Every Moment of Every Day
Today’s a new day! As I continue to run this crazy beautiful health journey, every day has its challenges. But even on the toughest days, I have beautiful moments of peace and joy. I allow myself to laugh. I allow myself to spend time in reflection. I allow myself to dream. I allow myself to experience the amazing moments around me. I allow myself to think and live beyond the multiple diseases that are slowly killing me. I allow myself to experience and embrace every moment of every day. ~OC
Starting a Campaign…Not a Political One
Today’s a new day! As I scroll through social media and watch the news, I am heartbroken about all the division I see in our world. So as I was praying and reflecting this morning, I thought how can I make the world a better and kinder place? So here is the idea that came to my mind. Are you ready?
Today, Saturday October 19, 2024, I am starting a campaign (no, not a political campaign), that I hope brings some smiles and happiness to a broken world. The campaign is called #OCencouragedmeto. I am encouraging everyone to perform a simple act of kindness for someone and share it on your social media pages or on the Facebook and Instagram pages OCencouragedmeto using the hashtag #OCencouragedmeto. These simple act of kindness could be an encouraging sticky note left on your coworkers desk, buying coffee or lunch for the person in the line behind you. It doesn’t have to be anything big. Just a simple act of love and kindness towards someone else, using the hashtag #OCencouragedmeto.
As I continue running this crazy beautiful health journey, I want to spend whatever time I have left encouraging people. I hope you will join me on this fun, let’s make someone smile adventure. ~OC
Embrace Your “Can’t”
Today’s a new day! I used to tell people that the word “Can’t” should never be uttered from their mouth. I used to use the popular phrases “Just Do It,” and “Sleep when you’re dead.” Yes, I was that guy.
In today’s world, we are pushed and even encouraged to take on more and more, and we are seen as weak or strange when we are unable, or do not want to do so.
For me, this mindset came from my passion for life. It was fueled by a deep craving to achieve everything in life. It’s what made me intense, driven, competitive, and hardworking. It was who I was. Until I wasn’t.
As I have walked this crazy beautiful health journey for 22 years, it took me some time to come to terms with my “can’t.” Early on in my health journey, I constantly pushed through truly excruciating symptoms, like level 10 pain, exhaustion from weeks of no sleep, and unrelenting crushing fatigue even when I did sleep. I pulled myself together through constant life-threatening health issues, and participated in physical activities that I had no business attempting with a smile on my face (like running multiple marathons with no training) – while inside my body, my mind, and my spirit were dying a slow and agonizing death. Yet I still didn’t listen.
Why am I sharing all of this with you? Because I believe I could have spared my body a lot of pain and damage, my mind a lot of anxiety, if I had just learned to accept, or even embraced my “can’t” earlier in my health journey. I would have also spared my bride from a lot of worrying.
I want to share a few lessons I have learned along the way. I hope you take the time to read and reflect on them.
1). “Can’t” Is Not Weakness:
The biggest hurdle when it comes to dealing with “can’t” is intimately understanding on a heart-knowledge level that being unable to do certain things because of your illness does not mean you are weak, lazy, unintelligent, or unmotivated. This is where I was stuck for a long time. I had believed my whole life that if I couldn’t perform at peak levels, it must be my fault and that I just wasn’t trying hard enough. So, when my illness started to seriously affect my work quality in the career I had worked so hard to achieve, I compared myself to those around me, and told myself that I was just “too stupid” or “lazy” to do the job. At times I listened to the lies that I was worthless.
Hello Over-Achiever. I want to talk to you directly now. You burn-the-candle-at-both-ends doers. You know-you-can-conquer-the-world types. You did not choose your health issues. You didn’t work hard your whole life just to become a “lazy” and “unmotivated” on a whim. That’s not you and that’s not what is happening in your life. It’s not a matter of motivation, drive, desire, or ambition. It’s not a matter of not trying hard enough. It’s a matter of your body revolting against the true self of your mind and spirit. It’s a matter of your earthly vessel failing the real and eternal you that lives inside. The true and eternal you is still the same as it has always been: driven, motivated, intelligent, and strong. Once you accept this and understand the gulf between the two “yous,” you can take strides to get your body back on board so that a more collected, collective you can get back to truly living.
Accepting your “can’t” isn’t weakness; it’s actually strength. It means that you are strong enough to look your health challenge squarely in the face and get after the business of Overcoming. It means that you are brave enough to accept that your life right now must take an unexpected detour. It means that you are willing to admit your physical “can’t” so that you can open your mind and spirit to what you can and must do to regain your health. And the only way you can allow your focus to properly shift to healing is to first completely embrace your illness and your “can’t.”
2. “Can’t” Allows Healing:
Sadly, it took me several years to embrace this truth. I am encouraging you not to wait. Because if you don’t fully believe and fully accept that you are sick, you will keep running the rat race. But if you look deep in your heart, listen to your body, and know in truth that you are sick, then you can accept it. Embrace it.
I cannot stress this enough. Because until you wholly feel the weight of it, until you embrace it and believe it, you can’t get truly angry about what your illness is stealing from you. And until you get angry you cannot mentally, emotionally and spiritually prepare for the battle ahead of obtaining a full and accurate diagnosis, proper treatment, and hopefully better health. This is how coming to terms with your “can’t” sets you on the path to healing.
If you are in the early stages of your health journey, this next part may shock you. The medical system (at least in the United States) will not completely facilitate you regaining your health. Not at all. Unless you are exceptionally fortunate, your journey is not going to look like: get sick, see a doctor, get better. No, if you have a chronic or complex illness, generally speaking you need to prepare for battle. You need to arm yourself with knowledge and with the mental fortitude to be your own advocate. You need to prepare to fight for your life. You need to push for answers and drive the process. No one else will or can do it for you.
This is why embracing your “can’t” is so important. Because when you truly realize what you “can’t,” you get really, really angry at this invisible thief of life that is your illness. I don’t mean “bitter” angry, I mean “motivated and determined” angry. And you’re going to need that determination to drive the (sometimes grueling) battle that lies before you. And that drive to press forward in the battle is the only thing that will lead you to wellness.
It’s all you, Warrior! So get really angry at your “can’t” and resolve in your mind to do everything you humanly can to regain your health.
3. “Can’t” might be forever (But it’s not your identity): One of the more valuable pieces of advice I can share with you is that your “can’t” might be forever. That can be a difficult pill to swallow. But your “can’t “ does not need to become your identity. My life is much more than all the “limitations” I face on a daily basis. My life is full of hope, adventures and overcoming all the bumps in the road.
4. “Can’t” Makes Room for “Can”
Another critically important thing that coming to terms with your “can’t” does is that it makes room in your life for your “can.” Some of your “cans” may look something like:
1). I can make healthy, life-giving meals for myself to help my body heal.
2). I can research my illness for myself so that I have the knowledge to ask good questions at my appointments and to make educated treatment decisions.
3). I can maintain a positive attitude, despite how I feel.
4). I can make time for self-care activities that will help my body.
5). I can surround myself with people who encourage me in my health journey.
6). I can purposefully structure my life so that it supports wellness and healing.
7). Even though I couldn’t yesterday, today I can go for a short walk or bike ride.
8). This morning, I can rise early and sit peacefully to watch the sun rise
9). Right now, I can make positive choices to help with the symptoms I’m experiencing.
10). Don’t get hung up on committing to daily schedules of “cans” or expecting some type of minimum performance of “cans.” While it’s absolutely important to have bigger, more overarching “can” goals, embrace what you can do today and accept that tomorrow’s “cans” may look very different based on your health. Every day is a new opportunity to discover and put into practice the things you can do.
Here are some practical steps that can be used to work towards peace with your current “can’t:”
1. Pray
2. Journal
3. Reach out to family/friends
4. Reach out for professional help if needed
Coming to terms with your “can’t” may be difficult, but it’s so important and it opens the way for healing and wellness to come in time. You are unbelievably strong to live with your symptoms day in and day out and even stronger to accept and face such a challenge head on. Be encouraged that your “can’t” is just for right now and that nothing we face on this side of Heaven is forever. ~OC
Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal. ~2 Corinthians 4:16-18
Embrace the Detours
Good Morning! Today’s a new day! This time 21 years ago, I was arriving at the hospital to have a golfball sized cancerous tumor removed from my chest. A lot of memories from that day. My mom and mom-in-love coming to take care of Laura and I. Family/friends hanging out at the hospital to pray and support Laura. The power going out at the hospital right before surgery. God giving me a vision during surgery that I would start running marathons and sharing my story (I was blessed to run 350 marathons). The doctor telling me that the team had gotten all of the tumor. Jesus was in the mist of the whole thing. Thankful He has blessed me with 21 more adventurous crazy beautiful years. Twenty-One years ago today the Today’s A New Day! writings started. As I continue walking through health issues, I encourage everyone to embrace the detours of life. ~OC
Peace and Harmony
Today’s a new day! I enjoy peace and harmony. But sometimes I allow myself to get caught up in the distractions of social media. So starting today, I will no longer be responding to anyone’s negative or conspiracy theory posts, comments or text. I know I am not going to change anyone’s way of thinking, so why allow myself to get caught up in all the negativity. As I walk out this 4th quarter of my life, I want to enjoy the ride. Blessings. ~OC
Prideful Strut
Today’s a new day! We need to stop walking with a prideful strut. We need to stop being smug and selfish. We need to stop making life about us. We need to stop being a “Me Society.” We need to put the focus back on God. He is the only one who needs to be famous. We need the Holy Spirit to subdue our fleshly pride. We need to walk with a limp of total dependency on God. ~OC
Someday….
Today’s a new day!
Someday when the kids are grown…
Someday when I’m financially stable…
Someday when my life isn’t so crazy…
Someday when I feel like my family/ friends approve…
Someday when (fill in the blank with your reasons), I’ll follow this big dream that God has given me.
Sometimes God gives us a glimpse of what’s to come and we need to wait on His timing. We may have lessons to learn first. Or maybe there are things that need to be put in place before it’s time.
BUT..
When God says, “Do this…”, our only response should be to pray for guidance and obey.
Let me tell you a bit of my story…
I had been on my crazy beautiful health journey for several years when I began to feel very strongly that God had something more than just being a patient. That God could use me to pray for and encourage other patients walking through their own journey. I did not have the full picture at the time, but I knew that God had a beautiful plan for this journey.
As I spent more and more time in the hospital, doctor appointments and treatments, I began to see God using me and my story to reach other patients who were being overwhelmed by the day to day struggles of their health journey. Fellow patients were reaching out to me to share their stories and I was blessed to pray for them.
Over the past twenty-two years, I have been blessed to walk with many patients. I have watched some experience healing from their medical battle and I have seen some experience the ultimate healing by walking into the presence of God.
This amazing journey started with me looking past “Someday.” Someday when my health improves. Someday when I have all the answers. Someday when I am more qualified.
When God called me to walk with and help others walking through the medical world, I was not qualified, but I was willing. I did not have all the pieces to the puzzle, but I knew the One who did. All God wanted from me was a “Yes.”
“Yes” because God was so clear about my next step (He confirmed it in multiple ways) that I knew this was His will for me.
Your word is a lamp to my feet and a light to my path. Psalms 119:105
I do not know what God is calling you to, but I encourage you to trust in Him with all of your heart and do not lean on your own understanding.
When God says, “Go!” You need to go. Even when it’s scary or doesn’t make sense to the world.
Being in step with God’s plan should always be our goal. It will not always be easy or seem “perfect” to us but we need to trust that He knows what He’s doing. Just keep leaning in and say yes. ~OC
Dear Hate,
Today’s a new day!
Dear Hate, I trust this letter finds you well. Actually, from what I see on tv and social media, it looks like business is booming for you lately. I have to give you credit, you have managed to keep yourself in the news and social media 24/7 these days and that’s not an easy feat. You are like a chameleon. You continue to reinvent yourself. Sadly, your brand is a whole lot stronger than most people realize. Somehow you have been able to leverage all that fear out there into a pretty impressive machine.
But, thankfully we have the answer to overcome all hate. A beautiful four-letter word called Love. Oh yes, Love. That’s your kryptonite.
Love is the beautiful response to all the hate we see in the world. Love can rebuild everything that hate tries to destroy.
Love is a redemptive song that people keep finding a way to sing together no matter how difficult the days become. Sure, maybe we have had a rough stretch lately, but we’ve been through this all a million times before and Love has always been able to defeat hate.
And I believe Love- will answer now too.
Let’s face it, deep down we all know how this is going to play out, don’t we? Hate will grab the headlines and make a dramatic statement and chaos will briefly come, and you’ll feel and seem like you’re winning. Hate will get a bit of traction and celebrate for a moment, but it will not be long until Love rises up and slowly drives back all the destruction that you have managed to raise.
Like yeast in the dough, Love will quietly and silently do the healing work. From person to person, heart to heart, breath by breath. Love will dance!
Hate, you probably have noticed that Love doesn’t resort to all the theatrics you’re known for. Because the truth is, Love and goodness is humanity’s default setting and when people stop to breathe, when they step away from all the hate, when they draw nearer to one another and recognize the goodness in the other’s eyes—then hate you’re defeated.
I believe people will always return to compassion and mercy because those are the most powerful forces on earth. And when they do, they find Love there waiting. They’ll embrace Love and Love will embrace them.
Yes, hate may occasionally corrupt the system, but Love is the system. Love is the truth that people know without knowing they know it. Love is a deep sacred place that the human heart will always seek at its level. When hurting, grieving, weary souls search for rest, Love is where and when people finally find themselves at home.
So hate, you can have your eye for any eye, and Love will keep making peace.
Hate, you can demand revenge and Love will keep forgiving.
Hate, you can spew venom and Love will turn its cheek.
Hate, can strike with a closed fist, and Love will stretch out its open hand.
Hate, you can gloat and brag and feel quite pleased with yourself for the momentary chaos you’ve manufactured—and Love will press firmly into that which endures and defeats it.
Hate, you are a powerful and resilient, force, but you’ll never overcome Love.
Hate, no matter what unspeakable damage you do, Love will bring even greater healing.
Love will always have the last word.
Hate, look around you. Look beneath the headlines and the noise. Look deeply into the eyes of those who get Love and see how much they’re willing to do.
Love will not be denied.
Hate, you cannot win this one, my bitter friend, no matter what you, the news, social media or the fear mongers say.
This place belongs to Love. ~OC
A Beautiful Gift
Today’s a new day! It’s only been a week since I was given the diagnosis of dementia. But the symptoms have been showing for a number of years. Since my diagnosis life has been filled with many phone calls and text from concerned family and friends. I appreciate them all. In the past week, here are some things I have thought about as I begin my journey with dementia.
My dementia diagnosis does not define me. Although the diagnosis is life changing, I will not allow it to change who I am. I will fight that battle for as long as I can. I will continue to love people the way I always have. Probably a little more. I totally understand dementia is a progressive disease and I may not be able to do all the things I once did, but I want to continue doing the things I enjoy for as long as I can.
If you want to know how I am doing, just ask me. The sudden change in how others communicate with me since my diagnosis has been a little frustrating. Trying to avoid conversations about my diagnosis of dementia will only make me feel uncomfortable and isolated. I am still me. For now.
Yes, the diagnosis is correct. I wish it wasn’t, but it is. Younger people can be diagnosed with dementia. While the vast majority of people are affected by dementia at an older age, the disease can affect younger individuals. If you have concerns about your own cognition, I encourage you to get checked out regardless of your age.
Please don’t debate my diagnosis or tell me I don’t look like I have dementia. Do not attempt to dismiss the diagnosis. Those responses can be offensive. It is hard enough to tell someone I have dementia , let alone having to defend it. You may not see my dementia, but I live with it every day.
Please understand that sometimes my words and actions will not be the true me. It’s the dementia. As the disease progresses, I might deal with anxiety, confusion and a host of other issues. There are days I may want to sleep more. Remember, I am still me, just a little different.
My dementia diagnosis does not mean my life is over. I plan on continuing to live an active and memory filled life as long as possible. Laura and I plan on continuing to embrace life to its fullest.
So please keep reaching out and treating me the same old way. Social interactions are very important to my wellbeing. So do not be afraid to call, come by the condo or plan a time to meet. My life continues to be a beautiful gift. ~OC