Dear Caregivers: Please Don’t Forget Yourself

Today’s a new day!

Dear Caregivers,

Please take care of yourself.

I know that may sound simple, but for caregivers, it can be one of the hardest things in the world to actually do.

You spend your days worrying about someone else.

Their medications.
Their appointments.
Their meals.
Their pain.
Their bad days.
Their good days.
Their needs.
Their fears.

You become the organizer, advocate, chauffeur, encourager, nurse, protector, prayer warrior, and sometimes the person holding everything together when it feels like everything is falling apart.

And somewhere along the way, you can disappear from your own list of priorities.

Please don’t.

My wonderful bride has been living the life of a caregiver for more than twenty years.

Twenty years.

She has walked beside me through illnesses, doctors, hospitals, treatments, setbacks, victories, fear, uncertainty, and more twists and turns than either of us ever imagined when we said, “I do.”

She is a rockstar.

But even rockstars need rest.

Even the strongest people need someone to lean on.

Even caregivers need caregivers.

And that’s why I want to say something directly to every person reading this who spends their life taking care of someone else:

You are not selfish for taking care of yourself.

You are not selfish for going to your own doctor’s appointments.

You are not selfish for meeting a friend for coffee.

You are not selfish for laughing.

You are not selfish for taking a walk.

You are not selfish for taking an afternoon or weekend off.

You are not selfish for asking someone else to step in.

You are not selfish for saying, “I need help.”

In fact, asking for help may be one of the most responsible things you can do.

Because you cannot pour from an empty cup forever.

I have heard the statistic that 64% of caregivers die before the person they are caring for. Whether that exact number applies universally or not, the warning behind it is very real: caregiving can take an enormous physical, emotional, and spiritual toll.

Did you catch that?

The person taking care of everyone else can become so exhausted that they forget they are a person who needs care, too.

So, dear caregiver, let me remind you of something:

Your life matters, too.

Your health matters.

Your mental and emotional well-being matters.

Your friendships matter.

Your dreams matter.

Your laughter matters.

Your time with God matters.

Your rest matters.

You matter.

Please don’t wait until your body forces you to stop.

Go to the doctor.

Take the medication you need.

Get some sleep.

Eat something.

Drink some water.

Call a friend.

Go outside.

Take a breath.

Pray.

Cry if you need to.

Laugh when you can.

And when someone says, “How can I help?”—please don’t automatically answer, “I’m fine.”

Maybe give them something they can actually do.

“Can you sit with them for a couple of hours?”

“Can you bring us dinner?”

“Can you drive us to this appointment?”

“Can you just come over and let me talk?”

Let people love you.

Because caregiving was never meant to be a one-person job.

My bride has taught me so much about love through the way she has cared for me for more than two decades. But I don’t want her—or any caregiver—to lose themselves while caring for someone they love.

You don’t have to destroy yourself to prove that you love someone.

Read that again.

You don’t have to destroy yourself to prove that you love someone.

Taking care of yourself doesn’t mean you love the person you’re caring for any less.

It means you’re giving yourself a better chance to keep walking beside them.

So, to every husband, wife, son, daughter, parent, sibling, friend, or stranger who has quietly become somebody’s caregiver:

I see you.

I appreciate you.

I honor you.

And I’m asking you—please take care of yourself.

Ask for help.

Accept help.

Make the doctor’s appointment.

Call your friends.

Take the day off when you can.

Sit somewhere quiet.

Take a deep breath.

And remember that you are more than the role you have been given.

You are a human being, not just a caregiver.

You deserve to live, too.

Because the goal isn’t simply to survive caregiving.

The goal is for both of you to keep living.

So, dear caregivers…

Please don’t forget yourself while you’re taking care of someone else.

You are needed.

You are loved.

You are valuable.

And yes—

you matter, too. ~OC

Dear Parkinson’s Community

Dear Parkinson’s Community,

I wanted to see if there would be interest in starting a weekly or monthly Zoom gathering for our Parkinson’s community.

The vision is simple: to discuss the latest developments in Parkinson’s research and treatment, share practical insights, encourage one another, and remind each other that no one has to walk this journey alone.

This group would be open to:

  • People living with Parkinson’s disease
  • Caregivers and family members
  • Medical professionals
  • Anyone who has lost a loved one to Parkinson’s

Whether you’re newly diagnosed, have been living with Parkinson’s for years, care for someone with the disease, or simply want to learn and support others, you are welcome.

If this is something you would be interested in, please leave a comment below or send me a direct message. If there’s enough interest, I’ll begin organizing our first Zoom meeting.

Together, we can learn, encourage one another, and find hope for the road ahead.

You are not alone. ~OC

My Hope and Prayer for Each of You

Today’s a new day!

As I continue walking this crazy beautiful journey that God has placed before me, I’ve spent a great deal of time reflecting on what truly matters.

When life is interrupted by doctor’s appointments, hospital stays, difficult diagnoses, and moments that remind you just how fragile life really is, your perspective begins to change.

The things that once seemed so important begin to lose their grip.

The things that truly matter become impossible to ignore.

If I could share one thought with every person I know—my family, my friends, and even those I may never have the privilege of meeting—it is simply this:

Don’t waste your life chasing things that won’t last.

The world constantly tells us to chase more money, more success, more recognition, more followers, more possessions, and more applause.

But none of those things will follow us into eternity.

Only what we do for Christ will last.

So love people well.

Love the people who are not easy to love.

Love the people who disappoint you.

Love the people who think differently than you.

Love the people Jesus loves—which, thankfully, is everyone.

Life is simply too short to withhold kindness.

Forgive quickly.

Bitterness is a prison that only hurts the one carrying it.

Jesus forgave us while we were still sinners. As His followers, may we become known as people who extend the same grace we’ve so freely received.

Encourage often.

You never know what battle someone is fighting behind a smile.

A kind word, a handwritten note, a phone call, a prayer, or simply showing up can become the very thing God uses to carry someone through one more day.

Let’s become people who leave others stronger than we found them.

Walk humbly.

Every blessing we have is a gift from God.

Every talent.

Every opportunity.

Every sunrise.

Every breath.

Humility isn’t thinking less of yourself; it’s thinking of yourself less and making room for Christ to be seen more clearly through your life.

Trust God completely.

Not just when life makes sense.

Trust Him when the diagnosis changes.

Trust Him when the prayers seem unanswered.

Trust Him when the future feels uncertain.

Trust Him because His character never changes, even when our circumstances do.

I’ve learned that God has never once asked me to understand everything.

He has simply asked me to trust Him.

Keep your eyes on Jesus.

The world is loud.

Fear is loud.

Politics are loud.

Social media is loud.

Opinions are loud.

But Jesus still whispers, “Follow Me.”

Don’t allow the noise of this world to drown out the voice of the Good Shepherd.

Fix your eyes on the One who calmed storms, healed broken hearts, welcomed the outcast, carried the cross, defeated death, and still reigns today.

Finally, never forget this beautiful truth:

No matter what you are facing…

His grace is sufficient.

His love never fails.

His mercy is new every morning.

His peace passes understanding.

His presence never leaves you.

His promises are true.

That isn’t wishful thinking.

That is the unchanging character of God.

If my life has taught me anything over these many years, it is this:

Jesus is enough.

Not because life has always been easy.

But because He has always been faithful.

So this is my hope and prayer for each of you.

May you love more deeply than you ever thought possible.

May you forgive as freely as Christ has forgiven you.

May you become an encourager in a world desperate for hope.

May humility become your strength.

May your trust in God grow deeper with every season.

May your eyes remain fixed on Jesus no matter what comes your way.

And when your own earthly journey is complete, may your life tell the story of a Savior who never left your side, never stopped loving you, and never failed to keep His promises.

Until that glorious day, may we continue to walk by faith, love without limits, and shine the light of Christ wherever He leads us.

May our greatest achievement never be measured by what we accumulated, but by how faithfully we loved God and loved people.

And may everything we do point others to Jesus. ~OC

Flashing Neon Sign

Today’s a new day! As with many neurological illnesses there is nothing noticeable about my condition. It’s not like a broken leg or arm where there is a cast which is obvious when seeing the person. But I cannot tell you how many times I have heard the same old words since my diagnosis last fall, Todd, you do not look like you have dementia.

I often wonder if it comes down to the fact that people feel uncomfortable talking to me about it, so they say the first thing that comes to mind. Which at times can come across as very insensitive and judgmental. Since my diagnosis of early onset dementia caused by my Parkinson’s, I have had several people tell me I do not look or act like someone with dementia. Or Todd, maybe you’re just dealing with an infection of some kind and just need to take some antibiotics. I would be overjoyed if that was actually the case. But I have some amazing doctors and they didn’t come up with this diagnosis lightly.

What does dementia look like? There is no cast or bandage to put on it. I guess I could wear a flashing neon sign that says, “HELLO, I HAVE EARLY ONSET DEMENTIA!” that lets people know of my latest diagnosis.

But seriously, I am walking through a very new and strange season of life, but I know I am not the only one. It simply gets frustrating when people decide to find a different diagnosis or make you doubt your current state of health because they do not like the diagnosis. It can be irritating and cruel when people doubt you and your medical team. Believe me, no one wants to sit in a doctor’s office and hear the words “You have early onset dementia.”

I do think that part of this attitude is because people have a hard time believing someone in their 50’s could have an “old person’s” disease. Also the topic of dementia is not an easy or fun subject to talk about. It can be easier to just ignore it or try to explain it away.

I also believe people have their own preconceived beliefs about dementia and I and many others suffering from this horrible disease do not fit in their picture of dementia.

So please do me a favor. Stop putting your personal beliefs or opinions on those suffering from a visually invisible disease or one that you don’t like. Life with dementia is already hard enough. Thanks for listening. ~OC

Take Heart

Today’s a new day! One of my favorite verses is “In this world you will have trouble. But take heart! I have overcome the world.” – John 16:33.

What does that verse really mean? One of the biggest lies many Christians are told when they start following God is everything will be perfect and they will never deal with the storms of life. That if God is on our side, nothing can go wrong, and all it takes is a quick prayer to get us out of a sticky situtation. Just like a sitcom on tv. All is good in 30 minutes. But we live in reality and we know that’s far from the truth.

Nowhere in the Bible are we promised a perfect life on earth. Life will be filled with struggles. We will all experience challenges along our journey. Those challenges will look different for each of us. Some will deal with health issues. Sometimes those health challenges will last a lifetime.

The point is that even though we all experience challenges in this journey called life, Jesus has overcome the world. As I mentioned earlier, we will encounter painful moments in this world, but there is a world beyond this world. A place called Heaven, where we will experience peace and wholeness. A place where there is no pain, disease, war, hatred or confusion. Heaven is paradise.

When I experience moments of hopelessness with my own health, I take a moment to think about God’s goodness and promises. I also take time to remember that I need God more today than I did yesterday. I may not understand everything going on in my crazy beautiful health journey, but God does. And for that I am thankful.

I am often asked why would God allow me to walk through so many years of suffering? Of course I do not have all the answers, but I have chosen to trust God in the mist of the storms. To look for every opportunity to help encourage everyone walking through their own challenges. I have decided not to spend all my precious moments researching Google looking for the latest medical or natural cures.

I’ve accepted that I will never fully understand every inner working of my body at any given moment. No one has it all figured out. Not even the medical world. That doesn’t mean I shouldn’t do everything in my power to pray and strive for better health. It just means I will not become consumed by my current health challenges. They are not my true identity.

Nothing gives me more peace and comfort than my relationship with God. Just like any personal relationship takes work and trust the same goes for our relationship with God. It’s a daily commitment. In life we so often stumble for answers. We jump from different diets, different relationships and different careers looking for the answer and looking for a way to make us feel good and worthy. There is nothing wrong with any of those things, but nothing will ever give us as much peace and purpose than a relationship with God and the knowledge that even though the storms of life can be hard, He has already overcome the world.

I know this was a long post, but I pray it brings you hope as you walk through the ups and downs of life. Blessings to all. ~OC

Experiencing Peace

Today’s a new day! Along this journey called life, we all deal with fear. Fear can hit us during what we thought would be a routine doctors appointment. Fear can hit us when test result comes back with more questions than answers. Fear can hit us when we watch the news or scroll through social media. We have all experienced fear in our lives.

Back in 2003, one of my doctors called me early one morning and shared he needed to see me right away. Then he made the comment “Oh and make sure you bring your wife.” A little fear hit me at that moment. Later when the doctor shared I had a tumor, the fear grew a little deeper. Fear, worry and anxiety. My wife and I experienced all those feelings sitting in that doctor’s office.

A few weeks later a biopsy revealed the tumor was the size of golfball and was cancerous. Once again, fear, worry and anxiety smacked me in the face. Things seemed overwhelming at that point.

Then something amazing happened. As I laid in ICU hooked up to several machines, God took away the fear, worry and anxiety. Those feelings were replaced by peace, calmness and even joy. Yes, joy. What changed?

God reminded me of the week long fast I had done a year earlier during a missions trip. He revealed the reason I had fasted was to prepare me for this very moment. Peace flooded my room and heart at that moment. In that moment, I completely turned my health situation over to Jesus and trusted Him to walk me through my unknown future.

Even though I had been filled with fear, anxiety and worry, Jesus was right there with me. He shared hope, love and peace even as I was overwhelmed with so many different emotions. God never abandoned me in my time of need.

During that moment, I still had to deal with life as a cancer patient. But that unknown did not overwhelm me anymore. Jesus reminded me that He was bigger than any health issue I would ever face. I am thankful, I did not know my future would be full of more health issues, test, multiple doctors appointments and hospital stays. No, at that moment I was just filled with peace. A peace that has never left me.

Here I am in 2024, after overcoming so much, but still dealing with so many health issues. Fear and worry try to overwhelm me at times, but I am still experiencing that same peace and joy I experienced in that ICU room so many years ago. Knowing that Jesus is still bigger than anything life throws at me. Still living life with a thankful heart. ~OC

Thank You!

Today’s a new day! Most of you know about my crazy beautiful health journey. For almost 18 years, I spent the majority of my life at Good Samaritan Medical Center on 4 South. Those years were not easy, but I was blessed with an amazing medical team. The Doctors, Nurses, CNA’s, Maintenance, Housekeeping, Admissions, Food Service, Tech’s, Transport and Administration became family. We spent many holidays and Super Bowls together. Each of these wonderful. amazing heroes made the tough days easier for Laura West Shoemaker and I.

As we watch this new Covid wave come through, I am concerned for my friends in the healthcare profession. I pray for them and check on them often. I encourage everyone to keep our healthcare workers in your prayers. Their job was difficult before Covid, but this horrible virus has put more of a strain on each of them. If you or a family member find yourselves in the hospital, please show these beautiful heroes respect. These amazing people are there to help you and your loved one. They are actually putting their lives and the lives of their own families on the line to help you get back to your loved ones. So today, say a prayer for all the amazing healthcare workers and hospital/nursing home staff. If you know a healthcare worker take the time to thank them for their service. ~OC

Encouragement

For the past 17.5 years, I have spent countless hours at doctors appointments, treatment centers & the hospital. During those times, I have had the privilege to talk with hurting people experiencing life changing moments. I have had the honor to pray for people who wouldn’t see another year. I have rejoiced with those who experienced a miracle in their medical journey. I have never taken one of those moments for granted. None of those precious moments have been about me. God placed me in those moments to hopefully encourage someone. The truth is, most of the time I have been the one walking away feeling encouraged. Never miss the opportunity to encourage someone. It could be life changing. ~OC

Living In Peace

Along this journey called life, we all deal with fear. Fear can hit us during what we thought would be a routine doctors appointment. Fear can hit us when test result comes back with more questions than answers. Fear can hit us when we watch the news or scroll through social media. We have all experienced fear in our lives.

Back in 2003, one of my doctors called me early one morning and shared he needed to see me right away. Oh, make sure you bring your wife. A little fear hit me at that moment. Later when the doctor shared I had a tumor, the fear grew a little deeper. Fear, Worry and Anxiety. My wife and I experienced all those feelings sitting in that doctors office.

A few weeks later a biopsy revealed the tumor was the size of golfball. A few weeks after that, surgery revealed the tumor was cancerous. Once again, Fear, Worry and Anxiety smacked me in the face. Things seemed overwhelming at that point.

Then something amazing happened. As I laid in ICU hooked up to several machines, God took away the fear, worry and anxiety. Those feelings were replaced by peace, calmness and even joy. Yes, joy. What changed?

God reminded me of the week long fast I had done a year earlier during a missions trip. He shared the reason I had fasted was to prepare me for this very moment. Peace flooded my room and heart at that moment. At that moment, I completely turned my heart toward Jesus and trusted Him to walk me through this journey.

Even though I had been filled with fear, anxiety and worry, Jesus was right there with me. He welcomed me into His presence, even as I was filled with fear. He never abandoned me in my time of need.

During that moment, I still had to deal with life as a cancer patient. But that unknown did not overwhelm me anymore. Jesus reminded me that He was bigger than any health issue I would ever face. I am thankful, I did not know my future would be full of more health issues, test, multiple doctors appointments and hospital stays. No, at that moment I was just filled with peace.

Here I am in 2019, still fighting multiple health issues. Still fighting for my life every day. Still living in the unknown regarding my health. But I am still experiencing that same peace and joy, I experienced in that ICU room so many years ago. Knowing that Jesus is still bigger than anything life throws at me. Still living life with a thankful heart. ~OC

 

 

 

 

 

Blog at WordPress.com.

Up ↑