Tag: Journey

Be Your Own Best Healthcare Advocate

Today’s a new day! I have been what my bride calls a “Professional Patient” for almost twenty-three years now. During this journey, I have encountered health professionals who appeared to be more concerned about egos and status than they did my well-being. For some medical providers, I was just a name on a file who happened to have very good health insurance coverage. They knew more than me because they had the title of Doctor attached to their name. Being so foreign to how the world of healthcare worked, Laura and I just went along with whatever the doctors or medical professionals directed us to do. They’re the professionals. They know what’s best for me. Right? In the famous words of Lee Corso from GameDay on ESPN, “Not so fast my friend.”

As Laura and I began to navigate this new world called the healthcare system, we found out that the most important voices were our own. If we did not stand up for my medical needs, who else would? That’s when we realized we needed to become not only our own healthcare advocates, but we needed to help other patients walking through their own crazy beautiful health journey. We recognized being a “Professional Patient” was actually a full time job.

Over the years, we have had to privately and sometimes publicly voiced some of my medical concerns. Which is not naturally part of my DNA. Or so I thought. But this is my life and my health we are talking about. As Laura and I have weaved our way through the world of health challenges, here are some of the most important pieces of advice I believe I can offer for those walking through their own health journey.

* Do not wait to speak up and share your thoughts and concerns. You know your body better than anybody else. If something doesn’t feel right or sound right speak up. If your medical team truly cares for you they will welcome this dialogue.

*Do not be afraid to get a second or third opinion. This is your life. We only get one.

*Do not be afraid to change doctors or hospitals if needed. Find a medical team that you truly feel has your best interest at heart.

*Have a great support system that can speak up on your behalf when you are unable to.

*Never stop learning about new treatments and medications that pertain to your health issue. Do not hesitate to share that information with your medical team. Once again, if your medical team cares for your well-being they will welcome those conversations.

*Take the time if your health allows, to help someone else navigate through this overwhelming healthcare system .

*Remember, it’s called practicing medicine for a reason. Your doctor and medical staff are human. Mistakes can happen. Allow those to be a teaching moment for all parties involved. Be kind and respectful, but firm.

*Be patient with yourself and your medical team. The healthcare system can be messy, stressful and complicated. Do not be afraid to show a little grace to yourself and others.

I really hope this helps someone navigating through a maze called the healthcare system. Be Your Own Best Healthcare Advocate. ~OC

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That First Christmas…

Today’s a new day! I love the Christmas season. The songs, the lights and everything bright and merry. As I was listening to the classic “ I’ll Be Home For Christmas”, I started reflecting on that first Christmas so many years ago.

Joseph and Mary were not at home. They were not surrounded by family and friends.

That first Christmas was not beautiful to behold when viewed from a human eyes. There were no fun holiday parties to attend with friends and family. No prizes for the best Ugly Christmas Sweater. There were no merry songs “making spirits bright.”

That first Christmas was a dark, musty barn with little more to offer than a manger with some straw. It was strangers—smelly, dirty strangers—visiting instead of the faces of familiar loved ones. It was feeling far away, lonely, and no doubt afraid and anxious because of the unknown.

That is what “Joy To The World” first looked like.

That first Christmas was about a young couple who followed an unseen God on a journey that was impossible to understand—a journey that led them into a dark, lonely, and humble place so that The Light could break forth in an unexpected and glorious way.

Joseph and Mary would not have chosen to script their story the way it unfolded. If they had, there wouldn’t have been a virgin birth. There wouldn’t have been a stable visited by shepherds. They wouldn’t have chosen to leave their loved ones to travel so far from their comfortable home at such a delicate time. Joseph wouldn’t have chosen to face the utterly disappointing words “There’s no room at the Inn”, for his needy bride. Had they chosen to write their own story, it would have looked better to the human eye.

But . . .because they chose to let God write their story, it was beyond beautiful. Because they accepted God’s story for their lives, their arms were the first to embrace the human form of The One who had held them and carried them to this point. In the midst of obscure details and overwhelming circumstances, Joseph and Mary went. There they were rewarded by the physical presence of the Almighty God. Joseph and Mary went, but Jesus came. 

He came! That is why we can sing “Joy To The World” with such happiness this Christmas season.

The story of Jesus is that He came. He came in the form of a precious baby. Jesus came to change lives. He came to bring great tidings of comfort and joy. Jesus came to bring peace on earth. The world forever changed on that first Christmas night.

Emmanuel, God With Us, still comes. That’s His story. That’s our story.

When we throw ourselves into accepting and loving and living out His Story without reservation, we find out what an overwhelming, beautiful story and gift it really is. Merry Christmas! ~OC

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Never Give Up

Today’s a new day! Life can be hard. There are times when we feel like giving up. The weight and challenges of the world can feel overwhelming. But never forget, you are stronger than think. We read in Philippians 4:13, that we can do all things through Christ who strengthens me. This isn’t just a feel good verse; no it’s a promise. No matter how hard life gets, you have the strength to keep moving forward. Every challenge you face is an incredible opportunity for growth. The journey might be hard, but it’s forming you into a stronger, more resilient version of yourself. Keep moving forward, even when life is difficult because every step forward brings you closer to your breakthrough. To your purpose in life. Keep holding onto hope. Keep the faith and the strength that you were created with. Remember, you have what it takes to keep persevering. Better days are ahead. Do not miss the lessons during the tough times of your life. Never give up! ~OC

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Celebrated

Today’s a new day! Go where your celebrated,not where your tolerated. Protect your peace. Always be who you were created to be. ~OC

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Forgiveness

In Matthew 6:9-15 we read the following words:

Pray then like this:

“Our Father in heaven,
hallowed be your name.

Your kingdom come,
your will be done,
on earth as it is in heaven.

Give us this day our daily bread,

and forgive us our debts,
as we also have forgiven our debtors.

And lead us not into temptation,
but deliver us from evil. For if you forgive others their trespasses, your heavenly Father will also forgive you, but if you do not forgive others their trespasses, neither will your Father forgive your trespasses.

This is just one of many lessons Jesus taught us about unforgiveness. He shared on numerous occasions about not allowing unforgiveness to reside in our hearts. God shared those who refuse to forgive others will not be forgiven by the Father. Be careful not to misunderstand Jesus’ meaning here. We do not lose our salvation when we refuse to forgive others. Rather, we break fellowship with God because an unrepentant attitude interferes with regular confession and turning away from sin.

Forgiveness is an act of the will more than an act of the heart. We do not often feel like showing mercy or forgiveness to someone who’s wronged us, but but that’s exactly what we’re called to do (Matthew 5:38-40). A resentful spirit grows into a terrible burden. God knows that forgiveness is best, even when it is difficult. Claim the divine mercy He offers, and ask Him to enable you to lay aside your frustrations, anger and resentment. As part of the decision to move forward in grace, make a habit of praying for those who hurt you. And if God so leads, seek their forgiveness for your wrong attitude or actions.

A bitter spirit doesn’t fit who we are in our relationship with God. That’s why there are so many scriptures about forgiveness. We have to choose to be liberated from our burdens and unforgiveness. Did you catch that? We have to make the choice. God promised to make us free when we choose to believe and obey Him (John 8:31-32). Freedom from our burdens sounds pretty good to me. ~OC

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Joy!

Today’s a new day! Being chronically ill comes with a lot of ups and downs and a wide range of emotions. These emotions can be so strong and overwhelming at times. As you walk through the different stages of being chronically ill, you are faced with a lot of situations that you could never prepare for and those moments can make you feel like you’re on an emotional roller coaster. Physical health affects your mental, emotional and spiritual health more than people would think.

When you are chronically ill, your life becomes a vicious cycle of intense symptoms and flares. This can leave you feeling completely hopeless and lost at times. But even at moments when it feels impossible to find joy, it is possible, even on the darkest days. Some days you have to search a little harder for that joy but it is always there. Joy looks different to everyone. As a chronic illness warrior it is so important that you surround yourself with joy because it is easy to lose hope of experiencing pure joy again.

I find joy in many ways in my life and I really make an effort to make those things a part of my daily living. One of the main ways that I find joy/happiness is by leaning into my faith. My faith has allowed me to overcome a lot of tough moments in this journey. I also surround myself with the love and support of my family and the few friends who have decided to stay in the boat with me. A supportive group of people have the ability to turn my bad days into great days. I am so thankful for each of them because they not only provide peace/joy, they also give me so much hope. I also find joy and happiness in doing things I love such as: writing,listening to music and making memories with my bride.

The past month has been filled with more tough news regarding my health. Looking back on the past month, joy has still there even in the darkest days. Sometimes during hard times things become so overwhelming that we forget that even then we can still find joy in the little things. It is okay to have bad days but it is so important that everyday we challenge ourselves to stop and find happiness and joy. Joy always outweighs the bad and it is so important that we remind ourselves of that. Have a great day! ~OC

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Loving Your Bride

Today’s a new day! Some days, you make decisions that change the trajectory of the rest of your life.

On a January morning in 1999, I decided to attend something I had never attended before. A singles event hosted by my church. I have never been a fan of single events. That is another blog post for another day. But that beautiful morning in Palm Beach, FL, I would meet a young lady that would change my life forever. That was the day I met my future bride Laura.

Last week we celebrated our twenty-five wedding anniversary. As I have walked through this beautiful journey called marriage, I have learned a few lessons about marriage. Obviously, these lessons come from my experience has a husband.

As I have looked through scriptures over the years, looking for ways that Jesus loves the church, ways that he calls me to echo his love for me in my love for my bride, I have found several great lessons, but I will only share ten of them. God calls you, as a husband, to love your wife like Jesus loves her. I hope you will reflect and pray over the following lessons.

1). Stubborn Love:
Jesus won’t ever leave his bride. He says to her, “Behold, I am with you always, to the end of the age” (Matthew 28:20). His love for your bride is based not on her performance but on his covenant love for her. When we keep our marriage covenants through all of the challenges and changes over years of married life, we reflect his kind of stubborn, delight-filled love. May our brides know the comfort of love that says, “I will never leave you nor forsake you” (Hebrews 13:5). As everyone knows, Laura and I have had our challenges with my health.

2)Hopeful Love:
When Jesus looks at your bride, he sees her as already sanctified. This hope is anchored in the power and promise of the gospel. Paul writes to believers, “You were washed, you were sanctified, you were justified in the name of the Lord Jesus Christ and by the Spirit of our God” (1 Corinthians 6:11; italics mine). In fact, he sees her not only as already sanctified but as already glorified (Romans 8:30). How often would your bride say that your love for her “hopes all things” (1 Corinthians 13:7)? By keeping eternity in mind, you can have patience with your bride, just as Jesus does with her—and you.

3). Pursuing Love:
Jesus never takes a break from pursuing our bride’s heart, not romantically but persistently. In fact, he cares not only about her devotion but also her affection (Psalm 37:4). He is the tireless Shepherd who leaves the ninety-nine to seek after the one (Luke 15:4–7). In a similar way, God is glorified when a husband continually seeks a deeper relationship with his bride. A husband who has been captured by Jesus’s love is an incurable romantic toward his bride.

4). Forgiving Love:
Jesus gives our bride’s grace when they do not deserve it. It may be that the most Christlike thing you can do is offer your bride forgiveness on a daily basis, remembering that you too are in need of forgiveness. The picture of forgiving love that every husband should seek to emulate is Jesus making breakfast for Peter who had sinned against him, denying him three times at his crucifixion (John 21:12–15). Is it you or your bride who is usually the first to begin to move toward reconciliation when it’s needed?

5) Joyful Love:
Jesus doesn’t just put up with your bride or grudgingly, but persistently love her—Jesus loves to love her. He delights to be with his bride. He receives joy by giving us joy (Hebrews 12:2). Wives who are loved this deeply, who know their husbands love to love them, are often an even greater blessing to others. Love your bride so joyfully that it’s obvious to her and others.

6).Serving Love
Jesus served her in life and death. There is nothing and I mean nothing, that God can call you to do for your bride that would be too much! Jesus “gave himself up for her” (Ephesians 5:25). Many husbands think of themselves as kings to be served, but you and I are called by God to be the chief servants in our homes. The way to Christlikeness in our marriages is through joining Jesus in taking up the towel and the basin (John 13:12–17).

7). Sanctifying Love:
Jesus loves your bride by helping her to grow in holiness and by being her advocate before the Father (1 John 2:1). Do you encourage your bride to go to Bible study, even if it means you have to care for the kids by yourself or cook dinner for yourself? Do you regularly bring your bride before the Father in prayer? Work hard to help your bride blossom spiritually.

8). Leading Love:
Jesus leads us to what is good for us. Jesus not only loves your bride with a leading rather than a passive love, but he also leads her toward what is good (Psalm 23:2). It is impossible to lead our brides spiritually if we ourselves are not being led by God through the Word and prayer. One way you can lead her well is by seeking her input and then making big decisions (and accepting the consequences), rather than allowing the decisions and consequences to fall to her.

9). Providing Love:
Jesus provides your bride with all that she needs. Do you notice your bride’s needs, even beyond physical provision, and do something about it? Christ nourishes her, providing an environment for growth and flourishing. The apostle Paul explains to us that “in the same way husbands should love their wives as their own bodies” (Ephesians 5:28). It made a marked difference in my marriage when I realized that it was my responsibility to do what I could to fill my wife’s sails

10). Knowing Love:
Jesus knows your bride better than she knows herself. He has an informed love for her. He knows her strengths and her weaknesses, and he acts on her behalf (Ephesians 5:29–30). While we will never know our bride’s like God knows them, he wants us to know them as well as we can. Our prayers for them will always be hindered if we fail to know them (1 Peter 3:7). Our bride’s know they are cherished when we make an effort to really know them.

My Brothers, we have an enemy, that ancient serpent, who desires to squirm his way into our homes and cause havoc. But praise God, we know the snake crusher, Jesus, who has already defeated him and loved us with a supernatural love. Know that when you love your bride like Jesus loves her, the foundation of your marriage is strengthened, Satan is defeated again, and Christ is lifted up for more to see. Keep loving and honoring your bride. ~OC

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Friday Night in the 80’s

It’s Friday! Let’s take a trip back to the 1980’s in West Palm Beach, FL. You have had a long week at school. It’s time to relax and let loose. You spend a lot of time getting ready for a night on the town. Gotta look good! Ladies have to have that 80’s hair on point. Guys have to pick just the right cologne. You jump in a crowded car and see where the night takes you. First stop is the mall. Do you hit the Palm Beach Mall or the Cross County Mall? Maybe you scope out both. If you hit the Cross County Mall, you might check out what’s playing at the AMC Movie Theater. Then you might scroll over to the Arcade. Oh, everyone is getting a little hungry. You head down to Mamma Leone’s for a slice or two. You hang out for a while and decide what’s next. No one can decide on a movie, so you decide to head to Galaxy Skating Rink. You’re bound to find some friends skating to the amazing sounds of the 70’s and 80’s. You spend a few hours skating round and round, then you decide it’s time to head back to the Cross County Mall and get some ice cream at Swenson’s. By that time some new friends have jumped in the 🚘. Maybe you know maybe you don’t. It really doesn’t matter. After making yourself half sick on all the ice cream, you decide maybe you’ll hit a midnight movie at the theater. Maybe you have a friend working there who will let you in for free. After a night of fun, you head home with some amazing memories. Memories that will last a lifetime. Enjoy your Friday night! ~OC

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Broken

Today’s a new day! The truth is we’re all broken, we’re all cracked and what so many people see as a fault or a malfunction really is something to be considered useful. Turn that brokenness into a blessing. ~OC

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His Hand

Today’s a new day! God offers His hand, holds yours and shelters you under His wing during the storms and crashing waves. ~OC

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