Life With Chronic Illness

Today’s a new day! What do you do when you don’t get better?”

I became chronically sick twenty-three years ago, after being diagnosed with several types of crippling arthritis. It would be a year later after taking many experimental medications, that I was diagnosed with a rare form of cancer. Then over the years, I would be be diagnosed with the following: Young Onset Parkinson’s, Myasthenia Gravis, Gastroparesis, Covid Long-Hauler, Complex Headaches, and recently Early Onset Dementia. Oh, and a stroke several years ago. It truly has been a crazy beautiful health journey.

I became a Christian when I was ten years old. I will be the first to admit, I did not always live the Christian life in my early teenage years. When I first became ill, some people in the Christian community began to weaponize their faith against me. They would say that I wasn’t faithful enough, or that I must have some type of unresolved sin in my life. Sadly all these years later, I still have some Christians screaming that in my ear on a weekly basis. At times over the years, I felt judged and disliked by many in the Christian community. That is never how Christianity, or any faith, should be. For me, it wasn’t just what conversations were being had—but also how.

The sad part is that the people who wanted me to not lose faith tried to make it harder to connect with God and other Christians. Some people over the years have made the excuses, “Well they mean well.” I truly do not believe that. I believe it actually shows their true heart. I am thankful that during this crazy beautiful health journey, God has surrounded me with some amazing people who have helped me through this difficult season. I am also thankful I have never lost my faith during this journey.

As I continue to run this crazy beautiful health journey, my goal is to not allow those negative voices to have any influence on my life. I also decided early on in my health journey to help others walking through their own health journey.

I share all this because I know that I’m not alone, and I want others to know that they aren’t either. When you’re feeling attacked, beaten up, remember that God loves and is with you. I am sorry if anyone has made you feel like that isn’t the case. What people believe is their choice, but no one has the right to weaponize their faith. That sort of human hurt harms those in the disabled/chronically ill community that may be struggling with their faith.

In Isaiah 54:10 we read, “Though the mountains be shaken and the hills be removed, yet my unfailing love for you will not be shaken nor my covenant of peace be removed,’ says the LORD, who has compassion on you.” Being chronically ill can very much feel as if everything is being shaken up and changed—at least that’s how I have felt at times over the years.

I no longer know what each day will feel like, physically, let alone have a clue about what I may be able to do in the future. But God’s love doesn’t change when we are in tough situations (or any situation.) He is still with us. He knows the truth of our situation and still loves us.

Some passages that resonated with me, and may be appreciated by those reading this post, are those about us being fearfully and wonderfully made (Psalm 139: 13- 14), Psalm 86-15, and Ephesians 1:5-6. That is about YOU. You are loved beyond words. Think about John 3:16. That’s not just for the able bodied and minded, it’s for ALL of us.

If you can relate to anything I have written, the following are a few things that have helped me. Just remember this journey is different for everyone.

*Don’t bottle things up. I encourage everyone to find a trusted friend, pastor, counselor or support group to share your feelings with. It may be difficult at first, but I promise you’ll be glad you did.

*Take this current season of life slowly. Remember, life is a marathon not a sprint.

*Do not give up on the Christian community or the Church based on some misguided people. Remember, there are no perfect people or churches.

*Find out what works for you in your journey with health issues and your walk with God. One size doesn’t fit us all.

*Spend time in the Bible and listening to worship music. Both have helped bring peace and clarity to my life during my health journey.

* Remember, sometimes God does not give us quick answers to our prayer request. I encourage you to embrace the lessons God is trying to teach you during this difficult season. All of us whether healthy or chronically ill have a different journey. If chronic illness is currently part of journey, you are just as worthy as anyone else. Please embrace that truth today.

I hope and pray this post will encourage and challenge everyone who has taken the time to read it. Thank you! ~OC

Dear Friend,

Today’s a new day! Here is another “Lost Writings of OC.” This was written in 2019. Sorry it’s a little long. ~OC

Dear Friends,

Several people have reached out to me who are dealing with their own crazy beautiful health journey. So I thought I would share some words that will hopefully bring some encouragement. In the last couple of weeks, my doctors have shared I probably only have months to live. I say this to you, not to discourage you, but to let you know that I am in the trenches with you. These words don’t come from distant memories but from present realities.

The following is a “Battle Plan” of how I am walking through this battle.

1. Recognizing that most of our battles are waged in the mind, I chose to focus on God who is all-powerful and compassionate. The Bible tells us that God’s Name is El Elyon, God Most High, and that nothing can come into our lives that is not first filtered through the fingers of God’s love. God knew before the foundation of the world that we would face different challenges in life and has already provided the resources we need to face them. God’s plan for us in every trial of every size is that we experience victory, never defeat.

2. I chose to view this illness as a gift. Granted, it’s like expecting a new ten-speed bike for Christmas and getting socks, but it is a gift. It is a time to draw near to God, to experience God more fully, to enjoy the simple joys of life, to focus on those things that are truly important. I will thank God every day for this particular gift of health issues.

3. Although my health issues wants to be an all-consuming issue in my life, I refuse to sink within myself. I will reach out to someone else each day with a text, phone call, word of encouragement, act of service or prayer.

4. I will not ignore my emotions (which are currently like a roller coaster on steroids) I will allow myself to experience all the emotions this health journey brings my way, but I will NOT be ruled by them.

5. I will share what is happening to me with others and enlist their support and prayers. I cannot do this alone, and I will not rob others of the blessing they can receive in ministering to me.

6. I will make both short-term and long-term goals in order to have something in the future to look forward to. For example, I plan on continuing to make beautiful memories with my bride through trips and other amazing adventures.

7. I will find some reason to laugh every day.

8. I will remind myself that, in some inexplicable way, the manner in which I conduct myself during this time of struggle does, indeed, impact the spiritual world. The book of Job tells us that humans sometimes get caught up in a cosmic battle between God and Satan, and my actions are key to that struggle. (Jesus Himself told His disciples upon their completion of a missionary journey that God had seen Satan fall from heaven as a result of their actions).

9. I will endeavor to keep my life as “normal” as possible. I will continue my every-day activities and responsibilities as long as I am physically able. This will afford me the comfort of the predictable and common aspects of life as well as helping me not to slide into introspection and self-pity.

Dear friend, who is walking through your own battle, I am praying for you. I am asking that you will be “sincere and blameless” (Philippians 1:10). The word “sincere” is a Greek word that grew out of a poor practice in the marketplace of the day. Everyone in the culture used pottery for many tasks like we use plastic today. It was important that the pots be well made. Most were, but there were some unscrupulous pottery makers who would find a pot with cracks in it. Rather than discarding it, they would fill the crack with wax to cover it up. This would work as long as the pot sold early in the day. But after a longer time of sitting out in the hot Middle Eastern sun, the wax would melt and the cracks would show. Paul prayed that the Philippians would avoid this by being sincere or “sun-tested.” May you, as you face the heat and pressures of this time, find yourself to be, by His grace, without wax.

Men’s Groups…Not A Fan

Today’s a new day! I am often asked about my thoughts on Men’s Bible Studies and men’s gatherings. At first I chose not to respond, but then I thought I should be upfront and honest.

There are really two reasons I no longer attend and to be honest believe in men’s groups. Let me just say, the following is based on my experience only. If you have had great experiences with men’s groups, that’s awesome. I would encourage you to continue to be part of them.

The first reason I no longer attend men’s groups or events is, I have never felt part of any men’s groups. I have tried connecting with some of the guys from these groups with little to no success. I have found most men’s groups are mainly concerned about making the “right connections” and I guess I do not fit that criteria. Also, the only time I hear from most of these guys is when I post something on social media they do not agree with. Then all the sudden they want to be involved in my life. Which leads me to my second reason.

The second reason you no longer see me at these gatherings, is because several men in those groups have shown their true colors and I cannot be part of that kind of foolishness. What do I mean? Several men in the men’s groups I was connected with have on more than one occasion, questioned my faith and character because my political and social beliefs do not align directly with theirs. But to be honest, I am not mad at them because they just revealed what most of the men in these group are thinking, but keep to themselves.

So, I will continue to keep my distance from gatherings where I am not free to share my thoughts and opinions, without my faith and character being questioned. I am thankful for those friends and groups who choose to respect opinions that differ from theirs. Those are the groups I choose to support. ~OC

Let’s Be Clear

Today’s a new day! Let’s be clear: Christian Nationalism – the movement that’s gripped so many Christians and Churches in America is a misinterpretation of Jesus’ teachings. It’s in direct opposition to them. It’s an affront to the Sermon on the Mount, the fruit of the Spirit, and everything Jesus stood for. If you’re claiming to follow Christ, you cannot ignore this false theology. ~OC

Truth and Justice

I remember when Russia invaded Ukraine in 2022, so many people including Christians and churches in America were so supportive of Ukraine and everything the citizens of the country were going through. Many Americans and churches held fundraisers and welcomed the Ukrainian people into America who had to flee their homeland. Fast forward to yesterday and the comments from the current President and now so many of those same people are turning their backs on Ukraine. Sadly, this is just another example of how the actions of so many Christians and churches across America are causing a great multitude of believers and unbelievers to turn their backs on the church and faith. I can only imagine the tears filling God’s eyes as he watches all of this transpire. I personally will continue to pray for peace and healing over the people of Ukraine. I will also continue to pray for my fellow believers and churches in American that appear so willing to compromise so much for the sake of power.

Once again, these are my thoughts and opinions. Some may asked why I share the things I do on social media? Yes, they can be hard to read and many people would rather I just share positive and uplifting post. I hear many friends tell me to “Stay away from the negative and challenging post. Just stick with sharing your story and uplifting post.” But I am sharing my story. I believe in truth and justice. That is who I am. So when I see things that are unjust and wrong, I must speak up. I do not enjoy posting things like this on my pages, but I have to be honest with myself and I cannot ignore everything that’s going on around me. Even if that means being attacked or unfriended. So, I will continue to share when I feel God leading me to share my thoughts online. I hope you will to. Even if we have different opinions. Let Love Rule. ~OC

I Can…

Good Morning! Here is another “Lost Writings of OC.” I originally wrote this in 2018. Have a wonderful day.

Today’s a new day! There are a lot of things I cannot control in this world, but there is plenty I can do…

I can choose to pray for people.

I can choose to help feed and shelter the homeless.

I can choose how I treat people.

I can choose to be a mentor.

I can choose to show kindness to everyone I come in contact with.

I can choose to show respect to everyone around me.

I can choose not to judge people.

I can choose not to hate.

I can choose to Love.

There is plenty we can choose to do to help make this a better world. ~OC

Let Diversity Shine

Today’s a new day! We have to learn again how to disagree. Being wrong is sometimes better than being right. We have to stop pointing out the “bad” (or the things we disagree with) and find common ground.

We need to find solutions to problems rather than just pointing out the problems and then walking away. What has always made America great is our diversity and coming together in times of need. Look around, we are in desperate times. It’s time for everyone to be allowed a seat at the table and come together. The diversity of America is a gift, not a curse. So today, let’s reach out and let our diversity shine. ~OC

A Friday Prayer

A Morning Prayer. ~OC

Dear God, I pray that you would give us the boldness to speak out against hate, especially when we see it in our churches, communities and homes.

Dear God, I pray that you would give us the humility to admit where we have chosen the way of the world over the path of Christ.

Dear God, I pray that you would encourage us to step away from behind the glowing shield of our screens to have real conversations in which we look into the eyes of another, witnessing the image of God that dwells within them.

Dear God, I pray that you would remind us that time is a precious gift that should not be wasted on things that divide us, but instead we would use the gift of time to encourage and build people up. To be our neighbors biggest cheerleader instead of their judge and jury.

Dear God, I pray you would teach us to live with a heart of service. Teach us to live with less so that everyone has enough.

Dear God, I pray you will move in your Church. I want her to thrive. I pray 2025 will be a year of repentance and revival for the American church.

Today, I pray you will join me in lifting up these prayers? Amen

Christianity in America 2025

I have made enemies by simply living my life. A friend texted me this week to tell me all my beliefs and opinions are wrong because they do not fall in line with the Christianity being ingested by so many believers today. So he can no longer call me friend.

We read the same Bible, but his beliefs are not what I see when I study God’s scriptures. But somehow, I am wrong because I choose to let people share their opinions and live their lives without judgement. But based on believing all people matter somehow I am wrong.

I do choose to believe all people matter, while my friend and so many Christians like him today, choose to put certain barriers on whose opinions, beliefs and lives matter. If you do not vote a certain way or worship a certain way, somehow you’re less than and can be cast aside like a worn out pair of shoes.

When did Christianity become a club for a few and stop welcoming everyone to the table? When did Christianity become more about a political party and less about the Gospel of Jesus Christ? So many questions, but few too many Christians willing to welcome a difference of opinion.

It’s 2025 and I am not sure most people know what Christianity in America really is today. Obviously my friend and so many other believers are living a form of Christianity that makes no sense to me.

But I will continue to lean into the true teachings of Jesus. I will strive to be His hands and feet. I will not allow this hijacked form of Christianity I see around me in 2025 be the Christianity that people experience when they think about me. I will continue to love and serve all people as Jesus loves them. Even if that means I lose a few friends along the way. ~OC

Facing Challenges

Good Morning! I do not have a date for when I wrote the following. But as I looked it over, I thought it was relevant to what so many of us are facing today. ~OC

Today’s a new day! There will be times in our lives that we will face challenges in life.

There will be times when we see blatant disregard for God’s Word even within the Christian community.

There will be a time when some Christians will choose political power over the Gospel of Jesus Christ.

There will be a time when Christians will be put in a position to stand for what’s right or choose to be guided by the allure of power.

There will be a time when Christians will need to step up for what’s right. Even if that means standing alone.

Sometimes, we will find ourselves in situations where we will need to decide if we will obey God or “follow the crowd”. Our decision will either glorify God or give the enemies of God an opportunity to scorn Him. It is very important to stand for what you believe in (especially if your conviction is coming from what God has clearly said); even when others have a different opinion or thought.

It Takes Courage

The truth is, standing alone requires courage.

It is important to know that courage is not the absence of fear; it is confidence in something or someone greater than the emotions of fear.

To stand alone, one must have confidence that obedience to God and His word will ultimately result in a superior outcome. We can always stand alone for truth, if we have this confidence in God and His Word.

Standing alone can definitely be hard, but certainly not impossible.

There are several examples of people in the Bible who towed this path.

In Hebrews 11:7, we see where Noah chose to believe God. God told Noah about bad things that would happen. Nobody could see what would happen, but Noah believed God’s message. He was careful to do exactly what God told him. He built a large ship to save his family. As a result of his faith, Noah showed that everyone else in the world was wrong. Noah himself became one of those people that God accepted as right with him.

Just imagine. It was only Noah and his family on God’s side against all of the naysayers on the other side.

But Noah did it. And if he did it, then we can too.

God’s Word Is Our Fortress:

When it comes to standing for what one believes in, it all starts and ends with what the Lord is saying – either through His revealed word or His spoken word directly to us.

God’s Word is the believer’s most powerful weapon against evil and it is his most potent fortress when it comes to standing alone.

Scripture is no doubt a deep source of strength. It has been my anchor in overwhelming situations that have required me to stand alone. I am a living, breathing testimony that standing alone with God is the best because you will always win.

Remember that when Satan tempted Jesus in the wilderness, He defeated Satan by quoting the Scriptures. In His response to the enemy’s first temptation, Jesus emphasized the necessity of knowing God’s Word, pointing out that our need for God’s Word is even more critical than our need for physical sustenance.

“But Jesus told him, “No! The Scriptures say, ‘People do not live by bread alone, but by every word that comes from the mouth of God.’ ~Matthew‬ ‭4‬:‭4‬

We must know the Word of God in order to stand alone for truth.

You Are Not Alone

When you are standing for what God says – which you have come to believe in, it may seem like you are all alone. But the truth is, you are never truly alone because God is standing with you. He promised to never leave us (Isaiah 43:1-5; Matthew 28:20)

Knowing this, we need to always turn to God for the grace and strength to face whatever may come.

Stand Strong! God is with us. I pray the following scriptures will give you hope:

Be on guard. Stand firm in the faith. Be courageous. Be strong. And do everything with love. ~1 Corinthians 16:13

Be strong. Take courage. Don’t be intimidated. Don’t give them a second thought because God, your God, is striding ahead of you. He’s right there with you. He won’t let you down; he won’t leave you. ~Deuteronomy 31:6

Keep and protect me, O God, for in You I have placed my trust and found refuge. ~Psalms 16:1

This is what I told them: ‘Obey me, and I will be your God, and you will be my people. Do everything as I say, and all will be well!” ~ Jeremiah 7:23

“Don’t be afraid, for I am with you. Don’t be discouraged, for I am your God. I will strengthen you and help you. I will hold you up with my victorious right hand.” ~Isaiah 41:10

Dear God, we have chosen to obey you by standing alone for the truth, please help us to be courageous. Grant us grace and strength to face whatever may come and at the end Lord, please give us victory to the glory of your holy name. Amen.

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