My Life With Dementia

Today’s a new day! As I continue to walk through this crazy beautiful health journey, I have always wanted to be upfront and honest when sharing my journey with you. So this morning, I want to share a post I have been working on for several weeks. It’s my life with dementia. I apologize in advance for the long post.

When I was diagnosed with young onset dementia last year, part of me thought there has to be a mistake, but it was also a relief to have some answers on why my life seemed a little out of focus. But it was still hard to hear “you have dementia.” Like so many people diagnosed with young-onset dementia, I was still planning a future with my bride. How was dementia showing up in my 50’s?

But here I am, almost a year later.

What I have learned is a dementia diagnosis isn’t the end of life. It just means life looks a little different.

Of course my life has looked a little different for the last twenty-three years dealing with multiple health issues. But over the last two decades, my faith and life experiences have taught me it’s possible to live a fulfilling, purposeful, and even joyful life even while dealing with the uncertainty of declining health. A diagnosis of dementia was not going to change that. At least I hope and pray that will be the case.

So as I walk out this journey called dementia, I wanted to share a few things that are working for me. This is not a neat how to live with dementia list, because dementia is not an easy follow these instructions and everything will be okay disease. No, dementia is a unpredictable roller coaster ride. Every day brings new challenges, but also new opportunities.

My hope and prayer is that this blog post will help create conversations. If you’re living with dementia, or supporting someone who is, I hope these tools help you live a full life regardless of the diagnosis.

My Dementia Toolbox:

I choose to live each day with Hope and Purpose.

I choose to live a life full of new adventures. Never stop making memories with family and friends.

I choose to maintain my independence as long as possible.

I choose to continue connecting with family and friends.

I choose to adapt to the changes dementia brings and never give up.

I choose to hold onto my identity and what makes me “me.”

I choose to keep learning new things each day.

I choose to live out my life and faith.

I choose not to avoid the declines that dementia brings, but to make the most out of every day and refuse to let dementia silence me.

Finally, living with dementia is not an easy journey. There are moments of loss and frustration, but there are also unexpected discoveries, laughs, and the good will of family and friends. ~OC

Potholes in Life

Today’s a new day! Last night after my doctor’s appointment, Laura and I drove around town a bit. There is so much construction going on around us. Also a lot of potholes and roadblocks to navigate around. At times, I felt like I was on some type of ride at the fair.

On our journey through life, we also face many bumps and potholes along the way. There are financial, relational, and medical trials that will come into our lives. What we do when we come to a bump in the road is usually slow down or come to a complete stop in order to better assess the situation before moving forward. We must also keep a certain balance ourselves, so as not to falter or fall down. There are times when Christian friends will come alongside us and help us to navigate these bumps in our lives. At times, if we become stalled for a long time, they might gently urge us and encourage us to move on and continue on the road of life.

“Those of us who are strong and able in the faith need to step in and lend a hand to those who falter, and not just what is most convenient for us. Strength is for service, not status.” ~Romans 15:1

As we were driving around town, it was only Laura and I paying close attention to the road construction around us, that saved us from hitting one pothole after another. It also helped that we knew some of the potholes were coming, so we were able to avoid them. Knowing the road allowed us the grace to prepare ourselves for the bumpy ride.

But what about the times when we don’t know what lies ahead of us on this journey called life or what’s around the next corner? In those times, we need to turn directly to Jesus. He knows the road ahead, and we can always depend on Him to guide us safely through those bumps in the journey.

“The Lord himself goes before you and will be with you; he will never leave you nor forsake you. Do not be afraid; do not be discouraged.” ~Deuteronomy 31:8

Prayer for the Day: Dear God, help us to turn to You first when we face the bumps and potholes in our journey. We know that You are more than capable of helping meet our needs. Dear God, help our unbelief in times of trouble. Make us a people able to stand strong as we or a loved one walks through the bumpy moments in life. We pray all of this in your powerful and matchless name dear Jesus. Amen.

Doorway

Today’s a new day! It was through the doorway of suffering that Jesus opened the way for us to walk through suffering with supernatural joy, peace, and hope. ~OC

Attitude of Gratitude

Today’s a new day! As we move through the busyness of life, it’s easy to look around at everything we do not have instead of taking the time to slow down and be thankful for everything we do have in life. In the coming days and weeks, I want to focus on having an attitude of gratitude.

As I have walked through this crazy beautiful health journey, I have made the choice to be grateful for the lessons and blessings I have experienced along the way. I believe that decision has transformed my life and hopefully a few other people along the way. As a Christian, I have much to be grateful for. I have been blessed with the gift of salvation through Jesus, I have the Holy Spirit living inside me and I have a loving God who cares for me and provides for my needs. But if I am not careful, I can start taking these blessings for granted and focus on the things I do not have.

That’s why it’s so important for us to cultivate an attitude of gratitude. Living a life of gratitude can have a profound and positive impact on our overall health and our relationships with others. ~OC

Breakthrough

Good morning! As I have walked this crazy beautiful health journey the last twenty-three years, I have had many moments where I needed a breakthrough from God. As we walk into a new week filled with new challenges, I want to share some things I have done when I needed a breakthrough at different moments in my life.

Pray: This may seem obvious, but sometimes we get so caught up in the roller coaster of life we forget to pray.

But prayer should never be our last resort. It should be the first thing we do when facing challenges in life. We also need to call on some trusted friends to pray on our behalf.

“I wait for the Lord, my soul waits, and in his word I hope.” ~Psalm 130:5

Fast: When coupled with prayer, fasting is a powerful tool to use when you need a breakthrough. And fasting doesn’t mean you have to give up food. A fast is about sacrificing something, so you can clearly hear from God. He may asked you to give up social media, a hobby or tv. Some things do not break with just prayer alone. When you need a breakthrough, fasting is crucial to seeing it come to pass.

“So we fasted and implored our God for this, and he listened to our entreaty.” ~Ezra 8:23

Build Your Faith: I’m just going to be straight up with you: Every breakthrough that I have personally experienced came from leaning into the promises of God. Thankfully, He is so gracious that He has not left us to figure out how to grow in our faith on our own.

“So faith comes from hearing, and hearing through the word of Christ.” ~Romans 10:17

Be Patient and Consistent: As I share this last point, I must warn you that breakthroughs can take time. The breakthrough you need may not come the first time you pray – or the hundredth. It may take weeks or even years. We cannot control the time, but we know that God can. He is always faithful. Our part is to stay consistent. So keep on praying. Keep on fasting. Keep on listening to the word. Keep believing in God. Your day of breakthrough will happen in God’s perfect timing for you.

If you’re waiting for your breakthrough the best thing you can do is remember that it will come at the perfect time. So press in to God and be patient. Your Breakthrough is coming! ~OC

The Broken

Today’s a new day! Jesus didn’t choose the perfect or the polished. He chose the bruised and broken. Let that sink in for a moment. ~OC

“But by the grace of God I am what I am, and his grace toward me was not in vain. On the contrary, I worked harder than any of them, though it was not I, but the grace of God that is with me.”
‭‭~ 1 Corinthians‬ ‭15‬:‭10‬ ‭

Never Give Up

Today’s a new day! I think most people do not like to be uncomfortable. Most people do not like the hard moments in life. Most people do not like to be burdened or inconvenienced. Yet, in the tough moments in life, God never calls us to give up. Instead, He calls us to keep on pushing and trusting Him, even in the most difficult moments.

As a former marathon runner and someone who has been walking through a crazy beautiful health journey for over twenty years, I am used to being uncomfortable. I am used to the hard moments in life.

As I have walked through the tough moments in life, here are a few lessons I have learned:

Never give up on your prayers.

Never give up on the people God has placed in your life.

Never give up on your dreams.

Never give up on yourself.

Never give up when you face hard times or failures.

Most importantly, never give up on God.

The beautiful thing about God and his amazing grace is that He never gives up on us. He calls us back even when we decide to stray away and do things on our own. God is always there waiting for us with open arms. Remember, every battle we will ever face was defeated on the cross when Jesus gave his life for us.

I am not sure what type of season you’re walking through at this moment. Maybe you have been praying the same prayers over and over for years, but they seem like they will never be answered. Don’t give up.

I want to encourage you to never limit God and put him in a nicely decorated box. Allow Him to work through you and never give in to those temptations to give up.

Looking back on all of my marathons, I am so glad I completed each of my races and never gave into the temptation to quit. Based on my health, those marathons were never easy on my body, but each taught me about overcoming and to never give up.

I believe our faith and life journey is like a marathon, it’s not promised to be easy, it’s going to be hard and full of twist and turns, but our finish line and reward in eternity is far greater than anything we could ever imagine.

So today, keep pushing, keep fighting and never give up. ~OC

“I have fought the good fight, I have finished the race, I have kept the faith.” ~2 Timothy 4:7

Walk With a Limp

Today’s a new day! As I continue to walk out my faith journey, I have experienced wilderness moments on more than one occasion. Those moments when life just beats you up. During those seasons, I am always reminded that I am not God. During the tough seasons in life, I am thankful that God still wants to have regular face to face encounters with me. He wants to hear about my thoughts and concerns. God desires to hear from us and to speak to us. As I continue to walk this journey called life, I am often reminded that my thoughts and opinions cannot compare to the divine, sacred and loving wisdom of our amazing Savior.

As I continue to walk out my faith journey, I no longer walk straight. No, these days I walk with a limp. A beautiful reminder of everything God has brought me through. The struggles I have overcome. As I write this post, I am reminded of the quote by well-known Christian pastor and author, A.W. Tozer, who wrote, “Beware of any Christian who doesn’t walk with a limp.”

Dear Friends, our world does not need more people screaming from the rooftops and declaring that their opinions are the only ones that matter. No, we desperately need more limping Christians, who have walked through the wilderness and encountered God in a powerful and life changing way. We need more Christians walking with a limp, who are more passionate about helping those individuals who are currently walking through their own wilderness experience and who are less concerned about their own opinions.

I believe as we look at today’s headlines and the world around us, we need to stand up and speak out for what is right—to seek justice, to love mercy, and to walk humbly with God. I also believe these days are ones to walk with a limp in humility, kindness, love and grace. I pray we will spend more time seeking God’s purpose for our lives and less time screaming that our opinions are the only ones that matter. Today, I pray we walk with a limp. ~OC

Dear Men of God,

Today’s a new day! My apologies to all the ladies today. The following post is geared towards men and the importance of men having solid friendships with other men.

Today, I write from a position of painful experiences. Today, I believe God is calling me to be transparent as I share the following message.

I have tried for years to be involved in Christian men’s groups. Unfortunately, most have never produced much fruit. Several have caused pain, loss and mistrust. Even with that said, I am still open to being part of a Christian men’s group. But not one that is more concerned about a man’s social status in society than they are about the man’s heart. Not easy to find. I definitely do not want to be part of any men’s group that preaches we need to be a man’s man in the likeness of John Wayne.

In a society that celebrates rugged individualism, Christian men are often left searching for and craving connection, but unsure how to or where to find it. Men, the Bible calls us to community. In Ecclesiastes 4:9, we read that “two are better than one.” Yet so many men are struggling to forge deep, meaningful friendships with other men. I am one of those men.

The consequences are real. Loneliness among men are at their highest rates in decades. Loneliness can lead men to make some poor choices, which can ultimately lead to brokenness.

I believe for men to be better husbands, fathers and friends, we need to be surrounded by not just mere acquaintances, but by brothers who sharpen each other “as iron sharpens iron” (Proverbs 27:17).

The Bible is full of scriptures that tell us that we are all created for relationships. Even men. In Genesis 2:18 we read, “It is not good for the man to be alone.” While often shared at wedding ceremonies, this verse actually speaks about our need for companionship. Jesus himself modeled friendship, calling his disciples “friends” (John 15:15).

For Christian men, friendships should not be a distraction from our faith but a cornerstone of it. Men, we need to be surrounded by other Christian men offering accountability and encouragement.

Yet men often pursue other gods—careers, social status, or some type of hobby before seeking out true friendships.

True friendship are a beautiful gift and I believe, an important part of living a life that honors God. In Proverbs 18:24, we read those life changing words “a friend who sticks closer than a brother,” a bond that mirrors Christ’s sacrificial love. Such friendships require intentionality and spending quality time together. And not being afraid to leave the shallow end of conversations and dive into deep, sometimes hard conversations. True brotherhood is also about laughing together and enjoying life.

Men of God, the stakes are high. Loneliness and brokenness are stealing our peace, our joy and our witness. But I believe true brotherhood, rooted in God’s love, can restore each of us. ~OC

Blog at WordPress.com.

Up ↑