Tag: Endurance

Finding Purpose in the Storm

Today’s a new day! As I sit in this hospital room, surrounded by beeping machines and the business of staff, I am reminded that my purpose extends far beyond my physical body. In the midst of uncertainty and pain, I pray: Dear God, use me for your purpose during this hospital stay and every day as I continue to fight through this crazy beautiful health journey.

For me it’s a prayer of surrender, of trust, and of faith. It’s a reminder that even in the darkest moments, God’s love and patience remain unfailing.

Embracing the Unknown:

When we’re faced with the challenges of life, it’s easy to feel like our lives are spinning out of control. But what if we flipped that perspective? What if this season of uncertainty is an opportunity to discover a deeper sense of God’s purpose for our lives?

For those walking through their own “crazy beautiful journey,” I encourage you to pray the following: Dear God, use me for your purpose… I am thankful for your unfailing love and patience with me.

Practical Ways to Find Purpose:

1. Prayer and Reflection: Take time each day to connect with God. Reflect on your experiences, and ask Him to reveal His purpose for your life.

2. Support Loved Ones:Reach out to family and friends, and let them know you’re thinking of them. Sometimes, a simple text, handwritten note or phone call can bring joy to someone’s day.

3. Share Your Story: Consider sharing your journey on social media, a blog or write a book. Your story might encourage others who are facing similar challenges.

4. Find Ways to Serve: Even in a hospital room, you can serve others. Share words of encouragement with the staff, pray for the staff and others walking down the hall. Show kindness and respect to everyone you encounter today.

A Prayer of Thanksgiving:

As I continue to navigate through this health journey, I am grateful for God’s unfailing love and patience. I’m thankful for a loving and supportive bride, I am thankful for my medical team that’s been taking care of me for many years, I am blessed by the the loved ones who pray and support me, and for the opportunities to grow in my faith.

If you happen to be reading this post and are facing your own challenges, know that you’re not alone. You’re loved, you’re valued, and you’re part of a larger story.

A Prayer for Today:

Dear Jesus, use us for your purpose during the stressful times of life and every day as we continue to navigate through this journey called life. We’re thankful for your unfailing love and patience with us. Amen

Challenge of the Day:

How can you use your life experiences, past and present to bless and help others today? ~OC

0

Seasons of Life

Today’s a new day! When I started this blog many years ago, I never realized the places that God would take me. The good times and the not so good times. The blessings and hard times that come to us in this journey called life. But over the years, I have learned that even in those difficult seasons of life, that God is always there. Always ready to listen. To lend a helping hand. To love us and comfort us. I have learned that yes, we can be thankful ….. even when our heart and mind tells us that there is no reason to be. I have leaned that in everything to be grateful. So as I continue to walk through these health challenges, I am blessed to have a bride that is willing to walk with me through this crazy beautiful health journey. It is my prayer that the Lord will use our journey to help encourage people and that they will find hope……. In Jesus. So I will continue to embrace new opportunities and be renewed by God’s Hope, Peace and His Word. I will continue to walk this journey with… a thankful and willing heart to serve. ~OC

0

The Butterfly

Today’s a new day! Change can feel uncomfortable and painful at times, but if we don’t allow ourselves to go through all the stages of change, nothing will change. We know all too well that change is a constant in life. Many times we fight that change. Especially when it happens so fast.

As I have walked out this crazy beautiful health journey, I have often thought about the butterfly. Do you know on average, butterflies only live two to four weeks. How crazy is that? But think about all the changes a butterfly experiences in such a short amount of time. During my health journey, I have experienced a lot of change. Every new health issue or near death experiences has allowed me to grow and become all that God created me to be. He has used the all my experiences to teach me new lessons and view the world differently.

To become a butterfly, they must first start off as a caterpillar. They begin crawling along the ground, creating their comfort zone. The moment it’s time to change from a caterpillar into a cocoon, they probably think they’re dying. It feels like life is over. Then they experience something beautiful, but probably a little painful. During this health journey, I have experienced many different stages of growth. So many times I truly thought I was dying. I was sure I was breathing my last breath and soon I would experience the freedom of Heaven. Those moments are never easy, but unlike the caterpillar, I did not experience uncertainty or confusion. No, in those moments I experienced peace. I also experienced something beautiful. A new chance at life.

This health journey has been filled with some difficult moments. Those difficult moments have helped me grow into a deeper relationship with Jesus. In this season, I have learned to not fight all the changes going on in my body. I have not let my health issues become my identity, but instead have allowed God to use life changing moments to teach me the lessons He has for me at that moment. God has taught me to embrace each and every lesson along the journey. He has allowed me to embrace the uncomfortable and painful moments. Getting to know your own uncomfortable self is not something to fear, but something to embrace. I promise you, keeping your faith and having the patience to hold on gets a little easier over time. Does it get less painful? Sometimes, but the suffering becomes more about growing in our walk with Jesus and less about the pain. As you walk out your own journey, learn to be patient and not beat yourself up so much. As I continue to walk through this health journey, God has made me stronger, more hopeful and more confident whenever I walk through a cocoon season of life.

So today, make the decision to walk in the light of Jesus and be free. Don’t waste one single minute. Strive for growth, not perfection. Commit to living out your God given purpose. Embrace every moment and surround yourself with inspiring and encouraging people. Strive each day to be all God created you to be. Do not allow fear or past failures to keep you from spreading your wings and flying. ~OC

0

That Tuesday in September

Today’s a new day! Hard to believe today, September 11th is the 24th anniversary of that tragic day back in 2001.

Tuesday September 11, 2001, was a loss felt worldwide. Today, we remember those who lost their lives on that dark day, the brave first responders who put their lives on the line and honor the sacrifices made to protect our freedom.  

As I reflect back on that Tuesday in 2001, I remember how our communities came together united as one. We put aside our divisions and united in caring for one another, supporting one another, and projecting hope. I believe this describes compassion. Those efforts resonate with me today and each time I step out of my front door into the daily complexities surrounding us all. Each interaction an opportunity to inject some love and compassion into the lives and communities around us.

Let us take the time today to remember those who lost their lives on 9/11, reflect on the bravery of the first responders and strangers in those moments, and honor those who volunteered to serve our country in response to that tragic Tuesday. May we never forget. ~OC

0

2AM Thoughts

Today’s a new day! It’s 2am on this Tuesday morning. I have been unable to fall asleep. It’s just one of those crazy nights with Parkinson’s and Dementia. So I have walked around the house more times than I can remember. I have watched several YouTube videos to pass the time. Finally, I have decided to share my experience and thoughts with you. Writing is still something my brain allows me to do on occasion. Lately, God has filled my brain with many thoughts. I feel an urgency to write as much as possible before I can no longer do that. Tonight, my brain is extra active. That’s not always a good thing.

I have good days and bad days as I navigate through the multiple health issues that are slowly robbing me of so much. On a bad day, I cannot do anything at all. My energy levels are low and I feel fatigued. The only way I can describe it is that I feel like I have run a hundred marathons in a very short amount of time. I feel totally drained.

But I have lots of coping strategies. I choose to use those days to pray a lot more. I choose to reach out to friends even though I know, I will not hear back from the majority of them.

I think it’s important to have something that gives you a sense of purpose in life. I try to share my journey to help encourage others walking through their own life struggles. If I can help just one other person, that’s enough for me.

When most people think about neurological issues, especially dementia they think it’s all about memory loss. But I have cognitive issues also- trying to figure things out can be difficult and frustrating. Also too many voices at one time can be overwhelming. I get frustrated and anxious if I am struggling to follow the conversation. I also deal with a lot of rigidity and pain, which creates so many issues.

Over the years I have lost many friends as I have walked through this crazy beautiful health journey. I believe a lot of people have a difficult time talking to and relating to me. But I am still me. My story has just changed a little. A lot of times when Laura and I are around other people, they will address questions to her, not me. My prayer is that people would see the person, not the disease.

But I am blessed that a few friends have decided to stick around and not jump ship. I hold those friendships very close to my heart.

I choose to embrace each moment of life. I try to share my love and thoughts now. Not waiting for the perfect moment. Because the perfect moment is today. Laura and I do not wait for the perfect moment to buy that gift or take that trip. Now is the perfect time. Now is the perfect time to take care of future arrangements. Which we have done. I did not want Laura dealing with all of that on her own.

It also means we’ve had really indepth chats about what quality of life really looks like. Everyone has to figure that out for themselves and their loved ones.

Life looks different every day. What I could do yesterday, might be more difficult to accomplish today. I continue to live my life with my cup overflowing. I try not to beat myself up too much when I cannot do something anymore. Because there are still many things I can do. So today, I choose to embrace the now and what I can accomplish today. ~OC

2

Marriage Vows

Today’s a new day! On this date twenty-six years ago, I had the honor of marrying my bride Laura. When we shared our vows on that Friday night we had no idea that the majority of our marriage would center around my health issues.

Like every newlyweds, we thought The big stuff, the hard illnesses, would come later in life. That definitely has not been part of our story.

I was taken by surprise when life-threatening illness hit our home – and even more surprised when it happened to me. Without any warning signs, I began experiencing severe fatigue and muscle weakness. Within a few months and after a number of tests, Laura and I were told I had several forms of crippling arthritis. Only to find out a year later, I was actually dealing with a very rare type of cancer. (only 2% of the population deals with this type of cancer). We had no idea how that diagnosis and then multiple life threatening diseases would become part of our everyday lives.

My wife Laura and I were still in our honeymoon season of our marriage. This kind of thing wasn’t supposed to happen. I felt helpless as Laura cared for me in addition to working her full-time job and working on her masters degree. While I was in the hospital, she stayed by my side, trying to work and get some rest in some uncomfortable chairs. Watching her husband struggle to just breathe at times.

Over the years, Laura has taken on most of the she household responsibilities. She makes meals, vacuums and chauffeurs me to multiple medical appointments. She does this all with a smile and encouraging words.

I was and still am blown away by how Laura continues to care for me all these years later. At times, I have found myself frustrated that I cannot do more to make her daily grind a little easier. Her kindness continues to overwhelm me.

As I reflect on this health journey we continue to walk together, it gives me a deeper appreciation of God’s purpose for marriage. Sacrifice is lived out in homes around the world as couples serve each other through illness, financial crisis and family issues. No matter their story, husbands and wives face opportunities to love without seeking anything in return. Why? So they can experience God’s heart through one another and live His love for one another.

Every opportunity we have to serve our spouse gives us the chance to live out the love story God crafted for us. He gave His Son so that we could have life. There was nothing we could give in return – nothing we could do to pay Him back. And yet He chose to give anyway.

Laura continues to live out her commitment to stand by me in sickness. She has more than fulfilled her marital vows – she has become a living illustration of God’s love. ~OC

0

Don’t Back Down

Stand up for what’s right, don’t be swayed

By the voices that try to make you stray

Be brave, be strong, and hold your ground

Fight for justice, let truth be found

Raise your voice, let it be heard

Speak out against injustice, undeterred

Don’t let fear silence you, don’t back down

Stand firm, wear your heart in this town

Be a beacon of hope during the dark times

Shine your light, let it guide the way

For a brighter tomorrow, a better day

Stand up for what’s right, come what may

Your voice matters, your actions too

Make a difference, see it through

Stand up for what’s right, be bold

Create a world where love never grows old. ~OC

0

God’s Hope

Good morning! Over the years, I have enjoyed writing what I will loosely call poetry. So I have decided to share some of my “poetry” with you. Be kind.

A light in the darkness, a beacon so bright

God’s hope shines upon us, a guiding light

In times of uncertainty, it leads the way

A promise for tomorrow, of a brighter day

With faith as our anchor, we hold tight

Through life’s storms and trials, we allow God to navigate the night

God’s hope sustains us, a constant friend

A love that’s unwavering, till the very end

May God’s hope inspire you, uplift your soul

A reminder of love, that makes us whole

In His presence, we find our peace

A hope that’s eternal, a love that never ends. ~OC

0

Flashing Neon Sign

Today’s a new day! As with many neurological illnesses there is nothing noticeable about my condition. It’s not like a broken leg or arm where there is a cast which is obvious when seeing the person. But I cannot tell you how many times I have heard the same old words since my diagnosis last fall, Todd, you do not look like you have dementia.

I often wonder if it comes down to the fact that people feel uncomfortable talking to me about it, so they say the first thing that comes to mind. Which at times can come across as very insensitive and judgmental. Since my diagnosis of early onset dementia caused by my Parkinson’s, I have had several people tell me I do not look or act like someone with dementia. Or Todd, maybe you’re just dealing with an infection of some kind and just need to take some antibiotics. I would be overjoyed if that was actually the case. But I have some amazing doctors and they didn’t come up with this diagnosis lightly.

What does dementia look like? There is no cast or bandage to put on it. I guess I could wear a flashing neon sign that says, “HELLO, I HAVE EARLY ONSET DEMENTIA!” that lets people know of my latest diagnosis.

But seriously, I am walking through a very new and strange season of life, but I know I am not the only one. It simply gets frustrating when people decide to find a different diagnosis or make you doubt your current state of health because they do not like the diagnosis. It can be irritating and cruel when people doubt you and your medical team. Believe me, no one wants to sit in a doctor’s office and hear the words “You have early onset dementia.”

I do think that part of this attitude is because people have a hard time believing someone in their 50’s could have an “old person’s” disease. Also the topic of dementia is not an easy or fun subject to talk about. It can be easier to just ignore it or try to explain it away.

I also believe people have their own preconceived beliefs about dementia and I and many others suffering from this horrible disease do not fit in their picture of dementia.

So please do me a favor. Stop putting your personal beliefs or opinions on those suffering from a visually invisible disease or one that you don’t like. Life with dementia is already hard enough. Thanks for listening. ~OC

0

The Race Called Life

Today’s a new day! During my running days, I was blessed to complete 350 marathons. Yes, you read that correctly. I can take no credit. It was all God pushing me through those marathons. People often ask me why I ran 350 marathons? I tell them I did not like the number 349.

It’s been a number of years since I was able to run based on my health issues. While I would have never considered myself a professional by any means, I like to think I learned a few things during my running days. Like how to stabilize my breathing (well, I did my best) and how to run at a steady pace. Once again I tried my best. Running is a lot like living the Christian life. We have many lessons to learn. I learned a lot of lessons during my running days that I have been able to apply to my Christian journey.

One of the first lessons you learn when you start running is that you need to have endurance. Whether you’re running a 5K or a 50 miler (yes, I did that), you need to train so that you can run at a steady pace and not get worn out quickly.

The Christian life requires endurance as well. Life can seem long and hard as Christians, especially in the midst of challenges. Many people have made the comparison that life is a marathon, not a sprint, and the same goes for the Christian life. As the writer of Hebrews says, “For you have need of endurance, so that when you have done the will of God you may receive what is promised” (Hebrews 10:36).

When you’re running, especially long distances, you want to lay aside everything that could weigh you down so that you only have the essentials. Lightweight shoes and light breathable clothing. As a runner you need to find the perfect balance between bringing what is necessary and those things that would just weigh you down.

In the Christian life, we are called to lay aside what weighs us down—namely, sin and any idols in our lives. Hanging on to those idols can cause our faith to falter and stumble. Letting go of idols in our lives frees us to live a life that is dedicated to Jesus. As the writer of Hebrews says:

“Therefore, since we are surrounded by so great a cloud of witnesses, let us also lay aside every weight, and sin which clings so closely, and let us run with endurance the race that is set before us, looking to Jesus, the founder and perfecter of our faith, who for the joy that was set before Him endured the cross, despising the shame, and is seated at the right hand of the throne of God.” (Hebrews 12:1–2)

As a runner, you come across trials and challenges. Whether that’s a heatwave, snowstorm, rainstorm, or injury, runners face challenges that impact their race. You can never predict these trials and instead you just have to take them as they come. But you cannot allow the obstacles in life to keep you from living the race God has designed just for you.

In the same way, as Christians we can face unexpected challenges and suffering. From a poor diagnosis, a lost relationship, a lost job or a broken family. This race called life can be difficult. But thankfully, we are being made perfect through the grace of God. As James writes in James 1:2-4, “Count it all joy, my brothers, when you meet trials of various kinds, for you know that the testing of your faith produces steadfastness. And let steadfastness have its full effect, that you may be perfect and complete, lacking in nothing”

My prayer is that we will all run this race called life with endurance and receive the beautiful gift of eternal life. ~OC

0

Blog at WordPress.com.

Up ↑