Simply Breathe

Today’s a new day! Once again, I am sharing a post that has taken me weeks to write. Maybe years if I am being truly honest. I hope it makes you think as you walk through this journey called life.

What if we truly lived like suffering and death wasn’t something to be feared? What if we could talk about suffering and dying as naturally as birth and living? What if there was a liberty in accepting the limitations of our human existence on this earth and freedom in embracing what it means to live and to die well?

These are the thoughts and ideas that I have been exploring since my crazy beautiful health journey started so many years ago. I have become fascinated with the language and narrative around a chronic or terminal diagnosis. The longer I travel this journey, the more I realize there is more to this race than simply surviving.

Sadly, there is a false narrative that suffering and death is somehow a sign of not having enough faith or somehow someone has failed in some way. This is simply not true. We seem to have lost the sense of the precious and fragile nature of life.

My own health journey has brought many hospital stays, major surgeries and years of treatments. But as time marches by, I am finding that I am less inclined to easily consent to the next treatment option that’s offered. Not because I don’t want to live, but because I want to weigh carefully the cost and the benefits. Living longer is not enough for me anymore. I strive to live well.

I have learned the hard way how long it can take to recover from a major surgery or treatment and how exhausting and stressful it can be for my family and friends. Also how long it is before I recover a sense of myself. A surgery or treatment that is nothing more than a bandaid is not a choice I want to put myself or my loved ones through anymore.

So, my goal is to continue grabbing on to hope, happiness and wellbeing, even as my body continues to decline. Doing everything I can to feel well, live life with purpose and continue to live life as myself and not some number on a medical chart. To take control of the decisions around my medical care, to equally weigh both the quality and quantity of life. To continue challenging the false beliefs around suffering and dying as I continue to run this beautiful race.

Some people reading this will say that I am being negative, but I have found complete liberty and joy in resisting the narratives on suffering. For too long our society has hidden away the realities of suffering and refused to discuss it. Our fragility and humanity seems to be denied as we continue to seek medically enabled immortality.  My heart breaks to see so many people spending their days chasing after miracle cures rather than enjoying the miracle of the life they still have.

I do not fear the end life, but I do fear losing my identity to the different health issues that are trying to control every aspect of my life. I will not give in or give up. I am choosing instead to laugh, read a good book, listen to some great music and make amazing memories with my loved ones. To simply breathe and embrace life.

I have found peace in this acceptance that allows me to have open and honest conversations about life and how that currently looks for me. I am grateful that as I live my best days in the best way possible, I am able to have real conversations about this journey I am traveling. Wherever this health journey leads me, will be an opportunity for me to share my faith, to laugh with loved ones and to hopefully encourage someone along the way. One thing this journey will not be about is failure or defeat. No, this journey will be filled with embracing life and everything that comes with it. A choice to live life with purpose and meaning. I pray you will join me on this adventure and strive to live the amazing life set before you. ~OC

Along the Journey

Today’s a new day! As I continue to run this crazy beautiful health journey, I want to continue sharing some wisdom and life lessons with you. I pray they will challenge and encourage at least one person.

Twenty-three years ago, I sat in a sterile doctors office as the doctor shared I would probably be dead within five years. As I have continued running this crazy beautiful health journey, I have heard similar predictions from many doctors. Today as I write these words, my prognosis is not great. But as I write these words, I laugh a little because God continues to let me thrive in life despite the poor diagnosis. Throughout the past twenty-three years, God has answered the prayers of many. He continues to give me a reprieve. God continues to work miracles.

During the past twenty-three years of this crazy beautiful health journey, I have learned many lessons. I thought I would share a few.

I have learned to not fear death, but anticipate it with joy.

I love the words of the Apostle Paul,

“As it is my eager expectation and hope that I will not be at all ashamed, but that with full courage now as always Christ will be honored in my body, whether by life or by death. For to me to live is Christ, and to die is gain.” ~Philippians 1:20-21

I believe most Christians do not fear going to be with Jesus. It’s the pain and suffering that often precedes death that makes us a little uneasy. But I think as Christians, we tend to look at it the wrong way. Most of us think that we are in the land of the living en route to the land of the dying. But nothing could be farther from the truth. If we know Jesus, we are in the land of the dying traveling to the land of the living. I have experienced amazing peace during my hardest days. I have felt contentment and surrender wash over me.

Be brave. When I open my eyes each morning, I hear God singing these words to my heart.

“The Lord is my light and my salvation; whom shall I fear? The Lord is the stronghold of my life; of whom shall I be afraid?” ~Psalm 27:1

Most days , I deal with a lot of pain, weakness, nausea and horrible headaches. But each morning, I make the choice to get up and look forward to all that God has planned for me that day. Now that doesn’t mean I do not have rough days. I definitely do. That is why I always try to share the good and not so good parts of my journey. But I look at others who are suffering more than me and see how they do not complain and are living life with a beautiful sense of joy. I figure if they can face the pain with faith, so can I.

Let God’s Word empower you.

Speak it. Pray it. Sing it. Envision it. The more you allow God’s word to feed your soul, the stronger your spirit becomes. When I am feeling too weak to do anything, I open God’s word or listen to praise music to help me through those tough moments.

I love what the psalmist wrote in Psalm 119:92-93:

“If your law had not been my delight, I would have perished in my affliction. I will never forget your precepts, for by them you have given me life.” ~Psalm 119:92-93

Remember. Be grateful. Be glad. 

As I have faced this health journey, Laura and I have decided to continue traveling and making precious memories. On the really tough days, I look at those pictures and re-live those beautiful moments. I feel so blessed to connect with friends old and new, with family, with former classmates and everyone I have met on this amazing life journey God continues to let me live. All I can do is smile. Well, I cannot really smile that well these days, but I try.

The Apostle Paul shared the following words while sitting in a prison cell:

“For what thanksgiving can we return to God for you, for all the joy that we feel for your sake before our God,” ~1 Thessalonians 3:9

Embrace each precious moment. 

I have learned to not leave any words unsaid. Hug the people you love (or fist bump). To share and give freely. Leverage your time and energy for God’s purpose.

Over the past twenty-three years, I have faced death many, many times, but God allows me to keep standing. During this journey, I have learned what really matters in life: my relationship with God, my family/friends, serving others and not waiting for the perfect time to make amazing memories.

“So we do not lose heart. Though our outer self is wasting away, our inner self is being renewed day by day. For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison, as we look not to the things that are seen but to the things that are unseen. For the things that are seen are transient, but the things that are unseen are eternal.” ~2 Corinthians 4:16-18

When life gets dark, the glory of God shines brighter. I am not afraid of the valley of the shadow of death, because He is with me….closer than I could have ever imagined! ~OC

Happiness

Today’s a new day! As I continue to walk out this crazy beautiful health journey, I want to continue sharing some wisdom and life lessons with you. I pray they will bring you encouragement.

Today’s Lesson: Happiness

Happiness is something you decide on ahead of time. It is a decision I make every morning when I wake up. I have a choice; I can spend the day recounting the difficulty I have with the parts of my body that no longer work, or be thankful for the ones that do. Each day is a gift, and as long as my eyes open, I have breath in my lungs, I will focus on the new day and all of the opportunities it presents.

Happiness is like a bank account. You withdraw from what you’ve put in. So, my advice to you would be to deposit a lot of happiness in the bank account of life.

Here are five simple steps to living out happiness:

1. Free your heart and mind from hatred.

2. Free your heart and mind from unnecessary worries.

3. Love and Live simply.

4. Live out your dreams and purpose.

5. Give more than you take.

Have a great day filled with love and happiness. ~OC

Happiness Giver

Today’s a new day! I believe we all want our lives to be focused on things that matter. Deep down we all understand that constantly pursuing our own happiness leaves us with little fulfillment in life. And we also know that when we help others, we experience happiness in a real way. Serving others just makes us feel good.

We thrive in community and I believe part of our happiness is directly related to the strength of our relationships. That’s why serving others and giving with joy is one of the secrets of experiencing true happiness in this life.

At the end of our lives do we really want to be known for our book collection (I really enjoy books) or how great we were at sports or the arts? No, I think we will want to be remembered for how we served others and for being a happiness giver.

That’s why now is the time to break through our fears and think about how we can use our gifts, talents and skills to help serve others in our communities and beyond. ~OC

Joy Filled Life

Today’s a new day! I think most people want to live a positive, joy filled life. I know I do. Here are four things I believe can help us achieve that goal.

*Fill our hearts and minds with positive thoughts. Let’s refuse to allow our hearts and minds to be filled with negativity.

*Fill our speech with positive words. Let’s guard what comes out of our mouths and what we share on social media.

*Fill our lives with positive places and situations. Where are you spending your time?

*Fill our lives with positive, joy filled people. Remember, we get to choose who we allow into our lives.

I hope you will spend some time reflecting on these four points today. I pray your day is filled with amazing moments and God’s blessings. ~OC

Starting a Campaign…Not a Political One

Today’s a new day! As I scroll through social media and watch the news, I am heartbroken about all the division I see in our world. So as I was praying and reflecting this morning, I thought how can I make the world a better and kinder place? So here is the idea that came to my mind. Are you ready?

Today, Saturday October 19, 2024, I am starting a campaign (no, not a political campaign), that I hope brings some smiles and happiness to a broken world. The campaign is called #OCencouragedmeto. I am encouraging everyone to perform a simple act of kindness for someone and share it on your social media pages or on the Facebook and Instagram pages OCencouragedmeto using the hashtag #OCencouragedmeto. These simple act of kindness could be an encouraging sticky note left on your coworkers desk, buying coffee or lunch for the person in the line behind you. It doesn’t have to be anything big. Just a simple act of love and kindness towards someone else, using the hashtag #OCencouragedmeto.

As I continue running this crazy beautiful health journey, I want to spend whatever time I have left encouraging people. I hope you will join me on this fun, let’s make someone smile adventure. ~OC

Joy!

Today’s a new day! Being chronically ill comes with a lot of ups and downs and a wide range of emotions. These emotions can be so strong and overwhelming at times. As you walk through the different stages of being chronically ill, you are faced with a lot of situations that you could never prepare for and those moments can make you feel like you’re on an emotional roller coaster. Physical health affects your mental, emotional and spiritual health more than people would think.

When you are chronically ill, your life becomes a vicious cycle of intense symptoms and flares. This can leave you feeling completely hopeless and lost at times. But even at moments when it feels impossible to find joy, it is possible, even on the darkest days. Some days you have to search a little harder for that joy but it is always there. Joy looks different to everyone. As a chronic illness warrior it is so important that you surround yourself with joy because it is easy to lose hope of experiencing pure joy again.

I find joy in many ways in my life and I really make an effort to make those things a part of my daily living. One of the main ways that I find joy/happiness is by leaning into my faith. My faith has allowed me to overcome a lot of tough moments in this journey. I also surround myself with the love and support of my family and the few friends who have decided to stay in the boat with me. A supportive group of people have the ability to turn my bad days into great days. I am so thankful for each of them because they not only provide peace/joy, they also give me so much hope. I also find joy and happiness in doing things I love such as: writing,listening to music and making memories with my bride.

The past month has been filled with more tough news regarding my health. Looking back on the past month, joy has still there even in the darkest days. Sometimes during hard times things become so overwhelming that we forget that even then we can still find joy in the little things. It is okay to have bad days but it is so important that everyday we challenge ourselves to stop and find happiness and joy. Joy always outweighs the bad and it is so important that we remind ourselves of that. Have a great day! ~OC

A Gift

Today’s a new day! Imagine, you’re given a gift. When you take a peak inside, it seems more like a curse than a gift. This gift is unfortunately going to cause pain and loss. But this gift is also going to radically change your life and the lives around you. This gift is going to bring family and friends together. You will reconnect with friends and acquaintances that you haven’t heard from in years.

This gift will redefine your faith and your purpose in life. The small things in life will mean more to you. Conversations with friends and strangers will take on a new whole meaning. You will not feel rushed. That next meeting can wait. You will form new friendships that will change your life.

You will be challenged. Oh, the challenges will be real. But you will also be inspired, motivated and humbled. Peace, happiness and love will take on a whole new meaning.

By know, your mind is running in circles trying to figure out this gift. You might be thinking where can I get this incredible gift? Can I order it off of Amazon? Is there a waiting list? Probably not. This gift came to me twenty-two years ago. You cannot really wrap it up in a box and make it look pretty. The gift I am talking about is several life threatening health issues. This gift keeps on taking my life.

And while I am maintaining at this time, I would not wish this gift for you or anyone. I doubt you would ever want this gift. But I personally would never return this gift. It has profoundly changed my life for the better. I would probably need several days to share all the beautiful lessons this gift has given me.

So the next time you face something that’s unwanted, unexpected and uncertain, take a moment to consider it might just be a gift. ~OC

Watch More Cartoons

Today’s a new day! We’ve all been there – a newly formed friendship quickly crumbles at the mention of the 2024 election.

So as a white Christian man in America who does not support the former president, when some people in the Christian community find that out about me, I often hear the following “How could I be such a hater?” or “Are you really a Christian?”

This election year has been rough for all of us – and we’ve all failed miserably in some way.
We may disagree about the future of America and think it can’t get any crazier, but our country has been through some tough times.

In 1804 Vice President Aaron Burr fatally shot long-time political opponent Alexander Hamilton in a duel. Of course we got a great musical out of that incident, but I am sure they couldn’t see that back in 1804. Do you now have the music of Hamilton in your head? I do.

Or that the election in 1864 occurred right after 620,000 individuals were killed in the Civil War and an entire half of the country had to put together the pieces of their lives.

I have taken the time and compiled what I think are a few helpful tips on how to survive the 2024 election.

1). Do your best to keep relationships over politics. Your family and friends are worth more than your opinions.

Now if that person is spouting hate filled nonsense, then maybe you just block them during this season or choose to have a heart to heart conversation with them.

2). Be a good listener. Sometimes wisdom is best shown with a closed mouth and open ears.

Everyone loves a good listener, and showing you’re willing to listen builds relationships and you might learn a thing or two.

Even better is being an informed listener. Do your homework so you can be an active listener and give a intelligent, well thought out answer when asked a question.

3). Try to not take attacks personally.
When someone posts a negative video about your candidate, it’s not an attack on you. Don’t be ashamed of your beliefs. And please don’t attack people personally for who they’re voting for. That can be a tough one.

4). Admit when you’re wrong.
There are no better words in the English language – better yet, election season – than, “I’m sorry – please forgive me.” Seriously.

Also, it’s okay if you don’t know the exact bill your candidate supported 20 years ago, and that’s a great chance for further conversation — after the fact.

5). Don’t lose your soul.
Take a step back. Breathe. And ultimately be yourself. Yes, you might get into some heated debates. You might ultimately lose friends. You might even do something you regret this election cycle. But that’s okay. Learn from it and don’t beat yourself up over it.

That’s the beauty of a democratic republic – it’s messy and it requires our participation.

As of today, there aren’t any perfect candidates or political parties, so this one is pretty easy in theory, but can be hard in practice.

Be active, let your voice be heard, and do not be ashamed, but remember there is more to life than politics.

True hope and change are found in the Lion of Judah, not the Democratic donkey or the Republican elephant.

6). Rest up and have fun.
Get away from it all. Turn off the TV. Shut the laptop. Hang up the phone.

Don’t take yourself too seriously.
Share some smiles and laughter:

And watch more cartoons. That makes everything better. 

I hope these make you laugh a little and think. This upcoming election is very important and we all need to be informed voters. There are some major issues that need to be addressed. But do not allow this election season to steal your happiness. Go watch some cartoons! ~OC

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