Dear Dementia,

Today’s a new day! As most of you know, I was diagnosed with Young Onset Dementia caused by Parkinson’s last September (2024). As I have walked through the past few months, I have thought about this diagnosis and what it means for my future. So I thought I would write a letter to dementia. Hopefully it makes sense.

Dear Dementia, I often wonder if you were a person, what would I say to you? So often dementia tries to fill me with anger, sadness and frustration. But thankfully, I am able to fight off those emotions most days. But some days all those emotions get the best of me.

I think I’ll start with I am a little frustrated with you dementia. I dislike that you’ve made sharing my thoughts and having conversations a little tougher these days. I am a little frustrated that being social has become a bit more difficult for me. Since I am in the early stages of dementia, I have learned a few tricks to hide my struggles from people. But I cannot hide those struggles from myself and that makes me frustrated at times.

I am frustrated that you try and fill my days with grief, loneliness and sadness. I am saddened that some friends find it too difficult to call or visit because they do not know what to say. I am frustrated that you’re trying to take away my memories too, with you being all consuming; you sometimes make it hard to remember how things were before you.

But dementia despite all the frustration sadness and grief, I still choose to live with hope and embrace every moment of life. My bride and I still talk about future plans and trips. We will not allow you to become our identity. We celebrate those days I feel like my old self. Almost like the fog has been lifted. I embrace those days because they will not always be around. I embrace simple moments with family and friends a little more these days. I am thankful for those friends who still choose to treat me like me. Please keep doing that. Even on those days, I might not totally seem like the old me.

I am thankful that God continues to walk this journey with me. He is bigger than dementia and all the other health issues trying to take me out. They may get the best of me some days, but they will not get the victory. No, that belongs to God and I will continue to hold onto that truth.

Dear Dementia, in some ways you have taught me the true value of unconditional love, and I will use that to defeat you. I will never give up on loving my life, loving those in my life and never ever give up on beating you. You’ve brought pain and suffering to so many people’s lives, snuck in and attacked the most vulnerable. But by working with medical researchers and families affected by your cruel actions we will learn new ways to defeat you. One day I will be part of ending you, as you will never be able to take away the unconditional love that fills me up and guides me along this crazy beautiful health journey. ~OC

My Why

Good Morning! Here is another “Lost Writings from OC.” This was written in 2020.

Today’s a new day! Writing has been part of my crazy beautiful health journey. Writing has allowed me to see life in a different way and experience healing in many parts of my life. Writing has allowed me to experience the following:

God has put me on this earth to love and serve others. To encourage others. To hopefully inspire people to think about their own life journey.

God created me to truly experience life. To embrace the good…and bad moments of this journey. I am here to learn. Just a little advice, we should never stop learning.

I am here to overcome my physical limitations. I am here to transform inspiration into action.

I believe in living a peaceful life. Peace within myself. Peace with those I have disagreements with.

I no longer expect or demand to be understood. I understand myself. Most importantly, God understands me and still chooses to love me.

I am not alone when I connect with God and the amazing people He has put in my life. Those relationships fuel me.

I ache and grieve alongside the pain and suffering of others. I empathize with those who suffer.

I seek to overcome suffering by finding its meaning, purpose and lessons.

I no longer force my beliefs on others. I choose to show respect to those with different views, opinions and beliefs.

I choose not to be selfish. I love sharing and helping others. Serving others helps me experience God’s love in a meaningful and real way.

I choose to let God write my story, even though there are times I want to steal the pen.

I choose to be awake. To be present. I am called. I feel God’s presence within me. I can truly be me because He lives in me. ~OC

Hope in the Storm

Good Morning! Here is another “Lost Writings from OC.” I wrote this back in March 2019 while in the hospital.

Today’s a new day! As I have walked through this crazy beautiful health journey, I have found there is hope in the middle of my battle. I do not say this lightly, as this health journey has taken a lot from me physically. But, as I continue to walk through this battle, I have felt the presence of God and He continues to remind me that He always gives beauty for ashes. 


Beauty for ashes can look like oil of joy instead of mourning, a garment of praise instead of a spirit of despair, and a closer relationship with Him. God’s love fulfills our every need, not only in the natural but also in the eternal.

I want to share some Bible verses that have helped me as I continue to walk through this season of health issues.

“Have mercy on me, O God, have mercy! I look to you for protection. I will hide beneath the shadow of your wings until the danger passes by.”~Psalms 57:1

I pray that you see it’s God’s mercy that has you here. I do not know what your storm looks like, maybe it looks a bit disheveled or completely unrecognizable. Whatever the case might be, God is a permanent safe place; His refuge isn’t one that collapses or gets overwhelmed by a storm surge. No, it is filled with great peace that surpasses all of our understanding. God is where we can place all of our trust.

“The Sovereign Lord is my strength! He makes me as surefooted as a deer, able to tread upon the heights. ~Habakkuk 3:19

As I studied this scripture from the Old Testament, this is what I learned. A hind is a deer that can place its feet exactly where its front feet stepped, not missing an inch. A hind lives in mountainous regions and can run the terrain without fear. They are truly free even when crossing difficult paths along the way. I believe this verse is saying that God does the same with us. In His great sovereignty, God reshapes our feet to fit the mountain we are climbing. I pray it brings you some strength as you walk through your own storm.

“I pray that God, the source of hope, will fill you completely with joy and peace because you trust in him. Then you will overflow with confident hope through the power of the Holy Spirit.”~Romans 15:13

I pray as you walk through a season of storms, you will see God as your hope. Hope that devastates all brokenness and holds us through what we couldn’t imagine through the heartache. We can always call on our Heavenly Father, who gives us great joy and peace that stands in the face of everything we might be going through right now.

“This is my command—be strong and courageous! Do not be afraid or discouraged. For the Lord your God is with you wherever you go.”” ~Joshua 1:9

This verse sounds like a bold ask when in reality it’s a bold invitation. Be strong and courageous because the Lord is with us because He has never left and intends to go before us wherever we go. What a great promise from God who led Joshua and the Israelites into the Promise Land. That same God lives today and is there for you and I. So take heart, for God has overcome the world.

“Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God.” ~2 Corinthians 1:3-4

I pray that this verse finds you on both sides. Some of you have found yourselves in great need of comfort from our Father of compassion. Others have been comforted and are searching for ways to do the same for those in trouble and currently dealing with the storms of life. I want to lift up the first of you who were so blindsided by all the damage done and be expectant on how God will use His people to give you a helping hand and abundant love to get you through. For those that fall into the latter, I pray that God will give you healing hands as you go out into your community and renew your strength daily to not grow weary in doing good.

I know this post was a little long, but I hope it brings you some peace and comfort if you’re currently walking through a tough season of life or just coming out of a trying time. God Bless ~OC

Peace and Wisdom

Today’s a new day! As I continue to run this crazy beautiful health journey, I have chosen to live with eternal perspective. This “Lost Writings of OC” was written in March 2023.

During my health journey, I have found peace and wisdom in the Psalms.  In them the steadfast love of God for His people is expressed during great trouble as well as great blessing. When our hearts begin to grasp the character of God as revealed in His Word, our faith and trust in His ways digs deeper into our souls. The benefits and delights of knowing and obeying God’s Word is the theme of Psalm 119. Here are a few “treasures” found in verses 68-93:

“You are good and do good… it is good for me that I was afflicted, that I might learn your statutes… Your hands have made and fashioned me… Those who fear you shall see me and rejoice, because I have hoped in your word… I know, O LORD [Yahweh, God’s personal name], that your rules are righteous, and that in faithfulness you have afflicted me… let your mercy come to me, that I may live; for your law is my delight… In your steadfast love give me life, that I may keep the testimonies of your mouth… you have established the earth, and it stands fast. By your appointment they stand this day, for all things are your servants.”

As is God’s promise, my meditation upon these words brought instruction and great delight to my soul. I jotted down some observations in my journal:

God is good and His deeds are good. His hands have fashioned everything in my life. Here are some lessons learned during this health journey:

•Learn His statutes (teach me His ways)

•Place my hope firmly in Him, causing believers to rejoice

•Recognize His righteousness in me

•Confirm His faithfulness to me

•Reveal His mercy to me

•Invoke in me a vibrant delight in His word

•Use my life to keep His testimonies

Everything in creation has been established by God and is being sustained by God. All things are subject to God’s purpose and will. “All things are God’s servants.”

The benefit and delight I received from these verses is profound:

My health journey is God’s servant in my life. He is using it in ways He has revealed to me in these verses and in many more I have yet to understand. I can rest knowing that my health battle is under the control of God who is good and does good. ~OC

Love

Today’s a new day! Love the people around you. Love the life you have. Love the little things in life. Love the beautiful interruptions. Focus on and embrace love. ~OC

It’s Time

Today’s a new day! As we continue to celebrate Black History Month, I wanted to share the following with you. ~OC

Today, It’s our calling to support our friends, colleagues, and family members and to stand against senseless acts of violence and systemic racism. We need each other now more than ever if this nation is to ever truly move forward and heal the broken systems established years ago.

It’s time we stand in solidarity as individuals and communities to change a system that has been filled with racism for way too long.

It’s time we educate ourselves.

It’s time we change our broken systems.

It’s time we respect our black brothers, sisters, and People of Color.

It’s time we demand equal rights for all.

It’s time we allow the destruction for powerful reform to take place.

It’s time to accept and respect each other regardless of our differences.

It’s time we stopped using hate to conquer hate.

It’s time we truly love our black brothers and sisters. And not just for the month of February.

It’s time we bring real change to America and beyond.

America

Today’s a new day! So many thoughts swirling around, as I see everything that is happening in America and around the world. I definitely do not recognize America at this moment.

I love the United States of America, but I do not think of it as a country that is united at this time. It’s not the America that most of us grew up in or that the rest of the world looked to for hope.

What does the world see when it looks at America in 2025? What do I see? What do you see?

How do the choices each of us make every day affect, influence, impact the future that is before us, the direction America is headed and the world that upcoming generations will inhabit?

What combination of events and attitudes and circumstances has brought us to this point in our history?

How did we get to this point, to this current version of America?

I have far, far more questions than answers as unprecedented events unfold in our nation and around the world. I still believe in America, in the sense that there are so many people I care about so very deeply that are standing up for ALL people who are currently living on American soil. My concern is at heart-wrenchingly-high levels for the well-being of everyone who calls America home this very hour and for those living in every part of this beautiful world.

How do we move past this era of woeful words of hatred and division, how do we work together for the better world that I do believe, that I have to believe is possible? How do we shape a brighter future for all, a future of connection, compassion and peace? Those are some billion dollar questions for sure.

I will continue to pray for brighter, more stable and peaceful days for America and the world. I hope you will join me in this prayer. ~OC

Life

Today’s a new day! Our wrinkles mean we have laughed and cried in life. The gray hair or lack of hair means we have cared for someone. The scars collected over the years means we have truly lived. Celebrate Living! ~OC

Our Voice

Today’s a new day! Sometimes I think I should stay silent and just keep the peace. But then I think if I choose to stay silent, will I cease to do good. I believe if we adhere to respectful silence, we provide space to those who are pushing forward false and harmful ideas. We create greater opportunity for the voices of error and harm to be heard and believed. God has gifted some of us with prophetic voices, ones that can issue a clarion call to the things that are true and good and pure and right and beautiful. We need to pray for those with this gift and encourage them to be brave and bold, yet marked by grace, love, humility, and kindness as they seek God for how to steward this gift. For others, we can each be loving truth tellers in the relationships and situations in which we have a platform. That may be within our families or our friend groups, within our schools, churches or our work places, and even on social media. No doubt, we will sometimes be met with criticism or rejection, even if we speak prayerfully and intending to speak peaceably. Jesus, who is the ultimate truth (John 14:6), likewise experienced rejection (Isaiah 53:3, 1 Peter 2:4). But if our goal is the well-being of others, then we will lovingly speak truth to them and risk offending them, for true life and blessing only come by way of truth. Edmund Burke said, “The only thing necessary for the triumph of evil is for good men to do nothing.” In keeping silent, we say nothing. And in our silence, perhaps we have ceased doing good. You and I have a voice. We have a platform, be it large or small. May God give us wisdom to know how to use our voices to bring honor to him and to bring good to others with wisdom, love, and kindness. ~OC

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