Tag: Thrive

New Set of Clothing

Today’s a new day! As we walk into a new week, I want to share a little bit with you.

I encourage everyone this week to put on a new set of clothing. Instead of judgment, try on forgiveness… instead of hate, try on love… instead of retribution, try on grace… instead of war, try on peace… instead of following the crowd, why not lean into the promises of Jesus. Today’s world is so polarized and broken and it breaks my heart. The older I have gotten, the more I have come to realize what is important in life. What is important in life is how you live… to live with an attitude of love… to follow the words of the prophet Micah: do justice, love mercy, and walk humbly with God… and, of course to love God with all of our heart, mind, soul, and strength while also loving our neighbor (all of them, even those who are difficult to love) as ourself. Have a blessed Holy Week. ~OC

0

Still Standing and Thankful

Today’s a new day! I don’t like being in pain and I don’t like having multiple health issues that will probably shorten my life. I would love to grow old with my bride. But I realize that may not be the plans God has for my life. But I know and I trust that He is faithful. God’s plans are the best and do not revolve around me. Acts 13:36 says, “when David had served God’s purpose in his own generation, he fell asleep”. When God has done what he wants through me, I will step into heaven in his perfect timing.

Why has God allowed me to walk this health journey? Maybe it is to help me be a better husband and friend. Maybe it’s an opportunity to share the love of Jesus with more people. Maybe it’s for reasons way beyond my understanding. All I know is that God has given me this gift of health issues to use for his glory. All I know is that I will continue to trust and serve him.

Sometimes it is still hard to comprehend that my life could end at any moment. But isn’t that the case for all of us? As the Bible teaches,

All men are like grass,
and all their glory is like the flowers of the field;
the grass withers and the flowers fall,
but the word of the Lord stands forever. (1 Peter 1:24)

When I received my first diagnosis in August 2002, it was a total shock. I knew I didn’t feel great, but I had no idea how I was so sick. My life at that time involved being a husband, a social worker and volunteer at multiple ministries.

Back then, some doctors shared I might only have five years to live. However, God had other ideas and even though my health journey has been full of twist and turns and multiple life threatening illnesses, I am still standing. Some days my life has felt like a ticking time bomb. My bride has become an expert in dealing with multiple infections,various types of devices being surgically implanted into my body and various treatments to just keep me alive.

As the multiple health issues continue to weaken my body, I am thankfully aware that Jesus is my Lord and Savior in whom I can depend, and that all other ground is sinking sand. I am so grateful to God for everything. I am thankful for who God is, his majesty, his splendour, and his promises. I am thankful for my bride, family, friends and life. I am so thankful to God for the resurrection of Jesus which means I will have victory over death and do not need to fear what my future holds. It is such a comfort to read,

“Death has been swallowed up in victory”
  “Where, O death, is your victory?
  Where, O death, is your sting?”
The sting of death is sin and the power of sin is the law. But thanks be to God. He gives us the victory through our Lord Jesus Christ. (1 Corinthians 15:54-56)

As my body grows weaker, I am thankful God continues to allow me to truly embrace life. To continue making beautiful memories with my bride. Some dear friends even bought me an electric trike to get around town. Watch out world! I will enjoy the new bike in between my many naps. After years of not being able to sleep, most of my days now involve sleeping most of the day.

What can be hard is coping with chronic pain and deteriorating health while still navigating the physical and emotional challenges of trying to live a “normal life.” Another challenge is not knowing what each day might bring. It is impossible to make plans. Between multiple medical appointments and hospitalizations, it can be difficult to make any plans.

However, I am just so thankful for God’s guidance through his word. The Bible is so clear about what God wants me to do now, even as I grow weaker: “Be joyful always; pray continuously; give thanks in all circumstances; for this is God’s will for you in Christ Jesus (1 Thess 5:16). God is so clear. This is what God wants me to do now. I am thankful he continues to allow me to live an amazing life.

So, I will continue to thank God for this gift of health issues because he is good and he is using it for his purposes. The plans of the Lord are perfect, even if I do not always know the reasons I continue to walk through this crazy beautiful health journey. All I know is that someday, I will be in the loving presence of Jesus. But until then, I will continue to live life and embrace every moment. If you see me out and about on my trike, stop and say hello. Oh, and wake me up if I happen to be asleep. ~OC

0

Between the Dash

Today’s a new day! How do you want to be remembered? Another way to ask this question is what do want your life to stand for beyond the dash between your date of birth and the day you leave this world? This may sound like a depressing post, but actually thinking about how you want to be remembered could make a huge difference in the way you live your life.

Most people shy away from talking about death; it feels morbid. But one thing that is for sure in this life is -unless Jesus comes again soon to rapture his people —all of us will face death and all of us will leave behind a legacy. It should not be morbid or depressing to think about how you want to be remembered; it’s smart, and it could be life changing.

How would you choose to live your life if God revealed to you the day, month, and year when you would pass from this life into eternity? How would it affect your daily routine?

In the Bible, Psalm 90 is titled “A prayer of Moses the man of God,” and here’s part of that prayer:

Teach us to number our days, that we may gain a heart of wisdom(Psalm 90:12).

And in Psalm 39:4, King David prayed:

Show me, O Lord, my life’s end and the number of my days; let me know how fleeting my life is.

These two were on the same page, even though centuries apart. They were not asking for a gift of prophecy, but rather, they were asking God to help them live like they were dying—to live in the reality that their days were numbered, and that this life is fleeting.

How often have we prayed such a prayer: Dear God, show me how fleeting—how brief, how short, how transient—my life is? Suppose we began each of our days with this type of prayer, asking God to help us number our days. We would then begin to live in the knowledge that this world is temporary, but eternity is forever.

As I have run this crazy beautiful health journey, I have probably spent a little more time thinking about my mortality. Today, I want to encourage you to give a little more thought to the truth that you will leave this life one day and enter eternity. Are you living with eternity’s values in mind? I believe this is a good question for all of us to consider. ~OC

0

Dear Friend,

Today’s a new day! Here is another “Lost Writings of OC.” This was written in 2019. Sorry it’s a little long. ~OC

Dear Friends,

Several people have reached out to me who are dealing with their own crazy beautiful health journey. So I thought I would share some words that will hopefully bring some encouragement. In the last couple of weeks, my doctors have shared I probably only have months to live. I say this to you, not to discourage you, but to let you know that I am in the trenches with you. These words don’t come from distant memories but from present realities.

The following is a “Battle Plan” of how I am walking through this battle.

1. Recognizing that most of our battles are waged in the mind, I chose to focus on God who is all-powerful and compassionate. The Bible tells us that God’s Name is El Elyon, God Most High, and that nothing can come into our lives that is not first filtered through the fingers of God’s love. God knew before the foundation of the world that we would face different challenges in life and has already provided the resources we need to face them. God’s plan for us in every trial of every size is that we experience victory, never defeat.

2. I chose to view this illness as a gift. Granted, it’s like expecting a new ten-speed bike for Christmas and getting socks, but it is a gift. It is a time to draw near to God, to experience God more fully, to enjoy the simple joys of life, to focus on those things that are truly important. I will thank God every day for this particular gift of health issues.

3. Although my health issues wants to be an all-consuming issue in my life, I refuse to sink within myself. I will reach out to someone else each day with a text, phone call, word of encouragement, act of service or prayer.

4. I will not ignore my emotions (which are currently like a roller coaster on steroids) I will allow myself to experience all the emotions this health journey brings my way, but I will NOT be ruled by them.

5. I will share what is happening to me with others and enlist their support and prayers. I cannot do this alone, and I will not rob others of the blessing they can receive in ministering to me.

6. I will make both short-term and long-term goals in order to have something in the future to look forward to. For example, I plan on continuing to make beautiful memories with my bride through trips and other amazing adventures.

7. I will find some reason to laugh every day.

8. I will remind myself that, in some inexplicable way, the manner in which I conduct myself during this time of struggle does, indeed, impact the spiritual world. The book of Job tells us that humans sometimes get caught up in a cosmic battle between God and Satan, and my actions are key to that struggle. (Jesus Himself told His disciples upon their completion of a missionary journey that God had seen Satan fall from heaven as a result of their actions).

9. I will endeavor to keep my life as “normal” as possible. I will continue my every-day activities and responsibilities as long as I am physically able. This will afford me the comfort of the predictable and common aspects of life as well as helping me not to slide into introspection and self-pity.

Dear friend, who is walking through your own battle, I am praying for you. I am asking that you will be “sincere and blameless” (Philippians 1:10). The word “sincere” is a Greek word that grew out of a poor practice in the marketplace of the day. Everyone in the culture used pottery for many tasks like we use plastic today. It was important that the pots be well made. Most were, but there were some unscrupulous pottery makers who would find a pot with cracks in it. Rather than discarding it, they would fill the crack with wax to cover it up. This would work as long as the pot sold early in the day. But after a longer time of sitting out in the hot Middle Eastern sun, the wax would melt and the cracks would show. Paul prayed that the Philippians would avoid this by being sincere or “sun-tested.” May you, as you face the heat and pressures of this time, find yourself to be, by His grace, without wax.

0

Not Your Enemy

Today’s a new day! You may consider me your enemy. But I am not your enemy. I do not hate you. I do not wish you harm. I do not foster harmful designs against you.

At the same time, we may not be able to be friends. If you deny people the right to have their own opinions, to freely share their opinions, attack them when they do, you may not be a safe person for my friends, family or myself to be around and we may not be able to be friends. If you want to deny people the right to freely worship in their own way, you may not be a safe person for my friends, family or myself to be around. We may not be able to be friends. If you want to share hate and spread lies, we may not be able to be friends. I could go on, but hopefully you get the point. These statements do not mean that I wish harm to you. And this doesn’t necessarily mean we can never talk over a meal. If you are willing to engage in good faith, we can try and we will see how things go. We may be able to be acquaintances and perhaps even friendly, but it will take a lot of time and effort before it’s possible for us to be friends.

Even though we may not be able to be friends, I am not your enemy. And so know that If you are hungry or in need, I will do my best to help you find food and have your needs met. I will work for a society where you have access to affordable health care, and a job that pays a living wage. I want you to have access to a good education, and to clean water and air. I want you to have freedom of religion and speech. I want you to read the books you want to read. I do not want you unjustly detained or imprisoned. I do not want you to be harassed when you walk down the street or go into a store. I want you to be able to flourish. I do not wish you harm. I am not your enemy.

If you can manage to not do harm to the people I love and care about; if you can work for these same things for the people I care about, we can begin a relationship. We do not need to agree on exactly how we solve our society’s problems, but we need to be able to speak with respect and kindness. Because I am not your enemy. ~OC

0

Wednesday Morning Prayer

A prayer for those dealing with health issues on this Wednesday morning. ~OC

Dear God, as you hear the cries of the needy, I pray you would bring peace, comfort and healing. I pray you would sustain those who feel weak and defeated this morning. I pray they would feel your presence today. Dear Lord, bless them with your strength and wisdom as they navigate through the difficult moments of their health journey. Reveal your purpose and beautiful plan for their lives. I pray all of this in the powerful name of the Healer and Sustainer. Amen

0

A Monday Morning Prayer

Good Morning! A prayer to start your day. ~OC

Dear God, sometimes we can be so wishy-washy when it comes to taking hold of Your promises and making them ours. So today, we choose to lean into your amazing plans and promises for our lives. Help us to not allow our human experience to talk us out of our spiritual inheritance. Dear God, help us to set our feet upon every promise that You have given us . Let us go all in! It’s in Your precious name that we pray. ~Amen

0

A Saturday Prayer

Happy Saturday Morning! Let us pray before we start another day. ~OC

Dear God, thank you for another day. Another day filled with challenges and beautiful opportunities. Refresh us this morning. Allow us to live in your presence. Allow us to welcome and encourage every person we encounter today. Allow us to be present in every situation today. Dear God, teach us when to speak and when to listen. When to ponder and when to share. In moments of challenge allow us to lean into the whisperings of your heart. Dear Lord, feel us with the simple gift of your peace today. Allow us to celebrate your joy this day. When our day goes well, may we rejoice. When life grows difficult, surprise us with new possibilities. When life is overwhelming, call us to rest. Dear God, restore your Peace and Harmony in each of our hearts. May our lives reveal your goodness. Dear God, we pray all of this in your precious name. Amen

0

Unanswered Prayers

Good Morning! Here is another entry from “The Lost Writings of OC.” This was written in 2019.

Today’s a new day! As I reflect back on my life, I am thankful that God said no to some of my prayer request over the years.

In the Garden of Gethsemane, as the cross was getting closer, Jesus prayed to the Father: “He walked away, about a stone’s throw, and knelt down and prayed, “Father, if you are willing, please take this cup of suffering away from me. Yet I want your will to be done, not mine.”(Luke 22:41–42)

Never be afraid to pray the following: Not my will, but Yours be done. By saying that, you are simply saying, God I do not know all the facts. I do not know everything there is to know. My knowledge is limited. My experience is limited. So if what I am praying is outside of Your will for any reason, please graciously, but firmly say no.

I know this can be hard at times. Sometimes we do not understand why God doesn’t give us what we ask for. I am thankful that when I was single, God did not answer my prayers about some of the young ladies I was interested in at the time. If I would have said yes to any of those potential relationships when God was telling me no, I would have missed out on marrying my beautiful bride Laura so many years ago.

As we get a little older, we can look back with 20/20 hindsight, and say, Thank you God for not answering those prayers. Or maybe we can look back and be thankful for all of the prayers He did answer. The point is that God knows what’s best for our lives, even when we do not understand it at the time.

Have you ever forced something to happen? Maybe you even felt that God was saying no to it. You remember how that turned out. . .

Finally, I want to remind you of the words of Jesus and encourage you to remember them: “Your heavenly Father already knows all your needs. Seek the Kingdom of God above all else, and live righteously, and he will give you everything you need” (Matthew 6:32-33). Walk in that truth today. ~OC

0

Life with Myasthenia Gravis

Good Morning! More writings from the “Lost Writings of OC.” I thought I would share a little bit about my Myasthenia Gravis (MG) experience with you today. I originally wrote this in 2024 and updated it several weeks ago. As I share this with you, my MG is getting much worse.

Today’s a new day! Myasthenia Gravis (MG) is an autoimmune disease that causes muscle weakness. But what exactly does muscle weakness feel like? To understand more, let me walk you through a typical day with MG.

For me it feels like I’ve run out power. In general, I feel it’s a huge effort to move when I’m very weak. When my legs are weak, they feel heavy and unsteady. I feel like I cannot move them or trust them to hold me up. The weaker I get, the closer and closer my steps get to each other, until I have to stop and lean against something or just sit down.

Also, I get pain in my hip flexors – basically my butt. It’s the same kind of pain you get from overdoing a workout: an achy soreness that feels like you have overused the muscles. These days, I deal with hip pain on a constant basis.

When my shoulders are weak, which is most of the time lately, I feel like I just cannot lift my arms. Like there are heavy weights holding them down.

My neck continues to get weaker. I just cannot hold my head up. It falls to the side or down, or I have to prop it up with my hand on my chin and my elbow on a table, or with a U-shaped neck pillow and a high-backed chair. As my neck weakens, I develop achy pain in my upper back from trying to hold my head up. I sometimes get a nauseating gagging sensation from my throat collapsing.

Eating with MG can be a challenge from having to take breaks while eating, to choking on solids and fluids. Sitting down to eat or drink is a major undertaking. I also start to slur my speech, and I get short of breath from minor exertion, or sometimes just sitting still.

I always have muscle weakness, but it gets more severe with heat, exertion, lack of sleep, infections, or other stressors. Summertime can be very challenging. Extreme cold is not my friend either.

Based on my weakened lung muscles, I am unable to take deep breaths. This causes issues on so many different levels. These days, every breath is a struggle.

I have to stay on top of my medications for the Myasthenia Gravis. I have to take one of those medications four times a day. Oh, I better not miss those dosages or things can go down hill pretty quickly.

I try to dress in cool fabrics and wear layers in winter. And I try to protect myself from sickness by keeping my vaccines up to date, wearing a mask when needed , and using hand sanitizer or washing my hands frequently when I am out of the house. I tend to fist bump and avoid shaking hands or hugging.

You know how much I love to walk, but that is getting harder these days. I have added a walking stick to help with my balance. This is a far cry from my marathon days

My medical team continuously tells me I am a one in two billion case with all of the multiple diagnosis. With Myasthenia Gravis, I fall into a small group of people being diagnosed with MG after having their thymus removed. My cancerous thymus was removed in 2003, but I was not diagnosed with MG until 2009. I will not go into what the thymus does, but feel free to research on your own.

How friends loved ones can help

One thing my friends and family do for me that’s immensely helpful is helping to educate themselves on Myasthenia Gravis so they can explain it to others and better understand my daily challenges.

I only have a few people besides my bride, who truly know me and my MG that well, but they are lifesavers. They’re also the ones I’ll talk candidly to when my MG gets me down. I cannot be relentlessly cheerful all the time, but I try.

I hope this gives you a better understanding of what Myasthenia Gravis looks like and how it affects my life on a daily basis. Each day is a struggle, but I continue to push forward and look at all the positives in my life. I encourage you to do the same. Go have a great day! ~OC

Dear God, Sometimes the pain is so great, I cannot think beyond my current struggle. On hard days, please ease my pain and help me focus on Your goodness one day, one hour, one moment at a time. Let Your overwhelming peace wash over me and remind me Your mercies are new every morning (Lamentations 3:22-23). There are days when I beg you to take the pain away. Days I just don’t have the strength. In those desperate times, I ask for Your unending strength to sustain me. I cannot do it alone, but with You all things are possible (Matthew 19:26). Amen

0

Blog at WordPress.com.

Up ↑