Hope and Joy

Today’s a new day! The following post is one that I have been writing and rewriting for months. I am not sure it’s exactly everything I want to say, but sometimes you just have to put it out there and not worry about the response.

What if I shared with you that when I look at this crazy beautiful health journey I am on, I do so with hope and joy in my heart?

In the midst of countless hospital visits, treatments, pain and surgeries there has been indescribable hope and joy that has surrounded my every step.

Let me share some truth with you. It has not been my health journey that has that brought me this hope and joy. Far from it. The hope and joy that I live with comes from someone else. You see, as I have experienced my health declining over the years, I have become intimately aware of how fragile life really is. I have become more aware of how short, and how painful our time can be on this journey called life. This has led me to crave for a life that God promised to those who would follow Him. A life where there is no more pain, no more suffering, and no more death.

As I have run this grueling health journey, I found myself more desperate for God’s word and the peace of heaven. There were days I fixed my eyes on heaven just to get through the day. But then something amazing began to happen. The more I focused on God’s promises and heaven, the more I felt alive and renewed. Even though my body continues to decline, I have experienced more hope in the promises found in the Bible than ever before. I started leaning more into those promises because that’s where I find my hope, peace and strength. I have to make a daily choice to totally embrace God’s promises or allow this health journey to consume me. To become my identity.

I began to see the scriptures in a whole new way. Verses like the following:

“My brothers and sisters, you will face all kinds of trouble. When you do, think of it as pure joy. Your faith will be tested. You know that when this happens it will produce in you the strength to continue. And you must allow this strength to finish its work. Then you will be all you should be. You will have everything you need.”~James 1:2-4

“For I consider that the sufferings of this present time are not worth comparing with the glory that is to be revealed to us.” ~Romans 8:18

“So we do not lose heart. Though our outer self is wasting away, our inner self is being renewed day by day. For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison, as we look not to the things that are seen but to the things that are unseen. For the things that are seen are transient, but the things that are unseen are eternal.” ~2 Corinthians 4:16-18

I know as some of you read this post, you’re facing major storms in your life. Life seems overwhelming at times. So, when some guy is telling you to “think of it as pure joy”, it might bring out feelings of anger rather than joy. I get it. But just for a second asked yourself, “What if these verses are true?” What if even during the toughest moments of your journey, the cancer diagnosis, the Parkinson’s diagnosis or some other challenge is actually being used to make you perfect and complete, lacking in nothing? And that even the deepest hurt will someday be replaced with insurmountable love, peace, and joy.

The hope and joy I am writing about may not always look like happiness the way we understand it. The hope and joy that comes from following God and focusing on heaven is not the same as what the world defines as joy. I believe it’s far more rewarding.

The world connects joy to a moment, experience or circumstance. So, if life is currently full of sunshine, we have plenty of reasons to celebrate. But the amazing thing about God’s joy is that nothing in our life could be going right, but with God’s help, we can still find the strength within our soul to praise, to help others, and ultimately, still have hope and joy.

The darkest moments of my health journey are filled with hope and joy because I continue to cling to the beautiful promises of God. They are my lifeline. And as I continue to hold onto that hope, my head miraculously stays above the raging seas. The storms that surround me haven’t changed, but I know even the biggest battles in my life cannot take away my most precious gift in life, my relationship with God. And for that, I am forever grateful.

As I close out this post, I want you to hold onto the following truth: The hope and joy that comes from Heaven, far outweighs the trials we will face here on earth. ~OC

July 2, 2025 0

Upcoming Interview

Here is some information about an upcoming interview. I pray you have a wonderful day.

What’s even better than a TED Talk? A Todd Talk!!* 🎉

Join authors—and long-term chronic illness warriors— Andrea Herzer (https://www.andreaherzer.com/) and Todd Shoemaker (https://www.theblessedovercomer.org/)for honest, hope-filled conversations about living with difficult diagnoses, discovering purpose in pain, and finding ministry amid your medical challenges. You’ll even receive tried-and-true tips for both caregivers and care-receivers.

In our three part series, you’ll find encouragement, companionship, and likely a few “Me too!” moments. As C.S. Lewis once said, “Friendship is born at that moment when one person says to another: ‘What! You too? I thought I was the only one.’”

✨ Our three-part series kicks off June 26 in Andrea’s private Facebook group, Embracing Abundant Life Together. (https://www.facebook.com/groups/lifeforillness)Join now so you don’t miss out on the fun and fellowship!

*Not affiliated with TED, but definitely Todd-approved.

June 25, 2025 0

Simply Breathe

Today’s a new day! Once again, I am sharing a post that has taken me weeks to write. Maybe years if I am being truly honest. I hope it makes you think as you walk through this journey called life.

What if we truly lived like suffering and death wasn’t something to be feared? What if we could talk about suffering and dying as naturally as birth and living? What if there was a liberty in accepting the limitations of our human existence on this earth and freedom in embracing what it means to live and to die well?

These are the thoughts and ideas that I have been exploring since my crazy beautiful health journey started so many years ago. I have become fascinated with the language and narrative around a chronic or terminal diagnosis. The longer I travel this journey, the more I realize there is more to this race than simply surviving.

Sadly, there is a false narrative that suffering and death is somehow a sign of not having enough faith or somehow someone has failed in some way. This is simply not true. We seem to have lost the sense of the precious and fragile nature of life.

My own health journey has brought many hospital stays, major surgeries and years of treatments. But as time marches by, I am finding that I am less inclined to easily consent to the next treatment option that’s offered. Not because I don’t want to live, but because I want to weigh carefully the cost and the benefits. Living longer is not enough for me anymore. I strive to live well.

I have learned the hard way how long it can take to recover from a major surgery or treatment and how exhausting and stressful it can be for my family and friends. Also how long it is before I recover a sense of myself. A surgery or treatment that is nothing more than a bandaid is not a choice I want to put myself or my loved ones through anymore.

So, my goal is to continue grabbing on to hope, happiness and wellbeing, even as my body continues to decline. Doing everything I can to feel well, live life with purpose and continue to live life as myself and not some number on a medical chart. To take control of the decisions around my medical care, to equally weigh both the quality and quantity of life. To continue challenging the false beliefs around suffering and dying as I continue to run this beautiful race.

Some people reading this will say that I am being negative, but I have found complete liberty and joy in resisting the narratives on suffering. For too long our society has hidden away the realities of suffering and refused to discuss it. Our fragility and humanity seems to be denied as we continue to seek medically enabled immortality. My heart breaks to see so many people spending their days chasing after miracle cures rather than enjoying the miracle of the life they still have.

I do not fear the end life, but I do fear losing my identity to the different health issues that are trying to control every aspect of my life. I will not give in or give up. I am choosing instead to laugh, read a good book, listen to some great music and make amazing memories with my loved ones. To simply breathe and embrace life.

I have found peace in this acceptance that allows me to have open and honest conversations about life and how that currently looks for me. I am grateful that as I live my best days in the best way possible, I am able to have real conversations about this journey I am traveling. Wherever this health journey leads me, will be an opportunity for me to share my faith, to laugh with loved ones and to hopefully encourage someone along the way. One thing this journey will not be about is failure or defeat. No, this journey will be filled with embracing life and everything that comes with it. A choice to live life with purpose and meaning. I pray you will join me on this adventure and strive to live the amazing life set before you. ~OC

June 25, 2025 0

Timeless

Today’s a new day! Being a cancer survivor and dealing with multiple health issues forever changes your relationship with time. It seems to pass so quickly, and there’s always a question about how much of it you’re going to get. At times it can be overwhelming. But maybe that’s why I always loved running. A 5K, 13.1 or 26.2 run can feel timeless if you’re embracing every moment of the journey.

Before I had to quit running a number of years ago, running almost made me forget my health issues. As I continue running this crazy beautiful health journey, I realize time marches on whether we are ready or not. I am as ready as I’ll ever be. Let’s go! ~OC

June 13, 2025 0

Beautiful Journey

Today’s a new day! As many of you know, I was diagnosed with young-onset dementia last September (2024). Life has changed in many ways since that diagnosis. Writing down my thoughts is much tougher these days. This post literally took me several weeks to write. Finding my words to write or speak can be a daunting challenge at times. As I navigate this new reality of living with dementia, I want to share the journey with you. To answer your questions and to share my thoughts for as long as I can. The following is a question I get a lot as I continue to run this crazy beautiful health journey.

What gives you the strength to remain positive?

My Christian faith gives me deep meaning in life, giving me hope for the future and a perspective of my life being eternal, not simply limited to what I see and experience on this side of Heaven. This life and my health journey are temporary.

“So we do not lose heart. Though our self is wasting away, our inner self is being renewed day by day. For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison, as we look not to the things that are seen but to the things that are unseen. For the things that are seen are transient, but the things that are unseen are eternal.” ~2 Corinthians 4:16-18

I have met so many people with different health challenges during my journey, all at various stages of ability due to their declining health. But each person still remains an individual, with their true inner being shining through. The eyes remain a window into someone’s soul, and reflect our humanity.

As my thoughts and overall health becomes a bigger challenge, I see more clearly the importance of relationships. I also see and feel myself traveling through a wide range of emotions, even if they become a little more scrambled with the dementia. Our emotions connect us to each other, allowing us to form relationships, which is a mark of truly being human. As this journey takes me deeper within myself, I find myself reflecting more on God and how to truly live life more for Him. This is what gives me an abiding sense of meaning as I travel on this health journey wherever it takes me. Because I know the final destination is filled with peace and ultimate healing. As a Christian, the ending is really the beginning.

So as I continue to run this health race, I remain positive, feeling that I am gaining along this journey a far better sense of what it means to be truly alive and that much can be achieved to help others as I continue travel this crazy beautiful journey. ~OC

May 27, 2025 0

Leaning Into The Word…

Today’s a new day! As my health continues to decline, I choose to lean into the word of God and not allow my health issues to become my primary focus. The following are just some scriptures, that have helped me during this crazy beautiful health journey. If you’re currently walking through a season of health issues, I pray these scriptures will bring you hope and comfort. Keep leaning in. ~OC

“My flesh and my heart may fail, but God is the strength of my heart and my portion forever.”
‭‭~Psalm‬ ‭73‬:‭26‬ ‭

“Jesus Christ is the same yesterday and today and forever.” ~Hebrews‬ ‭13‬:‭8‬ ‭

“Is anyone among you sick? Let him call for the elders of the church, and let them pray over him, anointing him with oil in the name of the Lord.”
‭‭~James‬ ‭5‬:‭14‬ ‭

“Heal me, O Lord, and I shall be healed; save me, and I shall be saved, for you are my praise.”
‭‭~Jeremiah‬ ‭17‬:‭14‬ ‭

“Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.”
‭‭~Isaiah‬ ‭41‬:‭10‬ ‭

“He will wipe away every tear from their eyes, and death shall be no more, neither shall there be mourning, nor crying, nor pain anymore, for the former things have passed away.””
‭‭~Revelation‬ ‭21‬:‭4‬ ‭

May 24, 2025 0

Along the Journey

Today’s a new day! As I continue to run this crazy beautiful health journey, I want to continue sharing some wisdom and life lessons with you. I pray they will challenge and encourage at least one person.

Twenty-three years ago, I sat in a sterile doctors office as the doctor shared I would probably be dead within five years. As I have continued running this crazy beautiful health journey, I have heard similar predictions from many doctors. Today as I write these words, my prognosis is not great. But as I write these words, I laugh a little because God continues to let me thrive in life despite the poor diagnosis. Throughout the past twenty-three years, God has answered the prayers of many. He continues to give me a reprieve. God continues to work miracles.

During the past twenty-three years of this crazy beautiful health journey, I have learned many lessons. I thought I would share a few.

I have learned to not fear death, but anticipate it with joy.

I love the words of the Apostle Paul,

“As it is my eager expectation and hope that I will not be at all ashamed, but that with full courage now as always Christ will be honored in my body, whether by life or by death. For to me to live is Christ, and to die is gain.” ~Philippians 1:20-21

I believe most Christians do not fear going to be with Jesus. It’s the pain and suffering that often precedes death that makes us a little uneasy. But I think as Christians, we tend to look at it the wrong way. Most of us think that we are in the land of the living en route to the land of the dying. But nothing could be farther from the truth. If we know Jesus, we are in the land of the dying traveling to the land of the living. I have experienced amazing peace during my hardest days. I have felt contentment and surrender wash over me.

Be brave. When I open my eyes each morning, I hear God singing these words to my heart.

“The Lord is my light and my salvation; whom shall I fear? The Lord is the stronghold of my life; of whom shall I be afraid?” ~Psalm 27:1

Most days , I deal with a lot of pain, weakness, nausea and horrible headaches. But each morning, I make the choice to get up and look forward to all that God has planned for me that day. Now that doesn’t mean I do not have rough days. I definitely do. That is why I always try to share the good and not so good parts of my journey. But I look at others who are suffering more than me and see how they do not complain and are living life with a beautiful sense of joy. I figure if they can face the pain with faith, so can I.

Let God’s Word empower you.

Speak it. Pray it. Sing it. Envision it. The more you allow God’s word to feed your soul, the stronger your spirit becomes. When I am feeling too weak to do anything, I open God’s word or listen to praise music to help me through those tough moments.

I love what the psalmist wrote in Psalm 119:92-93:

“If your law had not been my delight, I would have perished in my affliction. I will never forget your precepts, for by them you have given me life.” ~Psalm 119:92-93

Remember. Be grateful. Be glad.

As I have faced this health journey, Laura and I have decided to continue traveling and making precious memories. On the really tough days, I look at those pictures and re-live those beautiful moments. I feel so blessed to connect with friends old and new, with family, with former classmates and everyone I have met on this amazing life journey God continues to let me live. All I can do is smile. Well, I cannot really smile that well these days, but I try.

The Apostle Paul shared the following words while sitting in a prison cell:

“For what thanksgiving can we return to God for you, for all the joy that we feel for your sake before our God,” ~1 Thessalonians 3:9

Embrace each precious moment.

I have learned to not leave any words unsaid. Hug the people you love (or fist bump). To share and give freely. Leverage your time and energy for God’s purpose.

Over the past twenty-three years, I have faced death many, many times, but God allows me to keep standing. During this journey, I have learned what really matters in life: my relationship with God, my family/friends, serving others and not waiting for the perfect time to make amazing memories.

When life gets dark, the glory of God shines brighter. I am not afraid of the valley of the shadow of death, because He is with me….closer than I could have ever imagined! ~OC

April 29, 2025 0

Happiness

Today’s a new day! As I continue to walk out this crazy beautiful health journey, I want to continue sharing some wisdom and life lessons with you. I pray they will bring you encouragement.

Today’s Lesson: Happiness

Happiness is something you decide on ahead of time. It is a decision I make every morning when I wake up. I have a choice; I can spend the day recounting the difficulty I have with the parts of my body that no longer work, or be thankful for the ones that do. Each day is a gift, and as long as my eyes open, I have breath in my lungs, I will focus on the new day and all of the opportunities it presents.

Happiness is like a bank account. You withdraw from what you’ve put in. So, my advice to you would be to deposit a lot of happiness in the bank account of life.

Here are five simple steps to living out happiness:

1. Free your heart and mind from hatred.

2. Free your heart and mind from unnecessary worries.

3. Love and Live simply.

4. Live out your dreams and purpose.

5. Give more than you take.

Have a great day filled with love and happiness. ~OC

April 28, 2025 0

Life’s Journey and Lessons

Today’s a new day! As I continue to walk out this crazy beautiful health journey, I thought I would share some thoughts and lessons learned along this journey. So for the next few days or weeks, I will hopefully share some wisdom and life lessons with you. I pray they will bring encouragement to all that takes the time to read my post.

The next few days or weeks, will be a reflection of the legacy I hope to leave behind for my family, friends and anyone who takes the time to read my post. As I continue to walk this health journey, I cannot control my declining health, but I can control how I deal with it and hopefully the positive impact I can have on others.

As I walk through this life, I want to encourage people to chase your dreams, embrace the challenges of life and to savor every precious moment.

Each day, I want to share a key lesson learned along the journey. Here is the lesson for today:

Embrace the challenges of life and make the most of your time here on earth. As I continue walking this journey, I have decided not to retreat from life, but instead to hopefully encourage others walking through their own life journey.

Finally, I hope and pray by sharing these life lessons, they will encourage you to reflect on your own journey and how you want to live it out. ~OC

April 23, 2025 0

Simply David

Today’s a new day! I wanted to take a few days before responding to the irresponsible comments made by Secretary of Health and Human Services Robert F. Kennedy, Jr. earlier this week.

Laura and I have a wonderful and loving nephew living with autism. I should correct myself and say that David is thriving in life. As a child, the doctors shared David would never talk, or be able to take care of himself. Oh, how wrong they were. Today David is in his mid twenties and will talk all day if you let him. He also works two jobs and pays taxes. David has won multiple Special Olympic Medals. He and his father volunteer weekly at their church. Everyone at church knows and loves our nephew. David is living his best life.

So when Mr. Kennedy stood before the cameras and declared that children like David “will never pay taxes, never hold a job and never write a poem, I looked on with horror. Mr. Kennedy then went on to claim autism is “a preventable disease” and promised a lightning-fast investigation to root out its so-called environmental causes. While we must look at every possible cause of autism, including environmental factors, we cannot ignore the decades of scientific research that has already been conducted.

And remember, this is coming from a man with no real medical background.

This coming from the man responsible for guiding the United States’ national health policy. Let that sink in for just a second.

What Mr. Kennedy did at that podium was spew misinformation. It was a new level of fear-mongering. It was the 21st-century version of a snake oil salesman promoting false promises with no credible science.

Let me share what autism actually looks like.

It looks like David playing tennis or pickle ball. It’s David being so excited to dress up like Spider-Man to bring some enjoyment to others. It looks like David always checking in on me during and after a hospital stay. It looks like David making Auntie Laura a sandwich or bringing her a fresh drink. It looks like David constantly looking for ways to serve others. That’s what autism looks like.

David is not a victim. He does NOT fit any of Mr. Kennedy’s cartoonish depiction of helplessness.

I realize autism looks different for every individual and family. But in my nephew’s case, he is kind, he continues to learn and he is thriving in life. David has already defied every negative prediction made about him when he was a child.

And if I have to listen to Mr. Kennedy or any other politician turn my nephew into a sound bite for political gain, I will keep using the power of my voice and the power of the pen to call out such blatant misinformation. And I will continue to encourage everyone to reject these false narratives by voting against them on election day.

My nephew is not a tragedy. And he is certainly not an epidemic. He is simply David. A young man with hopes and dreams like the rest of us.

I would encourage everyone to actually do your own research on autism and other health issues and not the words of a man who only cares about pushing his own twisted agenda. Thanks for reading. ~OC

April 19, 2025 0