The Unexpected Play

Today’s a new day! Over the years some brave and caring people have asked me “What’s it really like to live with multiple health issues that will eventually take you out.” (Insert laughter here)

After taking a moment to think about that question I shared, “It’s like your body came with a lifetime warranty, but when you read the small fine print, there is a little section that states “starts to expire once started.” My body has been under a recall for the past twenty-four years. When I call Customer Service, I am placed on hold, where a very nice voice keeps telling me to “get some rest.”

That’s just a little humor, but it’s also true in so many ways, when you’re dealing with multiple health issues that are breaking down your body. Walking through a medical journey, will test your faith, your patience and your Wi-Fi connection. You can either drown in self-pity or laugh at the absurdity of it all. I choose laughter. Because when you can’t move or think like you used to, joy has to do the heavy lifting.

See, the best medical team can study your chart, but only God knows your heart. The doctor ask, “How are we feeling today?” and I think, “You tell me — you’re the one with the fancy degrees.” But God looks past my diagnosis and says, “You’re still here. You’re still mine. You’re still fighting.”

When the nurse says, “This might sting a little,” I laugh because that’s life in a nutshell — a little sting, a little surprise, a little pain, and a whole lot of grace.

When I am in the hospital, which is often, you often hear or see a message reminding everyone to be quiet, because patients are resting. But I look around at all the beeping machines, the flashing lights, and people checking my blood pressure like I’m a contestant on The Price Is Right, and I think, “Dear God, if this is resting, heaven’s gonna be amazing.”

But seriously, I have learned something deeper through this crazy beautiful health journey called life: when your body slows down, your faith speeds up. When your strength fades, your laughter stretches further. And when life tries to crush your spirit, God uses joy as medicine for your soul.

In Proverbs 17:22 we read, “A cheerful heart is good medicine, but a crushed spirit dries up the bones.” That verse hits home for me. It’s God’s way of saying, “Keep your sense of humor, even in during the tough moments. Don’t let your spirit dry up.”

So what’s it like to truly live with the finish line always so close? It’s like sitting front-row at an audition you didn’t sign up for- but you still get to decide whether this play will be a drama or a comedy. For me, I have decided to sprinkle in a little Daniel Day-Lewis and a whole lot of Robin Williams. As I watch this play unfold, I remind myself and everyone around me that even when life isn’t very funny… you can still find the humor.

Because hope doesn’t always show up healed — sometimes it shows up laughing. ~OC

Lessons Being Learned

Today’s a new day! Here are four things that God has been showing me over the past few months. I guess God wanted to remind me of His love, care and purpose for me, even in the midst of this health journey. I pray they encourage you. 

I Am Precious In God’s Eyes:

Isaiah 43: 4 says, ‘You are precious and honoured in my sight, and … I love you.’

As my body and mind continues to be an issue, I need to remind myself continually that God loves me for who I am not what I can do. The Lord has chosen me to be his treasured possession (Deuteronomy 14:2) and I am still precious to him despite my illness. He knows what he is doing and he is good.

If you are feeling that you have no purpose, the Lord wants to tell you differently. He wants you to know that your purpose is being his child, not what you are able to do.

I Am Blessed:

As I continue to walk through this crazy beautiful health journey, I have periods of sadness,  as I mourn the things I am no longer capable of doing. Some days are harder than others and I feel helpless and upset that I am a burden on Laura and others. Yet, God promises that if I lean on him and trust him, he will give me the strength that I need.

I need to ask God daily to help me remember my blessings. I have so much to be thankful for. Each day is a gift to enjoy being with Laura and friends making memories. I cannot allow myself to constantly be distracted by those friends who have decided to walk away, for whatever reason. 

I am reminded that God’s word says that every good and perfect gift comes from God (James 1:17) and I have been able to find much pleasure in the everyday things around me that I had not noticed before.

When you have a serious illness your world becomes much smaller, but in God’s grace even that can be a blessing. God has opened my eyes to see the little things in life and I can pray about them. I have time to see God answering those prayers and to see how he is interested in the tiny little details of our lives. Sometimes, living in the moment is a real privilege. I don’t need to worry about earning money or running a house because I have to trust that God will give others the strength and wisdom to do that. I know I can trust God in the big things because I can see him working in the little things.

I Am Useful:

It has been very hard not being able to get to church services and have fellowship with people. Zoom, text and phone calls are great but they aren’t the real thing. Often, although I know people pray for me and love me from afar, it can feel very lonely away from the church and everyday life. Yet, wherever I am,  I am still part of God’s family. I am still part of life. I really value people visiting and telling me what God is doing in their lives. It is good to be able to serve the Lord by praying for them and with them.

I can encourage others just by continuing to walk out this health journey, and let people see how He continues to move in the midst of the storm. I continue to learn that you don’t always need to be cheerful and smiling to be an encourager. Just sharing your life and your struggles and letting others see how God sustains you even in the midst of pain and darkness can be an encouragement. God continues to show me that Christian fellowship is about sharing your life with others, the ups, the downs, the differences and the bits in between. True fellowship is precious and points us  to Heaven.

Each day I ask God to help me to be content and to make life as easy as possible for those around me. There are times when I struggle with not being fully involved in daily life, but I know life needs to go on around me. I am still a husband, son, friend and I pray that God will make me the best one I can be.

I Am Being Made New:

I continue to learn that God is bigger than all of my health issues. He is good and his ways are perfect. I sometimes wonder why I am here after all these years, but while He allows me to continue living, I know that he will give me the strength to shine for him. I am reminded almost daily, even a weak and tiny flame can bring much light to a darkened room.

Guess what? God doesn’t see my body as decaying. No, my body is being changed for good and when God sees me as ready, he will take me to be with him, forever. I know that I am more than my illness, I am a child of God and I am loved.

Some days, the enemy tries to put fear in my heart. But on those days, I lean on the words of Psalm 23, which states, “Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me, your rod and your staff they comfort me.” I know that God will give me the strength to keep going until he calls me home. I continue to learn not to worry about tomorrow, but to be thankful and trust him for today. God knows what is coming and he will be with me when it comes.

I want to encourage you, in whatever storm you might find yourself walking through, that you are precious to the Lord and he will never leave you nor forsake you. ~OC

Embrace the Moments

Today’s a new day! Love those around you. Stay true to them. Take time with family and friends. Laugh together. Cry together. Celebrate together. Mourn together. Grow together. Cherish what you have right in front of you. Embrace it all. ~OC

Judgement Free Life

Today’s a new day! Take time to listen to other people. People that do not look like, worship like, speak like or vote like you. Ask questions that help you know more about them. Listen with compassion. Hold back from judgement and seek understanding. When you are done listening, listen some more. Wait on God for guidance on how to respond to challenging situations and people. Dare to live a judgement free life. ~OC

Beautiful Journey

Today’s a new day! As many of you know, I was diagnosed with young-onset dementia last September (2024). Life has changed in many ways since that diagnosis. Writing down my thoughts is much tougher these days. This post literally took me several weeks to write. Finding my words to write or speak can be a daunting challenge at times. As I navigate this new reality of living with dementia, I want to share the journey with you. To answer your questions and to share my thoughts for as long as I can. The following is a question I get a lot as I continue to run this crazy beautiful health journey.

What gives you the strength to remain positive?

My Christian faith gives me deep meaning in life, giving me hope for the future and a perspective of my life being eternal, not simply limited to what I see and experience on this side of Heaven. This life and my health journey are temporary.

“So we do not lose heart. Though our self is wasting away, our inner self is being renewed day by day. For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison, as we look not to the things that are seen but to the things that are unseen. For the things that are seen are transient, but the things that are unseen are eternal.” ~2 Corinthians 4:16-18

I have met so many people with different health challenges during my journey, all at various stages of ability due to their declining health. But each person still remains an individual, with their true inner being shining through. The eyes remain a window into someone’s soul, and reflect our humanity.

As my thoughts and overall health becomes a bigger challenge, I see more clearly the importance of relationships. I also see and feel myself traveling through a wide range of emotions, even if they become a little more scrambled with the dementia. Our emotions connect us to each other, allowing us to form relationships, which is a mark of truly being human. As this journey takes me deeper within myself, I find myself reflecting more on God and how to truly live life more for Him. This is what gives me an abiding sense of meaning as I travel on this health journey wherever it takes me. Because I know the final destination is filled with peace and ultimate healing. As a Christian, the ending is really the beginning.

So as I continue to run this health race, I remain positive, feeling that I am gaining along this journey a far better sense of what it means to be truly alive and that much can be achieved to help others as I continue travel this crazy beautiful journey. ~OC

Walking Through The Unknown

Today’s a new day! Here is another “Lost Writings of OC.” This was written in 2018. I hope and pray it will bring you some encouragement. ~OC

Have you had moments in life, that you allowed fear to overwhelm you? Those moments where you just crawled under the covers because the fear had become too much for you to handle. I think we have all had moments of fear to some degree.

I remember when my health first started to fail me. Fear decided to pay me a little visit. Even though I do not remember it, my wife Laura shared I started giving some of my possessions away. The one thing I do remember about that period of time is, I opened my Bible and this familiar passage jumped off the pages:

Fear not, for I have redeemed you; I have called you by name, you are mine. When you pass through the waters, I will be with you; and through the rivers, they shall not overwhelm you; when you walk through fire you shall not be burned, and the flame shall not consume you.” (Isaiah 43:1-2)

As I read each word slowly, God showed me something I’d never seen: My fears were like flames and my efforts to protect myself were like gasoline. Every attempt to ease my fears was like dousing fuel on the fire, and now it was consuming me.

Gently, the Holy Spirit reminded me of 2 Timothy 1:7: “For God gave us a spirit not of fear but of power and love and self-control.”

Suddenly, I knew the only way to overcome my fear and walk in faith was to walk through what most of us fear the most. The Unknown. At that time and even today, I have no idea what my future holds health wise, but thankfully I know who holds my future in his hands. I am often reminded of this scripture: “Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.” (Isaiah 41:10)

I had to make the decision to put fear away and walk through this health journey trusting God, realizing that even if my worst fears came true, He would still be with me.

Obviously, that doesn’t mean I no longer have moments of fear creep into my life. I am human after all. But in those moments, instead of letting fear overwhelm me I open my Bible and allow God’s words to flow over me. I lift my prayers up to God and asked for him to help me overcome whatever fear is trying to steal my peace. As I do these two things, I begin to feel that fear wash away.

In this long crazy beautiful health journey, I have learned that fear loses its power when we actively trust God more than what we fear.

Today, ask God to show you what you are afraid of. What is paralyzing your faith and keeping you from living confidently in His peace and freedom? And then make the choice to allow God to help you walk courageously through your fears, holding God’s hand and trusting His heart to lead, protect and preserve you each step of the way.

Dear God, help us walk through our fears by facing them instead of being paralyzed by them. We want to take Your hand and trust Your heart with all that is within us. Give us courage today to take the first step. In Jesus’ name we pray. Amen

Let Love Win

Today’s a new day! Don’t you think fear has won often enough in your life? Don’t you think anger has won enough in this world?

What if, just for today, you did absolutely everything in your power to see that love wins for a change? What if your small acts of love spread from community to community and across the world? What if it creates an absolute tidal wave that circles and embraces the entire world?

What if one act of love and kindness from you was the very thing someone needed to restore their faith in humanity or try one more time to keep running their race? To not give up.

What if you are the spark the world is waiting on to shift from a fear-based mindset to a love-based mindset?

Let’s let love win today and see what happens!

Wherever you are on your journey, remember you are awesome! Show some love and kindness today. ~OC

Beautiful Interruptions

Today’s a new day! I wrote the following early this morning.

I pray Jesus keeps your eyes, ears and hearts open to experiencing some beautiful interruptions today. Do not allow the distractions of this world keep you from these amazing opportunities and blessings. Do not miss the really important things in life. Have a great day! ~OC

My Covid Story

On March 13, 2020, America shut down because of Covid. Five years later, Covid still plays a major part in my life. Here is my story.

For most, the year 2020 was one to forget. The Covid Pandemic turned most of the world upside down. We watched in horror as we witnessed so many people and families suffer tremendous suffering and lose. As my wife and I watched all this unfold, we were thankful that Covid19 had not touched us. Until it did.

On Super Bowl Sunday 2021, I woke up a little tired. It had been a long week so I did not think much of it. I took my temperature and thankfully it was normal. I headed off to church excited for the day. You see, I am a life long Tampa Bay Buccaneers fan and they were playing in the Super Bowl. After church, I headed home and took a little pregame nap. When I woke up everything had changed. I woke up with my shirt soaked in sweat. I took my temperature and it was at 103.6. I immediately went and had a Covid test. Of course this was on a Sunday, so my results would take a few days. I went home and basically slept through the Bucs winning the Super Bowl. Go Bucs!

On that Monday morning, I woke up feeling much worse. My temperature was now at 104.2. I also had a terrible headache, body aches, terrible cough and did not want to move. Later in the day, it was determined I needed to make my way to the ER. Once inside the ER, test revealed I did indeed have Covid and double pneumonia. I was headed to the Covid floor.

During my stay at the hospital, I received Blood Plasma, Steroids and Remdesivir. Being isolated on the Covid floor was tough. When I had been hospitalized in the past, I was used to having visitors and walking the halls. This hospital stay was filled with staff in protective covering and closed doors. Complete Isolation. After more than a week on the Covid floor, I was released. Time to recover from Covid and double pneumonia.

After being released from the hospital, I had to spend a week isolated away from my wonderful bride, since she continued to test negative for Covid. But unfortunately, my wife would soon experience the effects of Covid. Thankfully, her symptoms were a little milder and she does not suffer from any longtime effects. After finally arriving home, I waited to feel better. Surely I would feel better in a few days. But that was not the case. After two months my symptoms had not gotten much better. My CT Scan showed my lungs were still filled with Covid. I was still dealing with headaches, breathing issues, cough, no appetite, hoarse voice, fatigue and brain fog. Most of my days felt like the movie Groundhogs Day.

My medical team officially classified me as a Covid Long Hauler almost six months after my original diagnosis. Not a club anyone wants to be part of. Everything was wait and see. So, what do you do with that news? When you cannot rely on anything that was once reliable. When you have taken every step you know how to take-what then? You Hope. You Never Give Up.

My life is totally different than it was on that morning in February 2021. In 2025, I still stand up having no idea where I am going. Trying to process new information is still a challenge. Breathing continues to be a struggle. Constant fatigue. I could go on and on about the different symptoms I still deal with on a daily basis.

So as I continue to walk this journey, I still lean into Hope. I still do my research. I continue to try to encourage others walking through their own Long Hauler’s battle. I will continue to pray with great expectancy to wake up one morning with no Covid symptoms. That day when I am renewed physically. But until that day, I will live in Hope. ~OC

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