3AM

Some mornings when I wake up early, I feel God using that time in an amazing way. But I have to be honest, some days those early mornings are tough. Today is one of those days. Let me share an early morning with Parkinson’s and dementia.

Today’s a new day! So it’s 3am and my brain is fully awake
I have been up since before 1am, but who’s counting? I am! Some days I wonder how my brain knows it’s 3am or earlier
Some days I wonder if my brain and I are on the same page

Oh, all the voices and noises
It can be a little scary, but I am thankful I haven’t gone a little insane

I think about my 3am folks going through the same, I wish I could reach out and lend each a helping hand

This early morning I look up to the sky
And sometimes wonder why my brain is so different
Some mornings I just want to cry
I wish I could just open my brain and hit the reset button, but that’s just a dream

On these crazy mornings, I wish it was just a phase
But I been running this race for too long for it to just be a phase
But a brother can still dream
Oh, wait a second you have to sleep to have a dream
There will be no more dreaming on this morning

All the voices and noises
It’s crazy, and I am thankful I haven’t gone mad
Thankful the voices don’t call me to danger
I wonder who’s up at 3am and would not freak if I rang them?

So at 3 am I go out on the balcony
And I talk to God, thank goodness He always takes my call
It’s 3am am I look up and pray

On mornings like this, I do not feel like anyone else

I feel like a stranger

It’s 3 am, once again
Talking to God because He always answers when I call
He reminds me that I am not like anyone else
That I am unique and wonderfully made,
That gives me some peace
I bet God gets a lot of calls at 3am
That gives me comfort as I look out over the night sky and I pray. ~OC

Faith Over Fear

Today’s a new day! The last few weeks have been a bit overwhelming for me. Dealing with multiple health issues and a new life changing diagnosis. In the midst of all the challenges, it would be easy to get discouraged….or stressed out….or worried….or afraid.

But the Bible has something to say about times like these – and as you might guess, it gives us some tools for overcoming the storms of life.

When life gets discouraging, we can look at the story of the Apostle Paul in the book of Acts and hopefully his trial will lift us out of any discouragement or fear that we might be walking through.

Paul knew what it was like to be in a storm – both literally and figuratively. He had been stoned and left for dead, whipped repeatedly for preaching the Gospel, was endlessly persecuted and experienced more than one setback.

One of those setbacks happened in Acts 27, when he was a prisoner being transported to Rome for trial. It was the wrong time of the year weather-wise for this trip, and Paul even prophesied to them, saying, “Men, I perceive that this voyage will end with disaster and much loss, not only of the cargo and ship, but also our lives” (Acts 27:10). But the captain of the ship decided to go anyway, and they sailed right into a major storm.

The Bible says they went days and days without seeing the sun or stars. For weeks they were tossed and slammed by the raging seas. Just reading through this story makes me a little queasy. In verse 20, we read that after so many days, all hope – even among these veteran sailors – was lost.

Have you ever been in a position where all hope seemed lost? Where despair and hopelessness got the best of you? That can be a devastating place to be. And the Apostle Paul was there because of the stubbornness of the crew. He had warned them about making the trip, but they went anyway.

But then, Paul stood up in the midst of that dark, hopeless situation and shouts, “Be of good cheer!”Unbelievable!

“Yet now I urge you to take heart, for there will be no loss of life among you, but only of the ship. For this very night there stood before me an angel of the God to whom I belong and whom I worship, and he said, ‘Do not be afraid, Paul; you must stand before Caesar. And behold, God has granted you all those who sail with you.’ So take heart, men, for I have faith in God that it will be exactly as I have been told.”
‭‭Acts‬ ‭27‬:‭22‬-‭25‬ ‭

What a crazy thing to say to people in the midst of a hopeless situation – “cheer up!” But Paul had hope where there was no hope. He knew he belonged to God. He heard the word of the Lord (v. 23) and knew he had the victory.

In the same way, we also have the word of the Lord — we have the Bible. We can do what Paul did in the midst of the storm – look to the word of God and cheer up.

The Apostle Paul chose to believe in the word of God more than he believed in the raging storm. Faith came by hearing, meditating on and remembering the word. We can do that today. For starters, read and meditate on (Mark 9:23, John 10:10, Philippians 4:6, 7).

When we do what the Apostle Paul did – focus in on God’s word in the midst of the storm, then faith comes, and we can see beyond the storm. We can imagine life beyond the dark clouds. We can use our storms of life to encourage everyone around us.

Today, I want to encourage you as you walk through the storms of life, do like the Apostle Paul – declare Faith over Fear. Today, be of good cheer! God wants us to be healed, have our needs met, to overcome the world and have peace. All things are possible to them that believe. Lean on those promises.

Today, as you walk through the storms of life, I pray Romans 15:13 over you: “May the God of hope fill you with all joy and peace in believing, so that by the power of the Holy Spirit you may abound in hope.” Amen. ~OC
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Someday….

Today’s a new day!

Someday when the kids are grown…
Someday when I’m financially stable…
Someday when my life isn’t so crazy…
Someday when I feel like my family/ friends approve…

Someday when (fill in the blank with your reasons), I’ll follow this big dream that God has given me.

Sometimes God gives us a glimpse of what’s to come and we need to wait on His timing. We may have lessons to learn first. Or maybe there are things that need to be put in place before it’s time.

BUT..
When God says, “Do this…”, our only response should be to pray for guidance and obey.


Let me tell you a bit of my story…

I had been on my crazy beautiful health journey for several years when I began to feel very strongly that God had something more than just being a patient. That God could use me to pray for and encourage other patients walking through their own journey. I did not have the full picture at the time, but I knew that God had a beautiful plan for this journey.

As I spent more and more time in the hospital, doctor appointments and treatments, I began to see God using me and my story to reach other patients who were being overwhelmed by the day to day struggles of their health journey. Fellow patients were reaching out to me to share their stories and I was blessed to pray for them.

Over the past twenty-two years, I have been blessed to walk with many patients. I have watched some experience healing from their medical battle and I have seen some experience the ultimate healing by walking into the presence of God.

This amazing journey started with me looking past “Someday.” Someday when my health improves. Someday when I have all the answers. Someday when I am more qualified.

When God called me to walk with and help others walking through the medical world, I was not qualified, but I was willing. I did not have all the pieces to the puzzle, but I knew the One who did. All God wanted from me was a “Yes.”

“Yes” because God was so clear about my next step (He confirmed it in multiple ways) that I knew this was His will for me.

Your word is a lamp to my feet and a light to my path. Psalms 119:105

I do not know what God is calling you to, but I encourage you to trust in Him with all of your heart and do not lean on your own understanding. 

When God says, “Go!” You need to go. Even when it’s scary or doesn’t make sense to the world.

Being in step with God’s plan should always be our goal. It will not always be easy or seem “perfect” to us but we need to trust that He knows what He’s doing. Just keep leaning in and say yes. ~OC

Dear Hate,

Today’s a new day!

Dear Hate, I trust this letter finds you well. Actually, from what I see on tv and social media, it looks like business is booming for you lately. I have to give you credit, you have managed to keep yourself in the news and social media 24/7 these days and that’s not an easy feat. You are like a chameleon. You continue to reinvent yourself. Sadly, your brand is a whole lot stronger than most people realize. Somehow you have been able to leverage all that fear out there into a pretty impressive machine.

But, thankfully we have the answer to overcome all hate. A beautiful four-letter word called Love. Oh yes, Love. That’s your kryptonite.

Love is the beautiful response to all the hate we see in the world. Love can rebuild everything that hate tries to destroy.

Love is a redemptive song that people keep finding a way to sing together no matter how difficult the days become. Sure, maybe we have had a rough stretch lately, but we’ve been through this all a million times before and Love has always been able to defeat hate.

And I believe Love- will answer now too.

Let’s face it, deep down we all know how this is going to play out, don’t we? Hate will grab the headlines and make a dramatic statement and chaos will briefly come, and you’ll feel and seem like you’re winning. Hate will get a bit of traction and celebrate for a moment, but it will not be long until Love rises up and slowly drives back all the destruction that you have managed to raise.

Like yeast in the dough, Love will quietly and silently do the healing work. From person to person, heart to heart, breath by breath. Love will dance!

Hate, you probably have noticed that Love doesn’t resort to all the theatrics you’re known for. Because the truth is, Love and goodness is humanity’s default setting and when people stop to breathe, when they step away from all the hate, when they draw nearer to one another and recognize the goodness in the other’s eyes—then hate you’re defeated.

I believe people will always return to compassion and mercy because those are the most powerful forces on earth. And when they do, they find Love there waiting. They’ll embrace Love and Love will embrace them.

Yes, hate may occasionally corrupt the system, but Love is the system. Love is the truth that people know without knowing they know it. Love is a deep sacred place that the human heart will always seek at its level. When hurting, grieving, weary souls search for rest, Love is where and when people finally find themselves at home.

So hate, you can have your eye for any eye, and Love will keep making peace.
Hate, you can demand revenge and Love will keep forgiving.
Hate, you can spew venom and Love will turn its cheek.
Hate, can strike with a closed fist, and Love will stretch out its open hand.
Hate, you can gloat and brag and feel quite pleased with yourself for the momentary chaos you’ve manufactured—and Love will press firmly into that which endures and defeats it.

Hate, you are a powerful and resilient, force, but you’ll never overcome Love.

Hate, no matter what unspeakable damage you do, Love will bring even greater healing.

Love will always have the last word.

Hate, look around you. Look beneath the headlines and the noise. Look deeply into the eyes of those who get Love and see how much they’re willing to do.

Love will not be denied.

Hate, you cannot win this one, my bitter friend, no matter what you, the news, social media or the fear mongers say.

This place belongs to Love. ~OC

The Journey

Today’s a new day! Cancer, Parkinson’s, Myasthenia Gravis, Gastroparesis Type 2 Diabetes (Steroid Induced) and Dementia. No person would ever want to be diagnosed with just one of these diseases. But ring the bell, chicken dinner, I have been diagnosed with all six. Thankfully, I have been cancer free for many years. But when faced with multiple diseases it does little good to sit around and complain about it. No, I have decided to run with it, embrace it and see where God takes this crazy beautiful health journey. ~OC

A Beautiful Gift

Today’s a new day! It’s only been a week since I was given the diagnosis of dementia. But the symptoms have been showing for a number of years. Since my diagnosis life has been filled with many phone calls and text from concerned family and friends. I appreciate them all. In the past week, here are some things I have thought about as I begin my journey with dementia.

My dementia diagnosis does not define me. Although the diagnosis is life changing, I will not allow it to change who I am. I will fight that battle for as long as I can. I will continue to love people the way I always have. Probably a little more. I totally understand dementia is a progressive disease and I may not be able to do all the things I once did, but I want to continue doing the things I enjoy for as long as I can.

If you want to know how I am doing, just ask me. The sudden change in how others communicate with me since my diagnosis has been a little frustrating. Trying to avoid conversations about my diagnosis of dementia will only make me feel uncomfortable and isolated. I am still me. For now.

Yes, the diagnosis is correct. I wish it wasn’t, but it is. Younger people can be diagnosed with dementia. While the vast majority of people are affected by dementia at an older age, the disease can affect younger individuals. If you have concerns about your own cognition, I encourage you to get checked out regardless of your age.

Please don’t debate my diagnosis or tell me I don’t look like I have dementia. Do not attempt to dismiss the diagnosis. Those responses can be offensive. It is hard enough to tell someone I have dementia , let alone having to defend it. You may not see my dementia, but I live with it every day.

Please understand that sometimes my words and actions will not be the true me. It’s the dementia. As the disease progresses, I might deal with anxiety, confusion and a host of other issues. There are days I may want to sleep more. Remember, I am still me, just a little different.

My dementia diagnosis does not mean my life is over. I plan on continuing to live an active and memory filled life as long as possible. Laura and I plan on continuing to embrace life to its fullest.

So please keep reaching out and treating me the same old way. Social interactions are very important to my wellbeing. So do not be afraid to call, come by the condo or plan a time to meet. My life continues to be a beautiful gift. ~OC

The Thief on the Cross

Today’s a new day! Yesterday, I reposted about the thief on the Cross that I found on a friend’s Facebook page. The story about the thief on the Cross has always been one of my favorite stories from the Bible. I have often shared after meeting Jesus, the next person in Heaven I want to meet is the thief on the Cross. Here are some of my thoughts on this amazing story.

As I went back and read Luke 23:26-49, I was struck with gratitude for the thief on the cross beside Jesus. Mocked, insulted and shamed- Jesus endured not only the painful, sorrowful physical pain of the cross but rejection of the people that he loved and came to save. Yet, it was the unexpected conversion of the thief who was there beside Jesus in those last moments. The thief’s witness of faith is a beautiful reminder of the redeeming potential of mankind.

So what differentiated the thief on the cross and the other criminal hanging there? I believe it was awareness and repentance.

First, the thief on the cross was attentive to who he believed Jesus to be- in light of an intimate unique relationship to God. Saying to the other criminal beside him, “Have you no fear of God, for you are subject to the same condemnation?” (Luke 23:40). Here too, the thief acknowledges his own sin, unworthiness, and deserved punishment. In the opinion of the world, there was no redemption, no more chances, this was the end. Yet, the thief also confesses an understanding that Jesus’ kingdom was not of this world and a new desire to belong to Christ. “Jesus, remember me when you come into your kingdom.” (Luke 23:42).

Wait..there was still hope? Was it truly possible to trade the consequences for his decisions, the weight of his shame for a place in God’s kingdom that very day? And, “He replied to him, ‘Amen, I say to you, today you will be with me in Paradise.’”(Luke 23:43). The beauty of Jesus victory over death reminds us of the ever present reality of the eternal promise of life. Yet, as God’s divine love and mercy are always more than we could ever conceive, gratefully we are reminded that God has yet to give up on any of us. So, to the thief on the cross I would like to say thank you.

Thank you for witnessing that not one spiritual journey is ever the same. Called to conversion, continually, we are a people always in need of a Savior. Though in mankind’s eyes your profession of faith might be considered last minute… it is in truth timeless. It is truly a graced beneficiary of the unrestrained and limitless love of a Father- who time has no hold upon. ~OC

Some Lessons Learned

Today’s a new day! As I have run this crazy beautiful health journey for the past twenty-two years, I am often asked about the lessons I have learned along the journey. So here are just a few lessons learned along this crazy beautiful journey.

  1. Bring your pain to God don’t run from Him: When you run from God in seasons of challenge, all you’re left with is your own limited ability to cope with what you’re walking through. On the other hand, God invites us to draw near to him that we might experience his peace, healing, and closeness and this is what Scripture points us towards.

 “The Lord is close to the brokenhearted; he rescues those whose spirits are crushed.” Psalm 34:18

When we bring our pain to God we recognize that there is a purpose and in time God who loves us unconditionally will reveal his divine purpose through it.

  1. Fill your life with God’s word and God’s people: How we respond to the trials of life is critical to how we process what’s happening and how healing will take place. If we treat physical sickness with the incorrect medication, not only will our sickness continue, but it could become worse.

That is why it’s so important to not fill our minds with wrong thoughts; like God is mad at me, God is not good, worse things are going to happen, etc. If we allow those negative thoughts in, we will struggle to experience the peace of God he promises to us in Scripture (Philippians 4:7).

But when we fill our life with God’s words and surround ourselves with people who speak hope and encouragement into our lives, our experience will be much healthier.

“How sweet your words taste to me; they are sweeter than honey.” Psalm 119:103

When we fill our minds with God’s Word, we are reminding ourselves of who our God is, what he’s like, and we replace the lies of the enemy with the truth of God.

  1. Don’t be filled with worry, overflow with worship: Something powerful happens when we actively choose to worship through our suffering. We are not denying reality, we are simply redirecting our posture from one of worry to one of worship.

Worship changes our perspective. Worship speaks about where our confidence and hope lives. Worship redirects our thinking. Worship places the results in God’s hands.

  1. Believe that God will turn your sorrow into great joy: One of the great challenges of our faith is realizing that God can use our pain for our good. Meaning that our biggest sorrows can result in our greatest joy. When you think about Jesus’ greatest sorrow – suffering the shame, punishment, and death for our sin, the result was great joy – the redemption of humanity and the opportunity for a relationship with the living God.

When I reflect on my long health journey, which has been filled with a lot of pain, suffering and loss, I am thankful I pressed into God’s presence and trusted his plan for my life. I have watched him use my health journey to strengthen and encourage others which has resulted in my own comfort and joy through this crazy beautiful health journey.

As you walk through your own suffering today or in the days to come, I pray you will hold on to these powerful promises from God:

“I am leaving you with a gift—peace of mind and heart. And the peace I give is a gift the world cannot give. So don’t be troubled or afraid.” John 14:27

“And be sure of this: I am with you always, even to the end of the age.” Matthew 28:20

As I continue to run this health battle, I am humbled that Jesus willingly suffered the greatest pain and death because He knew the end of the story and so do we. So keep leaning into the promises of God. ~OC

Jars of Clay

Today’s a new day! In 2 Corinthians 4:7-9, we read the following words: “But we have this treasure in jars of clay to show that this all-surpassing power is from God and not from us.  We are hard-pressed on every side, but not crushed; perplexed, but not in despair; persecuted, but not abandoned, struck down, but not destroyed.”

In the above verse, Paul is comparing us to jars of clay in verse seven because life here on earth will cause us to be broken sometimes and when we are we always have the choice on what we will do with our brokenness.  If we allow God to fill us more with each and every passing trial or heartache, He can shine through that brokenness and others will see Him. Even though some heartaches and storms seem to last forever Paul goes on to explain how we need to view everything in life on earth.  

In 2 Corinthians 4:16-18, it declares, “Therefore we do not lose heart.  Though outwardly we are wasting away, yet inwardly we are being renewed day by day.  For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all.  So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal.”  As difficult as it is to look at some storms as being temporary when we know here on earth it isn’t just going to go away, God is drawing us to His side to allow Him to fill us with more of His light and to be comforted by Him.  He wants our focus to be on Him and eternity.  He wants His light to shine through our brokenness so the world will see Him.  The world is a dark, lost place and people need Jesus. The more we choose to be different by living a life that is pleasing to God the more they will see Him. Paul took great joy the more broken he became because He understood that the more weak he became the more God was shining through His life.  

Whether we are looking at our own life or the life of someone we love, don’t lose heart. God loves us and He has a plan. We need to fix our eyes on Him and seek Him and His plan. Allow Him to fill us so every crack of that broken jar shines His light to a lost world. The darker the world gets the more our light can shine for Him if we are seeking Him and allowing Him to shine through us. Our hope is found in Him and He wants to fill us with that hope. He wants to fill us with the confidence that whatever we may be facing or someone we love is facing that He has a plan but we must seek Him and follow Him. Don’t look for another way, the answers that we are seeking are found in God. It may seem easier and faster to look for it somewhere else, but if it isn’t His plan then it isn’t His best. So let us seek Him and trust Him, knowing how much He loves us so we can know that truly His best is yet to come. May we lean into His promises. ~OC

Take a Minute Today

Today’s a new day! As we reach the end of another week, I would encourage each of you to take one minute and think about the people who have helped you become the person you are today. The people who invested time into helping you grow as a person. If those individuals are still alive, I would encourage you to reach out to them and say thank you. For those life investors who have passed away, I would encourage you to spend some time reflecting on the lessons they taught you. ~OC

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