3AM

Some mornings when I wake up early, I feel God using that time in an amazing way. But I have to be honest, some days those early mornings are tough. Today is one of those days. Let me share an early morning with Parkinson’s and dementia.

Today’s a new day! So it’s 3am and my brain is fully awake
I have been up since before 1am, but who’s counting? I am! Some days I wonder how my brain knows it’s 3am or earlier
Some days I wonder if my brain and I are on the same page

Oh, all the voices and noises
It can be a little scary, but I am thankful I haven’t gone a little insane

I think about my 3am folks going through the same, I wish I could reach out and lend each a helping hand

This early morning I look up to the sky
And sometimes wonder why my brain is so different
Some mornings I just want to cry
I wish I could just open my brain and hit the reset button, but that’s just a dream

On these crazy mornings, I wish it was just a phase
But I been running this race for too long for it to just be a phase
But a brother can still dream
Oh, wait a second you have to sleep to have a dream
There will be no more dreaming on this morning

All the voices and noises
It’s crazy, and I am thankful I haven’t gone mad
Thankful the voices don’t call me to danger
I wonder who’s up at 3am and would not freak if I rang them?

So at 3 am I go out on the balcony
And I talk to God, thank goodness He always takes my call
It’s 3am am I look up and pray

On mornings like this, I do not feel like anyone else

I feel like a stranger

It’s 3 am, once again
Talking to God because He always answers when I call
He reminds me that I am not like anyone else
That I am unique and wonderfully made,
That gives me some peace
I bet God gets a lot of calls at 3am
That gives me comfort as I look out over the night sky and I pray. ~OC

Faith Over Fear

Today’s a new day! The last few weeks have been a bit overwhelming for me. Dealing with multiple health issues and a new life changing diagnosis. In the midst of all the challenges, it would be easy to get discouraged….or stressed out….or worried….or afraid.

But the Bible has something to say about times like these – and as you might guess, it gives us some tools for overcoming the storms of life.

When life gets discouraging, we can look at the story of the Apostle Paul in the book of Acts and hopefully his trial will lift us out of any discouragement or fear that we might be walking through.

Paul knew what it was like to be in a storm – both literally and figuratively. He had been stoned and left for dead, whipped repeatedly for preaching the Gospel, was endlessly persecuted and experienced more than one setback.

One of those setbacks happened in Acts 27, when he was a prisoner being transported to Rome for trial. It was the wrong time of the year weather-wise for this trip, and Paul even prophesied to them, saying, “Men, I perceive that this voyage will end with disaster and much loss, not only of the cargo and ship, but also our lives” (Acts 27:10). But the captain of the ship decided to go anyway, and they sailed right into a major storm.

The Bible says they went days and days without seeing the sun or stars. For weeks they were tossed and slammed by the raging seas. Just reading through this story makes me a little queasy. In verse 20, we read that after so many days, all hope – even among these veteran sailors – was lost.

Have you ever been in a position where all hope seemed lost? Where despair and hopelessness got the best of you? That can be a devastating place to be. And the Apostle Paul was there because of the stubbornness of the crew. He had warned them about making the trip, but they went anyway.

But then, Paul stood up in the midst of that dark, hopeless situation and shouts, “Be of good cheer!”Unbelievable!

“Yet now I urge you to take heart, for there will be no loss of life among you, but only of the ship. For this very night there stood before me an angel of the God to whom I belong and whom I worship, and he said, ‘Do not be afraid, Paul; you must stand before Caesar. And behold, God has granted you all those who sail with you.’ So take heart, men, for I have faith in God that it will be exactly as I have been told.”
‭‭Acts‬ ‭27‬:‭22‬-‭25‬ ‭

What a crazy thing to say to people in the midst of a hopeless situation – “cheer up!” But Paul had hope where there was no hope. He knew he belonged to God. He heard the word of the Lord (v. 23) and knew he had the victory.

In the same way, we also have the word of the Lord — we have the Bible. We can do what Paul did in the midst of the storm – look to the word of God and cheer up.

The Apostle Paul chose to believe in the word of God more than he believed in the raging storm. Faith came by hearing, meditating on and remembering the word. We can do that today. For starters, read and meditate on (Mark 9:23, John 10:10, Philippians 4:6, 7).

When we do what the Apostle Paul did – focus in on God’s word in the midst of the storm, then faith comes, and we can see beyond the storm. We can imagine life beyond the dark clouds. We can use our storms of life to encourage everyone around us.

Today, I want to encourage you as you walk through the storms of life, do like the Apostle Paul – declare Faith over Fear. Today, be of good cheer! God wants us to be healed, have our needs met, to overcome the world and have peace. All things are possible to them that believe. Lean on those promises.

Today, as you walk through the storms of life, I pray Romans 15:13 over you: “May the God of hope fill you with all joy and peace in believing, so that by the power of the Holy Spirit you may abound in hope.” Amen. ~OC
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Someday….

Today’s a new day!

Someday when the kids are grown…
Someday when I’m financially stable…
Someday when my life isn’t so crazy…
Someday when I feel like my family/ friends approve…

Someday when (fill in the blank with your reasons), I’ll follow this big dream that God has given me.

Sometimes God gives us a glimpse of what’s to come and we need to wait on His timing. We may have lessons to learn first. Or maybe there are things that need to be put in place before it’s time.

BUT..
When God says, “Do this…”, our only response should be to pray for guidance and obey.


Let me tell you a bit of my story…

I had been on my crazy beautiful health journey for several years when I began to feel very strongly that God had something more than just being a patient. That God could use me to pray for and encourage other patients walking through their own journey. I did not have the full picture at the time, but I knew that God had a beautiful plan for this journey.

As I spent more and more time in the hospital, doctor appointments and treatments, I began to see God using me and my story to reach other patients who were being overwhelmed by the day to day struggles of their health journey. Fellow patients were reaching out to me to share their stories and I was blessed to pray for them.

Over the past twenty-two years, I have been blessed to walk with many patients. I have watched some experience healing from their medical battle and I have seen some experience the ultimate healing by walking into the presence of God.

This amazing journey started with me looking past “Someday.” Someday when my health improves. Someday when I have all the answers. Someday when I am more qualified.

When God called me to walk with and help others walking through the medical world, I was not qualified, but I was willing. I did not have all the pieces to the puzzle, but I knew the One who did. All God wanted from me was a “Yes.”

“Yes” because God was so clear about my next step (He confirmed it in multiple ways) that I knew this was His will for me.

Your word is a lamp to my feet and a light to my path. Psalms 119:105

I do not know what God is calling you to, but I encourage you to trust in Him with all of your heart and do not lean on your own understanding. 

When God says, “Go!” You need to go. Even when it’s scary or doesn’t make sense to the world.

Being in step with God’s plan should always be our goal. It will not always be easy or seem “perfect” to us but we need to trust that He knows what He’s doing. Just keep leaning in and say yes. ~OC

The Journey

Today’s a new day! Cancer, Parkinson’s, Myasthenia Gravis, Gastroparesis Type 2 Diabetes (Steroid Induced) and Dementia. No person would ever want to be diagnosed with just one of these diseases. But ring the bell, chicken dinner, I have been diagnosed with all six. Thankfully, I have been cancer free for many years. But when faced with multiple diseases it does little good to sit around and complain about it. No, I have decided to run with it, embrace it and see where God takes this crazy beautiful health journey. ~OC

A Beautiful Gift

Today’s a new day! It’s only been a week since I was given the diagnosis of dementia. But the symptoms have been showing for a number of years. Since my diagnosis life has been filled with many phone calls and text from concerned family and friends. I appreciate them all. In the past week, here are some things I have thought about as I begin my journey with dementia.

My dementia diagnosis does not define me. Although the diagnosis is life changing, I will not allow it to change who I am. I will fight that battle for as long as I can. I will continue to love people the way I always have. Probably a little more. I totally understand dementia is a progressive disease and I may not be able to do all the things I once did, but I want to continue doing the things I enjoy for as long as I can.

If you want to know how I am doing, just ask me. The sudden change in how others communicate with me since my diagnosis has been a little frustrating. Trying to avoid conversations about my diagnosis of dementia will only make me feel uncomfortable and isolated. I am still me. For now.

Yes, the diagnosis is correct. I wish it wasn’t, but it is. Younger people can be diagnosed with dementia. While the vast majority of people are affected by dementia at an older age, the disease can affect younger individuals. If you have concerns about your own cognition, I encourage you to get checked out regardless of your age.

Please don’t debate my diagnosis or tell me I don’t look like I have dementia. Do not attempt to dismiss the diagnosis. Those responses can be offensive. It is hard enough to tell someone I have dementia , let alone having to defend it. You may not see my dementia, but I live with it every day.

Please understand that sometimes my words and actions will not be the true me. It’s the dementia. As the disease progresses, I might deal with anxiety, confusion and a host of other issues. There are days I may want to sleep more. Remember, I am still me, just a little different.

My dementia diagnosis does not mean my life is over. I plan on continuing to live an active and memory filled life as long as possible. Laura and I plan on continuing to embrace life to its fullest.

So please keep reaching out and treating me the same old way. Social interactions are very important to my wellbeing. So do not be afraid to call, come by the condo or plan a time to meet. My life continues to be a beautiful gift. ~OC

Some Lessons Learned

Today’s a new day! As I have run this crazy beautiful health journey for the past twenty-two years, I am often asked about the lessons I have learned along the journey. So here are just a few lessons learned along this crazy beautiful journey.

  1. Bring your pain to God don’t run from Him: When you run from God in seasons of challenge, all you’re left with is your own limited ability to cope with what you’re walking through. On the other hand, God invites us to draw near to him that we might experience his peace, healing, and closeness and this is what Scripture points us towards.

 “The Lord is close to the brokenhearted; he rescues those whose spirits are crushed.” Psalm 34:18

When we bring our pain to God we recognize that there is a purpose and in time God who loves us unconditionally will reveal his divine purpose through it.

  1. Fill your life with God’s word and God’s people: How we respond to the trials of life is critical to how we process what’s happening and how healing will take place. If we treat physical sickness with the incorrect medication, not only will our sickness continue, but it could become worse.

That is why it’s so important to not fill our minds with wrong thoughts; like God is mad at me, God is not good, worse things are going to happen, etc. If we allow those negative thoughts in, we will struggle to experience the peace of God he promises to us in Scripture (Philippians 4:7).

But when we fill our life with God’s words and surround ourselves with people who speak hope and encouragement into our lives, our experience will be much healthier.

“How sweet your words taste to me; they are sweeter than honey.” Psalm 119:103

When we fill our minds with God’s Word, we are reminding ourselves of who our God is, what he’s like, and we replace the lies of the enemy with the truth of God.

  1. Don’t be filled with worry, overflow with worship: Something powerful happens when we actively choose to worship through our suffering. We are not denying reality, we are simply redirecting our posture from one of worry to one of worship.

Worship changes our perspective. Worship speaks about where our confidence and hope lives. Worship redirects our thinking. Worship places the results in God’s hands.

  1. Believe that God will turn your sorrow into great joy: One of the great challenges of our faith is realizing that God can use our pain for our good. Meaning that our biggest sorrows can result in our greatest joy. When you think about Jesus’ greatest sorrow – suffering the shame, punishment, and death for our sin, the result was great joy – the redemption of humanity and the opportunity for a relationship with the living God.

When I reflect on my long health journey, which has been filled with a lot of pain, suffering and loss, I am thankful I pressed into God’s presence and trusted his plan for my life. I have watched him use my health journey to strengthen and encourage others which has resulted in my own comfort and joy through this crazy beautiful health journey.

As you walk through your own suffering today or in the days to come, I pray you will hold on to these powerful promises from God:

“I am leaving you with a gift—peace of mind and heart. And the peace I give is a gift the world cannot give. So don’t be troubled or afraid.” John 14:27

“And be sure of this: I am with you always, even to the end of the age.” Matthew 28:20

As I continue to run this health battle, I am humbled that Jesus willingly suffered the greatest pain and death because He knew the end of the story and so do we. So keep leaning into the promises of God. ~OC

Jars of Clay

Today’s a new day! In 2 Corinthians 4:7-9, we read the following words: “But we have this treasure in jars of clay to show that this all-surpassing power is from God and not from us.  We are hard-pressed on every side, but not crushed; perplexed, but not in despair; persecuted, but not abandoned, struck down, but not destroyed.”

In the above verse, Paul is comparing us to jars of clay in verse seven because life here on earth will cause us to be broken sometimes and when we are we always have the choice on what we will do with our brokenness.  If we allow God to fill us more with each and every passing trial or heartache, He can shine through that brokenness and others will see Him. Even though some heartaches and storms seem to last forever Paul goes on to explain how we need to view everything in life on earth.  

In 2 Corinthians 4:16-18, it declares, “Therefore we do not lose heart.  Though outwardly we are wasting away, yet inwardly we are being renewed day by day.  For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all.  So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal.”  As difficult as it is to look at some storms as being temporary when we know here on earth it isn’t just going to go away, God is drawing us to His side to allow Him to fill us with more of His light and to be comforted by Him.  He wants our focus to be on Him and eternity.  He wants His light to shine through our brokenness so the world will see Him.  The world is a dark, lost place and people need Jesus. The more we choose to be different by living a life that is pleasing to God the more they will see Him. Paul took great joy the more broken he became because He understood that the more weak he became the more God was shining through His life.  

Whether we are looking at our own life or the life of someone we love, don’t lose heart. God loves us and He has a plan. We need to fix our eyes on Him and seek Him and His plan. Allow Him to fill us so every crack of that broken jar shines His light to a lost world. The darker the world gets the more our light can shine for Him if we are seeking Him and allowing Him to shine through us. Our hope is found in Him and He wants to fill us with that hope. He wants to fill us with the confidence that whatever we may be facing or someone we love is facing that He has a plan but we must seek Him and follow Him. Don’t look for another way, the answers that we are seeking are found in God. It may seem easier and faster to look for it somewhere else, but if it isn’t His plan then it isn’t His best. So let us seek Him and trust Him, knowing how much He loves us so we can know that truly His best is yet to come. May we lean into His promises. ~OC

When Life Knocks You Down

Today’s a new day! This has been a tough week for me mentally, physically emotionally and spiritually. I heard words from doctors this week that have not been promising. This week has made me press into my faith even more.

It’s easy to have faith when life is treating you well. When everything is working out. It’s much harder to have faith when you are facing challenges in your life. But that is exactly when you need to apply your faith. When you need to lean into your faith even deeper. Because faith is believing beyond the grime diagnosis from the doctors.

Faith is taking the first step.
Faith is jumping in the deep end and trusting everything will be okay.
It was easier to be positive back in the day, when I could lace up my running shoes and go for a 50 mile run. It’s much harder, much much harder when I have days where it’s hard to just walk across the living room without feeling like I have just run a marathon. Life was much easier when I could easily remember why I walked into another room. When my brain did not feel like I was in a constant fog. Living out our faith is so much easier when life is not so demanding. But that’s actually when we need faith the most.

We need faith and usually find faith when life is hard. On days, when we are fighting to just survive. Those are the days when we need faith the most. Because everything that means anything is worth the fight. Everything worth living for will require a real fight to achieve it. You and I cannot decide to quit half way through the race. We must run every step. Even when that next step is the hardest.

This crazy beautiful health journey has knocked me down a few times along the way. But I keep getting up. This week hit me like a severe cramp during a marathon. This week’s life changing diagnosis rocked my world. I was knocked down. I had to dig deep to get back up. But I did get back up. I didn’t stay down. My friend you need to keep getting back up when life knocks you down.

Here are 3 things I want to share about getting back up when life knocks you down.

1). Remember:
God still loves us and there are still many things to be thankful for.

We need to remember that God has given us many promises to hang onto. Check out Romans 8:28, Jeremiah 29:11, and Isaiah 40:31.

2). Connect:
The greatest temptation when we are feeling “down and out” is to isolate ourselves. We may feel embarrassed or lost about our current situation, or wonder if others will understand. We may think we can’t express how we are feeling. But the tough moments in life should connect us with God, our family and friends.

3). Pray:
We can pray that God will give us the opportunity to share what we are learning with someone else. As we begin to focus on others, we lose the grip of self-focus and all the negative feelings that can go along with it. Little by little, we will be planting seeds of a powerful life story we can tell some time in the future.

Here is a prayer that I hope helps as you walk through the tough days and keep getting back up:

Dear God, remind us that trials are to be expected. Help us keep our reactions under control and within Your will. Give us great strength to endure this trial in a way that is refining and transforming -for Your glory. ~OC

Take a Minute Today

Today’s a new day! As we reach the end of another week, I would encourage each of you to take one minute and think about the people who have helped you become the person you are today. The people who invested time into helping you grow as a person. If those individuals are still alive, I would encourage you to reach out to them and say thank you. For those life investors who have passed away, I would encourage you to spend some time reflecting on the lessons they taught you. ~OC

Broken Pieces

Today’s a new day! As I study the Bible, I see that those who did God’s work were often those who made the biggest mistakes and had to learn the hard way. Just like some of us. They were no saints. As we walk this journey called life, there are wounded and broken people all around us. They might be family, friends, neighbors or coworkers. They might be the people we sit next to at church. We may not actually see their wounds, but we can usually tell when people are sad or struggling or just not themselves. Most of us have been there at some point in our own lives. We have dealt with health, relationship or finances issues. That brokenness is very personal, so much so that we often do not want to share the details with anyone. That brokenness is unique to each of us. It’s ours, nobody else’s.

Yet in a strange way, it connects us with each other as something that we have in common.

We all have our stories, battles and wounds from this world. Broken things are often despised and thrown out. Something we no longer need. We just toss them away. We tend to reject damaged goods. That includes relationships. Often when relationships breakdown, the tendency is to walk away and find someone new.

But throughout history, we see where God chooses to use broken people.

The world is full of people with broken hearts, broken spirits and broken relationships. Maybe this is hitting close to home. But there is no reason to close yourself off from the world because you might get hurt. Again. I want to remind you of the words in Psalm 34:18, “The Lord is near to the broken hearted and saves the crushed in spirit.”

That verse is so true. God’s love can shine through the cracks and through our broken lives. Life at its best is letting the light and the love of God shine through, especially at our broken places. Only God’s love shining through will bring proper healing and transformation. When life is going well and there’s lots of sunny days, it’s so much easier to see God at work in our lives.

But in those dark days, we see God’s presence and strength shared with us in a different way. He is stronger than our darkest moments and if we trust in Him, we will grow in grace and confidence and others will notice that light shining through our cracks. But in those moments, we might need to be open and vulnerable to others.

We all know how difficult, but rewarding building relationships can be. It can be challenging to be real and transparent. We do not want people to know everything about us, but there are some painful issues that we can share, especially if we know that God is helping us through those difficult times.

Today, do you feel there are too many broken parts of your life to be of any use to God?

Believe me you are not alone. Jesus wants us to bring him all our brokenness and ask him to fill us with his light, that will shine through our cracks. So today, I pray you will lay all your broken pieces at the feet of Jesus. ~~OC

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