Tag: Choice

Just Dance

Today’s a new day! As I continue to run this crazy beautiful health journey, I want to continue sharing some wisdom and life lessons with you. I pray they will challenge and encourage at least one person.

Today’s Lesson: Dance Through the Journey

Life might not be the journey we hoped for, but while we are here, we might as well dance.

One of the first things I would encourage anyone currently walking through a life you didn’t necessarily choose is to Embrace the Journey.

Grasping this approach to life is something I have been working on as I dance my way through this crazy beautiful health journey.

But twenty-three years into this health journey, I still don’t have it down — but thankfully I am further along than I used to be. Praise God.

As I have spoken to many different people during my journey, I have found so many people live life with the following beliefs:


“Once I get through (fill in the blank), then I’ll have time for … “


“When my children are grown and out of the house then I can really … “


“If only I were (fill in the blank — more creative, more outgoing, healthy …) then …”

Most people are living for the future and not making the most of the present.

Most people are waiting for the perfect time, when everything is in order.

Where did we get the idea that would ever be possible?

I’m not sure, but I believe so many times we get caught up in looking at other people’s lives on social media or what we see in the media. If only our life looked like….

We are bombarded with messages that life is all about the pursuit of happiness and the perfect life.

But scripture bears witness to a different reality. We are told to expect trials and count it all joy; that God’s grace is sufficient in our weakness; and even that joy itself is a fruit of the Holy Spirit.

During this health journey, I have found life is not about the pursuit of happiness… It is about joy in the pursuit of God.

It’s about embracing the journey God has called us to for the time He has called us to do it, in the circumstances He has placed us in.

It’s about trusting Him to lead us and leaning on His Spirit to grow the fruit of joy and peace within our souls.

It’s about choosing contentment in spite of the storms.

That’s not always easy.
It does not come naturally.
It requires intention, discipline, and discernment.
But God.

God who calls us to be content is the ONE who equips us to choose joy.

Praise His holy name!

Keep Dancing! ~OC

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Along the Journey

Today’s a new day! As I continue to run this crazy beautiful health journey, I want to continue sharing some wisdom and life lessons with you. I pray they will challenge and encourage at least one person.

Twenty-three years ago, I sat in a sterile doctors office as the doctor shared I would probably be dead within five years. As I have continued running this crazy beautiful health journey, I have heard similar predictions from many doctors. Today as I write these words, my prognosis is not great. But as I write these words, I laugh a little because God continues to let me thrive in life despite the poor diagnosis. Throughout the past twenty-three years, God has answered the prayers of many. He continues to give me a reprieve. God continues to work miracles.

During the past twenty-three years of this crazy beautiful health journey, I have learned many lessons. I thought I would share a few.

I have learned to not fear death, but anticipate it with joy.

I love the words of the Apostle Paul,

“As it is my eager expectation and hope that I will not be at all ashamed, but that with full courage now as always Christ will be honored in my body, whether by life or by death. For to me to live is Christ, and to die is gain.” ~Philippians 1:20-21

I believe most Christians do not fear going to be with Jesus. It’s the pain and suffering that often precedes death that makes us a little uneasy. But I think as Christians, we tend to look at it the wrong way. Most of us think that we are in the land of the living en route to the land of the dying. But nothing could be farther from the truth. If we know Jesus, we are in the land of the dying traveling to the land of the living. I have experienced amazing peace during my hardest days. I have felt contentment and surrender wash over me.

Be brave. When I open my eyes each morning, I hear God singing these words to my heart.

“The Lord is my light and my salvation; whom shall I fear? The Lord is the stronghold of my life; of whom shall I be afraid?” ~Psalm 27:1

Most days , I deal with a lot of pain, weakness, nausea and horrible headaches. But each morning, I make the choice to get up and look forward to all that God has planned for me that day. Now that doesn’t mean I do not have rough days. I definitely do. That is why I always try to share the good and not so good parts of my journey. But I look at others who are suffering more than me and see how they do not complain and are living life with a beautiful sense of joy. I figure if they can face the pain with faith, so can I.

Let God’s Word empower you.

Speak it. Pray it. Sing it. Envision it. The more you allow God’s word to feed your soul, the stronger your spirit becomes. When I am feeling too weak to do anything, I open God’s word or listen to praise music to help me through those tough moments.

I love what the psalmist wrote in Psalm 119:92-93:

“If your law had not been my delight, I would have perished in my affliction. I will never forget your precepts, for by them you have given me life.” ~Psalm 119:92-93

Remember. Be grateful. Be glad. 

As I have faced this health journey, Laura and I have decided to continue traveling and making precious memories. On the really tough days, I look at those pictures and re-live those beautiful moments. I feel so blessed to connect with friends old and new, with family, with former classmates and everyone I have met on this amazing life journey God continues to let me live. All I can do is smile. Well, I cannot really smile that well these days, but I try.

The Apostle Paul shared the following words while sitting in a prison cell:

“For what thanksgiving can we return to God for you, for all the joy that we feel for your sake before our God,” ~1 Thessalonians 3:9

Embrace each precious moment. 

I have learned to not leave any words unsaid. Hug the people you love (or fist bump). To share and give freely. Leverage your time and energy for God’s purpose.

Over the past twenty-three years, I have faced death many, many times, but God allows me to keep standing. During this journey, I have learned what really matters in life: my relationship with God, my family/friends, serving others and not waiting for the perfect time to make amazing memories.

“So we do not lose heart. Though our outer self is wasting away, our inner self is being renewed day by day. For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison, as we look not to the things that are seen but to the things that are unseen. For the things that are seen are transient, but the things that are unseen are eternal.” ~2 Corinthians 4:16-18

When life gets dark, the glory of God shines brighter. I am not afraid of the valley of the shadow of death, because He is with me….closer than I could have ever imagined! ~OC

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The Root

Today’s a new day! As I continue to walk out this crazy beautiful health journey, I want to continue sharing some wisdom and life lessons with you. I pray they will challenge and encourage all.

Today’s Lesson: Address the Root Cause

Rather than focusing on surface-level solutions or addressing symptoms, it’s important to address the root cause of a problem. Fixing the underlying issue, even if it requires making difficult decisions, can lead to more sustainable and effective solutions. ~OC

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Dreams and Goals

Today’s a new day! As I continue to walk out this crazy beautiful health journey, I want to continue sharing some wisdom and life lessons with you. I pray they will bring encouragement to all that takes the time to read my post.

Today’s Lesson:

Take time to think about a dream or goal you haven’t achieved yet. How have the efforts and experiences along the way contributed to your personal growth and development? In what ways have past “failures” taught you valuable lessons that you can apply to future pursuits? ~OC

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Life’s Journey and Lessons

Today’s a new day! As I continue to walk out this crazy beautiful health journey, I thought I would share some thoughts and lessons learned along this journey. So for the next few days or weeks, I will hopefully share some wisdom and life lessons with you. I pray they will bring encouragement to all that takes the time to read my post.

The next few days or weeks, will be a reflection of the legacy I hope to leave behind for my family, friends and anyone who takes the time to read my post. As I continue to walk this health journey, I cannot control my declining health, but I can control how I deal with it and hopefully the positive impact I can have on others.

As I walk through this life, I want to encourage people to chase your dreams, embrace the challenges of life and to savor every precious moment.

Each day, I want to share a key lesson learned along the journey. Here is the lesson for today:

Embrace the challenges of life and make the most of your time here on earth. As I continue walking this journey, I have decided not to retreat from life, but instead to hopefully encourage others walking through their own life journey.

Finally, I hope and pray by sharing these life lessons, they will encourage you to reflect on your own journey and how you want to live it out. ~OC

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Simply David

Today’s a new day! I wanted to take a few days before responding to the irresponsible comments made by Secretary of Health and Human Services Robert F. Kennedy, Jr. earlier this week.

Laura and I have a wonderful and loving nephew living with autism. I should correct myself and say that David is thriving in life. As a child, the doctors shared David would never talk, or be able to take care of himself. Oh, how wrong they were. Today David is in his mid twenties and will talk all day if you let him. He also works two jobs and pays taxes. David has won multiple Special Olympic Medals. He and his father volunteer weekly at their church. Everyone at church knows and loves our nephew. David is living his best life.

So when Mr. Kennedy stood before the cameras and declared that children like David “will never pay taxes, never hold a job and never write a poem, I looked on with horror. Mr. Kennedy then went on to claim autism is “a preventable disease” and promised a lightning-fast investigation to root out its so-called environmental causes. While we must look at every possible cause of autism, including environmental factors, we cannot ignore the decades of scientific research that has already been conducted.

And remember, this is coming from a man with no real medical background.

This coming from the man responsible for guiding the United States’ national health policy. Let that sink in for just a second.

What Mr. Kennedy did at that podium was spew misinformation. It was a new level of fear-mongering. It was the 21st-century version of a snake oil salesman promoting false promises with no credible science.

Let me share what autism actually looks like.

It looks like David playing tennis or pickle ball. It’s David being so excited to dress up like Spider-Man to bring some enjoyment to others. It looks like David always checking in on me during and after a hospital stay. It looks like David making Auntie Laura a sandwich or bringing her a fresh drink. It looks like David constantly looking for ways to serve others. That’s what autism looks like.

David is not a victim. He does NOT fit any of Mr. Kennedy’s cartoonish depiction of helplessness.

I realize autism looks different for every individual and family. But in my nephew’s case, he is kind, he continues to learn and he is thriving in life. David has already defied every negative prediction made about him when he was a child.

And if I have to listen to Mr. Kennedy or any other politician turn my nephew into a sound bite for political gain, I will keep using the power of my voice and the power of the pen to call out such blatant misinformation. And I will continue to encourage everyone to reject these false narratives by voting against them on election day.

My nephew is not a tragedy. And he is certainly not an epidemic. He is simply David. A young man with hopes and dreams like the rest of us.

I would encourage everyone to actually do your own research on autism and other health issues and not the words of a man who only cares about pushing his own twisted agenda. Thanks for reading. ~OC

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Holy Saturday…We Wait

Today’s a new day! It is Saturday of Holy Week. Yesterday, we reflected on the sacrifice Jesus made on the cross. One temptation on this Holy Saturday is to jump past today right to Easter and celebrate the power of the resurrection. We cannot wait to celebrate the Risen Savior. But on this Saturday we wait.

I believe Holy Saturday is critically important to our spiritual growth. Today is a day of waiting.  As Christians, we need to learn how to wait. Although it may seem like God was silent on that Saturday after Good Friday, he was actively at work behind the scenes. Jesus could have raised from the dead on Saturday. Or even within a couple hours after his crucifixion. But Jesus waited to fulfill the promises of scripture. He made his disciples and everyone who loved him wait. Sometimes Jesus makes you and I wait. Most people are not great at waiting. But oftentimes, Jesus uses the waiting period in our lives to prepare our hearts and minds for the plans and purposes he has for each of us. Sometimes, Jesus uses a season of waiting to see if we truly will trust in him.

Holy Saturday is an also a day of grieving.  Just imagine what the disciples and those who loved Jesus must have been experiencing on that first Holy Saturday so many years ago. They did not have the hope of Sunday. So we must not jump past the important lessons on this Holy Saturday.

Jesus had been crucified.  His body laid in a tomb. The Lamb has been slain. Hope seemed to be lost. But on this Holy Saturday, we cannot forget the words Jesus spoke in Matthew 12:40, “For just as Jonah was three days and three nights in the belly of the great fish, so will the Son of Man be three days and three nights in the heart of the earth.”
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And so on this Holy Saturday we wait…Sunday is coming. ~OC

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Jesus and the Cross

Today’s a new day! As we walk through Holy Week, I have been reflecting on Jesus and the Cross.

The cross is where we see Jesus at his most human, but also at his most divine. My heart breaks reading about his anguish, even though I know the triumph to come. This in itself is something Jesus understood – when his friend Lazarus had died (John 11:38-44), Jesus wept even though he knew that in a moment he would raise him to life again.

It’s emotional to read the account of Jesus‘ arrest, beating and crucifixion. My heart breaks for him when he struggles with God’s will and yet accepts it. Even when an angel appears and strengthens him, Jesus is still in anguish and “he prayed more earnestly, and his sweat was like drops of blood falling to the ground.” (Luke 22:42-44).

And Jesus went through all of this for you and I. While we were yet still sinners, Christ died for us (Romans 5:8). This is what the cross means. This is what Jesus’ suffering means. His anguish, his pain, his fear, his sorrow – Yet He took our place.

Even though I know what happened next, I still feel the sting of shame that it was my sin that put Jesus on that Cross.

As I have been reading the accounts of Jesus death the last few days, something stood out to me. Something I really had not given much thought to, but on this Holy Week it caught my eye. Or maybe my heart. Jesus, on the road to his own crucifixion, having accepted the will of God, even though his body was broken, was forced to accept the suffering of another on his account.

As we read in scripture, a man named Simon of Cyrene was ordered to help carry the cross as Jesus was struggling (Luke 23:26). No easy task. The crossbar of the cross is estimated to have weighed around 70-90 pounds and the whole cross weighed between 220-300 pounds. Even carrying the crossbar would have been a struggle for this man named Simon on a long journey through jeering crowds along hot dusty roads to the crucifixion site – but the whole cross had to be so much more of a struggle. And Simon must have tripped and strained and stumbled his way behind Jesus. And Jesus, walking in front, knew this man Simon was there. And knew he must have been suffering.

If I was Jesus, I probably would have felt some shame. Shame for the pain Simon was enduring after being randomly picked out of the crowd and forced to suffer because of me.

But this is where again we remember that Jesus was fully human. He felt what I feel when I contemplate the cross. He knows and understands us and our emotions so well – because he felt them.

And this is where I remember not to stay in my shame. You see, shame can be a catalyst to change the heart. Shame is never a place we should live. But because I am aware of my sin, I feel shame. That shame should give me the initiative to breathe life into my faith with deeds – deeds of gratitude and obedience to the one who saved me, the one who gave everything for me.

This shame should lead us to a gratitude deeper than any ocean. Jesus hung on that Cross for me – for all of us – while we were still sinners. While we didn’t know him, while we ignored him, while we held him on the cross with our sins. The expanse of God’s mercy is breathtaking.

Jesus, our Savior. So human. So divine. It’s unfathomable. And yet we can see these little glimpses in the gospels of the state of his heart, which in turn helps us to understand the glory of his divinity.

I encourage everyone to spend some time reading the accounts of Jesus crucifixion this Holy Week. Truly hear his words. Feel his pain. And remember his glory. Because Jesus actions are about the glory, not about the shame. Let your shame lead you to gratitude, as we celebrate Easter this coming Sunday. Let us bow down and worship at Jesus feet, because He deserves our everything. ~OC

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New Set of Clothing

Today’s a new day! As we walk into a new week, I want to share a little bit with you.

I encourage everyone this week to put on a new set of clothing. Instead of judgment, try on forgiveness… instead of hate, try on love… instead of retribution, try on grace… instead of war, try on peace… instead of following the crowd, why not lean into the promises of Jesus. Today’s world is so polarized and broken and it breaks my heart. The older I have gotten, the more I have come to realize what is important in life. What is important in life is how you live… to live with an attitude of love… to follow the words of the prophet Micah: do justice, love mercy, and walk humbly with God… and, of course to love God with all of our heart, mind, soul, and strength while also loving our neighbor (all of them, even those who are difficult to love) as ourself. Have a blessed Holy Week. ~OC

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Endurance

Today’s a new day! For the past twenty -three years, chronic illness and pain have been a close and unwanted companion to me. This unwanted intruder is always trying to destroy my life.

Chronic illness and pain is a powerful thing, continuously trying to snatch my peace, happiness and positive attitude like a thief in the night. As I write this, with pain shooting throughout my body and my soul weary within me, I consider the great truths of 2 Corinthians (take time to read it for yourself). Someday, despite my greatest efforts to hold on to hope and strength, my soul and spirit grow weary in fighting through the physical pain I endure on a daily basis. I often find myself being led to a prayer of brokenness in these moments. “Oh Lord, what good am I to you in this place? How much more could I offer you if I were healthy, energized, and strong! Lord, what is the point of this pain?”

The truth is that physical or emotional pain, especially when it is chronic, has a way of stripping away the masks we tend to wear, leaving our hearts exposed and our self-sufficient ways of life threatened. It clears away the sea of fog filled with empty distractions and suddenly makes us face the question: Is it worth following Jesus when this is what life will be like?

Pain is never easy or pleasant, but nothing can compare to the pain of eternity without God. And so my pain today is a small glimpse of what I have been saved from. How much more can we grasp the beautiful and glorious promise of eternity with our Savior, free from pain, worries, health issues and the distractions of this world. The beautiful God inspired truths we find in the Bible give us a reason to push through the storms, a purpose to live out and a sense of hope to endure the rough seas of this life.

I spend many sleepless nights looking to the One who understands everything we walk through in our daily journey. I don’t know about you, but there is a tendency to turn inward during this crazy beautiful health journey. Sometimes, I think no one can possibly understand the suffering I endure each day of my life. But there is someone who understands—who has been through everything I am going through, and everything I will go through, and far, far more—Jesus.

A question I have for each of us. If we truly believe God always keeps his promises and will never forsake us, why do we often go to Him last? The truth is that no one can fully understand our pain in the way our Savior can, the only One who knows us intimately and has walked this hard road before us. We are not left to endure the pain of this life in loneliness and our own strength. Rather, we serve a God who bears the physical scars of His love for us and sympathizes with us as one who has lived as a human being and suffered more than you or I will ever know.

God longs to fill the broken pieces of our lives, often left by suffering, with the hope of the gospel and the healing power of His presence. One thought about our afflictions can never be true—that no one understands them. We have a God with nail scared hands walking with us through this journey. We have the privilege to speak to a God whose time on earth was accompanied by the afflictions of poverty, of disappointment, of betrayal, of mockery, a terrible beating and death. Jesus offers us mercy and grace in our time of need. So cry out to Him! God does not leave us to fend for ourselves. I am so thankful for those promises. When we have nothing left and are struggling to put one foot in front of another, we can cry out to Jesus, who not only understands but strengthens us when we are weak, equips us when we are weary, and brings beauty out of our brokenness. I am thankful that we have a hope beyond our pain because of the grace and mercy of Jesus Christ.

We have a Choice:

As I write this post, I am allowing God’s word to speak truth to my own soul just as much as to yours. Though there are times when pain can seem almost unbearable, we have a hope that much of the suffering world does not know. While we naturally desire the healing of our bodies or our minds, Jesus desires the healing of our soul above all. And we will either allow the period of pain to bring us closer to Jesus or to pull us away from Him. Be aware that the storms of life can cause us to turn away from Jesus, in crippling bitterness or toward futile self-reliance, or it can cause us to turn to Jesus, trusting that He knows, cares, helps, and will one day bring us to a world where faith will become sight and pain will be no more.

So let’s cry out to Him in our pain and discomfort. Although we are afflicted in every way, we will not be crushed because of the grace of Jesus Christ that is poured out to us. He will only allow what will be used for His good and loving purposes in our lives and if He has chosen to allow us to endure some form of pain or affliction, we can find strength in the promise that He will only allow for an allotted time what He intends to use for our good and his glory.

Don’t give up or give way to despair, for there is a glorious treasure to be found when the pain of this world drives us to Jesus, and it is of far greater worth than any earthly relief. Yes, pain and affliction are real in this world. Jesus knows that. But what could crush us as we struggle on in faith, might be the means of God reshaping and revealing His purpose for our lives.

Health issues will be my close companion, it would seem, until Jesus calls me home. But when the pain and suffering tries to drive me to despair, I have a God who understands, and who helps, and who will use this health journey to mold me into His likeness. This crazy beautiful health journey will not defeat me, for God is greater than anything this world throws at me. Lean into that truth and promise today. ~OC

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