What About The Caregiver

I have been fighting multiple life threatening health issues for the past 17 years and my wife Laura has the toughest job. That’s right. You see, Laura has been a Caregiver for 17 of our almost 20 years of marriage. She has definitely lived out the “In Sickness and Health” vow. A lot of people like to call me a Rockstar, but Laura is the real Rockstar in this crazy beautiful journey.

As a patient, I know what I need to do. I have my checklist of things to do each day. The caregiver does not have a checklist. They do not have a treatment plan. Most of the time the caregiver is trying to figure things out on the fly. Hoping what they say and do is correct. Also, the caregiver tends to get lost along the way. Everyone is always asking about the patient, but we need to make sure we never forget to check in on the caregiver. How can we do that? Here is a few things Laura and I have learned over the years.

Take Time to Laugh. I know it sounds simple, but humor has helped Laura and I deal with some of the toughest moments we have faced in this crazy beautiful journey. Plus one of my wedding vows was I would make her laugh everyday.

Have Your Own Team. I often talk about the great team I have around me. The caregiver also needs to have a great team around them. Over the years, Laura has been blessed with a wonderful team of people to help her walk this journey. Do not do it alone.

Take Time for Yourself. The caregiver must take time for themselves during the journey. That could mean taking a walk by yourself or taking a trip. During our journey, I have always encouraged Laura to get away with friends and not become consumed with taking care of me. This is where The Team comes into play. When Laura is away getting recharged, our team steps up to take care of me. Thank goodness I am still able to do a lot for myself, but it’s nice to have that team available to help.

Let People Help. A lot of times when people are dealing with the storms of life, they try and do everything by themselves. Laura tried to do everything herself at the beginning of our journey. That was not healthy or fair to her. People truly want to help, we just have to ask. Let me give you an example. I am no longer able to drive. That can be tough when you have multiple doctors appointments a week. Laura used to take me to my appointments/treatments and then pick me up afterwards. That meant she had to work around her work schedule. A friend found out about this and decided to set up rides for me. Guess what? People actually fight over (in a nice way), who gets to take me to and from my appointments. This has taken so much pressure off of Laura. Plus I get to hang out with some amazing people.

Rest. Taking care of someone can be overwhelming. Can I get an Amen from all the caregivers out there? So it is important to get some rest. In the early days of my hospital stays, Laura would stay with me all day. Not leaving the hospital until late at night. If anyone has spent any time in the hospital, you know how exhausting that can be. Today, I make sure Laura leaves the hospital early and comes in later in the morning or afternoon. That gives her time to get the proper rest.

Stop Comparing Yourself. Your journey as a caregiver is unique. Please do not compare your caregiving skills with someone else. Your doing a great job!

Take Time to Eat Properly. A lot of times the caregiver is running from one appointment to another. It is easy to stop at a drive-thru and get to the next appointment or hospital visit. Sometimes a caregiver gets so busy, they forget to eat. Please take the time to sit down and have a nice meal. That is part of taking care of yourself.

Don’t Forget Your Health Needs. It is so easy for the caregiver to forget about their own health needs. I am constantly checking with Laura about her health needs. That is also where Team can help. Make sure the caregivers in your life is taking care of their physical, mental and emotional health needs.

Community Resources. There are so many resources out there for caregivers. Do not be afraid to check them out. They can make this journey so much easier.

Write Things Down. As a caregiver, you are being bombarded with a lot of information. That can be overwhelming. Over the years, Laura has created a medical sheet for me. It has all my vital information on it. It includes my list of medications, the names and phone numbers of my doctors, a list of my past procedures, all my implants and the medications I am allergic to. This sheet has been a blessing. So many of our medical team have mentioned how helpful it is for them, especially during an Emergency Room visit. Laura has my information saved on her computer, so she can easily update it.

Know Your Limitations. I know most caregivers are superheroes, but know your limitations. You do not have to do everything on your own. Be willing to except help. People genuinely want to help. Asking for help does not make you a failure. It makes you human,

Learn to Say No. A caregiver takes on many roles. That can be exhausting. So I want to encourage all caregivers out there, it is okay to say No. Being able to say no can be so freeing. It frees you up to say Yes to the really important things in life.

These are just a few lessons Laura and I have learned during our crazy beautiful journey. In our book, “The Blessed Overcomer”, Laura shares about her journey as a caregiver. I am so thankful she shared her part of our story. We have received some amazing feedback from other caregivers. Caregivers are heroes, but they are still human. Please check in on the caregivers in your life. Do not allow them to walk their crazy beautiful journey alone. ~OC

Let Go of Fear

Has fear controlled your life? At some point in our lives, everyone has dealt with fear. For some, fear has paralyzed them. Kept them from truly living life.

During my 17-year and counting crazy beautiful health journey, fear has reared its ugly head several times in my life. I remember the first diagnosis so many years ago. Cancer. How could I possibly have cancer? Fear gripped my wife and I after that diagnosis. We had only been married a few years at that point. We had so many plans. Would we even have another year together? This scene has played out in our marriage many times over the years, as I have been diagnosed with one life threatening health issues after another. How have we dealt with the different fears that have tried to steal our happiness?

Prayer. I know this sounds simple, but a lot of times we reach for everything but prayer. Prayer becomes a second or tenth option. I would encourage everyone to make prayer your first option. I can personally testify to the power of prayer and faith in my own journey. I know I would not be alive today, writing this post if not for prayer. Not just my prayers, but the prayers of many. Whatever you may be going through today, I encourage you to pray and don’t be afraid to ask for prayer. People genuinely want to pray for you. Let them.

Team. Do not try to walk through your fears, or life for that matter, by yourself. We were not created to do life alone. The Lone Ranger may have been a good tv show/movie, but is a terrible lifestyle choice. During my health journey, my wife and I have surrounded ourselves with an amazing team of people. Team Todd has helped us walk through some of the most difficult days of our lives. People want to help, so let them.

Keep Living. This is much easier said than done. The fears and all the junk life throws at us can become overwhelming. We have all been there. Laura and I made the choice early on in this crazy beautiful journey to keep living. We decided not to just live, but to Thrive. Todd, what does that even mean? Thriving means not letting your current circumstances define you. Thriving means taking a last-minute cruise. Thriving means spending quality time with family and friends. Thriving means stepping outside of your comfort zone. I could go on, but I think you get the idea. Don’t allow your fears or your current circumstances to keep you from living a beautiful and blessed life.

Find Purpose. During my crazy beautiful journey, I knew there had to be more than doctors appointments, hospital stays and multiple medications. There just had to be. Finding purpose in this journey allowed me to overcome my fears. During the past 17 years, God has allowed me to use my story to encourage others. To pray for someone going through their own journey. To hold their hand and guide them through the toughest moments of their lives. To walk them through their fears. So what is your purpose?

Does doing these four things guarantee you will no longer deal with fear? Unfortunately no. After all these years, I still deal with fear at times. But I do not live in fear. Fear does not control me. The power of Prayer/Faith, Team, Thriving and Purpose help me let go of any fears that come my way. Faith>Fear. ~OC

Today I Choose

When your dealing with multiple life threatening health issues, each day brings different challenges. Some days those challenges can seem overwhelming. What’s awesome, is each day I am able to choose how I deal with those challenges.

When my crazy beautiful health journey started over 17 years ago, I made the choice to embrace my challenges and really live life. That is not always easy. My body is really not my own anymore. Most of the time my body feels foreign to me. But even in those tough moments, I still get to choose how I deal with this new reality. Do I allow my challenges to consume me or do I choose to overcome those challenges?

If you have followed my story at all, you know the answer to that question. I have made the choice to truly live. Even though it would be easier to sit around and take it easy, I choose to take trips with my beautiful bride and make amazing memories. I choose to use my story to encourage others dealing with their own crazy beautiful journey. Heck, I even chose to write a book. I choose to live a positive life.

I believe my positive outlook on life, has gotten me through some of my toughest days. I believe my days as a long-distance runner, has given me the mental strength to deal with the health struggles I deal with on a daily basis. I know my faith has helped guide me through this crazy beautiful journey. Because I know this journey is only temporary.

Each morning, we choose how we life today. Here are some choices I make daily.

Today, I choose to be a Warrior.

Today, I choose to be an Overcomer.

Today, I choose to Thrive.

Today, I choose to Live. ~OC

Healing

During my 17 year health battle, many people have prayed for my physical healing. During that time, I have often wondered why those prayers were not being answered. I never obsessed over it, but God and I had numerous conversations about the subject. During those discussions, I never heard God answer me. Then several months ago, during a late night encounter I heard God speak to my heart. He shared that my complete healing would come in heaven. You might think I was disappointed by this answer, but I actually felt nothing but peace. That late night conversation has only strengthened my resolve to continue sharing my faith and encouraging others. You see, God shared my complete healing would come in heaven. I am still believing, I will experience some healing on this side of heaven. I continue to be thankful for this crazy beautiful journey and the opportunities it brings me. I will continue to embrace every moment. I am at peace. ~OC

Thriving with Chronic Illnesses

During my 17-year plus crazy beautiful health journey, I have learned many lessons. Here are just a few:

1). Embracing Relationships That Matter.

Want to find out who your true friends are? Let life throw you for a loop and you will quickly find out.

During this journey, many friends who I thought would stand with me walked away. I must admit that hurt. But, instead of dwelling on those friends that walked out, I decided to celebrate those that have stuck around through the best and worst of times. I am forever grateful for each and everyone of them.

2). Laugh And Then Laugh Some More.

My wife and I have learned the power of laughter during the darkest times. Our dark humor has helped us deal with some of the toughest moments in this crazy beautiful journey.

Even during the worst days, when my medical team has stated they have no idea what is going on with my body. Or when they wonder out loud, how are you still alive? We still laugh.

Sometimes it comes down to, if we don’t laugh about the situation we might go hide in a dark place. Who wants to deal with that scenario?

3). Be Your Own Advocate.

During the early days of my health journey, Laura and I depended on my medical team. Hey, their the experts. They know best. Wrong!

After some of my doctors refused to listen to us, Laura and I learned we needed to take charge of my healthcare. If not, some of our former doctors would have ended up killing me. That’s not a joke.

It is vital to stand up for yourself and take charge of your healthcare needs. If you are not able to do it yourself, please have a team of advocates around you. They could save your life.

Never be afraid to ask questions. Listen to your gut. Never be afraid to fire your medical team.

4). Keep Living Life.

Do not allow a bad diagnosis to keep you from living your life. I mean truly living life.

Stop putting things off until you get better. Guess what? You may never get better. So take that trip. Take that class you always wanted to. Call that friend who’s been on your mind.

Do not get so caught up in your health journey, that you forget to embrace the beautiful moments of life. The truth is, we only get one shot at life. Don’t waste a minute. ~OC

I Speak For Free

Since our book The Blessed Overcomer came out this past March, Laura and I have been fielding inquiries about speaking engagements. It has been exciting to share our story with an audience. I always love the interaction with a live audience.

Of course one of the first questions I get about speaking is how much do you charge? People are amazed when I tell them we do not charge for our speaking engagements. After they recover from the shock, I share that our story is really not our story. It belongs to God. Laura and I do not feel the need to charge at this time. If God tells us we need to charge for our speaking engagements at some point we will, but I do not ever see that happening. The only thing we will charge for is transportation and lodging if we have to travel. Oh and our book (I usually give away more than I sell).

So, if you or your organization is interested in hearing about our story of overcoming the storms of life, perseverance and embracing this crazy beautiful journey, feel free to contact me. Laura and I would be honored to share at your next event. ~OC

My Weakness

Today’s a new day! My weakness makes room for God’s strength. In times that are tiring and uncertain, when I feel I have nothing left in the tank, He shows up and reminds me that there is indeed nothing I can do…and He offers me his strength…because it is more than enough to carry this weight. ~OC

True Love

When I think about true love, I think about my beautiful bride Laura. If there was a picture of true love, her picture would be be front and center. This is not just a husband bragging about his wife on Valentine’s Day. Let me share a little love story with you. A young man meets a young girl while rollerblading in Palm Beach almost 20 years ago. This young couple gets married in the same year. I am sure a lot of people thought what crazy kids. In year three of this beautiful love story, the young man gets sick. Maybe just a little bump in the road. No, that little bump would become a crazy beautiful journey that would still be going on in year 20 of this love story. So what does this young girl do? She steps up and becomes the young man’s cheerleader, health advocate, caregiver and get in your face kind of protector when needed. This young lady has been my champion. That young couple could have never known the journey they would travel. But they decided to make the most of all the hospital stays and doctor visits. Many Valentine’s Days spent in the hospital. That young couple has always found a way to turn a negative into a positive. They have always decided to run, sometimes limp through this crazy beautiful journey together. Always together. ~OC

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