Tag: Research

More Questions Than Answers

When I was diagnosed with Parkinson’s disease in 2007, my world changed in an instant.

Like so many others, I immediately began asking the questions we all ask after receiving life-changing news. What caused this? Could I have prevented it?

One thing stood out immediately: there was no family history of Parkinson’s disease.

No parents.
No grandparents.
No siblings.
No known relatives.

That didn’t answer the question—it only deepened the mystery.

Looking Beyond Genetics

For many years, Parkinson’s was often thought of as a disease that was primarily genetic. We now know that while genetics can play a role for some people, the majority of Parkinson’s cases are considered sporadic, meaning they occur without a clear inherited cause.

Researchers increasingly believe that Parkinson’s develops through a combination of genetics and environmental exposures. For many of us, the environment may play a much larger role than we once realized.

That realization raises important questions.

What have we been exposed to over a lifetime?

Pesticides.
Industrial chemicals.
Solvents.
Air pollution.
Contaminated water.
Heavy metals.

Scientists continue to study how long-term exposure to these and other environmental factors may increase the risk of developing Parkinson’s disease. While research is ongoing and not every case has the same cause, the growing body of evidence suggests that our surroundings matter.

We Need to Pay Attention

This isn’t about creating fear.

It’s about creating awareness.

If environmental factors contribute to Parkinson’s disease, then we should be investing far more into understanding those risks, reducing harmful exposures where possible, and protecting future generations.

We cannot change yesterday.

But perhaps we can change tomorrow.

That means funding more research.
Supporting environmental health initiatives.
Helping identify communities at higher risk.
And continuing to ask difficult questions until we find better answers.

My Journey

Nearly twenty years after my diagnosis, I’ve lived through far more than I ever imagined.

Parkinson’s became only one chapter in a much larger health journey that has also included Myasthenia Gravis and many other unexpected challenges.

I’ve experienced seasons of strength and seasons of weakness.

There have been victories, setbacks, miracles, disappointments, and countless lessons along the way.

If I’ve learned anything, it’s this:

A diagnosis may change your life, but it does not define your life.

I am still here.

I still have purpose.

I still believe God is writing my story.

A Call for Hope and Action

As someone living with Parkinson’s, I hope that one day we won’t simply ask how to manage this disease—we’ll know how to prevent many cases before they ever begin.

That will require courageous research.
Honest conversations.
Environmental responsibility.
And a commitment to putting people ahead of convenience or profit.

My prayer is that future generations will benefit from the questions my generation has had to ask.

Until then, I’ll continue sharing my story.

Because every story matters.

Every patient matters.

Every family matters.

And every step we take toward understanding Parkinson’s disease brings us one step closer to hope.

“We may not know exactly why every person develops Parkinson’s disease, but we owe it to those living with it—and to those who come after us—to keep searching for answers. Hope grows wherever truth is pursued.” ~OC

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Living With Parkinson’s: Finding Strength In The Everyday

April is Parkinson’s Awareness Month. Every story matters. Every person matters. Every family matters. Every caregiver matters. 

Here’s a little of my twenty year journey with Parkinson’s Disease.

I didn’t plan for Parkinson’s to become part of my story. Like most people, I thought of it as something distant—something that happened to other people, later in life, somewhere far away from my daily reality. But life has a way of rewriting plans without asking for permission.

At first, it was subtle. A tremor that came and went. A stiffness that felt like I had just slept wrong. Small things that were easy to brush off, easy to explain away. But over time, those small things stopped being occasional visitors and became companions. That’s when I knew something deeper was going on.

Getting diagnosed with Parkinson’s was a moment that split my life into “before” and “after.” There was the version of me who moved freely, who didn’t think twice about balance, coordination, or even something as simple as buttoning a shirt. And then there’s the version of me now—more aware, more deliberate, and, in many ways, more resilient than I ever imagined I could be.

Parkinson’s doesn’t just affect the body; it reshapes your relationship with time. Everything takes longer. Movements that used to be automatic now require intention. There are days when my body feels like it’s resisting me, like it has its own agenda. On those days, patience isn’t optional—it’s survival.

But Parkinson’s has also taught me things I might never have learned otherwise.

It has taught me to celebrate small victories. Getting through the day with steady hands. Walking without hesitation. Completing tasks that once felt effortless but now feel like quiet triumphs. These moments might seem insignificant from the outside, but to me, they are everything.

It has taught me to listen—to my body, to my limits, and to my needs. Rest is no longer something I earn after productivity; it’s something I honor as essential. Slowing down isn’t failure—it’s adaptation.

And perhaps most importantly, it has taught me about strength. Not the loud, obvious kind, but the quiet kind. The kind that shows up every morning, even when I don’t feel ready. The kind that keeps going, even when the path is uncertain.

There are hard days. Days filled with frustration, fatigue, and moments of grief for the life I once had. I won’t pretend otherwise. Parkinson’s can be relentless, and it’s okay to acknowledge that.

But there are also good days. Days filled with laughter, connection, and a sense of purpose that feels even sharper because of the challenges. Parkinson’s may have changed my life, but it hasn’t taken it away.

I am still here. Still learning. Still adapting. Still finding ways to live fully within the limits I didn’t choose.

If there’s one thing I’ve come to understand, it’s this: life with Parkinson’s is not just about what’s been lost—it’s about what remains, and what can still be built.

And that, in its own way, is something worth holding onto. ~OC

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World Parkinson’s Day

Today is World Parkinson’s Day, a moment meant to raise awareness, inspire research, and support the millions of individuals and families affected by Parkinson’s disease. It’s a day that encourages reflection—not just on the human toll of the disease, but also on how society allocates its attention and resources. Consider this: the U.S. government spends over $25 billion annually related to Parkinson’s disease. Yet the overwhelming majority of that funding goes toward Medicare, Medicaid, and disability support, rather than toward research that could slow, prevent, or ultimately cure the condition. While care and support systems are vital, the imbalance raises an uncomfortable question about long-term priorities and whether enough is being invested in changing the future of the disease itself.

Now place that figure alongside another: between $500 million and $2 billion per day is being spent on the ongoing conflict with Iran, according to various estimates from March and April 2026. In just a matter of days, that level of spending can surpass what is dedicated annually to Parkinson’s-related needs. These numbers are not presented to simplify complex geopolitical realities, but to highlight the stark contrasts in national spending choices. World Parkinson’s Day should not only be about awareness—it should also be about perspective. When we look at these figures side by side, it becomes clear that the conversation about funding is not just about dollars, but about values, urgency, and the kind of future we choose to prioritize. ~OC

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Dear Dementia,

Today’s a new day! As most of you know, I was diagnosed with Young Onset Dementia caused by Parkinson’s last September (2024). As I have walked through the past few months, I have thought about this diagnosis and what it means for my future. So I thought I would write a letter to dementia. Hopefully it makes sense.

Dear Dementia, I often wonder if you were a person, what would I say to you? So often dementia tries to fill me with anger, sadness and frustration. But thankfully, I am able to fight off those emotions most days. But some days all those emotions get the best of me.

I think I’ll start with I am a little frustrated with you dementia. I dislike that you’ve made sharing my thoughts and having conversations a little tougher these days. I am a little frustrated that being social has become a bit more difficult for me. Since I am in the early stages of dementia, I have learned a few tricks to hide my struggles from people. But I cannot hide those struggles from myself and that makes me frustrated at times.

I am frustrated that you try and fill my days with grief, loneliness and sadness. I am saddened that some friends find it too difficult to call or visit because they do not know what to say. I am frustrated that you’re trying to take away my memories too, with you being all consuming; you sometimes make it hard to remember how things were before you.

But dementia despite all the frustration sadness and grief, I still choose to live with hope and embrace every moment of life. My bride and I still talk about future plans and trips. We will not allow you to become our identity. We celebrate those days I feel like my old self. Almost like the fog has been lifted. I embrace those days because they will not always be around. I embrace simple moments with family and friends a little more these days. I am thankful for those friends who still choose to treat me like me. Please keep doing that. Even on those days, I might not totally seem like the old me.

I am thankful that God continues to walk this journey with me. He is bigger than dementia and all the other health issues trying to take me out. They may get the best of me some days, but they will not get the victory. No, that belongs to God and I will continue to hold onto that truth.

Dear Dementia, in some ways you have taught me the true value of unconditional love, and I will use that to defeat you. I will never give up on loving my life, loving those in my life and never ever give up on beating you. You’ve brought pain and suffering to so many people’s lives, snuck in and attacked the most vulnerable. But by working with medical researchers and families affected by your cruel actions we will learn new ways to defeat you. One day I will be part of ending you, as you will never be able to take away the unconditional love that fills me up and guides me along this crazy beautiful health journey. ~OC

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Stop and Think

Today’s a new day! Truth really matters. Especially for those who claim to be Christians. As Christians we should strive to be the most honest people on earth. But unfortunately some don’t. As I scroll through social media, I sadly see Christians posting one untruth after another. Are these Christians not doing research on the articles before posting them as truth? Are they more concerned about getting likes than they are about truth? Are they more concerned about their own agenda than the gospel? I will let you answer those questions.

In this age of social media overload, everyone needs to be careful about what we post on social media. But as Christians, we have to be extra careful about what we post on social media and the conversations we engage in. As Christians, we need to be living lives of high character. Sadly that is not what I am seeing from so many followers of Jesus. No, I am seeing some Christians intentionally posting fake stories that have an agenda. They seem to want to disrupt and undermine truth because it does not line up with their agenda. This is especially concerning when those in ministry are the ones posting fake stories. It makes me wonder what they are teaching from the pulpit. As Christians, truth must always be our priority. Anything else is a slap in the face to Jesus. We cannot use the excuse we didn’t know the story was fake. No, we just didn’t do any research. Our post and conversations should be filled with love and truth. Even when the truth doesn’t fit our agenda. The truth should always trump our agenda. Our character should be more important than getting a lot of clicks.

When you see a story that catches your attention, please do the following before posting on your social media pages:

  1. Actually do some research. Is it true?
  2. If you find it’s not true, don’t post it. That should be easy.
  3. Even if you do your research and find out the story is true, is it worth posting? Will posting the story bring glory to God?
  4. When unsure if you should post a article on social media, just post a cute video of puppies. Everyone loves puppies.

I believe being careful about what we post is important for everyone, but this post was geared towards my brothers and sisters in Christ. Why? Because what Christians post on social media and share in conversation, either build people up or tear them down. The souls of people are in the balance. Please read that sentence again. As Christians we should be more concerned about people and less concerned about pushing an agenda. As believers we should be standing on the truth of Jesus. Without that truth, we are standing on shaky ground.

So the next time you want to post something on social media, remember it’s okay to post nothing and keep your integrity intact. ~OC

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