Believe Me…The Suffering Is Worth It

Today’s a new day! I’ve grown comfortable in my wilderness moments. The ups and downs of this crazy beautiful health journey is a place I no longer fear. I know how to operate here. I know how to encourage others that are walking through their own suffering . Because when you walk through enormous trials and God continues to show up in huge ways, you become changed by it. When you stand by people in places that conjure up feelings of death and God’s love swarms around you like it has in no other moment, you start to see even the worst pain differently. You start to see the beauty. The beauty that can be present even in suffering. That amazing message that I will never stop proclaiming because I believe in it with every fiber of my being. That God is present with us in the pain and the suffering of this world. And that He can use everything–absolutely everything–for our good and His glory. Even when it isn’t good in those moments of despair. Even when it feels like a million shades of awful. But remember, this wilderness place is never where our story end.

It’s a question that I have gotten a lot over the years, but I wonder if people actually really want the answer. The question is How could God allow me to walk through so much suffering? This is how I choose to answer that important question. Having a relationship with God and following Him for many years, I see more of His character each day I walk through this pain and suffering. I have experienced God’s outrageous love that has come through for me over and over and over again, in this long and winding road of suffering. I truly believe His ways and His timing are best for me. Let me ask you a few questions. Do you truly want an intimate relationship with God even if it means that enduring pain and suffering is part of the process? If it strips you of pride and idols and all the baggage that just continually brings us down? During my long health journey, I have learned that most people see the world through narrow eyes. They only see the temporal things. They see just what is in front of their face at any given time. And often what is staring back at them is so overwhelming–how could they possibly see anything else? But we have to look at the full picture standing in front of us. We have to think about how our stories ultimately ends.

Our God who gives us the choice of whether or not to love Him–because could we truly love Him if He didn’t give us that option? God is too big to accept that kind of response. He wants us. All of us. God wants us to love Him for who He is because He already loves us for all of who we are. And with the option to love Him also comes the option not to love Him. To go our own way and forge our own identity. We all have a will to choose, and we all at different points choose the wrong thing. And the world is broken and full of pain and how do we even begin to reconcile it all? How do we reconcile that God is still good? He promises to be our God. Our deliverer. Our Savior. Our refuge. Our strength. God promises that we are held safely in His everlasting arms. So why doesn’t He move those enormous mountains in our paths? Why does God sometimes make us take the slow and grueling climb to the top? The climb that eventually leads us up to the steepest peak where we can look below and see the landscape that was always there, but was just always over the next rise. The view that allows us to take it all in–the whole journey. To see both where we have come from and where we are going. The reality is, God doesn’t remove every single mountain in our path. He wants us to climb them. He wants us to put one foot in front of the other and feel our muscles trembling with every single step. We feel like we are drowning in our struggles and our sorrows and we cry out to Him for rescue, and the waves just get stronger. We forget that He already parted the seas for us. That our lives are not measured from one circumstance to another, but from His Son making the way for us and the forever that still awaits us. That there is another side to the mountain that we are climbing and the narrow road we walk is so much shorter than we could possibly believe. Every single step up the steep road strengthens our bodies and minds to continue the walk home. It can be hard, and it can be painful, and at times we fall over and feel like we could not possibly take another step. But it’s still the amazing road home. Will we make the choice to choose it anyway? Are you going to choose a road that is full of pain and sorrow and hurt? Because God shares throughout scripture, that suffering is part of the path. That suffering will always be a companion on our journey. That in this life we will be hated and slandered for God’s name and that by signing up to walk His way, we are signing up for some struggles and heartbreak. But would He ask this of us if it wasn’t worth it? Evil is running rampant throughout this world. This world can be full of so much pain and sorrow, and it is far too much to bear on our own. There are people all over the world struggling with more than we could possibly imagine, and why does God allow it? But would we know His goodness if He didn’t? Because there is a difference between allowing something to happen and condoning it. Approving of it. And if you spend anytime in God’s word, you will know that He so wholly and completely disapproves. He doesn’t like it anymore than us when we are faced with a huge mountain to climb in our journey –but He will use it. God will redeem it. He will show up and walk the road with us. Because God is good, and He wants the best for us. He can see more than we can and sometimes that means the hard road. Sometimes the hard road is the only road.

Evil is very real, but if we just focus on that part of life, we are missing the whole point. Because evil and wickedness don’t just offend God, they stand in complete opposition to God. He opposes it in every way–His perfect righteousness cannot stand for it. And He will get the final say over it. Ultimately, God will show just how much He does not approve of it. And the fact that God delays to set this world right is actually a mercy–it gives more time for people to come to Him. To choose Him. To take hold of the freedom that He gave us in the garden that we took and totally screwed up. Because as hard as it gets and as ugly and painful as the world may seem, God would not allow anything into our lives unless He knew that one day it would be worth it. That it is worth it when God leaves us in our tragedies. Because when He wages war on all that is evil, the fruit and beauty of our pain will be more than we could possibly imagine. The tears will turn into complete celebration because we will see–we will see what it was all for. Every sacrifice, every sleepless night, every painful moment and the utter senselessness of tragedy. Those very things will become our joy. We have to remember the full story. We have to remember that where we stand right now in this moment is not where our stories end. That our journey began in a garden full of promise and that the freedom that God gave us to love Him and choose Him, we took and turned it on its head and still He comes after us and promises to set it all right. God constantly gives us way more than we can handle, but He can. There is no situation or struggle that we walk into that catches Him by surprise. Including suffering. Including the worst of the worst. Including the darkest and loneliest nights. God is there. He never leaves us. God has already won. And the moments of our journey that we spend in the deep, shape us and allow us to become more like Him in the process. Because God would not lead us straight into the fire without knowing that it was worth it in the long run. And that is the beauty of it all. That as we step further into the darkness of pain and sorrow and still trust God in it, eventually He turns it all to light. The trials that turn into a testimony and a journey that becomes more than us being stuck in an impossible situation, but becomes about our Sovereign God and His strength and power that overcomes it. The deep that we despise becomes light for others walking their own path. The storms we walk into blaming God for and walk out of praising His name.

Remember, God has already won the war and is coming back to finish the final battle and get the final say over all the injustice and ugliness of this world. I, for one, would not have this deep relationship with God without the pain and suffering. Without walking through struggles. The darkest moments of my health journey have led me directly into His embrace. The storms that God allows even in all their heartache because He sees what we cannot see yet and knows that one day even we will find worth and meaning in those darkest moments. So the question becomes are we going to stand with God or against Him? Seeing the world as it is today and knowing what we know, are we going to choose God anyway? Even when all the pain and suffering doesn’t feel worth it, are we still going to trust that it is? Will we run straight into the deepest sea if it is the only way to get to God? Because over the steep rise of that mountain peak, there is beauty beyond measure. And just because we cannot see it yet does not mean that it is not there. Just like how the stars still shine in all their brilliance in the light of day, but only in the night sky can we take them all in. It is there. All the beauty and wonder and joy of our struggles. It’s at the end of this short and sometimes rocky road in the forever beyond. Believe me, it will be worth it. ~OC

“Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.” ~Isaiah 41:10

“God is our refuge and strength, a very present help in trouble.” ~Psalm 46:1

“Never will I leave you; never will I forsake you.” ~Hebrews 13:5

“And we know that for those who love God all things work together for good, for those who are called according to his purpose.” ~Romans 8:28

“Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me; your rod and your staff, they comfort me.” ~Psalm 23:4

Be Your Own Best Healthcare Advocate

Today’s a new day! I have been what my bride calls a “Professional Patient” for almost twenty-three years now. During this journey, I have encountered health professionals who appeared to be more concerned about egos and status than they did my well-being. For some medical providers, I was just a name on a file who happened to have very good health insurance coverage. They knew more than me because they had the title of Doctor attached to their name. Being so foreign to how the world of healthcare worked, Laura and I just went along with whatever the doctors or medical professionals directed us to do. They’re the professionals. They know what’s best for me. Right? In the famous words of Lee Corso from GameDay on ESPN, “Not so fast my friend.”

As Laura and I began to navigate this new world called the healthcare system, we found out that the most important voices were our own. If we did not stand up for my medical needs, who else would? That’s when we realized we needed to become not only our own healthcare advocates, but we needed to help other patients walking through their own crazy beautiful health journey. We recognized being a “Professional Patient” was actually a full time job.

Over the years, we have had to privately and sometimes publicly voiced some of my medical concerns. Which is not naturally part of my DNA. Or so I thought. But this is my life and my health we are talking about. As Laura and I have weaved our way through the world of health challenges, here are some of the most important pieces of advice I believe I can offer for those walking through their own health journey.

* Do not wait to speak up and share your thoughts and concerns. You know your body better than anybody else. If something doesn’t feel right or sound right speak up. If your medical team truly cares for you they will welcome this dialogue.

*Do not be afraid to get a second or third opinion. This is your life. We only get one.

*Do not be afraid to change doctors or hospitals if needed. Find a medical team that you truly feel has your best interest at heart.

*Have a great support system that can speak up on your behalf when you are unable to.

*Never stop learning about new treatments and medications that pertain to your health issue. Do not hesitate to share that information with your medical team. Once again, if your medical team cares for your well-being they will welcome those conversations.

*Take the time if your health allows, to help someone else navigate through this overwhelming healthcare system .

*Remember, it’s called practicing medicine for a reason. Your doctor and medical staff are human. Mistakes can happen. Allow those to be a teaching moment for all parties involved. Be kind and respectful, but firm.

*Be patient with yourself and your medical team. The healthcare system can be messy, stressful and complicated. Do not be afraid to show a little grace to yourself and others.

I really hope this helps someone navigating through a maze called the healthcare system. Be Your Own Best Healthcare Advocate. ~OC

Happy New Year!

Today’s a new day! Happy New Year! Welcome to 2025. Not sure about you, but I look forward with great excitement, wondering what God has planned for me this coming new year. What new opportunities will reveal themselves? What new lessons will present themselves? A new year is full of endless possibilities.

As we gear up for a new year, I believe it’s important to take a little time to reflect on the past year. Doing this I believe helps to view each year as a season, understanding that God is Sovereign and has new seasons of experiences and growth to make us more like Him. I can testify 2024 was full of many different emotions. There were moments of grief, but there were also times of joy and happiness. A year filled with many memories and lessons.

As we take some time to reflect back on 2024, it helps us to remember that God is in total control and that we are constantly growing as His children and that He knows the plans He has for each of us. Plans of new wisdom, insight and understanding that He wants to impart to us, if we will allow Him to.

It also gives us an exciting and fresh new outlook of the coming year and enables us to leave the past where it belongs. Not that we forget the past but learn from it and move forward into our present future with open hearts and minds to receive whatever God has for us.

With that said, here are some ways we can look forward to in 2025.

New Beginnings: Start out 2025 with a fresh point of view of new experiences, opportunities, memories and blessings. Have an open mind and heart to where ever God may want to take you with full assurance and confidence that He is always with you. (Matthew 28:19-20)

New Possibilities: There are no limit to what God can do in your life and nothing is impossible with God. God opens doors that no one can shut and also closes doors that no one can open. The possibilities are endless with God. (Philippians 4:13)

New Plans: We walk into 2025 like a blank canvas. Be in prayer for what God has planned for you and be willing to walk by faith in obedience as you follow His leading. Remember that His plans are always for good and not for evil to give you a future and a Hope. (Jeremiah 29:11-13)

New Purpose: As you look ahead, God always has a plan and a purpose for what you will go through and experience. Remember that God always has a reason for what He allows in your life and through it you can trust Him completely. (Proverbs 1:3-5)

New Provisions: The Bible says to not worry about tomorrow for tomorrow has enough worries of its own. In 2025, trust in God who knows everything you need. He is our Hope and our Provider. God is faithful and He will do it. (Matthew 6:1-33)

New Growth: When we are willing to let go and let God work in and through us, He will always stretch us and grow us. It is an important part of the growth process. I pray we will all continue to grow in our relationship with God and in His Word. In 2025, allow God to mold you and make you pliable in the potters hand and then watch the master craftsman work in your life in amazing ways.

New Wisdom: With new experiences and new lessons comes new wisdom and insight. Always make it a priority to seek out wisdom as hidden treasure or fine gold. In Proverbs it says that it will be like a garland of grace around your neck and honor you and present you with a crown of splendor. (Proverbs 4:7-9)

Renewed Peace: As you go through new experiences and new adventures whether they are good or bad, my encouragement is to keep your eyes fixed on God and He will give you rest and peace, because He is our peace and loves us and cares for each of us deeply. (John 16:33)

As we spend some time in reflection about 2024, let us give thanks to God for getting us through another year as we look forward to what He has for us in 2025 and praise Him that He is faithful and worthy to be praised. ~OC

What If…

Now to him who is able to do far more abundantly than all that we ask or think, according to the power at work within us, to him be glory in the church and in Christ Jesus throughout all generations, forever and ever. Amen. ~ Ephesians 3:19-20

Today’s a new day! I don’t understand my iPhone. I don’t understand how hundreds of thousands of pieces of information can be embedded in a tiny chip you can barely see. Or, how, at the touch of a finger, push of a button, or verbal command the entire world can be opened before your eyes. I do not know how, I may not understand, but I do know when I learn how to use my phone to its fullest I can do amazing things that almost make me look creative, even smart.

Likewise, there are so many things I don’t understand about my God, this beautiful, amazing, wonderful Triune God I serve and love. And just when I think I know Him and what He will do He surprises me. The Bible says His ways are higher than ours and His thoughts are deeper than ours. I don’t understand how He can know every person on this earth by name, or how He knows the number of hairs on my head. In my case, that’s not a hard one.

I don’t understand how He can create life out of an egg or even nothing at all! I don’t understand how He can touch a body and heal it of cancer, make the paralyzed walk, the blind see, the deaf hear; but He can! All these things God can do, and so much more! I don’t have to understand how, but just trust that He can!

What if today’s verse became our mantra for today and every day? What if, every time we were tempted to worry, or become anxious, or bite our nails, we recalled this important promise? What if we looked at all the things we or a loved one is facing presently and remembered these words? Instead of thinking all is lost or how impossible something is, said to ourselves; …but God can do abundantly more… Prayed to God; Dear God we need you to do exceedingly, abundantly more in this situation than we could dare think, ask, or imagine! What if? ~OC

A Day In The Life

Today’s a new day! Ever wondered what a day living with chronic illness and health challenges looks like? Today I will take you on a journey into the twist and turns of a day living with long-term health issues.

From the moment I wake up, I’m already facing barriers. My chronic illnesses make it difficult to get going. For those not aware, based on my health issues, I have slept in a recliner for about the past twenty years. It’s just too hard to get in and out of a bed. Every day is a balancing act where I have to be mindful of my energy levels and make sure that I’m taking time to rest. 

An Introduction To My Health Journey:

In 2002, I was diagnosed with multiple forms of arthritis. That year was filled with a lot of experimental treatments. Then in 2003, I was diagnosed with cancer. Thankfully I was able to have surgery to remove the tumor and never had to walk through the struggle of chemo and radiation. Let’s speed things up. From 2007-2024, I have been diagnosed with Parkinson’s, Myasthenia Gravis, Gastroparesis, Type 2 Diabetes based on all the steroids, had a stroke, diagnosed with cluster headaches and just a few months ago was diagnosed with early onset dementia. That’s my rap sheet!

What My Night and Morning Looks Like :

Based on my neurological issues, I am up and down most of the night. So I never wake up feeling rested. I wake up stiff, so I need to move around and take a host of medications in the morning. Of course meds have side effects, so that can be difficult.

Since I deal with gastroparesis, eating has been a major issue for many years. That makes taking in fluids and food a huge and painful task. So every meal, every day is an adventure.

My mornings are dedicated to spending time with God, journaling and trying to exercise. For me, walking is the best type of exercise for me. I never know how many laps I will be able to get in. I have to be careful not to overdo it. If I do overdo it, my body will pay for it the rest of the day. I spend some time each day for reflecting on life and looking at how I can hopefully encourage others as I continue running this journey. These days, I tend to take a lot of short cat naps. Over the last year, the pain has increased, so that’s a daily struggle. Unfortunately, pain meds and gastroparesis do not really care for each other. So most days, I just live with the pain.

One thing I choose to do everyday is get dressed. I never lay around in my sleeping clothes. It makes me feel good to get cleaned up and get dressed.

My favorite part of any day is spending time with my bride and friends that choose to reach out. Spending time with loved ones is very important to me. I love sitting around and enjoying great conversations. Also, I try to read every day. My love for reading has been challenging the last few years, since it’s hard to stay concentrated. I also spend time listening to music each day. Music can make everything a little bit better.

In the evening, Laura and I like to talk about our day and possibly watch a little television. Based on my day, my bedtime varies. But since I sleep in my recliner, I can fall asleep anytime my body and brain allows me to. Every night is an adventure.

What I consider a daily self-care must do:

Writing about what I’m grateful for in my journal helps me remember the positives, even on those really hard days. Living with long-term health conditions can be exhausting and can be very negative if you allow it to get on top of you. 

Several people have asked if I had one day without pain and could step away from my health journey what would I do?

I would lace up my running shoes and go for a very long run. For those new to my journey, in my healthier days I was blessed to complete 350 marathons.

Another question people asked me a lot: Is there anything I would like to share about daily living with chronic illness and life challenges?

There’s a lot, but I do not want to make this post any longer than it already is. One of my hopes is, people will realise that we never know what someone else is really going through. So be kind and respectful. It doesn’t help when people tell me how I should be living out my health journey. Just be supportive and walk through this journey with me.

By sharing what my day to day life is like, I hope I can raise awareness of the bigger picture as people only see snippets of my journey online or see me on my best days in person. I am not sharing this for pity or sympathy and I am not complaining. I just want to give you some insight into this crazy beautiful health journey.

The Takeaway:

Writing about my day living with chronic health issues has been quite eye opening to me to see how much life has changed over the years. I have a strong need to celebrate the love and support I have received over the years from family and friends. Writing this post has let me see how faithful God has been to me, as I continue to run this beautiful journey.

I hope that you have found this post to be a helpful insight into life with with long-term health issues. There are so many people walking through a tougher battle than me. So if you know someone dealing with chronic illness, take the time to reach out to them and support them on their journey. ~OC

Singing Hallelujah

Today’s a new day! As I have walked this crazy beautiful health journey for over 22 years, I’ve had a lot of time to think about the journey. These thoughts have been like a blueprint for my journey. A journey that is radically different to the one I envisioned 22 years ago.

When I received my first diagnosis back in 2002, I was told after the shock of the diagnosis I would deal with anger and depression. Those well meaning health professionals were wrong. As crazy as it may sound, I feel like this health journey is quite possibly one of the best things that has ever happened to me. Yes, the journey has not been easy. All the surgeries, treatments and hospital stays have not always been pleasant. It’s not the blueprint I would have written for my life. But it has made me really re-evaluate a lot of the things I once held close. It’s made me appreciate my family and friends so much more and realize that possessions mean nothing when you’re faced with the real possibility of dying. Most importantly, it has made me so very aware that the God I believe in and serve is so much bigger and so much closer to me than I ever could have imagined.

Throughout history God has had many names, one of them being Immanuel, meaning ‘God with us’. I have never known that to be more true than I have the last 22 years and counting. Sometimes I wonder why I was chosen to walk this journey. But then God blesses me with a beautiful interruption and I am reminded that God has a purpose for my journey.

I know that God’s ways are higher than my own and there has been immense good that has come from this crazy beautiful health journey. God has used my health journey to bring me and others closer to Him. To bring encouragement.

As I walk through this journey, woven into the fabric of my life has been an understanding of what it means to suffer, and from that understanding has flown love, compassion and mercy.

During this journey, I have continuously leaned on Psalm 139:15-16, 2 Corinthians 4:16-18 and Hebrews 13:5. I will let you research those scriptures on your own. While this health journey and everything that has come with it may seem chaotic, I know there is purpose in this crazy beautiful journey. Not my purpose, but the purpose of a God who holds the universe in His hands… who knew me from the moment I was conceived in the womb…. who has walked beside me every day of my life. I may not understand everything that has happened along this journey and maybe on this side of Heaven I never will, but I know that whatever happens, God is in control and he has promised he will never leave me or forsake me.

I don’t know about you, but that gives me a tremendous amount of confidence that everything is going to be alright.

Because of God’s goodness I will sing Hallelujah, Hallelujah. Singing Hallelujah because I am living a blessed life. Singing Hallelujah because my bride who loves me and is standing strong with me on this journey. Singing Hallelujah because I have amazing family and friends who continue to stand with Laura and I during this unending journey. Singing Hallelujah because God walks beside me and fights the battle for me. He commands his angels concerning me and they guard me. God is my fortress, my hiding place while the battle rages around me. He stands between me and my health issues that would seek to take my life and says to the sickness “no further… you will not harm him”.

Singing Hallelujah because I am still alive…. and hopefully will be for many years to come.

There are so many reasons to sing Hallelujah…. so many…. and as long as I have a heartbeat you will hear my Hallelujah.

Whatever you see in me that you think is good comes from Heaven.

It’s not my doing…. it’s His. ~OC

Challenges of Life

Today’s a new day! The challenges of life can leave lasting marks, but that does not always have to be a negative. Sometimes our biggest struggles bear the richest harvest and beautiful unexpected opportunities. These challenges can give us a small glimpse of God’s beauty, design and purpose in ways we could never imagine. ~OC

God is so Good

Today’s a new day! As Laura and I have traveled this crazy beautiful health journey, we have continually declared “God is so good to us.” It isn’t about material wealth or any signs of success. Laura and I live a very simple life. But some of the greatest blessings in life are not the ones you can hold or see, but the ones you carry in your heart. ~OC

Take Heart

Today’s a new day! One of my favorite verses is “In this world you will have trouble. But take heart! I have overcome the world.” – John 16:33.

What does that verse really mean? One of the biggest lies many Christians are told when they start following God is everything will be perfect and they will never deal with the storms of life. That if God is on our side, nothing can go wrong, and all it takes is a quick prayer to get us out of a sticky situtation. Just like a sitcom on tv. All is good in 30 minutes. But we live in reality and we know that’s far from the truth.

Nowhere in the Bible are we promised a perfect life on earth. Life will be filled with struggles. We will all experience challenges along our journey. Those challenges will look different for each of us. Some will deal with health issues. Sometimes those health challenges will last a lifetime.

The point is that even though we all experience challenges in this journey called life, Jesus has overcome the world. As I mentioned earlier, we will encounter painful moments in this world, but there is a world beyond this world. A place called Heaven, where we will experience peace and wholeness. A place where there is no pain, disease, war, hatred or confusion. Heaven is paradise.

When I experience moments of hopelessness with my own health, I take a moment to think about God’s goodness and promises. I also take time to remember that I need God more today than I did yesterday. I may not understand everything going on in my crazy beautiful health journey, but God does. And for that I am thankful.

I am often asked why would God allow me to walk through so many years of suffering? Of course I do not have all the answers, but I have chosen to trust God in the mist of the storms. To look for every opportunity to help encourage everyone walking through their own challenges. I have decided not to spend all my precious moments researching Google looking for the latest medical or natural cures.

I’ve accepted that I will never fully understand every inner working of my body at any given moment. No one has it all figured out. Not even the medical world. That doesn’t mean I shouldn’t do everything in my power to pray and strive for better health. It just means I will not become consumed by my current health challenges. They are not my true identity.

Nothing gives me more peace and comfort than my relationship with God. Just like any personal relationship takes work and trust the same goes for our relationship with God. It’s a daily commitment. In life we so often stumble for answers. We jump from different diets, different relationships and different careers looking for the answer and looking for a way to make us feel good and worthy. There is nothing wrong with any of those things, but nothing will ever give us as much peace and purpose than a relationship with God and the knowledge that even though the storms of life can be hard, He has already overcome the world.

I know this was a long post, but I pray it brings you hope as you walk through the ups and downs of life. Blessings to all. ~OC

Never Give Up

Today’s a new day! Life can be hard. There are times when we feel like giving up. The weight and challenges of the world can feel overwhelming. But never forget, you are stronger than think. We read in Philippians 4:13, that we can do all things through Christ who strengthens me. This isn’t just a feel good verse; no it’s a promise. No matter how hard life gets, you have the strength to keep moving forward. Every challenge you face is an incredible opportunity for growth. The journey might be hard, but it’s forming you into a stronger, more resilient version of yourself. Keep moving forward, even when life is difficult because every step forward brings you closer to your breakthrough. To your purpose in life. Keep holding onto hope. Keep the faith and the strength that you were created with. Remember, you have what it takes to keep persevering. Better days are ahead. Do not miss the lessons during the tough times of your life. Never give up! ~OC

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