Life With Chronic Illness

Today’s a new day! What do you do when you don’t get better?”

I became chronically sick twenty-three years ago, after being diagnosed with several types of crippling arthritis. It would be a year later after taking many experimental medications, that I was diagnosed with a rare form of cancer. Then over the years, I would be be diagnosed with the following: Young Onset Parkinson’s, Myasthenia Gravis, Gastroparesis, Covid Long-Hauler, Complex Headaches, and recently Early Onset Dementia. Oh, and a stroke several years ago. It truly has been a crazy beautiful health journey.

I became a Christian when I was ten years old. I will be the first to admit, I did not always live the Christian life in my early teenage years. When I first became ill, some people in the Christian community began to weaponize their faith against me. They would say that I wasn’t faithful enough, or that I must have some type of unresolved sin in my life. Sadly all these years later, I still have some Christians screaming that in my ear on a weekly basis. At times over the years, I felt judged and disliked by many in the Christian community. That is never how Christianity, or any faith, should be. For me, it wasn’t just what conversations were being had—but also how.

The sad part is that the people who wanted me to not lose faith tried to make it harder to connect with God and other Christians. Some people over the years have made the excuses, “Well they mean well.” I truly do not believe that. I believe it actually shows their true heart. I am thankful that during this crazy beautiful health journey, God has surrounded me with some amazing people who have helped me through this difficult season. I am also thankful I have never lost my faith during this journey.

As I continue to run this crazy beautiful health journey, my goal is to not allow those negative voices to have any influence on my life. I also decided early on in my health journey to help others walking through their own health journey.

I share all this because I know that I’m not alone, and I want others to know that they aren’t either. When you’re feeling attacked, beaten up, remember that God loves and is with you. I am sorry if anyone has made you feel like that isn’t the case. What people believe is their choice, but no one has the right to weaponize their faith. That sort of human hurt harms those in the disabled/chronically ill community that may be struggling with their faith.

In Isaiah 54:10 we read, “Though the mountains be shaken and the hills be removed, yet my unfailing love for you will not be shaken nor my covenant of peace be removed,’ says the LORD, who has compassion on you.” Being chronically ill can very much feel as if everything is being shaken up and changed—at least that’s how I have felt at times over the years.

I no longer know what each day will feel like, physically, let alone have a clue about what I may be able to do in the future. But God’s love doesn’t change when we are in tough situations (or any situation.) He is still with us. He knows the truth of our situation and still loves us.

Some passages that resonated with me, and may be appreciated by those reading this post, are those about us being fearfully and wonderfully made (Psalm 139: 13- 14), Psalm 86-15, and Ephesians 1:5-6. That is about YOU. You are loved beyond words. Think about John 3:16. That’s not just for the able bodied and minded, it’s for ALL of us.

If you can relate to anything I have written, the following are a few things that have helped me. Just remember this journey is different for everyone.

*Don’t bottle things up. I encourage everyone to find a trusted friend, pastor, counselor or support group to share your feelings with. It may be difficult at first, but I promise you’ll be glad you did.

*Take this current season of life slowly. Remember, life is a marathon not a sprint.

*Do not give up on the Christian community or the Church based on some misguided people. Remember, there are no perfect people or churches.

*Find out what works for you in your journey with health issues and your walk with God. One size doesn’t fit us all.

*Spend time in the Bible and listening to worship music. Both have helped bring peace and clarity to my life during my health journey.

* Remember, sometimes God does not give us quick answers to our prayer request. I encourage you to embrace the lessons God is trying to teach you during this difficult season. All of us whether healthy or chronically ill have a different journey. If chronic illness is currently part of journey, you are just as worthy as anyone else. Please embrace that truth today.

I hope and pray this post will encourage and challenge everyone who has taken the time to read it. Thank you! ~OC

Overcoming the Storms

Good Morning! Here is another “Lost Writings from OC.” This was written in May 2019.

Today’s a new day! As we walk through this journey called life, we will experience different storms. As I have walked through my own crazy beautiful health journey, I have learned a thing or two about overcoming the challenges of life. Here are a few of those lessons.

1. Spend time in God’s Word daily.

The Psalms offer great comfort for storms. Consider reading one Psalm per day the next time you face a storm.

2. Keep worshiping God.

Keep a worship playlist going while you drive, work or exercise. I often have worship music playing in my hospital room.

You might feel tempted to neglect corporate worship with others as you navigate through the storms. If possible, try to stay plugged into your local church or life group. Keep worshiping with others. This can unleash your faith and give you strength.

3. Spend time with encouraging people who will point you to God and give you hope.

We were not meant to navigate life’s storms alone.  One of the most powerful secrets for overcoming the storms of life is finding support from other people. You will be amazed at the people God might use to help you through your season of challenges.

4. Make time for life-giving activities.

We often neglect our hobbies and passions in difficult times. More than ever, you need time to decompress during life’s storms.

Carve out time to pursue your passions and hobbies. Make time to take a walk, or pursue your favorite activities.  These creative diversions are essential for calming your limbic system and overcoming the storms of life.

5. Take care of your body.

As much as you can, aim to eat well, drink plenty of water, keep your body moving, and rest as much as you can.

6. Ask other people to pray for you.

Those prayers can help you overcome the battles surrounding you.

7. Keep talking to God.

He is with you. Talk to him all day.  Ask for his help. He wants to carry you through your storm.

8. Find refuge in the shadow of the Lord’s wings.

Imagine a baby bird curled up in the shelter of its mother’s wings. There is no fear in this place.

Psalm 57:1 reads, “Be gracious to me, O God, be gracious to me, For my soul takes refuge in You; And in the shadow of Your wings I will take refuge until destruction passes by.”

Every time you feel battered by the storms of life, imagine the Lord’s arms holding you.  As I continue to run this crazy beautiful health journey, I often imagine God holding me close. This can give you strength, peace, comfort, and courage.

Remind yourself that God is your hiding place. Ask him to care for you and comfort you.  He wants to be your source of comfort.

9. Watch for God’s movement in your life.

Psalm 36:7 reads, “How precious is Your lovingkindness, O God! And the children of men take refuge in the shadow of Your wings.”

Ask God to help you become more aware of his movement in your life.  Instead of looking only at the storms surrounding you, look to the Lord.  Watch for what he is doing. He is with you. He will not abandon you during the storms of life.

When life is tough, I often take a few moments before falling asleep at night to reflect on the ways God worked in my life throughout the day. I reflect on the entire day, from the moment I woke up until the moment I lay my head down. Often, during those times, God shows me where he was working. These moments encourage me and remind me that God is with me during every storm.

10. Soak in the truth about God’s love for you.

Overcoming the storms of life begins by recognizing that God is always good, and his love for us is unending.  Resist the urge to take offense or believe that God does not love you.  Instead, soak in the truth about God’s love for you daily.

You are the apple of God’s eye. You are his beloved child. He is a good Father, and he wants to care for you as you navigate through the storms of life.

I pray as you continue to walk through the storms of life, you will continue to lean into the amazing promises of God. ~OC

My Why

Good Morning! Here is another “Lost Writings from OC.” This was written in 2020.

Today’s a new day! Writing has been part of my crazy beautiful health journey. Writing has allowed me to see life in a different way and experience healing in many parts of my life. Writing has allowed me to experience the following:

God has put me on this earth to love and serve others. To encourage others. To hopefully inspire people to think about their own life journey.

God created me to truly experience life. To embrace the good…and bad moments of this journey. I am here to learn. Just a little advice, we should never stop learning.

I am here to overcome my physical limitations. I am here to transform inspiration into action.

I believe in living a peaceful life. Peace within myself. Peace with those I have disagreements with.

I no longer expect or demand to be understood. I understand myself. Most importantly, God understands me and still chooses to love me.

I am not alone when I connect with God and the amazing people He has put in my life. Those relationships fuel me.

I ache and grieve alongside the pain and suffering of others. I empathize with those who suffer.

I seek to overcome suffering by finding its meaning, purpose and lessons.

I no longer force my beliefs on others. I choose to show respect to those with different views, opinions and beliefs.

I choose not to be selfish. I love sharing and helping others. Serving others helps me experience God’s love in a meaningful and real way.

I choose to let God write my story, even though there are times I want to steal the pen.

I choose to be awake. To be present. I am called. I feel God’s presence within me. I can truly be me because He lives in me. ~OC

Hope in the Storm

Good Morning! Here is another “Lost Writings from OC.” I wrote this back in March 2019 while in the hospital.

Today’s a new day! As I have walked through this crazy beautiful health journey, I have found there is hope in the middle of my battle. I do not say this lightly, as this health journey has taken a lot from me physically. But, as I continue to walk through this battle, I have felt the presence of God and He continues to remind me that He always gives beauty for ashes. 


Beauty for ashes can look like oil of joy instead of mourning, a garment of praise instead of a spirit of despair, and a closer relationship with Him. God’s love fulfills our every need, not only in the natural but also in the eternal.

I want to share some Bible verses that have helped me as I continue to walk through this season of health issues.

“Have mercy on me, O God, have mercy! I look to you for protection. I will hide beneath the shadow of your wings until the danger passes by.”~Psalms 57:1

I pray that you see it’s God’s mercy that has you here. I do not know what your storm looks like, maybe it looks a bit disheveled or completely unrecognizable. Whatever the case might be, God is a permanent safe place; His refuge isn’t one that collapses or gets overwhelmed by a storm surge. No, it is filled with great peace that surpasses all of our understanding. God is where we can place all of our trust.

“The Sovereign Lord is my strength! He makes me as surefooted as a deer, able to tread upon the heights. ~Habakkuk 3:19

As I studied this scripture from the Old Testament, this is what I learned. A hind is a deer that can place its feet exactly where its front feet stepped, not missing an inch. A hind lives in mountainous regions and can run the terrain without fear. They are truly free even when crossing difficult paths along the way. I believe this verse is saying that God does the same with us. In His great sovereignty, God reshapes our feet to fit the mountain we are climbing. I pray it brings you some strength as you walk through your own storm.

“I pray that God, the source of hope, will fill you completely with joy and peace because you trust in him. Then you will overflow with confident hope through the power of the Holy Spirit.”~Romans 15:13

I pray as you walk through a season of storms, you will see God as your hope. Hope that devastates all brokenness and holds us through what we couldn’t imagine through the heartache. We can always call on our Heavenly Father, who gives us great joy and peace that stands in the face of everything we might be going through right now.

“This is my command—be strong and courageous! Do not be afraid or discouraged. For the Lord your God is with you wherever you go.”” ~Joshua 1:9

This verse sounds like a bold ask when in reality it’s a bold invitation. Be strong and courageous because the Lord is with us because He has never left and intends to go before us wherever we go. What a great promise from God who led Joshua and the Israelites into the Promise Land. That same God lives today and is there for you and I. So take heart, for God has overcome the world.

“Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God.” ~2 Corinthians 1:3-4

I pray that this verse finds you on both sides. Some of you have found yourselves in great need of comfort from our Father of compassion. Others have been comforted and are searching for ways to do the same for those in trouble and currently dealing with the storms of life. I want to lift up the first of you who were so blindsided by all the damage done and be expectant on how God will use His people to give you a helping hand and abundant love to get you through. For those that fall into the latter, I pray that God will give you healing hands as you go out into your community and renew your strength daily to not grow weary in doing good.

I know this post was a little long, but I hope it brings you some peace and comfort if you’re currently walking through a tough season of life or just coming out of a trying time. God Bless ~OC

Dear Friend,

Today’s a new day! Here is another “Lost Writings of OC.” This was written in 2019. Sorry it’s a little long. ~OC

Dear Friends,

Several people have reached out to me who are dealing with their own crazy beautiful health journey. So I thought I would share some words that will hopefully bring some encouragement. In the last couple of weeks, my doctors have shared I probably only have months to live. I say this to you, not to discourage you, but to let you know that I am in the trenches with you. These words don’t come from distant memories but from present realities.

The following is a “Battle Plan” of how I am walking through this battle.

1. Recognizing that most of our battles are waged in the mind, I chose to focus on God who is all-powerful and compassionate. The Bible tells us that God’s Name is El Elyon, God Most High, and that nothing can come into our lives that is not first filtered through the fingers of God’s love. God knew before the foundation of the world that we would face different challenges in life and has already provided the resources we need to face them. God’s plan for us in every trial of every size is that we experience victory, never defeat.

2. I chose to view this illness as a gift. Granted, it’s like expecting a new ten-speed bike for Christmas and getting socks, but it is a gift. It is a time to draw near to God, to experience God more fully, to enjoy the simple joys of life, to focus on those things that are truly important. I will thank God every day for this particular gift of health issues.

3. Although my health issues wants to be an all-consuming issue in my life, I refuse to sink within myself. I will reach out to someone else each day with a text, phone call, word of encouragement, act of service or prayer.

4. I will not ignore my emotions (which are currently like a roller coaster on steroids) I will allow myself to experience all the emotions this health journey brings my way, but I will NOT be ruled by them.

5. I will share what is happening to me with others and enlist their support and prayers. I cannot do this alone, and I will not rob others of the blessing they can receive in ministering to me.

6. I will make both short-term and long-term goals in order to have something in the future to look forward to. For example, I plan on continuing to make beautiful memories with my bride through trips and other amazing adventures.

7. I will find some reason to laugh every day.

8. I will remind myself that, in some inexplicable way, the manner in which I conduct myself during this time of struggle does, indeed, impact the spiritual world. The book of Job tells us that humans sometimes get caught up in a cosmic battle between God and Satan, and my actions are key to that struggle. (Jesus Himself told His disciples upon their completion of a missionary journey that God had seen Satan fall from heaven as a result of their actions).

9. I will endeavor to keep my life as “normal” as possible. I will continue my every-day activities and responsibilities as long as I am physically able. This will afford me the comfort of the predictable and common aspects of life as well as helping me not to slide into introspection and self-pity.

Dear friend, who is walking through your own battle, I am praying for you. I am asking that you will be “sincere and blameless” (Philippians 1:10). The word “sincere” is a Greek word that grew out of a poor practice in the marketplace of the day. Everyone in the culture used pottery for many tasks like we use plastic today. It was important that the pots be well made. Most were, but there were some unscrupulous pottery makers who would find a pot with cracks in it. Rather than discarding it, they would fill the crack with wax to cover it up. This would work as long as the pot sold early in the day. But after a longer time of sitting out in the hot Middle Eastern sun, the wax would melt and the cracks would show. Paul prayed that the Philippians would avoid this by being sincere or “sun-tested.” May you, as you face the heat and pressures of this time, find yourself to be, by His grace, without wax.

Peace and Wisdom

Today’s a new day! As I continue to run this crazy beautiful health journey, I have chosen to live with eternal perspective. This “Lost Writings of OC” was written in March 2023.

During my health journey, I have found peace and wisdom in the Psalms.  In them the steadfast love of God for His people is expressed during great trouble as well as great blessing. When our hearts begin to grasp the character of God as revealed in His Word, our faith and trust in His ways digs deeper into our souls. The benefits and delights of knowing and obeying God’s Word is the theme of Psalm 119. Here are a few “treasures” found in verses 68-93:

“You are good and do good… it is good for me that I was afflicted, that I might learn your statutes… Your hands have made and fashioned me… Those who fear you shall see me and rejoice, because I have hoped in your word… I know, O LORD [Yahweh, God’s personal name], that your rules are righteous, and that in faithfulness you have afflicted me… let your mercy come to me, that I may live; for your law is my delight… In your steadfast love give me life, that I may keep the testimonies of your mouth… you have established the earth, and it stands fast. By your appointment they stand this day, for all things are your servants.”

As is God’s promise, my meditation upon these words brought instruction and great delight to my soul. I jotted down some observations in my journal:

God is good and His deeds are good. His hands have fashioned everything in my life. Here are some lessons learned during this health journey:

•Learn His statutes (teach me His ways)

•Place my hope firmly in Him, causing believers to rejoice

•Recognize His righteousness in me

•Confirm His faithfulness to me

•Reveal His mercy to me

•Invoke in me a vibrant delight in His word

•Use my life to keep His testimonies

Everything in creation has been established by God and is being sustained by God. All things are subject to God’s purpose and will. “All things are God’s servants.”

The benefit and delight I received from these verses is profound:

My health journey is God’s servant in my life. He is using it in ways He has revealed to me in these verses and in many more I have yet to understand. I can rest knowing that my health battle is under the control of God who is good and does good. ~OC

New Perspective

Today’s a new day! This crazy beautiful health journey, has opened my eyes to seeing the amazing, ordinary, everyday gifts of life. As my body continues to waste away, inwardly I am being renewed day by day. Experiencing life with new eyes. With a new perspective. ~OC

Rise Above It All

Today’s a new day! Tragedy is written into every human story. Not a single one of us will escape it. We will all experience hardships that will test us on this journey called life. People will shock you with their capacity for cruelty. But be sure of this: speaking truth will be most challenging when life is the most difficult. Courage is necessary to remain a faithful witness despite the hardships of life. Cynicism will always be ready to creep into our hearts. But through it all, I encourage you to rise above it. ~OC

A Friday Prayer

Dear God, today’s a new day, a chance for a new start. Yesterday is gone and with it any regrets, mistakes, or failures we may have experienced. Today’s a good day to be glad and give thanks, and we do, Lord. Thank you for today, a new opportunity to love, serve and be all that you desire us to be. Use us today to be peacemakers. We pray all this in the powerful name of Jesus. ~Amen

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