Game Plan

Today’s a new day! As I continue to run this crazy beautiful health journey, I thought I would share my game plan with you. Hopefully you will find some takeaways to apply to your own journey.

1. Recognizing that so many of our battles are waged in the mind, I chose to focus on God who is all-powerful and compassionate. The Bible tells me that God’s Name is El Elyon, God Most High, and that nothing can come into my life that is not first filtered through the fingers of God’s love. God knew before the foundation of the world that I would be here in this moment dealing with multiple life threatening health issues and he already provided the resources I would need to face it. God’s plan for me in every trial of every size is that I experience peace and victory, never defeat.

2. I chose to view this journey as a gift. Granted, it’s like expecting the newest and hottest new toy for Christmas and getting a pair of socks, but it’s still a gift. This is the time to draw near to God, to experience God more fully, to enjoy the simple joys of life, to focus on those things that are truly important. I will thank God every day for the gift of my health journey.

3. Although my health battle wants to be an all-encompassing issue in my life, I refuse to sink within myself. I will continue to reach out to people each day with a text, word of encouragement, act of service or prayer.

4. I will not ignore my emotions, which can be all over the place. I will allow myself to reflect as necessary in order to express my feelings, but I will not be ruled by them.

5. I will share what is happening to me with others and enlist their support and prayers. I cannot run this journey alone, and I will not rob others of the blessing they can receive by running with me.

6. I will make both short-term and long-term goals in order to have something in the future to look forward to. For example, I plan on continuing to make beautiful memories with my bride. I will continue to share my journey on this blog. I will continue to learn and experience new things in life.

7. I will find a reason to laugh and make my bride laugh every day. Laura and I have used humor (sometimes dark) to get us through the toughest moments of this journey.

8. I will remind myself that, in some inexplicable way, the manner in which I conduct myself during this crazy beautiful health journey, does indeed impact the lives around me. The book of Job tells us that humans sometimes get caught up in the battle between God and the enemy. Jesus Himself told His disciples upon their completion of a missionary journey, that God had seen Satan fall from heaven as a result of their actions.

9. I will endeavor to keep my life as “normal” as possible. I will continue my every-day activities as long as I am physically and mentally able. This will afford me the comfort of the predictable and common aspects of life as well as helping me not to slide into introspection and self-pity.

10. I will continue to praise, serve and thank Jesus for every moment of this journey. It has not been an easy one, but it has been filled with amazing lessons, experiences and memories.

Dear friends, I am praying for you. I am asking that you will be “sincere and blameless” (Philippians 1:10). The word “sincere” is a Greek word that grew out of a poor practice in the marketplace of the day. Everyone in that day used pottery for many tasks like we use plastic today. It was important that the pots be well made. Most were, but there were some unscrupulous pottery makers who would find a pot with cracks in it. Rather than discarding it, they would fill the crack with wax to cover it up. This would work as long as the pot sold early in the day. But after a longer time of sitting out in the hot Middle Eastern sun, the wax would melt and the cracks would show. The Apostle Paul prayed that the Philippians would avoid this by being sincere or “sun-tested.” May you, as you face the heat and pressures of this world, find yourself to be, by His grace, without wax. Blessings. ~OC

The Fabric of My Life

Today’s a new day! Woven into the fabric of my life is an understanding of what it is to suffer, and from that understanding flows compassion, love, mercy and grace. ~OC

Prayers Up!

When it gets deep in the night

Where time seems to stand still

I can hear my heart beat and my thoughts screaming and that’s not always a good thing

It’s going to be one of those nights

Where sleep is a distant dream

Sometimes the voices get loud

And the hallucinations seem so real, I have to remind myself they’re not legit, just a short circuit in my brain

But through it all, I stand tall

Not allowing all those voices and thoughts to become real

I will keep standing tall

Lifting up my prayers

to the One who created it all

I will keep fighting, refusing to fall

choosing to embrace faith over it all

I will focus on the prize

Not all the junk, this disease

tries to steal from my mind

I keep fighting, gettin off the canvas

I keep running towards the One who

clears the cobwebs and reminds me

I am His precious child

I will keep standing tall

Lifting up my prayers

to the One who created it all

I will keep fighting, refusing to fall

choosing to embrace faith over it all

I will continue to fight through the

night, all the negative thoughts

that keep me from counting sheep

and getting a good night sleep

I will keep standing tall

Lifting up my prayers

to the One who created it all

I will keep fighting, refusing to fall

choosing to embrace faith over it all

The giants who try to bring me

down at night, are no match for

the One who used a boy named David to bring down one of the biggest

giants of all

I will keep standing tall

Lifting up my prayers

to the One who created it all

I will keep fighting, refusing to fall

choosing to embrace faith over it all

It’s time to be Brave

It’s time to keep Overcoming

It’s time to be Fearless

I am ready to Battle

Refusing to back down

I will keep standing tall

Lifting up my prayers

to the One who created it all

I will keep fighting, refusing to fall

choosing to embrace faith over it all

I am focused on the mission

Not going to backdown

Not going to run away

Going to walk with the King

I will keep standing tall

Lifting up my prayers

to the One who created it all

I will keep fighting, refusing to fall

choosing to embrace faith over it all

As the night slowly creeps on

I will press into the promises

of my King, thankful they get me

through another night, time to be

fearless and pray through it all

I will keep standing tall

Lifting up my prayers

to the One who created it all

I will keep fighting, refusing to fall

choosing to embrace faith over it all

As the night moves on and

My thoughts begin to wonder

the adrenaline starts flowing

and God’s angels get moving

the morning light will soon come shining

So, I will keep standing tall

Lifting up my prayers

to the One who created it all

I will keep fighting, refusing to fall

choosing to embrace faith over it all. ~OC

“Evangelicals”

Today’s a new day! We see the word “evangelical” all over social media and the news these days. But what does this word really mean? The word “Evangelical” comes from the Greek word “euanggelion” which means “Gospel” or “Good News.” The aim of Christians, including myself, is to spread the Good News of love, forgiveness and salvation in the name of Jesus Christ.

Sadly today, the word “evangelical” has taken on a negative meaning to many around the world, because people recognized as “evangelical” have supported a man for president who clearly does not represent the teachings of Jesus Christ. This man is known for his lies about winning the last election, when he was shown many times that he did not win. He is known for his lack of respect and demeaning language for others, both opponents and previous supporters.

The most dangerous aspect of this man’s words is his threats to take revenge on his opponents and concentrate power in himself. He is certainly not the kind of person we want as an example for young people or anyone to follow as leader of our beautiful and imperfect nation. It is very difficult to think of him as a person who represents America to the world. I am very familiar with the argument that God chooses imperfect leaders to aid God’s people, like Cyrus of Persia, who released the Israelites from captivity. This is used as an excuse for supporting the former president who lacks integrity and poses a great threat to American democracy. He shows his love of power by his admiration of autocrats and supposed “strong men.”

Christians may vote for whomever they like, but it certainly does not reflect well on “Evangelicals” that they have become a key part of the voting block for the former President. This man has been described as a defender of Christianity, just as many authority figures and rulers in the past have been. The connection of Christianity to governmental power has been one of the historical hindrances to the spread of the Gospel. In contrast, the founder of Christianity, Jesus Christ, walked away from claiming such power and did not urge his followers to seek such power.

Christians who carry the label “evangelical” discredit their witness to the world by their association with the former president with his great desire for personal power and his revengeful attitude. This may appeal to some “evangelicals” who feel disdain for today’s society, for those in the media, for those in science, in higher education, and especially by those they consider liberal Christians in churches. These “Evangelicals” like that the former president talks down those he considers an enemy. The main purpose of Christians in relation to those seeking office in the government should be to create and support a government that cares for the disadvantaged and marginal people in the nation and gives opportunities to the poor to receive a helping hand, so they can work through the tough times and have a better life. Sadly, so many “evangelicals” have spoken out against any programs or laws that would extend a helping hand. These “Evangelicals” have supported this guy in his isolationism as he opposes aiding our allies in maintaining their democracies.    

In the end, any message conveyed to the world, including the message of Christians, whether known as Evangelicals or not, must stand on its inherent power to change lives, not on the backing of any political power. The challenge for us carriers of this good news is to show its genuine spiritual transformative power by demonstrating that power in our own imperfect and flawed lives to benefit all people, communities and the world, especially those in need of lifting out of misery to a life of peace and joy. Our democracy gives freedom to all faiths to proclaim and demonstrate their messages. In today’s world, the challenge is to make the message truly Good News for all. ~OC

Advice….

Today’s a new day! As I continue to run this crazy beautiful health journey, I am given a lot of advice from well meaning people regarding my health and how I am living out my journey. Some of the advice comes from friends. Some from people who have heard about my story, but really don’t know my story. I am thankful for some of the advice and some I could live without. This journey is my story and I cannot live and be something or someone I am not. I am sick and my health is declining day by day. That’s just a fact. But I wasn’t created to live a dying life. So I will continue to live a life of purpose. I will live the life God created me to live. ~OC

A Night With Dementia and Parkinson’s

Good morning! I pray everyone is sleeping and will see this after a great night sleep.

I can tell tonight’s going to be one of the nights. I wrote the following to share what those sleepless, hallucination filled nights are like. I wrote the following to give you a glimpse into my life with Dementia and Parkinson’s on most nights. ~OC

A Night With Dementia and Parkinson’s:

When it gets deep in the night

Where time seems to stand still

I can hear my heart beat and my thoughts screaming and that’s not always a good thing

It’s going to be one of those nights

Where sleep is a distant dream

Sometimes the voices get loud

And the hallucinations seem so real, I have to remind myself they’re not legit, just a short circuit in my brain

But through it all, I stand tall

Not allowing all those voices and thoughts to become real

I will keep standing tall

Lifting up my prayers

to the One who created it all

I will keep fighting, refusing to fall

choosing to embrace faith over it all

I will focus on the prize

Not all the junk, this disease

tries to steal from my mind

I keep fighting, gettin off the canvas

I keep running towards the One who

clears the cobwebs and reminds me

I am His precious child

I will keep standing tall

Lifting up my prayers

to the One who created it all

I will keep fighting, refusing to fall

choosing to embrace faith over it all

I will continue to fight through the

night, all the negative thoughts

that keep me from counting sheep

and getting a good night sleep

I will keep standing tall

Lifting up my prayers

to the One who created it all

I will keep fighting, refusing to fall

choosing to embrace faith over it all

The giants who try to bring me

down at night, are no match for

the One who used a boy named David to bring down one of the biggest

giants of all

I will keep standing tall

Lifting up my prayers

to the One who created it all

I will keep fighting, refusing to fall

choosing to embrace faith over it all

It’s time to be Brave

It’s time to keep Overcoming

It’s time to be Fearless

I am ready to Battle

Refusing to back down

I will keep standing tall

Lifting up my prayers

to the One who created it all

I will keep fighting, refusing to fall

choosing to embrace faith over it all

I am focused on the mission

Not going to backdown

Not going to run away

Going to walk with the King

I will keep standing tall

Lifting up my prayers

to the One who created it all

I will keep fighting, refusing to fall

choosing to embrace faith over it all

As the night slowly creeps on

I will press into the promises

of my King, thankful they get me

through another night, time to be

fearless and pray through it all

I will keep standing tall

Lifting up my prayers

to the One who created it all

I will keep fighting, refusing to fall

choosing to embrace faith over it all

As the night moves on and

My thoughts begin to wonder

the adrenaline starts flowing

and God’s angels get moving

the morning light will soon come shining

So, I will keep standing tall

Lifting up my prayers

to the One who created it all

I will keep fighting, refusing to fall

choosing to embrace faith over it all

Embrace Your “Can’t”

Today’s a new day! I used to tell people that the word “Can’t” should never be uttered from their mouth. I used to use the popular phrases “Just Do It,” and “Sleep when you’re dead.” Yes, I was that guy.

In today’s world, we are pushed and even encouraged to take on more and more, and we are seen as weak or strange when we are unable, or do not want to do so.

For me, this mindset came from my passion for life. It was fueled by a deep craving to achieve everything in life. It’s what made me intense, driven, competitive, and hardworking. It was who I was. Until I wasn’t.

As I have walked this crazy beautiful health journey for 22 years, it took me some time to come to terms with my “can’t.” Early on in my health journey, I constantly pushed through truly excruciating symptoms, like level 10 pain, exhaustion from weeks of no sleep, and unrelenting crushing fatigue even when I did sleep. I pulled myself together through constant life-threatening health issues, and participated in physical activities that I had no business attempting with a smile on my face (like running multiple marathons with no training) – while inside my body, my mind, and my spirit were dying a slow and agonizing death. Yet I still didn’t listen.

Why am I sharing all of this with you? Because I believe I could have spared my body a lot of pain and damage, my mind a lot of anxiety, if I had just learned to accept, or even embraced my “can’t” earlier in my health journey. I would have also spared my bride from a lot of worrying.

I want to share a few lessons I have learned along the way. I hope you take the time to read and reflect on them.

1). “Can’t” Is Not Weakness:

The biggest hurdle when it comes to dealing with “can’t” is intimately understanding on a heart-knowledge level that being unable to do certain things because of your illness does not mean you are weak, lazy, unintelligent, or unmotivated. This is where I was stuck for a long time. I had believed my whole life that if I couldn’t perform at peak levels, it must be my fault and that I just wasn’t trying hard enough. So, when my illness started to seriously affect my work quality in the career I had worked so hard to achieve, I compared myself to those around me, and told myself that I was just “too stupid” or “lazy” to do the job. At times I listened to the lies that I was worthless.

Hello Over-Achiever. I want to talk to you directly now. You burn-the-candle-at-both-ends doers. You know-you-can-conquer-the-world types. You did not choose your health issues. You didn’t work hard your whole life just to become a “lazy” and “unmotivated” on a whim. That’s not you and that’s not what is happening in your life. It’s not a matter of motivation, drive, desire, or ambition. It’s not a matter of not trying hard enough. It’s a matter of your body revolting against the true self of your mind and spirit. It’s a matter of your earthly vessel failing the real and eternal you that lives inside. The true and eternal you is still the same as it has always been: driven, motivated, intelligent, and strong. Once you accept this and understand the gulf between the two “yous,” you can take strides to get your body back on board so that a more collected, collective you can get back to truly living.

Accepting your “can’t” isn’t weakness; it’s actually strength. It means that you are strong enough to look your health challenge squarely in the face and get after the business of Overcoming. It means that you are brave enough to accept that your life right now must take an unexpected detour. It means that you are willing to admit your physical “can’t” so that you can open your mind and spirit to what you can and must do to regain your health. And the only way you can allow your focus to properly shift to healing is to first completely embrace your illness and your “can’t.”

2. “Can’t” Allows Healing:

Sadly, it took me several years to embrace this truth. I am encouraging you not to wait. Because if you don’t fully believe and fully accept that you are sick, you will keep running the rat race. But if you look deep in your heart, listen to your body, and know in truth that you are sick, then you can accept it. Embrace it.

I cannot stress this enough. Because until you wholly feel the weight of it, until you embrace it and believe it, you can’t get truly angry about what your illness is stealing from you. And until you get angry you cannot mentally, emotionally and spiritually prepare for the battle ahead of obtaining a full and accurate diagnosis, proper treatment, and hopefully better health. This is how coming to terms with your “can’t” sets you on the path to healing.

If you are in the early stages of your health journey, this next part may shock you. The medical system (at least in the United States) will not completely facilitate you regaining your health. Not at all. Unless you are exceptionally fortunate, your journey is not going to look like: get sick, see a doctor, get better. No, if you have a chronic or complex illness, generally speaking you need to prepare for battle. You need to arm yourself with knowledge and with the mental fortitude to be your own advocate. You need to prepare to fight for your life. You need to push for answers and drive the process. No one else will or can do it for you.

This is why embracing your “can’t” is so important. Because when you truly realize what you “can’t,” you get really, really angry at this invisible thief of life that is your illness. I don’t mean “bitter” angry, I mean “motivated and determined” angry. And you’re going to need that determination to drive the (sometimes grueling) battle that lies before you. And that drive to press forward in the battle is the only thing that will lead you to wellness.

It’s all you, Warrior! So get really angry at your “can’t” and resolve in your mind to do everything you humanly can to regain your health.

3. “Can’t” might be forever (But it’s not your identity): One of the more valuable pieces of advice I can share with you is that your “can’t” might be forever. That can be a difficult pill to swallow. But your “can’t “ does not need to become your identity. My life is much more than all the “limitations” I face on a daily basis. My life is full of hope, adventures and overcoming all the bumps in the road.

4. “Can’t” Makes Room for “Can”

Another critically important thing that coming to terms with your “can’t” does is that it makes room in your life for your “can.” Some of your “cans” may look something like:

1). I can make healthy, life-giving meals for myself to help my body heal.

2). I can research my illness for myself so that I have the knowledge to ask good questions at my appointments and to make educated treatment decisions.

3). I can maintain a positive attitude, despite how I feel.

4). I can make time for self-care activities that will help my body.

5). I can surround myself with people who encourage me in my health journey.

6). I can purposefully structure my life so that it supports wellness and healing.

7). Even though I couldn’t yesterday, today I can go for a short walk or bike ride.

8). This morning, I can rise early and sit peacefully to watch the sun rise

9). Right now, I can make positive choices to help with the symptoms I’m experiencing.

10). Don’t get hung up on committing to daily schedules of “cans” or expecting some type of minimum performance of “cans.” While it’s absolutely important to have bigger, more overarching “can” goals, embrace what you can do today and accept that tomorrow’s “cans” may look very different based on your health. Every day is a new opportunity to discover and put into practice the things you can do.

Here are some practical steps that can be used to work towards peace with your current “can’t:”

1. Pray

2. Journal

3. Reach out to family/friends

4. Reach out for professional help if needed

Coming to terms with your “can’t” may be difficult, but it’s so important and it opens the way for healing and wellness to come in time. You are unbelievably strong to live with your symptoms day in and day out and even stronger to accept and face such a challenge head on. Be encouraged that your “can’t” is just for right now and that nothing we face on this side of Heaven is forever. ~OC

Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal. ~2 Corinthians 4:16-18

Embrace the Detours

Good Morning! Today’s a new day! This time 21 years ago, I was arriving at the hospital to have a golfball sized cancerous tumor removed from my chest. A lot of memories from that day. My mom and mom-in-love coming to take care of Laura and I. Family/friends hanging out at the hospital to pray and support Laura. The power going out at the hospital right before surgery. God giving me a vision during surgery that I would start running marathons and sharing my story (I was blessed to run 350 marathons). The doctor telling me that the team had gotten all of the tumor. Jesus was in the mist of the whole thing. Thankful He has blessed me with 21 more adventurous crazy beautiful years. Twenty-One years ago today the Today’s A New Day! writings started. As I continue walking through health issues, I encourage everyone to embrace the detours of life. ~OC

Go Fly!

Today’s a new day! As I continue to deal with the effects of Lewy Body Dementia, sometimes my thoughts take me to a place that doesn’t always make sense. But sometimes, I am blessed with a word, thought or phrase that might not make sense to me at the time, but as I unpack it and begin to pray about it, all the sudden things become a bit more clear to me. Let me give you an example.

A few weeks ago, I saw a butterfly fly by me as I was sitting on my balcony. Like most of you, I have seen hundreds of butterflies in my lifetime. But that day, God impressed upon me to type the word butterfly down in my notes. So I did and did not think anymore about it until a few days ago. The following is what God showed me and I thought I would share it with you.

I often wonder if a butterfly ever goes back to thinking like a caterpillar once it has undergone chrysalis. Does the butterfly ever think, “Man, I had it so good when I had to crawl everywhere and ate leaves?” Or does the butterfly look to its new life where it can fly, go places faster and eat the sweet pollen from flowers and think I will never go back to crawling? I’m guessing the latter because I have never seen a butterfly eat leaves or crawl around.

I wonder then why we often go back to our old ways of stinky thinking and our old ways of life once we have asked God into our lives. We have been set free from a life shackled and earth bound to a life of a high calling in Jesus. Scripture says that all things have become new and we are a new creation. We have to put away our old way of thinking.

In Ephesians 4:23, we read that we should let the spirit renew our thoughts and attitudes and to put on our new nature. That can be easier said than done when our old life keeps wanting to creep back in and disrupt our new life. Our old life wants to come back out and do things that it used to do before we accepted a new life in God

The following are a few things I believe we can do to help us live the life God has chosen just for us.

1). Change Our Environment:

We cannot change our thinking and our life until we change our environment. The butterfly has to flap its wings and leave the leaf so it can find new life. You and I are called to come out from among them and to be separate. If we never leave our old life, we will never be all that God intended us to be.

We have to find new places to hang out and feed ourselves good things. It can be hard to leave the old things behind, but if those things are holding us down, we have no choice. That could mean distancing ourselves from old friends who might want to pull us back into our old habits. We were meant to fly. So we need to spread our wings and trust God to help us navigate this new life.

2. Change What You Put in Your Mind:

The butterfly no longer eats what it used to. Its appetite changed and so did its taste. As a Christian, our spiritual appetite and tastes must change. We cannot walk through this new life eating, drinking and talking like our old selves. It is unhealthy for our new selves to continue consuming our old diet. Plus, I find as we start consuming new healthy things our bodies will not want the junk our bodies used to crave as much.

3. Embrace Your New Life:

Our new life should not only bring glory to God, but also light to others. When we see a caterpillar and a butterfly, we think two different things. The caterpillar is destructive to plants and is not very attractive. But the butterfly brings life to other plants and is beautiful. Our lives should have that kind of change.

We are called to live and walk in the light. We are to bring life to those around us and not destruction. People should be able to see a difference in our new lives. We should embrace who God has created us to be and strive to live the life we were meant to live. If we do that, we cannot help but to soar. So, go fly! ~OC

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