Today’s a new day! Reflecting on my health journey, I’m reminded of the twists and turns that have shaped me into who I am today. It’s been a winding road, filled with ups and downs, but through it all, I’ve felt God’s presence guiding me every step of the way. The rough roads have taught me resilience, the detours have shown me new paths, and the smooth roads have given me peace. I’m grateful for this journey, and I trust that God will continue to lead me forward, even when the road ahead is uncertain. ~OC
Finding Purpose in the Storm
Today’s a new day! As I sit in this hospital room, surrounded by beeping machines and the business of staff, I am reminded that my purpose extends far beyond my physical body. In the midst of uncertainty and pain, I pray: Dear God, use me for your purpose during this hospital stay and every day as I continue to fight through this crazy beautiful health journey.
For me it’s a prayer of surrender, of trust, and of faith. It’s a reminder that even in the darkest moments, God’s love and patience remain unfailing.
Embracing the Unknown:
When we’re faced with the challenges of life, it’s easy to feel like our lives are spinning out of control. But what if we flipped that perspective? What if this season of uncertainty is an opportunity to discover a deeper sense of God’s purpose for our lives?
For those walking through their own “crazy beautiful journey,” I encourage you to pray the following: Dear God, use me for your purpose… I am thankful for your unfailing love and patience with me.
Practical Ways to Find Purpose:
1. Prayer and Reflection: Take time each day to connect with God. Reflect on your experiences, and ask Him to reveal His purpose for your life.
2. Support Loved Ones:Reach out to family and friends, and let them know you’re thinking of them. Sometimes, a simple text, handwritten note or phone call can bring joy to someone’s day.
3. Share Your Story: Consider sharing your journey on social media, a blog or write a book. Your story might encourage others who are facing similar challenges.
4. Find Ways to Serve: Even in a hospital room, you can serve others. Share words of encouragement with the staff, pray for the staff and others walking down the hall. Show kindness and respect to everyone you encounter today.
A Prayer of Thanksgiving:
As I continue to navigate through this health journey, I am grateful for God’s unfailing love and patience. I’m thankful for a loving and supportive bride, I am thankful for my medical team that’s been taking care of me for many years, I am blessed by the the loved ones who pray and support me, and for the opportunities to grow in my faith.
If you happen to be reading this post and are facing your own challenges, know that you’re not alone. You’re loved, you’re valued, and you’re part of a larger story.
A Prayer for Today:
Dear Jesus, use us for your purpose during the stressful times of life and every day as we continue to navigate through this journey called life. We’re thankful for your unfailing love and patience with us. Amen
Challenge of the Day:
How can you use your life experiences, past and present to bless and help others today? ~OC
2AM Thoughts
Today’s a new day! It’s 2am on this Tuesday morning. I have been unable to fall asleep. It’s just one of those crazy nights with Parkinson’s and Dementia. So I have walked around the house more times than I can remember. I have watched several YouTube videos to pass the time. Finally, I have decided to share my experience and thoughts with you. Writing is still something my brain allows me to do on occasion. Lately, God has filled my brain with many thoughts. I feel an urgency to write as much as possible before I can no longer do that. Tonight, my brain is extra active. That’s not always a good thing.
I have good days and bad days as I navigate through the multiple health issues that are slowly robbing me of so much. On a bad day, I cannot do anything at all. My energy levels are low and I feel fatigued. The only way I can describe it is that I feel like I have run a hundred marathons in a very short amount of time. I feel totally drained.
But I have lots of coping strategies. I choose to use those days to pray a lot more. I choose to reach out to friends even though I know, I will not hear back from the majority of them.
I think it’s important to have something that gives you a sense of purpose in life. I try to share my journey to help encourage others walking through their own life struggles. If I can help just one other person, that’s enough for me.
When most people think about neurological issues, especially dementia they think it’s all about memory loss. But I have cognitive issues also- trying to figure things out can be difficult and frustrating. Also too many voices at one time can be overwhelming. I get frustrated and anxious if I am struggling to follow the conversation. I also deal with a lot of rigidity and pain, which creates so many issues.
Over the years I have lost many friends as I have walked through this crazy beautiful health journey. I believe a lot of people have a difficult time talking to and relating to me. But I am still me. My story has just changed a little. A lot of times when Laura and I are around other people, they will address questions to her, not me. My prayer is that people would see the person, not the disease.
But I am blessed that a few friends have decided to stick around and not jump ship. I hold those friendships very close to my heart.
I choose to embrace each moment of life. I try to share my love and thoughts now. Not waiting for the perfect moment. Because the perfect moment is today. Laura and I do not wait for the perfect moment to buy that gift or take that trip. Now is the perfect time. Now is the perfect time to take care of future arrangements. Which we have done. I did not want Laura dealing with all of that on her own.
It also means we’ve had really indepth chats about what quality of life really looks like. Everyone has to figure that out for themselves and their loved ones.
Life looks different every day. What I could do yesterday, might be more difficult to accomplish today. I continue to live my life with my cup overflowing. I try not to beat myself up too much when I cannot do something anymore. Because there are still many things I can do. So today, I choose to embrace the now and what I can accomplish today. ~OC
Guiding Light
Today’s a new day!
Our hope in Jesus, a beacon of light in our darkest moments,
With every step, with every misstep
He lifts us up, standing tall
In His love, we find our way
Through trials and tribulations each day
With faith as our guiding light
We navigate through life’s struggles
Jesus, is our Savior, and friend
Our hope in Him will never end
May His presence be our guiding light
Leading us step by step. ~OC
Marriage Vows
Today’s a new day! On this date twenty-six years ago, I had the honor of marrying my bride Laura. When we shared our vows on that Friday night we had no idea that the majority of our marriage would center around my health issues.
Like every newlyweds, we thought The big stuff, the hard illnesses, would come later in life. That definitely has not been part of our story.
I was taken by surprise when life-threatening illness hit our home – and even more surprised when it happened to me. Without any warning signs, I began experiencing severe fatigue and muscle weakness. Within a few months and after a number of tests, Laura and I were told I had several forms of crippling arthritis. Only to find out a year later, I was actually dealing with a very rare type of cancer. (only 2% of the population deals with this type of cancer). We had no idea how that diagnosis and then multiple life threatening diseases would become part of our everyday lives.
My wife Laura and I were still in our honeymoon season of our marriage. This kind of thing wasn’t supposed to happen. I felt helpless as Laura cared for me in addition to working her full-time job and working on her masters degree. While I was in the hospital, she stayed by my side, trying to work and get some rest in some uncomfortable chairs. Watching her husband struggle to just breathe at times.
Over the years, Laura has taken on most of the she household responsibilities. She makes meals, vacuums and chauffeurs me to multiple medical appointments. She does this all with a smile and encouraging words.
I was and still am blown away by how Laura continues to care for me all these years later. At times, I have found myself frustrated that I cannot do more to make her daily grind a little easier. Her kindness continues to overwhelm me.
As I reflect on this health journey we continue to walk together, it gives me a deeper appreciation of God’s purpose for marriage. Sacrifice is lived out in homes around the world as couples serve each other through illness, financial crisis and family issues. No matter their story, husbands and wives face opportunities to love without seeking anything in return. Why? So they can experience God’s heart through one another and live His love for one another.
Every opportunity we have to serve our spouse gives us the chance to live out the love story God crafted for us. He gave His Son so that we could have life. There was nothing we could give in return – nothing we could do to pay Him back. And yet He chose to give anyway.
Laura continues to live out her commitment to stand by me in sickness. She has more than fulfilled her marital vows – she has become a living illustration of God’s love. ~OC
The Race Called Life
Today’s a new day! During my running days, I was blessed to complete 350 marathons. Yes, you read that correctly. I can take no credit. It was all God pushing me through those marathons. People often ask me why I ran 350 marathons? I tell them I did not like the number 349.
It’s been a number of years since I was able to run based on my health issues. While I would have never considered myself a professional by any means, I like to think I learned a few things during my running days. Like how to stabilize my breathing (well, I did my best) and how to run at a steady pace. Once again I tried my best. Running is a lot like living the Christian life. We have many lessons to learn. I learned a lot of lessons during my running days that I have been able to apply to my Christian journey.
One of the first lessons you learn when you start running is that you need to have endurance. Whether you’re running a 5K or a 50 miler (yes, I did that), you need to train so that you can run at a steady pace and not get worn out quickly.
The Christian life requires endurance as well. Life can seem long and hard as Christians, especially in the midst of challenges. Many people have made the comparison that life is a marathon, not a sprint, and the same goes for the Christian life. As the writer of Hebrews says, “For you have need of endurance, so that when you have done the will of God you may receive what is promised” (Hebrews 10:36).
When you’re running, especially long distances, you want to lay aside everything that could weigh you down so that you only have the essentials. Lightweight shoes and light breathable clothing. As a runner you need to find the perfect balance between bringing what is necessary and those things that would just weigh you down.
In the Christian life, we are called to lay aside what weighs us down—namely, sin and any idols in our lives. Hanging on to those idols can cause our faith to falter and stumble. Letting go of idols in our lives frees us to live a life that is dedicated to Jesus. As the writer of Hebrews says:
“Therefore, since we are surrounded by so great a cloud of witnesses, let us also lay aside every weight, and sin which clings so closely, and let us run with endurance the race that is set before us, looking to Jesus, the founder and perfecter of our faith, who for the joy that was set before Him endured the cross, despising the shame, and is seated at the right hand of the throne of God.” (Hebrews 12:1–2)
As a runner, you come across trials and challenges. Whether that’s a heatwave, snowstorm, rainstorm, or injury, runners face challenges that impact their race. You can never predict these trials and instead you just have to take them as they come. But you cannot allow the obstacles in life to keep you from living the race God has designed just for you.
In the same way, as Christians we can face unexpected challenges and suffering. From a poor diagnosis, a lost relationship, a lost job or a broken family. This race called life can be difficult. But thankfully, we are being made perfect through the grace of God. As James writes in James 1:2-4, “Count it all joy, my brothers, when you meet trials of various kinds, for you know that the testing of your faith produces steadfastness. And let steadfastness have its full effect, that you may be perfect and complete, lacking in nothing”
My prayer is that we will all run this race called life with endurance and receive the beautiful gift of eternal life. ~OC
My Life With Dementia
Today’s a new day! As I continue to walk through this crazy beautiful health journey, I have always wanted to be upfront and honest when sharing my journey with you. So this morning, I want to share a post I have been working on for several weeks. It’s my life with dementia. I apologize in advance for the long post.
When I was diagnosed with young onset dementia last year, part of me thought there has to be a mistake, but it was also a relief to have some answers on why my life seemed a little out of focus. But it was still hard to hear “you have dementia.” Like so many people diagnosed with young-onset dementia, I was still planning a future with my bride. How was dementia showing up in my 50’s?
But here I am, almost a year later.
What I have learned is a dementia diagnosis isn’t the end of life. It just means life looks a little different.
Of course my life has looked a little different for the last twenty-three years dealing with multiple health issues. But over the last two decades, my faith and life experiences have taught me it’s possible to live a fulfilling, purposeful, and even joyful life even while dealing with the uncertainty of declining health. A diagnosis of dementia was not going to change that. At least I hope and pray that will be the case.
So as I walk out this journey called dementia, I wanted to share a few things that are working for me. This is not a neat how to live with dementia list, because dementia is not an easy follow these instructions and everything will be okay disease. No, dementia is a unpredictable roller coaster ride. Every day brings new challenges, but also new opportunities.
My hope and prayer is that this blog post will help create conversations. If you’re living with dementia, or supporting someone who is, I hope these tools help you live a full life regardless of the diagnosis.
My Dementia Toolbox:
I choose to live each day with Hope and Purpose.
I choose to live a life full of new adventures. Never stop making memories with family and friends.
I choose to maintain my independence as long as possible.
I choose to continue connecting with family and friends.
I choose to adapt to the changes dementia brings and never give up.
I choose to hold onto my identity and what makes me “me.”
I choose to keep learning new things each day.
I choose to live out my life and faith.
I choose not to avoid the declines that dementia brings, but to make the most out of every day and refuse to let dementia silence me.
Finally, living with dementia is not an easy journey. There are moments of loss and frustration, but there are also unexpected discoveries, laughs, and the good will of family and friends. ~OC
Bearers of the Mat
Today’s a new day!
“And when he returned to Capernaum after some days, it was reported that he was at a home. And many were gathered together, so that there was no more room, not even at the door. And he was preaching the word to them. And they came, bringing to him a paralytic carried by four men. And when they could not get near him because of the crowd, they removed the roof above him, and when they had made an opening, they let down the bed on which the paralytic lay.” ~Mark 2:1-4
I have always loved this story. It truly demonstrates the love of friends and our need for solid friendships. The four men in Mark 2, went beyond normal friendship and became “Bearers of the Mat.”
These four friends saw their friend needed a miracle in his life. They heard Jesus was in the area, so they decided to pick up their friend’s mat and get him to the Great Physician. We have no idea how far these four men had to walk carrying their friend, just to get to Jesus. No doubt they were exhausted by the time they reached the door of the house where Jesus was. There they found a new obstacle. The house where Jesus was speaking was beyond packed. But these four men persevered. Their friend needed a miracle and they were determined to get him to Jesus. Even if it meant carrying their friend to the roof and cutting a hole into the roof, so they could lower their friend into the room where Jesus was speaking. Can you imagine what a sight that must have been? What an amazing moment it must have been when after all that hard work, these four friends watched in awe as their friend was completely healed by Jesus. What a day of celebration that must have been.
Every time I read the story in Mark 2, two questions come to mind:
1). Do I have friends like these four men?
2). Am I a friend like these four men?
I pray we will all take the time to check our hearts as we reflect on these two questions. I truly believe Jesus wants each of us to serve one another willingly and wholeheartedly. Let’s become “Bearers of the Mat” ~OC
Vision
Today’s a new day! As we start this new week, let’s take some time to talk about vision.
“Where there is no prophetic vision the people cast off restraint, but blessed is he who keeps the law.” ~Proverb 29:18
Vision is the ability to see God’s plans concerning our future. Vision is revelation that gives life meaning, value, direction, significance and purpose. Vision holds endless possibilities of what could be and what should be. Without vision there is nothing that keeps our lives on track and we end up wondering through life with no purpose. Author and Educator Helen Keller once said, “The only thing worse than being blind is having sight but no vision.” If our vision is compromised, it’s like a boat with no rudder. We will aimlessly wonder around with no direction.
When we have clear vision it gives us the ability to imagine what our future might hold. Vision gives us the ability to dream big dreams. Living with vision gives us hope to make it through the tough days and moments in life. Vision inspires the depressed and motivates the discouraged. God created each of us for a purpose. Within that purpose is our vision for life. I believe purpose is knowing and understanding what God created us to accomplish in life, and vision is when we conceive it in our minds through faith and begin to live it out. Vision is a glimpse of our future that God has designed just for us. ~OC
Today’s Prayer:
Dear God, I pray you would bless each of us with vision and a purpose that can only come from you. I pray all of this in the matchless and powerful name of Jesus. Amen.
.
Never Give Up
Today’s a new day! I think most people do not like to be uncomfortable. Most people do not like the hard moments in life. Most people do not like to be burdened or inconvenienced. Yet, in the tough moments in life, God never calls us to give up. Instead, He calls us to keep on pushing and trusting Him, even in the most difficult moments.
As a former marathon runner and someone who has been walking through a crazy beautiful health journey for over twenty years, I am used to being uncomfortable. I am used to the hard moments in life.
As I have walked through the tough moments in life, here are a few lessons I have learned:
Never give up on your prayers.
Never give up on the people God has placed in your life.
Never give up on your dreams.
Never give up on yourself.
Never give up when you face hard times or failures.
Most importantly, never give up on God.
The beautiful thing about God and his amazing grace is that He never gives up on us. He calls us back even when we decide to stray away and do things on our own. God is always there waiting for us with open arms. Remember, every battle we will ever face was defeated on the cross when Jesus gave his life for us.
I am not sure what type of season you’re walking through at this moment. Maybe you have been praying the same prayers over and over for years, but they seem like they will never be answered. Don’t give up.
I want to encourage you to never limit God and put him in a nicely decorated box. Allow Him to work through you and never give in to those temptations to give up.
Looking back on all of my marathons, I am so glad I completed each of my races and never gave into the temptation to quit. Based on my health, those marathons were never easy on my body, but each taught me about overcoming and to never give up.
I believe our faith and life journey is like a marathon, it’s not promised to be easy, it’s going to be hard and full of twist and turns, but our finish line and reward in eternity is far greater than anything we could ever imagine.
So today, keep pushing, keep fighting and never give up. ~OC
“I have fought the good fight, I have finished the race, I have kept the faith.” ~2 Timothy 4:7
The Blessed Overcomer 