Today’s a new day! This crazy beautiful health journey is not about me. It’s not to show you how strong I am, for my strength comes from God. It’s not to show you how great my faith is, for my faith is a gift from God. And it’s not to show you how courageous I am, for my courage comes from God… exactly at the time I need it. Anything you see in me that is good is not of my doing… it’s from Heaven. ~OC
Dear…,
Today’s a new day!
Dear……,
I want you to know, first and foremost, how special you are. Those are not words to make you feel better. Whether you realize it or not, your life matters.
I want you to know how you light up the world with your smile when you show it off. So please, show it off more. You use more of your face muscles when you smile, so stretch it out so wide that it hurts and remember when you grow old and see wrinkles around your mouth that you got them from smiling.
I know people are trying to reach out to you to tell you that everything is going to be alright and that they’re there for you. Please – and I cannot stress this enough – do not push them away or shut them out. You may not want to hear it, but those family members, friends, and coworkers are there for you and would do anything to help.
So, give them a chance even when you don’t think they’ll understand your pain. You’ll never know if you do not let them in. You’re feeling alone right now. So alone that you don’t think anyone can see all the pain you’re going through.
I want you to know I see you, okay? I can see the pain written all over your face because I know the look of someone trying so hard to pretend like they’re alright when they’re crumbling on the inside. You’re not alone, you have people in your life, and even people you didn’t see coming, who are more than willing to reach out and be there for you.
I know you feel like you cannot get through this current storm. I know it seems like your world is crumbling all around and you cannot find the strength to get back up. Your days are spent isolated in your house, and you cannot eat, sleep or find the strength to move from the comfort and safety of your bed. You have lost the ambition to go outside and breathe in the fresh air. Can I share a little truth with you? I have been where you’re at. I did a pretty good job hiding it, so most people even those closest to me didn’t even notice it. Some days I was barely holding on.
So, I encourage you to hang in there. You’re important to this world and have so much talent and so many amazing ideas to give. You have a light inside you that lights up the world. So keep holding on.
Please, continue to take one day at a time. Keep leaning into the loving arms and promises of God. It’s so easy to want all the answers right this moment, but this life is not a 30 minute tv show. I would love to give you a quick fix, but that could possibly rob you of some amazing lessons God is trying to teach you in this moment. But I can promise you this. We will get through this together. Keep holding on. ~OC
Embracing Our Differences
Today’s a new day!
For just as the body is one and has many members, and all the members of the body, though many, are one body, so it is with Christ.” ~1 Corinthians 12:12
I love hearing people’s stories. I love hearing what God is stirring in their hearts, and talking to them about God’s beautifully thought-out and purposeful design for them as individuals. I love the realization people have when God reveals this to them. We are all unique and different. How exciting is that! However, lately I have really been thinking more about this as it pertains to those in the Christian community.
How many Christians really take the time to think about diversity? Just for a moment, I want you to take some time, look around and asked yourself is my life full of diversity or not? If so, great. If not, ask yourself why not? Because a world filled with diversity is truly beautiful. A life full of diversity is a beautiful mosaic of amazing colors, gifts and talents. Throughout 1 Corinthians 12, the Apostle Paul talks about the many spiritual gifts that we have been given by the Holy Spirit. These gifts all vary person to person. My gifts and personality are not the exact same as yours. We are all different and we were made like this on purpose for a purpose. God did not create us all to be the same old boring carbon copies of each other. Praise God! Nor should we strive to be like each other. We should be living out who God called us to be and strive to be like Jesus. Together, we have unity in Jesus Christ.
Even so, our flawed human nature wants things our own way. A lot of times we see our differences, and they cause pain and dissension. But, is that really what God intended? Did God design us to be different and then fight one another to make the other fall in line behind us? No! We should not be calling for everyone else to be like us, we should be calling on Jesus to show us, together in unity, the way we should move forward. Together we can find a better way. Two minds are greater than one. Our differences make us stronger. Not weaker.
As Believers, we have a great opportunity to approach our differences and conflicts in a God-honoring way. Here are some lessons I have learned over the years. 1). To recognize that people are invaluable. They are children of God. He created them with love and intentionality. 2) To recognize that people might see things differently than I do, so I want to understand and see how they see. 3). To look to God and pray for wisdom. How do we move forward towards a common good for all? What is God’s best for this situation?
There will be times that we’re in a tough spot and can’t see eye to eye, that might be a bigger discussion for another time. We cannot take control or responsibility for other people’s actions. However, we can control and take responsibility for how we approach the differences.
Reflection:
Think about your current circumstances: What conflicts are currently in front of you? Are you approaching them in a Godly way? If not, what steps can you take to change your perspective, conversations, and actions?
Prayer:
God, we are incredibly thankful that you have created each of us uniquely and perfectly in your own image. We praise you today, that we have brothers and sisters who think and see the world differently, because together we are stronger. Help us to see this truth in every situation and conversation. We pray for your wisdom, your guidance, and your grace – that our words and actions are a reflection of who you are and what you have already done for us in Christ Jesus. In Jesus’ name we pray, Amen. ~OC
The Fabric of My Life
Today’s a new day! Woven into the fabric of my life is an understanding of what it is to suffer, and from that understanding flows compassion, love, mercy and grace. ~OC
Advice….
Today’s a new day! As I continue to run this crazy beautiful health journey, I am given a lot of advice from well meaning people regarding my health and how I am living out my journey. Some of the advice comes from friends. Some from people who have heard about my story, but really don’t know my story. I am thankful for some of the advice and some I could live without. This journey is my story and I cannot live and be something or someone I am not. I am sick and my health is declining day by day. That’s just a fact. But I wasn’t created to live a dying life. So I will continue to live a life of purpose. I will live the life God created me to live. ~OC
Live Out Your Legacy
Today’s a new day! As I continue to run this crazy beautiful health journey, here are some lessons I have learned along the way. I pray you will spend some time looking them ever.
Do you truly know yourself? Spend some time in self reflection. As a person of faith, I spend a lot of time in prayer asking God to reveal the good, the bad and how I can be the person that created me. I encourage each of you to find out what works for you.
Our words and actions make a difference. I personally want my life to be full of encouraging words and life changing actions. It’s simple to share a kind word or smile. Forgiveness is a beautiful gift for all parties. It brings freedom and healing.
What is the legacy you want to live out? As I continue to fight for my life, I have had a lot of time to reflect on my life. I really do not care about career or finances, even though those are important things. But as I move into the 4th quarter of my journey, I think about the time spent with my bride, family and friends. The memories made. I think about the many conversations with fellow patients as they walk through their own health journey. The encouragement, the laughs and tears. That is the legacy I want to live out. I encourage everyone to spend some time to reflecting on what legacy you want to live out.
Remember to laugh? Stop taking life so seriously. Do not allow yourself to get so caught up in work, school, ministry or life that you forget to laugh. When’s the last time you really laughed?
Sometimes there are no laters in life. People spend a lot of time saying “I will do it later.” What happens when they’re no more “Laters.” I encourage everyone to make sure your time on earth counts. Take in the amazing life around you. Not just the screen in front of your face. Stop focusing on quantity and spend more time on quality. Live well now. Let me asked you a few questions: 1). Do you have any “laters”that if you could do life over would become now’s? 2). Do you have some “laters” that have turned into “never’s”?
Here is one of my favorite quotes: “Open your eyes, look within. Are you satisfied with the life you’ve living?” ~Bob Marley
Here is my last question: How are you living? ~OC
Worthy
Today’s a new day!
For I am sure that neither death nor life, nor angels nor rulers, nor things present nor things to come, nor powers, nor height nor depth, nor anything else in all creation, will be able to separate us from the love of God in Christ Jesus our Lord.. ~Romans 8:38-39
A lot of things can try and separate us from God. Not feeling good enough, the business of life, the upcoming election and a host of other distractions. But we have to remember that these thoughts and distractions are only temporary and we do not have to give into them. If we let them consume us, we will easily become overwhelmed. But we can choose to open our heart’s to God’s truth. That is, we are enough, just by being us. We are not our past, nor do we have to return to our past in order to be loved, accepted, etc. we are enough – right here, right now – because our identity is in God, not in our weaknesses, and certainly not in the things of this world.
Then you will know the truth, and the truth will set you free. ~John 8:32
I read a story where a group of students were asked how much they thought they were worth. “A million dollars,” some of them said. “Infinity plus infinity,” called out another. But the truth is, we are worth more than we can possibly comprehend. We are way more than a number. God loves us so much that He sent His only son to die for us so that we will not die but have everlasting life with Him in Heaven.
So, I am going to pose a challenge for everyone – myself included: When those thoughts of not being good enough rise within you and you feel like you’re drowning in their lies, seek God. Remember His truth – YOU ARE ENOUGH. You were created in His image (Genesis 1:27), and He loves you. You do not have to change what you look like to be loved, and you may as well stop trying to earn grace because it has already been given to you. Find strength in God, and know He is with you wherever you go.
Though an army besiege me, my heart will not fear; though war break out against me, even then I will be confident. ~Psalm 27:3
We can find confidence in God today. We can treat ourselves with love and self respect because we’re God’s beautiful masterpiece (Ephesians 2:10). We can trust that we are enough. We can find peace, hope, love and confidence in God. I pray we will all lean into that truth today. ~OC
A Night With Dementia and Parkinson’s
Good morning! I pray everyone is sleeping and will see this after a great night sleep.
I can tell tonight’s going to be one of the nights. I wrote the following to share what those sleepless, hallucination filled nights are like. I wrote the following to give you a glimpse into my life with Dementia and Parkinson’s on most nights. ~OC
A Night With Dementia and Parkinson’s:
When it gets deep in the night
Where time seems to stand still
I can hear my heart beat and my thoughts screaming and that’s not always a good thing
It’s going to be one of those nights
Where sleep is a distant dream
Sometimes the voices get loud
And the hallucinations seem so real, I have to remind myself they’re not legit, just a short circuit in my brain
But through it all, I stand tall
Not allowing all those voices and thoughts to become real
I will keep standing tall
Lifting up my prayers
to the One who created it all
I will keep fighting, refusing to fall
choosing to embrace faith over it all
I will focus on the prize
Not all the junk, this disease
tries to steal from my mind
I keep fighting, gettin off the canvas
I keep running towards the One who
clears the cobwebs and reminds me
I am His precious child
I will keep standing tall
Lifting up my prayers
to the One who created it all
I will keep fighting, refusing to fall
choosing to embrace faith over it all
I will continue to fight through the
night, all the negative thoughts
that keep me from counting sheep
and getting a good night sleep
I will keep standing tall
Lifting up my prayers
to the One who created it all
I will keep fighting, refusing to fall
choosing to embrace faith over it all
The giants who try to bring me
down at night, are no match for
the One who used a boy named David to bring down one of the biggest
giants of all
I will keep standing tall
Lifting up my prayers
to the One who created it all
I will keep fighting, refusing to fall
choosing to embrace faith over it all
It’s time to be Brave
It’s time to keep Overcoming
It’s time to be Fearless
I am ready to Battle
Refusing to back down
I will keep standing tall
Lifting up my prayers
to the One who created it all
I will keep fighting, refusing to fall
choosing to embrace faith over it all
I am focused on the mission
Not going to backdown
Not going to run away
Going to walk with the King
I will keep standing tall
Lifting up my prayers
to the One who created it all
I will keep fighting, refusing to fall
choosing to embrace faith over it all
As the night slowly creeps on
I will press into the promises
of my King, thankful they get me
through another night, time to be
fearless and pray through it all
I will keep standing tall
Lifting up my prayers
to the One who created it all
I will keep fighting, refusing to fall
choosing to embrace faith over it all
As the night moves on and
My thoughts begin to wonder
the adrenaline starts flowing
and God’s angels get moving
the morning light will soon come shining
So, I will keep standing tall
Lifting up my prayers
to the One who created it all
I will keep fighting, refusing to fall
choosing to embrace faith over it all
Embrace Your “Can’t”
Today’s a new day! I used to tell people that the word “Can’t” should never be uttered from their mouth. I used to use the popular phrases “Just Do It,” and “Sleep when you’re dead.” Yes, I was that guy.
In today’s world, we are pushed and even encouraged to take on more and more, and we are seen as weak or strange when we are unable, or do not want to do so.
For me, this mindset came from my passion for life. It was fueled by a deep craving to achieve everything in life. It’s what made me intense, driven, competitive, and hardworking. It was who I was. Until I wasn’t.
As I have walked this crazy beautiful health journey for 22 years, it took me some time to come to terms with my “can’t.” Early on in my health journey, I constantly pushed through truly excruciating symptoms, like level 10 pain, exhaustion from weeks of no sleep, and unrelenting crushing fatigue even when I did sleep. I pulled myself together through constant life-threatening health issues, and participated in physical activities that I had no business attempting with a smile on my face (like running multiple marathons with no training) – while inside my body, my mind, and my spirit were dying a slow and agonizing death. Yet I still didn’t listen.
Why am I sharing all of this with you? Because I believe I could have spared my body a lot of pain and damage, my mind a lot of anxiety, if I had just learned to accept, or even embraced my “can’t” earlier in my health journey. I would have also spared my bride from a lot of worrying.
I want to share a few lessons I have learned along the way. I hope you take the time to read and reflect on them.
1). “Can’t” Is Not Weakness:
The biggest hurdle when it comes to dealing with “can’t” is intimately understanding on a heart-knowledge level that being unable to do certain things because of your illness does not mean you are weak, lazy, unintelligent, or unmotivated. This is where I was stuck for a long time. I had believed my whole life that if I couldn’t perform at peak levels, it must be my fault and that I just wasn’t trying hard enough. So, when my illness started to seriously affect my work quality in the career I had worked so hard to achieve, I compared myself to those around me, and told myself that I was just “too stupid” or “lazy” to do the job. At times I listened to the lies that I was worthless.
Hello Over-Achiever. I want to talk to you directly now. You burn-the-candle-at-both-ends doers. You know-you-can-conquer-the-world types. You did not choose your health issues. You didn’t work hard your whole life just to become a “lazy” and “unmotivated” on a whim. That’s not you and that’s not what is happening in your life. It’s not a matter of motivation, drive, desire, or ambition. It’s not a matter of not trying hard enough. It’s a matter of your body revolting against the true self of your mind and spirit. It’s a matter of your earthly vessel failing the real and eternal you that lives inside. The true and eternal you is still the same as it has always been: driven, motivated, intelligent, and strong. Once you accept this and understand the gulf between the two “yous,” you can take strides to get your body back on board so that a more collected, collective you can get back to truly living.
Accepting your “can’t” isn’t weakness; it’s actually strength. It means that you are strong enough to look your health challenge squarely in the face and get after the business of Overcoming. It means that you are brave enough to accept that your life right now must take an unexpected detour. It means that you are willing to admit your physical “can’t” so that you can open your mind and spirit to what you can and must do to regain your health. And the only way you can allow your focus to properly shift to healing is to first completely embrace your illness and your “can’t.”
2. “Can’t” Allows Healing:
Sadly, it took me several years to embrace this truth. I am encouraging you not to wait. Because if you don’t fully believe and fully accept that you are sick, you will keep running the rat race. But if you look deep in your heart, listen to your body, and know in truth that you are sick, then you can accept it. Embrace it.
I cannot stress this enough. Because until you wholly feel the weight of it, until you embrace it and believe it, you can’t get truly angry about what your illness is stealing from you. And until you get angry you cannot mentally, emotionally and spiritually prepare for the battle ahead of obtaining a full and accurate diagnosis, proper treatment, and hopefully better health. This is how coming to terms with your “can’t” sets you on the path to healing.
If you are in the early stages of your health journey, this next part may shock you. The medical system (at least in the United States) will not completely facilitate you regaining your health. Not at all. Unless you are exceptionally fortunate, your journey is not going to look like: get sick, see a doctor, get better. No, if you have a chronic or complex illness, generally speaking you need to prepare for battle. You need to arm yourself with knowledge and with the mental fortitude to be your own advocate. You need to prepare to fight for your life. You need to push for answers and drive the process. No one else will or can do it for you.
This is why embracing your “can’t” is so important. Because when you truly realize what you “can’t,” you get really, really angry at this invisible thief of life that is your illness. I don’t mean “bitter” angry, I mean “motivated and determined” angry. And you’re going to need that determination to drive the (sometimes grueling) battle that lies before you. And that drive to press forward in the battle is the only thing that will lead you to wellness.
It’s all you, Warrior! So get really angry at your “can’t” and resolve in your mind to do everything you humanly can to regain your health.
3. “Can’t” might be forever (But it’s not your identity): One of the more valuable pieces of advice I can share with you is that your “can’t” might be forever. That can be a difficult pill to swallow. But your “can’t “ does not need to become your identity. My life is much more than all the “limitations” I face on a daily basis. My life is full of hope, adventures and overcoming all the bumps in the road.
4. “Can’t” Makes Room for “Can”
Another critically important thing that coming to terms with your “can’t” does is that it makes room in your life for your “can.” Some of your “cans” may look something like:
1). I can make healthy, life-giving meals for myself to help my body heal.
2). I can research my illness for myself so that I have the knowledge to ask good questions at my appointments and to make educated treatment decisions.
3). I can maintain a positive attitude, despite how I feel.
4). I can make time for self-care activities that will help my body.
5). I can surround myself with people who encourage me in my health journey.
6). I can purposefully structure my life so that it supports wellness and healing.
7). Even though I couldn’t yesterday, today I can go for a short walk or bike ride.
8). This morning, I can rise early and sit peacefully to watch the sun rise
9). Right now, I can make positive choices to help with the symptoms I’m experiencing.
10). Don’t get hung up on committing to daily schedules of “cans” or expecting some type of minimum performance of “cans.” While it’s absolutely important to have bigger, more overarching “can” goals, embrace what you can do today and accept that tomorrow’s “cans” may look very different based on your health. Every day is a new opportunity to discover and put into practice the things you can do.
Here are some practical steps that can be used to work towards peace with your current “can’t:”
1. Pray
2. Journal
3. Reach out to family/friends
4. Reach out for professional help if needed
Coming to terms with your “can’t” may be difficult, but it’s so important and it opens the way for healing and wellness to come in time. You are unbelievably strong to live with your symptoms day in and day out and even stronger to accept and face such a challenge head on. Be encouraged that your “can’t” is just for right now and that nothing we face on this side of Heaven is forever. ~OC
Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal. ~2 Corinthians 4:16-18
Comfort Zone
Today’s a new day! Are you planted in your comfort zone? It’s so easy to live in our comfort zones. So many people say they want God to move in their lives, but when God shakes things up, so many people decide to hide under their covers. Our comfort zones are so comfortable. So predictable. So convenient. But remember, nothing ever grows in the comfort zone. So today, make the choice to step out of your comfort zone. ~OC