The Reality of the Journey

Today’s a new day! Living with a long term chronic illness can feel very isolating. As the years go bye, more and more “friends” decide the journey is too much for them to handle and they have chosen to disappear from my life. How does one handle going from a great group of friends to basically having no true friends I can really count on? Well, I am still trying to figure that out as I continue to walk through this crazy beautiful health journey.

As I look back on my long health journey, I can remember when my phone wouldn’t stop ringing and our house constantly had people coming and going to visit with me. But as the years have passed and my health has continued to be a constant struggle, less and less people are connecting with me. If I do not make the effort to reach out to people, I literally would never hear from anyone. Sadly, that’s just the reality of dealing with a chronic illness or in my case multiple health issues. I have found that people are great when someone first gets sick. Like I mentioned above, the phone calls and visits are nonstop, but when the illness drags on people do not know how to react, so they tend to bail. So how does one handle the loss of friendships or a different type of friendship in the midst of health issues?

I am not writing this post for sympathy, but to share the reality of living with long term health issues. I am writing this for others who are walking through the same experience, but are not sure how to express their feelings.

Personally, I have tried to continue reaching out to friends and stay connected, but that is getting harder and harder as the years fly by. Also, I am getting tired of being the one always making the effort. I have tried being part of men’s groups, but for the most part that has not been a positive experience. But mostly, I have prayed that God would help me be a good friend. I have learned I cannot control who makes the choice to be part of my life. All I can do is put everything into God’s hands and continue to trust in Him.

Like I shared earlier, this is not a post to gain any sympathy, but to share the reality of living life with long term health issues. Thousands or maybe millions of people with long term health issues could have written this post. My prayer is that this post will help people understand the day to day feelings/struggles of people who are walking through a difficult health journey. Thanks for taking the time to read. ~OC

Love

Today’s a new day! Dear God, pour out Your love into our hearts by releasing the Holy Spirit to give us revelation of Your love for us that it may overflow in love back to Jesus and to others. Dear God, help us to love everyone we encounter today.

“The love of God has been poured out in our hearts by the Holy Spirit” (Romans 5:5), “For he who loves his neighbor has fulfilled the law” (Romans 13:8), “Therefore let us lay aside the deeds of darkness and put on the armor of light” (Romans 13:12).

Our Prayer

Today’s a new day! As we look at the news or scroll through social media, there is so much division. So I wanted to share the following this morning. ~OC

Dear God, our world feels so divided, even within families and friendships. Help us be a peacemaker in our relationships, building bridges instead of walls. Show us how to listen and understand with humility, allowing Your Spirit to guide our words and actions. May Your peace be the foundation of every connection. Amen. 

“Make every effort to keep yourselves united in the Spirit, binding yourselves together with peace.”~Ephesians 4:3

Laughter

Today’s a new day! I love to laugh. Don’t we all? There is something wonderful about watching or reading something that makes us just laugh.

Scripture tells us that “every good and perfect gift comes from above” (James 1:17). I am pretty sure that includes laughter.

God didn’t have to create us with funny bones; we probably could have functioned just fine without them. We wouldn’t have known what we were missing if He had never designed us to throw our heads back and roar with laughter, or laugh so hard that we cry, pee ourselves or laugh until our sides hurt. I think life would be pretty boring without laughter.

Instead, God made us to be creatures capable of joy and laughter-solely because of His grace. He made it so “a joyful heart is good medicine” (Proverbs 17:22) and gave us times to laugh (Ecclesiastes 3:4).

God is infinitely more creative, kind, and brilliant that we can even begin to imagine. So today, I encourage you to laugh and be reminded of God’s graciousness, and then praise Him for it. ~OC

True Revival

Today’s a new day! The last several weeks, I have seen many social media post and heard many conversations about how America is in a Revival moment. I hope and pray that is the case, but I am not sure that’s what we are seeing. I desire to experience more than just a moment of Revival. No, I want to see a life changing movement that changes hearts and lives in a radical way.

Since 2019, God has woken me up most mornings with these three words: Miracles, Healings and Revival. But to understand what true Revival actually means, I believe all we need to do is look at the Book of Jonah.

I write the following not as a blog post, but as a prayer for America and the world.

The book of Jonah illustrates for us how God can transform and save an entire city in one day that is entrenched in wickedness, violence, and depravity. Jonah, the prophet of God, is called to go preach against the great city Nineveh, and instead of fulfilling his mandate, he flees to Tarshish aboard a ship. God decides to get Jonah’s attention through a massive storm and Jonah is thrown overboard, but yet is saved by grace in the most unusual and fascinating way…a great whale. We read where Jonah learns that “Salvation is of the Lord” and then is thrown up on dry land and is commissioned to preach a second time to this wicked city Nineveh.

In Jonah Chapter 3, we see five distinguishing marks of true repentance, revival, and spiritual awakening that serve to encourage us as we share the gospel across America and the world and in our desire to see God pour out revival throughout our communities.

The first thing we see is that God is most pleased to use the powerful preaching of His Word to see hearts radically transformed and for people to totally surrender their lives before Him. Jonah’s message was very simple, “Yet forty more days, and Nineveh will be overthrown!” In other words, God would utterly annihilate them if they did not flee the wrath to come by repenting of their sins. In Hebrews 4:12-13 we read, “For the word of God is living and active, sharper than any two-edged sword, piercing to the division of soul and of spirit, of joints and of marrow, and discerning the thoughts and intentions of the heart. And no creature is hidden from his sight, but all are naked and exposed to the eyes of him to whom we must give account.” In every great revival in the history of the world, the preaching of God’s Word has been central. Notice how these wicked, violent Ninevites responded in Jonah 3:5: “And the people of Nineveh believed God.” They trusted wholeheartedly in the Lord for salvation because the preached Word had done its amazing effect in their hearts.

Secondly, when genuine revival comes upon a people, it is wide-spread and comprehensive. We see in Jonah 3:5 :“They called for a fast and put on sackcloth, from the greatest of them to the least of them.” The entire city from the highest political leaders to the everyday citizen responded in repentance and faith toward the living God. When God pours out revival, it doesn’t just affect as small few, but impacts an entire community.

Thirdly, when God pours out revival, genuine repentance is evidenced by a heart transformation that is most demonstrated through mourning of sin and prayer. The message so “touched” the heart of the king, that he traded in his royal throne and stripped himself of all pride and position, and mourned in an ash heap. He grieved his personal sin and humbled himself before the Lord. In times of revival, sinners mourn their sin and cry out mightily to God in prayer. The king issues this command in Jonah 3:8, “and let them call out mightily to God.” I looked up the Hebrew word for “mightily” and it means with violent earnestness. Wow! When God grants revival, genuine repentance manifests itself in a wide spread prayer movement where people cry out earnestly to God and desire more of Him.

Fourthly, genuine repentance always bears fruit in that people turn from their sinful behavior. Notice that the king also says this in Jonah 3:8: “Let everyone turn from their evil way and from the violence that is in their hands.” Repentance means more than just feeling sorry for our sins and grieving over possibly getting caught. No, true repentance means that there is a genuine turning from our old ways of living and thinking, to completely trusting in Christ alone for our salvation and everything else in our lives. The Apostle Paul writes in 2 Corinthians 7:9-10: “As it is, I rejoice, not because you were grieved, but because you were grieved into repenting. For you felt a godly grief, so that you suffered no loss through us. For godly grief produces a repentance that leads to salvation without regret, whereas worldly grief produces death.”

Lastly, in times of true revival, people come to the full awareness that they are totally dependent on the sovereign grace of God for salvation and cannot demand from Him anything. The king humbly and in brokenness declares in Jonah 3:9: “Who knows? God may turn and relent and turn from his fierce anger, so that we may not perish.” The king doesn’t appeal to his rights as ruler, but totally understands the sovereign right of the living God to show mercy and compassion to whom He wants to show mercy and compassion. All we can do as sinners is to cast ourselves on the mercy of Jesus alone for our salvation.

As I close, I pray that God would pour out His Spirit of revival upon America and the world, where the Word of God is preached with boldness every Sunday in churches across the world. I pray that God would impact America and the world with spiritual transformation that is widespread and life changing. I pray that all of us would mourn the violence, hatred and division we see around us and cry out mightily to God in prayer that a powerful prayer movement would sweep across this dry land like a wildfire. I pray that we would all turn from our sinful ways and trust in the living God and that there would be true radical life change. I pray that God would pour out His mercy upon us in salvation through Jesus and that every single person in America and across the world would love and worship Christ the Lord. ~Amen

Thanks for taking the time to read this prayer. ~OC

Unity

Today’s a new day! It is very rare to find someone who has not experienced church hurt in some way. In a very me society, it is much easier to faze in and out of churches when we like what it teaches or offers (or dislike what it teaches or does). The type of unity that the Bible speaks about and commands is rarely experienced. In fact, when a church tries to move in this direction, it’s easy to be skeptical and defensive.

“Behold, how good and pleasant it is when brothers dwell in unity! It is like the precious oil on the head, running down on the beard, on the beard of Aaron, running down on the collar of his robes! It is like the dew of Hermon, which falls on the mountains of Zion! For there the Lord has commanded the blessing, life forevermore.” ~Psalm 133:1-3

“Until we all attain to the unity of the faith and of the knowledge of the Son of God, to mature manhood, to the measure of the stature of the fullness of Christ,” ~Ephesians 4:13

“May the God of endurance and encouragement grant you to live in such harmony with one another, in accord with Christ Jesus,” ~Romans 15:5

It is both good and pleasant when a church lives its life together in a unified manner. It’s like the anointed blessing of God in so much abundance that it covers us with God’s blessing from the top of our head to the soles of our feet. It is here, in unified fellowship, that God has commanded the very blessing of eternal life. In other words, when we live in a unified manner, we experience a taste of Heaven, where we will live eternally in perfect unity.

I truly believe that if we want to experience a taste of heaven, experience the joy of our Savior, and provide a faithful picture of Christ to the world, we need to pray and work for unity in our local churches. Because the enemy wants nothing more than to divide believers in the local church. As believers we must sit in the love, grace, forgiveness and love of Jesus. Let unity reign! ~OC

Christians and Tragedies

Today’s a new day! The past few weeks have been tough for many. So many tragedies happening around America and across the world. I have been saddened by so much hate being posted on social media regarding some of the evil acts of violence. I have been trying to process everything over the past week and did not want to post anything that would cause anymore pain. But today, I am ready to share.

As Christians, we should care when any life is taken through tragic circumstances. It should not matter if we agree or disagree with the person who has been targeted by hateful individuals. So below, is how I choose to respond to tragic events regardless of who the victim is:

  1. Compassion and Empathy: Show love and care for those affected, regardless of differences.
  2. Prayer and Support: Offer spiritual support through prayer and practical help.
  3. Justice and Advocacy: Work towards understanding and addressing the root causes of the tragedy.
  4. Forgiveness and Grace: Embody forgiveness, even when disagreeing with the person involved.
  5. Community and Unity: Come together with others to provide comfort and support.

Here are some biblical references that can help guide how Christians respond to tragedy:

  • Matthew 5:44 (loving enemies and praying for those who persecute)
  • Luke 6:27-36 (loving enemies and doing good to those who hate)
  • Romans 12:14-21 (blessing persecutors and not seeking revenge)

I believe these principles and scriptures can help Christians and nonbelievers navigate through the tough moments we face in life.

Also a word of advice for my brothers and sisters in Christ about responding to social media post. Always remember to handle every situations with kindness, understanding and allow your faith to be a blessing and not a distraction during these complex times. Let your light shine bright at all times.

Thanks for taking the time to read this post. Have a wonderful day. Blessings. ~OC

2AM Thoughts

Today’s a new day! It’s 2am on this Tuesday morning. I have been unable to fall asleep. It’s just one of those crazy nights with Parkinson’s and Dementia. So I have walked around the house more times than I can remember. I have watched several YouTube videos to pass the time. Finally, I have decided to share my experience and thoughts with you. Writing is still something my brain allows me to do on occasion. Lately, God has filled my brain with many thoughts. I feel an urgency to write as much as possible before I can no longer do that. Tonight, my brain is extra active. That’s not always a good thing.

I have good days and bad days as I navigate through the multiple health issues that are slowly robbing me of so much. On a bad day, I cannot do anything at all. My energy levels are low and I feel fatigued. The only way I can describe it is that I feel like I have run a hundred marathons in a very short amount of time. I feel totally drained.

But I have lots of coping strategies. I choose to use those days to pray a lot more. I choose to reach out to friends even though I know, I will not hear back from the majority of them.

I think it’s important to have something that gives you a sense of purpose in life. I try to share my journey to help encourage others walking through their own life struggles. If I can help just one other person, that’s enough for me.

When most people think about neurological issues, especially dementia they think it’s all about memory loss. But I have cognitive issues also- trying to figure things out can be difficult and frustrating. Also too many voices at one time can be overwhelming. I get frustrated and anxious if I am struggling to follow the conversation. I also deal with a lot of rigidity and pain, which creates so many issues.

Over the years I have lost many friends as I have walked through this crazy beautiful health journey. I believe a lot of people have a difficult time talking to and relating to me. But I am still me. My story has just changed a little. A lot of times when Laura and I are around other people, they will address questions to her, not me. My prayer is that people would see the person, not the disease.

But I am blessed that a few friends have decided to stick around and not jump ship. I hold those friendships very close to my heart.

I choose to embrace each moment of life. I try to share my love and thoughts now. Not waiting for the perfect moment. Because the perfect moment is today. Laura and I do not wait for the perfect moment to buy that gift or take that trip. Now is the perfect time. Now is the perfect time to take care of future arrangements. Which we have done. I did not want Laura dealing with all of that on her own.

It also means we’ve had really indepth chats about what quality of life really looks like. Everyone has to figure that out for themselves and their loved ones.

Life looks different every day. What I could do yesterday, might be more difficult to accomplish today. I continue to live my life with my cup overflowing. I try not to beat myself up too much when I cannot do something anymore. Because there are still many things I can do. So today, I choose to embrace the now and what I can accomplish today. ~OC

Love…It’s That Simple

Today’s a new day! As we end another week, I thought I would challenge my Christian brothers and sisters with the following question:

As followers of Jesus, what can we do about all of the issues the world is facing right now?

There are many different directions we could go in answering that question. But as I have sat and pondered this question, one thing stood out to me above everything else. What the world needs from Christians in this time of so much division is Love. It sounds so simple, maybe even a little cliches, but love is the most powerful and effective tool we possess. Love can unlock doors and hearts that have been closed for years. Love is every Christians primary calling from God (Love God and love people Matthew 22:37). So why are so many Christians not extending love to everyone that God brings into their daily lives? I believe it’s because so many Christians are just as hurt as the rest of the world is right now. I believe we all hate where the world is today. But the more Christians choose to express hate, the more division and negativity is spread.

I believe it’s time for Christians to step into the calling that God has placed in each of our hearts. That takes changing our attitudes toward those we disagree with. That means loving those who think differently than us. That means loving those who look differently than us. That means loving those who speak differently than us. That means loving those who worship differently than us. Here’s a big one; it means loving those who vote differently than us. God’s love commands us to love people for who they are, not for what they do. Let that sink in for just a moment. But what does that mean? As I continue my faith journey, God is constantly reminding me that I need to love everyone because He created them in His image, and Jesus came and died a brutal death on the cross for each and everyone of them, regardless of their lifestyles, actions and beliefs.

I believe the job of every Christian is to love people for who they are, not for what they do or don’t do.

Loving people for who they are is the way that Jesus loves each and every one of us. He showed that love while walking on this earth. Throughout the Bible, we see examples of Jesus loving people right where they were. The actions or the position of a person did not matter to Jesus when it came to loving them. All that mattered was that God created them. Loving people unconditionally is the example that Jesus set. In 1 John 4:19 we read these words, We love because He first loved us.”

Loving people unconditionally is not something that comes naturally for most people. It’s a daily choice. We have to choose to love the people in our lives that can be difficult to love. I encourage each of us to make a conscious effort to love even the most difficult people in our lives. Take a moment to think about those difficult people in your own lives. No matter what they believe, no matter what political party they follow, no matter the lifestyle they decide to live, love them because Jesus does. He gave his life for them.

As Christians, we have been called to live like Jesus and unconditional love is what we need to be showing the world.

Jesus died willingly on the cross so that we would be saved. Jesus died regardless of our views, beliefs, or our lifestyle choices. Even if we decided never to follow Him, Jesus still saw each of us as worth dying for. Now that is unconditional love. I believe every Christian is called to love others in the same way that Jesus chooses to love each of us.

“Love is patient, love is kind. It does not envy, it does not boast, it is not proud. It does not dishonor others, it is not self-seeking, it is not easily angered, it keeps no record of wrongs. Love does not delight in evil but rejoices with the truth. It always protects, always trusts, always hopes, love always perseveres. Love never fails.” ~1 Corinthians 13:4-8

This world is currently in turmoil. This is a great time for Christians to step up and truly love people. All people! Regardless of where they’re at in life. So today, just love people and let Jesus do the rest. Have a great day! ~OC

Flashing Neon Sign

Today’s a new day! As with many neurological illnesses there is nothing noticeable about my condition. It’s not like a broken leg or arm where there is a cast which is obvious when seeing the person. But I cannot tell you how many times I have heard the same old words since my diagnosis last fall, Todd, you do not look like you have dementia.

I often wonder if it comes down to the fact that people feel uncomfortable talking to me about it, so they say the first thing that comes to mind. Which at times can come across as very insensitive and judgmental. Since my diagnosis of early onset dementia caused by my Parkinson’s, I have had several people tell me I do not look or act like someone with dementia. Or Todd, maybe you’re just dealing with an infection of some kind and just need to take some antibiotics. I would be overjoyed if that was actually the case. But I have some amazing doctors and they didn’t come up with this diagnosis lightly.

What does dementia look like? There is no cast or bandage to put on it. I guess I could wear a flashing neon sign that says, “HELLO, I HAVE EARLY ONSET DEMENTIA!” that lets people know of my latest diagnosis.

But seriously, I am walking through a very new and strange season of life, but I know I am not the only one. It simply gets frustrating when people decide to find a different diagnosis or make you doubt your current state of health because they do not like the diagnosis. It can be irritating and cruel when people doubt you and your medical team. Believe me, no one wants to sit in a doctor’s office and hear the words “You have early onset dementia.”

I do think that part of this attitude is because people have a hard time believing someone in their 50’s could have an “old person’s” disease. Also the topic of dementia is not an easy or fun subject to talk about. It can be easier to just ignore it or try to explain it away.

I also believe people have their own preconceived beliefs about dementia and I and many others suffering from this horrible disease do not fit in their picture of dementia.

So please do me a favor. Stop putting your personal beliefs or opinions on those suffering from a visually invisible disease or one that you don’t like. Life with dementia is already hard enough. Thanks for listening. ~OC

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