Today’s a new day! This crazy beautiful health journey, has opened my eyes to seeing the amazing, ordinary, everyday gifts of life. As my body continues to waste away, inwardly I am being renewed day by day. Experiencing life with new eyes. With a new perspective. ~OC
Guiding My Steps
Today’s a new day! I am thankful as I have run this crazy beautiful health journey, that God did not reveal every step, bump, pothole or curve along this twenty-two years and counting health journey. I cannot imagine how I would have lived out this race, if I would have known how long the journey would be and all that I would have to endure. Knowing the whole story in advance would have been overwhelming. God may not have shown me every twist and turn of this health journey, but He has guided my every step. And as I have leaned into His promises, I have been amazed at everything God has brought me through.
My life and journey has not been about perfection. I have found that one of the keys to living out the toughest moments in life is my daily commitment to serve God in my words and actions. God will never abandon me as I continue to run through the bumps in the road of this health journey. There will be better days ahead and God will be with me every step of the way. ~OC
LORD, you are my portion and my cup of blessing; you hold my future. The boundary lines have fallen for me in pleasant places; indeed, I have a beautiful inheritance ~Psalm 16:5-6
Singing Hallelujah
Today’s a new day! As I have walked this crazy beautiful health journey for over 22 years, I’ve had a lot of time to think about the journey. These thoughts have been like a blueprint for my journey. A journey that is radically different to the one I envisioned 22 years ago.
When I received my first diagnosis back in 2002, I was told after the shock of the diagnosis I would deal with anger and depression. Those well meaning health professionals were wrong. As crazy as it may sound, I feel like this health journey is quite possibly one of the best things that has ever happened to me. Yes, the journey has not been easy. All the surgeries, treatments and hospital stays have not always been pleasant. It’s not the blueprint I would have written for my life. But it has made me really re-evaluate a lot of the things I once held close. It’s made me appreciate my family and friends so much more and realize that possessions mean nothing when you’re faced with the real possibility of dying. Most importantly, it has made me so very aware that the God I believe in and serve is so much bigger and so much closer to me than I ever could have imagined.
Throughout history God has had many names, one of them being Immanuel, meaning ‘God with us’. I have never known that to be more true than I have the last 22 years and counting. Sometimes I wonder why I was chosen to walk this journey. But then God blesses me with a beautiful interruption and I am reminded that God has a purpose for my journey.
I know that God’s ways are higher than my own and there has been immense good that has come from this crazy beautiful health journey. God has used my health journey to bring me and others closer to Him. To bring encouragement.
As I walk through this journey, woven into the fabric of my life has been an understanding of what it means to suffer, and from that understanding has flown love, compassion and mercy.
During this journey, I have continuously leaned on Psalm 139:15-16, 2 Corinthians 4:16-18 and Hebrews 13:5. I will let you research those scriptures on your own. While this health journey and everything that has come with it may seem chaotic, I know there is purpose in this crazy beautiful journey. Not my purpose, but the purpose of a God who holds the universe in His hands… who knew me from the moment I was conceived in the womb…. who has walked beside me every day of my life. I may not understand everything that has happened along this journey and maybe on this side of Heaven I never will, but I know that whatever happens, God is in control and he has promised he will never leave me or forsake me.
I don’t know about you, but that gives me a tremendous amount of confidence that everything is going to be alright.
Because of God’s goodness I will sing Hallelujah, Hallelujah. Singing Hallelujah because I am living a blessed life. Singing Hallelujah because my bride who loves me and is standing strong with me on this journey. Singing Hallelujah because I have amazing family and friends who continue to stand with Laura and I during this unending journey. Singing Hallelujah because God walks beside me and fights the battle for me. He commands his angels concerning me and they guard me. God is my fortress, my hiding place while the battle rages around me. He stands between me and my health issues that would seek to take my life and says to the sickness “no further… you will not harm him”.
Singing Hallelujah because I am still alive…. and hopefully will be for many years to come.
There are so many reasons to sing Hallelujah…. so many…. and as long as I have a heartbeat you will hear my Hallelujah.
Whatever you see in me that you think is good comes from Heaven.
It’s not my doing…. it’s His. ~OC
Shine God Shine
Today’s a new day!
Dear God, as we walk through this journey called life, let your light shine through us. Destroy all the darkness and negativity around us. Dear God, let the warmth of your light, the brightness of your love, the sweetness of your joy, the beauty of your hope shine through us. Dear God, let your light be our guide through the storms of life. Let your light brighten our path. Dear God, let your light shine through us everyday. Shine God Shine! ~OC
Time
Today’s a new day! As I continue running this crazy beautiful health journey, the days are getting tougher. But as my body continues to decline, I push forward to continue living a life of significance. I want every moment to count. I wrote this a few weeks ago. Hopefully you will take some time to reflect on it.
As I reflect on this crazy beautiful journey, I must start with the beginning. I came into this world in December 1965. That was the year God put breath in my lungs.
Even though that day in ‘65 was a major moment in my life, what has happened since that day is what really matters. What have I done with the time that has been entrusted to me?
For that time represents all the opportunities that have come and gone since the winter of ‘65. Have I used this gift of time wisely?
What really hasn’t mattered is the material things I have collected over the years. Sometimes I cringe at the things bought on Amazon. But hey it sounded like a good deal at the time. The careers, money, houses may have been nice, but at the end of the day they were but fleeting.
As I move into the 4th quarter of this health journey, I want to make sure I am investing in things that truly matter. Most importantly, I want to invest in people that matter. Who are the people who matter? Everyone I encounter on this journey matters. Whether it’s a friend I have known since childhood or a new friend I just met on the elevator. Because at the end of the day, it’s our relationships that matter.
As I reflect back on the journey, are there things I would like to change? Yes there are. But I will never regret the time spent with family and friends. I will never regret the moments spent with loved ones laughing and crying. I will never regret the beautiful interruptions God has brought my way.
As I continue running this health journey, I want to slow down and experience what is real. What truly matters. I want to be slower to speak and quicker to listen. I want to be slower to anger and quicker to love. I want to be more willing to show forgiveness than to hold a grudge. I want to be known more for what I love and less known for what I dislike.
As I have run this crazy beautiful health journey, I have been known by my multiple nicknames. I have been known for beating the odds in my health battle. Those are all nice, but the three things that matter to me the most is being known as a person who knows and loves God, a man who loves his amazing bride and a person who cares about his amazing friends and desires to be a great friend.
At some point this crazy beautiful health journey will come to an end. All of our journeys will eventually come to an end. My question to you and myself is this, “At the end of your journey, will you be happy with the way you lived out the precious time you were given?” ~OC
My NYC Marathon Experience…Almost
Today’s a new day! The New York City Marathon is this morning. I will watch it on tv and root for each of the runners. I will also spend a moment reflecting on my NYC Marathon experience that never happened.
Back in 2010, I should have been in New York City with the other 45,344 runners competing that day. But on that Sunday morning, I was in the hospital fighting for my life. It would be another nine years before I would even have the ability to lace up my running shoes and attempt to run. Unfortunately, that would be a short lived experience as my health took another turn for the worse.
I still look back on my running days more with a smile than I do with disappointment, but I must admit missing that 2010 NYC Marathon is still one of my biggest regrets of my running career. The opportunity to be at the starting line with thousands of other runners, to experience the excitement of hearing the starting gun go off, to run through the streets of NYC with thousands of people cheering the runners on and crossing that finish line is a memory I miss from my running days. It is a moment I will always wonder about.
But this Sunday morning, like I have been doing for many years, I will be watching and cheering on each of the runners blessed with the amazing opportunity to run the NYC Marathon. There will also be a moment where I will imagine myself running through the finish line with my arms raised high. You can never really take the runner out of the runner.
Best wishes for all of the runners fulfilling your dreams of running in the NYC Marathon today. Embrace every minute of every single mile. I will be cheering you on. Go Get It! ~OC
Game Plan
Today’s a new day! As I continue to run this crazy beautiful health journey, I thought I would share my game plan with you. Hopefully you will find some takeaways to apply to your own journey.
1. Recognizing that so many of our battles are waged in the mind, I chose to focus on God who is all-powerful and compassionate. The Bible tells me that God’s Name is El Elyon, God Most High, and that nothing can come into my life that is not first filtered through the fingers of God’s love. God knew before the foundation of the world that I would be here in this moment dealing with multiple life threatening health issues and he already provided the resources I would need to face it. God’s plan for me in every trial of every size is that I experience peace and victory, never defeat.
2. I chose to view this journey as a gift. Granted, it’s like expecting the newest and hottest new toy for Christmas and getting a pair of socks, but it’s still a gift. This is the time to draw near to God, to experience God more fully, to enjoy the simple joys of life, to focus on those things that are truly important. I will thank God every day for the gift of my health journey.
3. Although my health battle wants to be an all-encompassing issue in my life, I refuse to sink within myself. I will continue to reach out to people each day with a text, word of encouragement, act of service or prayer.
4. I will not ignore my emotions, which can be all over the place. I will allow myself to reflect as necessary in order to express my feelings, but I will not be ruled by them.
5. I will share what is happening to me with others and enlist their support and prayers. I cannot run this journey alone, and I will not rob others of the blessing they can receive by running with me.
6. I will make both short-term and long-term goals in order to have something in the future to look forward to. For example, I plan on continuing to make beautiful memories with my bride. I will continue to share my journey on this blog. I will continue to learn and experience new things in life.
7. I will find a reason to laugh and make my bride laugh every day. Laura and I have used humor (sometimes dark) to get us through the toughest moments of this journey.
8. I will remind myself that, in some inexplicable way, the manner in which I conduct myself during this crazy beautiful health journey, does indeed impact the lives around me. The book of Job tells us that humans sometimes get caught up in the battle between God and the enemy. Jesus Himself told His disciples upon their completion of a missionary journey, that God had seen Satan fall from heaven as a result of their actions.
9. I will endeavor to keep my life as “normal” as possible. I will continue my every-day activities as long as I am physically and mentally able. This will afford me the comfort of the predictable and common aspects of life as well as helping me not to slide into introspection and self-pity.
10. I will continue to praise, serve and thank Jesus for every moment of this journey. It has not been an easy one, but it has been filled with amazing lessons, experiences and memories.
Dear friends, I am praying for you. I am asking that you will be “sincere and blameless” (Philippians 1:10). The word “sincere” is a Greek word that grew out of a poor practice in the marketplace of the day. Everyone in that day used pottery for many tasks like we use plastic today. It was important that the pots be well made. Most were, but there were some unscrupulous pottery makers who would find a pot with cracks in it. Rather than discarding it, they would fill the crack with wax to cover it up. This would work as long as the pot sold early in the day. But after a longer time of sitting out in the hot Middle Eastern sun, the wax would melt and the cracks would show. The Apostle Paul prayed that the Philippians would avoid this by being sincere or “sun-tested.” May you, as you face the heat and pressures of this world, find yourself to be, by His grace, without wax. Blessings. ~OC
The Long Goodbye
Today’s a new day! As most of you know, I am in the twenty-second year of this crazy beautiful health journey. On more than one occasion, Laura and I have been told I only had hours, weeks or months to live. So my health journey has sort of become a long goodbye. I was diagnosed with dementia a month ago, so I have spent a little more time reflecting on my life and this journey. Sometimes, I feel like a rockstar or band that is on a continuous farewell tour. Here are some words that came to my mind.
The Long Goodbye
This long goodbye brings with it many different emotions
This long goodbye is filled with moments of crying out to God; some days are filled with questions, but most days are filled with praise and thanksgiving
Praise and thanksgiving? How could that be?
This long goodbye has given me the opportunity to live. I mean really live. From skydiving to meeting a former President, my life has been filled with amazing moments
This long goodbye, has given me the opportunity to love my bride longer than the experts predicted
This long goodbye has given me the opportunity to spend more time with friends, make new friends and reconnect with some old friends
This long goodbye has given me the opportunity to make more mistakes and learn some valuable lessons from those mistakes
This long goodbye has given me the beautiful opportunity to realize life is not all about me
This long goodbye has given me the opportunity to serve others
This long goodbye has given me the opportunity to receive and share the beautiful gift of forgiveness
This long goodbye has given me the opportunity to grow as a person
This long goodbye has given me the opportunity to become a runner, write two books, have a movie made about my life and write a song that is on an actual album
This long goodbye has given me with the beautiful opportunity to meet some amazing people
This long goodbye has given me the opportunity to share and receive hope, love and encouragement
This long goodbye has given me the opportunity to laugh, cry and reflect
This long goodbye has given me the opportunity to share the story God gave me so many years ago
I am thankful for this long goodbye and the beautiful gifts it has given me. ~OC
A Night With Dementia and Parkinson’s
Good morning! I pray everyone is sleeping and will see this after a great night sleep.
I can tell tonight’s going to be one of the nights. I wrote the following to share what those sleepless, hallucination filled nights are like. I wrote the following to give you a glimpse into my life with Dementia and Parkinson’s on most nights. ~OC
A Night With Dementia and Parkinson’s:
When it gets deep in the night
Where time seems to stand still
I can hear my heart beat and my thoughts screaming and that’s not always a good thing
It’s going to be one of those nights
Where sleep is a distant dream
Sometimes the voices get loud
And the hallucinations seem so real, I have to remind myself they’re not legit, just a short circuit in my brain
But through it all, I stand tall
Not allowing all those voices and thoughts to become real
I will keep standing tall
Lifting up my prayers
to the One who created it all
I will keep fighting, refusing to fall
choosing to embrace faith over it all
I will focus on the prize
Not all the junk, this disease
tries to steal from my mind
I keep fighting, gettin off the canvas
I keep running towards the One who
clears the cobwebs and reminds me
I am His precious child
I will keep standing tall
Lifting up my prayers
to the One who created it all
I will keep fighting, refusing to fall
choosing to embrace faith over it all
I will continue to fight through the
night, all the negative thoughts
that keep me from counting sheep
and getting a good night sleep
I will keep standing tall
Lifting up my prayers
to the One who created it all
I will keep fighting, refusing to fall
choosing to embrace faith over it all
The giants who try to bring me
down at night, are no match for
the One who used a boy named David to bring down one of the biggest
giants of all
I will keep standing tall
Lifting up my prayers
to the One who created it all
I will keep fighting, refusing to fall
choosing to embrace faith over it all
It’s time to be Brave
It’s time to keep Overcoming
It’s time to be Fearless
I am ready to Battle
Refusing to back down
I will keep standing tall
Lifting up my prayers
to the One who created it all
I will keep fighting, refusing to fall
choosing to embrace faith over it all
I am focused on the mission
Not going to backdown
Not going to run away
Going to walk with the King
I will keep standing tall
Lifting up my prayers
to the One who created it all
I will keep fighting, refusing to fall
choosing to embrace faith over it all
As the night slowly creeps on
I will press into the promises
of my King, thankful they get me
through another night, time to be
fearless and pray through it all
I will keep standing tall
Lifting up my prayers
to the One who created it all
I will keep fighting, refusing to fall
choosing to embrace faith over it all
As the night moves on and
My thoughts begin to wonder
the adrenaline starts flowing
and God’s angels get moving
the morning light will soon come shining
So, I will keep standing tall
Lifting up my prayers
to the One who created it all
I will keep fighting, refusing to fall
choosing to embrace faith over it all
Embrace Your “Can’t”
Today’s a new day! I used to tell people that the word “Can’t” should never be uttered from their mouth. I used to use the popular phrases “Just Do It,” and “Sleep when you’re dead.” Yes, I was that guy.
In today’s world, we are pushed and even encouraged to take on more and more, and we are seen as weak or strange when we are unable, or do not want to do so.
For me, this mindset came from my passion for life. It was fueled by a deep craving to achieve everything in life. It’s what made me intense, driven, competitive, and hardworking. It was who I was. Until I wasn’t.
As I have walked this crazy beautiful health journey for 22 years, it took me some time to come to terms with my “can’t.” Early on in my health journey, I constantly pushed through truly excruciating symptoms, like level 10 pain, exhaustion from weeks of no sleep, and unrelenting crushing fatigue even when I did sleep. I pulled myself together through constant life-threatening health issues, and participated in physical activities that I had no business attempting with a smile on my face (like running multiple marathons with no training) – while inside my body, my mind, and my spirit were dying a slow and agonizing death. Yet I still didn’t listen.
Why am I sharing all of this with you? Because I believe I could have spared my body a lot of pain and damage, my mind a lot of anxiety, if I had just learned to accept, or even embraced my “can’t” earlier in my health journey. I would have also spared my bride from a lot of worrying.
I want to share a few lessons I have learned along the way. I hope you take the time to read and reflect on them.
1). “Can’t” Is Not Weakness:
The biggest hurdle when it comes to dealing with “can’t” is intimately understanding on a heart-knowledge level that being unable to do certain things because of your illness does not mean you are weak, lazy, unintelligent, or unmotivated. This is where I was stuck for a long time. I had believed my whole life that if I couldn’t perform at peak levels, it must be my fault and that I just wasn’t trying hard enough. So, when my illness started to seriously affect my work quality in the career I had worked so hard to achieve, I compared myself to those around me, and told myself that I was just “too stupid” or “lazy” to do the job. At times I listened to the lies that I was worthless.
Hello Over-Achiever. I want to talk to you directly now. You burn-the-candle-at-both-ends doers. You know-you-can-conquer-the-world types. You did not choose your health issues. You didn’t work hard your whole life just to become a “lazy” and “unmotivated” on a whim. That’s not you and that’s not what is happening in your life. It’s not a matter of motivation, drive, desire, or ambition. It’s not a matter of not trying hard enough. It’s a matter of your body revolting against the true self of your mind and spirit. It’s a matter of your earthly vessel failing the real and eternal you that lives inside. The true and eternal you is still the same as it has always been: driven, motivated, intelligent, and strong. Once you accept this and understand the gulf between the two “yous,” you can take strides to get your body back on board so that a more collected, collective you can get back to truly living.
Accepting your “can’t” isn’t weakness; it’s actually strength. It means that you are strong enough to look your health challenge squarely in the face and get after the business of Overcoming. It means that you are brave enough to accept that your life right now must take an unexpected detour. It means that you are willing to admit your physical “can’t” so that you can open your mind and spirit to what you can and must do to regain your health. And the only way you can allow your focus to properly shift to healing is to first completely embrace your illness and your “can’t.”
2. “Can’t” Allows Healing:
Sadly, it took me several years to embrace this truth. I am encouraging you not to wait. Because if you don’t fully believe and fully accept that you are sick, you will keep running the rat race. But if you look deep in your heart, listen to your body, and know in truth that you are sick, then you can accept it. Embrace it.
I cannot stress this enough. Because until you wholly feel the weight of it, until you embrace it and believe it, you can’t get truly angry about what your illness is stealing from you. And until you get angry you cannot mentally, emotionally and spiritually prepare for the battle ahead of obtaining a full and accurate diagnosis, proper treatment, and hopefully better health. This is how coming to terms with your “can’t” sets you on the path to healing.
If you are in the early stages of your health journey, this next part may shock you. The medical system (at least in the United States) will not completely facilitate you regaining your health. Not at all. Unless you are exceptionally fortunate, your journey is not going to look like: get sick, see a doctor, get better. No, if you have a chronic or complex illness, generally speaking you need to prepare for battle. You need to arm yourself with knowledge and with the mental fortitude to be your own advocate. You need to prepare to fight for your life. You need to push for answers and drive the process. No one else will or can do it for you.
This is why embracing your “can’t” is so important. Because when you truly realize what you “can’t,” you get really, really angry at this invisible thief of life that is your illness. I don’t mean “bitter” angry, I mean “motivated and determined” angry. And you’re going to need that determination to drive the (sometimes grueling) battle that lies before you. And that drive to press forward in the battle is the only thing that will lead you to wellness.
It’s all you, Warrior! So get really angry at your “can’t” and resolve in your mind to do everything you humanly can to regain your health.
3. “Can’t” might be forever (But it’s not your identity): One of the more valuable pieces of advice I can share with you is that your “can’t” might be forever. That can be a difficult pill to swallow. But your “can’t “ does not need to become your identity. My life is much more than all the “limitations” I face on a daily basis. My life is full of hope, adventures and overcoming all the bumps in the road.
4. “Can’t” Makes Room for “Can”
Another critically important thing that coming to terms with your “can’t” does is that it makes room in your life for your “can.” Some of your “cans” may look something like:
1). I can make healthy, life-giving meals for myself to help my body heal.
2). I can research my illness for myself so that I have the knowledge to ask good questions at my appointments and to make educated treatment decisions.
3). I can maintain a positive attitude, despite how I feel.
4). I can make time for self-care activities that will help my body.
5). I can surround myself with people who encourage me in my health journey.
6). I can purposefully structure my life so that it supports wellness and healing.
7). Even though I couldn’t yesterday, today I can go for a short walk or bike ride.
8). This morning, I can rise early and sit peacefully to watch the sun rise
9). Right now, I can make positive choices to help with the symptoms I’m experiencing.
10). Don’t get hung up on committing to daily schedules of “cans” or expecting some type of minimum performance of “cans.” While it’s absolutely important to have bigger, more overarching “can” goals, embrace what you can do today and accept that tomorrow’s “cans” may look very different based on your health. Every day is a new opportunity to discover and put into practice the things you can do.
Here are some practical steps that can be used to work towards peace with your current “can’t:”
1. Pray
2. Journal
3. Reach out to family/friends
4. Reach out for professional help if needed
Coming to terms with your “can’t” may be difficult, but it’s so important and it opens the way for healing and wellness to come in time. You are unbelievably strong to live with your symptoms day in and day out and even stronger to accept and face such a challenge head on. Be encouraged that your “can’t” is just for right now and that nothing we face on this side of Heaven is forever. ~OC
Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal. ~2 Corinthians 4:16-18