Beautiful Journey

Today’s a new day! As many of you know, I was diagnosed with young-onset dementia last September (2024). Life has changed in many ways since that diagnosis. Writing down my thoughts is much tougher these days. This post literally took me several weeks to write. Finding my words to write or speak can be a daunting challenge at times. As I navigate this new reality of living with dementia, I want to share the journey with you. To answer your questions and to share my thoughts for as long as I can. The following is a question I get a lot as I continue to run this crazy beautiful health journey.

What gives you the strength to remain positive?

My Christian faith gives me deep meaning in life, giving me hope for the future and a perspective of my life being eternal, not simply limited to what I see and experience on this side of Heaven. This life and my health journey are temporary.

“So we do not lose heart. Though our self is wasting away, our inner self is being renewed day by day. For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison, as we look not to the things that are seen but to the things that are unseen. For the things that are seen are transient, but the things that are unseen are eternal.” ~2 Corinthians 4:16-18

I have met so many people with different health challenges during my journey, all at various stages of ability due to their declining health. But each person still remains an individual, with their true inner being shining through. The eyes remain a window into someone’s soul, and reflect our humanity.

As my thoughts and overall health becomes a bigger challenge, I see more clearly the importance of relationships. I also see and feel myself traveling through a wide range of emotions, even if they become a little more scrambled with the dementia. Our emotions connect us to each other, allowing us to form relationships, which is a mark of truly being human. As this journey takes me deeper within myself, I find myself reflecting more on God and how to truly live life more for Him. This is what gives me an abiding sense of meaning as I travel on this health journey wherever it takes me. Because I know the final destination is filled with peace and ultimate healing. As a Christian, the ending is really the beginning.

So as I continue to run this health race, I remain positive, feeling that I am gaining along this journey a far better sense of what it means to be truly alive and that much can be achieved to help others as I continue travel this crazy beautiful journey. ~OC

Uniquely Created

Today’s a new day! Stop comparing your gifts and talents to someone else’s—God designed you with purpose. You are uniquely equipped to make a difference just as you are. Embrace the gifts God has given you and remember: you’re a one-of-a-kind original, called and empowered for His purpose. Stay in your lane and run the race God designed just for you. Have a great day! ~OC

Today’s A New Day!

Today’s a new day! As I have run this crazy beautiful health journey for the last 23 years, I make a daily decision that helps me through each day. I believe it can make a difference in your life. And it’s free! Here it is… Today choose to be positive. Today choose to surround yourself with positive people. Today choose to look at the positives instead of dwelling on negatives. Today choose to live a positive life, even when the world is throwing a major storm your way. That does not mean you ignore those storms, but you choose to take a different perspective in dealing with those storms. I believe by choosing to be positive and surround yourself with positive people, you improve your quality of life.

I pray your day is filled with amazing moments and God’s blessings. Have a great day!~OC

Run Your Race!

Today’s a new day! Here is another “Lost Writings of OC.” This was written in 2018.

Therefore, since we are surrounded by such a great cloud of witnesses, let us throw off everything that hinders and the sin that so easily entangles. And let us run with perseverance the race marked out for us, fixing our eyes on Jesus, the pioneer and perfecter of faith. For the joy set before him he endured the cross, scorning its shame, and sat down at the right hand of the throne of God. Consider him who endured such opposition from sinners, so that you will not grow weary and lose heart. ~Hebrews‬ ‭12‬:‭1‬-‭3‬ ‭

My feet hit the ground in a slow, steady rhythm. I am not fast. But I like how stress rolls off me along with the sweat from my forehead, the way my favorite songs match the beat of my heart and the satisfaction of discovering I am capable of more than I first thought.

The sky is a beautiful blue, filled with sunshine and I am content…until I see another runner out of the corner of my eye with a smooth, speedy stride I can hardly fathom. And suddenly I feel like I am not doing anything right. Have you ever experienced those feelings?

You love the social media post or blog post you wrote until you see someone else’s got more likes for their post.

You think your life is just fine until everyone flocks around the new, cool kid in town.

We can so quickly shift from focusing on “the race marked out for us” (Hebrews 11:1) to comparing ourselves with someone else. And as every runner knows, where your eyes go your feet (and heart and life) will follow.

The cure to comparing is considering. We’re to fix our eyes on Jesus and “consider” all He went through for us (Hebrews 12:3). In other words, if we’re going to focus on a path besides our own then we’re to think about the one that led to the cross. Because that changes everything.

Instead of what we don’t have, it reminds us of all we have been given.

Instead of how we do not measure up, it reminds us of the limitless grace that’s ours.

Instead of self-pity, it gives us a reason to lift our hands and hearts in praise and worship.

So today, make the choice to run the race designed just for you. Embrace it and boldly live it out. ~OC

New Perspective

Today’s a new day! This crazy beautiful health journey, has opened my eyes to seeing the amazing, ordinary, everyday gifts of life. As my body continues to waste away, inwardly I am being renewed day by day. Experiencing life with new eyes. With a new perspective. ~OC

Guiding My Steps

Today’s a new day! I am thankful as I have run this crazy beautiful health journey, that God did not reveal every step, bump, pothole or curve along this twenty-two years and counting health journey. I cannot imagine how I would have lived out this race, if I would have known how long the journey would be and all that I would have to endure. Knowing the whole story in advance would have been overwhelming. God may not have shown me every twist and turn of this health journey, but He has guided my every step. And as I have leaned into His promises, I have been amazed at everything God has brought me through.

My life and journey has not been about perfection. I have found that one of the keys to living out the toughest moments in life is my daily commitment to serve God in my words and actions. God will never abandon me as I continue to run through the bumps in the road of this health journey. There will be better days ahead and God will be with me every step of the way. ~OC

LORD, you are my portion and my cup of blessing; you hold my future. The boundary lines have fallen for me in pleasant places; indeed, I have a beautiful inheritance ~Psalm 16:5-6

Singing Hallelujah

Today’s a new day! As I have walked this crazy beautiful health journey for over 22 years, I’ve had a lot of time to think about the journey. These thoughts have been like a blueprint for my journey. A journey that is radically different to the one I envisioned 22 years ago.

When I received my first diagnosis back in 2002, I was told after the shock of the diagnosis I would deal with anger and depression. Those well meaning health professionals were wrong. As crazy as it may sound, I feel like this health journey is quite possibly one of the best things that has ever happened to me. Yes, the journey has not been easy. All the surgeries, treatments and hospital stays have not always been pleasant. It’s not the blueprint I would have written for my life. But it has made me really re-evaluate a lot of the things I once held close. It’s made me appreciate my family and friends so much more and realize that possessions mean nothing when you’re faced with the real possibility of dying. Most importantly, it has made me so very aware that the God I believe in and serve is so much bigger and so much closer to me than I ever could have imagined.

Throughout history God has had many names, one of them being Immanuel, meaning ‘God with us’. I have never known that to be more true than I have the last 22 years and counting. Sometimes I wonder why I was chosen to walk this journey. But then God blesses me with a beautiful interruption and I am reminded that God has a purpose for my journey.

I know that God’s ways are higher than my own and there has been immense good that has come from this crazy beautiful health journey. God has used my health journey to bring me and others closer to Him. To bring encouragement.

As I walk through this journey, woven into the fabric of my life has been an understanding of what it means to suffer, and from that understanding has flown love, compassion and mercy.

During this journey, I have continuously leaned on Psalm 139:15-16, 2 Corinthians 4:16-18 and Hebrews 13:5. I will let you research those scriptures on your own. While this health journey and everything that has come with it may seem chaotic, I know there is purpose in this crazy beautiful journey. Not my purpose, but the purpose of a God who holds the universe in His hands… who knew me from the moment I was conceived in the womb…. who has walked beside me every day of my life. I may not understand everything that has happened along this journey and maybe on this side of Heaven I never will, but I know that whatever happens, God is in control and he has promised he will never leave me or forsake me.

I don’t know about you, but that gives me a tremendous amount of confidence that everything is going to be alright.

Because of God’s goodness I will sing Hallelujah, Hallelujah. Singing Hallelujah because I am living a blessed life. Singing Hallelujah because my bride who loves me and is standing strong with me on this journey. Singing Hallelujah because I have amazing family and friends who continue to stand with Laura and I during this unending journey. Singing Hallelujah because God walks beside me and fights the battle for me. He commands his angels concerning me and they guard me. God is my fortress, my hiding place while the battle rages around me. He stands between me and my health issues that would seek to take my life and says to the sickness “no further… you will not harm him”.

Singing Hallelujah because I am still alive…. and hopefully will be for many years to come.

There are so many reasons to sing Hallelujah…. so many…. and as long as I have a heartbeat you will hear my Hallelujah.

Whatever you see in me that you think is good comes from Heaven.

It’s not my doing…. it’s His. ~OC

Shine God Shine

Today’s a new day!

Dear God, as we walk through this journey called life, let your light shine through us. Destroy all the darkness and negativity around us. Dear God, let the warmth of your light, the brightness of your love, the sweetness of your joy, the beauty of your hope shine through us. Dear God, let your light be our guide through the storms of life. Let your light brighten our path. Dear God, let your light shine through us everyday. Shine God Shine! ~OC

Time

Today’s a new day! As I continue running this crazy beautiful health journey, the days are getting tougher. But as my body continues to decline, I push forward to continue living a life of significance. I want every moment to count. I wrote this a few weeks ago. Hopefully you will take some time to reflect on it.

As I reflect on this crazy beautiful journey, I must start with the beginning. I came into this world in December 1965. That was the year God put breath in my lungs.

Even though that day in ‘65 was a major moment in my life, what has happened since that day is what really matters. What have I done with the time that has been entrusted to me?

For that time represents all the opportunities that have come and gone since the winter of ‘65. Have I used this gift of time wisely?

What really hasn’t mattered is the material things I have collected over the years. Sometimes I cringe at the things bought on Amazon. But hey it sounded like a good deal at the time. The careers, money, houses may have been nice, but at the end of the day they were but fleeting.

As I move into the 4th quarter of this health journey, I want to make sure I am investing in things that truly matter. Most importantly, I want to invest in people that matter. Who are the people who matter? Everyone I encounter on this journey matters. Whether it’s a friend I have known since childhood or a new friend I just met on the elevator. Because at the end of the day, it’s our relationships that matter.

As I reflect back on the journey, are there things I would like to change? Yes there are. But I will never regret the time spent with family and friends. I will never regret the moments spent with loved ones laughing and crying. I will never regret the beautiful interruptions God has brought my way.

As I continue running this health journey, I want to slow down and experience what is real. What truly matters. I want to be slower to speak and quicker to listen. I want to be slower to anger and quicker to love. I want to be more willing to show forgiveness than to hold a grudge. I want to be known more for what I love and less known for what I dislike.

As I have run this crazy beautiful health journey, I have been known by my multiple nicknames. I have been known for beating the odds in my health battle. Those are all nice, but the three things that matter to me the most is being known as a person who knows and loves God, a man who loves his amazing bride and a person who cares about his amazing friends and desires to be a great friend.

At some point this crazy beautiful health journey will come to an end. All of our journeys will eventually come to an end. My question to you and myself is this, “At the end of your journey, will you be happy with the way you lived out the precious time you were given?” ~OC

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