Tag: health

Don’t Live With Regrets

Today’s a new day!

I’ve often thought about something that feels both heartbreaking and unnecessary.

When I die, I don’t want people to suddenly tell the world how much I meant to them.

I don’t want long social media posts about the memories we never made.

I don’t want flowers that arrive too late, or words spoken over a casket that could have been shared over a glass of ice tea.

I want the conversation while I’m still here.

I want the phone call.

I want the text that says, “I’m thinking about you.”

I want the laughter around the dinner table, the long conversations on the porch, the road trips, the prayers together, and the ordinary moments that somehow become extraordinary simply because they were shared with someone we love.

Life is incredibly fragile.

As someone who has spent years walking through chronic illness, I’ve been reminded again and again that tomorrow is never guaranteed. We all assume there will be another birthday, another holiday, another chance to reconnect. But sometimes, that chance never comes.

One of the greatest tragedies isn’t death itself.

It’s the conversations we never had.

The forgiveness we never offered.

The hugs we never gave.

The visits we kept putting off.

The words, “I love you,” that remained trapped behind pride, busyness, or the illusion that there would always be more time.

Don’t wait.

If someone comes to your mind today, maybe that’s not an accident.

Call them.

Invite them to lunch.

Take the drive.

Write the letter.

Pray with them.

Make the memory now instead of wishing you had after they’re gone.

At the end of our lives, very few people regret spending too much time with those they love.

They regret the opposite.

They regret the vacations they postponed, the friendships they neglected, the family gatherings they skipped, and the relationships they allowed to slowly drift away.

Love isn’t measured by what we say after someone dies.

Love is measured by how we show up while they’re still living.

Jesus demonstrated this beautifully. He walked with people, ate with them, listened to them, laughed with them, wept beside them, and loved them in the everyday moments of life. He didn’t wait until it was too late to express His love.

Maybe today is your reminder.

Don’t let another day slip by.

Don’t assume they’ll always be there.

Don’t allow pride to steal another year.

Reach out.

Create the memories.

Take the picture.

Share the meal.

Say the words.

One day, the opportunity will pass.

Live in such a way that when the day of goodbye finally comes, your heart is filled with gratitude instead of regret—not because everything was perfect, but because you chose to love while there was still time.

Don’t wait until a funeral to celebrate someone’s life.

Celebrate them today. ~OC

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Living

Today’s a new day!

I know what it’s like to be dying.

I know what it feels like to look at your life and realize that tomorrow is never promised. I know what it’s like to spend time in hospital rooms, sit across from doctors, hear words that change the way you look at the future, and wonder how much time you have left.

I know what it’s like to come face-to-face with my own mortality.

But here’s the thing:

I don’t spend much time thinking about death.

I know it’s there.

I know one day my earthly journey will come to an end. I don’t deny it. I don’t run from it. And because of my faith, I don’t fear what comes after this life.

But I’m not going to spend the days I’ve been given worrying about the day they run out.

I’ve got too much living to do.

I’ve got too many memories to make.

Too many conversations to have.

Too many sunsets to watch.

Too many laughs to share.

Too many hugs to give.

Too many stories still waiting to be told.

Too many people I love who still need to hear, “I love you.”

There are places I still want to see, songs I still want to write, prayers I still want to pray, and moments I still want to experience.

There are memories I haven’t made yet with the people I love.

So I’m going to make them.

I’m going to laugh when I can.

I’m going to cry when I need to.

I’m going to celebrate the ordinary moments because I’ve learned that ordinary moments are often the extraordinary ones we remember most.

I’m going to sit a little longer at the dinner table.

I’m going to call the friend I’ve been meaning to call.

I’m going to tell people what they mean to me while they’re still here—and while I’m still here.

I’m going to stop saving life for someday.

Because someday isn’t guaranteed.

Today is.

Living with serious health challenges has taught me something I could never have learned from a textbook:

Life isn’t measured only by how many years we have.

It’s measured by what we do with the years we’ve been given.

Death may be somewhere down the road, but I’m not going to stand on the road staring at it.

I’m going to keep walking.

I’m going to keep loving.

I’m going to keep believing.

I’m going to keep making memories.

I’m going to keep squeezing every drop of meaning, purpose, joy, and hope out of this crazy, beautiful life.

And when my time finally comes, I don’t want to look back and wish I had lived more.

I want to be able to say:

I lived.

I loved deeply.

I laughed loudly.

I made memories.

I encouraged people.

I shared my faith.

I fought through the hard days.

I celebrated the good ones.

I didn’t waste my life being afraid of losing it.

I chose to live it.

Because death may be inevitable.

But today is a gift.

And I’m not wasting the gift.

I’ve got too much living to do.

Too much loving to do.

Too many memories to make.

Too much purpose left to pursue.

And as long as God gives me breath…

I’m going to fully embrace it. ~OC

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My Medical Rap Sheet Doesn’t Get The Final Word

Today’s a new day!

Here is my medical rap sheet.

  • Crippling Arthritis — 2002 (Ended up being cancer)
  • Cancer — 2003
  • Parkinson’s Disease — 2007
  • Myasthenia Gravis — 2009
  • Gastroparesis — 2015
  • COVID Long Haulers — 2022
  • Type Two Diabetes 202 (medication induced)
  • Cluster and Migraine Headaches — 2024
  • Dementia — 2024

Looking at that list, many people would probably assume my life is over.

They would assume the best years are behind me. That my dreams have ended. That all that’s left is surviving.

But they would be wrong.

Every single day, I choose life.

I choose to keep making memories with my beautiful bride of twenty-six years. I choose to laugh, to love, and to appreciate the moments that many people rush past.

I choose to continue advocating for other patients who need someone to remind them that they are more than a diagnosis.

I choose to keep fighting against human trafficking because there are people who desperately need hope, justice, and someone willing to stand in the gap.

Does that mean this health journey is easy?

Absolutely not.

There are days filled with pain. Days of exhaustion. Days when my body reminds me of every diagnosis on that list.

But years ago, I made a decision.

This health battle would never become my identity.

My diagnoses describe some of the battles I face—they do not define the man I am.

I refuse to allow illness to steal my purpose. I refuse to let disease dictate my joy. I refuse to surrender the calling God has placed on my life simply because my body doesn’t always cooperate.

Instead, I choose to keep living.

I choose to keep loving.

I choose to keep serving.

I choose to keep overcoming.

If you’re walking through a battle today—whether it’s a health crisis, grief, depression, financial hardship, addiction, or something no one else can see—I want to encourage you.

Don’t let your battle become your identity.

Keep fighting.

Keep making memories.

Keep dreaming.

Keep showing up.

Keep loving the people around you.

Live your life to the fullest, even if it looks different than you once imagined.

Champions aren’t defined by the battles they face.

They’re defined by the courage to keep getting back up.

So today…

Choose hope.

Choose purpose.

Choose joy.

Choose life.

And whatever comes your way, keep overcoming.

Live like a champion. ~OC

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Chronic Illness Is Not A Sin

Today’s a new day!

As I have walked this crazy beautiful health journey, I have had more than one person ask me what sin do I have in my life, that would cause me to be chronically ill. I have also had more than one person question my faith based on my health issues.

A dangerous lie found its way into the Church and the Christian community: if you’re sick, you must have done something wrong. If you just had enough faith, prayed harder, or lived a holier life, your illness would disappear.

But that isn’t the message of Jesus.

Chronic illness is not a sin.

Living with long-term condition is not evidence that God has abandoned you. It is not proof that your faith is weak. It is not a punishment for hidden sin.

We live in a fallen world where sickness exists because of the brokenness brought about by sin entering creation—not because every illness is directly tied to an individual’s personal sin.

Jesus repeatedly challenged this misconception. When His disciples asked whether a blind man had sinned or whether his parents had sinned, Jesus answered, “Neither this man nor his parents sinned” (John 9:3). Instead of assigning blame, Jesus demonstrated the compassion and power of God.

Think about the Apostle Paul. He pleaded with God three times to remove his “thorn in the flesh,” yet God responded, “My grace is sufficient for you, for My power is made perfect in weakness.” Paul wasn’t being punished. God was revealing His strength through a life that knew weakness.

The Bible is filled with faithful people who endured suffering. Job suffered immensely. Timothy battled recurring health problems. Trophimus was left sick. These men were not outside of God’s will—they were walking faithfully with Him.

The Church must stop treating chronic illness as a spiritual failure.

Instead of asking, “What sin caused this?” perhaps we should ask, “How can we carry this person’s burden?” Instead of offering shame, we should offer prayer. Instead of judgment, we should offer compassion. Instead of simplistic answers, we should simply sit beside someone and remind them they are deeply loved by God.

Some of the strongest believers I know are those who worship through pain every single day. They continue to trust Jesus when healing hasn’t come. They continue to serve even when their bodies won’t cooperate. Their faith isn’t smaller because of their illness—it often shines even brighter because of it.

Healing is real, and we should never stop praying for miracles. God still heals. But whether healing comes today, years from now, or ultimately in eternity, God’s love does not change.

Your diagnosis does not define your value.

Your disability does not diminish your purpose.

Your limitations do not limit God.

If you are living with a chronic illness today, hear this truth: You are not forgotten. You are not being punished. You are not a second-class Christian.

You are still called.

You are still loved.

You are still valuable.

And God can use your life in ways you may never fully understand this side of heaven.

Chronic illness is not a sin.

It may be part of your story, but it is never the end of it. Jesus is. ~OC

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Dear Parkinson’s Community

Dear Parkinson’s Community,

I wanted to see if there would be interest in starting a weekly or monthly Zoom gathering for our Parkinson’s community.

The vision is simple: to discuss the latest developments in Parkinson’s research and treatment, share practical insights, encourage one another, and remind each other that no one has to walk this journey alone.

This group would be open to:

  • People living with Parkinson’s disease
  • Caregivers and family members
  • Medical professionals
  • Anyone who has lost a loved one to Parkinson’s

Whether you’re newly diagnosed, have been living with Parkinson’s for years, care for someone with the disease, or simply want to learn and support others, you are welcome.

If this is something you would be interested in, please leave a comment below or send me a direct message. If there’s enough interest, I’ll begin organizing our first Zoom meeting.

Together, we can learn, encourage one another, and find hope for the road ahead.

You are not alone. ~OC

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More Questions Than Answers

When I was diagnosed with Parkinson’s disease in 2007, my world changed in an instant.

Like so many others, I immediately began asking the questions we all ask after receiving life-changing news. What caused this? Could I have prevented it?

One thing stood out immediately: there was no family history of Parkinson’s disease.

No parents.
No grandparents.
No siblings.
No known relatives.

That didn’t answer the question—it only deepened the mystery.

Looking Beyond Genetics

For many years, Parkinson’s was often thought of as a disease that was primarily genetic. We now know that while genetics can play a role for some people, the majority of Parkinson’s cases are considered sporadic, meaning they occur without a clear inherited cause.

Researchers increasingly believe that Parkinson’s develops through a combination of genetics and environmental exposures. For many of us, the environment may play a much larger role than we once realized.

That realization raises important questions.

What have we been exposed to over a lifetime?

Pesticides.
Industrial chemicals.
Solvents.
Air pollution.
Contaminated water.
Heavy metals.

Scientists continue to study how long-term exposure to these and other environmental factors may increase the risk of developing Parkinson’s disease. While research is ongoing and not every case has the same cause, the growing body of evidence suggests that our surroundings matter.

We Need to Pay Attention

This isn’t about creating fear.

It’s about creating awareness.

If environmental factors contribute to Parkinson’s disease, then we should be investing far more into understanding those risks, reducing harmful exposures where possible, and protecting future generations.

We cannot change yesterday.

But perhaps we can change tomorrow.

That means funding more research.
Supporting environmental health initiatives.
Helping identify communities at higher risk.
And continuing to ask difficult questions until we find better answers.

My Journey

Nearly twenty years after my diagnosis, I’ve lived through far more than I ever imagined.

Parkinson’s became only one chapter in a much larger health journey that has also included Myasthenia Gravis and many other unexpected challenges.

I’ve experienced seasons of strength and seasons of weakness.

There have been victories, setbacks, miracles, disappointments, and countless lessons along the way.

If I’ve learned anything, it’s this:

A diagnosis may change your life, but it does not define your life.

I am still here.

I still have purpose.

I still believe God is writing my story.

A Call for Hope and Action

As someone living with Parkinson’s, I hope that one day we won’t simply ask how to manage this disease—we’ll know how to prevent many cases before they ever begin.

That will require courageous research.
Honest conversations.
Environmental responsibility.
And a commitment to putting people ahead of convenience or profit.

My prayer is that future generations will benefit from the questions my generation has had to ask.

Until then, I’ll continue sharing my story.

Because every story matters.

Every patient matters.

Every family matters.

And every step we take toward understanding Parkinson’s disease brings us one step closer to hope.

“We may not know exactly why every person develops Parkinson’s disease, but we owe it to those living with it—and to those who come after us—to keep searching for answers. Hope grows wherever truth is pursued.” ~OC

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Life With Purpose

Today’s a new day!

Twenty-four years ago, I never imagined the road my life would take.

If someone had told me I would spend decades walking through cancer, Parkinson’s Disease, Myasthenia Gravis, a stroke, gastroparesis, early-stage Lewy Body Dementia, countless hospital stays, surgeries, treatments, and more doctor’s appointments than I could ever count, I probably would have wondered how anyone could endure that much.

The truth is, there have been days when I wondered the same thing.

There have been moments when fear tried to take over. There have been seasons of grief as I watched abilities I once took for granted slowly disappear. As a former marathon runner, I remember what it felt like to run mile after mile with freedom. Today, every step is a reminder that life has changed.

But here’s what I’ve discovered.

I couldn’t choose my diagnoses, but I could choose what I did with them.

Somewhere along this journey, God began changing my perspective. Instead of asking, “Lord, why is this happening to me?” I found myself asking, “Lord, how can You use this for Your glory?”

That question changed everything.

Purpose doesn’t eliminate pain, but it gives pain eternal significance.

Some of the most powerful moments of my faith haven’t happened in church buildings. They’ve happened in emergency rooms, hospital rooms, intensive care units, doctor’s offices, and quiet moments when all I could do was whisper the name of Jesus.

I’ve experienced frightening hallucinations brought on by Parkinson’s Disease and dementia. They were unlike anything I had ever known. Yet even in those moments, when my mind should have been consumed with fear, God filled it with peace and worship. Songs came flooding into my heart. Instead of darkness having the final word, Jesus reminded me that His presence reaches places illness never can.

Those songs eventually became Songs in the Battle.

What the enemy intended to use to discourage me, God transformed into worship.

In 2019, during surgery, God gave me a glimpse of Heaven that forever changed how I see suffering. I experienced a place more beautiful than words could ever describe. I had no pain. I had a new body. I didn’t want to leave.

Then I heard these words:

“Not yet, my son. I have more work for you to complete.”

When I woke up in recovery pointing toward Heaven, I knew my life no longer belonged to me. It belonged completely to the One who had sent me back.

That experience didn’t remove my health challenges.

It gave them purpose.

I’ve learned that ministry isn’t confined to a platform or a microphone. Sometimes ministry looks like encouraging another patient in a waiting room. Sometimes it’s praying for a nurse who has had an exhausting shift. Sometimes it’s simply choosing joy when your circumstances make no sense.

Every diagnosis has become another opportunity to testify to God’s faithfulness.

Every setback has become another opportunity to trust Him.

Every scar has become another reminder that God is still writing my story.

I’ve also learned that weakness isn’t the opposite of usefulness.

The world measures people by what they can produce. God measures us by our willingness to trust Him. Scripture reminds us that His power is made perfect in weakness. Looking back, I can honestly say I’ve often experienced God’s strength most clearly when I had none of my own.

If my journey has taught me anything, it’s that purpose isn’t determined by our physical abilities. It’s determined by our willingness to surrender whatever we have to God.

I don’t know what tomorrow’s doctor’s appointment will bring.

I don’t know what new challenge may be waiting around the corner.

But I do know this:

As long as God gives me breath, I want every breath to point someone toward Jesus.

If my story gives hope to someone newly diagnosed…

If it encourages a caregiver who is exhausted…

If it reminds someone that miracles still happen—even when they don’t look the way we expected…

If it helps one person discover that Jesus never abandons us in our suffering…

Then every difficult day has eternal value.

I have made the choice to live out my health issues with purpose.

Not because this journey has been easy.

Not because I enjoy suffering.

But because I have seen, time and time again, that God never wastes a surrendered life.

My health challenges are part of my testimony, but they are not my identity.

My identity is found in Jesus Christ.

And as long as He continues to write my story, I will keep telling the world that hope is alive, miracles still happen, and no diagnosis is greater than the faithfulness of God. ~OC

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Everyone Belongs

This week marks the 36th anniversary of the Americans with Disabilities Act (ADA), a landmark moment in our nation’s history.

The Americans with Disabilities Act was more than a piece of legislation. It was a declaration that every person has inherent worth, dignity, and the right to fully participate in society. It challenged barriers that had excluded millions of Americans and affirmed that disability should never determine a person’s value or limit their opportunity.

While we have made significant progress over the past 36 years, the journey is far from over.

Too many people with disabilities still encounter physical barriers, employment discrimination, inaccessible healthcare, transportation challenges, and attitudes that underestimate their gifts and potential. True accessibility is about more than ramps and parking spaces—it is about creating a culture where every person is welcomed, respected, and empowered to thrive.

As someone who has spent years walking through significant health challenges, I have experienced firsthand both the compassion of others and the obstacles that still exist. I have also learned that disability does not diminish purpose. It does not erase calling. It does not prevent God from working through our lives in powerful ways.

The Church has a unique opportunity to lead by example. We should be the first to ensure that people with disabilities are not merely accommodated but fully embraced as essential members of the Body of Christ. Every gift matters. Every voice matters. Every life matters.

The ADA reminds us of an important truth: inclusion is not charity—it is justice. And for those of us who follow Jesus, it is also an expression of His heart. Throughout the Gospels, Jesus consistently welcomed those whom society overlooked, reminding us that every person bears the image of God.

As we reflect on the legacy of the Americans with Disabilities Act, may we celebrate how far we’ve come while recommitting ourselves to building communities where every person can flourish with dignity, opportunity, and hope.

Let’s continue removing barriers—not just in our buildings, but in our hearts.

Because everyone belongs. ~OC

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When 660 Specialists Aren’t Enough

Imagine living with a neurological condition that slowly changes the way you walk, talk, swallow, write, or even smile. Now imagine being told that the specialist you need is hours away, has a waiting list of several months, or simply isn’t accepting new patients.

For far too many people, this isn’t a hypothetical situation. It’s reality.

Did you know there are only approximately 660 Movement Disorder Specialists in the entire United States? That’s not just for people living with Parkinson’s disease—that number includes specialists caring for patients with all movement disorders, including dystonia, essential tremor, Huntington’s disease, multiple system atrophy, progressive supranuclear palsy, ataxias, and many other complex neurological conditions.

Think about that for a moment.

Millions of Americans are living with movement disorders, yet only a few hundred physicians have completed the advanced fellowship training needed to provide specialized care. That means countless patients must travel long distances, endure lengthy wait times, or rely solely on general neurologists who may not have specialized training in these highly complex diseases.

This isn’t a criticism of neurologists. They work incredibly hard and provide outstanding care every day. The issue is much larger than any individual physician. We simply do not have enough specialists to meet the growing need.

As our population ages, diagnoses of Parkinson’s disease and other movement disorders continue to rise. The demand for specialized care is increasing every year, while the workforce isn’t keeping pace.

Something has to change.

We need more fellowship programs. We need greater investment in training the next generation of Movement Disorder Specialists. We need better incentives for physicians to enter this field. We need expanded telemedicine options to reach underserved communities. And we need policymakers, medical schools, healthcare systems, and advocacy organizations to recognize that this shortage is becoming a national healthcare crisis.

For those of us living with Parkinson’s or another movement disorder, access to expert care isn’t a luxury—it’s essential. The right treatment at the right time can dramatically improve quality of life, preserve independence, and provide hope for patients and their families.

No one should have to wait months for expert care simply because there aren’t enough specialists.

Six hundred and sixty specialists for an entire nation is not enough.

We can do better.

And we must.

Because behind every statistic is a person—a husband, wife, parent, grandparent, child, friend, or neighbor—who deserves the very best care possible.

Let’s raise awareness, encourage future physicians to enter this specialty, and advocate for meaningful change. The movement disorder community deserves nothing less. ~OC

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Not Dead Yet: A Joyful Rebellion

Today’s a new day!

There is something beautifully rebellious about waking up each morning, opening your eyes, taking a deep breath, and whispering, “Thank You, Jesus.”

In a world that expects you to quit…
choose joy.

In a culture that celebrates outrage…
choose peace.

When pain tells you to give up…
choose hope.

Every smile in the middle of suffering is an act of defiance.

Every prayer whispered through tears is a declaration that darkness doesn’t get the final word.

Every act of kindness in a cynical world is a revolution.

I’ve learned that joy isn’t pretending everything is okay. Joy is looking straight at the storm and saying, “My God is still faithful.”

My body has given me more reasons to complain than I can count. There have been diagnoses, setbacks, fear, uncertainty, and days when simply standing up felt like climbing a mountain.

But here’s the beautiful truth:

I’m not dead yet.

So I still have a purpose.

I still have someone to encourage.

I still have songs to sing.

I still have prayers to pray.

I still have love to give.

I still have a Gospel worth proclaiming.

The enemy may have tried to silence my voice, but he couldn’t silence my praise.

He may have attacked my body, but he couldn’t steal my hope.

He may have shaken my world, but he couldn’t move the Rock on which I stand.

So every day I laugh…

Every day I worship…

Every day I love people…

Every day I forgive…

Every day I choose gratitude…

That is my joyful rebellion.

Because joy confuses despair.

Hope frustrates fear.

Love outlasts hate.

Grace overwhelms guilt.

And Jesus has already won.

If you’re reading this while carrying a burden no one else can see, don’t let your circumstances write the final chapter.

As long as God has given you breath, He has given you purpose.

As long as your heart beats, your story isn’t finished.

So stand up if you can.

Smile if you can.

Sing if you can.

Pray when you can’t.

And if all you can do today is whisper the name of Jesus, that’s enough.

Because the greatest rebellion against darkness is a life that refuses to stop believing in the Light.

Not dead yet.

Still praising.

Still believing.

Still loving.

Still becoming.

Still following Jesus.

And by His grace…

I’m just getting started. ~OC

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