Tag: Hope

Let It Start With Me

Dear God, As we wake up this morning we pray for the end of violence and hatred and discord. Steady the tongue that rushes to spread painful words and the fingers poised to pull the trigger of disunity. Bring justice to the downtrodden, restoration to the marginalized and abused, hope to the hopeless. Guide all those in positions of power—whether that power is political or physical or social—and give them wisdom to use their power wisely. Give them, and all of us, the grace to admit when we are wrong and to seek forgiveness. We pray You would give us the grace to forgive.

Dear God, help us see your face in the faces of everyone around us. Give us courage to love one another even when love seems like a risk. Give us compassion for those who are unlike us. Teach us to listen to those we disagree with, to hear stories that make us uncomfortable. Heal the hatred around the world and let it start in our own hearts first. Amem. ~OC

0

That’s What Friends Are For

Based on my earlier post, several people reached out to see what they could do or what I might need. As I continue to move through this new phase of dementia, there are plenty of tools and games to try and keep my mind sharp. Some of them help and some are still in the testing phase. The one thing that has proven to help, is visits and phone calls from friends. So when people asked me how they can help, I encourage them to call or visit. So I will leave the ball in your court on how you choose to respond to this post. Please know I am always praying for you. I pray everyone has a beautiful weekend. ~OC

0

Morning Prayer

A Morning Prayer. ~OC

Dear God, we lift before you the needs of our hurting world, knowing full well that your heart is already grieving for all the loss, the destruction and death in Washington D.C., Philadelphia and the needs around the world.

We pray for those who are hungry with no hope of being filled,
for those who are sick with no hope of medical attention,
for those who are fearful with no hope of rescue.


We come to you on their behalf asking for provision, for you are the Hope that does not disappoint.

God, raise up leaders in our nation and world who are courageous to stand against the evils of the world.

We wonder, Lord, sitting in our privilege and comfort, arguing about first world problems, if it’s even possible to serve you faithfully without running water or basic freedoms, so we pray that you would protect our brothers and sisters in Christ whose lives may be threatened because they have chosen to set their hope in your unseen Kingdom.

Enlarge our compassion, Dear God, for we are a distracted people who scroll past misery and then complain about our slow internet speed. Thank you that you are a God who can hold and respond to the pain of every nation, every man, woman, and child as if they were the only voice in your ear. Hold us in faithful prayer for our hurting world, for we dare not look away from the suffering of others lest we become callous, deaf and blind to your calling upon our lives. In Jesus’s precious name, AMEN

0

Welcome to February 2025

Welcome to February 2025! Several people have inquired about my health the past few days, so here is a quick update.

My body continues to slow down. I am sleeping the majority of the day the last few months. The doctors believe based on some recent infections, my neurological issues have gotten much worse. Harder for me to get around these days. This past Monday, doctors believe I had a small TIA (mini stroke). Thankfully I was not hospitalized. Sadly, my dementia is further along than first thought. Of course that could have been caused by the multiple infections and procedures I had towards the end of last year. The doctors have decided with the complex headaches and further risk for a stroke, that it’s not a good idea for me to be driving. I must agree. So this past Monday, we sold one of our cars and are happy with the one car we have.

I do not look at this as a sad time in my journey. I choose to look at all the amazing opportunities that are still in front of me. So I will continue to wake up every morning with gratitude in my heart and give God thanks for another day of life. Physically and Mentally, life is much harder these days, but honestly I would not trade my life and all of the beautiful moments I have experienced and will continue to experience. Laura and I are at peace.

My prayer for each of you, is that you will embrace every moment of everyday and find some sunshine among the clouds. ~OC

0

Unanswered Prayers

Good Morning! Here is another entry from “The Lost Writings of OC.” This was written in 2019.

Today’s a new day! As I reflect back on my life, I am thankful that God said no to some of my prayer request over the years.

In the Garden of Gethsemane, as the cross was getting closer, Jesus prayed to the Father: “He walked away, about a stone’s throw, and knelt down and prayed, “Father, if you are willing, please take this cup of suffering away from me. Yet I want your will to be done, not mine.”(Luke 22:41–42)

Never be afraid to pray the following: Not my will, but Yours be done. By saying that, you are simply saying, God I do not know all the facts. I do not know everything there is to know. My knowledge is limited. My experience is limited. So if what I am praying is outside of Your will for any reason, please graciously, but firmly say no.

I know this can be hard at times. Sometimes we do not understand why God doesn’t give us what we ask for. I am thankful that when I was single, God did not answer my prayers about some of the young ladies I was interested in at the time. If I would have said yes to any of those potential relationships when God was telling me no, I would have missed out on marrying my beautiful bride Laura so many years ago.

As we get a little older, we can look back with 20/20 hindsight, and say, Thank you God for not answering those prayers. Or maybe we can look back and be thankful for all of the prayers He did answer. The point is that God knows what’s best for our lives, even when we do not understand it at the time.

Have you ever forced something to happen? Maybe you even felt that God was saying no to it. You remember how that turned out. . .

Finally, I want to remind you of the words of Jesus and encourage you to remember them: “Your heavenly Father already knows all your needs. Seek the Kingdom of God above all else, and live righteously, and he will give you everything you need” (Matthew 6:32-33). Walk in that truth today. ~OC

0

The Battle

Good morning! Here is another post from “The Lost Writings of OC.” This was written in 2019. Have a great day!

I am a Warrior, Fighter, Conqueror and Overcomer. Some people do not like using those terms when talking about their health journey, but I embrace each of them. Because every day that I am blessed to wake up and make it through another day is a Victory. A Battle won.

The words “fighter” and “warrior” are often linked with our response to illness. I think it’s appropriate. I have walked the halls of hospitals, chemo rooms, hospice rooms and believe me each of those individuals were fighting a battle. Waging war against a disease that is trying to destroy every single part of their bodies.

As I have traveled my own crazy beautiful health journey, I have been blessed to meet and become friends with some amazing “Warriors.” I do not think any of us warriors would consider ourselves to be “inspirations.” Even though a lot of people like to put that term on us. No, we are just focused on making it through the tough moments of the day. The weeks. And for some like me, the years. We will leave all the “inspirational” talk to you.

For many the word “fighting” might sound exhausting. And it can be. There are some days I just want a break from this health battle. When this happens, I do not want to be told I’m inspirational and to “just keep going!” or “battle on!” I just want someone to listen. This is where I have found my “people in my boat” to be so helpful. Even though some have never had to walk through a health battle, they have walked through their own battles in life. One of my friends once shared “Just keep swimming, and when you can’t swim, just float.” Some days I just want or need to float for a while.

So I will continue to use terms like Warrior, Overcomer, Fighter and Conqueror. I believe these terms unite those living with chronic health problems. We will fight and overcome together. ~OC

0

Life with Myasthenia Gravis

Good Morning! More writings from the “Lost Writings of OC.” I thought I would share a little bit about my Myasthenia Gravis (MG) experience with you today. I originally wrote this in 2024 and updated it several weeks ago. As I share this with you, my MG is getting much worse.

Today’s a new day! Myasthenia Gravis (MG) is an autoimmune disease that causes muscle weakness. But what exactly does muscle weakness feel like? To understand more, let me walk you through a typical day with MG.

For me it feels like I’ve run out power. In general, I feel it’s a huge effort to move when I’m very weak. When my legs are weak, they feel heavy and unsteady. I feel like I cannot move them or trust them to hold me up. The weaker I get, the closer and closer my steps get to each other, until I have to stop and lean against something or just sit down.

Also, I get pain in my hip flexors – basically my butt. It’s the same kind of pain you get from overdoing a workout: an achy soreness that feels like you have overused the muscles. These days, I deal with hip pain on a constant basis.

When my shoulders are weak, which is most of the time lately, I feel like I just cannot lift my arms. Like there are heavy weights holding them down.

My neck continues to get weaker. I just cannot hold my head up. It falls to the side or down, or I have to prop it up with my hand on my chin and my elbow on a table, or with a U-shaped neck pillow and a high-backed chair. As my neck weakens, I develop achy pain in my upper back from trying to hold my head up. I sometimes get a nauseating gagging sensation from my throat collapsing.

Eating with MG can be a challenge from having to take breaks while eating, to choking on solids and fluids. Sitting down to eat or drink is a major undertaking. I also start to slur my speech, and I get short of breath from minor exertion, or sometimes just sitting still.

I always have muscle weakness, but it gets more severe with heat, exertion, lack of sleep, infections, or other stressors. Summertime can be very challenging. Extreme cold is not my friend either.

Based on my weakened lung muscles, I am unable to take deep breaths. This causes issues on so many different levels. These days, every breath is a struggle.

I have to stay on top of my medications for the Myasthenia Gravis. I have to take one of those medications four times a day. Oh, I better not miss those dosages or things can go down hill pretty quickly.

I try to dress in cool fabrics and wear layers in winter. And I try to protect myself from sickness by keeping my vaccines up to date, wearing a mask when needed , and using hand sanitizer or washing my hands frequently when I am out of the house. I tend to fist bump and avoid shaking hands or hugging.

You know how much I love to walk, but that is getting harder these days. I have added a walking stick to help with my balance. This is a far cry from my marathon days

My medical team continuously tells me I am a one in two billion case with all of the multiple diagnosis. With Myasthenia Gravis, I fall into a small group of people being diagnosed with MG after having their thymus removed. My cancerous thymus was removed in 2003, but I was not diagnosed with MG until 2009. I will not go into what the thymus does, but feel free to research on your own.

How friends loved ones can help

One thing my friends and family do for me that’s immensely helpful is helping to educate themselves on Myasthenia Gravis so they can explain it to others and better understand my daily challenges.

I only have a few people besides my bride, who truly know me and my MG that well, but they are lifesavers. They’re also the ones I’ll talk candidly to when my MG gets me down. I cannot be relentlessly cheerful all the time, but I try.

I hope this gives you a better understanding of what Myasthenia Gravis looks like and how it affects my life on a daily basis. Each day is a struggle, but I continue to push forward and look at all the positives in my life. I encourage you to do the same. Go have a great day! ~OC

Dear God, Sometimes the pain is so great, I cannot think beyond my current struggle. On hard days, please ease my pain and help me focus on Your goodness one day, one hour, one moment at a time. Let Your overwhelming peace wash over me and remind me Your mercies are new every morning (Lamentations 3:22-23). There are days when I beg you to take the pain away. Days I just don’t have the strength. In those desperate times, I ask for Your unending strength to sustain me. I cannot do it alone, but with You all things are possible (Matthew 19:26). Amen

0

My Life With Parkinson’s

Good Morning! I wanted to share a bit of my Parkinson’s experience with you today. I was diagnosed with PD in 2007. The disease is starting to take its toll on me, but I continue to live with an attitude of hope. I originally wrote this in 2019 and updated it the first of 2025.

Today’s a new day! Living with Parkinson’s takes hope, persistence and a strong will to live. Because Parkinson’s never takes a day off. Parkinson’s is a daily battle. In the presence of Parkinson’s, one must have courage, the strength of character, and for me a strong faith.

While there’s life, there’s hope. Each morning when I wake, I do a full-body inventory, thinking ‘Okay body, what awaits us today?’ I remain hopeful that my just-completed sleep has re-fueled my brain and re-stocked my body. Of course that’s on the nights I actually sleep. Cloaked around every fiber of my body is my unwelcome guest named Parkinson’s; however, the day has started anew, and there is much to accomplish. I use hope as an anchor to secure my body and mind against the slowly rising tide from Parkinson’s. There is still time while staying hopeful.

Living with a positive attitude makes a big difference. Before I get out of my recliner, it can be easy to feel sorry for myself. I have Parkinson’s, a progressive neurodegenerative disorder. And that’s the negative mindset Parkinson’s has provided but I try to never allow myself to stay there for very long. There are days that are going to be difficult; yet staying positive and focusing on the plans God has for my life is where I choose to place my focus. I choose to look at my life with a positive attitude. That is completely opposite of how this disease wants me to feel and live.

I have found living this journey and sharing my story has been a privilege of a lifetime. I start each day with a prayer to focus on what plans God would have for me on that particular day. I choose to stay engaged with the everyday activities of life. Things are starting to get much tougher these days, but I make the choice every day to embrace life to its fullest. I remind myself there is much left to accomplish in my life even in the presence of Parkinson’s. I will close with a prayer I lift up to God every morning:

Dear God, thank you for another day. Simply use me today. This is going to be a good day. I remain hopeful not hopeless, positive not negative, happy not sad, and driven not complacent. Thank you for Your strength, wisdom and courage as I walk through this day. Amen. ~OC

0

Peace and Contentment

Good Morning! Life can be full of chaos, but we can still find peace. I hope this “Another Lost Writing from OC” gives you something to think about. This post was written in 2020.

Today’s a new day! The world can often feel chaotic and uncertain. How do you know how to respond to what the world throws at you? Recently, I took a look at Paul’s letter to the Philippians found in the New Testament. This is a letter that Paul wrote while he was in prison. He was living through turbulent times and how he encouraged believers back then directly applies to us still today. In particular, what he wrote in Philippians 4 offers us a beacon of hope today.  

So how can you find peace in these turbulent times? Here are ways Paul encourages us in chapter 4. 

“Rejoice in the Lord always. I will say it again: Rejoice!” – Philippians 4:4

It is easy to rejoice when things are going well, but how about those tough and turbulent times? Paul calls us to rejoice then, too. He invites us to find joy in our relationship with God, regardless of our situation. It is a choice, a practice, and a powerful testimony to the world around us when we can rejoice in God always.

Don’t worry about anything, but in everything, through prayer and petition with thanksgiving, present your requests to God. And the peace of God, which surpasses all understanding, will guard your hearts and minds in Christ Jesus.” – Philippians 4:6-7

Anxiety often stems from feeling out of control with all that is going on around you. When we feel anxious, Paul provides a practical solution: bring everything to God in prayer, coupled with thanksgiving. This practice shifts our focus from our problems to the Problem Solver. The result of this rejoicing, gentleness, and prayer is a peace that defies all human logic. This peace serves as a reminder that God is protecting us from the onslaught of worry and fear when we trust and rely on Him.

“I don’t say this out of need, for I have learned to be content in whatever circumstances I find myself.” – Philippians 4:11

Paul’s secret to contentment wasn’t found in his circumstances. He was content always because he knew that no matter what situation he was facing, he could rely on God’s strength rather than his own resources.

In conclusion, life can be complex and we live in turbulent times. However, may we take these lessons from Philippians 4 to heart. Let’s choose joy, practice gentleness, pray instead of worry, and find our strength in Christ. In doing so, we may discover a peace and contentment that truly passes all understanding. ~OC

0

Leave Your Burdens

Good Morning! Here is another writing from the “Lost Writings of OC.” I wrote this back in 2019.

Today’s a new day! As many get ready to start our day, some are filled with various burdens. Maybe it’s a personal thing in our life. Maybe it’s a strained relationship. Maybe your world has been rocked by a devastating loss. But at this moment, your life is burdened by the heaviness you are carrying.

It seems that these burdens are just too big to handle. In Psalm 55 we read, “Cast your care upon the LORD, who will give you support. He will never allow the righteous to stumble.”

Life seems overwhelming at this moment, but has we wake up on this Sunday morning, today is the best day to cast your fears, burdens, pain, anger, resentment, to the Lord. It’s time to “let go, and Let God.”

There is no better time to leave all your burdens at the feet of Jesus. It is time to release those burdens to the One who will never allow us to stumble. It’s time to unburden ourselves of these problems that have eaten away at us for far too long.

Let today be the day, that you release all of your problems, cares and burdens to the Lord, realizing that you cannot handle them by yourself. Whether at a church or the comfort of your home, make the life changing decisions to release everything to God.

Today, let’s let go and let God. Let’s lay our burdens at the foot of the cross. Take my heart, loving Father as I put it in your hands. Today, I release all my burdens and trust in You. ~OC

“Do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God. And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus.” ~Philippians 4:6-7

0

Blog at WordPress.com.

Up ↑