Tag: Friendship

A Day In The Life

Today’s a new day! Ever wondered what a day living with chronic illness and health challenges looks like? Today I will take you on a journey into the twist and turns of a day living with long-term health issues.

From the moment I wake up, I’m already facing barriers. My chronic illnesses make it difficult to get going. For those not aware, based on my health issues, I have slept in a recliner for about the past twenty years. It’s just too hard to get in and out of a bed. Every day is a balancing act where I have to be mindful of my energy levels and make sure that I’m taking time to rest. 

An Introduction To My Health Journey:

In 2002, I was diagnosed with multiple forms of arthritis. That year was filled with a lot of experimental treatments. Then in 2003, I was diagnosed with cancer. Thankfully I was able to have surgery to remove the tumor and never had to walk through the struggle of chemo and radiation. Let’s speed things up. From 2007-2024, I have been diagnosed with Parkinson’s, Myasthenia Gravis, Gastroparesis, Type 2 Diabetes based on all the steroids, had a stroke, diagnosed with cluster headaches and just a few months ago was diagnosed with early onset dementia. That’s my rap sheet!

What My Night and Morning Looks Like :

Based on my neurological issues, I am up and down most of the night. So I never wake up feeling rested. I wake up stiff, so I need to move around and take a host of medications in the morning. Of course meds have side effects, so that can be difficult.

Since I deal with gastroparesis, eating has been a major issue for many years. That makes taking in fluids and food a huge and painful task. So every meal, every day is an adventure.

My mornings are dedicated to spending time with God, journaling and trying to exercise. For me, walking is the best type of exercise for me. I never know how many laps I will be able to get in. I have to be careful not to overdo it. If I do overdo it, my body will pay for it the rest of the day. I spend some time each day for reflecting on life and looking at how I can hopefully encourage others as I continue running this journey. These days, I tend to take a lot of short cat naps. Over the last year, the pain has increased, so that’s a daily struggle. Unfortunately, pain meds and gastroparesis do not really care for each other. So most days, I just live with the pain.

One thing I choose to do everyday is get dressed. I never lay around in my sleeping clothes. It makes me feel good to get cleaned up and get dressed.

My favorite part of any day is spending time with my bride and friends that choose to reach out. Spending time with loved ones is very important to me. I love sitting around and enjoying great conversations. Also, I try to read every day. My love for reading has been challenging the last few years, since it’s hard to stay concentrated. I also spend time listening to music each day. Music can make everything a little bit better.

In the evening, Laura and I like to talk about our day and possibly watch a little television. Based on my day, my bedtime varies. But since I sleep in my recliner, I can fall asleep anytime my body and brain allows me to. Every night is an adventure.

What I consider a daily self-care must do:

Writing about what I’m grateful for in my journal helps me remember the positives, even on those really hard days. Living with long-term health conditions can be exhausting and can be very negative if you allow it to get on top of you. 

Several people have asked if I had one day without pain and could step away from my health journey what would I do?

I would lace up my running shoes and go for a very long run. For those new to my journey, in my healthier days I was blessed to complete 350 marathons.

Another question people asked me a lot: Is there anything I would like to share about daily living with chronic illness and life challenges?

There’s a lot, but I do not want to make this post any longer than it already is. One of my hopes is, people will realise that we never know what someone else is really going through. So be kind and respectful. It doesn’t help when people tell me how I should be living out my health journey. Just be supportive and walk through this journey with me.

By sharing what my day to day life is like, I hope I can raise awareness of the bigger picture as people only see snippets of my journey online or see me on my best days in person. I am not sharing this for pity or sympathy and I am not complaining. I just want to give you some insight into this crazy beautiful health journey.

The Takeaway:

Writing about my day living with chronic health issues has been quite eye opening to me to see how much life has changed over the years. I have a strong need to celebrate the love and support I have received over the years from family and friends. Writing this post has let me see how faithful God has been to me, as I continue to run this beautiful journey.

I hope that you have found this post to be a helpful insight into life with with long-term health issues. There are so many people walking through a tougher battle than me. So if you know someone dealing with chronic illness, take the time to reach out to them and support them on their journey. ~OC

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Our Health and Living

Today’s a new day! Long-term and terminal illnesses can be a scary road to navigate. It’s hard on one’s body, mind and soul. And everyone that cares for them. How will my body and mind handle today? That’s a question I ask myself on a daily basis. Chronic and terminal illnesses also raises many questions that many people shy away from unless they are faced with it directly. But if we’re listening, many lessons can be learned.

Health issues have a way of reminding people that time is a valuable, non-negotiable, and a non-renewable resource. With that said, how do we look at the bigger picture of life and find out what is truly important? 

Spend Time Focusing on Relationships:

We were not meant to do this life alone. God did not create us to be Lone Rangers. I know of no one who regrets time spent building meaningful relationships regardless of life’s struggles.

Take time to ask yourself the following question: Are you truly making time for your family and friends?

Trim That Fat:

I am not talking about dieting and exercise, but those are important parts of our lives.

No, I am referring to something that a lot of times we do not even notice. I am referring to our home and our lives. We all have a tendency to fill both with clutter and hang on to things we do not need. A life-changing diagnosis can become the catalyst for the housekeeping of our home and heart as we realize what is truly important in our lives. It is also a good time to reflect on our faith.

 “Let us throw off everything that hinders and the sin that so easily entangles. And let us run with perseverance the race marked out for us.” ~Hebrews 12:1-2

Speak your Heart Now:

It is good for all of us to review and consider our relationships. Because we all know relationships can be messy at times. If we love people, why not let them know how much they mean to us. Now! Why wait until it’s too late? If we have hurt someone or offended them in some way, why not seek their forgiveness and do what we can to make it right.

Who are the most important people in your life? Take a moment to think about that. Maybe even say their names out loud or write them down. Then ask yourself this question: Have I honestly shared what each of those individuals truly mean to me?

“A heart at peace gives rest to the body.”   Proverbs 14:30

Set New Goals (Dream!):

It can be easy to wait for a challenging season to be over. “When I get better, then I will take that trip.” “When I get better, then I will _____.” Why not take that trip now? As I have walked through this long journey of health issues, Laura and I have learned to take those trips now. Even though those trips can be tough on my body, the memories are priceless. So go live out that adventure. Experience love, joy and happiness during even the toughest of times. I encourage you to find what brings you happiness and go experience it. Keep dreaming some big dreams, set some goals, and do what you possibly can to make them happen.

Many facing long term health challenges find that those trials have helped them clarify and simplify their lives.

During my own health journey, I have discovered what’s truly important in life. For me, it’s my faith, my relationship with my bride, relationships with loved ones, encouraging others and truly living out my God-given purpose in life.

What can we learn from this?

Praise be to the God and Father of our Lord Jesus Christ,
the Father of compassion and the God of all comfort,
who comforts us in all our troubles,
so that we can comfort those in any trouble
with the comfort we ourselves receive from God. ~2 Corinthians 1:3-4

I hope and pray the words above have brought some comfort and encouragement. Go live your life! ~OC

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Warning!

Today’s a new day! Be careful of people who claim to be your friend, feel the freedom to share your story, but you haven’t seen or heard from them in months or even years. Do not allow them to be part of your boat. They add nothing to your story. ~OC

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Grateful

Today’s a new day! I’m grateful this morning for another day to breathe, to think and make more memories with my bride, friends and family.

I’m grateful for my cup of ice tea and a cool breeze on our balcony.

I am grateful for the anticipation of this new day.

I am grateful to be living in peace.

I’m grateful to still be alive, now, in this place and at this time.  I’m ever-thankful for the extra time God has given me.

I am grateful for the freedom to write in my hometown and to write whatever, however, whenever I please.

I am grateful for the amazing people God has brought my way on this crazy beautiful health journey. Thankful to have met so many creative and loving people over the past twenty-two years.

I am grateful for the friends who have stuck with me through thick and thin.

I am thankful that my gratitude stretches around the world with all the people who have walked this journey with me through this blog and my other social media pages.

I am grateful to live in love, hope and peace and cherish this day that the Lord has given me. ~OC

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To Live Together in Peace

Today’s a new day! As I study scripture, I continuously see we are given direction and guidance to live together in peace. But in order to do so, we must value and care for one another, be humble, seek to understand each other, be compassionate, and treat others respectfully. It does not mean that everyone has to be our best friend, but at the end of the day, we should treat others as we want to be treated. Like-mindedness does not mean we need to walk around with the same thoughts and beliefs on all things, but instead it means we ought to share the common purpose of love and care for each other. As a world, it feels as if we have lost sight of this. Too often, people are so caught up in the value of their own opinion, agenda and being right, that the humility and humanity necessary to love one another is lost.

Thankfully, my days are spent encouraging others through conversations, zoom meetings and writing. I try to use social media and personal interactions to find out what binds us together and less about what divides us. I try to have conversations with people who look, act, believe and speak differently than me.

Though we come from different places, life experiences and beliefs systems, our ultimate purpose should be to try and make a better world for all to live. Obviously, we live in a imperfect world filled with imperfect people, but the more we seek to understand, extend compassion, and treat others as friends, the better we work together to bring change that makes life better for all.

I will continue to seek God for guidance and direction as to how to best live together in peace and love with those around me.

Peace will be present

when we all decide to

treat people with respect and love

Love is forgiving

It’s gracious and kind

humble and listens

keeps others in mind

Seek to understand

by listening first

speaking to learn and discover

the best in people, not the worst

Dear God, teach us to walk in love and compassion each new day.

Dear God, thank You that You love us so much that You call us and guide us to live in peace and harmony together with each other. Thank You that You show us what is good, and what is required to know Your peace. Forgive us for the times that we have lacked compassion or failed to listen. Teach us to extend grace in such a way that all feel heard and appreciated. Be glorified O God, as we seek You to lead us in Your love and to live together in peace as one human race. Amen ~OC

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Friendships

Today’s a new day! An acquaintance has a little something in common with you and merely enjoys your company for a short time.  A fair-weather friend flatters you when the sun is shining and the birds are chirping.  A true friend, on the other hand, has your very best interests at heart and will never decide your journey is too hard or messy. A true friend sticks with you until the end of the story. ~OC

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Division

Today’s a new day! Division has always been a part of society, but I would say that in the last 10-15 years we have seen division grow to new heights. It seems to be hitting us on every level; national, regional, and individual. It has the potential to destroy what is precious to us if we yield to it. Division can separate us from those we love the most; it can take down sporting teams, companies and nations if left unchecked. The following is a few things I have tried to apply in my own life over the years to help overcome division. Not always successfully, but still striving for.

1). My enemy is the Enemy, not you. In Ephesians 6:12 we read the following words, “For we are not fighting against flesh-and-blood enemies, but against evil rulers and authorities of the unseen world, against mighty powers in this dark world, and against evil spirits in the heavenly places.” The enemy doesn’t really care who you’re divided against, as long as there’s division. Why would the enemy want to stir up division? Because “a house divided against itself cannot stand.” The enemy’s objective is to lie, steal and destroy, and division is an effective way to accomplish all three.

2). Division will always result in disconnection and disconnect opens the door to disunity. I believe connecting with others is why we’re here. Each of us are hardwired to connect with others, it’s what gives purpose and meaning to our lives, and without it there is suffering. When we experience division between ourselves and another person or group, a good question to ask is, “What connection does the enemy want to steal from me?”

3). It is possible to stand up for a worthy cause, but do it with an incorrect attitude. When we see ourselves or others fighting for truth, justice, or anything good, but recognize wrong attitudes, it can be extremely confusing. A good question to ask ourselves when we find ourselves in the midst of disunity is: Am I dealing with pride? Is my perspective of those I feel divided against tainted with judgments rooted in criticism, self-righteousness or pride? Am I motivated by love, or by fear? In my experience with division, I have found that one “side” is rarely 100% right and the other 100% wrong. I have found people on different sides of an issue, often have a mix of right and wrong attitudes. I have found it helpful to ask God to reveal my own heart to me. David did this when he prayed, “Who can discern their own errors? Forgive my hidden faults.(Psalm 19:12)

4). Rejection and division often work hand in hand. This is where it is wise to remember your history with people. Choose to remember the times that they have been there for you during the storms of life. Ask yourself: “Is this rejection I’m feeling from this person or group a long-standing pattern? Or is this something new?” The enemy would love to steal the harvest of our lives…the years of faithful friendship we have had with one another. Let’s have the courage to press in and fight for the precious relationships that we’ve invested years in cultivating. Be willing to have the tough conversations. Even if we walk away with a “agree to disagree understanding.”

5). We also must walk through tough situations with the mindset of “Forgiveness is always on the table if we are to walk in unity and freedom.

6). When we pray for those we disagree with, our heart and perspective will often change. Praying to be unified in truth and in love can be a very strategic spiritual weapon against the evil one.

7). Venting or gossiping to others who are not part of the problem or the solution can bring anger, misunderstandings and division. Here’s the bottom line, none of us win when division is given the freedom to rule the day.

8). We have to be willing to look past our differences and agree to come to the table and talk about the things we have in common. Those conversations can lead to the harder conversations. Are you willing to sit at the table with those you disagree with?

I hope this blog post helps you in working with those you might disagree with. Let’s decide to live with the following in our hearts “Unity Over Self.” ~OC

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Convenient Friendships

Today’s a new day! I really wish someone would’ve told me my circle of friends would dramatically shrink as my health began to decline. All of the sudden hanging out or staying in touch with me has became optional for most of my “friends.” Walking through this health journey is tough enough, without friends jumping ship and forgetting my number. Thankfully, I have a very small number of friends who do not treat me like an inconvenience. Thankful for their encouragement and true friendship. Also thankful God continues to walk out this journey right by my side.

I did not write the above for sympathy, but to bring to light how important friendships are to those with long term health issues. A phone call or visit can make a really tough day a little easier. But when those promised calls or visits do not happen, that can have such a negative impact on a person. So if you have a loved one who is walking through a season of health issues, do not forget about them. I can guarantee you they have not forgotten about you. Blessings. ~OC

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