Leaning Into The Word…

Today’s a new day! As my health continues to decline, I choose to lean into the word of God and not allow my health issues to become my primary focus. The following are just some scriptures, that have helped me during this crazy beautiful health journey. If you’re currently walking through a season of health issues, I pray these scriptures will bring you hope and comfort. Keep leaning in. ~OC

“My flesh and my heart may fail, but God is the strength of my heart and my portion forever.”
‭‭~Psalm‬ ‭73‬:‭26‬ ‭

“Jesus Christ is the same yesterday and today and forever.” ~Hebrews‬ ‭13‬:‭8‬ ‭

“Is anyone among you sick? Let him call for the elders of the church, and let them pray over him, anointing him with oil in the name of the Lord.”
‭‭~James‬ ‭5‬:‭14‬ ‭

“Heal me, O Lord, and I shall be healed; save me, and I shall be saved, for you are my praise.”
‭‭~Jeremiah‬ ‭17‬:‭14‬ ‭

“Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.”
‭‭~Isaiah‬ ‭41‬:‭10‬ ‭

“He will wipe away every tear from their eyes, and death shall be no more, neither shall there be mourning, nor crying, nor pain anymore, for the former things have passed away.””
‭‭~Revelation‬ ‭21‬:‭4‬ ‭

“So we do not lose heart. Though our outer self is wasting away, our inner self is being renewed day by day. For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison, as we look not to the things that are seen but to the things that are unseen. For the things that are seen are transient, but the things that are unseen are eternal.” ~2 Corinthians‬ ‭4‬:‭16‬-‭18‬ ‭

Along the Journey

Today’s a new day! As I continue to run this crazy beautiful health journey, I want to continue sharing some wisdom and life lessons with you. I pray they will challenge and encourage at least one person.

Twenty-three years ago, I sat in a sterile doctors office as the doctor shared I would probably be dead within five years. As I have continued running this crazy beautiful health journey, I have heard similar predictions from many doctors. Today as I write these words, my prognosis is not great. But as I write these words, I laugh a little because God continues to let me thrive in life despite the poor diagnosis. Throughout the past twenty-three years, God has answered the prayers of many. He continues to give me a reprieve. God continues to work miracles.

During the past twenty-three years of this crazy beautiful health journey, I have learned many lessons. I thought I would share a few.

I have learned to not fear death, but anticipate it with joy.

I love the words of the Apostle Paul,

“As it is my eager expectation and hope that I will not be at all ashamed, but that with full courage now as always Christ will be honored in my body, whether by life or by death. For to me to live is Christ, and to die is gain.” ~Philippians 1:20-21

I believe most Christians do not fear going to be with Jesus. It’s the pain and suffering that often precedes death that makes us a little uneasy. But I think as Christians, we tend to look at it the wrong way. Most of us think that we are in the land of the living en route to the land of the dying. But nothing could be farther from the truth. If we know Jesus, we are in the land of the dying traveling to the land of the living. I have experienced amazing peace during my hardest days. I have felt contentment and surrender wash over me.

Be brave. When I open my eyes each morning, I hear God singing these words to my heart.

“The Lord is my light and my salvation; whom shall I fear? The Lord is the stronghold of my life; of whom shall I be afraid?” ~Psalm 27:1

Most days , I deal with a lot of pain, weakness, nausea and horrible headaches. But each morning, I make the choice to get up and look forward to all that God has planned for me that day. Now that doesn’t mean I do not have rough days. I definitely do. That is why I always try to share the good and not so good parts of my journey. But I look at others who are suffering more than me and see how they do not complain and are living life with a beautiful sense of joy. I figure if they can face the pain with faith, so can I.

Let God’s Word empower you.

Speak it. Pray it. Sing it. Envision it. The more you allow God’s word to feed your soul, the stronger your spirit becomes. When I am feeling too weak to do anything, I open God’s word or listen to praise music to help me through those tough moments.

I love what the psalmist wrote in Psalm 119:92-93:

“If your law had not been my delight, I would have perished in my affliction. I will never forget your precepts, for by them you have given me life.” ~Psalm 119:92-93

Remember. Be grateful. Be glad. 

As I have faced this health journey, Laura and I have decided to continue traveling and making precious memories. On the really tough days, I look at those pictures and re-live those beautiful moments. I feel so blessed to connect with friends old and new, with family, with former classmates and everyone I have met on this amazing life journey God continues to let me live. All I can do is smile. Well, I cannot really smile that well these days, but I try.

The Apostle Paul shared the following words while sitting in a prison cell:

“For what thanksgiving can we return to God for you, for all the joy that we feel for your sake before our God,” ~1 Thessalonians 3:9

Embrace each precious moment. 

I have learned to not leave any words unsaid. Hug the people you love (or fist bump). To share and give freely. Leverage your time and energy for God’s purpose.

Over the past twenty-three years, I have faced death many, many times, but God allows me to keep standing. During this journey, I have learned what really matters in life: my relationship with God, my family/friends, serving others and not waiting for the perfect time to make amazing memories.

“So we do not lose heart. Though our outer self is wasting away, our inner self is being renewed day by day. For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison, as we look not to the things that are seen but to the things that are unseen. For the things that are seen are transient, but the things that are unseen are eternal.” ~2 Corinthians 4:16-18

When life gets dark, the glory of God shines brighter. I am not afraid of the valley of the shadow of death, because He is with me….closer than I could have ever imagined! ~OC

Happiness

Today’s a new day! As I continue to walk out this crazy beautiful health journey, I want to continue sharing some wisdom and life lessons with you. I pray they will bring you encouragement.

Today’s Lesson: Happiness

Happiness is something you decide on ahead of time. It is a decision I make every morning when I wake up. I have a choice; I can spend the day recounting the difficulty I have with the parts of my body that no longer work, or be thankful for the ones that do. Each day is a gift, and as long as my eyes open, I have breath in my lungs, I will focus on the new day and all of the opportunities it presents.

Happiness is like a bank account. You withdraw from what you’ve put in. So, my advice to you would be to deposit a lot of happiness in the bank account of life.

Here are five simple steps to living out happiness:

1. Free your heart and mind from hatred.

2. Free your heart and mind from unnecessary worries.

3. Love and Live simply.

4. Live out your dreams and purpose.

5. Give more than you take.

Have a great day filled with love and happiness. ~OC

Life’s Journey and Lessons

Today’s a new day! As I continue to walk out this crazy beautiful health journey, I thought I would share some thoughts and lessons learned along this journey. So for the next few days or weeks, I will hopefully share some wisdom and life lessons with you. I pray they will bring encouragement to all that takes the time to read my post.

The next few days or weeks, will be a reflection of the legacy I hope to leave behind for my family, friends and anyone who takes the time to read my post. As I continue to walk this health journey, I cannot control my declining health, but I can control how I deal with it and hopefully the positive impact I can have on others.

As I walk through this life, I want to encourage people to chase your dreams, embrace the challenges of life and to savor every precious moment.

Each day, I want to share a key lesson learned along the journey. Here is the lesson for today:

Embrace the challenges of life and make the most of your time here on earth. As I continue walking this journey, I have decided not to retreat from life, but instead to hopefully encourage others walking through their own life journey.

Finally, I hope and pray by sharing these life lessons, they will encourage you to reflect on your own journey and how you want to live it out. ~OC

Simply David

Today’s a new day! I wanted to take a few days before responding to the irresponsible comments made by Secretary of Health and Human Services Robert F. Kennedy, Jr. earlier this week.

Laura and I have a wonderful and loving nephew living with autism. I should correct myself and say that David is thriving in life. As a child, the doctors shared David would never talk, or be able to take care of himself. Oh, how wrong they were. Today David is in his mid twenties and will talk all day if you let him. He also works two jobs and pays taxes. David has won multiple Special Olympic Medals. He and his father volunteer weekly at their church. Everyone at church knows and loves our nephew. David is living his best life.

So when Mr. Kennedy stood before the cameras and declared that children like David “will never pay taxes, never hold a job and never write a poem, I looked on with horror. Mr. Kennedy then went on to claim autism is “a preventable disease” and promised a lightning-fast investigation to root out its so-called environmental causes. While we must look at every possible cause of autism, including environmental factors, we cannot ignore the decades of scientific research that has already been conducted.

And remember, this is coming from a man with no real medical background.

This coming from the man responsible for guiding the United States’ national health policy. Let that sink in for just a second.

What Mr. Kennedy did at that podium was spew misinformation. It was a new level of fear-mongering. It was the 21st-century version of a snake oil salesman promoting false promises with no credible science.

Let me share what autism actually looks like.

It looks like David playing tennis or pickle ball. It’s David being so excited to dress up like Spider-Man to bring some enjoyment to others. It looks like David always checking in on me during and after a hospital stay. It looks like David making Auntie Laura a sandwich or bringing her a fresh drink. It looks like David constantly looking for ways to serve others. That’s what autism looks like.

David is not a victim. He does NOT fit any of Mr. Kennedy’s cartoonish depiction of helplessness.

I realize autism looks different for every individual and family. But in my nephew’s case, he is kind, he continues to learn and he is thriving in life. David has already defied every negative prediction made about him when he was a child.

And if I have to listen to Mr. Kennedy or any other politician turn my nephew into a sound bite for political gain, I will keep using the power of my voice and the power of the pen to call out such blatant misinformation. And I will continue to encourage everyone to reject these false narratives by voting against them on election day.

My nephew is not a tragedy. And he is certainly not an epidemic. He is simply David. A young man with hopes and dreams like the rest of us.

I would encourage everyone to actually do your own research on autism and other health issues and not the words of a man who only cares about pushing his own twisted agenda. Thanks for reading. ~OC

Joy In The Morning

Today’s a new day! As I continue to run this crazy beautiful health journey, sometimes I wake up in the middle of the night and cannot fall back asleep. On those nights, I usually end up scrolling through social media to see who needs prayer and pray for the needs I already know about. On some of those restless nights, I find myself singing the old hymns that I learned as a child.

Blessed assurance, Jesus is mine;

Oh, what a foretaste of glory divine!

Heir of salvation, purchase of God,

Born of His Spirit, washed in His blood.

This is my story, this is my song,

Praising my Savior all the day long.

This is my story, this is my song,

Praising my Savior all the day long.

Perfect submission, perfect delight,

Visions of rapture now burst on my sight; Angels descending, bring from above Echoes of mercy, whispers of love.

Perfect submission, all is at rest,

I in my Savior am happy and blest;

Watching and waiting, looking above,

Filled with His goodness, lost in His love.

I know the words to every verse of this song as well as many other hymns from my childhood. As I sing these beautiful hymns, I sense the quiet embrace of God’s presence around me. I have assurance that He is as close as my next breath and there will be joy in the morning.

“The steadfast love of the Lord never ceases; his mercies never come to an end; they are new every morning; great is your faithfulness.” ~Lamentations 3:22-23

I am thankful for this reminder that God brings joy in the morning through His whispers of love in our little victories and echoes of mercy in our failures. ~OC

Still Standing and Thankful

Today’s a new day! I don’t like being in pain and I don’t like having multiple health issues that will probably shorten my life. I would love to grow old with my bride. But I realize that may not be the plans God has for my life. But I know and I trust that He is faithful. God’s plans are the best and do not revolve around me. Acts 13:36 says, “when David had served God’s purpose in his own generation, he fell asleep”. When God has done what he wants through me, I will step into heaven in his perfect timing.

Why has God allowed me to walk this health journey? Maybe it is to help me be a better husband and friend. Maybe it’s an opportunity to share the love of Jesus with more people. Maybe it’s for reasons way beyond my understanding. All I know is that God has given me this gift of health issues to use for his glory. All I know is that I will continue to trust and serve him.

Sometimes it is still hard to comprehend that my life could end at any moment. But isn’t that the case for all of us? As the Bible teaches,

All men are like grass,
and all their glory is like the flowers of the field;
the grass withers and the flowers fall,
but the word of the Lord stands forever
. (1 Peter 1:24)

When I received my first diagnosis in August 2002, it was a total shock. I knew I didn’t feel great, but I had no idea how I was so sick. My life at that time involved being a husband, a social worker and volunteer at multiple ministries.

Back then, some doctors shared I might only have five years to live. However, God had other ideas and even though my health journey has been full of twist and turns and multiple life threatening illnesses, I am still standing. Some days my life has felt like a ticking time bomb. My bride has become an expert in dealing with multiple infections,various types of devices being surgically implanted into my body and various treatments to just keep me alive.

As the multiple health issues continue to weaken my body, I am thankfully aware that Jesus is my Lord and Savior in whom I can depend, and that all other ground is sinking sand. I am so grateful to God for everything. I am thankful for who God is, his majesty, his splendour, and his promises. I am thankful for my bride, family, friends and life. I am so thankful to God for the resurrection of Jesus which means I will have victory over death and do not need to fear what my future holds. It is such a comfort to read,

“Death has been swallowed up in victory”
  “Where, O death, is your victory?
  Where, O death, is your sting?”
The sting of death is sin and the power of sin is the law. But thanks be to God. He gives us the victory through our Lord Jesus Christ. (
1 Corinthians 15:54-56)

As my body grows weaker, I am thankful God continues to allow me to truly embrace life. To continue making beautiful memories with my bride. Some dear friends even bought me an electric trike to get around town. Watch out world! I will enjoy the new bike in between my many naps. After years of not being able to sleep, most of my days now involve sleeping most of the day.

What can be hard is coping with chronic pain and deteriorating health while still navigating the physical and emotional challenges of trying to live a “normal life.” Another challenge is not knowing what each day might bring. It is impossible to make plans. Between multiple medical appointments and hospitalizations, it can be difficult to make any plans.

However, I am just so thankful for God’s guidance through his word. The Bible is so clear about what God wants me to do now, even as I grow weaker: “Be joyful always; pray continuously; give thanks in all circumstances; for this is God’s will for you in Christ Jesus (1 Thess 5:16). God is so clear. This is what God wants me to do now. I am thankful he continues to allow me to live an amazing life.

So, I will continue to thank God for this gift of health issues because he is good and he is using it for his purposes. The plans of the Lord are perfect, even if I do not always know the reasons I continue to walk through this crazy beautiful health journey. All I know is that someday, I will be in the loving presence of Jesus. But until then, I will continue to live life and embrace every moment. If you see me out and about on my trike, stop and say hello. Oh, and wake me up if I happen to be asleep. ~OC

Between the Dash

Today’s a new day! How do you want to be remembered? Another way to ask this question is what do want your life to stand for beyond the dash between your date of birth and the day you leave this world? This may sound like a depressing post, but actually thinking about how you want to be remembered could make a huge difference in the way you live your life.

Most people shy away from talking about death; it feels morbid. But one thing that is for sure in this life is -unless Jesus comes again soon to rapture his people —all of us will face death and all of us will leave behind a legacy. It should not be morbid or depressing to think about how you want to be remembered; it’s smart, and it could be life changing.

How would you choose to live your life if God revealed to you the day, month, and year when you would pass from this life into eternity? How would it affect your daily routine?

In the Bible, Psalm 90 is titled “A prayer of Moses the man of God,” and here’s part of that prayer:

Teach us to number our days, that we may gain a heart of wisdom(Psalm 90:12).

And in Psalm 39:4, King David prayed:

Show me, O Lord, my life’s end and the number of my days; let me know how fleeting my life is.

These two were on the same page, even though centuries apart. They were not asking for a gift of prophecy, but rather, they were asking God to help them live like they were dying—to live in the reality that their days were numbered, and that this life is fleeting.

How often have we prayed such a prayer: Dear God, show me how fleeting—how brief, how short, how transient—my life is? Suppose we began each of our days with this type of prayer, asking God to help us number our days. We would then begin to live in the knowledge that this world is temporary, but eternity is forever.

As I have run this crazy beautiful health journey, I have probably spent a little more time thinking about my mortality. Today, I want to encourage you to give a little more thought to the truth that you will leave this life one day and enter eternity. Are you living with eternity’s values in mind? I believe this is a good question for all of us to consider. ~OC

Deep Roots

Today’s a new day! I shall not be moved; I shall not be shaken. How many times have I repeated these familiar Bible verses in my mind, thinking that as long as I am truly rooted in God, nothing will ever rock my world.

I have set the Lord always before me; because he is at my right hand, I shall not be shaken. (Psalm 16:8)

But this world can be like a roller coaster, full of twist and turns. And sometimes no matter how hard we cling to the grace of God, we can find ourselves overwhelmed by the storms of life.

There are times we still shake when life throws us a curveball. No one is immune to the unsteady waves of this broken world.

So how do we stay rooted?

Having been born and raised in South Florida, I have lived through many storms and hurricanes. Life can be a little unpredictable during hurricane season. As I reflect on all the hurricanes I have lived through, I realize that I had it all wrong just asking the question above.

During a hurricane, the trees can violently sway back and forth. I think to myself, there is no way those trees can withstand the strong winds. At any moment, they are going to fly away in the storm. But I marvel as the trees sway and rock, but are not uprooted.

Steady they hold on, anchored in the ground by an invisible root system designed to protect them from life’s raging storms.

We have this as a sure and steadfast anchor of the soul, a hope that enters into the inner place behind the curtain. (Hebrews‬ ‭6‬:‭19‬)

Life will shake us. It will move our earthly bodies and minds in ways that feel almost impossible to recover from. But when we anchor ourselves in the love and salvation of God, we find that our eternal soul and spirit can never be moved.

Just like those trees, we have an invisible root system that anchors us in the Kingdom of God. This allows us to walk confidently through the storms of life, knowing that God is always holding onto us.

Though the earth give way and the mountains be cast into the midst of the sea, we remain rooted in God. Although life and the choices we make may move us, God always has us right where He wants us.

I want to encourage you to remember that we always have an anchor in the unsteady waves of this world.  I pray you remember how all that we are is secured in the loving arms of our Heavenly Father. ~OC

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