Tag: respect

Don’t Back Down

Stand up for what’s right, don’t be swayed

By the voices that try to make you stray

Be brave, be strong, and hold your ground

Fight for justice, let truth be found

Raise your voice, let it be heard

Speak out against injustice, undeterred

Don’t let fear silence you, don’t back down

Stand firm, wear your heart in this town

Be a beacon of hope during the dark times

Shine your light, let it guide the way

For a brighter tomorrow, a better day

Stand up for what’s right, come what may

Your voice matters, your actions too

Make a difference, see it through

Stand up for what’s right, be bold

Create a world where love never grows old. ~OC

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Flashing Neon Sign

Today’s a new day! As with many neurological illnesses there is nothing noticeable about my condition. It’s not like a broken leg or arm where there is a cast which is obvious when seeing the person. But I cannot tell you how many times I have heard the same old words since my diagnosis last fall, Todd, you do not look like you have dementia.

I often wonder if it comes down to the fact that people feel uncomfortable talking to me about it, so they say the first thing that comes to mind. Which at times can come across as very insensitive and judgmental. Since my diagnosis of early onset dementia caused by my Parkinson’s, I have had several people tell me I do not look or act like someone with dementia. Or Todd, maybe you’re just dealing with an infection of some kind and just need to take some antibiotics. I would be overjoyed if that was actually the case. But I have some amazing doctors and they didn’t come up with this diagnosis lightly.

What does dementia look like? There is no cast or bandage to put on it. I guess I could wear a flashing neon sign that says, “HELLO, I HAVE EARLY ONSET DEMENTIA!” that lets people know of my latest diagnosis.

But seriously, I am walking through a very new and strange season of life, but I know I am not the only one. It simply gets frustrating when people decide to find a different diagnosis or make you doubt your current state of health because they do not like the diagnosis. It can be irritating and cruel when people doubt you and your medical team. Believe me, no one wants to sit in a doctor’s office and hear the words “You have early onset dementia.”

I do think that part of this attitude is because people have a hard time believing someone in their 50’s could have an “old person’s” disease. Also the topic of dementia is not an easy or fun subject to talk about. It can be easier to just ignore it or try to explain it away.

I also believe people have their own preconceived beliefs about dementia and I and many others suffering from this horrible disease do not fit in their picture of dementia.

So please do me a favor. Stop putting your personal beliefs or opinions on those suffering from a visually invisible disease or one that you don’t like. Life with dementia is already hard enough. Thanks for listening. ~OC

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My Life With Dementia

Today’s a new day! As I continue to walk through this crazy beautiful health journey, I have always wanted to be upfront and honest when sharing my journey with you. So this morning, I want to share a post I have been working on for several weeks. It’s my life with dementia. I apologize in advance for the long post.

When I was diagnosed with young onset dementia last year, part of me thought there has to be a mistake, but it was also a relief to have some answers on why my life seemed a little out of focus. But it was still hard to hear “you have dementia.” Like so many people diagnosed with young-onset dementia, I was still planning a future with my bride. How was dementia showing up in my 50’s?

But here I am, almost a year later.

What I have learned is a dementia diagnosis isn’t the end of life. It just means life looks a little different.

Of course my life has looked a little different for the last twenty-three years dealing with multiple health issues. But over the last two decades, my faith and life experiences have taught me it’s possible to live a fulfilling, purposeful, and even joyful life even while dealing with the uncertainty of declining health. A diagnosis of dementia was not going to change that. At least I hope and pray that will be the case.

So as I walk out this journey called dementia, I wanted to share a few things that are working for me. This is not a neat how to live with dementia list, because dementia is not an easy follow these instructions and everything will be okay disease. No, dementia is a unpredictable roller coaster ride. Every day brings new challenges, but also new opportunities.

My hope and prayer is that this blog post will help create conversations. If you’re living with dementia, or supporting someone who is, I hope these tools help you live a full life regardless of the diagnosis.

My Dementia Toolbox:

I choose to live each day with Hope and Purpose.

I choose to live a life full of new adventures. Never stop making memories with family and friends.

I choose to maintain my independence as long as possible.

I choose to continue connecting with family and friends.

I choose to adapt to the changes dementia brings and never give up.

I choose to hold onto my identity and what makes me “me.”

I choose to keep learning new things each day.

I choose to live out my life and faith.

I choose not to avoid the declines that dementia brings, but to make the most out of every day and refuse to let dementia silence me.

Finally, living with dementia is not an easy journey. There are moments of loss and frustration, but there are also unexpected discoveries, laughs, and the good will of family and friends. ~OC

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Potholes in Life

Today’s a new day! Last night after my doctor’s appointment, Laura and I drove around town a bit. There is so much construction going on around us. Also a lot of potholes and roadblocks to navigate around. At times, I felt like I was on some type of ride at the fair.

On our journey through life, we also face many bumps and potholes along the way. There are financial, relational, and medical trials that will come into our lives. What we do when we come to a bump in the road is usually slow down or come to a complete stop in order to better assess the situation before moving forward. We must also keep a certain balance ourselves, so as not to falter or fall down. There are times when Christian friends will come alongside us and help us to navigate these bumps in our lives. At times, if we become stalled for a long time, they might gently urge us and encourage us to move on and continue on the road of life.

“Those of us who are strong and able in the faith need to step in and lend a hand to those who falter, and not just what is most convenient for us. Strength is for service, not status.” ~Romans 15:1

As we were driving around town, it was only Laura and I paying close attention to the road construction around us, that saved us from hitting one pothole after another. It also helped that we knew some of the potholes were coming, so we were able to avoid them. Knowing the road allowed us the grace to prepare ourselves for the bumpy ride.

But what about the times when we don’t know what lies ahead of us on this journey called life or what’s around the next corner? In those times, we need to turn directly to Jesus. He knows the road ahead, and we can always depend on Him to guide us safely through those bumps in the journey.

“The Lord himself goes before you and will be with you; he will never leave you nor forsake you. Do not be afraid; do not be discouraged.” ~Deuteronomy 31:8

Prayer for the Day: Dear God, help us to turn to You first when we face the bumps and potholes in our journey. We know that You are more than capable of helping meet our needs. Dear God, help our unbelief in times of trouble. Make us a people able to stand strong as we or a loved one walks through the bumpy moments in life. We pray all of this in your powerful and matchless name dear Jesus. Amen.

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Doorway

Today’s a new day! It was through the doorway of suffering that Jesus opened the way for us to walk through suffering with supernatural joy, peace, and hope. ~OC

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Are You Willing?

Today’s a new day! A lot of people want to achieve success in life, but are you willing to do the following:

Are you willing to fight through the excuses?

Are you willing to fight through the challenges?

Are you willing to fight through the negative talk?

Are you willing to put in the work?

Are you willing to make sacrifices?

Are you willing to give it all up for God? ~OC

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Attitude of Gratitude

Today’s a new day! As we move through the busyness of life, it’s easy to look around at everything we do not have instead of taking the time to slow down and be thankful for everything we do have in life. In the coming days and weeks, I want to focus on having an attitude of gratitude.

As I have walked through this crazy beautiful health journey, I have made the choice to be grateful for the lessons and blessings I have experienced along the way. I believe that decision has transformed my life and hopefully a few other people along the way. As a Christian, I have much to be grateful for. I have been blessed with the gift of salvation through Jesus, I have the Holy Spirit living inside me and I have a loving God who cares for me and provides for my needs. But if I am not careful, I can start taking these blessings for granted and focus on the things I do not have.

That’s why it’s so important for us to cultivate an attitude of gratitude. Living a life of gratitude can have a profound and positive impact on our overall health and our relationships with others. ~OC

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Vision

Today’s a new day! As we start this new week, let’s take some time to talk about vision.

“Where there is no prophetic vision the people cast off restraint, but blessed is he who keeps the law.” ~Proverb 29:18

Vision is the ability to see God’s plans concerning our future. Vision is revelation that gives life meaning, value, direction, significance and purpose. Vision holds endless possibilities of what could be and what should be. Without vision there is nothing that keeps our lives on track and we end up wondering through life with no purpose. Author and Educator Helen Keller once said, “The only thing worse than being blind is having sight but no vision.” If our vision is compromised, it’s like a boat with no rudder. We will aimlessly wonder around with no direction.

When we have clear vision it gives us the ability to imagine what our future might hold. Vision gives us the ability to dream big dreams. Living with vision gives us hope to make it through the tough days and moments in life. Vision inspires the depressed and motivates the discouraged. God created each of us for a purpose. Within that purpose is our vision for life. I believe purpose is knowing and understanding what God created us to accomplish in life, and vision is when we conceive it in our minds through faith and begin to live it out. Vision is a glimpse of our future that God has designed just for us. ~OC

Today’s Prayer:

Dear God, I pray you would bless each of us with vision and a purpose that can only come from you. I pray all of this in the matchless and powerful name of Jesus. Amen.

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Beauty Marks

Today’s a new day! Instead of looking at our scars in a negative light, make the choice to look at your scars as beauty marks. Our beauty marks help tell our story and lets the world know that God is faithful and is healing us every day. Let your scars shine! ~OC

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Temporary Privilege

Today’s a new day! Spoiler Alert: Facing struggles in our Christian walk is normal. In 1 Peter 4:12 we read the following, “Beloved, do not be surprised at the fiery trial when it comes upon you to test you, as though something strange were happening to you.”

Throughout the Bible, we read story after story of Christians facing tough times and struggling. But we also read, that those struggles produced growth and many invaluable lessons were learned. As we walk through the tough times in life, it’s our choice how we respond to those challenges. Our struggles shape us. God wants to give us more than ease and comfort in life. He desires that we become more like Him. In order for that to happen, we must walk through seasons of suffering.

As I continue to walk through this very short journey called life, I have come to realize that this is the only time I will have the opportunity to glorify God in the midst of my struggles.

Here are a few questions God has put on my heart over the years, as I have walked my crazy beautiful health journey:

*Do I look at my current health struggles as a privilege and opportunity to grow and possibly help someone else walking through their own struggles?

*As I face trials and hardships, do I look at them as opportunities to honor God? To actually live by faith and not by sight. To truly be His hands and feet.

The pain I suffer as I deal with my current health issues is not fun, but through it all I am excited to hopefully honor God during this journey. Over the years, I have learned to count it a privilege to struggle well.

So today, as you reflect on this post and more importantly on your own life, do you consider the struggles you face in your Christian walk as a temporary privilege? ~OC

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