Tag: Endurance

A Beautiful Gift

Today’s a new day! It’s only been a week since I was given the diagnosis of dementia. But the symptoms have been showing for a number of years. Since my diagnosis life has been filled with many phone calls and text from concerned family and friends. I appreciate them all. In the past week, here are some things I have thought about as I begin my journey with dementia.

My dementia diagnosis does not define me. Although the diagnosis is life changing, I will not allow it to change who I am. I will fight that battle for as long as I can. I will continue to love people the way I always have. Probably a little more. I totally understand dementia is a progressive disease and I may not be able to do all the things I once did, but I want to continue doing the things I enjoy for as long as I can.

If you want to know how I am doing, just ask me. The sudden change in how others communicate with me since my diagnosis has been a little frustrating. Trying to avoid conversations about my diagnosis of dementia will only make me feel uncomfortable and isolated. I am still me. For now.

Yes, the diagnosis is correct. I wish it wasn’t, but it is. Younger people can be diagnosed with dementia. While the vast majority of people are affected by dementia at an older age, the disease can affect younger individuals. If you have concerns about your own cognition, I encourage you to get checked out regardless of your age.

Please don’t debate my diagnosis or tell me I don’t look like I have dementia. Do not attempt to dismiss the diagnosis. Those responses can be offensive. It is hard enough to tell someone I have dementia , let alone having to defend it. You may not see my dementia, but I live with it every day.

Please understand that sometimes my words and actions will not be the true me. It’s the dementia. As the disease progresses, I might deal with anxiety, confusion and a host of other issues. There are days I may want to sleep more. Remember, I am still me, just a little different.

My dementia diagnosis does not mean my life is over. I plan on continuing to live an active and memory filled life as long as possible. Laura and I plan on continuing to embrace life to its fullest.

So please keep reaching out and treating me the same old way. Social interactions are very important to my wellbeing. So do not be afraid to call, come by the condo or plan a time to meet. My life continues to be a beautiful gift. ~OC

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Some Lessons Learned

Today’s a new day! As I have run this crazy beautiful health journey for the past twenty-two years, I am often asked about the lessons I have learned along the journey. So here are just a few lessons learned along this crazy beautiful journey.

  1. Bring your pain to God don’t run from Him: When you run from God in seasons of challenge, all you’re left with is your own limited ability to cope with what you’re walking through. On the other hand, God invites us to draw near to him that we might experience his peace, healing, and closeness and this is what Scripture points us towards.

 “The Lord is close to the brokenhearted; he rescues those whose spirits are crushed.” Psalm 34:18

When we bring our pain to God we recognize that there is a purpose and in time God who loves us unconditionally will reveal his divine purpose through it.

  1. Fill your life with God’s word and God’s people: How we respond to the trials of life is critical to how we process what’s happening and how healing will take place. If we treat physical sickness with the incorrect medication, not only will our sickness continue, but it could become worse.

That is why it’s so important to not fill our minds with wrong thoughts; like God is mad at me, God is not good, worse things are going to happen, etc. If we allow those negative thoughts in, we will struggle to experience the peace of God he promises to us in Scripture (Philippians 4:7).

But when we fill our life with God’s words and surround ourselves with people who speak hope and encouragement into our lives, our experience will be much healthier.

“How sweet your words taste to me; they are sweeter than honey.” Psalm 119:103

When we fill our minds with God’s Word, we are reminding ourselves of who our God is, what he’s like, and we replace the lies of the enemy with the truth of God.

  1. Don’t be filled with worry, overflow with worship: Something powerful happens when we actively choose to worship through our suffering. We are not denying reality, we are simply redirecting our posture from one of worry to one of worship.

Worship changes our perspective. Worship speaks about where our confidence and hope lives. Worship redirects our thinking. Worship places the results in God’s hands.

  1. Believe that God will turn your sorrow into great joy: One of the great challenges of our faith is realizing that God can use our pain for our good. Meaning that our biggest sorrows can result in our greatest joy. When you think about Jesus’ greatest sorrow – suffering the shame, punishment, and death for our sin, the result was great joy – the redemption of humanity and the opportunity for a relationship with the living God.

When I reflect on my long health journey, which has been filled with a lot of pain, suffering and loss, I am thankful I pressed into God’s presence and trusted his plan for my life. I have watched him use my health journey to strengthen and encourage others which has resulted in my own comfort and joy through this crazy beautiful health journey.

As you walk through your own suffering today or in the days to come, I pray you will hold on to these powerful promises from God:

“I am leaving you with a gift—peace of mind and heart. And the peace I give is a gift the world cannot give. So don’t be troubled or afraid.” John 14:27

“And be sure of this: I am with you always, even to the end of the age.” Matthew 28:20

As I continue to run this health battle, I am humbled that Jesus willingly suffered the greatest pain and death because He knew the end of the story and so do we. So keep leaning into the promises of God. ~OC

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Jars of Clay

Today’s a new day! In 2 Corinthians 4:7-9, we read the following words: “But we have this treasure in jars of clay to show that this all-surpassing power is from God and not from us.  We are hard-pressed on every side, but not crushed; perplexed, but not in despair; persecuted, but not abandoned, struck down, but not destroyed.”

In the above verse, Paul is comparing us to jars of clay in verse seven because life here on earth will cause us to be broken sometimes and when we are we always have the choice on what we will do with our brokenness.  If we allow God to fill us more with each and every passing trial or heartache, He can shine through that brokenness and others will see Him. Even though some heartaches and storms seem to last forever Paul goes on to explain how we need to view everything in life on earth.  

In 2 Corinthians 4:16-18, it declares, “Therefore we do not lose heart.  Though outwardly we are wasting away, yet inwardly we are being renewed day by day.  For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all.  So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal.”  As difficult as it is to look at some storms as being temporary when we know here on earth it isn’t just going to go away, God is drawing us to His side to allow Him to fill us with more of His light and to be comforted by Him.  He wants our focus to be on Him and eternity.  He wants His light to shine through our brokenness so the world will see Him.  The world is a dark, lost place and people need Jesus. The more we choose to be different by living a life that is pleasing to God the more they will see Him. Paul took great joy the more broken he became because He understood that the more weak he became the more God was shining through His life.  

Whether we are looking at our own life or the life of someone we love, don’t lose heart. God loves us and He has a plan. We need to fix our eyes on Him and seek Him and His plan. Allow Him to fill us so every crack of that broken jar shines His light to a lost world. The darker the world gets the more our light can shine for Him if we are seeking Him and allowing Him to shine through us. Our hope is found in Him and He wants to fill us with that hope. He wants to fill us with the confidence that whatever we may be facing or someone we love is facing that He has a plan but we must seek Him and follow Him. Don’t look for another way, the answers that we are seeking are found in God. It may seem easier and faster to look for it somewhere else, but if it isn’t His plan then it isn’t His best. So let us seek Him and trust Him, knowing how much He loves us so we can know that truly His best is yet to come. May we lean into His promises. ~OC

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When Life Knocks You Down

Today’s a new day! This has been a tough week for me mentally, physically emotionally and spiritually. I heard words from doctors this week that have not been promising. This week has made me press into my faith even more.

It’s easy to have faith when life is treating you well. When everything is working out. It’s much harder to have faith when you are facing challenges in your life. But that is exactly when you need to apply your faith. When you need to lean into your faith even deeper. Because faith is believing beyond the grime diagnosis from the doctors.

Faith is taking the first step.
Faith is jumping in the deep end and trusting everything will be okay.
It was easier to be positive back in the day, when I could lace up my running shoes and go for a 50 mile run. It’s much harder, much much harder when I have days where it’s hard to just walk across the living room without feeling like I have just run a marathon. Life was much easier when I could easily remember why I walked into another room. When my brain did not feel like I was in a constant fog. Living out our faith is so much easier when life is not so demanding. But that’s actually when we need faith the most.

We need faith and usually find faith when life is hard. On days, when we are fighting to just survive. Those are the days when we need faith the most. Because everything that means anything is worth the fight. Everything worth living for will require a real fight to achieve it. You and I cannot decide to quit half way through the race. We must run every step. Even when that next step is the hardest.

This crazy beautiful health journey has knocked me down a few times along the way. But I keep getting up. This week hit me like a severe cramp during a marathon. This week’s life changing diagnosis rocked my world. I was knocked down. I had to dig deep to get back up. But I did get back up. I didn’t stay down. My friend you need to keep getting back up when life knocks you down.

Here are 3 things I want to share about getting back up when life knocks you down.

1). Remember:
God still loves us and there are still many things to be thankful for.

We need to remember that God has given us many promises to hang onto. Check out Romans 8:28, Jeremiah 29:11, and Isaiah 40:31.

2). Connect:
The greatest temptation when we are feeling “down and out” is to isolate ourselves. We may feel embarrassed or lost about our current situation, or wonder if others will understand. We may think we can’t express how we are feeling. But the tough moments in life should connect us with God, our family and friends.

3). Pray:
We can pray that God will give us the opportunity to share what we are learning with someone else. As we begin to focus on others, we lose the grip of self-focus and all the negative feelings that can go along with it. Little by little, we will be planting seeds of a powerful life story we can tell some time in the future.

Here is a prayer that I hope helps as you walk through the tough days and keep getting back up:

Dear God, remind us that trials are to be expected. Help us keep our reactions under control and within Your will. Give us great strength to endure this trial in a way that is refining and transforming -for Your glory. ~OC

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September 10, 2001

Tomorrow, most everyone in America—and most of the world—will take a moment to remember what happened on that Tuesday across our nation September 11th, 2001.

We will fall silent as bells toll for the almost 3,000 people whose lives were lost in those Tuesday morning attacks.

Countless others have been lost over the years due to health issues caused on that tragic Tuesday twenty-three years ago.

There will be tributes paid to the heroes who responded to the attacks—those members of the public who fervently worked  to help rescue people from the rubble, even when there were so few left alive to rescue.

We’ll pay tribute to the 184 who died at the Pentagon.

We will salute the courageous passengers of United Flight 93—the very first soldiers to engage the enemy in a post-9/11 war. We will remember the words “Let’s Roll.”

We will remember where we were when we heard the news—what we were doing, how we found out, who was there with us… who shouted and who cried. Who was speechless.

We will all recall asking “Why?”

We will recognize the lessons learned on Tuesday September 11th—perhaps we’ll even celebrate the unity we had on September 12th.

But what of our recollection of 23 years ago today?

What about September 10, 2001?

On the morning of September 10, 2001, Katie Couric and Matt Lauer opened NBC’s TODAY show with news of “anemic” economic growth, noting the Dow and the NASDAQ at near record lows for the year. Al Roker giving us the latest weather for our neck of the woods.

On September 10, 2001, ESPN was discussing the Dallas Cowboys loss the day before to my Tampa Bay Bucs. Headline news was discussing shark attacks along the eastern seaboard. And the entertainment world was a buzz about the first Harry Potter movie.

In our nation’s capital, news outlets chronicled the investigation into the disappearance of Capitol Hill intern Chandra Levy, and ever-increasing suspicion that then-Congressman Gary Condit knew more about the matter than he was saying.

Only a tiny number of people even took notice of international news that Ahmed Shah Massoud—the leader of the so-called Northern Alliance fighting against the Taliban in Afghanistan—had been killed by a suicide bomber disguised as a journalist.

News of that terrorist attack would have massive repercussions just days later.

But terrorism was the furthest thing from virtually everyone’s minds.

The 1993 bombing of the World Trade Center—which killed six and injured hundreds more—was barely a distant memory for all but a few police professionals still working “the terrorist angle.”

There was no mystery surrounding the most recent attack on the United States—al-Qaeda had claimed responsibility for the suicide bombing on the USS Cole as she was being refueled in Yemen’s Aden harbor, killing 17 sailors and wounding 37 others less than a year prior.

American law enforcement officers were correctly focused on keeping the streets safe from criminal mayhem perpetrated by the thief who comes to steal and kill and destroy—but they were doing so almost entirely “below the radar.”

It’s difficult to believe that the 9/11 terrorist attacks occurred twenty-three years ago tomorrow. Sometimes it feels like it was yesterday.

It’s even more difficult to believe that on 9/10 America as a whole—and many ways, Americans individually—had a unique brand of innocence. We didn’t know it at the time, but we did have it.

However, that purity wafted away in the smoke and cinders rising from the smoldering craters in lower Manhattan, northern Virginia, and a plane in rural Pennsylvania.

On Wednesday 9/12, our thinking about the world was vastly different from what our thinking was on Monday 9/10.

Remembering Monday 9/10/01, is to be reminded that we simply cannot know what tomorrow may bring, or what may follow thereafter.

Today is September 10, 2024—twenty-three years ago today 2,996 families spend their last day together as a family.

Today is September 10, 2024, what thoughts and memories are going through your mind? ~OC

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Thank You!

As I write this, Laura is fast asleep, her day will be filled with one thing after another. So I want to jot a few words that could never really approach an accurate measure of the gratitude I have that for the last 25 years, I have gotten to call her my bride.

I have heard many people give marriage advice over the years. But the best advice I can give any couple is to keep God at the center of your marriage and that your spouse becomes your best friend.

Today, Laura and I celebrate our 25th anniversary. And while I could wax poetic about love, commitment, romance, and other things that people associate with married couples, I want to thank my bride for the things that keep me glued to her, the small things that define why the man I see in the mirror today – despite no hair, the wrinkles and the body a little more worn out, is a better man than I was 25 years ago.

Thank you for always being my best friend, confidant and sounding board.

Thank you for smiling at me from across the room in a crowd of people to let me know that you still know I am there.

Thank you for being the first person I want to call to talk about a personal victory that might be small in the eyes of others, but monumental to me.

Thank you for being the first person I want to share my thoughts and writing with you.

Thank you for being my rockstar, chauffeur and health advocate over the years.

Thank you for always telling me the truth.

Thank you for sharing all the road trips with me and doing most of the driving.

Thank you for allowing me to be a collector of books and hats.

Thank you for helping me finish my thoughts. As my health declines and my thoughts are harder to find, you always make it a little easier.

Thank you for reminding me to eat and take in fluids.

Thank you for telling me to go to the doctor when I am just tired of going.

Thank you for seeing how tired I get in social settings and making sure I do not overdo it.

Thank you for finding so much in life to laugh at and with.

Thank you for your relentless pursuit in making our life better.

Thank you for laughing at and getting my dark sense of humor. I am thankful for your dark sense of humor.

Thank you for being the most selfless person I know.

And thank you for making me want to be a better man, not because of some expectation that you may have of me, but because I want to become a better man.

Thank you for showing patience as I walk through this health journey.

As we celebrate our 25th Anniversary, I love you more today than the day we said “I do.” Happy Anniversary! ~OC

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Friends

Today’s a new day! I believe we would all agree that good friendships add value to our lives. Great friends can bring out the best in us.

But sadly, we have all experienced moments in life where friends let us down. Those can be tough moments to walk through.

As I have walked through this crazy beautiful health journey, I have felt the sting of friends deciding to walk way. Those moments can lead to some of the deepest pain in life. It can be easy to get bitter about the way those friends treated me.

When walking through those moments of loss, it can feel good to get angry in those times of hurt. But by holding on to those painful moments we can end up dealing with long-term trauma. When we look at Ephesians 4:31, we read about getting rid of bitterness and anger. By allowing those harmful emotions to take hold in our lives like nasty weeds, we could potentially cut ourselves off from valuable friendships.

But when we decide to mix forgiveness with honest and open communications we can help to alleviate the pain we feel and can help walk us down the road to recovering our friendship.

In Matthew 18:22, Peter asked Jesus how often we should forgive our brother. Peter thought he was being generous when he offered to forgive his brother seven times in one day. According to human thinking, that would be quite generous, but Jesus had a different answer: “I do not say to you, up to seven times, but up to seventy times seven.” What?

Jesus point was not to count up to 490 offenses and then stop forgiving the one who asks for forgiveness, but to forgive always. Forgiveness should be our state of mind. It should flow from our hearts. Just as God is merciful with us when we repent, we should be merciful to others.

When friends disappoint us, mercy is not always our first reaction, but it is a response that we must learn and practice. It is important to keep perspective and recognize that we are not always perfect friends.

In this journey called life, we have definitely disappointed our friends and how did we want to be treated in those moments? A good principle to remember is given in Proverbs 18:24, “A man who has friends must himself be friendly, but there is a friend who sticks closer than a brother.” When we keep in mind our own shortcomings, it is much easier to extend mercy and grace to others.

Before Peter asked about forgiveness, Jesus gave instructions about what to do when our friends let us down. In Matthew 18:15-20, the topic of when our friends disappoint us is addressed.

The first step is to go to our friend privately and address the issue. Hopefully they will respond positively, and further steps will not be needed.

The key to going to our friends is that we must do so in love. In Proverbs 17:17 we read, “A friend loves at all times, and a brother and sister is born for adversity.” Without first being willing to forgive our friend and striving to remember our love for them, we run the risk of making matters worse. Our hurt feelings and disappointments may come out in anger and drive our friends away.

I believe friends are to hold each other accountable. Solomon wrote about this in Proverbs 27:17: “As iron sharpens iron, so a man sharpens the countenance of his friend.” The point is not to tear each other apart, but to build each other up and hopefully make our relationship even stronger.

Once we have truly forgiven our friends and reached out to them, then the responsibility is on them to respond. Hopefully their response will be positive, and the problem will be resolved. But if not, we will have peace in knowing that we have done everything in our power to make amends.

There is joy that can come in gaining a friend back, but recognize that doesn’t always happen overnight. As time moves forward, our responsibility is to not allow disappointment to generate bitterness, but to replace that disappointment with love, grace and forgiveness. ~OC

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Adversity

Today’s a new day! Are you currently walking through a storm? Maybe you just came out of a season of trials. We have all been in one of those seasons at some point in our lives. But as we deal with the different trials of life, I believe that God has placed within each of us, seeds of strength, resilience, and fortitude. We can tap into an unbeatable spirit to overcome the adversities of life.

As I have run this crazy beautiful health journey for the last 22 years, I have leaned on the word of God to help me navigate through the storms of life. I pray the following words will help and encourage you as you run your own life journey.

(1) We can run in God’s Presence. In Matthew 28:20, “I am with you always even to the end of the world. And in Isaiah 41:10, we can lean into this promise “Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.”
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Even when we suffer adversity, we can know that we are in the presence of God. What a great encouragement and comfort to help us through those difficult times.

(2) We can learn from God’s Promises. The Psalmist affirmed that God would be with us. That he is “our refuge and strength, a very present help in time of trouble.” God promises help. Comfort. Hope. And in 1 Peter 5:7, we read “And I will care for you.” God feels our pain. He will supply our every need.

(3) We can lean on God’s Power. No matter what we are facing in life, the love and power of God is with us. Finite strength is undependable and expendable, but God’s infinite power is sufficient for every need. Indeed we are “kept by the power of God” (1 Peter 1:5)

(4) We can look for God’s Purpose. I promise you God’s purpose is not to make you miserable. The Apostle Paul said to “rejoice in the Lord” God does not send pain, problems and pressures. God is the giver of good gifts. “Of his own will he brought us forth by the word of truth, that we should be a kind of firstfruits of his creatures.” ~James‬ ‭1‬:‭18‬ ‭

So what is God’s purpose for us when we face adversity? That’s a big question. But for me, it has taught me to Walk by faith and not by sight (2 Corinthians 5:7) My season of adversity as made me stronger (James 1:2-3) I have learned to focus on the eternal plan in Jesus. (Ephesians 3:11) To claim victory through his love, grace and mercy. (Romans 8:30-31).

As we continue to run this race called life, we all will suffer moments of adversity. Sometimes we will experience extreme tragedy. Yet, whatever the trials, storms and tragedies we face, we can always walk in the hope, comfort, grace, strength and love of God. ~OC

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Brokenness….A Gift

Today’s a new day!

Sometimes I feel broken.

There are times I look at my life and see all the ways I fall short. Maybe it was my negative attitude or words that negatively affected someone else.

There are so many ways to feel broken- physically, emotionally, mentally or spiritually. In the middle of our brokenness, it’s easy to agonize over whether or not we can ever be acceptable to God or be used by Him during our brokenness. I know I struggle with this sometimes.

During this crazy beautiful health journey, God has taught me a valuable lesson about being broken.

Our brokenness is a gift. A gift? Yes, a gift because our brokenness connects us to other people walking through their own brokenness. A gift because our brokenness brings us closer to God. It is during our brokenness that God makes us whole.

Sharing our brokenness brings meaning and healing to our own crazy beautiful journey.

Blessings happen during the brokenness. As I have shared my health journey with others, people have reached out to me and shared how my journey has helped them walk through their own crazy beautiful journey. It has been a blessing to see God move through my brokenness.

Being broken is a gift, because through our brokenness we recognize our need for God. Because only through God can our broken life be made whole.

I am so grateful for the gift of being broken. During my brokenness God has continued to love me and use me in spite of my brokenness. What a gift.

My prayer for you is that during your brokenness, you will look to God and allow Him to use you during this time. I pray you will find the gift of brokenness as God puts your broken pieces back together. ~OC

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Beautiful Gift

Today’s a new day! In late 2002, I was diagnosed with several forms of crippling arthritis. I would spend nearly a year taking multiple experimental drugs to help fight the arthritis. Unfortunately, those medications did more damage than good. Fast forward to August 2003, I had a chest scan done after coughing up blood on my way home from work. That scan would change my life forever. A few weeks after the scan a biopsy would reveal that tumor sitting in my chest was cancerous. The results would change the way I live life forever. After having the tumor removed a short time later, I thought the worst was over. I had no idea that four years later I would be diagnosed with Young Onset Parkinson’s. Of course my symptoms had shown up years before, but I never paid any attention to them. I blew it off as stress or fatigue. Then a few short years later, I would be diagnosed with Myasthenia Gravis. Maybe I should have started playing the lottery. Then about eight years later, I would be diagnosed with Gastroparesis. What are the odds? Well, some on my medical team have shared I am one in two billion. Where’s that winning lottery ticket?

Over these past twenty-two years, I have learned, and continue to learn, about living with persistent pain, near-constant fatigue and constant unsteadiness. I stress living, though I am also learning about dying. We’re all, always, dying-while-living and living while dying. My experiences with these multiple health issues simply make me more aware of death’s relentless work and also, mercifully, makes me more attentive to life’s beautiful gifts. Among them are:

The amazing gift of conversations, laughter, tears, prayers, encouragement and amazing times with family and friends.

The beautiful gift of music and books.

The beautiful gift of memories from my running days.

The beautiful gift of a call or visit from friends.

The amazing gift of sunrises and sunsets.

The gift of a quiet morning before the battle of another day begins.

The amazing gift of experiencing healing in so many different ways.

The gift of experiencing the many blessings of God.

The beautiful gift of hearing God speak to my spirit.

The gift of a quiet evening on the balcony with my bride.

The beautiful gift of almost 25 years with my bride.

The amazing gift of continuing to make beautiful memories with my bride.

The gift of outliving all the predictions of my death.

The gift of knowing God has everything under control.

In the time I have left (I am taking on the challenge to outlive the current prognosis), I intend to live close to the veil, at the threshold, and at the feet of the God upon whom angels descend and ascend. I hope to say what I hear, describe what I see, and offer what I receive because it is good, hopeful and healing. Every day, I choose to be The Man Who Refuses to Die and embrace the beautiful gifts of life. ~OC

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