Grateful

Today’s a new day! I’m grateful this morning for another day to breathe, to think and make more memories with my bride, friends and family.

I’m grateful for my cup of ice tea and a cool breeze on our balcony.

I am grateful for the anticipation of this new day.

I am grateful to be living in peace.

I’m grateful to still be alive, now, in this place and at this time.  I’m ever-thankful for the extra time God has given me.

I am grateful for the freedom to write in my hometown and to write whatever, however, whenever I please.

I am grateful for the amazing people God has brought my way on this crazy beautiful health journey. Thankful to have met so many creative and loving people over the past twenty-two years.

I am grateful for the friends who have stuck with me through thick and thin.

I am thankful that my gratitude stretches around the world with all the people who have walked this journey with me through this blog and my other social media pages.

I am grateful to live in love, hope and peace and cherish this day that the Lord has given me. ~OC

The Perfect Time is Now

Today’s a new day! I have really been focused on making memories the last few years. With my health being what it is, making memories has become a priority. When Laura and I want to do something we do it, if possible. No more waiting for the right time. The right time is now. As I have shared before, these road trips and outings are not easy on my body, but the memories we’re making are priceless. I would encourage everyone to embrace the moment and go make some beautiful memories. Stop waiting for the perfect time. The perfect time is now! ~OC

To Live Together in Peace

Today’s a new day! As I study scripture, I continuously see we are given direction and guidance to live together in peace. But in order to do so, we must value and care for one another, be humble, seek to understand each other, be compassionate, and treat others respectfully. It does not mean that everyone has to be our best friend, but at the end of the day, we should treat others as we want to be treated. Like-mindedness does not mean we need to walk around with the same thoughts and beliefs on all things, but instead it means we ought to share the common purpose of love and care for each other. As a world, it feels as if we have lost sight of this. Too often, people are so caught up in the value of their own opinion, agenda and being right, that the humility and humanity necessary to love one another is lost.

Thankfully, my days are spent encouraging others through conversations, zoom meetings and writing. I try to use social media and personal interactions to find out what binds us together and less about what divides us. I try to have conversations with people who look, act, believe and speak differently than me.

Though we come from different places, life experiences and beliefs systems, our ultimate purpose should be to try and make a better world for all to live. Obviously, we live in a imperfect world filled with imperfect people, but the more we seek to understand, extend compassion, and treat others as friends, the better we work together to bring change that makes life better for all.

I will continue to seek God for guidance and direction as to how to best live together in peace and love with those around me.

Peace will be present

when we all decide to

treat people with respect and love

Love is forgiving

It’s gracious and kind

humble and listens

keeps others in mind

Seek to understand

by listening first

speaking to learn and discover

the best in people, not the worst

Dear God, teach us to walk in love and compassion each new day.

Dear God, thank You that You love us so much that You call us and guide us to live in peace and harmony together with each other. Thank You that You show us what is good, and what is required to know Your peace. Forgive us for the times that we have lacked compassion or failed to listen. Teach us to extend grace in such a way that all feel heard and appreciated. Be glorified O God, as we seek You to lead us in Your love and to live together in peace as one human race. Amen ~OC

Time

Today’s a new day! As I continue running this crazy beautiful health journey, the days are getting tougher. But as my body continues to decline, I push forward to continue living a life of significance. I want every moment to count. I wrote this a few weeks ago. Hopefully you will take some time to reflect on it.

As I reflect on this crazy beautiful journey, I must start with the beginning. I came into this world in December 1965. That was the year God put breath in my lungs.

Even though that day in ‘65 was a major moment in my life, what has happened since that day is what really matters. What have I done with the time that has been entrusted to me?

For that time represents all the opportunities that have come and gone since the winter of ‘65. Have I used this gift of time wisely?

What really hasn’t mattered is the material things I have collected over the years. Sometimes I cringe at the things bought on Amazon. But hey it sounded like a good deal at the time. The careers, money, houses may have been nice, but at the end of the day they were but fleeting.

As I move into the 4th quarter of this health journey, I want to make sure I am investing in things that truly matter. Most importantly, I want to invest in people that matter. Who are the people who matter? Everyone I encounter on this journey matters. Whether it’s a friend I have known since childhood or a new friend I just met on the elevator. Because at the end of the day, it’s our relationships that matter.

As I reflect back on the journey, are there things I would like to change? Yes there are. But I will never regret the time spent with family and friends. I will never regret the moments spent with loved ones laughing and crying. I will never regret the beautiful interruptions God has brought my way.

As I continue running this health journey, I want to slow down and experience what is real. What truly matters. I want to be slower to speak and quicker to listen. I want to be slower to anger and quicker to love. I want to be more willing to show forgiveness than to hold a grudge. I want to be known more for what I love and less known for what I dislike.

As I have run this crazy beautiful health journey, I have been known by my multiple nicknames. I have been known for beating the odds in my health battle. Those are all nice, but the three things that matter to me the most is being known as a person who knows and loves God, a man who loves his amazing bride and a person who cares about his amazing friends and desires to be a great friend.

At some point this crazy beautiful health journey will come to an end. All of our journeys will eventually come to an end. My question to you and myself is this, “At the end of your journey, will you be happy with the way you lived out the precious time you were given?” ~OC

Here For You

Today’s a new day!

When the nights are long and sleep is a distant memory and your days are full of dark cloudy memories, I will be here for you

When the world feels like it’s moving a million miles an hour and you want to jump off, I will be here for you

When the world seems to have forgotten you and moved on, I will be here for you

When the doctors give you little hope your friends can’t be found, I will be here for you

When you feel alone in this broken and dark world, I will be here for you

When the rest of the world calls you crazy because you go against the grain, I will be here for you

When you decide to question everything you been taught and your friends and church question your faith, I will be here for you

When your lifestyle doesn’t align with those of your family and friends, I will be here for you

When you decide to speak up and be bold, I will be here for you

When the rest of the world misses out on your beauty and promise, I will be here for you

When you need to laugh or cry, I will be here for you

When the world thinks your ideals are but a pipe dream, I will be here for you

When your journey takes you down a winding and uncertain road, I will be here for you

When you need a second or hundredth chance, I will be here for you

You never have to walk this journey alone, I will walk with you anyway you need me to

I never want to miss a chance to show you, I will always be here for you

It’s gonna be okay, I will be here for you

I’ll be here, I’ll be here

Anyway you need

I’ll be here for you

~OC

Some Lessons Learned Along the Way….

Today’s a new day! As I have walked this crazy beautiful health journey, I have learned many lessons. Here are just a couple:

*Caregivers have the toughest job. As a patient, I have a game plan laid out and designed by my medical team. There is really no playbook for the caregivers. Each day is a new experience for them. So if you have a friend or loved one who is a caregiver, please check on them. Offer to help in any way you can.

*Every patient has a starting point and an ending point. Of course, the starting point is the day of the diagnosis and the endpoint is the day the patient takes their last breath. But the adventures, laughs, tears and memories in between those two dates are what everyone will remember. Make the choice to truly embrace every moment of this crazy beautiful health journey. ~OC

Movies, Books and Music

Good morning! With all the negative news coming at us so fast, I thought I would change things up a little. Each month, I will try and share a Movie, Book and Song/Album that came out in that month. I will have watched, read and listened to everything I share. Hopefully it will be fun. Here we go for October.

*On October 24, 1991, the film
Silence of the Lambs was released.
Sir Anthony Hopkins character of Hannibal Lecter is one of the best in cinematic history and his interactions with Jodie Foster’s character Clarice Starling are bone chilling.

*Long Walk to Freedom by Nelson Mandela, released on October 1, 1995, is the autobiography of one of the world’s greatest moral and political leaders. Imprisoned for more than 25 years, president of the African National Congress and head of South Africa’s anti-apartheid movement, the Nobel Peace Prize winner’s life was nothing short of extraordinary. Long Walk to Freedom vividly tells Mr. Mandela’s story; one of hardship, resilience and ultimate triumph, written with the clarity and eloquence of a born leader. 

*Goodbye Yellow Brick Road by Elton John released October 5, 1973. With classics like Candle In The Wind, Bennie And The Jets, and Goodbye Yellow Brick Road, there is certainly no doubt that it is one of the greatest albums ever written and recorded.

I hope you enjoyed this trip down memory lane. See you in November. ~OC

The Legacy of President Jimmy Carter

Today’s a new day! Yesterday, I had the honor of being in Plains, GA to celebrate former President Jimmy Carter’s 100th birthday. It was a wonderful day seeing old friends, meeting new friends and reflecting on the life of a man who has truly lived a life of honor.

As we are in the middle of another election, I spent some time reflecting over the legacy of past American presidents. The debate over a president’s legacy begins the moment they leave office. Sometimes sooner. I am sure everyone can make their case for who is or was the best and greatest president in the history of America. We could debate their contributions, records and everyone could weigh in with their memories and opinions. But I personally do not believe anyone can argue that the greatest post presidency does not belong to the 39th President of the United States from Plains, Georgia Jimmy Carter.

When President Carter and Mrs Carter left Washington, DC in 1981, the so called experts were in agreement that President Carter had failed and would be forgotten. That was not to be the case. Not even close. President and Mrs Carter would leave a major life changing legacy behind.

Upon leaving the White House, one of the first things the Carters did was to become closely identified with a nonprofit volunteer project, Habitat for Humanity. During its initial two decades, owing in large measure to the Carter’s involvement, Habitat became a household name in communities across the US, helping over 59 million people build or improve a place to call home. Well into their 90’s, President and Mrs. Carter were still spending one week each year volunteering with Habitat. The Carters became so identified with Habitat that when thinking of them, more Americans probably called to mind the Carters in denim with hammers in their hand more than the Carters dressed up for a formal dinner at the White House.

In 1982, just two years after leaving office, Carter further burnished his credentials as a great leader when they created the Carter Center, which described its role as “waging peace, fighting disease, and building hope.” Many of the Carter Center’s initiatives were led by President and Mrs. Carter, including monitoring elections in dozens of countries; negotiating peaceful resolutions to conflicts in Africa, Asia, and the Americas; under the leadership of President and Mrs. Carter the Center took on programs to help eradicate multiple diseases around the world including guinea worm. According to the Carter Center in Atlanta, Georgia, In 1986, the disease afflicted an estimated 3.5 million people a year in 21 countries in Africa and Asia. Today, thanks to the work of The Carter Center and its partners — including the countries themselves — the incidence of Guinea worm has been reduced by more than 99.99 percent to 14 provisional* human cases in 2023. Working tirelessly to address multiple global concerns, the Carters have established a legacy as the greatest of our former First Families.

My wife and I had the honor of meeting President and Mrs. Carter in 2019, as he taught Sunday School at Maranatha Baptist Church in Plains, GA. It was one one of highlights of my life. I had no idea how profoundly that day would change my life.

Yesterday, at the 100th birthday celebration, a group of us who all attended President Carter’s Sunday School class at different times, sat around a table reflecting and celebrating the life of the man who brought all of us together yesterday not as strangers, but as friends. That is one of the beautiful legacies of President and Mrs. Carter.

With all these wonderful memories flowing from my heart, I recall the words of President Carter from back in 2019, when sharing about his health, “I didn’t ask God to let me live, but I asked God to give me a proper attitude toward death. And I found that I was absolutely and completely at ease with death.”

This is the legacy of our 39th President Jimmy Carter. A humble man who has taught us how to live a life for others in service. As President Carter approaches the end of his life, he is teaching us another lesson about not only living a life with grace, but maybe more important how to die with grace. ~OC

3AM

Some mornings when I wake up early, I feel God using that time in an amazing way. But I have to be honest, some days those early mornings are tough. Today is one of those days. Let me share an early morning with Parkinson’s and dementia.

Today’s a new day! So it’s 3am and my brain is fully awake
I have been up since before 1am, but who’s counting? I am! Some days I wonder how my brain knows it’s 3am or earlier
Some days I wonder if my brain and I are on the same page

Oh, all the voices and noises
It can be a little scary, but I am thankful I haven’t gone a little insane

I think about my 3am folks going through the same, I wish I could reach out and lend each a helping hand

This early morning I look up to the sky
And sometimes wonder why my brain is so different
Some mornings I just want to cry
I wish I could just open my brain and hit the reset button, but that’s just a dream

On these crazy mornings, I wish it was just a phase
But I been running this race for too long for it to just be a phase
But a brother can still dream
Oh, wait a second you have to sleep to have a dream
There will be no more dreaming on this morning

All the voices and noises
It’s crazy, and I am thankful I haven’t gone mad
Thankful the voices don’t call me to danger
I wonder who’s up at 3am and would not freak if I rang them?

So at 3 am I go out on the balcony
And I talk to God, thank goodness He always takes my call
It’s 3am am I look up and pray

On mornings like this, I do not feel like anyone else

I feel like a stranger

It’s 3 am, once again
Talking to God because He always answers when I call
He reminds me that I am not like anyone else
That I am unique and wonderfully made,
That gives me some peace
I bet God gets a lot of calls at 3am
That gives me comfort as I look out over the night sky and I pray. ~OC

A Beautiful Gift

Today’s a new day! It’s only been a week since I was given the diagnosis of dementia. But the symptoms have been showing for a number of years. Since my diagnosis life has been filled with many phone calls and text from concerned family and friends. I appreciate them all. In the past week, here are some things I have thought about as I begin my journey with dementia.

My dementia diagnosis does not define me. Although the diagnosis is life changing, I will not allow it to change who I am. I will fight that battle for as long as I can. I will continue to love people the way I always have. Probably a little more. I totally understand dementia is a progressive disease and I may not be able to do all the things I once did, but I want to continue doing the things I enjoy for as long as I can.

If you want to know how I am doing, just ask me. The sudden change in how others communicate with me since my diagnosis has been a little frustrating. Trying to avoid conversations about my diagnosis of dementia will only make me feel uncomfortable and isolated. I am still me. For now.

Yes, the diagnosis is correct. I wish it wasn’t, but it is. Younger people can be diagnosed with dementia. While the vast majority of people are affected by dementia at an older age, the disease can affect younger individuals. If you have concerns about your own cognition, I encourage you to get checked out regardless of your age.

Please don’t debate my diagnosis or tell me I don’t look like I have dementia. Do not attempt to dismiss the diagnosis. Those responses can be offensive. It is hard enough to tell someone I have dementia , let alone having to defend it. You may not see my dementia, but I live with it every day.

Please understand that sometimes my words and actions will not be the true me. It’s the dementia. As the disease progresses, I might deal with anxiety, confusion and a host of other issues. There are days I may want to sleep more. Remember, I am still me, just a little different.

My dementia diagnosis does not mean my life is over. I plan on continuing to live an active and memory filled life as long as possible. Laura and I plan on continuing to embrace life to its fullest.

So please keep reaching out and treating me the same old way. Social interactions are very important to my wellbeing. So do not be afraid to call, come by the condo or plan a time to meet. My life continues to be a beautiful gift. ~OC

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