Tag: Choice

Life with Myasthenia Gravis

Good Morning! More writings from the “Lost Writings of OC.” I thought I would share a little bit about my Myasthenia Gravis (MG) experience with you today. I originally wrote this in 2024 and updated it several weeks ago. As I share this with you, my MG is getting much worse.

Today’s a new day! Myasthenia Gravis (MG) is an autoimmune disease that causes muscle weakness. But what exactly does muscle weakness feel like? To understand more, let me walk you through a typical day with MG.

For me it feels like I’ve run out power. In general, I feel it’s a huge effort to move when I’m very weak. When my legs are weak, they feel heavy and unsteady. I feel like I cannot move them or trust them to hold me up. The weaker I get, the closer and closer my steps get to each other, until I have to stop and lean against something or just sit down.

Also, I get pain in my hip flexors – basically my butt. It’s the same kind of pain you get from overdoing a workout: an achy soreness that feels like you have overused the muscles. These days, I deal with hip pain on a constant basis.

When my shoulders are weak, which is most of the time lately, I feel like I just cannot lift my arms. Like there are heavy weights holding them down.

My neck continues to get weaker. I just cannot hold my head up. It falls to the side or down, or I have to prop it up with my hand on my chin and my elbow on a table, or with a U-shaped neck pillow and a high-backed chair. As my neck weakens, I develop achy pain in my upper back from trying to hold my head up. I sometimes get a nauseating gagging sensation from my throat collapsing.

Eating with MG can be a challenge from having to take breaks while eating, to choking on solids and fluids. Sitting down to eat or drink is a major undertaking. I also start to slur my speech, and I get short of breath from minor exertion, or sometimes just sitting still.

I always have muscle weakness, but it gets more severe with heat, exertion, lack of sleep, infections, or other stressors. Summertime can be very challenging. Extreme cold is not my friend either.

Based on my weakened lung muscles, I am unable to take deep breaths. This causes issues on so many different levels. These days, every breath is a struggle.

I have to stay on top of my medications for the Myasthenia Gravis. I have to take one of those medications four times a day. Oh, I better not miss those dosages or things can go down hill pretty quickly.

I try to dress in cool fabrics and wear layers in winter. And I try to protect myself from sickness by keeping my vaccines up to date, wearing a mask when needed , and using hand sanitizer or washing my hands frequently when I am out of the house. I tend to fist bump and avoid shaking hands or hugging.

You know how much I love to walk, but that is getting harder these days. I have added a walking stick to help with my balance. This is a far cry from my marathon days

My medical team continuously tells me I am a one in two billion case with all of the multiple diagnosis. With Myasthenia Gravis, I fall into a small group of people being diagnosed with MG after having their thymus removed. My cancerous thymus was removed in 2003, but I was not diagnosed with MG until 2009. I will not go into what the thymus does, but feel free to research on your own.

How friends loved ones can help

One thing my friends and family do for me that’s immensely helpful is helping to educate themselves on Myasthenia Gravis so they can explain it to others and better understand my daily challenges.

I only have a few people besides my bride, who truly know me and my MG that well, but they are lifesavers. They’re also the ones I’ll talk candidly to when my MG gets me down. I cannot be relentlessly cheerful all the time, but I try.

I hope this gives you a better understanding of what Myasthenia Gravis looks like and how it affects my life on a daily basis. Each day is a struggle, but I continue to push forward and look at all the positives in my life. I encourage you to do the same. Go have a great day! ~OC

Dear God, Sometimes the pain is so great, I cannot think beyond my current struggle. On hard days, please ease my pain and help me focus on Your goodness one day, one hour, one moment at a time. Let Your overwhelming peace wash over me and remind me Your mercies are new every morning (Lamentations 3:22-23). There are days when I beg you to take the pain away. Days I just don’t have the strength. In those desperate times, I ask for Your unending strength to sustain me. I cannot do it alone, but with You all things are possible (Matthew 19:26). Amen

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Immigration and the Christian Response

Good Morning! More from the “Lost Writings of OC.” I originally wrote this back in 2017, but I feel it’s still relevant in 2025.

I do not know what it’s like to be a refugee. I have never had to flee America out of fear for my life because bombs or beheadings were a very real threat. I have never had to resettle in a foreign land and struggle to assimilate to an alien or hostile culture. I also do not know what it’s like to lose a loved one to an act of terrorism.

I do believe our political leaders must strive to protect innocent lives both by thwarting the plots of terrorists and by creating refuges for people trying to escape their reach. These are not mutually exclusive endeavors.

But how should the Christian Church and Community respond to the immigration crisis in America?

I believe the Christians community should have a special appreciation for the plight of the refugee. Our spiritual heritage is full of refugees: Abraham, Isaac, Jacob, Joseph, Moses, Ruth, Daniel and Jesus were all displaced from their homeland at some point. The earliest Christians in Jerusalem faced persecution that led them to scatter. Throughout the Bible the people of God are described as being exiles, strangers, sojourners, aliens, citizens of a heavenly home. A certain sense of homelessness is part of the cost of discipleship.

The way of Jesus Christ is not closing doors to asylum-seeking refugees or building walls to keep out foreigners. The way of Jesus Christ is not about forsaking the well-being of others in order to protect one’s own livelihood. The way of Jesus Christ is the cross. It is the way of sacrificing one’s own well-being in the name of Iove, however uncomfortable or risky or countercultural that may be.

This is not to say we should be reckless or naive or go looking for martyrdom. Christ warned his disciples not to be unrealistic about their safety in the world; they would be like sheep among wolves, and therefore should be “wise as serpents and innocent as doves” (Matthew 10:16). Our compassion should be tempered by prudence and common sense.

Think about the immigration issue in terms of our witness in the world. The way we Christians respond to refugees presents a unique opportunity to show, in vivid relief, the sort of God we serve.

Ask yourself which reflects the character of Christ more: Refusing to take in a refugee because we are concerned at the possibility that we could be harmed by such charity; or taking in a refugee out of sacrificial love that says “you are welcome at my table even if it costs me something.” Simply because you are a human and bear the image of God, I value your life, show you hospitality, welcome you at my table, even if you are a potentially dangerous stranger.

I think it’s important that Christians push back against the fickle fear and political pendulum that turns the refugee into a concept rather than an image-of-God-bearing human being. Refugees are real people with real hopes and fears, just like you and I. In many cases they are our brothers and sisters in Christ.

The refugees of our world are beloved of God and should be by Christians too. We need to know them, help them, hear their stories. We can learn from them. Let’s not close our borders and our hearts to them out of fear or ignorance. Let’s love them as Jesus loves us: mercifully, generously and sacrificially.

I know this post will be met with various opinions and probably some criticism, but I felt the need to share what’s on my heart. I pray you will respect that these are my thoughts and opinions. Blessings. ~OC

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My Room 378 Experience

Today’s a new day! As I sit in my comfortable recliner, in my comfortable apartment this morning, I have been praying and thanking God for guiding me through the last seven days in the hospital. There are still lots of questions, concerns and unknowns, but this early morning I am filled with peace. A peace that no person or circumstance can take away from me.

The past few months I have felt God wanting to have a deep conversation with me, but there was always some distractions that kept that conversation from happening. Then on New Year’s Eve, the last day of 2024, I was rushed to the ER with stroke like symptoms. After ruling out a stroke, the doctors decide to admit me for observation. Little did I know that this would be the time Jesus chose to speak to me. I wish I had the eloquent words to write down what I experienced on New Year’s Eve in room 378 that has filled me with peace, expectation and urgency. (If you want to know about my experience in room number 378, please contact me and I can share it with you). But just like the enemy likes to do, the next few days were filled with challenging moments. But as I sit here on January 7, 2025 at 3:14am, I am choosing to only remember the peace and awe I felt on the last night of 2024.

As I shared above, the experience on New Year’s Eve has filled me even more with a sense of expectation and urgency. Expectation that God is getting ready to do some amazing things, but also the urgency to share, pray, serve and write more. This experience has given me even more of a longing to share everything God has done and continues to do in regard to my crazy beautiful health journey. I want to experience even more of God’s freedom. I want to wake up each morning with delight for a new day.

As I have been up praying this morning, that sense of urgency has become stronger. I so desire for my life to have significance because of what Jesus has done and continues to do in my life. I feel laser focused on living out my days serving Jesus and others. This urgency has nothing to do with checking off a bucket list of some kind. Instead, I feel even more driven to create a legacy that points people to a relationship with Jesus.

During this twenty-two year health journey my priorities changed. My Room 378 Experience has changed me even more. I have never cared about spending money or time on material objects or activities that have no lasting impact on people’s lives. But that desire has grown even stronger. I want to conserve my time, energy, and resources for those activities that will leave an eternal imprint on my part of the world and on those God brings my way. I want to spend even more time in prayer for those I love and for this broken world.

I wake up every morning with a desire to encourage and love on people. I pray through my Room 378 Experience, that Jesus will show Himself through me even more in my little sphere of influence. Jesus put me with all my flaws, talents, life experiences, joys and sorrows, onto this earth for a reason – a purpose that He designed me to fulfill. I seek to savor each moment Jesus gives me to love and live for Him. That is my sense of urgency. It is my prayer every morning before my feet hit the ground that this day my life will not be spent in my own pursuits, but I will be a vessel for Him to touch those He places in my path. ~OC

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The Christian Life

Today’s a new day! Many people look at the Christian life and think it’s full of do’s and don’ts. Some people think the Christian life is boring. That Christians are not allowed to have fun. Then there are some who think the Christian life is impossible to live. Waves of guilt and shame combined with not feeling good enough can create a life of constantly feeling inadequate and hating oneself. So many people fill their hearts and minds with lies that they just do not measure up. People allow their past failures to keep them from experiencing the greatest gift in life. A relationship with Jesus.

I hope this post will reveal how much God loves you and wants you to come to Him just the way you are. God accepts each of us in our present condition and circumstances. He doesn’t need a cleaned up version of us, to start working in our lives. Jesus died for us to make us whole. To transform our lives in beautiful and amazing ways. To experience a life filled with joy and overflowing love that fills us up with acceptance and belonging. That acceptance and belonging then flows over to those around us as mercy and grace pouring out over our every step.

The Christian life doesn’t require us to do more or check off a bunch of boxes. Rather, it exchanges our old life filled with a bunch of junk for God’s love, peace and transformation. A life that is filled with rest and not with more things to check off. This new life in Jesus is about love and belonging, not rejection. It is about being able to live in the impossible while accessing the strength of the One who created us to move forward.

Jesus also created each of us for relationships. First with Him and then with each other. But as we all know, relationships can often be messy and filled with drama. But God created us for relationships filled with joy, peace and everything we need to keep moving and to sustain us during the difficult seasons of life.

My prayer for each of you is that you will experience the transformation of God’s amazing love and forgiveness and never want to go back to your old life again. Please believe me, when I say no one is ever too broken, too exhausted, or too much of anything to experience God’s life changing love and to live out the life He intended us to live.

So do not hold back. Dive head first into the amazing life God created for you. Let us explore the peace and wonder of God together. United in our love for Jesus and each other. Let us live a beautiful life of serving the One who created each of us by serving others. Let us delve into this life together and help make our part of the world a better place. ~OC

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Be Your Own Best Healthcare Advocate

Today’s a new day! I have been what my bride calls a “Professional Patient” for almost twenty-three years now. During this journey, I have encountered health professionals who appeared to be more concerned about egos and status than they did my well-being. For some medical providers, I was just a name on a file who happened to have very good health insurance coverage. They knew more than me because they had the title of Doctor attached to their name. Being so foreign to how the world of healthcare worked, Laura and I just went along with whatever the doctors or medical professionals directed us to do. They’re the professionals. They know what’s best for me. Right? In the famous words of Lee Corso from GameDay on ESPN, “Not so fast my friend.”

As Laura and I began to navigate this new world called the healthcare system, we found out that the most important voices were our own. If we did not stand up for my medical needs, who else would? That’s when we realized we needed to become not only our own healthcare advocates, but we needed to help other patients walking through their own crazy beautiful health journey. We recognized being a “Professional Patient” was actually a full time job.

Over the years, we have had to privately and sometimes publicly voiced some of my medical concerns. Which is not naturally part of my DNA. Or so I thought. But this is my life and my health we are talking about. As Laura and I have weaved our way through the world of health challenges, here are some of the most important pieces of advice I believe I can offer for those walking through their own health journey.

* Do not wait to speak up and share your thoughts and concerns. You know your body better than anybody else. If something doesn’t feel right or sound right speak up. If your medical team truly cares for you they will welcome this dialogue.

*Do not be afraid to get a second or third opinion. This is your life. We only get one.

*Do not be afraid to change doctors or hospitals if needed. Find a medical team that you truly feel has your best interest at heart.

*Have a great support system that can speak up on your behalf when you are unable to.

*Never stop learning about new treatments and medications that pertain to your health issue. Do not hesitate to share that information with your medical team. Once again, if your medical team cares for your well-being they will welcome those conversations.

*Take the time if your health allows, to help someone else navigate through this overwhelming healthcare system .

*Remember, it’s called practicing medicine for a reason. Your doctor and medical staff are human. Mistakes can happen. Allow those to be a teaching moment for all parties involved. Be kind and respectful, but firm.

*Be patient with yourself and your medical team. The healthcare system can be messy, stressful and complicated. Do not be afraid to show a little grace to yourself and others.

I really hope this helps someone navigating through a maze called the healthcare system. Be Your Own Best Healthcare Advocate. ~OC

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Happy New Year!

Today’s a new day! Happy New Year! Welcome to 2025. Not sure about you, but I look forward with great excitement, wondering what God has planned for me this coming new year. What new opportunities will reveal themselves? What new lessons will present themselves? A new year is full of endless possibilities.

As we gear up for a new year, I believe it’s important to take a little time to reflect on the past year. Doing this I believe helps to view each year as a season, understanding that God is Sovereign and has new seasons of experiences and growth to make us more like Him. I can testify 2024 was full of many different emotions. There were moments of grief, but there were also times of joy and happiness. A year filled with many memories and lessons.

As we take some time to reflect back on 2024, it helps us to remember that God is in total control and that we are constantly growing as His children and that He knows the plans He has for each of us. Plans of new wisdom, insight and understanding that He wants to impart to us, if we will allow Him to.

It also gives us an exciting and fresh new outlook of the coming year and enables us to leave the past where it belongs. Not that we forget the past but learn from it and move forward into our present future with open hearts and minds to receive whatever God has for us.

With that said, here are some ways we can look forward to in 2025.

New Beginnings: Start out 2025 with a fresh point of view of new experiences, opportunities, memories and blessings. Have an open mind and heart to where ever God may want to take you with full assurance and confidence that He is always with you. (Matthew 28:19-20)

New Possibilities: There are no limit to what God can do in your life and nothing is impossible with God. God opens doors that no one can shut and also closes doors that no one can open. The possibilities are endless with God. (Philippians 4:13)

New Plans: We walk into 2025 like a blank canvas. Be in prayer for what God has planned for you and be willing to walk by faith in obedience as you follow His leading. Remember that His plans are always for good and not for evil to give you a future and a Hope. (Jeremiah 29:11-13)

New Purpose: As you look ahead, God always has a plan and a purpose for what you will go through and experience. Remember that God always has a reason for what He allows in your life and through it you can trust Him completely. (Proverbs 1:3-5)

New Provisions: The Bible says to not worry about tomorrow for tomorrow has enough worries of its own. In 2025, trust in God who knows everything you need. He is our Hope and our Provider. God is faithful and He will do it. (Matthew 6:1-33)

New Growth: When we are willing to let go and let God work in and through us, He will always stretch us and grow us. It is an important part of the growth process. I pray we will all continue to grow in our relationship with God and in His Word. In 2025, allow God to mold you and make you pliable in the potters hand and then watch the master craftsman work in your life in amazing ways.

New Wisdom: With new experiences and new lessons comes new wisdom and insight. Always make it a priority to seek out wisdom as hidden treasure or fine gold. In Proverbs it says that it will be like a garland of grace around your neck and honor you and present you with a crown of splendor. (Proverbs 4:7-9)

Renewed Peace: As you go through new experiences and new adventures whether they are good or bad, my encouragement is to keep your eyes fixed on God and He will give you rest and peace, because He is our peace and loves us and cares for each of us deeply. (John 16:33)

As we spend some time in reflection about 2024, let us give thanks to God for getting us through another year as we look forward to what He has for us in 2025 and praise Him that He is faithful and worthy to be praised. ~OC

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What If…

Now to him who is able to do far more abundantly than all that we ask or think, according to the power at work within us, to him be glory in the church and in Christ Jesus throughout all generations, forever and ever. Amen. ~ Ephesians 3:19-20

Today’s a new day! I don’t understand my iPhone. I don’t understand how hundreds of thousands of pieces of information can be embedded in a tiny chip you can barely see. Or, how, at the touch of a finger, push of a button, or verbal command the entire world can be opened before your eyes. I do not know how, I may not understand, but I do know when I learn how to use my phone to its fullest I can do amazing things that almost make me look creative, even smart.

Likewise, there are so many things I don’t understand about my God, this beautiful, amazing, wonderful Triune God I serve and love. And just when I think I know Him and what He will do He surprises me. The Bible says His ways are higher than ours and His thoughts are deeper than ours. I don’t understand how He can know every person on this earth by name, or how He knows the number of hairs on my head. In my case, that’s not a hard one.

I don’t understand how He can create life out of an egg or even nothing at all! I don’t understand how He can touch a body and heal it of cancer, make the paralyzed walk, the blind see, the deaf hear; but He can! All these things God can do, and so much more! I don’t have to understand how, but just trust that He can!

What if today’s verse became our mantra for today and every day? What if, every time we were tempted to worry, or become anxious, or bite our nails, we recalled this important promise? What if we looked at all the things we or a loved one is facing presently and remembered these words? Instead of thinking all is lost or how impossible something is, said to ourselves; …but God can do abundantly more… Prayed to God; Dear God we need you to do exceedingly, abundantly more in this situation than we could dare think, ask, or imagine! What if? ~OC

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Don’t Fall For The Lies

Today’s a new day! As a chronically ill Christian, the enemy often tries to sell me the following lie: “My illness and God’s goodness cannot coexist.”

Over the past twenty-two years, multiple life threatening health disease have been my “thorn.”  My body has been attacked on many fronts. Many times early on in my health battle, I remember trying to reconcile my suffering with God’s purpose.

As I pondered my place in God’s eyes, questions of doubt polluted my mind:

What did I do to deserve this illness?

If God actually loves me, why doesn’t he heal me?

How could a broken body fit into God’s plans?

By worldly standards, my value depended on what I could do, instead of what God already did.  For someone who has lived in and out of the hospital for the last two decades, a meaningful life might seem to be an unattainable dream.

Unrooted in God’s word, the presence of my health issues seemed to indicate an absence of His affection.

But friend, this thinking is simply unbiblical.  Let’s dispel this lie by replacing it with God’s truth and equip ourselves with biblical instruction for endurance.

Maybe you don’t struggle with a chronic illness, but we all struggle with chronic issues. Whether you’re dealing with multiple health issues, the scars of life that still plague your mind or the same addiction continues creeping into your life, God tells us that no trial can separate us from His Love. ~Romans 8:35

In fact, our trials might be the very tool God uses to strengthen our relationship with Him.  So, as we think about chronic illness, let’s redirect our thoughts from asking “what could I have done differently to prevent my health issues”, to instead asking, “God, how can you work through my current health issues?”

Two words come to mind when I consider how God can work through our challenges to refine our faith: Reliance and Glory.

1. RELIANCE – God can use our current life challenges to encourage us to rely more fully on Him.

For those struggling to understand why God allows hardship to ensue, the book of Job is a masterpiece written just for us. The Bible describes Job as a faithful man with many blessings.  To test whether Job will still praise God’s name even when his life crumbles, God allows the enemy to wreak havoc on Job’s life – striking his flesh and bones with sickness, infecting him with skin boils, and turning his family away (Job 1:4-9).  Job is not only chronically ill, but also chronically lonely, as his loved ones tell him to just give up and curse His Creator.

Let’s pause right here.  God allows the enemy to test Job.  Now, why would God do this? Among many reasons, God uses suffering as a tool to refine Job’s faith. God knows that it is in the valleys that we are encouraged to truly rely on Him.

Amid adversity, Job’s mind is a battlefield much like our own; his thoughts go between wanting God to leave Him alone and begging for God’s support.  In the end, through his wrestle with God, Job remains faithful that God’s promises are true. He trusts that God loves him in his struggles and is working all things together for good.

As we learn in Job, sometimes God allows for challenges, not to punish us, but to strengthen our relationship with Him.When storms arise, may we trust that God’s plans are purposeful.  This means that whether we are battling a seasonal cold or fighting for our lives after tragedy strikes, God’s loving hand is in everything.

2. HIS GLORY – The contrast of our weakness with His Power emphasizes our need for God.

In 2 Corinthians 12, Paul describes pleading with the Lord to remove a “thorn in his flesh” (2 Corinthians 12:7).  In my own life, my “thorn” represents my health battle.

Jesus addresses Paul’s request by equipping him with endurance and explaining that his struggle has a purpose.  Jesus answers, “My grace is sufficient for you, for My Power is perfected in weakness” (2 Corinthians 12:9).  In this story, Paul’s struggle serves as a reminder of his inherent inadequacy to our all-powerful God, ultimately pointing to his need for a Savior.

Though God denies Paul’s request for healing, He assures him that His grace will help him endure.  Paul is not blessed with healing, but instead, with a more valuable and versatile blessing: the ability to see God’s light in the darkness of his valley.  God doesn’t leave us to dwell in our struggles, He helps us endure.

God’s response gives hope to those whose prayers seemingly go unanswered.  Next time you ask God to remove your “thorn”, may you remember that a lack of an answer is not evidence of a distant God.  God always responds to our requests; His responses just might differ from what we planned.  No matter the response, if we trust God with our lives, we can be sure that He is working for our good and His glory (Romans 8:28).

As we learn from Paul’s interaction with God, some of our wounds will only heal once we go home to Heaven, but we can trust that our struggles are a part of a beautiful redemption story.

Let’s look at another example of how God can work through our pain to reveal His Power.  In John 9, Jesus is walking around town with His disciples when they spot a man who is blind from birth.  Jesus’ disciples ask him a question that might sound like one you’ve asked yourself before: “who sinned, this man or his parents, that he was born blind?” (John 9:2).  Sound familiar? The disciples mistakenly assume that this man’s disability is due to his personal sin.

Jesus corrects the disciples, responding, “neither this man nor his parents sinned…This came about so that God’s works might be displayed in him” (John 9:3).  With this declaration, Jesus dispels the lie that the only purpose for our trials is punishment, and He communicates that our trials can be used to display God’s power.

Jesus then heals the blind man, confirming his belief and establishing an eternal relationship.

Before his healing, we can’t be sure of how this man’s disability affected his self-esteem, but he might have believed some of the same lies that often ravage our minds.  When measuring himself against societal standards, he very well could have attributed his disability to a distant God.  However, when Jesus enters the scene, it becomes clear that this man’s disability was the very tool God utilized to strengthen his relationship with Him. 

As we reflect on these stories, the Word illuminates God’s heart for the chronically ill: God has a purpose for our pain, His love does not waver, and He will work all things together for good, even the messy parts of our lives.

God does not promise to remove our thorns, but He does promise to help us endure.  Whatever your thorn looks like, may you remember that God provides a peace that surpasses understanding (Philippians 4:6-7).

Throughout my battle with multiple health issues, medical mysteries, and shattered plans, one verse has sparked hope in my soul: “We do not give up. Even though our outer person is being destroyed, our inner person is being renewed day by day” (2 Corinthians 4:12).

Friend, however deep your thorns dig, may you never give up. Keep overcoming and finish strong. ~OC

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A Day In The Life

Today’s a new day! Ever wondered what a day living with chronic illness and health challenges looks like? Today I will take you on a journey into the twist and turns of a day living with long-term health issues.

From the moment I wake up, I’m already facing barriers. My chronic illnesses make it difficult to get going. For those not aware, based on my health issues, I have slept in a recliner for about the past twenty years. It’s just too hard to get in and out of a bed. Every day is a balancing act where I have to be mindful of my energy levels and make sure that I’m taking time to rest. 

An Introduction To My Health Journey:

In 2002, I was diagnosed with multiple forms of arthritis. That year was filled with a lot of experimental treatments. Then in 2003, I was diagnosed with cancer. Thankfully I was able to have surgery to remove the tumor and never had to walk through the struggle of chemo and radiation. Let’s speed things up. From 2007-2024, I have been diagnosed with Parkinson’s, Myasthenia Gravis, Gastroparesis, Type 2 Diabetes based on all the steroids, had a stroke, diagnosed with cluster headaches and just a few months ago was diagnosed with early onset dementia. That’s my rap sheet!

What My Night and Morning Looks Like :

Based on my neurological issues, I am up and down most of the night. So I never wake up feeling rested. I wake up stiff, so I need to move around and take a host of medications in the morning. Of course meds have side effects, so that can be difficult.

Since I deal with gastroparesis, eating has been a major issue for many years. That makes taking in fluids and food a huge and painful task. So every meal, every day is an adventure.

My mornings are dedicated to spending time with God, journaling and trying to exercise. For me, walking is the best type of exercise for me. I never know how many laps I will be able to get in. I have to be careful not to overdo it. If I do overdo it, my body will pay for it the rest of the day. I spend some time each day for reflecting on life and looking at how I can hopefully encourage others as I continue running this journey. These days, I tend to take a lot of short cat naps. Over the last year, the pain has increased, so that’s a daily struggle. Unfortunately, pain meds and gastroparesis do not really care for each other. So most days, I just live with the pain.

One thing I choose to do everyday is get dressed. I never lay around in my sleeping clothes. It makes me feel good to get cleaned up and get dressed.

My favorite part of any day is spending time with my bride and friends that choose to reach out. Spending time with loved ones is very important to me. I love sitting around and enjoying great conversations. Also, I try to read every day. My love for reading has been challenging the last few years, since it’s hard to stay concentrated. I also spend time listening to music each day. Music can make everything a little bit better.

In the evening, Laura and I like to talk about our day and possibly watch a little television. Based on my day, my bedtime varies. But since I sleep in my recliner, I can fall asleep anytime my body and brain allows me to. Every night is an adventure.

What I consider a daily self-care must do:

Writing about what I’m grateful for in my journal helps me remember the positives, even on those really hard days. Living with long-term health conditions can be exhausting and can be very negative if you allow it to get on top of you. 

Several people have asked if I had one day without pain and could step away from my health journey what would I do?

I would lace up my running shoes and go for a very long run. For those new to my journey, in my healthier days I was blessed to complete 350 marathons.

Another question people asked me a lot: Is there anything I would like to share about daily living with chronic illness and life challenges?

There’s a lot, but I do not want to make this post any longer than it already is. One of my hopes is, people will realise that we never know what someone else is really going through. So be kind and respectful. It doesn’t help when people tell me how I should be living out my health journey. Just be supportive and walk through this journey with me.

By sharing what my day to day life is like, I hope I can raise awareness of the bigger picture as people only see snippets of my journey online or see me on my best days in person. I am not sharing this for pity or sympathy and I am not complaining. I just want to give you some insight into this crazy beautiful health journey.

The Takeaway:

Writing about my day living with chronic health issues has been quite eye opening to me to see how much life has changed over the years. I have a strong need to celebrate the love and support I have received over the years from family and friends. Writing this post has let me see how faithful God has been to me, as I continue to run this beautiful journey.

I hope that you have found this post to be a helpful insight into life with with long-term health issues. There are so many people walking through a tougher battle than me. So if you know someone dealing with chronic illness, take the time to reach out to them and support them on their journey. ~OC

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Our Health and Living

Today’s a new day! Long-term and terminal illnesses can be a scary road to navigate. It’s hard on one’s body, mind and soul. And everyone that cares for them. How will my body and mind handle today? That’s a question I ask myself on a daily basis. Chronic and terminal illnesses also raises many questions that many people shy away from unless they are faced with it directly. But if we’re listening, many lessons can be learned.

Health issues have a way of reminding people that time is a valuable, non-negotiable, and a non-renewable resource. With that said, how do we look at the bigger picture of life and find out what is truly important? 

Spend Time Focusing on Relationships:

We were not meant to do this life alone. God did not create us to be Lone Rangers. I know of no one who regrets time spent building meaningful relationships regardless of life’s struggles.

Take time to ask yourself the following question: Are you truly making time for your family and friends?

Trim That Fat:

I am not talking about dieting and exercise, but those are important parts of our lives.

No, I am referring to something that a lot of times we do not even notice. I am referring to our home and our lives. We all have a tendency to fill both with clutter and hang on to things we do not need. A life-changing diagnosis can become the catalyst for the housekeeping of our home and heart as we realize what is truly important in our lives. It is also a good time to reflect on our faith.

 “Let us throw off everything that hinders and the sin that so easily entangles. And let us run with perseverance the race marked out for us.” ~Hebrews 12:1-2

Speak your Heart Now:

It is good for all of us to review and consider our relationships. Because we all know relationships can be messy at times. If we love people, why not let them know how much they mean to us. Now! Why wait until it’s too late? If we have hurt someone or offended them in some way, why not seek their forgiveness and do what we can to make it right.

Who are the most important people in your life? Take a moment to think about that. Maybe even say their names out loud or write them down. Then ask yourself this question: Have I honestly shared what each of those individuals truly mean to me?

“A heart at peace gives rest to the body.”   Proverbs 14:30

Set New Goals (Dream!):

It can be easy to wait for a challenging season to be over. “When I get better, then I will take that trip.” “When I get better, then I will _____.” Why not take that trip now? As I have walked through this long journey of health issues, Laura and I have learned to take those trips now. Even though those trips can be tough on my body, the memories are priceless. So go live out that adventure. Experience love, joy and happiness during even the toughest of times. I encourage you to find what brings you happiness and go experience it. Keep dreaming some big dreams, set some goals, and do what you possibly can to make them happen.

Many facing long term health challenges find that those trials have helped them clarify and simplify their lives.

During my own health journey, I have discovered what’s truly important in life. For me, it’s my faith, my relationship with my bride, relationships with loved ones, encouraging others and truly living out my God-given purpose in life.

What can we learn from this?

Praise be to the God and Father of our Lord Jesus Christ,
the Father of compassion and the God of all comfort,
who comforts us in all our troubles,
so that we can comfort those in any trouble
with the comfort we ourselves receive from God. ~2 Corinthians 1:3-4

I hope and pray the words above have brought some comfort and encouragement. Go live your life! ~OC

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