Tag: health

Guiding My Steps

Today’s a new day! I am thankful as I have run this crazy beautiful health journey, that God did not reveal every step, bump, pothole or curve along this twenty-two years and counting health journey. I cannot imagine how I would have lived out this race, if I would have known how long the journey would be and all that I would have to endure. Knowing the whole story in advance would have been overwhelming. God may not have shown me every twist and turn of this health journey, but He has guided my every step. And as I have leaned into His promises, I have been amazed at everything God has brought me through.

My life and journey has not been about perfection. I have found that one of the keys to living out the toughest moments in life is my daily commitment to serve God in my words and actions. God will never abandon me as I continue to run through the bumps in the road of this health journey. There will be better days ahead and God will be with me every step of the way. ~OC

LORD, you are my portion and my cup of blessing; you hold my future. The boundary lines have fallen for me in pleasant places; indeed, I have a beautiful inheritance ~Psalm 16:5-6

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Be Your Own Best Healthcare Advocate

Today’s a new day! I have been what my bride calls a “Professional Patient” for almost twenty-three years now. During this journey, I have encountered health professionals who appeared to be more concerned about egos and status than they did my well-being. For some medical providers, I was just a name on a file who happened to have very good health insurance coverage. They knew more than me because they had the title of Doctor attached to their name. Being so foreign to how the world of healthcare worked, Laura and I just went along with whatever the doctors or medical professionals directed us to do. They’re the professionals. They know what’s best for me. Right? In the famous words of Lee Corso from GameDay on ESPN, “Not so fast my friend.”

As Laura and I began to navigate this new world called the healthcare system, we found out that the most important voices were our own. If we did not stand up for my medical needs, who else would? That’s when we realized we needed to become not only our own healthcare advocates, but we needed to help other patients walking through their own crazy beautiful health journey. We recognized being a “Professional Patient” was actually a full time job.

Over the years, we have had to privately and sometimes publicly voiced some of my medical concerns. Which is not naturally part of my DNA. Or so I thought. But this is my life and my health we are talking about. As Laura and I have weaved our way through the world of health challenges, here are some of the most important pieces of advice I believe I can offer for those walking through their own health journey.

* Do not wait to speak up and share your thoughts and concerns. You know your body better than anybody else. If something doesn’t feel right or sound right speak up. If your medical team truly cares for you they will welcome this dialogue.

*Do not be afraid to get a second or third opinion. This is your life. We only get one.

*Do not be afraid to change doctors or hospitals if needed. Find a medical team that you truly feel has your best interest at heart.

*Have a great support system that can speak up on your behalf when you are unable to.

*Never stop learning about new treatments and medications that pertain to your health issue. Do not hesitate to share that information with your medical team. Once again, if your medical team cares for your well-being they will welcome those conversations.

*Take the time if your health allows, to help someone else navigate through this overwhelming healthcare system .

*Remember, it’s called practicing medicine for a reason. Your doctor and medical staff are human. Mistakes can happen. Allow those to be a teaching moment for all parties involved. Be kind and respectful, but firm.

*Be patient with yourself and your medical team. The healthcare system can be messy, stressful and complicated. Do not be afraid to show a little grace to yourself and others.

I really hope this helps someone navigating through a maze called the healthcare system. Be Your Own Best Healthcare Advocate. ~OC

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Our Health and Living

Today’s a new day! Long-term and terminal illnesses can be a scary road to navigate. It’s hard on one’s body, mind and soul. And everyone that cares for them. How will my body and mind handle today? That’s a question I ask myself on a daily basis. Chronic and terminal illnesses also raises many questions that many people shy away from unless they are faced with it directly. But if we’re listening, many lessons can be learned.

Health issues have a way of reminding people that time is a valuable, non-negotiable, and a non-renewable resource. With that said, how do we look at the bigger picture of life and find out what is truly important? 

Spend Time Focusing on Relationships:

We were not meant to do this life alone. God did not create us to be Lone Rangers. I know of no one who regrets time spent building meaningful relationships regardless of life’s struggles.

Take time to ask yourself the following question: Are you truly making time for your family and friends?

Trim That Fat:

I am not talking about dieting and exercise, but those are important parts of our lives.

No, I am referring to something that a lot of times we do not even notice. I am referring to our home and our lives. We all have a tendency to fill both with clutter and hang on to things we do not need. A life-changing diagnosis can become the catalyst for the housekeeping of our home and heart as we realize what is truly important in our lives. It is also a good time to reflect on our faith.

 “Let us throw off everything that hinders and the sin that so easily entangles. And let us run with perseverance the race marked out for us.” ~Hebrews 12:1-2

Speak your Heart Now:

It is good for all of us to review and consider our relationships. Because we all know relationships can be messy at times. If we love people, why not let them know how much they mean to us. Now! Why wait until it’s too late? If we have hurt someone or offended them in some way, why not seek their forgiveness and do what we can to make it right.

Who are the most important people in your life? Take a moment to think about that. Maybe even say their names out loud or write them down. Then ask yourself this question: Have I honestly shared what each of those individuals truly mean to me?

“A heart at peace gives rest to the body.”   Proverbs 14:30

Set New Goals (Dream!):

It can be easy to wait for a challenging season to be over. “When I get better, then I will take that trip.” “When I get better, then I will _____.” Why not take that trip now? As I have walked through this long journey of health issues, Laura and I have learned to take those trips now. Even though those trips can be tough on my body, the memories are priceless. So go live out that adventure. Experience love, joy and happiness during even the toughest of times. I encourage you to find what brings you happiness and go experience it. Keep dreaming some big dreams, set some goals, and do what you possibly can to make them happen.

Many facing long term health challenges find that those trials have helped them clarify and simplify their lives.

During my own health journey, I have discovered what’s truly important in life. For me, it’s my faith, my relationship with my bride, relationships with loved ones, encouraging others and truly living out my God-given purpose in life.

What can we learn from this?

Praise be to the God and Father of our Lord Jesus Christ,
the Father of compassion and the God of all comfort,
who comforts us in all our troubles,
so that we can comfort those in any trouble
with the comfort we ourselves receive from God. ~2 Corinthians 1:3-4

I hope and pray the words above have brought some comfort and encouragement. Go live your life! ~OC

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Singing Hallelujah

Today’s a new day! As I have walked this crazy beautiful health journey for over 22 years, I’ve had a lot of time to think about the journey. These thoughts have been like a blueprint for my journey. A journey that is radically different to the one I envisioned 22 years ago.

When I received my first diagnosis back in 2002, I was told after the shock of the diagnosis I would deal with anger and depression. Those well meaning health professionals were wrong. As crazy as it may sound, I feel like this health journey is quite possibly one of the best things that has ever happened to me. Yes, the journey has not been easy. All the surgeries, treatments and hospital stays have not always been pleasant. It’s not the blueprint I would have written for my life. But it has made me really re-evaluate a lot of the things I once held close. It’s made me appreciate my family and friends so much more and realize that possessions mean nothing when you’re faced with the real possibility of dying. Most importantly, it has made me so very aware that the God I believe in and serve is so much bigger and so much closer to me than I ever could have imagined.

Throughout history God has had many names, one of them being Immanuel, meaning ‘God with us’. I have never known that to be more true than I have the last 22 years and counting. Sometimes I wonder why I was chosen to walk this journey. But then God blesses me with a beautiful interruption and I am reminded that God has a purpose for my journey.

I know that God’s ways are higher than my own and there has been immense good that has come from this crazy beautiful health journey. God has used my health journey to bring me and others closer to Him. To bring encouragement.

As I walk through this journey, woven into the fabric of my life has been an understanding of what it means to suffer, and from that understanding has flown love, compassion and mercy.

During this journey, I have continuously leaned on Psalm 139:15-16, 2 Corinthians 4:16-18 and Hebrews 13:5. I will let you research those scriptures on your own. While this health journey and everything that has come with it may seem chaotic, I know there is purpose in this crazy beautiful journey. Not my purpose, but the purpose of a God who holds the universe in His hands… who knew me from the moment I was conceived in the womb…. who has walked beside me every day of my life. I may not understand everything that has happened along this journey and maybe on this side of Heaven I never will, but I know that whatever happens, God is in control and he has promised he will never leave me or forsake me.

I don’t know about you, but that gives me a tremendous amount of confidence that everything is going to be alright.

Because of God’s goodness I will sing Hallelujah, Hallelujah. Singing Hallelujah because I am living a blessed life. Singing Hallelujah because my bride who loves me and is standing strong with me on this journey. Singing Hallelujah because I have amazing family and friends who continue to stand with Laura and I during this unending journey. Singing Hallelujah because God walks beside me and fights the battle for me. He commands his angels concerning me and they guard me. God is my fortress, my hiding place while the battle rages around me. He stands between me and my health issues that would seek to take my life and says to the sickness “no further… you will not harm him”.

Singing Hallelujah because I am still alive…. and hopefully will be for many years to come.

There are so many reasons to sing Hallelujah…. so many…. and as long as I have a heartbeat you will hear my Hallelujah.

Whatever you see in me that you think is good comes from Heaven.

It’s not my doing…. it’s His. ~OC

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Word for 2025….Guarded

Today’s a new day! For probably the last ten years, every December I ask God to give me a word for the upcoming year. This year is no different, even though this year has been a life changing year for Laura and I and the year is not over yet. But after a lot of prayer, the word God has given me for 2025 is Guarded. Some people might find that a surprising word as we get closer to entering a new year. But let me explain.

Many people know about my story concerning my crazy beautiful health journey. Over the years, I have shared my story and struggles on social media, in conversation, in books and even an award-winning documentary. I have been blessed to experience some amazing opportunities over the past 22 years. I have also experienced some great pain as more than one “friend” has used my story for their personal gain and discarded me after I was no longer the flavor of the month. I do not share this for any type of sympathy, but to let you know why I chose the word Guarded for 2025 and why I will have less of a presence on social media next year. The daily text of encouragement will continue for those friends God puts on my heart.

In 2025, I will spend more time cultivating the real relationships in my life and guard myself against those who only contact me when they need something or feel guilty. As I continue to navigate life with dementia, I do not have the energy or desire to put anymore energy into fake and superficial relationships.

No, 2025 will be spent making memories with those who truly care about me. Not just the “Miracle Story.” Those few friends who actually reach out to me without me always having to innate the conversation or get together. I am looking forward to a beautiful memory filled 2025.

What will be your word for 2025? ~OC

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God is so Good

Today’s a new day! As Laura and I have traveled this crazy beautiful health journey, we have continually declared “God is so good to us.” It isn’t about material wealth or any signs of success. Laura and I live a very simple life. But some of the greatest blessings in life are not the ones you can hold or see, but the ones you carry in your heart. ~OC

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Take Heart

Today’s a new day! One of my favorite verses is “In this world you will have trouble. But take heart! I have overcome the world.” – John 16:33.

What does that verse really mean? One of the biggest lies many Christians are told when they start following God is everything will be perfect and they will never deal with the storms of life. That if God is on our side, nothing can go wrong, and all it takes is a quick prayer to get us out of a sticky situtation. Just like a sitcom on tv. All is good in 30 minutes. But we live in reality and we know that’s far from the truth.

Nowhere in the Bible are we promised a perfect life on earth. Life will be filled with struggles. We will all experience challenges along our journey. Those challenges will look different for each of us. Some will deal with health issues. Sometimes those health challenges will last a lifetime.

The point is that even though we all experience challenges in this journey called life, Jesus has overcome the world. As I mentioned earlier, we will encounter painful moments in this world, but there is a world beyond this world. A place called Heaven, where we will experience peace and wholeness. A place where there is no pain, disease, war, hatred or confusion. Heaven is paradise.

When I experience moments of hopelessness with my own health, I take a moment to think about God’s goodness and promises. I also take time to remember that I need God more today than I did yesterday. I may not understand everything going on in my crazy beautiful health journey, but God does. And for that I am thankful.

I am often asked why would God allow me to walk through so many years of suffering? Of course I do not have all the answers, but I have chosen to trust God in the mist of the storms. To look for every opportunity to help encourage everyone walking through their own challenges. I have decided not to spend all my precious moments researching Google looking for the latest medical or natural cures.

I’ve accepted that I will never fully understand every inner working of my body at any given moment. No one has it all figured out. Not even the medical world. That doesn’t mean I shouldn’t do everything in my power to pray and strive for better health. It just means I will not become consumed by my current health challenges. They are not my true identity.

Nothing gives me more peace and comfort than my relationship with God. Just like any personal relationship takes work and trust the same goes for our relationship with God. It’s a daily commitment. In life we so often stumble for answers. We jump from different diets, different relationships and different careers looking for the answer and looking for a way to make us feel good and worthy. There is nothing wrong with any of those things, but nothing will ever give us as much peace and purpose than a relationship with God and the knowledge that even though the storms of life can be hard, He has already overcome the world.

I know this was a long post, but I pray it brings you hope as you walk through the ups and downs of life. Blessings to all. ~OC

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Not the End

Today’s a new day! Sometimes a tragedy can provide a platform for something greater. Something beyond our wildest imagination. Sometimes a tragedy can be the beginning of something beautiful, not the end of the story. ~OC

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