Tag: Never Give Up

A Letter From My Heart

Dear Family and Friends,

As I continue to walk through this health battle, I have made a decision that I believe I need to make for this season of my life: I need to slow down and take a break.

For the time being, I will be scaling back on posting blog posts, social media, creating and sharing music, and being involved in too many meetings and activities.

This is not an easy decision for me. Writing has always been one of the ways I process life, share my thoughts, encourage others, and hopefully make a difference. Music has become another beautiful part of that journey. And being part of meetings and connecting with people has meant so much to me.

But sometimes we have to recognize when we simply don’t have anything left to give.

Putting my thoughts together on paper can be challenging right now. There are days when the words don’t come easily, and even simple things can require more energy than I have. And honestly, I’m just tired.

Tired doesn’t mean I’m giving up.

It doesn’t mean I have lost my faith, my hope, or my desire to encourage others. It simply means that I need to give myself permission to take a break.

I have spent so much of this crazy beautiful health journey trying to keep moving forward, even in the middle of some incredibly difficult battles. But perhaps part of being an overcomer is understanding that sometimes overcoming means knowing when to stop, breathe, rest, and allow yourself to be renewed.

So, for this season, I am choosing to step back.

I don’t know exactly how long this break will last. I don’t know what the next chapter will look like. I’m simply taking things one day at a time and trusting God with what comes next.

I want to say thank you to every person who has supported me along this journey.

Thank you for reading my words.

Thank you for listening to my music.

Thank you for encouraging me.

Thank you for praying for me.

Thank you for standing beside me through the difficult days.

Thank you for reminding me that my story matters.

Your support has meant more to me than I can adequately put into words.

For now, I am going to give myself permission to rest, to be quiet, to process, and to simply live each day as it comes.

I may be stepping back from the things I normally share, but I am not stepping away from hope.

I am not stepping away from faith.

And I am certainly not giving up.

Sometimes the strongest thing an overcomer can say is, “I need to rest.”

So that’s where I am right now.

Taking a breath.

Taking a step back.

Taking care of myself.

And trusting God with the journey.

Thank you for understanding.

Thank you for walking with me.

And thank you for being part of this crazy, beautiful journey called life.

Until I share again, please keep believing, keep hoping, keep loving, and keep overcoming.

With love and gratitude,

OC

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Live It Up

Today’s a new day!

As I continue to walk out this crazy, beautiful, unpredictable health journey, I’ve come to a decision:

I’ve decided to live it up.

Not someday.

Not when everything gets better.

Not when my body cooperates, the doctors have all the answers, or life finally becomes easier.

Now.

Because if this journey has taught me anything, it’s that tomorrow is never guaranteed—and waiting for the perfect circumstances to start living is one of the greatest ways to miss the life happening right in front of us.

I’ve spent enough time dealing with battles, setbacks, disappointments, appointments, treatments, uncertainty, and days when simply getting through the day felt like an accomplishment.

But I refuse to let the hard parts steal all the beautiful parts.

Yes, I have limitations.

Yes, there are things I can no longer do.

Yes, some days are harder than others.

But there is still so much I can do.

There are people I can love.

Memories I can make.

Stories I can tell.

Music I can create.

Laughter I can share.

Sunsets I can stop and appreciate.

Adventures I can still take.

Prayers I can still pray.

And a whole lot of living left to do.

So I’m changing the question.

Instead of asking, “What can’t I do anymore?”

I’m asking:

“What can I do today that makes this life worth celebrating?”

That changes everything.

Living it up doesn’t mean ignoring reality.

It doesn’t mean pretending the struggle doesn’t exist.

It means refusing to allow the struggle to become the only thing I see.

It means finding joy wherever I can find it.

It means celebrating the small victories.

It means laughing loudly.

Loving deeply.

Forgiving freely.

Making memories.

Taking pictures.

Hugging the people who matter.

Telling people I love them while I have the opportunity.

And squeezing every drop of meaning, purpose, joy, and gratitude out of this crazy beautiful life.

My health journey may have changed my definition of strength.

It certainly changed my definition of success.

These days, success isn’t necessarily about accomplishing something extraordinary.

Sometimes success is simply waking up and saying:

“Today, I’m going to live.”

And then actually doing it.

I don’t know how many chapters are left in my story.

That’s okay.

I don’t need to know.

I just want to make the chapters I have count.

I want to leave footprints of love.

I want to collect memories instead of regrets.

I want to choose experiences over excuses whenever I can.

I want to celebrate the people who have walked beside me.

And I want to look back someday and know that I didn’t spend my life waiting for life to begin.

I lived it.

The whole crazy, beautiful, messy, miraculous thing.

So yes…

I’m still walking through the battle.

But I’m also going to dance when I can.

Laugh when I can.

Travel when I can.

Create when I can.

Love with everything I’ve got.

And celebrate every single blessing I can find.

Because life isn’t waiting for me to become healthy enough, strong enough, or perfect enough to enjoy it.

Life is happening right now.

And I’ve decided I’m going to show up for it.

I’m going to live boldly.

Love fiercely.

Laugh often.

Make memories.

Count blessings.

Chase moments.

And squeeze every beautiful drop out of the time I’ve been given.

I don’t just want to survive this journey.

I want to LIVE it.

So bring on the crazy.

Bring on the beautiful.

Bring on the unexpected.

Bring on the memories we haven’t made yet.

Because as long as I’m here…

I’m going to live it up. ~OC

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Live Like A Champion

Today’s a new day!

Here is my medical rap sheet.

  • Crippling Arthritis — 2002 (Actually ended up being cancer)
  • Cancer — 2003
  • Parkinson’s Disease — 2007
  • Myasthenia Gravis — 2009
  • Gastroparesis — 2015
  • COVID Long Haulers — 2022
  • Type Two Diabetes 2023 (medication induced)
  • Cluster and Migraine Headaches — 2024
  • Dementia — 2024

Looking at that list, many people would probably assume my life is over.

They would assume the best years are behind me. That my dreams have ended. That all that’s left is surviving.

But they would be wrong.

Every single day, I choose life.

I choose to keep making memories with my beautiful bride. I choose to laugh, to love, and to appreciate the moments that many people rush past.

I choose to continue advocating for other patients who need someone to remind them that they are more than a diagnosis.

I choose to keep fighting against human trafficking because there are people who desperately need hope, justice, and someone willing to stand in the gap.

Does that mean this health journey is easy?

Absolutely not.

There are days filled with pain. Days of exhaustion. Days when my body reminds me of every diagnosis on that list.

But years ago, I made a decision.

This health battle would never become my identity.

My diagnoses describe some of the battles I face—they do not define the man I am.

I refuse to allow illness to steal my purpose. I refuse to let disease dictate my joy. I refuse to surrender the calling God has placed on my life simply because my body doesn’t always cooperate.

Instead, I choose to keep living.

I choose to keep loving.

I choose to keep serving.

I choose to keep overcoming.

If you’re walking through a battle today—whether it’s a health crisis, grief, depression, financial hardship, addiction, or something no one else can see—I want to encourage you.

Don’t let your battle become your identity.

Keep fighting.

Keep making memories.

Keep dreaming.

Keep showing up.

Keep loving the people around you.

Live your life to the fullest, even if it looks different than you once imagined.

Champions aren’t defined by the battles they face.

They’re defined by the courage to keep getting back up.

So today…

Choose hope.

Choose purpose.

Choose joy.

Choose life.

And whatever comes your way, keep overcoming.

Live like a champion. ~OC

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Squeezing Life

Today’s a new day!

Living with multiple health issues has taught me something I never would have learned in a life without suffering:

Our time on this earth is far too precious to waste.

When your body reminds you every day that life is fragile, you begin to see things differently. You stop taking tomorrow for granted. You stop assuming there will always be another opportunity to call someone, hug someone, forgive someone, laugh with someone, or tell the people you love how much they mean to you.

You begin to understand that life isn’t measured only in years.

Sometimes it is measured in moments.

A conversation that makes you smile.

A sunset that takes your breath away.

A prayer whispered through tears.

A song that reminds you God is still near.

A hug from someone you love.

A meal shared around the table.

A memory made on an ordinary day that somehow becomes extraordinary because you were there to experience it.

My health journey has taken many things from me. There are things I once could do that I can no longer do. There are dreams that have had to change. There are days when simply getting through the day feels like an accomplishment.

But I’ve learned not to let what I’ve lost become the only story I tell.

Because God is still writing.

I may not understand every chapter, but I trust the Author.

I may have questions I cannot answer, but I can still have faith.

I may have limitations, but I am not without purpose.

And I may have scars, but those scars can become reminders of God’s faithfulness.

Living with illness has made me want to squeeze every bit of meaning, purpose, joy, gratitude, and hope out of the short time we have on this earth.

Not because I am afraid of dying.

But because I have learned to appreciate living.

I want to love people while they’re still here.

I want to make memories instead of waiting for the “perfect” moment.

I want to encourage somebody who feels forgotten.

I want to remind the broken that they are not useless.

I want to tell the person sitting in the darkness that morning is still coming.

I want my life—even with all its limitations—to point beyond me to Jesus.

Scripture reminds us:

“Teach us to number our days, that we may gain a heart of wisdom.” — Psalm 90:12

Numbering our days doesn’t mean living in fear of the end.

It means learning to recognize the value of today.

Today is a beautiful gift.

This breath is a gift.

This conversation is a gift.

This person sitting beside you is a gift.

This opportunity to love, serve, forgive, 

encourage, worship, and make a difference is a gift.

We don’t know how many pages remain in our story.

So I’m not waiting until tomorrow to start living.

I’m not waiting until I’m healthy enough.

I’m not waiting until everything makes sense.

I’m not waiting until life becomes easier.

I’m choosing to live the life God has placed in front of me today.

Maybe that’s what being an overcomer really means.

It doesn’t mean we never struggle.

It doesn’t mean we aren’t afraid.

It doesn’t mean we don’t have bad days.

It means we refuse to let our circumstances have the final word.

We keep getting back up.

We keep believing.

We keep loving.

We keep hoping.

We keep looking toward Jesus.

And we keep squeezing every drop of meaning out of this beautiful, difficult, unpredictable gift called life.

Because one day, when this earthly journey is finished, I don’t want to look back and realize I spent all my time waiting for life to begin.

I want to know that I lived.

I loved deeply.

I laughed often.

I made memories.

I recognized and encouraged people.

I served Jesus.

I held onto hope.

And even in the hardest seasons, I trusted God enough to keep moving forward.

Life may be shorter than we think.

So don’t wait to tell someone you love them.

Don’t wait to make the memory.

Don’t wait to forgive.

Don’t wait to reach out.

Don’t wait to live.

Squeeze every drop of meaning, purpose, love, and hope out of this day.

Tomorrow belongs to God.

But today is a gift.

And I intend to unwrap it. ~OC

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Living

Today’s a new day!

I know what it’s like to be dying.

I know what it feels like to look at your life and realize that tomorrow is never promised. I know what it’s like to spend time in hospital rooms, sit across from doctors, hear words that change the way you look at the future, and wonder how much time you have left.

I know what it’s like to come face-to-face with my own mortality.

But here’s the thing:

I don’t spend much time thinking about death.

I know it’s there.

I know one day my earthly journey will come to an end. I don’t deny it. I don’t run from it. And because of my faith, I don’t fear what comes after this life.

But I’m not going to spend the days I’ve been given worrying about the day they run out.

I’ve got too much living to do.

I’ve got too many memories to make.

Too many conversations to have.

Too many sunsets to watch.

Too many laughs to share.

Too many hugs to give.

Too many stories still waiting to be told.

Too many people I love who still need to hear, “I love you.”

There are places I still want to see, songs I still want to write, prayers I still want to pray, and moments I still want to experience.

There are memories I haven’t made yet with the people I love.

So I’m going to make them.

I’m going to laugh when I can.

I’m going to cry when I need to.

I’m going to celebrate the ordinary moments because I’ve learned that ordinary moments are often the extraordinary ones we remember most.

I’m going to sit a little longer at the dinner table.

I’m going to call the friend I’ve been meaning to call.

I’m going to tell people what they mean to me while they’re still here—and while I’m still here.

I’m going to stop saving life for someday.

Because someday isn’t guaranteed.

Today is.

Living with serious health challenges has taught me something I could never have learned from a textbook:

Life isn’t measured only by how many years we have.

It’s measured by what we do with the years we’ve been given.

Death may be somewhere down the road, but I’m not going to stand on the road staring at it.

I’m going to keep walking.

I’m going to keep loving.

I’m going to keep believing.

I’m going to keep making memories.

I’m going to keep squeezing every drop of meaning, purpose, joy, and hope out of this crazy, beautiful life.

And when my time finally comes, I don’t want to look back and wish I had lived more.

I want to be able to say:

I lived.

I loved deeply.

I laughed loudly.

I made memories.

I encouraged people.

I shared my faith.

I fought through the hard days.

I celebrated the good ones.

I didn’t waste my life being afraid of losing it.

I chose to live it.

Because death may be inevitable.

But today is a gift.

And I’m not wasting the gift.

I’ve got too much living to do.

Too much loving to do.

Too many memories to make.

Too much purpose left to pursue.

And as long as God gives me breath…

I’m going to fully embrace it. ~OC

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My Medical Rap Sheet Doesn’t Get The Final Word

Today’s a new day!

Here is my medical rap sheet.

  • Crippling Arthritis — 2002 (Ended up being cancer)
  • Cancer — 2003
  • Parkinson’s Disease — 2007
  • Myasthenia Gravis — 2009
  • Gastroparesis — 2015
  • COVID Long Haulers — 2022
  • Type Two Diabetes 202 (medication induced)
  • Cluster and Migraine Headaches — 2024
  • Dementia — 2024

Looking at that list, many people would probably assume my life is over.

They would assume the best years are behind me. That my dreams have ended. That all that’s left is surviving.

But they would be wrong.

Every single day, I choose life.

I choose to keep making memories with my beautiful bride of twenty-six years. I choose to laugh, to love, and to appreciate the moments that many people rush past.

I choose to continue advocating for other patients who need someone to remind them that they are more than a diagnosis.

I choose to keep fighting against human trafficking because there are people who desperately need hope, justice, and someone willing to stand in the gap.

Does that mean this health journey is easy?

Absolutely not.

There are days filled with pain. Days of exhaustion. Days when my body reminds me of every diagnosis on that list.

But years ago, I made a decision.

This health battle would never become my identity.

My diagnoses describe some of the battles I face—they do not define the man I am.

I refuse to allow illness to steal my purpose. I refuse to let disease dictate my joy. I refuse to surrender the calling God has placed on my life simply because my body doesn’t always cooperate.

Instead, I choose to keep living.

I choose to keep loving.

I choose to keep serving.

I choose to keep overcoming.

If you’re walking through a battle today—whether it’s a health crisis, grief, depression, financial hardship, addiction, or something no one else can see—I want to encourage you.

Don’t let your battle become your identity.

Keep fighting.

Keep making memories.

Keep dreaming.

Keep showing up.

Keep loving the people around you.

Live your life to the fullest, even if it looks different than you once imagined.

Champions aren’t defined by the battles they face.

They’re defined by the courage to keep getting back up.

So today…

Choose hope.

Choose purpose.

Choose joy.

Choose life.

And whatever comes your way, keep overcoming.

Live like a champion. ~OC

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Storms

Storms have a way of stealing our focus. The wind gets louder, the waves grow higher, and fear begins to whisper that we’re sinking.

But just as Peter discovered on the water, everything changes when we fix our eyes on Jesus instead of the storm. The waves may still crash around us, but His presence brings peace that circumstances cannot take away.

Whatever storm you’re facing today, don’t let it become bigger than your Savior. Keep looking to Jesus. He is still faithful, still in control, and still leading you safely through to the other side. ~OC

“Fixing our eyes on Jesus, the pioneer and perfecter of faith.” — Hebrews 12:2

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Dear Parkinson’s Community

Dear Parkinson’s Community,

I wanted to see if there would be interest in starting a weekly or monthly Zoom gathering for our Parkinson’s community.

The vision is simple: to discuss the latest developments in Parkinson’s research and treatment, share practical insights, encourage one another, and remind each other that no one has to walk this journey alone.

This group would be open to:

  • People living with Parkinson’s disease
  • Caregivers and family members
  • Medical professionals
  • Anyone who has lost a loved one to Parkinson’s

Whether you’re newly diagnosed, have been living with Parkinson’s for years, care for someone with the disease, or simply want to learn and support others, you are welcome.

If this is something you would be interested in, please leave a comment below or send me a direct message. If there’s enough interest, I’ll begin organizing our first Zoom meeting.

Together, we can learn, encourage one another, and find hope for the road ahead.

You are not alone. ~OC

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Life With Purpose

Today’s a new day!

Twenty-four years ago, I never imagined the road my life would take.

If someone had told me I would spend decades walking through cancer, Parkinson’s Disease, Myasthenia Gravis, a stroke, gastroparesis, early-stage Lewy Body Dementia, countless hospital stays, surgeries, treatments, and more doctor’s appointments than I could ever count, I probably would have wondered how anyone could endure that much.

The truth is, there have been days when I wondered the same thing.

There have been moments when fear tried to take over. There have been seasons of grief as I watched abilities I once took for granted slowly disappear. As a former marathon runner, I remember what it felt like to run mile after mile with freedom. Today, every step is a reminder that life has changed.

But here’s what I’ve discovered.

I couldn’t choose my diagnoses, but I could choose what I did with them.

Somewhere along this journey, God began changing my perspective. Instead of asking, “Lord, why is this happening to me?” I found myself asking, “Lord, how can You use this for Your glory?”

That question changed everything.

Purpose doesn’t eliminate pain, but it gives pain eternal significance.

Some of the most powerful moments of my faith haven’t happened in church buildings. They’ve happened in emergency rooms, hospital rooms, intensive care units, doctor’s offices, and quiet moments when all I could do was whisper the name of Jesus.

I’ve experienced frightening hallucinations brought on by Parkinson’s Disease and dementia. They were unlike anything I had ever known. Yet even in those moments, when my mind should have been consumed with fear, God filled it with peace and worship. Songs came flooding into my heart. Instead of darkness having the final word, Jesus reminded me that His presence reaches places illness never can.

Those songs eventually became Songs in the Battle.

What the enemy intended to use to discourage me, God transformed into worship.

In 2019, during surgery, God gave me a glimpse of Heaven that forever changed how I see suffering. I experienced a place more beautiful than words could ever describe. I had no pain. I had a new body. I didn’t want to leave.

Then I heard these words:

“Not yet, my son. I have more work for you to complete.”

When I woke up in recovery pointing toward Heaven, I knew my life no longer belonged to me. It belonged completely to the One who had sent me back.

That experience didn’t remove my health challenges.

It gave them purpose.

I’ve learned that ministry isn’t confined to a platform or a microphone. Sometimes ministry looks like encouraging another patient in a waiting room. Sometimes it’s praying for a nurse who has had an exhausting shift. Sometimes it’s simply choosing joy when your circumstances make no sense.

Every diagnosis has become another opportunity to testify to God’s faithfulness.

Every setback has become another opportunity to trust Him.

Every scar has become another reminder that God is still writing my story.

I’ve also learned that weakness isn’t the opposite of usefulness.

The world measures people by what they can produce. God measures us by our willingness to trust Him. Scripture reminds us that His power is made perfect in weakness. Looking back, I can honestly say I’ve often experienced God’s strength most clearly when I had none of my own.

If my journey has taught me anything, it’s that purpose isn’t determined by our physical abilities. It’s determined by our willingness to surrender whatever we have to God.

I don’t know what tomorrow’s doctor’s appointment will bring.

I don’t know what new challenge may be waiting around the corner.

But I do know this:

As long as God gives me breath, I want every breath to point someone toward Jesus.

If my story gives hope to someone newly diagnosed…

If it encourages a caregiver who is exhausted…

If it reminds someone that miracles still happen—even when they don’t look the way we expected…

If it helps one person discover that Jesus never abandons us in our suffering…

Then every difficult day has eternal value.

I have made the choice to live out my health issues with purpose.

Not because this journey has been easy.

Not because I enjoy suffering.

But because I have seen, time and time again, that God never wastes a surrendered life.

My health challenges are part of my testimony, but they are not my identity.

My identity is found in Jesus Christ.

And as long as He continues to write my story, I will keep telling the world that hope is alive, miracles still happen, and no diagnosis is greater than the faithfulness of God. ~OC

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Everyone Belongs

This week marks the 36th anniversary of the Americans with Disabilities Act (ADA), a landmark moment in our nation’s history.

The Americans with Disabilities Act was more than a piece of legislation. It was a declaration that every person has inherent worth, dignity, and the right to fully participate in society. It challenged barriers that had excluded millions of Americans and affirmed that disability should never determine a person’s value or limit their opportunity.

While we have made significant progress over the past 36 years, the journey is far from over.

Too many people with disabilities still encounter physical barriers, employment discrimination, inaccessible healthcare, transportation challenges, and attitudes that underestimate their gifts and potential. True accessibility is about more than ramps and parking spaces—it is about creating a culture where every person is welcomed, respected, and empowered to thrive.

As someone who has spent years walking through significant health challenges, I have experienced firsthand both the compassion of others and the obstacles that still exist. I have also learned that disability does not diminish purpose. It does not erase calling. It does not prevent God from working through our lives in powerful ways.

The Church has a unique opportunity to lead by example. We should be the first to ensure that people with disabilities are not merely accommodated but fully embraced as essential members of the Body of Christ. Every gift matters. Every voice matters. Every life matters.

The ADA reminds us of an important truth: inclusion is not charity—it is justice. And for those of us who follow Jesus, it is also an expression of His heart. Throughout the Gospels, Jesus consistently welcomed those whom society overlooked, reminding us that every person bears the image of God.

As we reflect on the legacy of the Americans with Disabilities Act, may we celebrate how far we’ve come while recommitting ourselves to building communities where every person can flourish with dignity, opportunity, and hope.

Let’s continue removing barriers—not just in our buildings, but in our hearts.

Because everyone belongs. ~OC

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