A Crazy Beautiful Health Journey: Finding Intimacy With Jesus In The Midst of Suffering

Today’s a new day! I want to share the following with you. I may share some more in the future.

As I continue on this unpredictable, yet beautiful health journey, I’m compelled to share the incredible ways Jesus is revealing Himself to me. Despite the increasing challenges, I’ve never felt closer to Him. His love is surrounding me in ways I never thought possible, and His sovereignty is a constant reminder that He’s in control. The pain and suffering may be intensifying, but I’m experiencing a peace that surpasses all understanding. It’s a peace that’s hard to put into words, but it’s a peace that’s anchored in the hope of eternity.

In the midst of this journey, Jesus is teaching me to see people beyond their masks and facades. He’s opening my eyes to the beauty of Scripture in ways I never thought possible. He’s giving me the privilege of sharing the Gospel with thousands of people, and He’s allowing me to have meaningful conversations with loved ones. These moments are priceless, and I wouldn’t trade them for anything. Yes, there have been sleepless nights, hospital stays, and surgeries, but Jesus has been with me every step of the way. He’s never forsaken me, and I’m grateful for the opportunity to serve Him and others. If I’m honest, I wouldn’t want a “do over” in life. The moments Jesus has allowed me to experience have been too precious, and I’m confident that everything I’m enduring is temporary. I’ll continue to fight the good fight, serve Him, and push forward, trusting that He’ll allow me to encourage at least one more person along the way.

Dear Jesus…continue to use me in this journey. ~OC

Fleeting, Yet Eternal

Good morning. As I continue to run this crazy beautiful health journey, God often wakes me up between 1 and 3 am, with words that could only come from Him.  Today, I want to share one of those words. I pray you will take the time to listen and reflect on these words. 

We’re but a vapor, a mist in the air,

A whispered promise, a moment to spare.

Our lives, a fragile, flickering flame,

A dance with eternity, a fleeting game.

We chase the world, we chase the night,

But Jesus says, “I am the light.”

We cling to things that wither fast,

But He says, “I am the vine that forever lasts.”

We’re but a breath, a heartbeat away,

From the unknown, the final day.

But Christ says, “Do not fear, I am near,

I am the resurrection, I am the one who wipes away your tears.”

Our lives, a fragile, fleeting thing,

But in Him, our souls take wing.

We’re rooted deep, our hope secure,

In the eternal love that Christ ensures.

So let us live, let us love, let us shine,

Reflecting the glory of the divine.

For in the end, it’s not what we own,

But the love of Christ that makes us whole. ~OC

A New Year

Today’s a new day! This new year arrived quietly for some, not with fireworks or fresh ambition, but with tired bones and a heart still heavy from all that was poured out in twenty-twenty-five. While the world seems busy reinventing itself, certain souls are simply trying to stand steady against the storms of life. Last year, left invisible footprints — of effort, of giving, of showing up, of holding everything together when it mattered most. And when the noise finally fades, what remains is often an exhaustion no New Year can reset or erase.

There is a kind of pressure in the air the first month of any new year. There is an unspoken demand to rise, improve, conquer, to shine. But not all of us begin from the same place. Some of us step into this new year carrying the weight of overextended emotions, stretched resources, and the quiet ache of having given more than we had. The body remembers. The heart remembers. And sometimes all it asks for is stillness. For a chance to rest.

As we start this new year, your spirit may feel low. That does not mean you are broken — it means you are human and deeply alive. Deeply loved.

Let yourself rest in the stillness for a while. Let the world rush ahead if it must. You are allowed to pause. You are allowed to heal quietly. You are allowed to face your mountain one small step at a time, or simply sit beside it and gather strength. You do not need to be anything more than you are in this moment.

And that is enough. ~OC

Beloved

Today’s a new day! Have you ever noticed the word Beloved is just the words Be Loved? Today, sit in that truth. ~OC

The Journey

Today’s a new day! Reflecting on my health journey, I’m reminded of the twists and turns that have shaped me into who I am today. It’s been a winding road, filled with ups and downs, but through it all, I’ve felt God’s presence guiding me every step of the way. The rough roads have taught me resilience, the detours have shown me new paths, and the smooth roads have given me peace. I’m grateful for this journey, and I trust that God will continue to lead me forward, even when the road ahead is uncertain. ~OC

The Journey

Today’s a new day! Reflecting on my health journey, I’m reminded of the twists and turns that have shaped me into who I am today. It’s been a winding road, filled with ups and downs, but through it all, I’ve felt God’s presence guiding me every step of the way. The rough roads have taught me resilience, the detours have shown me new paths, and the smooth roads have given me peace. I’m grateful for this journey, and I trust that God will continue to lead me forward, even when the road ahead is uncertain. ~OC

Finding Purpose in the Storm

Today’s a new day! As I sit in this hospital room, surrounded by beeping machines and the business of staff, I am reminded that my purpose extends far beyond my physical body. In the midst of uncertainty and pain, I pray: Dear God, use me for your purpose during this hospital stay and every day as I continue to fight through this crazy beautiful health journey.

For me it’s a prayer of surrender, of trust, and of faith. It’s a reminder that even in the darkest moments, God’s love and patience remain unfailing.

Embracing the Unknown:

When we’re faced with the challenges of life, it’s easy to feel like our lives are spinning out of control. But what if we flipped that perspective? What if this season of uncertainty is an opportunity to discover a deeper sense of God’s purpose for our lives?

For those walking through their own “crazy beautiful journey,” I encourage you to pray the following: Dear God, use me for your purpose… I am thankful for your unfailing love and patience with me.

Practical Ways to Find Purpose:

1. Prayer and Reflection: Take time each day to connect with God. Reflect on your experiences, and ask Him to reveal His purpose for your life.

2. Support Loved Ones:Reach out to family and friends, and let them know you’re thinking of them. Sometimes, a simple text, handwritten note or phone call can bring joy to someone’s day.

3. Share Your Story: Consider sharing your journey on social media, a blog or write a book. Your story might encourage others who are facing similar challenges.

4. Find Ways to Serve: Even in a hospital room, you can serve others. Share words of encouragement with the staff, pray for the staff and others walking down the hall. Show kindness and respect to everyone you encounter today.

A Prayer of Thanksgiving:

As I continue to navigate through this health journey, I am grateful for God’s unfailing love and patience. I’m thankful for a loving and supportive bride, I am thankful for my medical team that’s been taking care of me for many years, I am blessed by the the loved ones who pray and support me, and for the opportunities to grow in my faith.

If you happen to be reading this post and are facing your own challenges, know that you’re not alone. You’re loved, you’re valued, and you’re part of a larger story.

A Prayer for Today:

Dear Jesus, use us for your purpose during the stressful times of life and every day as we continue to navigate through this journey called life. We’re thankful for your unfailing love and patience with us. Amen

Challenge of the Day:

How can you use your life experiences, past and present to bless and help others today? ~OC

2AM Thoughts

Today’s a new day! It’s 2am on this Tuesday morning. I have been unable to fall asleep. It’s just one of those crazy nights with Parkinson’s and Dementia. So I have walked around the house more times than I can remember. I have watched several YouTube videos to pass the time. Finally, I have decided to share my experience and thoughts with you. Writing is still something my brain allows me to do on occasion. Lately, God has filled my brain with many thoughts. I feel an urgency to write as much as possible before I can no longer do that. Tonight, my brain is extra active. That’s not always a good thing.

I have good days and bad days as I navigate through the multiple health issues that are slowly robbing me of so much. On a bad day, I cannot do anything at all. My energy levels are low and I feel fatigued. The only way I can describe it is that I feel like I have run a hundred marathons in a very short amount of time. I feel totally drained.

But I have lots of coping strategies. I choose to use those days to pray a lot more. I choose to reach out to friends even though I know, I will not hear back from the majority of them.

I think it’s important to have something that gives you a sense of purpose in life. I try to share my journey to help encourage others walking through their own life struggles. If I can help just one other person, that’s enough for me.

When most people think about neurological issues, especially dementia they think it’s all about memory loss. But I have cognitive issues also- trying to figure things out can be difficult and frustrating. Also too many voices at one time can be overwhelming. I get frustrated and anxious if I am struggling to follow the conversation. I also deal with a lot of rigidity and pain, which creates so many issues.

Over the years I have lost many friends as I have walked through this crazy beautiful health journey. I believe a lot of people have a difficult time talking to and relating to me. But I am still me. My story has just changed a little. A lot of times when Laura and I are around other people, they will address questions to her, not me. My prayer is that people would see the person, not the disease.

But I am blessed that a few friends have decided to stick around and not jump ship. I hold those friendships very close to my heart.

I choose to embrace each moment of life. I try to share my love and thoughts now. Not waiting for the perfect moment. Because the perfect moment is today. Laura and I do not wait for the perfect moment to buy that gift or take that trip. Now is the perfect time. Now is the perfect time to take care of future arrangements. Which we have done. I did not want Laura dealing with all of that on her own.

It also means we’ve had really indepth chats about what quality of life really looks like. Everyone has to figure that out for themselves and their loved ones.

Life looks different every day. What I could do yesterday, might be more difficult to accomplish today. I continue to live my life with my cup overflowing. I try not to beat myself up too much when I cannot do something anymore. Because there are still many things I can do. So today, I choose to embrace the now and what I can accomplish today. ~OC

Guiding Light

Today’s a new day!

Our hope in Jesus, a beacon of light in our darkest moments,

With every step, with every misstep

He lifts us up, standing tall

In His love, we find our way

Through trials and tribulations each day

With faith as our guiding light

We navigate through life’s struggles

Jesus, is our Savior, and friend

Our hope in Him will never end

May His presence be our guiding light

Leading us step by step. ~OC

Marriage Vows

Today’s a new day! On this date twenty-six years ago, I had the honor of marrying my bride Laura. When we shared our vows on that Friday night we had no idea that the majority of our marriage would center around my health issues.

Like every newlyweds, we thought The big stuff, the hard illnesses, would come later in life. That definitely has not been part of our story.

I was taken by surprise when life-threatening illness hit our home – and even more surprised when it happened to me. Without any warning signs, I began experiencing severe fatigue and muscle weakness. Within a few months and after a number of tests, Laura and I were told I had several forms of crippling arthritis. Only to find out a year later, I was actually dealing with a very rare type of cancer. (only 2% of the population deals with this type of cancer). We had no idea how that diagnosis and then multiple life threatening diseases would become part of our everyday lives.

My wife Laura and I were still in our honeymoon season of our marriage. This kind of thing wasn’t supposed to happen. I felt helpless as Laura cared for me in addition to working her full-time job and working on her masters degree. While I was in the hospital, she stayed by my side, trying to work and get some rest in some uncomfortable chairs. Watching her husband struggle to just breathe at times.

Over the years, Laura has taken on most of the she household responsibilities. She makes meals, vacuums and chauffeurs me to multiple medical appointments. She does this all with a smile and encouraging words.

I was and still am blown away by how Laura continues to care for me all these years later. At times, I have found myself frustrated that I cannot do more to make her daily grind a little easier. Her kindness continues to overwhelm me.

As I reflect on this health journey we continue to walk together, it gives me a deeper appreciation of God’s purpose for marriage. Sacrifice is lived out in homes around the world as couples serve each other through illness, financial crisis and family issues. No matter their story, husbands and wives face opportunities to love without seeking anything in return. Why? So they can experience God’s heart through one another and live His love for one another.

Every opportunity we have to serve our spouse gives us the chance to live out the love story God crafted for us. He gave His Son so that we could have life. There was nothing we could give in return – nothing we could do to pay Him back. And yet He chose to give anyway.

Laura continues to live out her commitment to stand by me in sickness. She has more than fulfilled her marital vows – she has become a living illustration of God’s love. ~OC

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