Tag: Parkinson’s

Keep Living!

Good Morning! As I have walked through this crazy beautiful health journey, I have always tried to be honest and transparent about my health issues. So I wanted to share the latest update with you. I do not share this update for pity, but to hopefully encourage anyone walking through their own journey.

I met with my medical team this past week. The doctor shared my Parkinson’s has moved to Stage 3 out of 5. He upped my medication and started me on some new medication. The doctor wants me to start using a cane and a voice amplifier. My Myasthenia Gravis and Gastroparesis has gotten worse. Eating has become more of an issue. The doctor shared I could be in the beginning of a major decline. Not sure about that, because I have a lot of fight left in me. Laura and I continue to stay encouraged and believe God has some amazing plans for our future. We look at this as a little bump in the road. I am truly looking forward to all God has for me in this next chapter of the journey. ~OC

0

Memories Along the Journey

Today’s a new day! As I have traveled this crazy beautiful health journey, I see things differently than I used to. Some life experiences and hopefully a little wisdom. My physical memory can be a bit tricky with the neurological issues and Long Covid issues, but my heart memory is in great condition. While I often forget day to day things, I am constantly remembering things that are far more important.

I remember the day I met my bride and how life has never been the same since. So many amazing memories.

I remember the beautiful friends God has blessed me with since childhood. So many amazing memories.

I remember that I need to be… want to be…. a man of honor and integrity. Hopefully a man of compassion and generosity. Because one day, I will become a memory in the lives of those that I love and I want those memories to be ones they will cherish.

I remember that the pursuits of this world… fame, fortune, power, position, success (whatever that means)… are not at all important. They’re just not.

I remember that I need to tell Laura and other loved ones every day that I love them. Not just tell them but show them because life is short. I never want to miss an opportunity to let my family and friends know what they mean to me.

This health journey is not an easy one. People often tell me how well I handle all that has been thrown at me, but the journey has not been easy. This journey has been and continues to be filled with tough moments. My health journey has definitely been an inconvenience in so many ways. It is something I would never wish on anyone. But while I continue to walk through the challenges of this health crisis, there are good things that can be taken from it. Lessons learned and hopefully more lessons to come. Some amazing memories made and hopefully many more memories to be made.

As I continue to walk this journey, I will never allow it to consume me. It will never become my identity.

I love the words in Genesis 50:20:
You intended to harm me, but God intended it all for good. He brought me to this position so I could save the lives of many people. Don’t you see, you planned evil against me but God used those same plans for my good, as you see all around you right now – life for many people.

I have an opportunity in front of me that most people rarely get. I have had the opportunity to reclaim life from a place where there is usually death.
That makes me one of the most blessed individuals on earth. ~OC

0

Still Standing

Today’s a new day! I am still standing. On 3/20/09 after having what doctors thought was a cold, my wife Laura was informed she needed to take me to the emergency room. I was having trouble breathing and was extremely weak. My cold actually ended up being Myasthenia Gravis. I was in a Myasthenic Crisis. Some doctors were concerned I would not make it through the the night. Most thought I would not make it through the year. Here we are 14 years later and I am still standing. Still fighting. Still thriving.

This twenty-one year crazy beautiful health journey has not been easy. On more than one occasion, Laura has been told by doctors that my condition was critical and things did not look promising. Throughout this journey, Laura and I have looked to God for guidance, strength and wisdom. He has never failed us. We do not know what the future holds for me health wise, but we know who holds our future. Laura and I will continue to make beautiful memories. We will continue to encourage people with our story. I will continue to fight. After all these years, I am still standing. Still praising God. ~OC

0

Hello Old Friends

In 2007, I was diagnosed with Young Onset Parkinson’s and in March 2009, I was diagnosed with Myasthenia Gravis. There is no cure for either of these diseases. Actually less than 30 people in the world have been diagnosed with both.

In November 2019, I experienced an incredible healing regarding these two illnesses. For over a year, I did not deal with symptoms of Parkinson’s or Myasthenia Gravis. Then In 2021, Covid wrecked my body. After Covid I began showing signs of Parkinson’s and Myasthenia Gravis. My medical team shared Covid caused these diseases to return. Thank you Covid.

I will not allow these new challenges to steal my hope or joy. I truly believe God is going to use these new challenge to help me share His love with more people. These old friends will not beat me. Staying Focused. Finishing Strong. ~OC

0

Skydiving

In September of 2007, I was diagnosed with Parkinson’s. I thought to myself I needed to mark this moment. So what should I do? I had always wanted to go skydiving. Why would anyone want to jump out of a perfectly good airplane? I got that question a lot. But I always thought it would be a great experience. So, after my Parkinson’s diagnosis, I decided I was going to jump out of a perfectly good plane. On a cool November morning, I filled out some paperwork, watched a video and prepared myself to jump out of a perfectly fine airplane. I was doing fine until I got on the plane and started getting further away from land. I started thinking is this really a good idea? Could I really jump out of a plane? I thought to myself I survived cancer, major surgery, a new diagnosis of Parkinson’s and countless hospital visits. Should I really be jumping out of a plane? I knew this was only fear trying to keep me from this incredible experience. I knew I would regret it if I tapped out and stayed on the plane. No, I was not going to allow fear to keep me from this opportunity. So at 14,000 feet up in the air, strapped to my instructor I decided to jump out. Before we jumped out, the instructor asked if I wanted to just jump out or did I want to do some flips on the way down? If I was going to do this, I was going to do some flips on the way down. What a fantastic view and experience. I loved every minute of this adventure. We landed safely and my wife had a big smile on her face. I think there was some relief mixed in with that smile. Embrace the adventures! ~OC

0

Another Blessing In The Road

Over the years when I have faced another medical trial, I have stated “It’s just another bump in the road.” Yesterday, God changed my mindset. He shared with me that instead of looking at my current situation as another bump in the road, I should instead look at my health challenges as another blessing in the road. Pretty mind blowing. I also believe it could be a life changing way of looking at our circumstances. With every “Bump in the Road” has come a blessing. Let me share some examples.

*A Missionary. During my crazy beautiful health journey, God has allowed me to become a missionary at doctors appointments and hospital stays. God has blessed me with the incredible opportunity to encourage others during those visits.

*My Voice. Based on my health issues, I have lost my physical voice. I speak with a whisper these days. I use a voice amplifier to help me speak. But during this time, God has blessed me with the opportunity to speak out loudly against human trafficking, racism and other important issues.

*Listen. During this crazy beautiful journey, God has helped me become a better listener. I always thought I was a good listener until I got sick. It was then that I realized, I tended to listen so I could respond. So I could fix things. During this journey, God has blessed me with the incredible opportunity to just listen. Not to be the fixer. Not to share my opinion. Just to listen.

*Extra Weight. When I got sick again in 2009, I was prescribed the highest dose of prednisone (a steroid), that you can take. I put on a ton of weight in a short period of time. I went from my running weight of 150 to over 200 pounds in less than six months. All the weight went straight to my stomach. Based on the fact I could no longer run or exercise, it was difficult to take weight off. It was very frustrating. Then in 2014, I started losing my appetite. Then from the middle of 2016 to the first of 2017, I lost 90 pounds. Yes, you read that correctly. 90 pounds! That is when I had my feeding tube inserted. That extra weight saved my life. A bump in the road turned into a life saving blessing in the road.

*A Book. In March of this year, my memoir The Blessed Overcomer was published. If not for this “bump in the road”, I would have never written a book. You can find my book on Amazon or you can contact me about getting a signed copy. A little shameless plug.

*This Blog. Once again, if not for this crazy beautiful health journey there is no blog. I do not have a huge following and probably never will, but that was never the point. I am thankful for everyone who drops by and checks out my blog. Writing my thoughts down has been very cathartic. A wonderful blessing.

As I reflect on my crazy beautiful health journey, I have so many Blessings In The Road moments. It took God changing my mindset to realize this amazing truth. ~OC

0

Blog at WordPress.com.

Up ↑