Tag: Never Give Up

Along the Journey

Today’s a new day! As I continue to run this crazy beautiful health journey, I want to continue sharing some wisdom and life lessons with you. I pray they will challenge and encourage at least one person.

Twenty-three years ago, I sat in a sterile doctors office as the doctor shared I would probably be dead within five years. As I have continued running this crazy beautiful health journey, I have heard similar predictions from many doctors. Today as I write these words, my prognosis is not great. But as I write these words, I laugh a little because God continues to let me thrive in life despite the poor diagnosis. Throughout the past twenty-three years, God has answered the prayers of many. He continues to give me a reprieve. God continues to work miracles.

During the past twenty-three years of this crazy beautiful health journey, I have learned many lessons. I thought I would share a few.

I have learned to not fear death, but anticipate it with joy.

I love the words of the Apostle Paul,

“As it is my eager expectation and hope that I will not be at all ashamed, but that with full courage now as always Christ will be honored in my body, whether by life or by death. For to me to live is Christ, and to die is gain.” ~Philippians 1:20-21

I believe most Christians do not fear going to be with Jesus. It’s the pain and suffering that often precedes death that makes us a little uneasy. But I think as Christians, we tend to look at it the wrong way. Most of us think that we are in the land of the living en route to the land of the dying. But nothing could be farther from the truth. If we know Jesus, we are in the land of the dying traveling to the land of the living. I have experienced amazing peace during my hardest days. I have felt contentment and surrender wash over me.

Be brave. When I open my eyes each morning, I hear God singing these words to my heart.

“The Lord is my light and my salvation; whom shall I fear? The Lord is the stronghold of my life; of whom shall I be afraid?” ~Psalm 27:1

Most days , I deal with a lot of pain, weakness, nausea and horrible headaches. But each morning, I make the choice to get up and look forward to all that God has planned for me that day. Now that doesn’t mean I do not have rough days. I definitely do. That is why I always try to share the good and not so good parts of my journey. But I look at others who are suffering more than me and see how they do not complain and are living life with a beautiful sense of joy. I figure if they can face the pain with faith, so can I.

Let God’s Word empower you.

Speak it. Pray it. Sing it. Envision it. The more you allow God’s word to feed your soul, the stronger your spirit becomes. When I am feeling too weak to do anything, I open God’s word or listen to praise music to help me through those tough moments.

I love what the psalmist wrote in Psalm 119:92-93:

“If your law had not been my delight, I would have perished in my affliction. I will never forget your precepts, for by them you have given me life.” ~Psalm 119:92-93

Remember. Be grateful. Be glad. 

As I have faced this health journey, Laura and I have decided to continue traveling and making precious memories. On the really tough days, I look at those pictures and re-live those beautiful moments. I feel so blessed to connect with friends old and new, with family, with former classmates and everyone I have met on this amazing life journey God continues to let me live. All I can do is smile. Well, I cannot really smile that well these days, but I try.

The Apostle Paul shared the following words while sitting in a prison cell:

“For what thanksgiving can we return to God for you, for all the joy that we feel for your sake before our God,” ~1 Thessalonians 3:9

Embrace each precious moment. 

I have learned to not leave any words unsaid. Hug the people you love (or fist bump). To share and give freely. Leverage your time and energy for God’s purpose.

Over the past twenty-three years, I have faced death many, many times, but God allows me to keep standing. During this journey, I have learned what really matters in life: my relationship with God, my family/friends, serving others and not waiting for the perfect time to make amazing memories.

“So we do not lose heart. Though our outer self is wasting away, our inner self is being renewed day by day. For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison, as we look not to the things that are seen but to the things that are unseen. For the things that are seen are transient, but the things that are unseen are eternal.” ~2 Corinthians 4:16-18

When life gets dark, the glory of God shines brighter. I am not afraid of the valley of the shadow of death, because He is with me….closer than I could have ever imagined! ~OC

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Happiness

Today’s a new day! As I continue to walk out this crazy beautiful health journey, I want to continue sharing some wisdom and life lessons with you. I pray they will bring you encouragement.

Today’s Lesson: Happiness

Happiness is something you decide on ahead of time. It is a decision I make every morning when I wake up. I have a choice; I can spend the day recounting the difficulty I have with the parts of my body that no longer work, or be thankful for the ones that do. Each day is a gift, and as long as my eyes open, I have breath in my lungs, I will focus on the new day and all of the opportunities it presents.

Happiness is like a bank account. You withdraw from what you’ve put in. So, my advice to you would be to deposit a lot of happiness in the bank account of life.

Here are five simple steps to living out happiness:

1. Free your heart and mind from hatred.

2. Free your heart and mind from unnecessary worries.

3. Love and Live simply.

4. Live out your dreams and purpose.

5. Give more than you take.

Have a great day filled with love and happiness. ~OC

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Lead Me Home

I wrote this piece back in 2019, but do not believe I ever posted it. The Lost Writings of OC continues.

Today’s a new day! As I continue to walk this crazy beautiful health journey, I’ve become comfortable in the wilderness moments. The ups and downs, the barren place is a place that I have spent so much time in that it has come to feel like home. I know how to operate there. I know how to encourage others that are in it. Because when you walk through enormous storms in life and God shows up in huge ways, you become changed by it. I see the beauty in the storms. The beauty that can be present even in suffering. That’s a message I believe in and will continue to share. I truly believe God is present with us in the pain and the struggle and the vast and dreadful desert. And that He uses everything–absolutely everything–for our good and His glory. Even when it doesn’t feel good in the moment. Even when it feels like a million shades of awful. The wilderness place is never where our stories end.

Over the years, I have been asked this question many times, but I often wonder if people truly want the answer. How could God allow it? Why? Why does God allow evil to happen? But when we know God and are following Him, we begin to see more of His character. This God of extraordinary love that comes through for us over and over again–in His way and in His timing and in a way that He knows is best for us. Do we want the answer if it means enduring pain is part of the process? If it makes us more like Him? If it strips us of pride and idols and all the junk that just continually brings us down? How could a good God allow it? We see the world through narrow eyes. We see the temporal things. We see just what is in front of our face at the time. And often what is there is so overwhelming–how could we possibly see anything else? But we have to take the time to look at the full picture. We have to think about how our story will ultimately end. Our God who gives us the choice of whether or not to love Him–because could we truly love Him if He didn’t give us that option? He is too big to accept that kind of response. He wants us. He wants us to love Him for who He is because He already loves us for all of who we are. And with the option to love Him also comes the option not to love Him. To travel our own path. Each of us have a will to choose, and we all at different points choose the wrong one. And the world is broken and full of pain and how do we even begin to reconcile it all? How do we accept that He is still good? He promises to be our God. Our deliverer. Our Savior. Our refuge. Our strength. God promises that we are held safely in His everlasting arms. So why doesn’t He move those enormous mountains in our paths? Why does He make us take the slow and sometimes painful climb to the top? The climb that eventually leads us up to the steepest point where we can look below and see the landscape that was always there but was just always over the next valley. This view from the mountaintop allows us to take it all in–the whole picture. The whole journey. To see both where we have come from and where we are going. The reality is, God doesn’t remove every single struggle in our path. He wants us to work through them. He wants us to put one foot in front of the other and feel our muscles trembling with every single step. Sometimes we feel like we are drowning in our struggles and our sorrows and we cry out to Him for rescue, and the tide just gets stronger. We forget that He already parted the seas for us. That our lives aren’t measured from one situation to another, but from His Son making the way for us and the forever that still awaits us. That there is another side to the mountain that we are climbing and the narrow road we walk is so much shorter than we could possibly believe. Every single step up the steep road strengthens our bodies to continue the walk home. It is hard, and it is painful, and at times we fall over and feel like we couldn’t possibly take another step. But it’s still the road home. Are we going to choose it anyway? Are you going to choose a road that is full of pain and sorrow and hurt? Because He says it is part of the path. That suffering was always a companion on our journeys. By following God’s way we are signing up for struggles and heartbreak. But would He ask this of us if it wasn’t worth it? This world is full of so much pain and sorrow, and it is far too much to bear. People all over the world struggling more than we could possibly fathom, and why does He allow it? But would we know His goodness if He didn’t? Because there is a difference between allowing something to happen and condoning it. Approving of it. And if you spend anytime in His word, you will know that God so wholly and completely disapproves. He doesn’t like it anymore than us when we are faced with a huge mountains to climb in our path–but He will use it. He will redeem it. He will show up and walk the journey with us. Because He is good, and He wants the best for us. He can see more than we can and sometimes that means the hard road. Sometimes the hard road is the only road. But I believe it’s worth it. Walking this health journey has not been easy, but I wouldn’t change it. I embrace the lessons learned. The losses endured. I will continue to walk this journey that will eventually lead me Home. ~OC

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Simply David

Today’s a new day! I wanted to take a few days before responding to the irresponsible comments made by Secretary of Health and Human Services Robert F. Kennedy, Jr. earlier this week.

Laura and I have a wonderful and loving nephew living with autism. I should correct myself and say that David is thriving in life. As a child, the doctors shared David would never talk, or be able to take care of himself. Oh, how wrong they were. Today David is in his mid twenties and will talk all day if you let him. He also works two jobs and pays taxes. David has won multiple Special Olympic Medals. He and his father volunteer weekly at their church. Everyone at church knows and loves our nephew. David is living his best life.

So when Mr. Kennedy stood before the cameras and declared that children like David “will never pay taxes, never hold a job and never write a poem, I looked on with horror. Mr. Kennedy then went on to claim autism is “a preventable disease” and promised a lightning-fast investigation to root out its so-called environmental causes. While we must look at every possible cause of autism, including environmental factors, we cannot ignore the decades of scientific research that has already been conducted.

And remember, this is coming from a man with no real medical background.

This coming from the man responsible for guiding the United States’ national health policy. Let that sink in for just a second.

What Mr. Kennedy did at that podium was spew misinformation. It was a new level of fear-mongering. It was the 21st-century version of a snake oil salesman promoting false promises with no credible science.

Let me share what autism actually looks like.

It looks like David playing tennis or pickle ball. It’s David being so excited to dress up like Spider-Man to bring some enjoyment to others. It looks like David always checking in on me during and after a hospital stay. It looks like David making Auntie Laura a sandwich or bringing her a fresh drink. It looks like David constantly looking for ways to serve others. That’s what autism looks like.

David is not a victim. He does NOT fit any of Mr. Kennedy’s cartoonish depiction of helplessness.

I realize autism looks different for every individual and family. But in my nephew’s case, he is kind, he continues to learn and he is thriving in life. David has already defied every negative prediction made about him when he was a child.

And if I have to listen to Mr. Kennedy or any other politician turn my nephew into a sound bite for political gain, I will keep using the power of my voice and the power of the pen to call out such blatant misinformation. And I will continue to encourage everyone to reject these false narratives by voting against them on election day.

My nephew is not a tragedy. And he is certainly not an epidemic. He is simply David. A young man with hopes and dreams like the rest of us.

I would encourage everyone to actually do your own research on autism and other health issues and not the words of a man who only cares about pushing his own twisted agenda. Thanks for reading. ~OC

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Endurance

Today’s a new day! For the past twenty -three years, chronic illness and pain have been a close and unwanted companion to me. This unwanted intruder is always trying to destroy my life.

Chronic illness and pain is a powerful thing, continuously trying to snatch my peace, happiness and positive attitude like a thief in the night. As I write this, with pain shooting throughout my body and my soul weary within me, I consider the great truths of 2 Corinthians (take time to read it for yourself). Someday, despite my greatest efforts to hold on to hope and strength, my soul and spirit grow weary in fighting through the physical pain I endure on a daily basis. I often find myself being led to a prayer of brokenness in these moments. “Oh Lord, what good am I to you in this place? How much more could I offer you if I were healthy, energized, and strong! Lord, what is the point of this pain?”

The truth is that physical or emotional pain, especially when it is chronic, has a way of stripping away the masks we tend to wear, leaving our hearts exposed and our self-sufficient ways of life threatened. It clears away the sea of fog filled with empty distractions and suddenly makes us face the question: Is it worth following Jesus when this is what life will be like?

Pain is never easy or pleasant, but nothing can compare to the pain of eternity without God. And so my pain today is a small glimpse of what I have been saved from. How much more can we grasp the beautiful and glorious promise of eternity with our Savior, free from pain, worries, health issues and the distractions of this world. The beautiful God inspired truths we find in the Bible give us a reason to push through the storms, a purpose to live out and a sense of hope to endure the rough seas of this life.

I spend many sleepless nights looking to the One who understands everything we walk through in our daily journey. I don’t know about you, but there is a tendency to turn inward during this crazy beautiful health journey. Sometimes, I think no one can possibly understand the suffering I endure each day of my life. But there is someone who understands—who has been through everything I am going through, and everything I will go through, and far, far more—Jesus.

A question I have for each of us. If we truly believe God always keeps his promises and will never forsake us, why do we often go to Him last? The truth is that no one can fully understand our pain in the way our Savior can, the only One who knows us intimately and has walked this hard road before us. We are not left to endure the pain of this life in loneliness and our own strength. Rather, we serve a God who bears the physical scars of His love for us and sympathizes with us as one who has lived as a human being and suffered more than you or I will ever know.

God longs to fill the broken pieces of our lives, often left by suffering, with the hope of the gospel and the healing power of His presence. One thought about our afflictions can never be true—that no one understands them. We have a God with nail scared hands walking with us through this journey. We have the privilege to speak to a God whose time on earth was accompanied by the afflictions of poverty, of disappointment, of betrayal, of mockery, a terrible beating and death. Jesus offers us mercy and grace in our time of need. So cry out to Him! God does not leave us to fend for ourselves. I am so thankful for those promises. When we have nothing left and are struggling to put one foot in front of another, we can cry out to Jesus, who not only understands but strengthens us when we are weak, equips us when we are weary, and brings beauty out of our brokenness. I am thankful that we have a hope beyond our pain because of the grace and mercy of Jesus Christ.

We have a Choice:

As I write this post, I am allowing God’s word to speak truth to my own soul just as much as to yours. Though there are times when pain can seem almost unbearable, we have a hope that much of the suffering world does not know. While we naturally desire the healing of our bodies or our minds, Jesus desires the healing of our soul above all. And we will either allow the period of pain to bring us closer to Jesus or to pull us away from Him. Be aware that the storms of life can cause us to turn away from Jesus, in crippling bitterness or toward futile self-reliance, or it can cause us to turn to Jesus, trusting that He knows, cares, helps, and will one day bring us to a world where faith will become sight and pain will be no more.

So let’s cry out to Him in our pain and discomfort. Although we are afflicted in every way, we will not be crushed because of the grace of Jesus Christ that is poured out to us. He will only allow what will be used for His good and loving purposes in our lives and if He has chosen to allow us to endure some form of pain or affliction, we can find strength in the promise that He will only allow for an allotted time what He intends to use for our good and his glory.

Don’t give up or give way to despair, for there is a glorious treasure to be found when the pain of this world drives us to Jesus, and it is of far greater worth than any earthly relief. Yes, pain and affliction are real in this world. Jesus knows that. But what could crush us as we struggle on in faith, might be the means of God reshaping and revealing His purpose for our lives.

Health issues will be my close companion, it would seem, until Jesus calls me home. But when the pain and suffering tries to drive me to despair, I have a God who understands, and who helps, and who will use this health journey to mold me into His likeness. This crazy beautiful health journey will not defeat me, for God is greater than anything this world throws at me. Lean into that truth and promise today. ~OC

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Stand

Therefore put on the full armor of God, so that when the day of evil comes, you may be able to stand your ground, and after you have done everything, to stand. Stand firm. ~ Ephesians 6:13-14

Today’s a new day! Life can feel overwhelming at times. Can I get an amen? Life can be hard. The never-ending to-do lists, the health issues, financial issues, the friendship that ends out of the blue or the house that never seems to stay clean. Sometimes we feel like we cannot cope. We may not even be able to explain it. We just feel overwhelmed. We feel like we’re drowning.

I’m not sure what is currently happening in your life, what crisis you may be facing, but what I do know is we will all face challenges and heartaches we didn’t expect. In the midst of it all, we have a God who, just like a lifeguard, is ready to rescue us.

I can see Him looking at me, saying, “I’ve given you everything you need. Just stand.” Ephesians 6:13-14 declares, “Therefore put on the full armor of God, so that when the day of evil comes, you may be able to stand your ground, and after you have done everything, to stand. Stand firm …” My heart is lifted up as I remember the following truths. Hopefully they can bring you some encouragement.

*No matter how unqualified we feel for the tasks set before us, with God we’re well-equipped.

*No matter how fast we seem to be sliding down the slippery slope of this thing called life, with God we are not in despair.

*No matter how overwhelming the situations of life feel, with God we are not drowning.

Friend, God has given us everything we need to stand victorious against the storms and uncertainties of this world. All we have to do is stand. Stand on His Word. Stand on His promise that declares we are “more than conquerors through him who loved us”(Romans 8:37). Stand on the command of Jesus to “take heart” because He has “overcome the world” (John 16:33). Stand on the truth that He will “fight for you against your enemies to give you victory” (Deuteronomy 20:4)

Today, let’s declare it with our mouths and believe it in our hearts. After you’ve done all you can, just stand!

Dear God, even though we can get easily overwhelmed by the things of this life, we thank You that You are always there, that You never leave nor forsake us. We pray that we will be reminded continuously that through the power of Your Word, we are well-equipped for this journey You have prepared for us. No matter what comes our way, may we stand on Your promises. In Jesus’ Name, Amen. ~OC

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Still Standing and Thankful

Today’s a new day! I don’t like being in pain and I don’t like having multiple health issues that will probably shorten my life. I would love to grow old with my bride. But I realize that may not be the plans God has for my life. But I know and I trust that He is faithful. God’s plans are the best and do not revolve around me. Acts 13:36 says, “when David had served God’s purpose in his own generation, he fell asleep”. When God has done what he wants through me, I will step into heaven in his perfect timing.

Why has God allowed me to walk this health journey? Maybe it is to help me be a better husband and friend. Maybe it’s an opportunity to share the love of Jesus with more people. Maybe it’s for reasons way beyond my understanding. All I know is that God has given me this gift of health issues to use for his glory. All I know is that I will continue to trust and serve him.

Sometimes it is still hard to comprehend that my life could end at any moment. But isn’t that the case for all of us? As the Bible teaches,

All men are like grass,
and all their glory is like the flowers of the field;
the grass withers and the flowers fall,
but the word of the Lord stands forever. (1 Peter 1:24)

When I received my first diagnosis in August 2002, it was a total shock. I knew I didn’t feel great, but I had no idea how I was so sick. My life at that time involved being a husband, a social worker and volunteer at multiple ministries.

Back then, some doctors shared I might only have five years to live. However, God had other ideas and even though my health journey has been full of twist and turns and multiple life threatening illnesses, I am still standing. Some days my life has felt like a ticking time bomb. My bride has become an expert in dealing with multiple infections,various types of devices being surgically implanted into my body and various treatments to just keep me alive.

As the multiple health issues continue to weaken my body, I am thankfully aware that Jesus is my Lord and Savior in whom I can depend, and that all other ground is sinking sand. I am so grateful to God for everything. I am thankful for who God is, his majesty, his splendour, and his promises. I am thankful for my bride, family, friends and life. I am so thankful to God for the resurrection of Jesus which means I will have victory over death and do not need to fear what my future holds. It is such a comfort to read,

“Death has been swallowed up in victory”
  “Where, O death, is your victory?
  Where, O death, is your sting?”
The sting of death is sin and the power of sin is the law. But thanks be to God. He gives us the victory through our Lord Jesus Christ. (1 Corinthians 15:54-56)

As my body grows weaker, I am thankful God continues to allow me to truly embrace life. To continue making beautiful memories with my bride. Some dear friends even bought me an electric trike to get around town. Watch out world! I will enjoy the new bike in between my many naps. After years of not being able to sleep, most of my days now involve sleeping most of the day.

What can be hard is coping with chronic pain and deteriorating health while still navigating the physical and emotional challenges of trying to live a “normal life.” Another challenge is not knowing what each day might bring. It is impossible to make plans. Between multiple medical appointments and hospitalizations, it can be difficult to make any plans.

However, I am just so thankful for God’s guidance through his word. The Bible is so clear about what God wants me to do now, even as I grow weaker: “Be joyful always; pray continuously; give thanks in all circumstances; for this is God’s will for you in Christ Jesus (1 Thess 5:16). God is so clear. This is what God wants me to do now. I am thankful he continues to allow me to live an amazing life.

So, I will continue to thank God for this gift of health issues because he is good and he is using it for his purposes. The plans of the Lord are perfect, even if I do not always know the reasons I continue to walk through this crazy beautiful health journey. All I know is that someday, I will be in the loving presence of Jesus. But until then, I will continue to live life and embrace every moment. If you see me out and about on my trike, stop and say hello. Oh, and wake me up if I happen to be asleep. ~OC

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Deep Roots

Today’s a new day! I shall not be moved; I shall not be shaken. How many times have I repeated these familiar Bible verses in my mind, thinking that as long as I am truly rooted in God, nothing will ever rock my world.

I have set the Lord always before me; because he is at my right hand, I shall not be shaken. (Psalm 16:8)

But this world can be like a roller coaster, full of twist and turns. And sometimes no matter how hard we cling to the grace of God, we can find ourselves overwhelmed by the storms of life.

There are times we still shake when life throws us a curveball. No one is immune to the unsteady waves of this broken world.

So how do we stay rooted?

Having been born and raised in South Florida, I have lived through many storms and hurricanes. Life can be a little unpredictable during hurricane season. As I reflect on all the hurricanes I have lived through, I realize that I had it all wrong just asking the question above.

During a hurricane, the trees can violently sway back and forth. I think to myself, there is no way those trees can withstand the strong winds. At any moment, they are going to fly away in the storm. But I marvel as the trees sway and rock, but are not uprooted.

Steady they hold on, anchored in the ground by an invisible root system designed to protect them from life’s raging storms.

We have this as a sure and steadfast anchor of the soul, a hope that enters into the inner place behind the curtain. (Hebrews‬ ‭6‬:‭19‬)

Life will shake us. It will move our earthly bodies and minds in ways that feel almost impossible to recover from. But when we anchor ourselves in the love and salvation of God, we find that our eternal soul and spirit can never be moved.

Just like those trees, we have an invisible root system that anchors us in the Kingdom of God. This allows us to walk confidently through the storms of life, knowing that God is always holding onto us.

Though the earth give way and the mountains be cast into the midst of the sea, we remain rooted in God. Although life and the choices we make may move us, God always has us right where He wants us.

I want to encourage you to remember that we always have an anchor in the unsteady waves of this world.  I pray you remember how all that we are is secured in the loving arms of our Heavenly Father. ~OC

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Keep Pressing Forward

Today’s a new day! Life is full of hard times. I do not think that is breaking news to anyone. The nightly news point to it. Our neighbors and coworkers talk about it. Our hearts feel it. So many people are going through hard times right now. Let’s face it: Life is hard, even in the best of times. Disappointments, illnesses, loss, broken relationships, dashed dreams. As we walk through these difficult moments, what does the Bible say about getting through adversity?

Plenty, actually! God knows we’re living in a broken world, but He has not left us to suffer alone.

First, when we’re in the midst of hard times, it can be difficult to remember that nothing happens without the knowledge of God, who “works for the good of those who love him, who have been called according to his purpose” (Romans 8:28). You are not victim of random occurrences; you are a child of a Heavenly Father who wants to turn adversity into opportunity.

We also need to keep uppermost in our minds that hardships don’t last forever—but the things we learn from them do. The Apostle Paul writes the following words in 2 Corinthians 4:16-18,

“Therefore we do not lose heart. . . . For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal.”

Adversity in God’s hands can help us refrain from our self-dependency and pride. It can push us into deeper intimacy with Jesus. It can redirect our paths toward our greater good, and toward God’s greater glory.

Tough times also can reshape us. Think about Romans 5:1-5, in which Paul says that “suffering produces perseverance; perseverance, character; and character, hope… Or 1 Peter 5:10, in which the apostle Peter teaches that “the God of all grace … after you have suffered a little, will himself restore you and make you strong, firm, and steadfast.”

Who doesn’t want to be a person of character, full of hope, strong and steadfast?

It’s all in how we react to those tough moments in life isn’t it? A good place to start is to discern the source of the adversity. Is it just circumstances? Maybe you’ve lost your job due to the budget cuts, or your chronic illness is currently getting the best of you. You could be suffering from physical, mental or emotional exhaustion from the current trials you’re facing. Life is hard!

As I continue to run this crazy beautiful health journey and study God’s word the overall message I continue to hear is to turn to Him and trust Him. Persevere! That’s what Hebrews says: “You need to persevere so that when you have done the will of God, you will receive what he has promised” (Hebrews 10:36).

Don’t give up! Don’t give in! Don’t opt out! Remember, “I can do all things through Christ who gives me strength” (Philippians 4:13).

You aren’t going through hard times alone.  No matter what, remember to Keep Pressing Forward. Stay Focused. Finish Strong. ~OC

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Life With Chronic Illness

Today’s a new day! What do you do when you don’t get better?”

I became chronically sick twenty-three years ago, after being diagnosed with several types of crippling arthritis. It would be a year later after taking many experimental medications, that I was diagnosed with a rare form of cancer. Then over the years, I would be be diagnosed with the following: Young Onset Parkinson’s, Myasthenia Gravis, Gastroparesis, Covid Long-Hauler, Complex Headaches, and recently Early Onset Dementia. Oh, and a stroke several years ago. It truly has been a crazy beautiful health journey.

I became a Christian when I was ten years old. I will be the first to admit, I did not always live the Christian life in my early teenage years. When I first became ill, some people in the Christian community began to weaponize their faith against me. They would say that I wasn’t faithful enough, or that I must have some type of unresolved sin in my life. Sadly all these years later, I still have some Christians screaming that in my ear on a weekly basis. At times over the years, I felt judged and disliked by many in the Christian community. That is never how Christianity, or any faith, should be. For me, it wasn’t just what conversations were being had—but also how.

The sad part is that the people who wanted me to not lose faith tried to make it harder to connect with God and other Christians. Some people over the years have made the excuses, “Well they mean well.” I truly do not believe that. I believe it actually shows their true heart. I am thankful that during this crazy beautiful health journey, God has surrounded me with some amazing people who have helped me through this difficult season. I am also thankful I have never lost my faith during this journey.

As I continue to run this crazy beautiful health journey, my goal is to not allow those negative voices to have any influence on my life. I also decided early on in my health journey to help others walking through their own health journey.

I share all this because I know that I’m not alone, and I want others to know that they aren’t either. When you’re feeling attacked, beaten up, remember that God loves and is with you. I am sorry if anyone has made you feel like that isn’t the case. What people believe is their choice, but no one has the right to weaponize their faith. That sort of human hurt harms those in the disabled/chronically ill community that may be struggling with their faith.

In Isaiah 54:10 we read, “Though the mountains be shaken and the hills be removed, yet my unfailing love for you will not be shaken nor my covenant of peace be removed,’ says the LORD, who has compassion on you.” Being chronically ill can very much feel as if everything is being shaken up and changed—at least that’s how I have felt at times over the years.

I no longer know what each day will feel like, physically, let alone have a clue about what I may be able to do in the future. But God’s love doesn’t change when we are in tough situations (or any situation.) He is still with us. He knows the truth of our situation and still loves us.

Some passages that resonated with me, and may be appreciated by those reading this post, are those about us being fearfully and wonderfully made (Psalm 139: 13- 14), Psalm 86-15, and Ephesians 1:5-6. That is about YOU. You are loved beyond words. Think about John 3:16. That’s not just for the able bodied and minded, it’s for ALL of us.

If you can relate to anything I have written, the following are a few things that have helped me. Just remember this journey is different for everyone.

*Don’t bottle things up. I encourage everyone to find a trusted friend, pastor, counselor or support group to share your feelings with. It may be difficult at first, but I promise you’ll be glad you did.

*Take this current season of life slowly. Remember, life is a marathon not a sprint.

*Do not give up on the Christian community or the Church based on some misguided people. Remember, there are no perfect people or churches.

*Find out what works for you in your journey with health issues and your walk with God. One size doesn’t fit us all.

*Spend time in the Bible and listening to worship music. Both have helped bring peace and clarity to my life during my health journey.

* Remember, sometimes God does not give us quick answers to our prayer request. I encourage you to embrace the lessons God is trying to teach you during this difficult season. All of us whether healthy or chronically ill have a different journey. If chronic illness is currently part of journey, you are just as worthy as anyone else. Please embrace that truth today.

I hope and pray this post will encourage and challenge everyone who has taken the time to read it. Thank you! ~OC

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