Tag: Memories

Not In The Storm

Today’s a new day!

There comes a moment in life when you realize the journey is not about pretending to be strong every second of every day. It is about learning how to walk honestly with God through both the beautiful moments and the painful ones. As I continue walking this crazy beautiful health journey, I am jumping into the deep end of life.  I am choosing to live fully, love deeply, and embrace every moment God places in front of me. I am taking trips with my bride, cherishing the laughter, the quiet moments, and the memories we are building together. I am having deep and meaningful conversations about real life, real struggles, real faith, and real hope. No sugar coating. No masks. Just honesty wrapped in grace.

Some days are incredibly good. Some days feel light, hopeful, and full of strength. Then there are days that are really tough. Days where the storm feels loud and exhausting. But through every high and every low, I refuse to let the storm become my identity. My diagnosis is not my identity. My struggles are not my identity. My difficult moments are not my identity. My identity is found completely in Christ, and that is the only identity that truly matters.

The world often tries to define people by what they are going through.   God defines us by who we belong to. We belong to Him. We are loved by Him. We are redeemed by Him. We are sustained by Him. Storms may shape parts of our story, but they do not get to name us. Jesus does.

What this journey has taught me more than anything is this: life is too precious to spend buried under fear, hesitation, or regret. Too many people are waiting for “someday” to start living. Someday they will take the dream trip. Someday they will say “I love you.” Someday they will forgive. Someday they will have the hard but healing conversation. Someday they will step out in faith and pursue what God placed in their heart. But someday is never promised.

So my encouragement to everyone reading this is simple: live life to the fullest. Trust God enough to truly live. Take the trip. Make the phone call. Sit down and have the real conversation. Laugh loudly. Love deeply. Pray boldly. Stop allowing fear to keep you trapped in a life of “I wish I would have.” The storm may still rage around you, but there is a way to live beyond the storm.

Living beyond the storm does not mean pretending the storm is not real. It means refusing to let the storm steal your joy, your purpose, your faith, or your ability to truly live. It means understanding that even in the middle of pain, God is still writing beautiful chapters. It means choosing to see every breath as a gift and every day as an opportunity to love God and love people well.

At the end of our lives, most people will not regret loving too much, believing too much, or trusting God too deeply. They will regret the moments fear kept them from fully living. So live courageously. Live gratefully. Live authentically. And no matter what storm comes your way, never forget who you are.

Your identity is not in the storm.

Your identity is in Christ. ~OC

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Front Porch Conversations

Today’s a new day! 

When I was growing up, some of the richest moments in life didn’t come from big events or expensive experiences—they came from sitting still and listening. We’d gather around grandparents, older relatives, or even a neighbor leaning back in a worn-out chair, and just soak in their stories. There was something sacred about it. Their voices carried history, wisdom, humor, and lessons you couldn’t learn from a screen. I remember asking questions—not because I had to, but because I wanted to understand where they had been, what they had seen, and how they had made it through life. Those conversations shaped me more than I realized at the time.

These days, that kind of connection feels harder to find. I see young people constantly pulled into their phones, measuring life through likes, shares, and fleeting moments of attention. At the same time, I see many older folks growing frustrated, shaking their heads, and criticizing the very generation they could be pouring into. Somewhere along the way, we stopped meeting in the middle. We traded front porch conversations for comment sections, and real laughter for digital noise. And in doing so, we lost something deeply human.

But it doesn’t have to stay that way. If we truly want a better country, a stronger community, and a more connected world, it starts small—right in our neighborhoods. It looks like putting the phone down, walking outside after dinner, and pulling up a chair in someone’s yard. It looks like asking questions again and taking the time to listen. It looks like older generations choosing to share rather than complain, and younger generations choosing curiosity over distraction. Real life happens in those moments—in the stories, the laughter, the silence between words.

Maybe the answer isn’t complicated at all. Maybe it’s as simple as showing up, being present, and remembering that every person has a story worth hearing. If we can get back to that—back to sharing life instead of scrolling past it—we might just rediscover the kind of connection that can change not only our communities, but the world around us. ~OC

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Not A Coincidence

Today’s a new day!

There are moments in life when you look back and wonder how you made it through. The nights that felt endless, the heartbreak that cut deeper than words, the battles you thought would surely take you out—but somehow, you’re still here. It’s easy to chalk it up to luck, coincidence, or sheer willpower. But the truth runs deeper than that. You survived everything that was meant to destroy you, and that’s not a coincidence—that was Jesus. In the middle of the chaos, when you couldn’t see a way forward, He was already making one. When you were too weak to stand, He was carrying you. Even when you didn’t recognize His hand, His presence never left your side.

Jesus doesn’t just show up in the good moments; He proves Himself in the fire. Every trial you walked through and came out of wasn’t just something you endured—it was something He brought you through. The pain didn’t have the final say. The enemy didn’t win. Your story didn’t end there. What was meant to break you became part of the testimony that now defines you. So when doubt tries to creep in and tell you that you’re alone or forgotten, remember your own history. Look at the evidence of grace all over your life. You’re still standing, still breathing, still moving forward—and that’s all the proof you need. Jesus has been faithful before, and He will be faithful again. ~OC

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Use Wisely

Today’s a New Day!

There are 10,080 minutes in every week—an abundant gift that often slips quietly through our hands if we’re not intentional. Scripture reminds us to “redeem the time,” to be mindful that each moment is an opportunity to draw closer to God and reflect His love in the world. When we begin to view our time not as something to spend, but as something to steward, our perspective shifts. Even the smallest portions of our day can become sacred. A few minutes in prayer in the morning, meditating on God’s Word during a lunch break, or offering gratitude in the quiet moments before sleep—all of these practices help anchor our hearts in Him. Loving God with our time doesn’t require perfection; it requires presence, consistency, and a willingness to invite Him into the ordinary rhythms of our lives.

But our calling doesn’t stop with loving God—it flows outward into how we love and serve others. Within those same 10,080 minutes are countless chances to show kindness, extend grace, and meet the needs of our neighbors. Sometimes that looks like serving in a church or volunteering in the community, but often it’s found in everyday interactions: listening attentively, offering encouragement, forgiving quickly, or simply being available when someone is in need. When we intentionally set aside time to serve others, we reflect the heart of Christ, who came not to be served but to serve. A life well-lived isn’t measured by how busy we are, but by how faithfully we use our time to love God and love people. If we dedicate even a fraction of our weekly minutes to these purposes, we begin to see that every moment holds eternal significance. ~OC

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Finding Purpose in the Storm

Today’s a new day! As I sit in this hospital room, surrounded by beeping machines and the business of staff, I am reminded that my purpose extends far beyond my physical body. In the midst of uncertainty and pain, I pray: Dear God, use me for your purpose during this hospital stay and every day as I continue to fight through this crazy beautiful health journey.

For me it’s a prayer of surrender, of trust, and of faith. It’s a reminder that even in the darkest moments, God’s love and patience remain unfailing.

Embracing the Unknown:

When we’re faced with the challenges of life, it’s easy to feel like our lives are spinning out of control. But what if we flipped that perspective? What if this season of uncertainty is an opportunity to discover a deeper sense of God’s purpose for our lives?

For those walking through their own “crazy beautiful journey,” I encourage you to pray the following: Dear God, use me for your purpose… I am thankful for your unfailing love and patience with me.

Practical Ways to Find Purpose:

1. Prayer and Reflection: Take time each day to connect with God. Reflect on your experiences, and ask Him to reveal His purpose for your life.

2. Support Loved Ones:Reach out to family and friends, and let them know you’re thinking of them. Sometimes, a simple text, handwritten note or phone call can bring joy to someone’s day.

3. Share Your Story: Consider sharing your journey on social media, a blog or write a book. Your story might encourage others who are facing similar challenges.

4. Find Ways to Serve: Even in a hospital room, you can serve others. Share words of encouragement with the staff, pray for the staff and others walking down the hall. Show kindness and respect to everyone you encounter today.

A Prayer of Thanksgiving:

As I continue to navigate through this health journey, I am grateful for God’s unfailing love and patience. I’m thankful for a loving and supportive bride, I am thankful for my medical team that’s been taking care of me for many years, I am blessed by the the loved ones who pray and support me, and for the opportunities to grow in my faith.

If you happen to be reading this post and are facing your own challenges, know that you’re not alone. You’re loved, you’re valued, and you’re part of a larger story.

A Prayer for Today:

Dear Jesus, use us for your purpose during the stressful times of life and every day as we continue to navigate through this journey called life. We’re thankful for your unfailing love and patience with us. Amen

Challenge of the Day:

How can you use your life experiences, past and present to bless and help others today? ~OC

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2AM Thoughts

Today’s a new day! It’s 2am on this Tuesday morning. I have been unable to fall asleep. It’s just one of those crazy nights with Parkinson’s and Dementia. So I have walked around the house more times than I can remember. I have watched several YouTube videos to pass the time. Finally, I have decided to share my experience and thoughts with you. Writing is still something my brain allows me to do on occasion. Lately, God has filled my brain with many thoughts. I feel an urgency to write as much as possible before I can no longer do that. Tonight, my brain is extra active. That’s not always a good thing.

I have good days and bad days as I navigate through the multiple health issues that are slowly robbing me of so much. On a bad day, I cannot do anything at all. My energy levels are low and I feel fatigued. The only way I can describe it is that I feel like I have run a hundred marathons in a very short amount of time. I feel totally drained.

But I have lots of coping strategies. I choose to use those days to pray a lot more. I choose to reach out to friends even though I know, I will not hear back from the majority of them.

I think it’s important to have something that gives you a sense of purpose in life. I try to share my journey to help encourage others walking through their own life struggles. If I can help just one other person, that’s enough for me.

When most people think about neurological issues, especially dementia they think it’s all about memory loss. But I have cognitive issues also- trying to figure things out can be difficult and frustrating. Also too many voices at one time can be overwhelming. I get frustrated and anxious if I am struggling to follow the conversation. I also deal with a lot of rigidity and pain, which creates so many issues.

Over the years I have lost many friends as I have walked through this crazy beautiful health journey. I believe a lot of people have a difficult time talking to and relating to me. But I am still me. My story has just changed a little. A lot of times when Laura and I are around other people, they will address questions to her, not me. My prayer is that people would see the person, not the disease.

But I am blessed that a few friends have decided to stick around and not jump ship. I hold those friendships very close to my heart.

I choose to embrace each moment of life. I try to share my love and thoughts now. Not waiting for the perfect moment. Because the perfect moment is today. Laura and I do not wait for the perfect moment to buy that gift or take that trip. Now is the perfect time. Now is the perfect time to take care of future arrangements. Which we have done. I did not want Laura dealing with all of that on her own.

It also means we’ve had really indepth chats about what quality of life really looks like. Everyone has to figure that out for themselves and their loved ones.

Life looks different every day. What I could do yesterday, might be more difficult to accomplish today. I continue to live my life with my cup overflowing. I try not to beat myself up too much when I cannot do something anymore. Because there are still many things I can do. So today, I choose to embrace the now and what I can accomplish today. ~OC

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The Gators

Today’s a new day! Here’s a little something I wrote about Florida Gators Football:

In the heart of Gainesville, where Spanish moss freely hangs from the live oak tress,
Gator fans roam, with excitement building inside
Their orange and blue, is a fiery sight,
Walking towards The Swamp, ready to witness another electric night

From Steve Spurrier’s Fun ‘n’ Gun, to Urban Meyer’s championship runs, to the legends of Emmitt, Wuerffel and Tebow, The Swamp is electric, year after year, as the Gators stand tall

With every snap, another memory is made,
From strength and grit, to their will to win, push the Gators towards another big win

From the banks of the Swannee River, to The Swamp’s roar, the Gators Won’t Back Down,
They stomp and chant, and proudly do the chomp,
The team, the fans, the passion, the memories unbound. Go Gators! ~OC

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Marriage Vows

Today’s a new day! On this date twenty-six years ago, I had the honor of marrying my bride Laura. When we shared our vows on that Friday night we had no idea that the majority of our marriage would center around my health issues.

Like every newlyweds, we thought The big stuff, the hard illnesses, would come later in life. That definitely has not been part of our story.

I was taken by surprise when life-threatening illness hit our home – and even more surprised when it happened to me. Without any warning signs, I began experiencing severe fatigue and muscle weakness. Within a few months and after a number of tests, Laura and I were told I had several forms of crippling arthritis. Only to find out a year later, I was actually dealing with a very rare type of cancer. (only 2% of the population deals with this type of cancer). We had no idea how that diagnosis and then multiple life threatening diseases would become part of our everyday lives.

My wife Laura and I were still in our honeymoon season of our marriage. This kind of thing wasn’t supposed to happen. I felt helpless as Laura cared for me in addition to working her full-time job and working on her masters degree. While I was in the hospital, she stayed by my side, trying to work and get some rest in some uncomfortable chairs. Watching her husband struggle to just breathe at times.

Over the years, Laura has taken on most of the she household responsibilities. She makes meals, vacuums and chauffeurs me to multiple medical appointments. She does this all with a smile and encouraging words.

I was and still am blown away by how Laura continues to care for me all these years later. At times, I have found myself frustrated that I cannot do more to make her daily grind a little easier. Her kindness continues to overwhelm me.

As I reflect on this health journey we continue to walk together, it gives me a deeper appreciation of God’s purpose for marriage. Sacrifice is lived out in homes around the world as couples serve each other through illness, financial crisis and family issues. No matter their story, husbands and wives face opportunities to love without seeking anything in return. Why? So they can experience God’s heart through one another and live His love for one another.

Every opportunity we have to serve our spouse gives us the chance to live out the love story God crafted for us. He gave His Son so that we could have life. There was nothing we could give in return – nothing we could do to pay Him back. And yet He chose to give anyway.

Laura continues to live out her commitment to stand by me in sickness. She has more than fulfilled her marital vows – she has become a living illustration of God’s love. ~OC

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Flashing Neon Sign

Today’s a new day! As with many neurological illnesses there is nothing noticeable about my condition. It’s not like a broken leg or arm where there is a cast which is obvious when seeing the person. But I cannot tell you how many times I have heard the same old words since my diagnosis last fall, Todd, you do not look like you have dementia.

I often wonder if it comes down to the fact that people feel uncomfortable talking to me about it, so they say the first thing that comes to mind. Which at times can come across as very insensitive and judgmental. Since my diagnosis of early onset dementia caused by my Parkinson’s, I have had several people tell me I do not look or act like someone with dementia. Or Todd, maybe you’re just dealing with an infection of some kind and just need to take some antibiotics. I would be overjoyed if that was actually the case. But I have some amazing doctors and they didn’t come up with this diagnosis lightly.

What does dementia look like? There is no cast or bandage to put on it. I guess I could wear a flashing neon sign that says, “HELLO, I HAVE EARLY ONSET DEMENTIA!” that lets people know of my latest diagnosis.

But seriously, I am walking through a very new and strange season of life, but I know I am not the only one. It simply gets frustrating when people decide to find a different diagnosis or make you doubt your current state of health because they do not like the diagnosis. It can be irritating and cruel when people doubt you and your medical team. Believe me, no one wants to sit in a doctor’s office and hear the words “You have early onset dementia.”

I do think that part of this attitude is because people have a hard time believing someone in their 50’s could have an “old person’s” disease. Also the topic of dementia is not an easy or fun subject to talk about. It can be easier to just ignore it or try to explain it away.

I also believe people have their own preconceived beliefs about dementia and I and many others suffering from this horrible disease do not fit in their picture of dementia.

So please do me a favor. Stop putting your personal beliefs or opinions on those suffering from a visually invisible disease or one that you don’t like. Life with dementia is already hard enough. Thanks for listening. ~OC

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The Race Called Life

Today’s a new day! During my running days, I was blessed to complete 350 marathons. Yes, you read that correctly. I can take no credit. It was all God pushing me through those marathons. People often ask me why I ran 350 marathons? I tell them I did not like the number 349.

It’s been a number of years since I was able to run based on my health issues. While I would have never considered myself a professional by any means, I like to think I learned a few things during my running days. Like how to stabilize my breathing (well, I did my best) and how to run at a steady pace. Once again I tried my best. Running is a lot like living the Christian life. We have many lessons to learn. I learned a lot of lessons during my running days that I have been able to apply to my Christian journey.

One of the first lessons you learn when you start running is that you need to have endurance. Whether you’re running a 5K or a 50 miler (yes, I did that), you need to train so that you can run at a steady pace and not get worn out quickly.

The Christian life requires endurance as well. Life can seem long and hard as Christians, especially in the midst of challenges. Many people have made the comparison that life is a marathon, not a sprint, and the same goes for the Christian life. As the writer of Hebrews says, “For you have need of endurance, so that when you have done the will of God you may receive what is promised” (Hebrews 10:36).

When you’re running, especially long distances, you want to lay aside everything that could weigh you down so that you only have the essentials. Lightweight shoes and light breathable clothing. As a runner you need to find the perfect balance between bringing what is necessary and those things that would just weigh you down.

In the Christian life, we are called to lay aside what weighs us down—namely, sin and any idols in our lives. Hanging on to those idols can cause our faith to falter and stumble. Letting go of idols in our lives frees us to live a life that is dedicated to Jesus. As the writer of Hebrews says:

“Therefore, since we are surrounded by so great a cloud of witnesses, let us also lay aside every weight, and sin which clings so closely, and let us run with endurance the race that is set before us, looking to Jesus, the founder and perfecter of our faith, who for the joy that was set before Him endured the cross, despising the shame, and is seated at the right hand of the throne of God.” (Hebrews 12:1–2)

As a runner, you come across trials and challenges. Whether that’s a heatwave, snowstorm, rainstorm, or injury, runners face challenges that impact their race. You can never predict these trials and instead you just have to take them as they come. But you cannot allow the obstacles in life to keep you from living the race God has designed just for you.

In the same way, as Christians we can face unexpected challenges and suffering. From a poor diagnosis, a lost relationship, a lost job or a broken family. This race called life can be difficult. But thankfully, we are being made perfect through the grace of God. As James writes in James 1:2-4, “Count it all joy, my brothers, when you meet trials of various kinds, for you know that the testing of your faith produces steadfastness. And let steadfastness have its full effect, that you may be perfect and complete, lacking in nothing”

My prayer is that we will all run this race called life with endurance and receive the beautiful gift of eternal life. ~OC

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