Tag: Pain

True Friendship

Today’s a new day! A true friend is not the one who is there just during the good times, but is the one who decides to stay with you during the darkest storms.

The measure of true friendship isn’t found in shared moments of celebration and easy times, but in unwavering support during life’s toughest storms.

A true friend doesn’t desert you when challenges arise; instead, they stand by your side, offering comfort, strength, and unwavering support. Their presence is a steadfast anchor in turbulent waters, a source of solace and encouragement that helps you navigate life storms and emerge stronger on the other side.

This steadfastness, this unwavering commitment in the face of adversity, is the hallmark of a friendship that truly endures. ~OC

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The Week Ahead

Good morning family and friends.The next few weeks are busy.

Monday: Two Medical Appointments

Tuesday: Having a new port put in.

Thursday: Traveling to Plains, GA for my birthday celebration.

Thursday 12/11: Starting outpatient treatments.

Continuing to pray for each of you. ~OC

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Finding Purpose in the Storm

Today’s a new day! As I sit in this hospital room, surrounded by beeping machines and the business of staff, I am reminded that my purpose extends far beyond my physical body. In the midst of uncertainty and pain, I pray: Dear God, use me for your purpose during this hospital stay and every day as I continue to fight through this crazy beautiful health journey.

For me it’s a prayer of surrender, of trust, and of faith. It’s a reminder that even in the darkest moments, God’s love and patience remain unfailing.

Embracing the Unknown:

When we’re faced with the challenges of life, it’s easy to feel like our lives are spinning out of control. But what if we flipped that perspective? What if this season of uncertainty is an opportunity to discover a deeper sense of God’s purpose for our lives?

For those walking through their own “crazy beautiful journey,” I encourage you to pray the following: Dear God, use me for your purpose… I am thankful for your unfailing love and patience with me.

Practical Ways to Find Purpose:

1. Prayer and Reflection: Take time each day to connect with God. Reflect on your experiences, and ask Him to reveal His purpose for your life.

2. Support Loved Ones:Reach out to family and friends, and let them know you’re thinking of them. Sometimes, a simple text, handwritten note or phone call can bring joy to someone’s day.

3. Share Your Story: Consider sharing your journey on social media, a blog or write a book. Your story might encourage others who are facing similar challenges.

4. Find Ways to Serve: Even in a hospital room, you can serve others. Share words of encouragement with the staff, pray for the staff and others walking down the hall. Show kindness and respect to everyone you encounter today.

A Prayer of Thanksgiving:

As I continue to navigate through this health journey, I am grateful for God’s unfailing love and patience. I’m thankful for a loving and supportive bride, I am thankful for my medical team that’s been taking care of me for many years, I am blessed by the the loved ones who pray and support me, and for the opportunities to grow in my faith.

If you happen to be reading this post and are facing your own challenges, know that you’re not alone. You’re loved, you’re valued, and you’re part of a larger story.

A Prayer for Today:

Dear Jesus, use us for your purpose during the stressful times of life and every day as we continue to navigate through this journey called life. We’re thankful for your unfailing love and patience with us. Amen

Challenge of the Day:

How can you use your life experiences, past and present to bless and help others today? ~OC

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The Butterfly

Today’s a new day! Change can feel uncomfortable and painful at times, but if we don’t allow ourselves to go through all the stages of change, nothing will change. We know all too well that change is a constant in life. Many times we fight that change. Especially when it happens so fast.

As I have walked out this crazy beautiful health journey, I have often thought about the butterfly. Do you know on average, butterflies only live two to four weeks. How crazy is that? But think about all the changes a butterfly experiences in such a short amount of time. During my health journey, I have experienced a lot of change. Every new health issue or near death experiences has allowed me to grow and become all that God created me to be. He has used the all my experiences to teach me new lessons and view the world differently.

To become a butterfly, they must first start off as a caterpillar. They begin crawling along the ground, creating their comfort zone. The moment it’s time to change from a caterpillar into a cocoon, they probably think they’re dying. It feels like life is over. Then they experience something beautiful, but probably a little painful. During this health journey, I have experienced many different stages of growth. So many times I truly thought I was dying. I was sure I was breathing my last breath and soon I would experience the freedom of Heaven. Those moments are never easy, but unlike the caterpillar, I did not experience uncertainty or confusion. No, in those moments I experienced peace. I also experienced something beautiful. A new chance at life.

This health journey has been filled with some difficult moments. Those difficult moments have helped me grow into a deeper relationship with Jesus. In this season, I have learned to not fight all the changes going on in my body. I have not let my health issues become my identity, but instead have allowed God to use life changing moments to teach me the lessons He has for me at that moment. God has taught me to embrace each and every lesson along the journey. He has allowed me to embrace the uncomfortable and painful moments. Getting to know your own uncomfortable self is not something to fear, but something to embrace. I promise you, keeping your faith and having the patience to hold on gets a little easier over time. Does it get less painful? Sometimes, but the suffering becomes more about growing in our walk with Jesus and less about the pain. As you walk out your own journey, learn to be patient and not beat yourself up so much. As I continue to walk through this health journey, God has made me stronger, more hopeful and more confident whenever I walk through a cocoon season of life.

So today, make the decision to walk in the light of Jesus and be free. Don’t waste one single minute. Strive for growth, not perfection. Commit to living out your God given purpose. Embrace every moment and surround yourself with inspiring and encouraging people. Strive each day to be all God created you to be. Do not allow fear or past failures to keep you from spreading your wings and flying. ~OC

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Christians and Tragedies

Today’s a new day! The past few weeks have been tough for many. So many tragedies happening around America and across the world. I have been saddened by so much hate being posted on social media regarding some of the evil acts of violence. I have been trying to process everything over the past week and did not want to post anything that would cause anymore pain. But today, I am ready to share.

As Christians, we should care when any life is taken through tragic circumstances. It should not matter if we agree or disagree with the person who has been targeted by hateful individuals. So below, is how I choose to respond to tragic events regardless of who the victim is:

  1. Compassion and Empathy: Show love and care for those affected, regardless of differences.
  2. Prayer and Support: Offer spiritual support through prayer and practical help.
  3. Justice and Advocacy: Work towards understanding and addressing the root causes of the tragedy.
  4. Forgiveness and Grace: Embody forgiveness, even when disagreeing with the person involved.
  5. Community and Unity: Come together with others to provide comfort and support.

Here are some biblical references that can help guide how Christians respond to tragedy:

  • Matthew 5:44 (loving enemies and praying for those who persecute)
  • Luke 6:27-36 (loving enemies and doing good to those who hate)
  • Romans 12:14-21 (blessing persecutors and not seeking revenge)

I believe these principles and scriptures can help Christians and nonbelievers navigate through the tough moments we face in life.

Also a word of advice for my brothers and sisters in Christ about responding to social media post. Always remember to handle every situations with kindness, understanding and allow your faith to be a blessing and not a distraction during these complex times. Let your light shine bright at all times.

Thanks for taking the time to read this post. Have a wonderful day. Blessings. ~OC

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2AM Thoughts

Today’s a new day! It’s 2am on this Tuesday morning. I have been unable to fall asleep. It’s just one of those crazy nights with Parkinson’s and Dementia. So I have walked around the house more times than I can remember. I have watched several YouTube videos to pass the time. Finally, I have decided to share my experience and thoughts with you. Writing is still something my brain allows me to do on occasion. Lately, God has filled my brain with many thoughts. I feel an urgency to write as much as possible before I can no longer do that. Tonight, my brain is extra active. That’s not always a good thing.

I have good days and bad days as I navigate through the multiple health issues that are slowly robbing me of so much. On a bad day, I cannot do anything at all. My energy levels are low and I feel fatigued. The only way I can describe it is that I feel like I have run a hundred marathons in a very short amount of time. I feel totally drained.

But I have lots of coping strategies. I choose to use those days to pray a lot more. I choose to reach out to friends even though I know, I will not hear back from the majority of them.

I think it’s important to have something that gives you a sense of purpose in life. I try to share my journey to help encourage others walking through their own life struggles. If I can help just one other person, that’s enough for me.

When most people think about neurological issues, especially dementia they think it’s all about memory loss. But I have cognitive issues also- trying to figure things out can be difficult and frustrating. Also too many voices at one time can be overwhelming. I get frustrated and anxious if I am struggling to follow the conversation. I also deal with a lot of rigidity and pain, which creates so many issues.

Over the years I have lost many friends as I have walked through this crazy beautiful health journey. I believe a lot of people have a difficult time talking to and relating to me. But I am still me. My story has just changed a little. A lot of times when Laura and I are around other people, they will address questions to her, not me. My prayer is that people would see the person, not the disease.

But I am blessed that a few friends have decided to stick around and not jump ship. I hold those friendships very close to my heart.

I choose to embrace each moment of life. I try to share my love and thoughts now. Not waiting for the perfect moment. Because the perfect moment is today. Laura and I do not wait for the perfect moment to buy that gift or take that trip. Now is the perfect time. Now is the perfect time to take care of future arrangements. Which we have done. I did not want Laura dealing with all of that on her own.

It also means we’ve had really indepth chats about what quality of life really looks like. Everyone has to figure that out for themselves and their loved ones.

Life looks different every day. What I could do yesterday, might be more difficult to accomplish today. I continue to live my life with my cup overflowing. I try not to beat myself up too much when I cannot do something anymore. Because there are still many things I can do. So today, I choose to embrace the now and what I can accomplish today. ~OC

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Flashing Neon Sign

Today’s a new day! As with many neurological illnesses there is nothing noticeable about my condition. It’s not like a broken leg or arm where there is a cast which is obvious when seeing the person. But I cannot tell you how many times I have heard the same old words since my diagnosis last fall, Todd, you do not look like you have dementia.

I often wonder if it comes down to the fact that people feel uncomfortable talking to me about it, so they say the first thing that comes to mind. Which at times can come across as very insensitive and judgmental. Since my diagnosis of early onset dementia caused by my Parkinson’s, I have had several people tell me I do not look or act like someone with dementia. Or Todd, maybe you’re just dealing with an infection of some kind and just need to take some antibiotics. I would be overjoyed if that was actually the case. But I have some amazing doctors and they didn’t come up with this diagnosis lightly.

What does dementia look like? There is no cast or bandage to put on it. I guess I could wear a flashing neon sign that says, “HELLO, I HAVE EARLY ONSET DEMENTIA!” that lets people know of my latest diagnosis.

But seriously, I am walking through a very new and strange season of life, but I know I am not the only one. It simply gets frustrating when people decide to find a different diagnosis or make you doubt your current state of health because they do not like the diagnosis. It can be irritating and cruel when people doubt you and your medical team. Believe me, no one wants to sit in a doctor’s office and hear the words “You have early onset dementia.”

I do think that part of this attitude is because people have a hard time believing someone in their 50’s could have an “old person’s” disease. Also the topic of dementia is not an easy or fun subject to talk about. It can be easier to just ignore it or try to explain it away.

I also believe people have their own preconceived beliefs about dementia and I and many others suffering from this horrible disease do not fit in their picture of dementia.

So please do me a favor. Stop putting your personal beliefs or opinions on those suffering from a visually invisible disease or one that you don’t like. Life with dementia is already hard enough. Thanks for listening. ~OC

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The Race Called Life

Today’s a new day! During my running days, I was blessed to complete 350 marathons. Yes, you read that correctly. I can take no credit. It was all God pushing me through those marathons. People often ask me why I ran 350 marathons? I tell them I did not like the number 349.

It’s been a number of years since I was able to run based on my health issues. While I would have never considered myself a professional by any means, I like to think I learned a few things during my running days. Like how to stabilize my breathing (well, I did my best) and how to run at a steady pace. Once again I tried my best. Running is a lot like living the Christian life. We have many lessons to learn. I learned a lot of lessons during my running days that I have been able to apply to my Christian journey.

One of the first lessons you learn when you start running is that you need to have endurance. Whether you’re running a 5K or a 50 miler (yes, I did that), you need to train so that you can run at a steady pace and not get worn out quickly.

The Christian life requires endurance as well. Life can seem long and hard as Christians, especially in the midst of challenges. Many people have made the comparison that life is a marathon, not a sprint, and the same goes for the Christian life. As the writer of Hebrews says, “For you have need of endurance, so that when you have done the will of God you may receive what is promised” (Hebrews 10:36).

When you’re running, especially long distances, you want to lay aside everything that could weigh you down so that you only have the essentials. Lightweight shoes and light breathable clothing. As a runner you need to find the perfect balance between bringing what is necessary and those things that would just weigh you down.

In the Christian life, we are called to lay aside what weighs us down—namely, sin and any idols in our lives. Hanging on to those idols can cause our faith to falter and stumble. Letting go of idols in our lives frees us to live a life that is dedicated to Jesus. As the writer of Hebrews says:

“Therefore, since we are surrounded by so great a cloud of witnesses, let us also lay aside every weight, and sin which clings so closely, and let us run with endurance the race that is set before us, looking to Jesus, the founder and perfecter of our faith, who for the joy that was set before Him endured the cross, despising the shame, and is seated at the right hand of the throne of God.” (Hebrews 12:1–2)

As a runner, you come across trials and challenges. Whether that’s a heatwave, snowstorm, rainstorm, or injury, runners face challenges that impact their race. You can never predict these trials and instead you just have to take them as they come. But you cannot allow the obstacles in life to keep you from living the race God has designed just for you.

In the same way, as Christians we can face unexpected challenges and suffering. From a poor diagnosis, a lost relationship, a lost job or a broken family. This race called life can be difficult. But thankfully, we are being made perfect through the grace of God. As James writes in James 1:2-4, “Count it all joy, my brothers, when you meet trials of various kinds, for you know that the testing of your faith produces steadfastness. And let steadfastness have its full effect, that you may be perfect and complete, lacking in nothing”

My prayer is that we will all run this race called life with endurance and receive the beautiful gift of eternal life. ~OC

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Vision

Today’s a new day! As we start this new week, let’s take some time to talk about vision.

“Where there is no prophetic vision the people cast off restraint, but blessed is he who keeps the law.” ~Proverb 29:18

Vision is the ability to see God’s plans concerning our future. Vision is revelation that gives life meaning, value, direction, significance and purpose. Vision holds endless possibilities of what could be and what should be. Without vision there is nothing that keeps our lives on track and we end up wondering through life with no purpose. Author and Educator Helen Keller once said, “The only thing worse than being blind is having sight but no vision.” If our vision is compromised, it’s like a boat with no rudder. We will aimlessly wonder around with no direction.

When we have clear vision it gives us the ability to imagine what our future might hold. Vision gives us the ability to dream big dreams. Living with vision gives us hope to make it through the tough days and moments in life. Vision inspires the depressed and motivates the discouraged. God created each of us for a purpose. Within that purpose is our vision for life. I believe purpose is knowing and understanding what God created us to accomplish in life, and vision is when we conceive it in our minds through faith and begin to live it out. Vision is a glimpse of our future that God has designed just for us. ~OC

Today’s Prayer:

Dear God, I pray you would bless each of us with vision and a purpose that can only come from you. I pray all of this in the matchless and powerful name of Jesus. Amen.

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Breakthrough

Good morning! As I have walked this crazy beautiful health journey the last twenty-three years, I have had many moments where I needed a breakthrough from God. As we walk into a new week filled with new challenges, I want to share some things I have done when I needed a breakthrough at different moments in my life.

Pray: This may seem obvious, but sometimes we get so caught up in the roller coaster of life we forget to pray.

But prayer should never be our last resort. It should be the first thing we do when facing challenges in life. We also need to call on some trusted friends to pray on our behalf.

“I wait for the Lord, my soul waits, and in his word I hope.” ~Psalm 130:5

Fast: When coupled with prayer, fasting is a powerful tool to use when you need a breakthrough. And fasting doesn’t mean you have to give up food. A fast is about sacrificing something, so you can clearly hear from God. He may asked you to give up social media, a hobby or tv. Some things do not break with just prayer alone. When you need a breakthrough, fasting is crucial to seeing it come to pass.

“So we fasted and implored our God for this, and he listened to our entreaty.” ~Ezra 8:23

Build Your Faith: I’m just going to be straight up with you: Every breakthrough that I have personally experienced came from leaning into the promises of God. Thankfully, He is so gracious that He has not left us to figure out how to grow in our faith on our own.

“So faith comes from hearing, and hearing through the word of Christ.” ~Romans 10:17

Be Patient and Consistent: As I share this last point, I must warn you that breakthroughs can take time. The breakthrough you need may not come the first time you pray – or the hundredth. It may take weeks or even years. We cannot control the time, but we know that God can. He is always faithful. Our part is to stay consistent. So keep on praying. Keep on fasting. Keep on listening to the word. Keep believing in God. Your day of breakthrough will happen in God’s perfect timing for you.

If you’re waiting for your breakthrough the best thing you can do is remember that it will come at the perfect time. So press in to God and be patient. Your Breakthrough is coming! ~OC

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