Today’s a new day! Believe it or not, this crazy beautiful health journey is a gift, and I do not intend to waste a day of it. Have I experienced tough moments? Yes, I have. Multiple surgeries, multiple near death experiences, hours of treatment and too many hospital stays to count. But during this long journey, God has allowed me to hear the stories of some amazing people and share my own story. If I had allowed my health issues to become my identity, I would have missed out on so many beautiful moments along the way. Does my life look different than what I had dreamed of? Yes, but that’s not necessarily a bad thing. I no longer rush through life. I embrace every moment. My life is not dictated by meetings and deadlines. I make it a point to connect with at least one friend a day. My goal is no longer to climb some corporate ladder, but to build bridges of love and encouragement. A time clock has been replaced by a get to clock. This health journey that the world would deem a negative, has become a story of hope and overcoming. My body might be broken, but I will allow God to pick up the pieces and create something beautiful. I invite everyone to come along and run this beautiful journey with me. ~OC
Faithful Friend
Today’s a new day! Sadly, as I have run this crazy beautiful health journey, several friends decided to walk away. But this is not about them. No, this letter is for you.
Dear Faithful Friend, I want you to know you are one of the greatest blessings God has ever given me. Coming from a person who has watched many friends walk away, I am thankful that I never had to see what it would look like as you walked away. You have been a constant. You have been persistent. You have been faithful. You have constantly showed me that people are capable of caring unconditionally. Friends like you are hard to find these days, even in people who call themselves Christians.
I am thankful that you have never left, as I have run this crazy beautiful health journey. You haven’t just stayed during the good times, you have decided to run with me even as my body has went through one trial after another. You care for me even when I have nothing to offer.
You have seen the worst parts of this health journey. You know the good and not so good in this season. You know God gives us things exactly when we need them… that’s proven to be true because of the fact that He has blessed me to call you friend. Our paths crossed because God saw that I needed a faithful friend. He was right. I needed someone who intercedes in prayer on my behalf without me asking. I needed someone who would sharpen me as I walk through this journey.
I have studied the Bible to see what it means to be a good friend and most of the things I have read are qualities that you possess. I have seen you run with me at my weakest moments. You have been an honest voice. I have seen you build me up and encourage me. You have had my back in ways I will never be able to truly thank you for.
I am so thankful for your friendship.
I can only pray that I have had a small impact on your life. You have helped me become a better person as I run this crazy beautiful health journey. I pray for you and your family on a daily basis and I hope you know that I am here in all seasons for you, just like you have been there for me. I do not write any of this lightly. Thank you for being a faithful friend. I am thankful for your friendship in my life. ~OC
Life Buckets
Today’s a new day! Too much selflessness is not always healthy. We must keep our life buckets filled or serving others will be unsustainable.
As I have walked this crazy beautiful health journey the last 22 years, most eyes have been on me. How I am feeling and what I need. All too often my bride and caregiver has been overlooked and overwhelmed. Her life buckets tend to run on empty. I believe that’s true for most caregivers.
Caregivers usually take a backseat to those they’re caring for and rarely do caregivers have caregivers of their own.
Thankfully when I got sick back in 2002, God helped me realize that Laura could not and should not have to do everything on her own. She needed people to come along side her and make sure her life buckets didn’t run dry. I am thankful for those who have decided to be Laura’s caregivers.
God also helped me realize that Laura needed breaks from being my caregiver. So over the years, I have encouraged Laura to plan trips with family and friends. To find things that fill her buckets. To live and embrace life away from my crazy beautiful health journey. Thankfully, Laura has found many things that help fill her life buckets.
I pray if you’re a caregiver or know a caregiver, you will take the time to check out the life bucket situation. To make sure no one’s buckets are running on empty.
This post is geared towards caregivers, but we all need to keep an eye on our life buckets. Because if we truly want to serve others, we need to make sure our buckets are full. What fills your life bucket? ~OC
God’s Word
Today’s a new day! As I continue to run this crazy beautiful health journey, I cling to the promises of God’s word. One of those promises is found in Isaiah 40:29, “He gives strength to the weary and increases the power of the weak.” Even when our bodies are struggling to find strength, God lifts our hearts with hope and comfort. He gives strength to the weary and weak. If you have ever felt weary and weak you qualify.
The astonishing thing is the way He chose to do it. It does not take the mending or healing of our bodies. We do not have to be propped up with the comforts of this world. God did it all with the power of his word. It is true, “Man shall not live by bread alone, but by every word that comes from the mouth of God.” (Matthew 4:4). If your soul is starving today, find nourishment in the reading of God’s powerful words and promises.
Today, if you find yourself weary, worn, and ready to throw in the towel, I want to remind you that He gives strength to the weary. My prayer is that you’re experiencing God’s strength and peace this very hour. Know this, one day, you will look back on your troubles, whether in this life or on the beautiful shores of eternity, and you will say, “God pulled me through. He gave me the strength I needed.” The One in whom you trust does not faint or grow weary, and his understanding is unsearchable. ~OC
Hope
Today’s a new day! I believe Hope is one of the most important tools in our toolbox. Hope is not based on our circumstances. No, it’s a firm conviction, a way of seeing the world. Hope is what carries us through difficult times. We know God is in control, regardless of what our struggles might lead us to believe. We trust suffering is temporary and that God will use even the worst of situations for good. Evil might have the first word (cancer, broken relationships, etc), but we boldly proclaim that God will have the final word.
Many times in the last twenty-one years, I’ve found encouragement in 2 Corinthians 12:8-9, “Three times I pleaded with the Lord to take it away from me. But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me.”
I may or may not regain my health. That’s in God’s hands. But as I continue to walk through this crazy beautiful health journey, I will hold on to God’s hope, love and grace. That’s more than enough for me. ~OC
Prayer
Today’s a new day! Prayer has been a major part of my life. Especially, as I have walked through this crazy beautiful health journey. I have learned a lot about prayer during this time. I thought I would share a few things I have learned about prayer over the years.
I believe prayer is an act of listening to God, not just talking. Prayer begins with listening, or being still as the Psalmist says. Without this, I believe prayer can be downgraded to transactional communication.
Prayer was not designed to be transactional. Prayer is relational. I believe we must learn to listen to God before prayer will have the true meaning He desires for each of us to experience.
During this crazy beautiful health journey, I have learned a lot about just listening to God. Being still.
As I shared earlier, I believe prayer begins with listening. But it eventually becomes a way of life. I believe prayer is a divine attentiveness to the things of God in our everyday lives. It’s an increased awareness of God’s movement in the world. I believe this explains why Paul tells us to “pray without ceasing.” (1 Thessalonians 5:16-17)
Over the years as I have learned to sit still and just listen to God, I have found peace in my health journey and in every area of my life. What a beautiful gift.
When prayer truly becomes a way of life, nothing happens by chance. No moment stands alone. Everything is connected. Good or bad, nothing is wasted. Every circumstance is an opportunity to see God, a realization of his movement in the world.
Prayer, the transformative kind, cannot be rushed. Short little pop up prayers are not wrong. God can use those prayers in powerful ways. There is also nothing wrong with scheduling a time for prayer. But I believe to truly experience God and the Spirit’s fruits (love, joy, peace, etc.), prayer must become something our day revolves around rather than something crammed into an already busy schedule.
I encourage everyone not to hurry through prayer. You just can’t. In America, everything is built on speed. We’re an on-demand, right this minute culture. And while there’s nothing inherently wrong with this, it’s toxic when we try to impose these cultural values onto prayer.
A few more thing I believe we sometimes miss about prayer.
Prayer is intensely personal and extremely intimate. When it comes to intimacy, how you approach it with God is how you approach it with everything in your life. If you struggle to find intimacy with God, it will impact intimacy with your spouse, family, friends, and everyone else you connect with in life.
Prayer shapes our capacity for relational intimacy. It’s hard to be intimate with another divinely-created person when you’re not intimate with the divine Creator.
My health issues continue to be a battle, but I strive to be still and listen to God throughout my day. By doing this, I feel more connected to God and I am more grateful for my life and relationships. I am also more concerned about the wellbeing of others. This journey is not all about me.
Coincidence? No. I believe my increased intimacy with God has given me a different lens in the way I look at people and the world.
So, as I continue to walk out this health journey, focused and intimate prayer will continue to be a major part of my life. I pray as you walk out your own journey, prayer will guide your steps and become a special and life changing time in your daily life. ~OC
Keep Living!
Good Morning! As I have walked through this crazy beautiful health journey, I have always tried to be honest and transparent about my health issues. So I wanted to share the latest update with you. I do not share this update for pity, but to hopefully encourage anyone walking through their own journey.
I met with my medical team this past week. The doctor shared my Parkinson’s has moved to Stage 3 out of 5. He upped my medication and started me on some new medication. The doctor wants me to start using a cane and a voice amplifier. My Myasthenia Gravis and Gastroparesis has gotten worse. Eating has become more of an issue. The doctor shared I could be in the beginning of a major decline. Not sure about that, because I have a lot of fight left in me. Laura and I continue to stay encouraged and believe God has some amazing plans for our future. We look at this as a little bump in the road. I am truly looking forward to all God has for me in this next chapter of the journey. ~OC
Bend, But Don’t Break
Today’s a new day! You may see me bend, but you’ll never see me break. Not by my strength, but by the love, strength and grace of God. ~OC
God’s Voice
Today’s a new day! I have been walking this crazy beautiful health journey for over twenty years. Anyone who has endured long term health issues will understand immediately the agony of this path, not only on your own body and life but in the lives of those that love you. But in the middle of all of that, I have learned to recognise the quiet voice of God. To date, God’s voice has not let me down or steered me in the wrong direction. His voice brings peace and comfort and allows me a chance to breathe when the reality of my battle would seek to crush the very air from my lungs.
So I continue to lean into God and make sure His voice is the one voice that doesn’t get ignored. Over the years, I have learned how to weed out the voices that would seek to bring harm, no matter how well intentioned and allow only those voices that bring hope, peace and encouragement. I know there will be some who read this post and call me naive. But you know what? I don’t care.
My journey, my rules. It’s my race and I decide how to run it. And in the center of my race, I choose to run into the unfailing words of God.
I have no idea what this crazy beautiful health journey holds for me, but I know that if I am anchored with deep roots in God’s Word, I will continue running a strong race. As grateful as I am for my medical team and the medications that keep me going, I have never put my hope in them. My hope, my confidence, is in the God of Heaven.
He will never let down. ~OC
Walking Through Grief
Today’s a new day! As we walk into the second week of 2024, I know many are still grieving a loss. Some are currently in the process- some are preparing for a loss and for some the loss has already occurred. For some the loss is fresh, for others the loss took place twenty years ago. Grief comes in many forms. Maybe it’s the death of a loved one, possibly the end of a relationship or maybe a devastating diagnosis. But whatever the loss and wherever you are now, lean into your feelings, reach out to your community and put in the work involved to deal with your grief. Be present during these difficult times. Do not numb out all your feelings. Do not run away from the pain and loss. As much as you can, stay present. Lean into God’s love, kindness, strength and healing and you will find all that you need.
If you are walking through a season of grief it’s okay – lean in, open up, feel what you feel, as much as you’re ready. Showing up goes a long way. ~OC