Today’s a new day! As most of you know, I am using a walker these days to assist me getting around. The last two weeks were tough, as I went through multiple test and treatments at the hospital. As I was sitting here thinking about everything that’s been going on with my health the last few weeks, I had to stop and give God praise. You see, the enemy thought he got the best of me because of my limited ability to get around and having to deal with two weeks in the hospital. But the truth is, my limited ability to be get around does not effect my ability to continue serving God. Never allow the enemy or anyone else to shackle you with their limitations. Keep your eyes focused on God and finish strong. ~OC
My Covid Story
On March 13, 2020, America shut down because of Covid. Five years later, Covid still plays a major part in my life. Here is my story.
For most, the year 2020 was one to forget. The Covid Pandemic turned most of the world upside down. We watched in horror as we witnessed so many people and families suffer tremendous suffering and lose. As my wife and I watched all this unfold, we were thankful that Covid19 had not touched us. Until it did.
On Super Bowl Sunday 2021, I woke up a little tired. It had been a long week so I did not think much of it. I took my temperature and thankfully it was normal. I headed off to church excited for the day. You see, I am a life long Tampa Bay Buccaneers fan and they were playing in the Super Bowl. After church, I headed home and took a little pregame nap. When I woke up everything had changed. I woke up with my shirt soaked in sweat. I took my temperature and it was at 103.6. I immediately went and had a Covid test. Of course this was on a Sunday, so my results would take a few days. I went home and basically slept through the Bucs winning the Super Bowl. Go Bucs!
On that Monday morning, I woke up feeling much worse. My temperature was now at 104.2. I also had a terrible headache, body aches, terrible cough and did not want to move. Later in the day, it was determined I needed to make my way to the ER. Once inside the ER, test revealed I did indeed have Covid and double pneumonia. I was headed to the Covid floor.
During my stay at the hospital, I received Blood Plasma, Steroids and Remdesivir. Being isolated on the Covid floor was tough. When I had been hospitalized in the past, I was used to having visitors and walking the halls. This hospital stay was filled with staff in protective covering and closed doors. Complete Isolation. After more than a week on the Covid floor, I was released. Time to recover from Covid and double pneumonia.
After being released from the hospital, I had to spend a week isolated away from my wonderful bride, since she continued to test negative for Covid. But unfortunately, my wife would soon experience the effects of Covid. Thankfully, her symptoms were a little milder and she does not suffer from any longtime effects. After finally arriving home, I waited to feel better. Surely I would feel better in a few days. But that was not the case. After two months my symptoms had not gotten much better. My CT Scan showed my lungs were still filled with Covid. I was still dealing with headaches, breathing issues, cough, no appetite, hoarse voice, fatigue and brain fog. Most of my days felt like the movie Groundhogs Day.
My medical team officially classified me as a Covid Long Hauler almost six months after my original diagnosis. Not a club anyone wants to be part of. Everything was wait and see. So, what do you do with that news? When you cannot rely on anything that was once reliable. When you have taken every step you know how to take-what then? You Hope. You Never Give Up.
My life is totally different than it was on that morning in February 2021. In 2025, I still stand up having no idea where I am going. Trying to process new information is still a challenge. Breathing continues to be a struggle. Constant fatigue. I could go on and on about the different symptoms I still deal with on a daily basis.
So as I continue to walk this journey, I still lean into Hope. I still do my research. I continue to try to encourage others walking through their own Long Hauler’s battle. I will continue to pray with great expectancy to wake up one morning with no Covid symptoms. That day when I am renewed physically. But until that day, I will live in Hope. ~OC
Beautiful Gift
Today’s a new day! In late 2002, I was diagnosed with several forms of crippling arthritis. I would spend nearly a year taking multiple experimental drugs to help fight the arthritis. Unfortunately, those medications did more damage than good. Fast forward to August 2003, I had a chest scan done after coughing up blood on my way home from work. That scan would change my life forever. A few weeks after the scan a biopsy would reveal that tumor sitting in my chest was cancerous. The results would change the way I live life forever. After having the tumor removed a short time later, I thought the worst was over. I had no idea that four years later I would be diagnosed with Young Onset Parkinson’s. Of course my symptoms had shown up years before, but I never paid any attention to them. I blew it off as stress or fatigue. Then a few short years later, I would be diagnosed with Myasthenia Gravis. Maybe I should have started playing the lottery. Then about eight years later, I would be diagnosed with Gastroparesis. What are the odds? Well, some on my medical team have shared I am one in two billion. Where’s that winning lottery ticket?
Over these past twenty-two years, I have learned, and continue to learn, about living with persistent pain, near-constant fatigue and constant unsteadiness. I stress living, though I am also learning about dying. We’re all, always, dying-while-living and living while dying. My experiences with these multiple health issues simply make me more aware of death’s relentless work and also, mercifully, makes me more attentive to life’s beautiful gifts. Among them are:
The amazing gift of conversations, laughter, tears, prayers, encouragement and amazing times with family and friends.
The beautiful gift of music and books.
The beautiful gift of memories from my running days.
The beautiful gift of a call or visit from friends.
The amazing gift of sunrises and sunsets.
The gift of a quiet morning before the battle of another day begins.
The amazing gift of experiencing healing in so many different ways.
The gift of experiencing the many blessings of God.
The beautiful gift of hearing God speak to my spirit.
The gift of a quiet evening on the balcony with my bride.
The beautiful gift of almost 25 years with my bride.
The amazing gift of continuing to make beautiful memories with my bride.
The gift of outliving all the predictions of my death.
The gift of knowing God has everything under control.
In the time I have left (I am taking on the challenge to outlive the current prognosis), I intend to live close to the veil, at the threshold, and at the feet of the God upon whom angels descend and ascend. I hope to say what I hear, describe what I see, and offer what I receive because it is good, hopeful and healing. Every day, I choose to be The Man Who Refuses to Die and embrace the beautiful gifts of life. ~OC
Memories Along the Journey
Today’s a new day! As I have traveled this crazy beautiful health journey, I see things differently than I used to. Some life experiences and hopefully a little wisdom. My physical memory can be a bit tricky with the neurological issues and Long Covid issues, but my heart memory is in great condition. While I often forget day to day things, I am constantly remembering things that are far more important.
I remember the day I met my bride and how life has never been the same since. So many amazing memories.
I remember the beautiful friends God has blessed me with since childhood. So many amazing memories.
I remember that I need to be… want to be…. a man of honor and integrity. Hopefully a man of compassion and generosity. Because one day, I will become a memory in the lives of those that I love and I want those memories to be ones they will cherish.
I remember that the pursuits of this world… fame, fortune, power, position, success (whatever that means)… are not at all important. They’re just not.
I remember that I need to tell Laura and other loved ones every day that I love them. Not just tell them but show them because life is short. I never want to miss an opportunity to let my family and friends know what they mean to me.
This health journey is not an easy one. People often tell me how well I handle all that has been thrown at me, but the journey has not been easy. This journey has been and continues to be filled with tough moments. My health journey has definitely been an inconvenience in so many ways. It is something I would never wish on anyone. But while I continue to walk through the challenges of this health crisis, there are good things that can be taken from it. Lessons learned and hopefully more lessons to come. Some amazing memories made and hopefully many more memories to be made.
As I continue to walk this journey, I will never allow it to consume me. It will never become my identity.
I love the words in Genesis 50:20:
You intended to harm me, but God intended it all for good. He brought me to this position so I could save the lives of many people. Don’t you see, you planned evil against me but God used those same plans for my good, as you see all around you right now – life for many people.
I have an opportunity in front of me that most people rarely get. I have had the opportunity to reclaim life from a place where there is usually death.
That makes me one of the most blessed individuals on earth. ~OC
My Prayers and Thoughts
Good morning! So as I sit in this hospital room, here are some of my prayers and thoughts.
I pray my beautiful bride is resting and wakes up feeling great.
I pray that some dear family and friends who are sick, will experience complete healing.
I pray for all the Caregivers taking care of a loved one.
I pray The Holy Spirit will take over South Florida. Revival come!
I pray I will be the best husband, friend and disciple of Jesus that I can be through Him.
I pray for everyone in the military and all First Responders. And their families.
I pray for peace.
I pray for all the leaders. I pray their hearts and minds would be changed by God.
I pray for the victims of human trafficking. I pray they will be rescued and their lives will be completely restored. I pray for all the organizations fighting this horrible crime. I pray their needs will be met. Most importantly, I pray their hearts and motives are pure.
I pray for all churches, pastors, missionaries and ministries. May they truly be the hands and feet of Jesus.
I pray God will allow me to do more for everyone I come in contact with during the day.
I pray for all the patients, nurses, doctors and staff at Good Sam. Give each the strength they need today.
I pray for our schools, students, teachers, staff and administrators. I pray God would bless and protect each.
I pray I will not get in the way of what God wants to do in my life.
Here are some of the thoughts going through my crazy beautiful mind this morning:
What races will I run in 2020, if God allows me to run again? It has been almost 11 years since I last ran.
If God blesses me with the ability to run again, that means I could return to the workforce. Where would I work? Who would hire a 50 something guy who has not worked in almost 11 years, but has an incredible crazy beautiful story? Would I go on the speaking circuit? Would I look at working at a church or ministry of some kind? Would I work at a school or university? Would I be a Greeter at Walmart?
Yes, those are some of the crazy thoughts that go through my mind a lot of morning’s. I just want to be ready for whatever God has prepared for me. Even if that means never running another race or never being able to return to work, I will be obedient and thankful.
Have a wonderful and blessed day. ~OC
Hanging Out With Superheroes
I have been blessed to hang out with Superheros for almost 18 years. I am not talking about Batman, Superman, The Black Panther or Wonder Woman. No, my Superheroes do not wear capes or have really cool toys. Well some of them might disagree with that statement. My Superheroes are some of the strongest and giving people I know. Let me share some of their stories.
Good Sam/Florida Cancer Specialist Heroes: These group of heroes from Good Samaritan Medical Center have helped keep me alive for the past 17 years. They are Nurses (Shoutout to 4 South), CNA’s, Housekeepers, Maintenance Workers, Patient Transport, Dietitians, Techs (from various departments), Therapist (from various departments), Food Services (they still check to see if I want anything), Admitting and the parade of Doctors. They each work long hours with little fanfare. If they were to read this post, they would be embarrassed. Because they didn’t choose to be super heroes for the applause. They definitely would not call themselves Superheroes. But I do. These unassuming heroes show up for work each day and save lives. Thank you.
My Medical Team: This list could go on for days. One person I have to mention by name is Dr. James Harris. He is definitely a Superhero. Dr. Harris was my oncologist for almost 17 years before retiring earlier this year. He was the type of doctor who gave you his personal cell phone number and told you to call him if you needed. Over the years, Dr. Harris received many phone calls from my wife Laura. He always answered. Dr. Harris truly cared for each of his patients. I saw him walking the halls of 4 South on many early mornings. When you mention the name Dr. Harris be prepared to hear some amazing stories. Thank you.
Fellow Overcomers: I have been blessed to sit next to or walk the halls with many patients over the years. I have been inspired by their strength and love for life. They have taught me how to navigate through my own crazy beautiful health journey. We have laughed. We have cried. We have shared stories. We have remembered those that fought a tough battle. We have become family. Thank you.
The OC Drivers/Visitors: These are the family and friends who have taken time out of their schedules over the years, to give me rides to treatment/appointments and have sat with me many times. The pressure they have taken off of my bride is amazing. It has been wonderful to hear their stories over the years. Thank you.
My Rockstar: My number one Super Hero is my wife Laura. She has been by my side from day one of this crazy beautiful health journey. Over the past 17.5 years, Laura has worn many hats. She has had to make a lot of tough decisions. She has been and will continue to be my Rockstar. Thank you. Love you.
Those are the Superheroes in my life. They are greater than any Super Hero Hollywood could ever create. I pray you have these type of Superheroes in your life. ~OC
Thank You 4 South Heroes
As I sit here in the quietness of my house, I realize it has been almost 4 months since my last hospital visit. That’s a pretty big deal, when you have spent as much time as I have in the hospital the past 17 years. The staff on 4 South at Good Samaritan Medical Center have become family over the years. They have blessed Laura and I so many times the past 17 years. Here are just a few examples of going above and beyond the call of duty.
A Recliner. Some of you might not beware I can no longer sleep in a bed. With my Parkinson’s and other health issues, a bed is extremely uncomfortable. At home I sleep in a recliner. I have done this for years. During my hospital stays, the staff on 4 South always makes sure I have a recliner in my room. They could easily just say, Todd you need to sleep in the hospital bed. But they don’t. I have seen them walk all over the hospital to find me a recliner. To help make me feel as comfortable as possible.
Sitting With Me. The staff on 4 South just doesn’t come in the room and move on to the next patient. No, there have been many times they hung out a bit to catch up on life. Even on those crazy busy days the staff still pop in to say hello and check on me. I have never felt like a number during my stays on 4 South.
Caring for Laura. The staff has not only taken care of me for the past 17 years, they have taken care of Laura. Laura has never been a patient on 4 South, but the wonderful staff always makes sure she is doing okay. They realize the importance of the caregiver.
A Room With A View. Good Sam is located by the intracoastal in West Palm Beach, FL. Some of the rooms have beautiful views of the water. The staff always tries to make sure I have a room with a view if possible. When I am in the hospital for weeks at a time, waking up to an amazing view is a blessing.
Good Sam Is My Cheers. Have you ever watched the old tv show Cheers. The lyrics from the theme song says “Everybody Knows Your Name.” That is how Laura and I feel when we walk into Good Sam. Everyone knows our name. I bet you have the song in your head now.
A Life Saved. The nurses and staff on 4 South always go above and beyond for their patients. Let me share just one example. Back in 2014, during a visit on 4 South I passed out in my room. My heart rate was out of control. The staff actually had to stop my heart and start it again. During this incident, one of the nurses ran down 3 or 4 flights of stairs to get some medication I desperately needed. Her quick actions probably saved my life. Thankfully, I have no memory of that day. Laura does and is always thankful for the quick response of the staff that day.
As you can see, the staff on 4 South is pretty special. Some of the staff have been taking care of me for 17 years. Some have gone and come back. Some have retired. I have friends that joke Good Sam is a vacation spot for me. Well, I wouldn’t call it a vacation spot, but I would call it my second home. I would call it family. ~OC