Tag: Unity

Life With Chronic Illness

Today’s a new day! What do you do when you don’t get better?”

I became chronically sick twenty-three years ago, after being diagnosed with several types of crippling arthritis. It would be a year later after taking many experimental medications, that I was diagnosed with a rare form of cancer. Then over the years, I would be be diagnosed with the following: Young Onset Parkinson’s, Myasthenia Gravis, Gastroparesis, Covid Long-Hauler, Complex Headaches, and recently Early Onset Dementia. Oh, and a stroke several years ago. It truly has been a crazy beautiful health journey.

I became a Christian when I was ten years old. I will be the first to admit, I did not always live the Christian life in my early teenage years. When I first became ill, some people in the Christian community began to weaponize their faith against me. They would say that I wasn’t faithful enough, or that I must have some type of unresolved sin in my life. Sadly all these years later, I still have some Christians screaming that in my ear on a weekly basis. At times over the years, I felt judged and disliked by many in the Christian community. That is never how Christianity, or any faith, should be. For me, it wasn’t just what conversations were being had—but also how.

The sad part is that the people who wanted me to not lose faith tried to make it harder to connect with God and other Christians. Some people over the years have made the excuses, “Well they mean well.” I truly do not believe that. I believe it actually shows their true heart. I am thankful that during this crazy beautiful health journey, God has surrounded me with some amazing people who have helped me through this difficult season. I am also thankful I have never lost my faith during this journey.

As I continue to run this crazy beautiful health journey, my goal is to not allow those negative voices to have any influence on my life. I also decided early on in my health journey to help others walking through their own health journey.

I share all this because I know that I’m not alone, and I want others to know that they aren’t either. When you’re feeling attacked, beaten up, remember that God loves and is with you. I am sorry if anyone has made you feel like that isn’t the case. What people believe is their choice, but no one has the right to weaponize their faith. That sort of human hurt harms those in the disabled/chronically ill community that may be struggling with their faith.

In Isaiah 54:10 we read, “Though the mountains be shaken and the hills be removed, yet my unfailing love for you will not be shaken nor my covenant of peace be removed,’ says the LORD, who has compassion on you.” Being chronically ill can very much feel as if everything is being shaken up and changed—at least that’s how I have felt at times over the years.

I no longer know what each day will feel like, physically, let alone have a clue about what I may be able to do in the future. But God’s love doesn’t change when we are in tough situations (or any situation.) He is still with us. He knows the truth of our situation and still loves us.

Some passages that resonated with me, and may be appreciated by those reading this post, are those about us being fearfully and wonderfully made (Psalm 139: 13- 14), Psalm 86-15, and Ephesians 1:5-6. That is about YOU. You are loved beyond words. Think about John 3:16. That’s not just for the able bodied and minded, it’s for ALL of us.

If you can relate to anything I have written, the following are a few things that have helped me. Just remember this journey is different for everyone.

*Don’t bottle things up. I encourage everyone to find a trusted friend, pastor, counselor or support group to share your feelings with. It may be difficult at first, but I promise you’ll be glad you did.

*Take this current season of life slowly. Remember, life is a marathon not a sprint.

*Do not give up on the Christian community or the Church based on some misguided people. Remember, there are no perfect people or churches.

*Find out what works for you in your journey with health issues and your walk with God. One size doesn’t fit us all.

*Spend time in the Bible and listening to worship music. Both have helped bring peace and clarity to my life during my health journey.

* Remember, sometimes God does not give us quick answers to our prayer request. I encourage you to embrace the lessons God is trying to teach you during this difficult season. All of us whether healthy or chronically ill have a different journey. If chronic illness is currently part of journey, you are just as worthy as anyone else. Please embrace that truth today.

I hope and pray this post will encourage and challenge everyone who has taken the time to read it. Thank you! ~OC

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Overcoming the Storms

Good Morning! Here is another “Lost Writings from OC.” This was written in May 2019.

Today’s a new day! As we walk through this journey called life, we will experience different storms. As I have walked through my own crazy beautiful health journey, I have learned a thing or two about overcoming the challenges of life. Here are a few of those lessons.

1. Spend time in God’s Word daily.

The Psalms offer great comfort for storms. Consider reading one Psalm per day the next time you face a storm.

2. Keep worshiping God.

Keep a worship playlist going while you drive, work or exercise. I often have worship music playing in my hospital room.

You might feel tempted to neglect corporate worship with others as you navigate through the storms. If possible, try to stay plugged into your local church or life group. Keep worshiping with others. This can unleash your faith and give you strength.

3. Spend time with encouraging people who will point you to God and give you hope.

We were not meant to navigate life’s storms alone.  One of the most powerful secrets for overcoming the storms of life is finding support from other people. You will be amazed at the people God might use to help you through your season of challenges.

4. Make time for life-giving activities.

We often neglect our hobbies and passions in difficult times. More than ever, you need time to decompress during life’s storms.

Carve out time to pursue your passions and hobbies. Make time to take a walk, or pursue your favorite activities.  These creative diversions are essential for calming your limbic system and overcoming the storms of life.

5. Take care of your body.

As much as you can, aim to eat well, drink plenty of water, keep your body moving, and rest as much as you can.

6. Ask other people to pray for you.

Those prayers can help you overcome the battles surrounding you.

7. Keep talking to God.

He is with you. Talk to him all day.  Ask for his help. He wants to carry you through your storm.

8. Find refuge in the shadow of the Lord’s wings.

Imagine a baby bird curled up in the shelter of its mother’s wings. There is no fear in this place.

Psalm 57:1 reads, “Be gracious to me, O God, be gracious to me, For my soul takes refuge in You; And in the shadow of Your wings I will take refuge until destruction passes by.”

Every time you feel battered by the storms of life, imagine the Lord’s arms holding you.  As I continue to run this crazy beautiful health journey, I often imagine God holding me close. This can give you strength, peace, comfort, and courage.

Remind yourself that God is your hiding place. Ask him to care for you and comfort you.  He wants to be your source of comfort.

9. Watch for God’s movement in your life.

Psalm 36:7 reads, “How precious is Your lovingkindness, O God! And the children of men take refuge in the shadow of Your wings.”

Ask God to help you become more aware of his movement in your life.  Instead of looking only at the storms surrounding you, look to the Lord.  Watch for what he is doing. He is with you. He will not abandon you during the storms of life.

When life is tough, I often take a few moments before falling asleep at night to reflect on the ways God worked in my life throughout the day. I reflect on the entire day, from the moment I woke up until the moment I lay my head down. Often, during those times, God shows me where he was working. These moments encourage me and remind me that God is with me during every storm.

10. Soak in the truth about God’s love for you.

Overcoming the storms of life begins by recognizing that God is always good, and his love for us is unending.  Resist the urge to take offense or believe that God does not love you.  Instead, soak in the truth about God’s love for you daily.

You are the apple of God’s eye. You are his beloved child. He is a good Father, and he wants to care for you as you navigate through the storms of life.

I pray as you continue to walk through the storms of life, you will continue to lean into the amazing promises of God. ~OC

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Happiness Giver

Today’s a new day! I believe we all want our lives to be focused on things that matter. Deep down we all understand that constantly pursuing our own happiness leaves us with little fulfillment in life. And we also know that when we help others, we experience happiness in a real way. Serving others just makes us feel good.

We thrive in community and I believe part of our happiness is directly related to the strength of our relationships. That’s why serving others and giving with joy is one of the secrets of experiencing true happiness in this life.

At the end of our lives do we really want to be known for our book collection (I really enjoy books) or how great we were at sports or the arts? No, I think we will want to be remembered for how we served others and for being a happiness giver.

That’s why now is the time to break through our fears and think about how we can use our gifts, talents and skills to help serve others in our communities and beyond. ~OC

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Dear Dementia,

Today’s a new day! As most of you know, I was diagnosed with Young Onset Dementia caused by Parkinson’s last September (2024). As I have walked through the past few months, I have thought about this diagnosis and what it means for my future. So I thought I would write a letter to dementia. Hopefully it makes sense.

Dear Dementia, I often wonder if you were a person, what would I say to you? So often dementia tries to fill me with anger, sadness and frustration. But thankfully, I am able to fight off those emotions most days. But some days all those emotions get the best of me.

I think I’ll start with I am a little frustrated with you dementia. I dislike that you’ve made sharing my thoughts and having conversations a little tougher these days. I am a little frustrated that being social has become a bit more difficult for me. Since I am in the early stages of dementia, I have learned a few tricks to hide my struggles from people. But I cannot hide those struggles from myself and that makes me frustrated at times.

I am frustrated that you try and fill my days with grief, loneliness and sadness. I am saddened that some friends find it too difficult to call or visit because they do not know what to say. I am frustrated that you’re trying to take away my memories too, with you being all consuming; you sometimes make it hard to remember how things were before you.

But dementia despite all the frustration sadness and grief, I still choose to live with hope and embrace every moment of life. My bride and I still talk about future plans and trips. We will not allow you to become our identity. We celebrate those days I feel like my old self. Almost like the fog has been lifted. I embrace those days because they will not always be around. I embrace simple moments with family and friends a little more these days. I am thankful for those friends who still choose to treat me like me. Please keep doing that. Even on those days, I might not totally seem like the old me.

I am thankful that God continues to walk this journey with me. He is bigger than dementia and all the other health issues trying to take me out. They may get the best of me some days, but they will not get the victory. No, that belongs to God and I will continue to hold onto that truth.

Dear Dementia, in some ways you have taught me the true value of unconditional love, and I will use that to defeat you. I will never give up on loving my life, loving those in my life and never ever give up on beating you. You’ve brought pain and suffering to so many people’s lives, snuck in and attacked the most vulnerable. But by working with medical researchers and families affected by your cruel actions we will learn new ways to defeat you. One day I will be part of ending you, as you will never be able to take away the unconditional love that fills me up and guides me along this crazy beautiful health journey. ~OC

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My Why

Good Morning! Here is another “Lost Writings from OC.” This was written in 2020.

Today’s a new day! Writing has been part of my crazy beautiful health journey. Writing has allowed me to see life in a different way and experience healing in many parts of my life. Writing has allowed me to experience the following:

God has put me on this earth to love and serve others. To encourage others. To hopefully inspire people to think about their own life journey.

God created me to truly experience life. To embrace the good…and bad moments of this journey. I am here to learn. Just a little advice, we should never stop learning.

I am here to overcome my physical limitations. I am here to transform inspiration into action.

I believe in living a peaceful life. Peace within myself. Peace with those I have disagreements with.

I no longer expect or demand to be understood. I understand myself. Most importantly, God understands me and still chooses to love me.

I am not alone when I connect with God and the amazing people He has put in my life. Those relationships fuel me.

I ache and grieve alongside the pain and suffering of others. I empathize with those who suffer.

I seek to overcome suffering by finding its meaning, purpose and lessons.

I no longer force my beliefs on others. I choose to show respect to those with different views, opinions and beliefs.

I choose not to be selfish. I love sharing and helping others. Serving others helps me experience God’s love in a meaningful and real way.

I choose to let God write my story, even though there are times I want to steal the pen.

I choose to be awake. To be present. I am called. I feel God’s presence within me. I can truly be me because He lives in me. ~OC

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Sunday Bloody Sunday

Today’s a new day! On March 7, 1965, in Selma, Alabama, approximately 600 peace loving advocates set out to march to Alabama’s capital, Montgomery, to demand voting rights for Black Americans in the face of unfair, discriminatory laws and practices.

Sixty years ago, black voters faced numerous obstacles when trying to register to vote, including literacy tests, poll taxes, intimidation and brutal violence. Civil rights leaders organized this march to demand an equal opportunity to participate in American democracy.  

As the marchers peacefully crossed Selma’s Edmund Pettus Bridge, local police, vigilante groups and state troopers violently attacked them.

Many marchers were hospitalized as a result of these brutal attacks, which was televised nationwide and became known as “Bloody Sunday.” In addition, the events leading up to this day and the weeks after resulted in the deaths of three civil rights advocates.

The brutality of Bloody Sunday highlighted the urgent need for change and galvanized support for the Civil Rights Movement across the country. Two weeks later, Dr. Martin Luther King, Jr. and 3,200 civil rights protesters completed the 54-mile march from Selma to Montgomery.

Thanks to the efforts of those brave freedom fighters, historically disenfranchised Americans were able to fully participate in the democratic process for the first time.

Sadly sixty years later, there is still a lot of work to do across America to protect and expand the freedom to vote. The fight is not over. We, the Freedom Fighters of today must continue to speak up and fight for justice.

So on this 60th anniversary of Bloody Sunday, let’s remember the legacy of all those who fought for a truly inclusive democracy and pledge ourselves to supporting the continuing fight for the freedom to vote and for equal rights for all Americans. ~OC

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Men’s Groups…Not A Fan

Today’s a new day! I am often asked about my thoughts on Men’s Bible Studies and men’s gatherings. At first I chose not to respond, but then I thought I should be upfront and honest.

There are really two reasons I no longer attend and to be honest believe in men’s groups. Let me just say, the following is based on my experience only. If you have had great experiences with men’s groups, that’s awesome. I would encourage you to continue to be part of them.

The first reason I no longer attend men’s groups or events is, I have never felt part of any men’s groups. I have tried connecting with some of the guys from these groups with little to no success. I have found most men’s groups are mainly concerned about making the “right connections” and I guess I do not fit that criteria. Also, the only time I hear from most of these guys is when I post something on social media they do not agree with. Then all the sudden they want to be involved in my life. Which leads me to my second reason.

The second reason you no longer see me at these gatherings, is because several men in those groups have shown their true colors and I cannot be part of that kind of foolishness. What do I mean? Several men in the men’s groups I was connected with have on more than one occasion, questioned my faith and character because my political and social beliefs do not align directly with theirs. But to be honest, I am not mad at them because they just revealed what most of the men in these group are thinking, but keep to themselves.

So, I will continue to keep my distance from gatherings where I am not free to share my thoughts and opinions, without my faith and character being questioned. I am thankful for those friends and groups who choose to respect opinions that differ from theirs. Those are the groups I choose to support. ~OC

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It’s Time

Today’s a new day! As we continue to celebrate Black History Month, I wanted to share the following with you. ~OC

Today, It’s our calling to support our friends, colleagues, and family members and to stand against senseless acts of violence and systemic racism. We need each other now more than ever if this nation is to ever truly move forward and heal the broken systems established years ago.

It’s time we stand in solidarity as individuals and communities to change a system that has been filled with racism for way too long.

It’s time we educate ourselves.

It’s time we change our broken systems.

It’s time we respect our black brothers, sisters, and People of Color.

It’s time we demand equal rights for all.

It’s time we allow the destruction for powerful reform to take place.

It’s time to accept and respect each other regardless of our differences.

It’s time we stopped using hate to conquer hate.

It’s time we truly love our black brothers and sisters. And not just for the month of February.

It’s time we bring real change to America and beyond.

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America

Today’s a new day! So many thoughts swirling around, as I see everything that is happening in America and around the world. I definitely do not recognize America at this moment.

I love the United States of America, but I do not think of it as a country that is united at this time. It’s not the America that most of us grew up in or that the rest of the world looked to for hope.

What does the world see when it looks at America in 2025? What do I see? What do you see?

How do the choices each of us make every day affect, influence, impact the future that is before us, the direction America is headed and the world that upcoming generations will inhabit?

What combination of events and attitudes and circumstances has brought us to this point in our history?

How did we get to this point, to this current version of America?

I have far, far more questions than answers as unprecedented events unfold in our nation and around the world. I still believe in America, in the sense that there are so many people I care about so very deeply that are standing up for ALL people who are currently living on American soil. My concern is at heart-wrenchingly-high levels for the well-being of everyone who calls America home this very hour and for those living in every part of this beautiful world.

How do we move past this era of woeful words of hatred and division, how do we work together for the better world that I do believe, that I have to believe is possible? How do we shape a brighter future for all, a future of connection, compassion and peace? Those are some billion dollar questions for sure.

I will continue to pray for brighter, more stable and peaceful days for America and the world. I hope you will join me in this prayer. ~OC

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Our Voice

Today’s a new day! Sometimes I think I should stay silent and just keep the peace. But then I think if I choose to stay silent, will I cease to do good. I believe if we adhere to respectful silence, we provide space to those who are pushing forward false and harmful ideas. We create greater opportunity for the voices of error and harm to be heard and believed. God has gifted some of us with prophetic voices, ones that can issue a clarion call to the things that are true and good and pure and right and beautiful. We need to pray for those with this gift and encourage them to be brave and bold, yet marked by grace, love, humility, and kindness as they seek God for how to steward this gift. For others, we can each be loving truth tellers in the relationships and situations in which we have a platform. That may be within our families or our friend groups, within our schools, churches or our work places, and even on social media. No doubt, we will sometimes be met with criticism or rejection, even if we speak prayerfully and intending to speak peaceably. Jesus, who is the ultimate truth (John 14:6), likewise experienced rejection (Isaiah 53:3, 1 Peter 2:4). But if our goal is the well-being of others, then we will lovingly speak truth to them and risk offending them, for true life and blessing only come by way of truth. Edmund Burke said, “The only thing necessary for the triumph of evil is for good men to do nothing.” In keeping silent, we say nothing. And in our silence, perhaps we have ceased doing good. You and I have a voice. We have a platform, be it large or small. May God give us wisdom to know how to use our voices to bring honor to him and to bring good to others with wisdom, love, and kindness. ~OC

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