Tag: love

Don’t Back Down

Stand up for what’s right, don’t be swayed

By the voices that try to make you stray

Be brave, be strong, and hold your ground

Fight for justice, let truth be found

Raise your voice, let it be heard

Speak out against injustice, undeterred

Don’t let fear silence you, don’t back down

Stand firm, wear your heart in this town

Be a beacon of hope during the dark times

Shine your light, let it guide the way

For a brighter tomorrow, a better day

Stand up for what’s right, come what may

Your voice matters, your actions too

Make a difference, see it through

Stand up for what’s right, be bold

Create a world where love never grows old. ~OC

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God’s Hope

Good morning! Over the years, I have enjoyed writing what I will loosely call poetry. So I have decided to share some of my “poetry” with you. Be kind.

A light in the darkness, a beacon so bright

God’s hope shines upon us, a guiding light

In times of uncertainty, it leads the way

A promise for tomorrow, of a brighter day

With faith as our anchor, we hold tight

Through life’s storms and trials, we allow God to navigate the night

God’s hope sustains us, a constant friend

A love that’s unwavering, till the very end

May God’s hope inspire you, uplift your soul

A reminder of love, that makes us whole

In His presence, we find our peace

A hope that’s eternal, a love that never ends. ~OC

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Flashing Neon Sign

Today’s a new day! As with many neurological illnesses there is nothing noticeable about my condition. It’s not like a broken leg or arm where there is a cast which is obvious when seeing the person. But I cannot tell you how many times I have heard the same old words since my diagnosis last fall, Todd, you do not look like you have dementia.

I often wonder if it comes down to the fact that people feel uncomfortable talking to me about it, so they say the first thing that comes to mind. Which at times can come across as very insensitive and judgmental. Since my diagnosis of early onset dementia caused by my Parkinson’s, I have had several people tell me I do not look or act like someone with dementia. Or Todd, maybe you’re just dealing with an infection of some kind and just need to take some antibiotics. I would be overjoyed if that was actually the case. But I have some amazing doctors and they didn’t come up with this diagnosis lightly.

What does dementia look like? There is no cast or bandage to put on it. I guess I could wear a flashing neon sign that says, “HELLO, I HAVE EARLY ONSET DEMENTIA!” that lets people know of my latest diagnosis.

But seriously, I am walking through a very new and strange season of life, but I know I am not the only one. It simply gets frustrating when people decide to find a different diagnosis or make you doubt your current state of health because they do not like the diagnosis. It can be irritating and cruel when people doubt you and your medical team. Believe me, no one wants to sit in a doctor’s office and hear the words “You have early onset dementia.”

I do think that part of this attitude is because people have a hard time believing someone in their 50’s could have an “old person’s” disease. Also the topic of dementia is not an easy or fun subject to talk about. It can be easier to just ignore it or try to explain it away.

I also believe people have their own preconceived beliefs about dementia and I and many others suffering from this horrible disease do not fit in their picture of dementia.

So please do me a favor. Stop putting your personal beliefs or opinions on those suffering from a visually invisible disease or one that you don’t like. Life with dementia is already hard enough. Thanks for listening. ~OC

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My Life With Dementia

Today’s a new day! As I continue to walk through this crazy beautiful health journey, I have always wanted to be upfront and honest when sharing my journey with you. So this morning, I want to share a post I have been working on for several weeks. It’s my life with dementia. I apologize in advance for the long post.

When I was diagnosed with young onset dementia last year, part of me thought there has to be a mistake, but it was also a relief to have some answers on why my life seemed a little out of focus. But it was still hard to hear “you have dementia.” Like so many people diagnosed with young-onset dementia, I was still planning a future with my bride. How was dementia showing up in my 50’s?

But here I am, almost a year later.

What I have learned is a dementia diagnosis isn’t the end of life. It just means life looks a little different.

Of course my life has looked a little different for the last twenty-three years dealing with multiple health issues. But over the last two decades, my faith and life experiences have taught me it’s possible to live a fulfilling, purposeful, and even joyful life even while dealing with the uncertainty of declining health. A diagnosis of dementia was not going to change that. At least I hope and pray that will be the case.

So as I walk out this journey called dementia, I wanted to share a few things that are working for me. This is not a neat how to live with dementia list, because dementia is not an easy follow these instructions and everything will be okay disease. No, dementia is a unpredictable roller coaster ride. Every day brings new challenges, but also new opportunities.

My hope and prayer is that this blog post will help create conversations. If you’re living with dementia, or supporting someone who is, I hope these tools help you live a full life regardless of the diagnosis.

My Dementia Toolbox:

I choose to live each day with Hope and Purpose.

I choose to live a life full of new adventures. Never stop making memories with family and friends.

I choose to maintain my independence as long as possible.

I choose to continue connecting with family and friends.

I choose to adapt to the changes dementia brings and never give up.

I choose to hold onto my identity and what makes me “me.”

I choose to keep learning new things each day.

I choose to live out my life and faith.

I choose not to avoid the declines that dementia brings, but to make the most out of every day and refuse to let dementia silence me.

Finally, living with dementia is not an easy journey. There are moments of loss and frustration, but there are also unexpected discoveries, laughs, and the good will of family and friends. ~OC

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Doorway

Today’s a new day! It was through the doorway of suffering that Jesus opened the way for us to walk through suffering with supernatural joy, peace, and hope. ~OC

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Bearers of the Mat

Today’s a new day!

“And when he returned to Capernaum after some days, it was reported that he was at a home. And many were gathered together, so that there was no more room, not even at the door. And he was preaching the word to them. And they came, bringing to him a paralytic carried by four men. And when they could not get near him because of the crowd, they removed the roof above him, and when they had made an opening, they let down the bed on which the paralytic lay.” ~Mark 2:1-4

I have always loved this story. It truly demonstrates the love of friends and our need for solid friendships. The four men in Mark 2, went beyond normal friendship and became “Bearers of the Mat.”

These four friends saw their friend needed a miracle in his life. They heard Jesus was in the area, so they decided to pick up their friend’s mat and get him to the Great Physician. We have no idea how far these four men had to walk carrying their friend, just to get to Jesus. No doubt they were exhausted by the time they reached the door of the house where Jesus was. There they found a new obstacle. The house where Jesus was speaking was beyond packed. But these four men persevered. Their friend needed a miracle and they were determined to get him to Jesus. Even if it meant carrying their friend to the roof and cutting a hole into the roof, so they could lower their friend into the room where Jesus was speaking. Can you imagine what a sight that must have been? What an amazing moment it must have been when after all that hard work, these four friends watched in awe as their friend was completely healed by Jesus. What a day of celebration that must have been.

Every time I read the story in Mark 2, two questions come to mind:

1). Do I have friends like these four men?

2). Am I a friend like these four men?

I pray we will all take the time to check our hearts as we reflect on these two questions. I truly believe Jesus wants each of us to serve one another willingly and wholeheartedly. Let’s become “Bearers of the Mat” ~OC

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Are You Willing?

Today’s a new day! A lot of people want to achieve success in life, but are you willing to do the following:

Are you willing to fight through the excuses?

Are you willing to fight through the challenges?

Are you willing to fight through the negative talk?

Are you willing to put in the work?

Are you willing to make sacrifices?

Are you willing to give it all up for God? ~OC

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Today’s Prayer

Dear Jesus, please use us today in any way You see fit. As You guide our thoughts and actions, please use us to bless others and for Your purposes more broadly. Rather than seeking our own will, help us to align with Yours. Thank You, Jesus, for all You do for us. We pray all of this in Your powerful and matchless name. Amen.

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Attitude of Gratitude

Today’s a new day! As we move through the busyness of life, it’s easy to look around at everything we do not have instead of taking the time to slow down and be thankful for everything we do have in life. In the coming days and weeks, I want to focus on having an attitude of gratitude.

As I have walked through this crazy beautiful health journey, I have made the choice to be grateful for the lessons and blessings I have experienced along the way. I believe that decision has transformed my life and hopefully a few other people along the way. As a Christian, I have much to be grateful for. I have been blessed with the gift of salvation through Jesus, I have the Holy Spirit living inside me and I have a loving God who cares for me and provides for my needs. But if I am not careful, I can start taking these blessings for granted and focus on the things I do not have.

That’s why it’s so important for us to cultivate an attitude of gratitude. Living a life of gratitude can have a profound and positive impact on our overall health and our relationships with others. ~OC

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