Tag: Friendship

Just Imagine

Good Morning ! Here is another “Lost Writings from OC” from 2018. I believe it still has some meaning in 2025.

Today’s a new day! Indulge me for just a moment. If you were God and you were planning on coming to earth. What kind of role would you take on in society?

Would you be a wealthy CEO?

A powerful politician?

A celebrity with social media influence?

Or would you choose to become a poor child, on the run from violence and oppression?

I believe there is something profoundly significant about the fact that God’s own son walked this earth as an undocumented child refugee.

This was no accident.

It was part of the divine plan all along. Jesus could have been born and lived as a prince, a wealthy landowner or the Chief Priest. But instead He chose to become a refugee – forever linking himself with the most vulnerable people on earth:

Now after they had left, an angel of the Lord appeared to Joseph in a dream and said, “Get up, take the child and his mother, and flee to Egypt, and remain there until I tell you; for Herod is about to search for the child, to destroy him.” Then Joseph got up, took the child and his mother by night, and went to Egypt, and remained there until the death of Herod. ~Matthew 2: 13-15

So, God’s heart is very much for the refugee. His own Son chose to become a refugee. To the point where Jesus proclaimed that, “I was a stranger and you welcomed me in.”

Whatever you do for refugees you do for Him.

Your posture towards the “caravan” of refugees is your heart’s posture towards Jesus.

God even calls them his “brothers” as a reminder that those who suffer should be considered as family members that you woud invite over for Thanksgiving or a BBQ (Matthew 25:40).

There are few themes repeated in Scripture more than the call to care for the orphan, the widow and the alien (or foreigner):

“So you, too, must show love to FOREIGNERS, for you yourselves were once FOREIGNERS in the land of Egypt.” Deuteronomy 10:19

“Cursed is he who distorts the justice due a FOREIGNER, orphan, and widow. And all the people shall say, ‘Amen.’“ Deuteronomy 27:19

“Then I will draw near to you for judgment…against those who oppress the wage earner in his wages, the widow and the orphan, and those who turn aside the FOREIGNER and do not fear Me,” says the LORD of hosts. Malachi 3:5

So, how then should you and I respond, practically speaking, to what seems like an overwhelming refugee crisis?

There are four actions, I think, that would be Biblical, Christ-like responses to the humanitarian crisis that is currently unfolding. These are the ways I would want folks to respond if my own child or spouse were caught up in this refugee crisis:

SPIRITUALLY:

We must not lose hope.  We must not despair.  We must continue to to have Hope, because our world is not a closed system. God continues to infuse our world with hope, and Divine Love seeps through the cracks in our broken world.  Let’s continue to pray together for peace, for provision.  Let’s continue to petition and plead for, “On earth as it is in heaven….where there is no more pain or death or crying, and every tear is wiped away.”

1. Make them feel safe.

As refugees, they were forced to flee their country, leaving everything behind and running for safety with just the clothes on their backs. They’ve experienced much trauma. We should do whatever we can to make them feel welcome and safe.

2. Offer hospitality.

Perhaps the best thing you can do for refugees is to open your home to them. You can have them over for meals, or game night. You can invite them to social and family events so they can experience American culture at a Fourth of July cookout, a Thanksgiving dinner, or an Easter play.

3. Ask good questions.

When spending time with our new friends, we’ll have opportunities to ask them questions about their culture. We should be genuinely interested in them and their families. We can ask about their holidays and traditions, the things they do or don’t do, and why or why not. We might even try to learn some words in their language. Asking good questions shows them we care.

Christians should understand what it means to have someone care for you when you’re a stranger and foreigner. It’s what Jesus did for us.

4. Respect Over Fear

As we become friends with refugees, it’s imperative that we show love and respect. Not Fear.

Has Jesus not called us to love our neighbors, no matter the cost?

There is no fear in love. But perfect love drives out fear. (1 John 4:18)

Yes, this can be a difficult calling. Only love can overcome fear. And that is why I appeal to you on the basis of relationship and familial ties. What if that refugee child were your own flesh and blood? What if they were your own son or daughter? What mountain would you not climb? What politician would you not lobby? What price would you not pay to see them brought to safety.

Only the kind of love we usually reserve for family can overcome the fear and selfishness that teaches us to close our doors and turn away from the refugees plight. But Jesus calls us to a different way, the way of peace, radical welcome and laying down our lives for others.

Will you allow that love to compel you towards action today?

I pray you will take time to reflect on this post. How would God want you to treat the vulnerable? How can God use you during this crisis? ~OC

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The Battle

Good morning! Here is another post from “The Lost Writings of OC.” This was written in 2019. Have a great day!

I am a Warrior, Fighter, Conqueror and Overcomer. Some people do not like using those terms when talking about their health journey, but I embrace each of them. Because every day that I am blessed to wake up and make it through another day is a Victory. A Battle won.

The words “fighter” and “warrior” are often linked with our response to illness. I think it’s appropriate. I have walked the halls of hospitals, chemo rooms, hospice rooms and believe me each of those individuals were fighting a battle. Waging war against a disease that is trying to destroy every single part of their bodies.

As I have traveled my own crazy beautiful health journey, I have been blessed to meet and become friends with some amazing “Warriors.” I do not think any of us warriors would consider ourselves to be “inspirations.” Even though a lot of people like to put that term on us. No, we are just focused on making it through the tough moments of the day. The weeks. And for some like me, the years. We will leave all the “inspirational” talk to you.

For many the word “fighting” might sound exhausting. And it can be. There are some days I just want a break from this health battle. When this happens, I do not want to be told I’m inspirational and to “just keep going!” or “battle on!” I just want someone to listen. This is where I have found my “people in my boat” to be so helpful. Even though some have never had to walk through a health battle, they have walked through their own battles in life. One of my friends once shared “Just keep swimming, and when you can’t swim, just float.” Some days I just want or need to float for a while.

So I will continue to use terms like Warrior, Overcomer, Fighter and Conqueror. I believe these terms unite those living with chronic health problems. We will fight and overcome together. ~OC

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Life with Myasthenia Gravis

Good Morning! More writings from the “Lost Writings of OC.” I thought I would share a little bit about my Myasthenia Gravis (MG) experience with you today. I originally wrote this in 2024 and updated it several weeks ago. As I share this with you, my MG is getting much worse.

Today’s a new day! Myasthenia Gravis (MG) is an autoimmune disease that causes muscle weakness. But what exactly does muscle weakness feel like? To understand more, let me walk you through a typical day with MG.

For me it feels like I’ve run out power. In general, I feel it’s a huge effort to move when I’m very weak. When my legs are weak, they feel heavy and unsteady. I feel like I cannot move them or trust them to hold me up. The weaker I get, the closer and closer my steps get to each other, until I have to stop and lean against something or just sit down.

Also, I get pain in my hip flexors – basically my butt. It’s the same kind of pain you get from overdoing a workout: an achy soreness that feels like you have overused the muscles. These days, I deal with hip pain on a constant basis.

When my shoulders are weak, which is most of the time lately, I feel like I just cannot lift my arms. Like there are heavy weights holding them down.

My neck continues to get weaker. I just cannot hold my head up. It falls to the side or down, or I have to prop it up with my hand on my chin and my elbow on a table, or with a U-shaped neck pillow and a high-backed chair. As my neck weakens, I develop achy pain in my upper back from trying to hold my head up. I sometimes get a nauseating gagging sensation from my throat collapsing.

Eating with MG can be a challenge from having to take breaks while eating, to choking on solids and fluids. Sitting down to eat or drink is a major undertaking. I also start to slur my speech, and I get short of breath from minor exertion, or sometimes just sitting still.

I always have muscle weakness, but it gets more severe with heat, exertion, lack of sleep, infections, or other stressors. Summertime can be very challenging. Extreme cold is not my friend either.

Based on my weakened lung muscles, I am unable to take deep breaths. This causes issues on so many different levels. These days, every breath is a struggle.

I have to stay on top of my medications for the Myasthenia Gravis. I have to take one of those medications four times a day. Oh, I better not miss those dosages or things can go down hill pretty quickly.

I try to dress in cool fabrics and wear layers in winter. And I try to protect myself from sickness by keeping my vaccines up to date, wearing a mask when needed , and using hand sanitizer or washing my hands frequently when I am out of the house. I tend to fist bump and avoid shaking hands or hugging.

You know how much I love to walk, but that is getting harder these days. I have added a walking stick to help with my balance. This is a far cry from my marathon days

My medical team continuously tells me I am a one in two billion case with all of the multiple diagnosis. With Myasthenia Gravis, I fall into a small group of people being diagnosed with MG after having their thymus removed. My cancerous thymus was removed in 2003, but I was not diagnosed with MG until 2009. I will not go into what the thymus does, but feel free to research on your own.

How friends loved ones can help

One thing my friends and family do for me that’s immensely helpful is helping to educate themselves on Myasthenia Gravis so they can explain it to others and better understand my daily challenges.

I only have a few people besides my bride, who truly know me and my MG that well, but they are lifesavers. They’re also the ones I’ll talk candidly to when my MG gets me down. I cannot be relentlessly cheerful all the time, but I try.

I hope this gives you a better understanding of what Myasthenia Gravis looks like and how it affects my life on a daily basis. Each day is a struggle, but I continue to push forward and look at all the positives in my life. I encourage you to do the same. Go have a great day! ~OC

Dear God, Sometimes the pain is so great, I cannot think beyond my current struggle. On hard days, please ease my pain and help me focus on Your goodness one day, one hour, one moment at a time. Let Your overwhelming peace wash over me and remind me Your mercies are new every morning (Lamentations 3:22-23). There are days when I beg you to take the pain away. Days I just don’t have the strength. In those desperate times, I ask for Your unending strength to sustain me. I cannot do it alone, but with You all things are possible (Matthew 19:26). Amen

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My Room 378 Experience

Today’s a new day! As I sit in my comfortable recliner, in my comfortable apartment this morning, I have been praying and thanking God for guiding me through the last seven days in the hospital. There are still lots of questions, concerns and unknowns, but this early morning I am filled with peace. A peace that no person or circumstance can take away from me.

The past few months I have felt God wanting to have a deep conversation with me, but there was always some distractions that kept that conversation from happening. Then on New Year’s Eve, the last day of 2024, I was rushed to the ER with stroke like symptoms. After ruling out a stroke, the doctors decide to admit me for observation. Little did I know that this would be the time Jesus chose to speak to me. I wish I had the eloquent words to write down what I experienced on New Year’s Eve in room 378 that has filled me with peace, expectation and urgency. (If you want to know about my experience in room number 378, please contact me and I can share it with you). But just like the enemy likes to do, the next few days were filled with challenging moments. But as I sit here on January 7, 2025 at 3:14am, I am choosing to only remember the peace and awe I felt on the last night of 2024.

As I shared above, the experience on New Year’s Eve has filled me even more with a sense of expectation and urgency. Expectation that God is getting ready to do some amazing things, but also the urgency to share, pray, serve and write more. This experience has given me even more of a longing to share everything God has done and continues to do in regard to my crazy beautiful health journey. I want to experience even more of God’s freedom. I want to wake up each morning with delight for a new day.

As I have been up praying this morning, that sense of urgency has become stronger. I so desire for my life to have significance because of what Jesus has done and continues to do in my life. I feel laser focused on living out my days serving Jesus and others. This urgency has nothing to do with checking off a bucket list of some kind. Instead, I feel even more driven to create a legacy that points people to a relationship with Jesus.

During this twenty-two year health journey my priorities changed. My Room 378 Experience has changed me even more. I have never cared about spending money or time on material objects or activities that have no lasting impact on people’s lives. But that desire has grown even stronger. I want to conserve my time, energy, and resources for those activities that will leave an eternal imprint on my part of the world and on those God brings my way. I want to spend even more time in prayer for those I love and for this broken world.

I wake up every morning with a desire to encourage and love on people. I pray through my Room 378 Experience, that Jesus will show Himself through me even more in my little sphere of influence. Jesus put me with all my flaws, talents, life experiences, joys and sorrows, onto this earth for a reason – a purpose that He designed me to fulfill. I seek to savor each moment Jesus gives me to love and live for Him. That is my sense of urgency. It is my prayer every morning before my feet hit the ground that this day my life will not be spent in my own pursuits, but I will be a vessel for Him to touch those He places in my path. ~OC

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Breakthrough

Today’s a new day! Prayer is about a relationship with Jesus. When we pray, we are committing our concerns, our worries, hurts, fears and joys to the One who wants to do life with us. We are spending time talking with Him just like a best friend. We need to stop making prayer a one way street, and grow in our relationship with the only one who will never fail us and who is always there for us. He is calling us to spend more time with Him. So my friend, pray about everything! Did you get that? Pray about everything. There are many scriptures that encourage us to pray.

Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light.” ~Matthew 11:28-30

Don’t worry about anything; instead, pray about everything. Tell God what you need, and thank him for all he has done. ~Philippians 4:6

God says commit your plans to Him. He wants us to surrender everything to Him. He wants to carry our burdens. God wants to do life with us. The trouble lies when we try to keep carrying ourselves and then get upset when the changes we are crying out for don’t seem to change, or go our way.

We need to learn to let go…..

So, today surrender your whole heart to Jesus. Give Him your life, your concerns, and worries today. Lay it all before Him and then trust what He is doing. Pray for spiritual eyes to see things His way because it doesn’t always go the way we want, but it’s always for our good when we live in relationship with Him.

Maybe you have found deep hurt after praying, or things went badly and you feel scared to let go. I get it. We have all been there. This can be so hard. But when we realize just how much God loves us and His plans for us are good, everything changes and we find healing. We can find beauty from the ashes. The key is to surrender it all to the Lord. Then trust that God is working it all out for our good.

God never promised us a life without trouble, but He did promise He would walk through it with us. So when life throws you a curve ball or you’re stressed out about the pressures of life, stop and do this one thing. Pray. God really does want us to pray about everything because He cares for every area of our lives.

As we have just started a New Year, I know many are praying about a breakthrough in your life. Here are some things I have learned over the years about experiencing your breakthrough.

1). Spend time with the God all day every day through conversation with Him, with worship music, or just sit in His silence. Listen and read scripture. Taking time to journal everything He is saying to you.

2). Repent. Sometimes we get so caught up in us, we forget about Him, so it’s important to ask for forgiveness when we have lost focus.

3). Surrender your plans for His plans. Sometimes it’s just a perspective change in seeing the blessings in the hardship. Learning to totally depend on Jesus is key to knowing His loving character better.

4). Ask for prayer from trusted and Godly family and friends to help carry you in prayer through this season.

5) Be specific in your prayers. Spend time talking and listen to Jesus telling Him exactly what you need. Rather than just saying Lord help me, pray specifically for what you want or need and pray in Jesus name (there is power in the name of Jesus!)! Pray wherever you are and while you are doing all the things, just like you would talk to your best friend. Always praying. Always in conversation with Him being specific.

Here is a prayer, I hope will help guide you through this season.

Dear God, I am struggling to know what to do and how to persevere in this. but God you need me to depend on you and not on my own strength so help me to surrender this over to you. Please forgive me for not despending on you. Where I am weak you are strong so I will depend on you today, so you show up and its not me. Forgive me for carrying the burdens you never intended for me to carry and I release it all over to you today ___________ (speak outloud your struggles you are battling with today).

I pray this post helps you as God prepares you for your breakthrough. Blessings. ~OC

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A Day In The Life

Today’s a new day! Ever wondered what a day living with chronic illness and health challenges looks like? Today I will take you on a journey into the twist and turns of a day living with long-term health issues.

From the moment I wake up, I’m already facing barriers. My chronic illnesses make it difficult to get going. For those not aware, based on my health issues, I have slept in a recliner for about the past twenty years. It’s just too hard to get in and out of a bed. Every day is a balancing act where I have to be mindful of my energy levels and make sure that I’m taking time to rest. 

An Introduction To My Health Journey:

In 2002, I was diagnosed with multiple forms of arthritis. That year was filled with a lot of experimental treatments. Then in 2003, I was diagnosed with cancer. Thankfully I was able to have surgery to remove the tumor and never had to walk through the struggle of chemo and radiation. Let’s speed things up. From 2007-2024, I have been diagnosed with Parkinson’s, Myasthenia Gravis, Gastroparesis, Type 2 Diabetes based on all the steroids, had a stroke, diagnosed with cluster headaches and just a few months ago was diagnosed with early onset dementia. That’s my rap sheet!

What My Night and Morning Looks Like :

Based on my neurological issues, I am up and down most of the night. So I never wake up feeling rested. I wake up stiff, so I need to move around and take a host of medications in the morning. Of course meds have side effects, so that can be difficult.

Since I deal with gastroparesis, eating has been a major issue for many years. That makes taking in fluids and food a huge and painful task. So every meal, every day is an adventure.

My mornings are dedicated to spending time with God, journaling and trying to exercise. For me, walking is the best type of exercise for me. I never know how many laps I will be able to get in. I have to be careful not to overdo it. If I do overdo it, my body will pay for it the rest of the day. I spend some time each day for reflecting on life and looking at how I can hopefully encourage others as I continue running this journey. These days, I tend to take a lot of short cat naps. Over the last year, the pain has increased, so that’s a daily struggle. Unfortunately, pain meds and gastroparesis do not really care for each other. So most days, I just live with the pain.

One thing I choose to do everyday is get dressed. I never lay around in my sleeping clothes. It makes me feel good to get cleaned up and get dressed.

My favorite part of any day is spending time with my bride and friends that choose to reach out. Spending time with loved ones is very important to me. I love sitting around and enjoying great conversations. Also, I try to read every day. My love for reading has been challenging the last few years, since it’s hard to stay concentrated. I also spend time listening to music each day. Music can make everything a little bit better.

In the evening, Laura and I like to talk about our day and possibly watch a little television. Based on my day, my bedtime varies. But since I sleep in my recliner, I can fall asleep anytime my body and brain allows me to. Every night is an adventure.

What I consider a daily self-care must do:

Writing about what I’m grateful for in my journal helps me remember the positives, even on those really hard days. Living with long-term health conditions can be exhausting and can be very negative if you allow it to get on top of you. 

Several people have asked if I had one day without pain and could step away from my health journey what would I do?

I would lace up my running shoes and go for a very long run. For those new to my journey, in my healthier days I was blessed to complete 350 marathons.

Another question people asked me a lot: Is there anything I would like to share about daily living with chronic illness and life challenges?

There’s a lot, but I do not want to make this post any longer than it already is. One of my hopes is, people will realise that we never know what someone else is really going through. So be kind and respectful. It doesn’t help when people tell me how I should be living out my health journey. Just be supportive and walk through this journey with me.

By sharing what my day to day life is like, I hope I can raise awareness of the bigger picture as people only see snippets of my journey online or see me on my best days in person. I am not sharing this for pity or sympathy and I am not complaining. I just want to give you some insight into this crazy beautiful health journey.

The Takeaway:

Writing about my day living with chronic health issues has been quite eye opening to me to see how much life has changed over the years. I have a strong need to celebrate the love and support I have received over the years from family and friends. Writing this post has let me see how faithful God has been to me, as I continue to run this beautiful journey.

I hope that you have found this post to be a helpful insight into life with with long-term health issues. There are so many people walking through a tougher battle than me. So if you know someone dealing with chronic illness, take the time to reach out to them and support them on their journey. ~OC

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Our Health and Living

Today’s a new day! Long-term and terminal illnesses can be a scary road to navigate. It’s hard on one’s body, mind and soul. And everyone that cares for them. How will my body and mind handle today? That’s a question I ask myself on a daily basis. Chronic and terminal illnesses also raises many questions that many people shy away from unless they are faced with it directly. But if we’re listening, many lessons can be learned.

Health issues have a way of reminding people that time is a valuable, non-negotiable, and a non-renewable resource. With that said, how do we look at the bigger picture of life and find out what is truly important? 

Spend Time Focusing on Relationships:

We were not meant to do this life alone. God did not create us to be Lone Rangers. I know of no one who regrets time spent building meaningful relationships regardless of life’s struggles.

Take time to ask yourself the following question: Are you truly making time for your family and friends?

Trim That Fat:

I am not talking about dieting and exercise, but those are important parts of our lives.

No, I am referring to something that a lot of times we do not even notice. I am referring to our home and our lives. We all have a tendency to fill both with clutter and hang on to things we do not need. A life-changing diagnosis can become the catalyst for the housekeeping of our home and heart as we realize what is truly important in our lives. It is also a good time to reflect on our faith.

 “Let us throw off everything that hinders and the sin that so easily entangles. And let us run with perseverance the race marked out for us.” ~Hebrews 12:1-2

Speak your Heart Now:

It is good for all of us to review and consider our relationships. Because we all know relationships can be messy at times. If we love people, why not let them know how much they mean to us. Now! Why wait until it’s too late? If we have hurt someone or offended them in some way, why not seek their forgiveness and do what we can to make it right.

Who are the most important people in your life? Take a moment to think about that. Maybe even say their names out loud or write them down. Then ask yourself this question: Have I honestly shared what each of those individuals truly mean to me?

“A heart at peace gives rest to the body.”   Proverbs 14:30

Set New Goals (Dream!):

It can be easy to wait for a challenging season to be over. “When I get better, then I will take that trip.” “When I get better, then I will _____.” Why not take that trip now? As I have walked through this long journey of health issues, Laura and I have learned to take those trips now. Even though those trips can be tough on my body, the memories are priceless. So go live out that adventure. Experience love, joy and happiness during even the toughest of times. I encourage you to find what brings you happiness and go experience it. Keep dreaming some big dreams, set some goals, and do what you possibly can to make them happen.

Many facing long term health challenges find that those trials have helped them clarify and simplify their lives.

During my own health journey, I have discovered what’s truly important in life. For me, it’s my faith, my relationship with my bride, relationships with loved ones, encouraging others and truly living out my God-given purpose in life.

What can we learn from this?

Praise be to the God and Father of our Lord Jesus Christ,
the Father of compassion and the God of all comfort,
who comforts us in all our troubles,
so that we can comfort those in any trouble
with the comfort we ourselves receive from God. ~2 Corinthians 1:3-4

I hope and pray the words above have brought some comfort and encouragement. Go live your life! ~OC

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Warning!

Today’s a new day! Be careful of people who claim to be your friend, feel the freedom to share your story, but you haven’t seen or heard from them in months or even years. Do not allow them to be part of your boat. They add nothing to your story. ~OC

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