new creation. We have to put away our old way of thinking.

In Ephesians 4:23, we read that we should let the spirit renew our thoughts and attitudes and to put on our new nature. That can be easier said than done when our old life keeps wanting to creep back in and disrupt our new life. Our old life wants to come back out and do things that it used to do before we accepted a new life in God

The following are a few things I believe we can do to help us live the life God has chosen just for us.

1). Change Our Environment:

We cannot change our thinking and our life until we change our environment. The butterfly has to flap its wings and leave the leaf so it can find new life. You and I are called to come out from among them and to be separate. If we never leave our old life, we will never be all that God intended us to be.

We have to find new places to hang out and feed ourselves good things. It can be hard to leave the old things behind, but if those things are holding us down, we have no choice. That could mean distancing ourselves from old friends who might want to pull us back into our old habits. We were meant to fly. So we need to spread our wings and trust God to help us navigate this new life.

2. Change What You Put in Your Mind:

The butterfly no longer eats what it used to. Its appetite changed and so did its taste. As a Christian, our spiritual appetite and tastes must change. We cannot walk through this new life eating, drinking and talking like our old selves. It is unhealthy for our new selves to continue consuming our old diet. Plus, I find as we start consuming new healthy things our bodies will not want the junk our bodies used to crave as much.

3. Embrace Your New Life:

Our new life should not only bring glory to God, but also light to others. When we see a caterpillar and a butterfly, we think two different things. The caterpillar is destructive to plants and is not very attractive. But the butterfly brings life to other plants and is beautiful. Our lives should have that kind of change.

We are called to live and walk in the light. We are to bring life to those around us and not destruction. People should be able to see a difference in our new lives. We should embrace who God has created us to be and strive to live the life we were meant to live. If we do that, we cannot help but to soar. So, go fly! ~OC

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A Beautiful Gift

Today’s a new day! It’s only been a week since I was given the diagnosis of dementia. But the symptoms have been showing for a number of years. Since my diagnosis life has been filled with many phone calls and text from concerned family and friends. I appreciate them all. In the past week, here are some things I have thought about as I begin my journey with dementia.

My dementia diagnosis does not define me. Although the diagnosis is life changing, I will not allow it to change who I am. I will fight that battle for as long as I can. I will continue to love people the way I always have. Probably a little more. I totally understand dementia is a progressive disease and I may not be able to do all the things I once did, but I want to continue doing the things I enjoy for as long as I can.

If you want to know how I am doing, just ask me. The sudden change in how others communicate with me since my diagnosis has been a little frustrating. Trying to avoid conversations about my diagnosis of dementia will only make me feel uncomfortable and isolated. I am still me. For now.

Yes, the diagnosis is correct. I wish it wasn’t, but it is. Younger people can be diagnosed with dementia. While the vast majority of people are affected by dementia at an older age, the disease can affect younger individuals. If you have concerns about your own cognition, I encourage you to get checked out regardless of your age.

Please don’t debate my diagnosis or tell me I don’t look like I have dementia. Do not attempt to dismiss the diagnosis. Those responses can be offensive. It is hard enough to tell someone I have dementia , let alone having to defend it. You may not see my dementia, but I live with it every day.

Please understand that sometimes my words and actions will not be the true me. It’s the dementia. As the disease progresses, I might deal with anxiety, confusion and a host of other issues. There are days I may want to sleep more. Remember, I am still me, just a little different.

My dementia diagnosis does not mean my life is over. I plan on continuing to live an active and memory filled life as long as possible. Laura and I plan on continuing to embrace life to its fullest.

So please keep reaching out and treating me the same old way. Social interactions are very important to my wellbeing. So do not be afraid to call, come by the condo or plan a time to meet. My life continues to be a beautiful gift. ~OC

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Jars of Clay

Today’s a new day! In 2 Corinthians 4:7-9, we read the following words: “But we have this treasure in jars of clay to show that this all-surpassing power is from God and not from us.  We are hard-pressed on every side, but not crushed; perplexed, but not in despair; persecuted, but not abandoned, struck down, but not destroyed.”

In the above verse, Paul is comparing us to jars of clay in verse seven because life here on earth will cause us to be broken sometimes and when we are we always have the choice on what we will do with our brokenness.  If we allow God to fill us more with each and every passing trial or heartache, He can shine through that brokenness and others will see Him. Even though some heartaches and storms seem to last forever Paul goes on to explain how we need to view everything in life on earth.  

In 2 Corinthians 4:16-18, it declares, “Therefore we do not lose heart.  Though outwardly we are wasting away, yet inwardly we are being renewed day by day.  For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all.  So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal.”  As difficult as it is to look at some storms as being temporary when we know here on earth it isn’t just going to go away, God is drawing us to His side to allow Him to fill us with more of His light and to be comforted by Him.  He wants our focus to be on Him and eternity.  He wants His light to shine through our brokenness so the world will see Him.  The world is a dark, lost place and people need Jesus. The more we choose to be different by living a life that is pleasing to God the more they will see Him. Paul took great joy the more broken he became because He understood that the more weak he became the more God was shining through His life.  

Whether we are looking at our own life or the life of someone we love, don’t lose heart. God loves us and He has a plan. We need to fix our eyes on Him and seek Him and His plan. Allow Him to fill us so every crack of that broken jar shines His light to a lost world. The darker the world gets the more our light can shine for Him if we are seeking Him and allowing Him to shine through us. Our hope is found in Him and He wants to fill us with that hope. He wants to fill us with the confidence that whatever we may be facing or someone we love is facing that He has a plan but we must seek Him and follow Him. Don’t look for another way, the answers that we are seeking are found in God. It may seem easier and faster to look for it somewhere else, but if it isn’t His plan then it isn’t His best. So let us seek Him and trust Him, knowing how much He loves us so we can know that truly His best is yet to come. May we lean into His promises. ~OC

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Take a Minute Today

Today’s a new day! As we reach the end of another week, I would encourage each of you to take one minute and think about the people who have helped you become the person you are today. The people who invested time into helping you grow as a person. If those individuals are still alive, I would encourage you to reach out to them and say thank you. For those life investors who have passed away, I would encourage you to spend some time reflecting on the lessons they taught you. ~OC

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Twenty-Five Years. Twenty-Five Lessons.

Earlier this week, Laura and I celebrated our 25th Wedding Anniversary. I can’t believe it’s been 25 years. This year to celebrate 25 years together, I want to share 25 things we have learned in this crazy beautiful journey. Obviously, we have learned more than 25 things, but these are the things that came to mind as I was writing this blog.

1). Pray continually.

2).Our faith in God, is what holds us together.  It’s the foundation for our relationship.

3).Protect your marriage by always putting it first…before self, before kids, before career, before parents, before friends. First. Period.

4).It’s ok to talk about how you feel. Just make sure those conversations are filled with respect.

5).Time alone together is important. Date Nights and getting away together once or twice a year is healthy for your relationship.

6).Learn the other person’s love language.

7).Laughter is good for a relationship.

8).Develop a shared interest. It can be simple. Laura and I like to travel and just sit around our house and chill.

9).You will face challenges in life. Work through those tough moments together. Always together.

10).Don’t allow family, friends or cultural to dictate your marriage.

11).In-laws can be challenging at times, but also a beautiful blessing.

12). Marriage not 50/50. It’s 100/100. However, you will not always both be able to give 100% and that’s ok. There will be times you and the Lord will carry things for the both of you. That is Love.

13). Don’t keep score.

14). Make the choice daily to love your spouse.

15). Serve your spouse even when you’re tired and maybe you don’t feel like it.

16). Communicate! Don’t keep things bottled up.

17). It’s ok to agree to disagree.

18). Having a separate interest is okay as long as it doesn’t interfere with your relationship.

19).Listen and let them know they are truly heard.

20). Tell your spouse you’re proud of them.

21). Support their dreams.

22). Critique with love.

23). When life gets tough, remember what you love about them

24). It’s a treasure to have someone to walk through the highs and lows of life with you.

25). Love always.

I am forever grateful that God has blessed me with a bride who loves God first. Also I have always known Laura loves me even on my worst day.

As I reflect on our 25 years together, 1 Corinthians 13:4-7 comes to mind:

Love is patient, love is kind. It does not envy, it does not boast, it is not proud. It does not dishonor others, it is not self-seeking, it is not easily angered, it keeps no record of wrongs. Love does not delight in evil but rejoices with the truth. It always protects, always trusts, always hopes, always perseveres.

To those couples that might be reading this post, I pray you will cling to the Lord and each other.  It’s what has carried Laura and I this far and I know it will you as well. ~OC

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Happy 25th!

Today, Laura and I are celebrating our 25th Wedding Anniversary. When you start out on this journey called marriage, your 25th anniversary seems so far away. But, as many people told us as newlyweds, time flies when you are having fun and it sure does.

We met at a singles event along the walking trail in Palm Beach, FL in January 1999. We enjoyed some great conversation and laughs, but we both did not walk away thinking that’s the person I am going to spend the rest of my life with. No, that would come a little later. But not much later. But we took those first few months to pray and get to know each other better.

So in April of 1999, we got engaged. I told you it was not much later. Then on September 3,1999, we both took vows to love, respect and cherish each other for the rest of our days. Oh, we also committed to love each other through sickness and health. Little did we know what was ahead of us in that area of our marriage. I think Laura drew the short stick on that one.

As many of you know, just a few years into our marriage my health started to decline. What we thought would be a short story of overcoming health issues, has turned into a twenty-two year and counting crazy beautiful journey. One that has drastically changed our marriage and our lives. But I believe Laura would agree, it has made our marriage and our lives stronger.

As we have walked this crazy health journey, we have been surrounded by some amazing family and friends. Some of those friends have been part of our love story from the very beginning. I am so thankful for their support during our journey and for having them share in so many special moments with us over the last 25 years.

The past 25 years have been filled with some tough moments. We have dealt with issues most couples will never deal with or at least not until they’re later years. We have been told countless times, that I would not make it for another 24 hours. We have celebrated countless holidays with me in the hospital. But through all of those tough moments, we dealt with them together. And we laughed. One of the promises I made to Laura on the day we got married, was I would make her laugh every day. Even through the storms of life, I am happy to say I have kept that promise. As Laura and I have traveled this journey we realize that marriage is just two imperfect people refusing to give up on each other. We have made our marriage a priority and kept God at the center.

As we celebrate our 25th wedding anniversary today, we count it all joy for the amazing journey God has allowed us to experience together. We know every day and every anniversary is a gift. A gift we never take for granted. So today, we will spend some time reflecting, celebrating and laughing. Always laughing. Together. ~OC

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Adversity

Today’s a new day! Are you currently walking through a storm? Maybe you just came out of a season of trials. We have all been in one of those seasons at some point in our lives. But as we deal with the different trials of life, I believe that God has placed within each of us, seeds of strength, resilience, and fortitude. We can tap into an unbeatable spirit to overcome the adversities of life.

As I have run this crazy beautiful health journey for the last 22 years, I have leaned on the word of God to help me navigate through the storms of life. I pray the following words will help and encourage you as you run your own life journey.

(1) We can run in God’s Presence. In Matthew 28:20, “I am with you always even to the end of the world. And in Isaiah 41:10, we can lean into this promise “Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.”
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Even when we suffer adversity, we can know that we are in the presence of God. What a great encouragement and comfort to help us through those difficult times.

(2) We can learn from God’s Promises. The Psalmist affirmed that God would be with us. That he is “our refuge and strength, a very present help in time of trouble.” God promises help. Comfort. Hope. And in 1 Peter 5:7, we read “And I will care for you.” God feels our pain. He will supply our every need.

(3) We can lean on God’s Power. No matter what we are facing in life, the love and power of God is with us. Finite strength is undependable and expendable, but God’s infinite power is sufficient for every need. Indeed we are “kept by the power of God” (1 Peter 1:5)

(4) We can look for God’s Purpose. I promise you God’s purpose is not to make you miserable. The Apostle Paul said to “rejoice in the Lord” God does not send pain, problems and pressures. God is the giver of good gifts. “Of his own will he brought us forth by the word of truth, that we should be a kind of firstfruits of his creatures.” ~James‬ ‭1‬:‭18‬ ‭

So what is God’s purpose for us when we face adversity? That’s a big question. But for me, it has taught me to Walk by faith and not by sight (2 Corinthians 5:7) My season of adversity as made me stronger (James 1:2-3) I have learned to focus on the eternal plan in Jesus. (Ephesians 3:11) To claim victory through his love, grace and mercy. (Romans 8:30-31).

As we continue to run this race called life, we all will suffer moments of adversity. Sometimes we will experience extreme tragedy. Yet, whatever the trials, storms and tragedies we face, we can always walk in the hope, comfort, grace, strength and love of God. ~OC

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A Milestone

Good Morning! Today I hit a milestone. Earlier this morning, I wrote my 1,000 post. Well, I guess this is 1,001. I could never have imagined writing a thousand post when I started this blog back on June 28, 2018 with the help of my amazing bride Laura and wonderful sister in love Faith. I could never have imagined that I would write and have a book published based on my blog entries.

Over the past six years, I have always tried to write what I believe God put on my heart. The majority of my blogposts have been written from a hospital room on 4 South at Good Samaritan Medical Center. My post have been about my experiences and my observations of the world as I have run this crazy beautiful health journey. A lot of the post were written long before I even started my blog. That’s why it’s a good idea to journal.

I know over the years, my writings have caused a lot of conversations. Some good. Some not so good. But they have started much needed conversations. That’s what a writer is supposed to do. Stir up conversation.

Over the years, many people have shared my blog gave them the courage to start writing their own story. Some have even published their own books. That means a lot to me.

So I will continue sharing my thoughts. I am not sure how many more post I have in me, but I will keep writing until the day comes to put a period on my journey. Thankfully that’s not today. ~OC

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Friday Night in the 80’s

It’s Friday! Let’s take a trip back to the 1980’s in West Palm Beach, FL. You have had a long week at school. It’s time to relax and let loose. You spend a lot of time getting ready for a night on the town. Gotta look good! Ladies have to have that 80’s hair on point. Guys have to pick just the right cologne. You jump in a crowded car and see where the night takes you. First stop is the mall. Do you hit the Palm Beach Mall or the Cross County Mall? Maybe you scope out both. If you hit the Cross County Mall, you might check out what’s playing at the AMC Movie Theater. Then you might scroll over to the Arcade. Oh, everyone is getting a little hungry. You head down to Mamma Leone’s for a slice or two. You hang out for a while and decide what’s next. No one can decide on a movie, so you decide to head to Galaxy Skating Rink. You’re bound to find some friends skating to the amazing sounds of the 70’s and 80’s. You spend a few hours skating round and round, then you decide it’s time to head back to the Cross County Mall and get some ice cream at Swenson’s. By that time some new friends have jumped in the 🚘. Maybe you know maybe you don’t. It really doesn’t matter. After making yourself half sick on all the ice cream, you decide maybe you’ll hit a midnight movie at the theater. Maybe you have a friend working there who will let you in for free. After a night of fun, you head home with some amazing memories. Memories that will last a lifetime. Enjoy your Friday night! ~OC

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